Supporting research to make patients, and the NHS, better

Open Data within Clinical ResearchRichard Corbridge

Evolution & Creation of Research Capability

George Dyson - Turing’s Cathedral

Unattributed quote - Clinical Research Community

There are two types of creation myths:those where life arises from mud, and those where life falls from the sky. In our myth computers arose from the mud, and code fell from the sky.

Successful clinical research outcomes happen in two ways: moments of unplanned genius occurring under pressure and as a reaction to

environments, and those where organisational intelligence is applied to ensure that delivery of a health outcome is probable and possible and

where evidence is overwhelming to prove the benefit.

Evolution & Creation of Research Capability

Sir Andrew Witty, CEO, GlaxoSmithKline

Clinical research is most akin to a mine, a great deal of waste rock requiring huge effort has to be removed before the rich seam of discovery

can be got at.

Three things we have to do with informatics to hit the rich seam

Innovate, INNOVATE, Innovate

Remove COMPLEXITY for researchers and participants

Increase TRANSPARENCY of inputs and outputs

132

The needle in the BIG DATA haystack

Ope

n Da

ta P

latfo

rm (O

DP)

Higher Quality Lower Cost Quicker

The needle in the BIG DATA haystack

What is OPEN DATA?

The comedy answer is DATA that is OPEN…

But it is as simple as that…

Open data - data that can be made use of by anyone through analysis, linkages, and evidence based delivery.

Real World Data – the Big Data of 2013!

The needle in the BIG DATA haystack

John Wilbanks, VP Science, Creative Commons

Until now…

UK PLC and a number of global Pharma all now have an Open Data strategy and will, in 2013, move to facilitate the use of BIG DATA in an

OPEN way

Numerous scientists have pointed out the irony that right at the historical moment when we have the technologies to permit worldwide availability and

distributed process of scientific data, broadening collaboration and accelerating the pace and depth of discovery we are busy locking up that data

and preventing the use of correspondingly advanced technologies on knowledge

Blackpool Rock

DataInformation

InsightIntelligence

Supporting research to make patients, and the NHS, better

Open Data within Clinical ResearchRichard Corbridge