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©2015 Acquired Brain Injury Network of Pennsylvania, Inc.

PERMISSION GRANTED TO PHOTOCOPY AND DISTRIBUTE UNCHANGED AND AT NO CHARGE TO ALL WHO ARE INTERESTED.

ACQUIRED BRAIN INJURY NETWORK NEWS March 1, 2015—2015/#03—98th Issue

215.699.2139, 800.516.8052, Fx: 215.699.5139

2275 Glenview Drive, Lansdale PA 19446.6082

[email protected] www.abin-pa.org

“Empowering Survivors and Families to Rebuild Their Lives.”

Register by April 4th!

CELEBRATE & CONNECT: ABIN-PA’s 8TH ANNIVERSARY

PHILADELPHIA LUNCHEON

Saturday, April 11, 2015

11:30 AM—3:30 PM

GUESTS: Representatives Tom Murt & Tim Briggs

SPEAKERS (See page 3):

Managing Your Money

Mary Beth Morgan, Liberty Resources

Recovering Thru Music

Joe Romano, Music Therapist

Epilepsy After Brain Injury

Susan Bolno, Epilepsy Foundation

REGISTRATION DUE BY APRIL 4TH

REGISTER ONLINE by credit card.

REGISTER BY MAIL—Print the registration

form online or request by phone or

email. Payment due by April 4th.

SCHOLARSHIP REQUESTS—Print the form

online or request by phone or email.

EXHIBITORS & SPONSORS Print form online or request by email.

Also looking for Door Prize, Silent

Auction & Basket Raffle Items

CROWNE PLAZA PHILADELPHA WEST

4010 City Avenue, Philadelphia PA 19131

(215) 458-2123, www.cpphilawest.com

INDEX—IN THIS ISSUE 1. Philadelphia & Pittsburgh Luncheons; Index

2. Events; Board Meeting

3. Philadelphia 4/11 Speakers; Donors

4. Exercise Helps Your Brain; Resources

5. Pittsburgh 5/30 Speakers; ABIN-PA Roster

6. Second Chance; Rates; Funding; Mission

7. Speech/Language Pathologists & Sports

Concussion Management

8. Neurofeedback for TBI (Holly Grimm, MSW)

9. Concussion Series; Community First Choice

10. Sign Up; Request Info; Register; Donate

BOOKMARK AMAZON LINK AT

abin-pa.org ~~~~

VISIT TWO FACEBOOK

SITES!

Register by May 23rd!

CELEBRATE & CONNECT: ABIN-PA’s 8TH ANNIVERSARY

PITTSBURGH LUNCHEON

Saturday, May 30, 2015

11:30 AM—3:30 PM

MENU: Veggies & Assorted Dips, Cucumber & Tomato

Salad with Fresh Mint, Braised Brisket of Angus Beef

with Molasses Based Barbeque Sauce, Pecan

Crusted Baked Chicken, Penne Tossed in Fresh

Marinara Sauce, Macaroni & Cheese, Fresh

Vegetable Medley, Freshly Baked Cookies

SPEAKERS (See Page 5): Constance Haber, DC - Chiropractic,

Interactive Metronome, Thermography

Betsy Reiling, MPH, CCH - Homeopathy

Hans Lessman, OD - Mobilize Your Recovery

By Improving Functional Vision

CLASS Building, Swissvale

1400 Braddock Ave., Pittsburgh PA



ABIN-PA NETWORK NEWS—March 1, 2015—

EVENTS March 12—Webcast. Sports Concussion. Pg.7

March 13—Philadelphia. Free conference.

UPenn. www.PennMedicine.org/MYB

March 23—Norristown Area Brain Injury

Support Group—Mercy Suburban Hospital,

(2nd Floor, Walkup Boardroom)

April 11—Philadelphia—ABIN-PA’s 8th

Anniversary Luncheon—pgs. 1 & 3

May 14—Plymouth Meeting Friends School—

Homeopathy/Brain Injury, Peter Prociuk, MD.

May 30—Pittsburgh—ABIN-PA’s 8th

Anniversary Luncheon - pgs. 1 & 5

June 20—Blue Bell—Military Families

Appreciation Day—Free—includes lunch.

Montgomery County Community College

ABIN-PA’S FEBRUARY

BOARD MEETING

Board Members Present: Barry Childress, Barb

Dively, Erikka Johnston, Tom Kisling, George

Matwiejczyk, Joan Steinberg.

Others Present: Renee Austin, John Dively,

Kristen Ahrens.

1. Presentation by Kristen Ahrens of Temple’s

Institute for Disabilities on her project to

add Support Brokers to all waivers to aid

participants using self-directed model.

2. December closing balance $19,683.37.

3. PayChex now handling payroll as no

bookkeeping breakdown with ADP.

4. 990 EZ—Bill Smith awaits IRS form release.

5. 2015 Budget for $36,877 passed.

6. Board Development Committee—Info

from Ed Brubacker of Living Branches.

7. February—1,327 newsletters sent.

8. September Walk/Stroll/Roll at

Montgomery County Com. College—

Joan Steinberg will handle.

9. Approved $150 portion of cost for

legislative brunch by Brain Injury Coalition.

10. Volunteer Structure Workgroup met

2/14/2015. Next meeting 2/28/2015.

Members of group are Catherine

Chambers, Barb Dively, Anne Gaspich,

Corinne Gries, Joan Steinberg, Pat Strenk.

11. To address board: March—Jean Hurd

PhD, Advisory Panel.

12. Bill for independent TBI Advisory Board

dropped at Coalition’s request.

13. Renee donating necklace for 4/11 event.

14. Joan to coordinate Silent Auction &

Basket Raffle for 4/11 Philly luncheon.

15. George shared our info with collleagues

at a conference in Las Vegas, CA.

BOARD MEETING SCHEDULE 2-4 pm, Sundays

Call-in: 857-216-6700 PassCode:127105

Mar 15, Apr 19, May 17, Jun 14, Jul 19,

Aug 16, Sep 20, Oct 18, Nov15, Dec13

Main Line Rehabilitation Associates, Inc.

Home & Community Based

Cognitive Rehabilitation Therapy Serving Eastern Pennsylvania and

the Greater Pittsburgh Area

www.mainline-rehab.com

877- 480-6714

Cognitive Rehabilitation Therapy

Rooted in

Hope

Results

Achievement

http://www.pennmedicine.org/myb




THANK YOU TO OUR DONORS!

JANUARY ADDITIONS

John Dively, Robert Drucker,

Stanley Travis

FEBRUARY

Robert Drucker, Kay Rowe, Barry Childress,

Mark Steinberg, Mary Webb

LUNCHEON SPONSOR

Silver—Success Rehabilitation

ABIN-PA LUNCHEON SPEAKERS

APRIL 11th—PHILADELPHIA

Mary Beth Morgan, Liberty Resources -

Managing Your Money to Meet Your Goals

Liberty Resources provides classes in Financial

Management to help people with disabilities

“increase knowledge and skills in handling

money, budgeting, using bank services,

proper credit and debit card use, maintaining

records, filing tax returns, obtaining insurance,

and protecting assets from fraud and theft.”

Use your money to reach your goals. www.libertyresources.org

Joe Romano, Developmental Music -

Stimulating Your Brain To Recover

From Dr. Steve Gallop, a speaker at our

October 2014 Alternatives Conference, “Joe

combines music with movement, visual

processing and other techniques he created,

to help people enhance their visual

information processing abilities. Joe has

enhanced the quality of life of many people

struggling with developmental, behavioral

and learning challenges.” http://vision-therapy-pa.com/blog/

b_30373_my_friend_joe_romano.html

Susan Bolno, Epilepsy Foundation -

Managing Epilepsy After Brain Injury

About 40% of those who experience a

traumatic brain injury will have a seizure at

some later point in their lives. These seizures

are frequently different from what people

expect. Nevertheless, “If you or someone you

love has epilepsy, you may be wondering how

it affects day-to-day life. Will this keep me from

doing the things I enjoy most? How will it

impact my family, relationships, work or

school? In order to live a happy and full life it’s

important to learn how epilepsy can affect

you, what your rights and responsibilities are

and how to find support & resources.” http://www.efepa.org/

http://www.libertyresources.org/

http://vision-therapy-pa.com/blog/b_30373_my_friend_joe_romano.html

http://vision-therapy-pa.com/blog/b_30373_my_friend_joe_romano.html

http://www.efepa.org/




EXERCISE HELPS YOUR BRAIN! By Denise Patterson

Any exercise is good for your brain but

aerobic exercise is the best. Aerobic

exercise helps you get oxygen to your

brain. And oxygen is very important for

someone with a brain injury.

When you get oxygen to your brain, it's like

you are waking up. I:m really unsure of how

to say it. But that's what it does. I'm always

saying to someone I've got to wake up, or I

am waking up.

Water aerobics is the best, especially, if

you're like me, in a wheelchair, most of the

time. Although, if you don't have a pool

available, like me, there are many

wheelchair exercises on YouTube. When you

need someone else, it's hard sometimes.

So, it's good to exercise, even a little!

RESOURCES

ABIN-PA InfoLine 1.800.516.8052

ACA healthcare.gov 1.800.32825.96

Adult & Sr. Protective Services 1.800.490.8505

Aging/Disability Resource Ctrs 1.866.286.3636

Area Agency on Aging (county) Blue Pages

Brain STEPS (Intermediate Unit) Blue Pages

CareerLink (employment services) Blue Pages

Centers for Independent Living 1.717.920.0530

Client Assistance (OVR, CIL’s) 1.888.745.2357

Consumer Protection (state) 1.800.441.2555

Crime Victims Compensations 1.800.233.2339

Defense/Veterans Brain Injury 1.866.966.1020

Disability Rights Network 1.800.692.7443

Domestic Violence Hotline 1.800.799.7233

Epilepsy Foundation-Eastern 1.800.887.7165

Epilepsy Foundation-Western 1.800.361.5885

Head Injury Program (state) 1.717.772.2762

Health Law Project—phlp.org, 1.800.274.3258

Housing—sdhp.org 1.877.550.7347

Legal Aid (low income) Blue Pages

Legal Clinic for the Disabled 1.215.587.3350

Meals on Wheels mealcall.org

Medical Assistance 1.866.542.3015

Medicare Coverage 1.800.633.4227

(Parts A & B have in-home services)

Medicare Denials 1.800.322.1914

Social Security 1.800.772.1213

Special Education Consult Line 1.800.879.2301

Special Kids Network 1.800.986.4550

Vocational Rehabilitation Blue Pages

Voting Issues 1.877.868.3772

Waiver Enrollment-PA IEB 1.877.550.4227

Waiver HelpLine (state) 1.800.757.5042

Women’s Law Project-Eastern 1.215.928.9801

Women’s Law Project-Western 1.412.281.2892



ABIN-PA ROSTER

Board President—Barbara Dively

Vice President—Barry Childress

Treasurer—Megan Herlihy

Secretary—Erikka Johnston

Directors Tom Kisling, George Matwiejczyk, Dan

Rohrback, Madelaine Sayko,

Joan Steinberg.

Staff Executive Director—Barbara Dively

Information Technology—John Dively

Payroll—Megan Herlihy

Voice Messaging—Anna Marie Childress

Clerical Employee—Joyce Shaffer

Advisory Panel Gene Bianco; Michael Durst, Esq.;

Tom Felicetti, PhD; Jean Hurd, PhD;

Shannon Juengst, PhD; Roger Margulies;

Elaine Seiler.


ABIN-PA LUNCHEON SPEAKERS MAY 30th—PITTSBURGH

Constance Haber, DC - Chiropractic,

Interactive Metronome, Thermography Dr. Haber has practiced in the Pittsburgh area

since 1965. She has additional certifications in

biofeedback therapy, pain management,

acupuncture and Chinese medicine and is on the

post-graduate teaching faculty at the National

University of Health Sciences. She has four US

patents for her work in photon therapy and has

four Institutional Review Board Supervised Studies. www.ampmcenter.com/about.html

Betsy Reiling, MPH, CCH -

Homeopathy “I realized my calling as a

Homeopath after I

contracted tropical illnesses

while serving in the Peace

Corps in Africa. Conventional western medicine

could only offer me toxic treatments that weren’t

effective. My search for a non-toxic solution to my

illness led me to discover the power of

homeopathy. This experience taught me the

value of health, and respect for our bodies innate

ability to heal.” www.betsyreilingwellness.com

Hans Lessman, OD – Light & Vision Therapy “Our independent program offers a unique blend

of vision, light, and cognitive therapy. We believe

vision can improve and you along with it.”

visiondevelopmentinstitute.com/eye-exam. Light

therapy (syntonics or optometric phototherapy)

has been used clinically for over 70 years in the

field of optometry with continued success in the

treatment of visual dysfunctions, including

strabismus (eye turns), amblyopia (lazy eye),

focusing and convergence problems, learning

disorders, and the aftereffects of stress and

trauma. In recent years, Syntonics has been shown

to be effective in the treatment of brain injuries

and emotional disorders.” www.collegeofsyntonicoptometry.com

http://www.ampmcenter.com/about.html

http://www.betsyreilingwellness.com/

http://visiondevelopmentinstitute.com/eye-exam/

http://www.collegeofsyntonicoptometry.com/home.html



ABIN-PA’s MISSION ABIN-PA is dedicated to increasing public

awareness about acquired brain injury and

to providing support, education, information,

advocacy and other services for individuals

with acquired brain injury and their families.


2015 NEWSLETTER & WEB ADS

Reach 1,324 subscribers plus 550 each month.

Archived on website. Shared on expo tables.

Ad agreement on request. Fee for formatting.

SECOND CHANCE By Robert Dilg

“Wait once”, my dad said.

“Walk away”, my mom said.

“Yeah, Yeah”, I said.

I didn’t listen. I heard. I heard their words. Only

the words. I did not hear the message.

I was the youngest of three and had a temper. I

would get terribly upset. There had been

violence in my family during my childhood and

my eldest brother “escaped” to Vietnam to get

away from it. He volunteered. I hope that

explains it.

Now I miss them both. I miss listening to them.

And they are gone.

Folk say life is short. They are right. And these

spoken words I listen to. And I hear the message

behind the words. I am old enough now to hear.

Why am I one of those folk who have to

experience near-death to hear? To listen?

Alone on the ground, in fifteen degree

temperature, twenty-six broken bones. Two

punctured lungs. Severe concussion and brain

bleeding, caused by the whiplash of the impact

of the fall.

I hear you, dad. I hear you, mom. Wait once.

Walk away. Gather myself. Look into the eyes of

the soul that stands before me and

acknowledge.

There is time. I may have learned to be patient.

Some folk are wise, attentive, sincere and honest.

Not I. Everything is brick wall and hard. I am

lucky. I got a Second Chance.

Page

Size

Web

Link

11

Issues

Print Ad

Width x Height

1/8 No $665 3 7/16 x 2 3/16

1/8 Yes $965 3 7/16 x 2 3/16

1/4 No $1,109 3 7/16 x 4 1/2

1/4 Yes $1,409 3 7/16 x 4 1/2

1/2 No $1,849 7 1/8 x 4 1/2

1/2 Yes $2,149 7 1/8 x 4 1/2

Web Only $800 Name/Logo 6wds

ASSISTANCE & REHABILITATION

HEAD INJURY PROGRAM—717-772-2762

- TBI only, age 21+, $100,000/1 year max.

WAIVERS—877-550-4227—lifetime

- CommCare (TBI only, age 21+)

- Independence (any disability, 18-59)

- OBRA (18-59, any disability that begins

before age 22).



FROM RESEARCH TO CLINIC AND THE CLASSROOM:

THE ROLE OF SLPS IN SPORTS CONCUSSION MANAGEMENT PA Department of Education, Bureau of Special Education training opportunity.

March 12, 2015—9:00 am - 3:45 pm—Webcast at 35 Different Sites across Pennsylvania

Kristin King attended East Carolina University (ECU) and earned an M.S. Degree in Speech

Language Pathology and Audiology. Her clinical practice involved working in Level One

trauma centers, specializing in traumatic brain injury (TBI) and critical care, consulting with

school systems, and private practice. She served on the NC State Advisory Board for TBI and

was the Principal Investigator for a state-wide, three-system grant to fund TBI services,

education, and research with children for transitioning from hospital to home and school.

Returning to ECU, she pursued her Ph.D. in Communication Sciences and Disorders. She

studied neuropathological disorders, primarily mild TBI, including concussions. She joined the

faculty at the University of Tennessee in August 2008, where she is an assistant professor and

Director of the State Lead Center for Pediatric Acquired Brain Injury. She also has

appointments to the national and international medical advisory boards for the Sarah Jane

Brain Foundation. She currently teaches courses on neuropathological disorders in both

children and adults. In her Neurocognitive Linguistics Research Laboratory, she investigates

attention, memory, processing speed, reading, and language deficits following brain injury.

You may register directly online by selecting your training on the Training Events

Calendar at: http://www.pattan.net/category/Training/Calendar/


http://www.pattan.net/category/Training/Calendar/




THE BENEFITS OF NEUROFEEDBACK FOR TBI Holly A. Grimm, MSW, LCSW

Electrical signals called “brainwaves” allow our brain to communicate within itself and to the rest

of our body. These brainwaves can be measured using an Electroencephalogram (EEG). Brain waves in

EEG’s are divided into different speeds, or frequencies including Delta, Theta, Alpha, and Beta.

People who have had a brain injury incur swelling which can create too many Delta or slow

waves in their brains. This can lead to the often debilitating cognitive issues associated with TBI.

Using neurofeedback, clients effortlessly learn to re-condition their brain to correct unbalanced

brainwave activity. Neurofeedback is essentially “brain training.” Like a muscle, the brain gets stronger

the more it’s trained.

Neurofeedback uses non-invasive sensors placed on the client’s scalp and ears, which record

their brainwaves, and send this information to a computer. The client then watches a video on a screen

in front of them, and when their brainwave pattern moves in the desired direction, the screen becomes

brighter, which rewards them. The client learns how to reduce their slow waves over time by being

rewarded for a positive brainwave pattern.

Traditionally, physicians have indicated that two years after a TBI, patients cannot expect further

significant improvement, and must simply adjust to their deficits. Clinical experience and research thus

far clearly indicate that neurofeedback can produce significant improvements even many years after

a head injury. The accumulating evidence indicates that neurofeedback offers a valuable additional

treatment in the rehabilitation of head injuries. Brandywine Valley Counseling and Neurofeedback Center, West Chester, PA 19382, 610-429-4100



RENEWED INTEREST IN COMMUNITY FIRST CHOICE—1915(k) Information from David Gates, Esq., [email protected] Pennsylvania Health Law Project

Governor Wolf is considering Community First Choice (CFC) for Pennsylvania. This would pay

for some community services under Medicaid for those who are not on a waiver. Individuals

would have to meet the lower income/assets limits for regular Medical Assistance (100%

poverty + $2000 assets) rather than the much higher income/assets for waivers unless PA chose

to qualify people for MA under “spend down” (deducting medical expenses from income).

Federally required services include attendant care and the “acquisition, maintenance and

enhancement of skills for the individual to accomplish ADLs, IADLs and health-related tasks”.

This is similar to “habilitation”. More information to follow in a later issue.

ONLINE "RETURN TO LEARN CONCUSSION" WEBINAR SERIES From Brenda Eagan Brown, BrainSTEPS Director

1. Medical Assessment & Management from Acute to Sub Acute Stages

Gerard Gioia, PhD, Children’s National Medical Center

http://www.pattan.net/Videos/Browse/Single/?code_name=students_k-12_with_concussion_-

_medica

2. Educational Impacts, Return to School Progression, & Symptom Based Accommodations to

Promote Recovery

Brenda Eagan Brown, MEd, CBIS, BrainSTEPS

http://www.pattan.net/Videos/Browse/Single/?code_name=brainsteps_students_k-

12_with_concuss

3. Legal Dimensions for Schools

Perry Zirkel, PhD, JD, LLM, Lehigh University

http://www.pattan.net/Videos/Browse/Single/?

code_name=brainsteps_return_to_learn_fall_2014_we1

4. Vision Issues that Impact Academics & School Day Function

Nathan Steinhafel, M.S., O.D., F.A.A.O. Pediatric & Adult Vision Care



5. Vestibular/Balance Issues that Impact Academics & School Day Function

Lenore Herget, PT, DPT, MEd, Massachusetts General Hospital



6. Supporting Emotional & Mental Health of Students with Protracted Recovery

David Brent, MD, STAR Child & Adolescent Anxiety Clinic




mailto:[email protected]



ACQUIRED BRAIN INJURY NETWORK

OF PENNSYLVANIA, INC.

2275 Glenview Drive

Lansdale PA 19446.6082

ADDRESS SERVICE REQUESTED

SIGN-UP, REGISTER, DONATE—March 1, 2015— Mail to: ABIN-PA, 2275 Glenview Drive, Lansdale PA 19446.

* You can also donate or sign up for the newsletter online at www.abin-pa.org.

Date:_____________Name:____________________________________Phone:______________________

Address:______________________________________________City:________________State:___Zip:____

Apartment /Business:______________________________________ Survivor:___ Family:___ Other:___

Email:___________________________________________________ County:__________________________

*DONATION: Check #________ for $_________ Employer Match_____ United Way: #45813_____

In Memory Of:___________________________ Person to be notified:_____________________________

OR In Honor Of:___________________________________________________(Honoree will be notified.)

Address for Notice:_____________________________________City:______________State:___Zip:_____

PLEASE SIGN ME UP FOR THE: ________ *Free Newsletter _______ E-list

PLEASE CALL ME ABOUT: ________Rehabilitation Funding ________Volunteering

________Norristown Area Support Group ________Parents Blog ________Another topic

___________________________________________________________________________________________ ABIN-PA is a 501(c)(3) Pennsylvania nonprofit corporation. Contributions are tax deductible. The official registration and financial

information of the Acquired Brain Injury Network of Pennsylvania, Inc., may be obtained from the Pennsylvania Department of

State by calling toll free, within Pennsylvania, 1 (800) 732.0999. Registration does not imply endorsement.

NONPROFIT ORG

US POSTAGE PAID

LANSDALE PA

PERMIT NO. 613

register by may 23rd! celebrate & connect · june 20—blue bell ... appreciation...

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