NOTHING ABOUT US WITHOUT US

A WORKSHOP TO EXPLORE HOW WE CAN WORK TOGETHER TO PUSH FOR CHANGE

PROMOTING INDEPENDENCE, INCLUSIVE LIVING

AND A CREDIBLE VOICE FOR EVERYONE WHO USES SERVICES IN REDBRIDGE

AUGUST 2010

Table of Contents

Executive Summary 2

Jargon Buster 5

Introduction 7

Background 7

Purpose of the Workshop 7

The national policy context: Transforming Adult Social Care 7

Creating a User Led Organisation: What has happened so far? 10

The Purpose of the workshop 11

Workshop Summary 13

Key Recommendations from the Workshop: 13

The Guest Speakers 15

Question and Answer Session 16

Possible roles for the User Led Organisation 18

Appendix 1: 20

Organisations who attended 20

Appendix 2: Documents 21

Appendix 3: Equality, Diversity and Evaluation of Event 22

Appendix 4: Redbridge User Led Organisation Road Map 24

1

Executive Summary

The Vision

P r o m o t i n g i n d e p e n d e n c e ,

inclusive living and a credible

voice for everyone who uses

services in Redbridge

The Key Messages

1. The Role of User Led Organisation.The express wish of attendees was that the

User Led Organisation should have a

prominent ‘engagement’ role in Redbridge.

This is compatible with a brokerage type of

function.

2. Tell people what the User Led Organisation is doing

The User Led Organisation should have its

own website to publicise all decisions and

activities.

3. Involve more service usersGreater involvement of users of services is

essential. This might be achieved via the

Redbridge User Reference Group. Users of

services must have greater influence upon

decisions made by the Steering Group.

4. Go out and meet peopleConnect with individual organisations to

explain the User Led Organisation process

and the reasons for it. This should include

minority groups and groups supporting

people with learning difficulties.

5. Language we use Other groups, carers, older people, minority

organisations, must feel more involved in

this process. For example, the term ‘user of

services’ might be misleading.

Social care is an issue that can touch the

lives of every family whether we are carers,

old or young, disabled people, experiencing

mental health conditions or from a black

and ethnic minority group. People who use

local services and their families want and

expect choice, control, dignity, respect and

equality to be at the heart of service

provision. People also quite rightly insist on

the right type of support and care. All these

elements are essential to ensure that

everyone has the opportunity to make the

most of their chances in their life as well as

to lead fulfilling, flourishing and purposeful

lives.

The journey for the Redbridge community

started back in June 2009 when Adult

Soc ia l Ca re and loca l g rass roo ts

organisations in Redbridge agreed to

2

explore the potential of setting up a User

Led Organisation (ULO) in Redbridge. Over

the last year, the ULO Steering Group has

talked to a wide range of people and

organisations culminating in the Workshop

at the end of April 2010: ‘Nothing about us

without us’

The event received wide support. 81

people attended of which over half identified

themselves as users of local services. There

were also representatives or users from over

30 different organisations including: social

care; the NHS; independent; third sector

and service user organisations. A wide and

diverse range of people turned up including:

carers; older people; people with a learning

disability; people with mental health

cond i t i ons ; phys i ca l and senso r y

impairments; long term chronic conditions;

young and old and people from minority

communities.

The Purpose of the workshop

The purpose was, first, to inform them of

the progress that had been made in

Redbridge towards developing a User Led

Organisat ion. Second, was to ask

participants what roles a User Led

Organisation should play in Redbridge.

These objectives are in line with the

Transforming Adult Social Care initiative.

From April 2011, “anybody who receives

social care support will have genuine choice

and control over the services they receive

and the way they receive them.”

The Guest Speakers

The first part of the day was given over to

three main speakers. They were John

Powell, the Director of Adult Social Services

in Redbridge, Nick Danagher, a member of

Equality 2025, UK Government Network on

Disability Equality and Neil Nerva, part of the

London Division of the Department of

Health. Each spoke about how important

this development is and how committed

they were to establishing a ULO & Centre

for Independent Living in Redbridge it.

Indeed, it should be remembered that

without Transforming Adult Social Services

funding to support this process from the

London Borough of Redbridge it is unlikely

we could have got to this point in the User

Led Organisation’s development.

The Role of the User Led Organi-sation

The rest of the day was given over to the

Workshop participants. They were first

asked for their opinions about the progress

so far. In the second part participants were

asked to select the roles they wanted the

User Led Organisation to play in Redbridge.

Overwhelmingly, the participants wanted it

to be a “Campaigning organization” that

gives a louder voice to people that may not

be able to express their needs as individuals

and a One-stop shop that could provide

services including Brokerage

3

Strategic Direction

Having listened to the views of local people

we are now ready to take the next step

towards independence.  This report

summarises our vision for the future based

on the findings from the workshops and the

discussion and debates we have had with

various stakeholders, local service users

and policy makers over the last year.

• It must be controlled and run by the people using its services

• It must be a universal service that anyone, experiencing barriers, serv-ice user or not, will be welcome to use

• Empower people to have greater control over their lives, by helping them make meaningful choices

• give people a louder voice to influ-ence decisions that affect their lives

• take forward issues voiced by  the membership including those raised at the workshops

• Provide advice, information and bro-kerage support

• Use and promote plain language• Build on the work already provided

by the voluntary sector, to provide a unique service, across service user and carer groups based on individual needs ;

• Let people know what it is doing and involve more seldom heard citizens using a range of methods including an internet website, easy read and translated material etc 

• Promote  greater inclusion, inde-pendence and health and well being

• Work with local organisations to as-sist with the delivery of local strategic priorities.

• It must meet its obligations and commitments to funders

4

User Led Organisation Steering Group Members

Age Concern Redbridge - London Borough of Redbridge - Redbridge Carers Support

Service - Redbridge Concern For Mental Health - Redbridge LINk - Redbridge Disability

Association - Redbridge Forum for People with a Learning Disability - Redbridge People

First - RUN-UP - The Daffodil Advocacy Project - RADAR (The Royal Association for

Disability Rights) - Refugee and Migrant Forum for East London - Redbridge Children &

Young People's Network

Jargon BusterIt is helpful to set out some definitions of

words and phrases used in this report.

User Led Organisation

User-led organisations are those where the

people who the organisation represents or

provides a service to, have a majority on the

Management Committee or Board, and

where there is clear accountability to

members and / or service users.

Brokerage

The scope of the Broker’s role includes

helping people to identify the changes they

want to make to their lives; find support

services and community opportunities that

the person requires; negotiate with

providers and prepare community resources

as necessary; cost and write a support plan

and identify and obtain funding.

Centre for Independent Living

Centres of independent living are grass

roots organisations run and controlled by

people who use local services. Their aims

are that people who use services should

have control over their lives and achieve full

participation in society. They work towards

these aims by representing peoples views

both nationally and locally, and by providing

services which promote independent living.

Commissioning

The process by which local authorities

decide how to spend their money to get the

best possible services for local people.

Direct payments

These are monthly payments given to

service users as the means of controlling

their own care - allowing more choice and

flexibility. They enable people to purchase

their own care rather than use council

services.

Individual budgets

Individual budgets (IBs)  give a clear

allocation of cash to an individual to control

the way money is spent to meet his or her

care needs. IBs can bring together a variety

of income streams from different agencies

as well as social care. People can use

individual budgets to 'buy' services from

public, private and voluntary sectors.

Independent living

Means having choice and control over your

life.

Inclusive living

Means being ful ly included in your

community.

Outcomes

The end results or impact something has on

a service user's life eg. Improved quality of

life

5

Personal budget

This is an individual budget made up solely

of social care funding.

Personalisation

The process by which state provided

services can be adapted to suit service

users. This means everyone having choice

and control over the shape of their support

along with a greater emphasis on prevention

and early intervention.

Putting People First

The Government's shared vision and

commitment to the transformation of adult

social care

ReSURG

ReSURG is the Redbridge Service User

Reference Group. It was set up to provide

service user and carer input into the work

that Adult Social Services are doing to

develop more personalised social care. This

is a role that the ULO will carry out in the

future. However, as the ULO Steering Group

is busy setting up the new organisation, it

was decided to set up ReSURG as an

interim measure, with a plan for it to merge

with the ULO when the time is right.

Self-Directed Support

This is the name given to the change  in the

way the whole social care system operates

to give service users the choice, control and

power over the support they receive. It will

replace the current care management

process over the next three years

Service users

Service user means people who need

support and / or equipment in order to go

about their daily lives and who use services

that are provided as part of the welfare

state.

User-led Groups

Are groups run by and for the people they

speak up for. The group is managed and

controlled by its members

The social model of disability

Says that the problem is not someone’s

impairment, illness, frailty or learning

disability but instead, the problem is that

they don’t have the support, equipment or

housing they need and they don’t have

choice and control over their daily lives.

Although the social model of disability was

initially developed by people with physical

impairments, it is just as relevant to people

with a learning disability, older people, and

people with mental health support needs.

6

Introduction

BackgroundThis is a Report of the views and

conc lus ions o f se rv ice use rs and

organisations that attended the ‘Nothing

about us without us’ Workshop on Tuesday

27th April 2010. This event was essential to

ensure that people locally learnt about what

had happened so far. Also, it was important

that people are involved in all future

decisions about the role a User Led

Organisation would have in Redbridge.

Purpose of the WorkshopThere were two reasons why we asked

people who use local services to attend this

Workshop. First, it was to inform them of

the progress that had been made in

Redbridge in developing a User Led

O rgan i sa t i on . One o f t he cen t r a l

requirements identified by the Department

of Health Strategy “Putt ing People

First” (see Appendix 1); Transforming Adult

Social Care, is to develop ways of ensuring

people can exercise choice and control over

their lives. To help give them a voice on

service development through advocacy and

b ro k e r a g e s u p p o r t l i n k e d t o t h e

development of a User Led Organisations in

each region.

The second reason for this Workshop was

to ask the participants what roles a User

Led Organisation in Redbridge should

have? The purpose of a User Led

Organisation is to help the London Borough

of Redbr idge meet i ts agenda for

Transforming Social Care (TASC) locally.

The national policy context: Transforming Adult Social Care There has been a gathering pol icy

momentum leading to local authority and

health service reform. A number of key

7

messages and themes have emerged in

particular that public sector services will

have to change the way they look after

people. In particular by putting service users

at the heart of the process; enabling them

to decide what care, support or service will

meet their needs in the best way possible,

how it should be provided with an emphasis

on supporting people to live independently

and to have choice and control over the

way they wish to live their lives

In January 2005, in Improving the life

chances o f d i s ab l ed peop l e , t he

Government set out an ambitious vision that

“By 2025, disabled people in Britain should

have full opportunities and choices to

improve their quality of life and will be

respected and included as equal members

of society.”[1] Promoting independent living

and the active participation of disabled

people in the design, del ivery and

monitoring of resources and services are

recognised as being fundamental to the

process of improving their life chances.

Improving the life chances of disabled

people also made the recommendation that

“By 2010, each locality (defined as that area

covered by a Council with social services

responsibilities) should have a user-led

organisation modelled on existing Centres

for Independent Living”[see appendix 2].

Putting People First (December 2007) has

an objective “Support for at least one local

user led organisation and mainstream

mechanisms to develop networks which

ensure people using services and their

families have a collective voice, influencing

policy and provision”.[see appendix 2]

The March 2009 Transforming Adult Social

Care local authority circular (LAC) states that

a core component should be “An enabling

framework to ensure people can exercise

choice and control with accessible

advocacy, peer support and brokerage

systems with strong links to user led

organisations. Where ULOs do not exist, a

strategy to foster, stimulate and develop

user led organisations locally.”[Appendix 2]

The Local Authority intends to change the

way services are provided to adults  in

Redbridge. From April 2011 “anybody who

receives social care support will have

genuine choice and control over the

services they receive and the way they

receive them. (see Appendix 1 for link)

8

A User Led Organisation is an organisation that is run and controlled by people who use support services including people with physical and/or sensory impairments, mental health service users, people with a learn-ing difficulty, older people, and their families and carers.

Social Care Institute for excellence (2009) ”

“

There are four areas in which this will be

achieved.

The four areas are:

• UNIVERSAL SERVICES. This

means creating general support and

services available to everyone locally

(universal services). These services

including things like transport, leisure,

education, health, housing, community

safety and access to information and

advice.

• E A R LY I N T E R V E N T I O N &

PREVENTION SERVICES. This is

about the support available to assist

people who need a little more help, at an

early stage to stay independent for as long

as possible. For example, support to

recover from the effects of illness or help

to manage a long- term condition from

someone with experience of a similar

condition. It can even be job training,

gardening or exercise.

• CHOICE AND CONTROL. This

about self-directed support. This means

having services available to meet people’s

needs rather than people having to fit in

with the things on offer. People who need

support should be able to choose who

provides that support, and control when

and where the services are provided.

• SOCIAL CAPITAL. This is key and

means engaging with people to show

them how they can influence the decisions

that affect their lives. People who have

support needs, their carers and others

who find support difficult to access need

to be encouraged to be part of those

discussions about community life.

How The User Led Organisation

helps this

A User-Led Organisation will play an

important role in transforming the way

services are delivered. It will be a vehicle

through which people can make their views

know. The User-Led Organisation will also

deliver unique services that people want

and cannot be easily run by smaller

organizations. Finally, it will be the place

where advice and information can be easily

found.

Redbridge began the process of creating a

local User Led Organisation in March 2009

with a Report to the Redbridge Health &

Social Care Advisory Committee (Appendix

1). Since then a number events have taken

place, which have lead to where we are

today.

9

Creating a User Led Organisation: What has happened so far?

DATE EVENT

April 2009 Public meeting about how TASC will inform the Commissioning Strategy

June 2009 Developing a User Led Organisation in Redbridge Workshop: This began

discussions with service users and existing user led organisations about

how to become a User Led Organisation – (see appendix 2 for doc).

September 2009 Workshop to Develop a model for User and Carer involvement. From this

Workshop the Redbridge User Reference Group was established

(ReSURG) – (see appendix 2 for doc).

October 2009 The Voluntary Sector produced their ‘ROAD MAP” to the establishment

of a ULO – (see appendix 1 for Road Map link)

November 2009 London Borough of Redbridge accepted the Report and Road Map as

the route to be taken to establish a ULO in Redbridge.

January 2010 First meeting of User Led Organisation Steering Group. This group is

charged with creating the User Led Organisation.

March 2010 ReSURG met and endorsed progress so far.

April 2010 Stakeholder Group met and chose structure of the User Led

Organisation.

10

The Purpose of the workshop

The first aim of the workshop was to ask

participants for their views about the

progress made so far towards establishing a

User Led Organisation in Redbridge. The

second aim was to ask attendees to state

their preferred choice of role a User Led

Organisation might have in Redbridge. The

choices were set within Transforming Adult

Social Care Agenda. They also had an

opportunity to raise any “burning issues”

that they had and which would be recorded

and taken up at a later date. Finally,

evaluation forms were handed out at the

end of the event to give participants the

opportunity to comment on the quality of

the Workshop and also to suggest ways in

which to improve communication and

subsequent involvement..

The Visual Journey

To aid the recording of the

event, a graphic artist (Ryan

Jones) was commissioned to

capture people’s views in a

graphical representation. Quite,

simply this provided a visual

representation of everything that

happened at the Workshop. This picture

was in the form of a journey. This allowed

people to follow the proceedings visually,

and enabled the artist to capture all the

presentations, the responses of the

attendees, and feedback at the event.

Limitations

The scope of the Workshop was to provide

information about the progress of the User-

Led Organisation’s development and, more

important ly, to g ive at tendees the

opportunity to influence the next steps in its

development. Its aim was also to encourage

greater involvement in this process. There

were no pre-meetings to better inform

attendees. This did place some at a

disadvantage. Nor did we distinguish

between employees of organisations and

service users when we asked for people’s

11

views. It is estimated that more than half of

those who attended were made up of

people who use services. Finally, attendees

were asked to choose the role they wished

to see the User Led Organisation adopt in

Redbridge. They were reminded that the

role of the User Led Organisation has yet to

be determined. Their views would not be

binding and the User Led Organisation

might do other things. However, their

opinions stated at this Workshop will

significantly influence what the User Led

Organisation will eventually do.

Despite widespread publicity, it is likely that

many people were unaware of this event or

could not attend. This Workshop is only one

smal l part of the engagement and

involvement of users of services in

Redbridge. There will be many subsequent

meetings and events, large and small, to

maintain the momentum begun at this

Workshop.

12

ULOs are local and driven by what their users know works for them. With the right level of resources they could be a power-house for social change towards full participation for all as equal citizens because their voice is authentic.

Maynard-Campbell 2007 ”

“

Workshop Summary

The workshop involved 81 participants.

These included service users and voluntary

sector organisations. The purpose of the

event was to, first, inform them of the

progress that had been made in Redbridge

in developing a User Led Organisation. The

second was to ask the participants what

roles the User Led Organisation in

Redbridge could potentially take on.

Key Recommendations from the Workshop:

1. The Ro le o f User Led

Organisation

The express wish of attendees was that the

User Led Organisation should have a

prominent ‘engagement’ role in Redbridge

and to act as a forum where users of local

services can voice their views and opinions

in effect to be a ‘coalition of voices’ .

This clearly ties in with the transformation

programme set out by Department of Health

Local Authority Circular (March 2010 - see

appendix 2 for reference) based on the

principles of “nothing about us without us”.

According to the Circular: “This is a phrase

widely used by those users and carers who

want to contribute to the transformation of

services. At the heart of personalisation are

the principles of empowering customers to

take more control over their lives, and to

assist them in making choices as to how

and when their care and support needs are

met. It is expected that not only will all

service users understand what the changes

will mean for them but also that those who

want to contribute to the development of

new services and new ideas can do so

alongside the local authority as partners in

delivering the local transformation.”

This is also clearly compatible with a

brokerage type of function.

13

2. Tell people what the User

Led Organisation is doing

The User Led Organisation should have its

own website to publicise all decisions and

activities.

3. Involve more service users

Greater involvement of users of services is

essential. This might be done via the

Redbridge User Reference Group. They

must have greater influence upon decisions

made by the Steering Group.

4. Go out and meet people

Meet with individual organisations to explain

the User Led Organisation process and the

reasons for it. This should include minority

groups and groups supporting people with

learning difficulties and a learning disability.

5. Language we use

Other groups, carers, older people, minority

organisations, must feel more involved in

this process. For example, the term ‘user of

services’ might be misleading.

14

A lot of thought is going into forming a User Led Organisa-tion which will co-ordinate many issues that other smaller organisations either struggle or cannot cope with. In es-sence to give a stronger voice to people with a disability so they do not remain invisible.

”

“

The Guest Speakers

John Powell, Director of Adult

Social Services

John reminded us of the London Borough

of Redbridge’s great commitment to choice

and control for all users of services. Also,

how important a User-Led Organisation will

be to the Local Authority in helping it deliver

better services in Redbridge.

We would like to take this opportunity to

thank the London Borough of Redbridge for

the many thousands of pounds they have

committed to this Project.

A special thanks, also, to John for finding

the time to attend, despite being delayed

abroad by the Icelandic Volcanic Ash!

Nick Danagher, member of

Equality 2025, UK Government

Network on Disability Equality

NICK DANAGHER was also a guest

speaker. Nick reminded us of the historic

context of the struggle disabled people have

had to gain control of their lives. The title

‘nothing about us, without us’ is

symbolic of the purpose of a User Led

Organisation. It is to empower disabled

people and help them exercise choice and

control over their lives.

Neil Nerva, London Division of the

Department of Health

Like John Powell, NEIL NERVA kindly

reprised his role as guest speaker, a role he

undertook at the June 2009 Workshop. Neil

spoke of the hope to see more adventurous

services supported by Local Authorities. He,

also, recognised the difficulties that might

be faced when establishing a User Led

Organisation. However, he applauded the

‘coalition’ model approach Redbridge has

chosen to ensure User Led Organisation

representation. He saw it as accountable

and representative, both key to ensuring

that the voices of users of services are

heard.

We would like to thank all the speakers for

taking the time to attend the Workshop.

15

Supporting people to become active citizens would be part of providing in-formation. There’s no point in just having information for information’s sake. There are lots of elements on this list which could be put together.

”“

Question and Answer Session

This session followed a description of what

had taken place over the last year in

developing the User-Led Organisation.

People were invited to ask questions in

response to what they had heard. Below is

a summary of the themes that came from

those questions.

Confusion about the ULO’s role

and how we can get involved

Many people felt they or their organisation

had not had an opportunity to get involved.

It was suggested that those responsible

should have smaller meetings with individual

groups to explain what had happened.

The User Led Organisation could

be the interface between a union

of small organisations, users and

the local authority

It was felt that services and service user

groups were very fragmented. That,

participation of users and their organisation

were always after the decisions had been

made. Users were merely asked to ‘rubber

stamp’ decisions already made.

The ULO must be accessible to all

There was a concern that key information

would only be web based. Many users and

families did not use information technology.

They would be penalised. The User Led

Organisation should ensure all had equal

access to information.

Some also felt the language used in the

workshop was far too complex and

excluded many who attended. It was

suggested that smaller meetings to explain

the issues more clearly would be very

useful.

Concerns raised about what a

User Led Organisation would be

like

A large User Led Organisation that

represented everybody would lose the

‘spontaneity’ of a smaller organisation.

There was little trust in a very conservative

Local authority to be innovative with

services. Can we believe in all this ‘user

control’ rhetoric? The view was that there

was no outcome-based accountability when

performance measures fail to be delivered.

“Whose measures do we accept? What

about the outcomes that the users have?”

How it relates to us: Real Life

A few users gave examples of being bullied

and harassed by children or neighbours

because of their disability or beliefs. They

wanted a User Led Organisation that

considered wider social issues to be

important, not just social care issues.

They considered early intervention and

prevention to be vital. A User Led

16

Organisation should use and support the

existing voluntary sector to have area

meetings especially to break down stigma

at grass-roots level.

The User Led Organisation and

children and carer’s of disabled

children

People who are carers of disabled children

wanted to know whether the User Led

Organisation would represent them?

It is important to state here that all the focus

is on adult social care. The funding of the

User Led Organisation and the people it will

be expected to assist will be adults who use

adult social care services. It is not yet clear if

this will include young people in ‘transition’

or not.

17

When you look at the feedback people gave, most of the points made were about individual rights. We need to be able to advo-cate for our communities. Our voices need to be heard first – who is campaigning for you? It’s not campaigning where you tie yourself to railings but about having clear representation to the local authority.

”

“

Possible roles for the User Led Organisation

We asked the participants what roles they

thought a User-Led Organisation should

have? To assist this process, the attendees

were given a list of 5 options to choose

from.

The list from which people were asked

to select from were:

1. A One-Stop Information Shop.

2. A centre to help people to plan and

find  the care and support services

they need (Brokerage).

3. A campaigning organisation.

4. Supporting people to be active

citizens (community engagement).

5. Building and supporting community

network

The Most Popu lar Cho ice : A

campaigning voice that empowers and

engages local service users

Of this, attendees said:

“When you look at the feedback people

gave, most of the points made were about

individual rights. We need to be able to

advocate for our communities. Our voices

need to be heard first – who is campaigning

for you? It’s not campaigning where you tie

18

yourself to railings but about having clear

representation to the local authority.”

Also:

“Are we reinventing the wheel with

some of these ideas? It would be

useful to capacity build the existing

organisations to provide the best care,

but the campaigning issue is the most

important potential function of a ULO.

Is there an issue of not actually being

able to campaign if you are in receipt

of public money? You can’t criticise

the local council if they are funding

you.”

Second most popular choice: One stop

shop and a Brokerage service

The majority of attendees agreed that both

a one-stop shop and brokerage and advice

are services they would like the User Led

Organisation to run.

“There was a concern of what you

mean by a one stop shop. If it’s just a

leaflet drop then forget it. But if it

offered brokerage and campaigning

we could accept that. But we thought

a ULO should incorporate all the

options and no one could exist without

the other. So we thought the ULO

should be a hub which actually

undertakes the campaigning on behalf

of individuals, but the overriding thing

about it is for it to maintain its

independence and autonomy.”

Also:

“Our organisation is isolated because

we are faith based. It makes it harder

for us to be integrated with the wider

r a n g e o f g r o u p s , w h i c h h a s

implications for our funding.”

19

“Supporting people to become active citizens would be part of providing in-formation. There’s no point in just hav-ing information for information’s sake. There are lots of elements on this list which could be put together.”

”

“

Appendix 1: Organisations who attended

Air Football

Department of Health

Indigo Project - Transition Group

Intake and Brief Intervention Team

Interface Redbridge

Jewish Care's Mitkadem Centre for Wellbeing

London Borough of Redbridge

NHS Redbridge

North East London NHS Foundation Trust

Pensioner's Forum

People's Platform

Redbridge Carers Support Service

Redbridge Concern For Mental Health

Redbridge CVS

Redbridge Disability Association

Redbridge Forum for People with a Learning Disability

Redbridge Indian Welfare Association

Redbridge Link

Redbridge Music Lounge

Redbridge People First

Redbridge Resource Centre

Redbridge Transport

Refugee & Migrant Forum of East Lon-don (RAMFEL)

Re-Start (working with ex-offenders)

Richmond Fellowship Employment Service Redbridge

RUN-UP

Sikh Community Care Project

Springboard

The Daffodil Advocacy Project

The Royal Association for Disability Rights

Thinkarts

Uniting Friends

Thanks to:

Maddy Edwards, BASIS Coach

Maggie and her team at the Blue River Cafe

Ryan Jones, the graphic artist

The Parish Church & Community Centre of

St Paul's Goodmayes for use of the venue.

Chris Wyatt and the Redbridge Music

Lounge

Roxanne Keynejad, for taking the notes and

collating them

Elliott Tucker for producing a film of the

event

20

Appendix 2: Documents

Developing a model for Service User and Carer Involvement in the Transforming Adult Social

Care Programme, Sept 2009. http://www.redbridge.gov.uk/ (Search on ‘transforming‘)

accessed May 6, 2010

Developing a User Led Organisation in Redbridge, June 2009http://www.redbridge.gov.uk/

(Search on ‘transforming‘) accessed May 6, 2010

Putting people first: a shared vision and commitment to the transformation of adult social

care; DH (2007) http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/

PublicationsPolicyAndGuidance/DH_081118 accessed May 6, 2010

Put t i ng Peop le F i r s t : Trans fo rm ing Adu l t Soc ia l Ca re webs i t e : h t tp : / /

www.puttingpeoplefirst.org.uk/ accessed May 6, 2010

Redbridge User Led Organisation Update to REDBRIDGE HEALTH AND SOCIAL CARE

ADVISORY COMMITTEE, March 2009. http://www.redbridge.gov.uk/ (search on

‘transforming‘) accessed May 6, 2010

Road Map - Redbridge ULO Roadmap Stakeholder Event October 22nd Endorse Report

Accountability to users of ULO Relationship to stakeholders Next Step. http://

www.redbridge.gov.uk/ (Search on ‘Road Map’) accessed May 6, 2010

Local Authority Circular LAC (DH) (29 March 2010) 1, TRANSFORMING ADULT SOCIAL

CARE – the Social Care Reform Grants, http://www.dh.gov.uk/prod_consum_dh/groups/

dh_digitalassets/documents/digitalasset/dh_114790.pdf

21

Appendix 3: Equality, Diversity and Evaluation of Event

22

44%

2%15%

2%

21%

4%

12%

ChristianHinduJewishMuslimNoneSikhDid not Respond

Faith

2%10%

6%

4%

62%

4%

2%2%

2%6%

Black AfricanBlack CaribbeanIndianMixed EthnicityWhite BritishWhite IrishBrown BritishChineseJewishDid Not Respond

Ethnicity (Some of the categories below reflect self-defined identities)

2%10%

6%

4%

62%

4%

2%2%

2%6%

Black AfricanBlack CaribbeanIndianMixed EthnicityWhite BritishWhite IrishBrown BritishChineseJewishDid Not Respond

23

12%

47%

19%

8%

8%

6%

25 to 3435 to 4950 to 6565+Under 25Did not respond

Age

15%

47%

13%

19%

6%

Strongly agree

Agree

Disagree

Don't know

Did not answer

I found out all Iwanted to know

Appendix 4: Redbridge User Led Organisation Road Map

24

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Produced and published by Redbridge Concern for Mental Health

To discuss the report please contact:

Jon Abrams

020 8925 2435

jon@redbridgeconcern.org

Equality

Dignity

Support

Respect

Choice

Voice

Control