promoting patient-centred healthcare around the world a patient perspective on the multiple policy...

Promoting patient-centred healthcare around the world

A patient perspective on the multiple

policy initiatives: Lessons learnt –

assessing the gaps

Joanna Groves

Chief Executive Officer

Eucomed Med Tech Forum14 October 2008Brussels, Belgium


Content of Presentation

• An introduction to the International Alliance of

Patients’ Organizations (IAPO)

• A patient-centred approach to patient safety

• The role of patients’ organizations in patient safety

• Examples of patient engagement in patient safety

• Lessons learnt – assessing the gaps


About IAPO

• Unique global alliance of 200 national, regional and

international groups representing an estimated 365 million

patients worldwide

• Established in 1999

• Crossing borders and diseases

• Vision: Patient-centred healthcare around the world

IAPO’s role is built around the understanding that patients

voices are amplified and heard effectively when patients’

organizations are linked and connect resources to share

best practices and practical strategies.

Promoting patient-centred healthcare around the worldPromoting patient-centred healthcare around the world

IAPO’s Mission

1. Realizing active partnerships with patients’ organizations, maximizing their impact through capacity building

2. Advocating internationally with a strong patients’ voice on relevant aspects of healthcare policy, with the aim of influencing international, regional and national health agendas and policies

3. Building cross-sector alliances and working collaboratively with like-minded medical and health professionals, policy makers, academics, researchers and industry representatives

IAPO’s mission is to help build patient-centred healthcare in

worldwide by:

AdvocacyCapacity Building Partnerships


What is patient-centred healthcare?

Patient-Centred Healthcare Principles

• Respect and support for the individual patient, their wants, preferences, values,

needs and rights

• Choice and empowerment

• Patient engagement in health policy www.patientsorganizations.org/involvement

• Access and support

• Information that is accurate, relevant and comprehensive

www.patientsorganizations.org/healthliteracy

* Principles defined in IAPO’s Declaration on Patient-Centred Healthcare available at

www.patientsorganizations.org/declaration

The essence of patient-centred healthcare is that the healthcare system is designed and delivered so that it can answer the needs of patients


A patient-centred approach to patient safety

‒ Access to safe, quality and appropriate services, treatments,

preventive care and health promotion activities

‒ Empowerment of patients and patients’ organizations through

education, information and support

‒ Patient engagement - ‘…meaningful and supported

engagement in all levels (of healthcare policy) and at all points

of decision-making…’ (from IAPO Declaration on Patient-

Centred Healthcare)


What can patients and patient groups do?

Advocate – Advocate to raise political will to take action and

implement appropriate patient safety strategies and partner with

healthcare systems to develop solutions for patient safety

Educate – Educate and train patient groups to make an informed

contribution to patient safety initiatives and patients be empowered

to make a personal contribution to safety

Raise awareness – Raise awareness of patient safety issues with the

public and the media

1.Patients for Patient Safety, WHO World

Alliance for Patient Safety

2. IAPO Patient Safety Toolkit ‘Addressing

Global Patient Safety Issues’

Two examples:


– Innovative and appropriate model for patient

engagement

– Ensuring patient involvement in strands of World

Alliance for Patient Safety at an international level

– Providing capacity building for patient advocates

• Regional and National Workshops

• Toolkits

• Facilitated networking and advice


1. Patients for Patient Safety

‒Currently over 150 patient champions from all regions of the world

‒Patient advocates working on different issues (e.g. medical errors,

hospital acquired infections etc) through different methods (e.g.

representation on national committees, holding awareness raising

workshops etc)

Addressing Global Patient Safety Issues

2. An Advocacy Toolkit for Patients’ Organizations

i. Medical error

ii. Taking medicines correctly

iii. Hospital acquired infections

iv. Quality and safety of

medicines

1. Information on common global patient safety issues:

v. Re-use of single use medical

devices

vi. Injection safety

vii. Maternal and child health

viii. Participation in clinical trials

2. Tools and advice on advocating for safer healthcare and raising

awareness :

i. FAQs and checklists for patients

ii. Facts and figures, case studies,

advocacy and communications tips

iii. Template powerpoint presentations,

advocacy letters and press releases

• To achieve improved quality and safety we need to work in partnerships with an

approach based on strong values of respect, partnership and equity – no patient-

centred healthcare without cooperation of all stakeholders including patient

groups

• Educational initiatives to inform patients and the public about patient safety

should be developed with the involvement of patients and patient groups

• Attention should be paid to the role of communication between healthcare

professionals and patients – patients sometimes see things that busy health

professionals do not and should feel comfortable communicating concerns they

may have

• The European Community should work closely with the World Health

Organization to support European countries so that there is sharing of expertise

and resources and to minimise duplication of efforts and resources.


Lessons learnt – assessing the gaps

Thank you for your attention!

Please visit our website to find out more: www.patientsorganizations.org

If you would like to receive our monthly email newsletter and details of other publications, please send your details to us:

International Alliance of Patients’ Organizations703 The Chandlery50 Westminster Bridge RoadLondon SE1 7QYUnited Kingdom

Tel: +44 20 7721 7508Fax: +44 20 7721 7596Email: [email protected]: www.patientsorganizations.org


promoting patient-centred healthcare around the world a patient perspective on the multiple policy...

Documents

patient involvement

individual patient

patient perspective

essence of patient

patient champions

patient safety access

patient safety lessons

patient safety initiatives