project hope - nadd 2014 conference presentation
TRANSCRIPT
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Mark Starford Molly Kennedy [email protected] [email protected]
Board Resource Center The SCILS Group
Head of School Inclusion Teacher
Board Resource Center Advisor Chair, CA State Council Advocacy Consultant
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Project Hope Website
Tools for people with I/DD and their care givers who need resources to help prevent psychiatric emergencies.
Background Significance Health literacy Project Components
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Background
California Mental Health Services Act
Department of Mental Health Department of Developmental Disabilities
Funding:
Regional centers develop and oversee innovative projects. Focus on treatment for children, families and adult consumers with mental health diagnoses.
National Core Indicators Adult Consumer Survey 2011–12 Final Report (2013). Retrieved from www.nationalcoreindicators.org 5
Background %
California DDS Consumers
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Dual diagnoses Approximately 13% diagnosed with dual diagnoses
JoEllen Fletcher, Health Development Section I CA Department of Developmental Services 7th Annual Developmental Disabilities Public Policy Conference 2014
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Background Purpose:
Strategies to avoid mental health emergencies and hospitalizations.
Project Hope Activities:
Therapy for individuals with history of psychiatric hospitalizations and training for care providers.
Project Focus User friendly webpages:
Identifying Signs and Symptoms Using the Mental Health System
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Background
Identified users of Project Hope • Care givers (family & paid support) Education level Priorities:
Crisis Frustration Proactive
• Educators/Advocates
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Health literacy Ability to obtain, process, and understand basic health information to make “informed“ decisions.
2013 Sutter Health
Impacts ability to: • Navigate healthcare system
(completing forms, locating providers and services) • Share information with providers • Engage in self-care and disease management
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Health literacy
U.S. Department of Education, Institute of Education Sciences, 2003 National Assessment of Adult Literacy
Adult health literacy
1/3 with a graduate degree have proficient skills to effectively manage chronic illness
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Health literacy
Empowerment and engagement among low-income Californians: Enhancing patient-centered care. 2012 Blue Shield of California Foundation Survey. September 2012
Cycle of engagement
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Molly’s story
• Observe learn signs and symptoms
• Document write down what is observed
• Communicate reach out to trusted people
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Developing Project Hope
Focus groups
End users participate as advisors people with I/DD group home providers family members professionals
Test all the components
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The stigma Don’t isolate. Reluctant to tell anyone Difficult to accept Don't equate yourself with your illness. I am not my illness Person first language Get support. Join local advocacy support groups Speak out against stigma. Offer to do presentations Express your opinions at events Advocate for better laws
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Introduction Video
Introduction Watch video
View video
Observing
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Watch video
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View video
Watch video
Online forms
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19 Project Hope Focus Group and Community Survey 2013
eas What we learned
Easy to navigate One click
Easy to read Use few words - plain and simple
Action steps Show me what to do
Hear and see examples Show me pictures
Just the basics No extra information
Abuse – a silent epidemic!
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Educate and Empower
Learn about
• What abuse is
• How to report abuse
• Where to get support
• To be empowered!
Kecia Weller Molly Kennedy
Abuse happens
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4 out of 10 people experience some type of abuse
Abuse happens
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Abusers know their victims
- People who have regular contact with victim
Sexually abused females are never reported
- Lack of information about who to tell - When reported, 55% not believed
66%
90%
Abuse and Neglect of People with Development Disabilities:Dr. D Roof/Esser
Abuse: advocates speak out
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YouTube
JFK comment to Congress
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“We as a Nation have long neglected the mentally ill and the ‘intellectually disabled’.
“This neglect must end, if our Nation is to live up to its own standards of compassion and dignity and achieve the maximum use of its manpower.”
John F. Kennedy, address to Congress February 5, 1963
1963
Contact Information
http://projecthopeca.com 25
Mark Starford [email protected] Molly Kennedy [email protected]