quarterly newsletter october 2014-march 2015 pptct 2014...20 tamil nadu 32 32 391 41 21 tripura 3 1...

GFATM PPTCT NEWSLETTER

A Quarterly Newsletter from http://www.ilfseducation.com/health

U P D A T E S A N D A C T I V I T I E S O F T H E G F A T M R C C I I P P T C T P R O G R A M

I N T H I S I S S U E

OCTOBER 2014-MARCH 2015

L i v i n g w i t h H I V

1

2

Living with HIV

States Snapshots

3

States Coverage

4

From The Fields: Gujarat

5

From The Fields: Manipur

There is a saying that a life lived in fear is a life half lived. In other words, fear is half-death.

Any deadly disease is not as deadly as the fear caused by it. It can alter a person’s faith in

the possible solution or cure. It can affect a person’s hope; his/her desire to live itself.

HIV related co-infections are indeed dangerous. But what the society has made of it is very

tragic. Though it is not an end in itself, the societal pressure makes the person to see it as

the end of all hopes. When all diseases are looked upon with compassion and empathy,

HIV and other related co-infections to it are looked upon with contempt. People are less

concerned about the health of the patient but more interested in his/her morality. And in

the Indian scenario, morality weighs more than the individual. It is saddening that though

everyone knows the cause of the disease, very few know anything more about the disease

itself. In a situation like this, any victim of HIV can soon lose hope and confidence to lead a

good life in the society. More often than not, the patient also shares the same ignorance

and prejudice about the disease. Hence it becomes difficult for them to see dignity in their

lives.

As people working for this cause, it should be our mission to create awareness and allay all

sorts of misconceptions and prejudices towards HIV and AIDS. The patients need to be

given hope and encouragement to lead their lives with dignity and strive towards curbing

the infections.


W O R L D A I D S D A Y R A L L Y 2 0 1 4

NGO Lodi Multipurpose Social Service Society in

Andhra Pradesh

NGO ASHA Jyothi in Andhra Pradesh NGO Nature in Andhra Pradesh

NGO Gramin Pradyogik Vikas Sansthan in Bihar NGO Raja Foundation in Andhra Pradesh NGO Sevadham Trust in Maharashtra

NGO Vijay Krida Mandal in Mumbai NGO Mooknayak Sansthan in Maharashtra NGO Social Activities Integration in Mumbai


PHMMS Training in Nagaland in October 2014

PHMMS Training in Mizoram in October 2014

PPTCT Training in Bihar in November 2014

Anti Leprosy Day Celebration by Mariyanilayam Social

Service Society in Andhra Pradesh

The above image shows an appreciation note

from Gujarat State AIDS control Society on the

high quality outreach services provided for

PPTCT by IL&FS in Gujarat

“We value the tremendous efforts of the

State Co-ordinators and Outreach Workers

for implementing PPTCT Program in the

state.The technological innovation bought

in by IL&FS ETS in terms of mobile reporting

is not only a boon in terms of data accuracy

and analysis but also has empowered the

ORWs towards transparency, accuracy and

follow-up.The training quality was par

excellence which has made the outreach

technically competent to operate in adverse

situations in the field”

-Dr. Rajendra Gadhavi, JD-BSD, Gujarat

State AIDS Control Society (GSACS)

“I am suffering from numbness of hand &

find it very difficult to work with and also

my health is not well. I, still,am carrying

on this activity with full vigour and spirit. I

render this service for the well being of

the poor & weaker section of the society

suffering from deadly decease. I wish that

God may give me sufficient strength to

carry on this activity in future too very

effectively”

-ORW, Mumbai

S t a t e s S n a p s h o t s

ANC Health Check up camp in Bihar Foundation Day Celebration of SAI NGO in

Mumbai


S No

State

Districts

NGOs

ORWs

District Coordinators

1 Andhra Pradesh 23 31 600 39

2 Assam 3 2 19 2

3 Bihar 11 3 63 9

4 Chhattisgarh 5 4 24 4

5 Delhi 9 1 15 2

6 Gujarat 32 1 132 16

7 Himachal Pradesh 2 1 5 1

8 Jharkhand 7 1 20 3

9 Kerala 6 1 17 3

10 Madhya Pradesh 10 2 30 4

11 Maharashtra 33 32 513 38

12 Manipur 9 17 104 18*

13 Mizoram 7 3 33 3

14 Mumbai 1 7 134 18

15 Nagaland 7 7 44 7

16 Odisha 10 2 50 7

17 Puducherry 2 1 6 1

18 Punjab 4 2 20 3

19 Rajasthan 8 1 25 4

20 Tamil Nadu 32 32 391 41

21 Tripura 3 1 4 1

22 Uttar Pradesh 11 9 57 10

23 Uttarakhand 2 2 11 2

24 West Bengal 15 3 61 6

TOTAL 252 166 2,378 242

S t a t e s C o v e r a g e a s o n 3 1s t

M a r c h 2 0 1 5

24

States

252

Districts

166

NGOs

*At present, there are 18 counselors working in Manipur apart from the above mentioned workforce.

The Annual Review Meeting of the PPTCT program took place in

Cochin, Kerala from January 21st-24th, 2015.The participants

included all the key members from the Central and State teams. The

meeting was held with a view to analyze and review the state specific

performance and to discuss the impact of the project. Achievements

of each state were presented and key action items were noted. The

discussions that followed further revealed that the State

Coordinators have engaged themselves into the project for bringing

quality service to the program. As the meeting drew to a close, it was

made clear to all the participants that the success of the program lies

in widening our reach and making an impact in the society.

P P T C T R e v i e w M e e t i n g f o r t h e G l o b a l F u n d


F r o m T h e F i e l d s

G U J A R A T

One day when our Outreach Worker (ORW) went to the field visit to refer general ANCs for HIV testing, she met

Lilavati Rajput (Name Changed) who was 5 months pregnant and has not been tested for HIV yet. Lilavati had come

from Bhind, Madhya Pradesh with her husband for labour work in Ahmedabad. She did not know about any

Government programs for ANC women. ORW explained her in detail regarding various programs offered by

Government of Gujarat and also explained about HIV.

Lilavati was tested for HIV and was detected positive at Shardaben Hospital in Ahmedabad. ORW and counsellor

made her understand that with the help of Anti-retroviral Therapy (ART) medicine, she could lead a healthy life and

proper treatment could also prevent her child from HIV. She was enrolled in PPTCT program in July 2014. She was

very brave lady and she persuaded her husband for HIV testing. Her husband was also detected HIV positive.

After 3 months, her parents came to Ahmedabad to take her back to Bhind, Madhya Pradesh for her delivery. She

explained them about the condition and asked if she could stay back for her treatment and deliver her child in

Ahmedabad. But her parents denied and took her to Bhind so that they could take better care of her. We advised

her for Government institution delivery and gave medicine for 2 months.

She went to Madhya Pradesh but we were in constant touch with her. Once when I called her for follow up, she was

in ambulance as she was having her labor pain. She delivered her baby on November 20, 2014. I suggested her to

visit government hospital instead of going back to home so that she and her baby would be better taken care of.

Next day morning I had a call from her father that the hospital staff was not taking proper care and baby was also

not given any Nevirapine (NVP) syrup. I spoke to nursing staff of the ward and asked her to connect me to the ART

centre. ART counsellor told me that the patient came at night and they had only 2 bottles of NVP syrup and that too

for their regular patients, so they could not give the same to this patient. I strictly told them to give proper

treatment to both mother and baby and warned them that I would complaint to Gwalior ART medical officer. The

next day they gave one bottle of Nevirapine to the family member of Lilavati.

But unfortunately, at the time of discharge, bottle of nevirapine got damaged by Lilavati’s family member. I came to

know about this incident when I again called her for follow up. I spoke to the ART center and asked about any

possibility of another NVP syrup bottle.


But they didn’t have any Nevirapine syrup bottle and asked me to procure from Gwalior ART center. I called Lilavati

and asked her father to go to Gwalior. As Gwalior was 80 KMs from Bhind, he could not go there. I tried other options

also but none of them worked .Then I urgently contacted Mansingh, Lilavati’s husband who was in Ahmedabad. I

explained him the urgency and told that he had to go to MP the next day. He readily agreed and left for MP the next

day with 2 bottles of Nevirapine provided by us. Finally the child got nevirapine and we were happy with satisfaction

that we could help the child at the right time. I am very glad that with our constant efforts, both mother and child are

healthy today.

Jitendra Singh, District Coordinator, Ahmedabad & Gandhinagar

M A N I P U R

Mrs. Meena(Name changed) is a 20 yrs old divorcee from a large family who currently resides in Churachandpur

town in Manipur. She conceived out of wedlock and was shocked when during a routine pregnancy check-up

she was detected HIV positive.

Mrs. Meena did not have the strength to reveal her status to the father of her baby, her family members or her

friends. She had to undergo the trauma alone. She decided to go for Medical Termination of Pregnancy (MTP) as

she was not yet married. However after thorough counselling and support given by PPTCT staff, she managed to

bring in the father of her baby for counselling. He was tested and found to be negative. Fortunately, he affirmed

his commitment to marry her and Meena also decided to carry on with her pregnancy.

Meena received regular counselling through home visits and at the ART centre. She started opening up slowly

after regular counselling and began to disclose about her status to her family. She gave birth to a healthy baby

girl at District Hospital through normal delivery. NVP was administered to both mother and baby. She opted for

top feeding.

Meena has slowly changed her attitude about managing life with HIV. She has gradually started realising that

there are lots of other people who are living with HIV and that she is not alone. She is enrolled in different

project of the organization and has begun to regularly attend the support group meetings held by the PPTCT

programme.


I am Maria (Name changed) living in Kangpokpi town of Manipur. My husband and I lived a very happy

married life. I am HIV positive and my husband is negative. Ours was a love marriage. I first came to know

about my HIV status during pregnancy, while on the verge of delivery. As I was tested positive, my husband

was also made to test but found negative. But we being a discordant couple, never got a problem in our

married life. My husband and in-laws take good care of me. Initially, my status was not revealed to anyone

due to fear. My first son was delivered without any intervention and when he completed 18 months, he was

tested for HIV and was found to be positive. After doing the necessary investigations, my child was initiated

Anti retroviral therapy (ART) in Jawaharlal Nehru Institute of Medical Sciences Hospital (JNIMS). During

second pregnancy, I came across an NGO called RDA (Rural Development Association) and I was made to

undergo regular ANC check-up with the assistance of ORW of RDA. My second son was delivered at

Community Health Centre (CHC) Kangpokpi with PPTCT intervention by the RDA staff. I took Nevirapine (NVP)

tablet during labour pain and my son was provided with NVP syrup after few hours of delivery. My second

and third children are both born under PPTCT intervention by the NGO, RDA. Both the children were given

replacement feeding and till now they were all tested negative. My eldest son who is positive is 9 years and

second and third sons are 6 years and 3 years respectively.

Despite of being positive and my husband still negative, we are living a normal life, I was never questioned by

my in-laws or husband under any circumstances. My only problem is that my first son is positive. We were

not able to save him due to my fear of people knowing my status. I feel that I could have saved my first son if

I had met the staffs of RDA before.

Both my first son and I are undergoing ART treatment without having any problems. I am living with HIV for

the last ten years and with ART and I am able to live a normal life. My husband takes very good care of me.

He is always concerned about my medication and medical check-ups. Though I am HIV, I am lucky to have

been blessed with this family.

M A N I P U R


Contact Us Connect with Us

Mr. Arvindd Narayanan

Practice Head,

Health Initiatives

IL&FS Education & Technology Services Ltd

Email: [email protected]

Tel: 0120-2459200

Corporate Office

NTBCL Building, Toll Plaza,

DND Flyway,

Noida – 201301

Tel: 120-2459 200

Dr. Arun Varma

Group Head,

Health Initiatives

IL&FS Education & Technology Services Ltd

Email: [email protected]

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Started in 1997 as Schoolnet, IL&FS Education and Technology Services Limited (IL&FS Education) is the Social

Infrastructure arm of IL&FS group. Leveraging our corporate strength we manage large scale programmes focused on

Education, Skill Development, Healthcare and Cluster Development in a Public Private Partnership (PPP) mode.

Through our work we are not only stimulating the education and skilling space but also working with small and medium

enterprises to create jobs. We follow a holistic development approach to ensure that the impact our work creates is

long term and sustainable. This model has been recognised by McKinsey & Company as one of the top two initiatives

aimed at faster and inclusive growth.

Currently, we work with more than 10 Central and 25 State Government departments, Public Sector Enterprises (PSEs),

Multi-National Agencies and other Private companies as a partner in their social development goals.

quarterly newsletter october 2014-march 2015 pptct 2014...20 tamil nadu 32 32 391 41 21 tripura 3 1...

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