primary care data application form · web viewbenchmarking information for named patient lists....
TRANSCRIPT
![Page 1: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/1.jpg)
Primary Care DataApplication Form
Customer: Department of HealthTitle: GP metrics
NIC Number: NIC-391038-T4Q7Q
SCCI Reference Number: XXX
BAAS Unique Number: R01246
Data Sharing Framework Contract Reference Number: Not applicable for this data extraction
Copyright ©2016 Health and Social Care Information Centre
![Page 2: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/2.jpg)
Primary Care Data Application Form: Error: Reference source not found v0.1 07/07/2016
Version: 0.1 Date: 07/07/2016
Page 2 of xxix Copyright © 2016 Health and Social Care Information Centre
![Page 3: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/3.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
Contents
1 Contents
2 Summary 4
2.1 Overview 42.2 Sponsor information 52.3 Senior Responsible Owner information 52.4 Business Lead information 52.5 Why the data are needed 52.6 When and how often the data are needed 92.7 How the data will be collected 92.8 Requirements for the future 92.9 Funding and commitment 92.10 Legal basis for the collection 10
3 Elaboration of customer requirements 11
3.1 Information Asset Owner information 113.2 Level of data required 113.3 What data are needed 113.4 Options for delivery of the data 153.5 Recommendation 153.6 Other relationships/dependencies 153.7 Known risks and issues 153.8 Expert HSCIC clinical opinion on the likely quality of the data output 163.9 Certification 163.10 Data transformation process 163.11 How the data will be delivered 17
4 Burden Advice and Assessment Service 19
4.1 BAAS Unique Reference Number 194.2 Burden Assessment findings 19
5 Data management 20
5.1 Data retention 205.2 Data Sharing Agreement 205.3 Data controller, data processor and data recipient 205.4 Location of processing, data storage and territory of use 20
Page 3 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 4: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/4.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
5.5 Data minimisation 215.6 Data dissemination 21
6 Data access request (for patient-level data only) 227 Appendix A: Data extraction options 238 Appendix B: Acronyms 289 Appendix C: Data flow process map 29
Page 4 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 5: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/5.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
2 Summary2.1 OverviewThe Government’s mandate to NHS England for 2016-17 includes a deliverable to work with the Health and Social Care Information Centre (HSCIC) to provide general practitioners (GPs) with benchmarking information for named patient lists. The Department of Health (DH) will work with NHS England to achieve this deliverable.
DH has asked the HSCIC to extract and link data for a given set of metrics at individual GP level and report benchmarked data back to general practices.
There will be 12 metrics in total:
4 covering public health 4 covering the management of long term conditions 3 covering mental health and dementia 1 covering emergency admissions and bed days*
* This metric will cover 19 ambulatory care sensitive conditions, all of which are defined in section 3.4 What data are needed.
The HSCIC’s General Practice Extraction Service (GPES) will extract the necessary primary care data.
The 1 metric covering emergency admissions and bed days will involve linking primary care data to Hospital Episode Statistics (HES) data using NHS Number, which means that this will be a patient level data extraction.
All of the metrics will be assured by the HSCIC’s Indicator and Methodology Assurance Service (IMAS); this is expected to be completed by December 2016.
Funding is currently in place for the HSCIC to report two sets of benchmarked data to general practices; the first set of reports are required by January 2017 and the second set of reports are required by April 2017. Data will be extracted to support this deliverable, with the first data extraction scheduled to take place in late 2016.
The reason that funding does not cover more than reporting two sets of benchmarked data to general practices is due to GP metrics effectively being a pilot, in which it will test the methodology of extracting data at the individual GP level and the quality of the data that are extracted.
The data will only be made available for individual GPs and their general practices; it will not be made publically available. Each general practice will only be provided with data from their own general practice; they will not be provided with data from other general practices.
Providing GPs and their general practices with benchmarked data will allow them to review the quality of care and outcomes for their named patients.
Following the first data extraction and reporting of benchmarked data to general practices in
Page 5 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 6: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/6.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
January 2017, DH will decide whether or not GP metrics will continue to use the methodology as outlined in this form. If it does then the ambition is for the data extraction and reporting to take place on a quarterly basis.
2.2 Sponsor information
Name: Jonathan Marron
Role: Director NHS Group
Email: [email protected]
Telephone:
Organisation: Department of Health
Organisation type: Other Health and Social Care System Public Body
Further details: https://www.gov.uk/government/organisations/department-of-health
2.3 Senior Responsible Owner information
Name: Dave Roberts
Role: Head of Primary Care Information
Email: [email protected]
Telephone: 0113 254 2541
Organisation: HSCIC
Organisation type: Other Health and Social Care System Public Body
Further details: http://www.hscic.gov.uk/about-us
2.4 Business Lead information
Name: Richard Taylforth
Role: Business and Operational Delivery Manager
Email: [email protected]
Telephone: 0113 866 5631
Organisation: HSCIC
Organisation type: Other Health and Social Care System Public Body
Further details: http://www.hscic.gov.uk/about-us
2.5 Why the data are neededHigh level summary:
The data are required to support one of the objectives in the Government’s mandate to NHS England for 2016-17, whereby a 2016-17 deliverable is for the HSCIC to provide GPs with benchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data extraction is required. Providing GPs and their general practices with this benchmarked information will allow GPs and general practices to review, and improve, the quality of care and outcomes for their named patients.
Page 6 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 7: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/7.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
Rationale behind GP metrics as a whole:
The Government’s mandate to NHS England for 2016-17 sets out the objectives to 2020 in order to support the delivery of NHS’s Five Year Forward View and a seven-day NHS. Each objective is underpinned by specific deliverables to be achieved in the short term, for the year 2016-17, and to be achieved in the long term, by 2020 or beyond.
Objective 6 of this mandate is “to improve out-of-hospital care.” The part of this objective that covers “new models of care and general practice” includes the following 2020 goals:
100% of population has access to weekend/evening routine GP appointments. Measurable reduction in age standardised emergency admission rates and
emergency inpatient bed-day rates; more significant reductions through the New Care Model programme covering at least 50% of population.
Significant measurable progress in health and social care integration, urgent and emergency care (including ensuring a single point of contact), and electronic health record sharing, in areas covered by the New Care Model programme.
5,000 extra doctors in general practice.
One of the 2016-17 deliverables to support these 2020 goals is to:
Publish practice-level metrics on quality of and access to GP services and, with the Health and Social Care Information Centre, provide GPs with benchmarking information for named patient lists.
This provides the rationale for this data extraction.
The purpose of extracting and reporting these data is to support GPs and their general practices in overseeing, benchmarking, reviewing and continuously improving the quality of care that the general practices provide for their named patients.
Rationale behind proposed methodology:
From 1 April 2015, general practices have been required under the General Medical Services (GMS) contract to allocate a named accountable GP to all registered patients (including children). The role of the named accountable GP is to take responsibility for the co-ordination of all appropriate services and ensure that they are delivered to each of their patients where required (based on the GP's clinical judgement) 1.
In January 2016, the HSCIC conducted a feasibility study into the options and requirements for delivering GP metrics. This study identified three possible options for extracting the primary care data from general practice clinical systems:
1. Add the appropriate General Medical Council (GMC) reference number to the ‘Patient allocated named accountable general practitioner’ CTV3 / Read V2 / SNOMED CT code. Under the GMS contract, this code should be entered in a patient’s clinical
1 NHS Employers (2015). 2015/16 General Medical Services (GMS) contract: Guidance for GMS contract 2015/16. Accessed 4 July 2016 from: http://www.nhsemployers.org/~/media/Employers/Documents/Primary%20care%20contracts/GMS/GMS%20guidance%202010-present/2015-16/201516%20GMS%20Guidance.pdf
Page 7 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 8: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/8.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
record to signify that the patient has been allocated a named accountable GP. Adding the GMC reference number of the individual GP to this code, in the same way that a blood pressure value could be added to a blood pressure code, would provide the link between a patient and their GP. This option required general practice system suppliers to carry out development work and also general practices to re-code all of their patients as they had not previously been required to enter the GMC reference number alongside the ‘Patient allocated named accountable general practitioner’ code.
2. Extract data from the existing GP_USUAL data field; this is one of the items included in the Patient Table as outlined in the GPES Interoperability Standard, the purpose of which is to define GPES. The GP_USUAL data field is defined as “doctor usually seen by” and the data item returned in this field is detailed as being the NHS specified doctor number, which is expected to be either the GMC reference number or the General Medical Practitioner (GMP) reference number. This option did not require development work for the general practice system suppliers as this data field is included in the GPES Interoperability Standard.
3. Produce a new data field in the patient record in order to record named accountable GP. It was anticipated that this would involve each general practice’s clinical system including a drop down list of all of the named accountable GPs at the general practice, from which staff could select the appropriate GP for each of their registered patients. Selecting the appropriate GP would then populate the new data field with the GMC / GMP reference number, which GPES would be able to extract. As with option 1, this new requirement required significant development work for general practice system suppliers and general practices were also required to code the named accountable GP for all of their registered patients.
The HSCIC has been asked to deliver the reporting benchmarked data to general practices in January 2017; therefore, due to the costs and time needed for the development work required from general practice system suppliers, as well as the time and burden that coding all registered patients would place on general practices themselves, option 2 was chosen as the preferred option.
This means that GPES will extract the existing information from the GP_USUAL data field. This field is defined as “doctor usually seen by”, which may or may not be the same as a patient’s named accountable GP.
This data extraction will effectively be a pilot, in that it aims to test:
1. The methodology of extracting data at the level of the individual GP.2. The quality of the data stored within the GP_USUAL data field.
Rationale behind chosen metrics:
DH convened a reference group to help inform the development of the GP metrics listed in section 3.4 What data are needed. This reference group brought together professional and technical advisers from NHS England, Care Quality Commission (CQC), HSCIC and National Institute for Health and Care Excellence (NICE), together with an independent GP academic.
Based on views from this reference group, DH presented the list of metrics to
Page 8 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 9: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/9.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
representatives from the British Medical Association’s (BMA) General Practitioners Committee (GPC). DH took the GPC’s views into consideration, that metrics where possible should focus on patients for whom the most impact could be achieved in terms of GPs assessing the way in which care is planned and provided. Another view expressed by stakeholders was that the metrics where possible should be based on those that currently exist and that, where possible, they should align with the practice level metrics that will be published on My NHS.
Taking the breadth of these views, DH selected metrics that align with general practice level metrics, focus on patient groups for whom the most impact can be achieved, whilst filtering out metrics used at general practice level that are not technically feasible to link at named accountable GP level (e.g. the GP Practice Survey). The use of existing indicators presents a good starting point whilst enabling the metrics to be delivered by the end of January 2017.
Following further discussion with NHS England, DH recommended that the metrics focus on recognisable measures for the treatment of long term conditions.
The chosen metrics seek to take account of the GPC’s views that they should concern a relevant patient population, for which named accountable GPs can usefully assess the care that the general practice is providing, whilst avoiding numbers that are so low as to be statistically meaningless. The metrics are expected to cover about 30 per cent of the registered general practice population. These patients are most likely to require continuity of care, have more frequent contact with the same GP, and account for high numbers of emergency admissions.
One of the most consistent themes that emerged from the discussions with the GPC and other GPs is a concern that the doctor named as the accountable GP may not be the doctor who actually sees the patient most often, and that the named accountable GP will not find the data meaningful. DH and the HSCIC have explored whether or not it is possible for general practice system suppliers to automatically identify the GP who most often sees each patient, so that this could be entered as a default, but this is not technically possible; this is why option 2 for the proposed methodology has been chosen.
Following discussions with the GPC, DH have also explored the merits of building up evidence over time on the metrics that most benefit GPs and their general practices in terms of assessing the way in which care is provided. DH believe that there is some merit in being able to say to the profession that, whilst we are pressing ahead with this initial dataset, we are commissioning research to help make longer-term decisions about which metrics will be most helpful to the profession as a whole, as well as to individual general practices.
2.6 When and how often the data are neededThe first data extraction is scheduled to take place in late 2016 ahead of the HSCIC reporting the benchmarked data to general practices in late January 2017.
The second data extraction is scheduled to take place in early 2017 ahead of the HSCIC reporting the benchmarked data to general practices in late April 2017.
Following April 2017, the intention is for the data extraction and reporting to take place on a quarterly basis.
Page 9 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 10: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/10.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
Each data extraction will take place after the quarter in question as there is a lag between the end of the quarter and the date that the data are extracted in order to allow general practices to make sure that they have recorded all of the necessary information.
2.7 How the data will be collectedThe primary care data will be extracted via GPES.
The secondary care data for linkage will use the HES Admitted Patient Care extract. Note that it is not in the scope of this Primary Care Data Application Form to cover how the HES data are extracted.
2.8 Requirements for the futureFollowing the first data extraction and reporting of benchmarked data to general practices in January 2017, DH will decide whether or not GP metrics will continue to use the methodology as outlined in this form.
Following April 2017, the intention is for the data extraction and reporting to take place on a quarterly basis.
If this extraction does continue into the 2017-18 financial year then the appropriate measures would need to be put in place for SNOMED CT becoming the standard clinical coding terminology within primary care; this relates to the removal of CTV3 / Read V2 codes. The Primary Care Domain and GPES are aware that this change is taking place and are in discussions with the UK Terminology Centre surrounding this.
2.9 Funding and commitmentThe current funding available for this work, as listed in the Work Package that DH issued to the HSCIC, covers costs for the HSCIC to report two sets of benchmarked data to general practices (i.e. in January 2017 and April 2017).
If DH does decide to continue the data extraction and reporting on a quarterly basis following April 2017 then they will have to bid for further funding in order to support this.
The primary care data that are required for the metrics being extracted via GPES, as well as the HSCIC’s Primary Care Domain performing the appropriate analysis and disseminating the data to general practices, are business commitments for the HSCIC. The necessary funding and resources are available to support this commitment.
2.10 Legal basis for the collectionDH will Direct the HSCIC to establish and operate a system for the collection and analysis of the GP metrics data under Section 254 of the Health and Social Care Act (the Act).
The HSCIC will then require all general practices in England to provide the necessary data under Section 259 of the Act. This will provide the legal basis for the extraction of the data.
DH will lead on all of the communications surrounding the purpose and direction of travel of
Page 10 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 11: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/11.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
the GP metrics. They will also lead on all of the engagement and consultation with general practices surrounding this work.
Page 11 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 12: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/12.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
3 Elaboration of customer requirements3.1 Information Asset Owner information
Name: Dave Roberts
Role: Head of Primary Care Information
Email: [email protected]
Telephone: 0113 254 2541
3.2 Level of data requiredPatient level data will be required due to the 1 metric covering emergency admissions and bed days involving linking primary care data to HES data using NHS Number.
Exactly how the data will be extracted is to be confirmed – see Appendix A: Data extraction options for possible options as to what the data extract will look like.
3.3 What data are neededAll general practices in England (approximately 7,800 in total) will be required to ‘opt-in’ to this data extraction, whereby all general practices will have the opportunity to view their data before it is stored.
The proposed metrics are listed below.
Please note that the finalised wording of these metrics is yet to be agreed.
4 metrics covering public health
1. Flu vaccinations – coverage of over 65s (Annual, Public Health England)2. Flu vaccinations – coverage of other at-risk groups (Annual, Public Health England)3. Percentage of women aged 25-64 with record of a cervical smear4. Percentage of children aged up to the age of 2 with record of childhood immunisations
(composite)
4 metrics covering the management of long term conditions
5. Percentage of patients with hypertension with blood pressure 150/90mmHg or less6. Percentage of patients with atrial fibrillation currently treated with anticoagulation
therapy7. Percentage of diabetes patients whose last glucose reading (HbA1c) is 64 mmol/mol
or less8. Percentage of COPD patients with a confirmed diagnosis by a post bronchodilator
spirometry
3 metrics covering mental health and dementia
9. Percentage of patients with schizophrenia, bipolar affective disorder and other psychoses who have a comprehensive, agreed care plan documented in the preceding 12 months
10.Percentage of patients with dementia with face-to-face review in the last 12 months
Page 12 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 13: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/13.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
11.Percentage of patients with serious mental illness with cardiovascular disease risk assessment in the last 12 months (Annual, NICE)
1 metric covering emergency admissions and bed days
12.Emergency Admissions for 19 Ambulatory Care Sensitive Conditions*
* This metric will cover the following 19 ambulatory care sensitive conditions, as taken from the Emergency hospital admissions for ambulatory care-sensitive conditions: identifying the potential for reductions data briefing paper published by The Kings Fund:
Vaccine-preventable: Influenza and pneumonia Other vaccine-preventable conditions
Chronic: Asthma Congestive heart failure Diabetes complications Chronic obstructive pulmonary disease (COPD) Angina Iron-deficiency anaemia Hypertension Nutritional deficiencies
Acute: Dehydration and gastroenteritis Pyelonephritis Perforated/bleeding ulcer Cellulitis Pelvic inflammatory disease Ear, nose and throat infections Dental conditions Convulsions and epilepsy Gangrene
Primary care data extraction:
Exactly how the primary care data will be extracted is to be confirmed; there are two possible options, both of which are explained in full detail in Appendix A: Data extraction options:
Option 1) Combined aggregate level and patient level data extraction
This will involve extracting:
Aggregate level data in the form of counts of the number of patients for the numerator and denominator for each of the 11 metrics covering public health, management of long term conditions and mental health and dementia, broken down by individual GP.
Patient level data in the form of NHS Numbers for all of the patients registered at
Page 13 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 14: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/14.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
the general practice, broken down by individual GP.
Option 2) Full patient level data extraction
This will involve extracting:
Patient level data in the form of the NHS Numbers of all of the patients registered at the general practice, broken down by individual GP and whether or not the patients fall into the numerator and denominator for each of the 11 metrics covering public health, management of long term conditions and mental health and dementia.
The HSCIC’s preferred option would be to proceed with option 1 but this will depend on the technical feasibility of GPES and the general practice system suppliers. If option 1 is not feasible, then option 2 will be used instead.
The CTV3 / Read V2 codes that will be used to define the 11 metrics covering public health, management of long term conditions and mental health and dementia will be published in the technical specification document (also known as the business rules) for this extraction; this document will underpin how the data extraction should work and will be published on the HSCIC website.
Secondary care data extraction:
The secondary care data for linkage will use the HES Admitted Patient Care extract. These extracts will include the NHS Numbers of all of the patients who:
1. were admitted to hospital as an emergency (as determined by the field name ‘Method of admission’ – i.e. ADMIMETH)
AND2. have a primary diagnoses of one of the 19 ambulatory care sensitive conditions listed
above (as determined by the field name ‘All Diagnosis codes’ – i.e. DIAG_01)
The NHS Numbers of patients who fall outside the above criteria will not be included in the HES extracts.
Two flags will need to be included alongside the NHS Number in the secondary care data extract:
1. To signify which of the 19 ambulatory care sensitive conditions each patient has (i.e. ACSC_Flag). This is because a patient may have a more than one primary diagnosis and will therefore need to be linked to all of the appropriate 19 ambulatory care sensitive conditions. In such an instance, the same NHS Number (i.e. the same patient) would appear multiple times within an extract but each NHS Number would reference a different ambulatory care sensitive condition.
2. To signify the episode start date of each ambulatory care sensitive conditions (i.e. EPISTART). This is because a patient may have multiple episodes of the same primary diagnosis and will therefore need to be linked to all of the episodes of the same ambulatory care sensitive condition. In such an instance, the same NHS Number (i.e. the same patient) would appear multiple times within an extract but each
Page 14 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 15: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/15.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
NHS Number would reference a different episode start date for the same ambulatory care sensitive condition.
The below table illustrates what each HES extract will look like; see the yellow highlighted text for an example of the same patient having a primary diagnosis for multiple ambulatory care sensitive conditions and see the green highlighted text for an example of the same patient having multiple instances of a primary diagnoses for the same ambulatory care sensitive condition. Note that the ACSC_Flag column will be coded but for the purpose of this illustration the full names of the ambulatory care sensitive conditions are shown.
NHS_Number ACSC_Flag EPISTART
7149920358 Influenza and pneumonia 21/10/2008
2240861138 COPD 19/08/2006
6410053480 Hypertension 06/10/1997
7374508181 Angina 02/03/2010
6271083506 Dental conditions 18/10/1998
5479349001 Cellulitis 11/02/2002
5479349001 Pyelonephritis 28/05/2008
5479349001 Gangrene 28/06/2015
8738073530 Asthma 21/03/2006
8738073530 Asthma 20/06/2008
8738073530 Asthma 05/05/2009
Section 3.10 Data transformation process details how the primary care and secondary care data extractions will be transformed.
3.4 Options for delivery of the dataThe primary care data will be delivered via GPES; this involves:
General Practice Extraction Tool – Query (GPET-Q) General Practice Extraction Tool – Extract (GPET-E) General practices
See Appendix C: Data delivery process for GPES for information on how the data will flow from general practices into GPES.
The secondary care HES extracts will be taken from the SUS data warehouse.
3.5 RecommendationThe recommendation for the delivery of the data is via GPES as there is no other option.
Page 15 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 16: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/16.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
3.6 Other relationships/dependenciesThis data extraction will be dependent on:
GPET-Q GPET-E General practice system suppliers GPES as a whole
3.7 Known risks and issuesGP practices may choose not to ‘opt-in’ to this data extraction but, with it involving a Direction, general practices will be legally obliged to comply with the requirement for data from the HSCIC so this is deemed as low risk.
GPES has never before extracted data at the level of the individual GP and therefore this data extraction methodology could be a risk.
The quality of the data stored in the GP_USUAL data field is also relatively unknown. The GP_USUAL data field is defined as “doctor usually seen by” and the data item returned in this field is detailed as being the NHS specified doctor number, which is expected to be either the GMC reference number or the GMP reference number. As GPES has never before extracted data from the GP_USUAL data field, the quality of the data is an uncertainty. The HSCIC aim to get some sample data on the GP_USUAL data field from the general practice system suppliers in order to test data quality prior to the first data extraction.
3.8 Expert HSCIC clinical opinion on the likely quality of the data outputDH has consulted with the GPC in agreeing these metrics (see section 2.5 Why the data are needed).
The corresponding CTV3 / Read V2 codes, which make up the 11 metrics covering public health, management of long term conditions and mental health and dementia will be reviewed and agreed by the HSCIC Clinical Informatics Advisors.
The ICD-10 codes that will be used to determine the 19 ambulatory care sensitive conditions will be agreed by the HSCIC Clinical Classifications Service.
3.9 CertificationAn Extraction Requirement will be sent to the general practice system suppliers (i.e. EMIS, INPS, Microtest and TPP). This sets out the data that will need to flow to GPES.
To reduce the risk of general practice system suppliers misinterpreting the Extraction Requirement and to avoid any data extraction errors, GPES offers a certification service. This is where general practice system suppliers are able to test their technical data extraction specifications against a set of sample data.
GPES offers three levels of certification standards against the Extraction Requirement: Gold, Silver and Bronze, with Gold being the most comprehensive.
This data collection will be certified against the Gold standard.
Page 16 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 17: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/17.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
3.10 Data transformation processThe primary care data that are extracted via GPES and the secondary care data extract that is taken from the HES Admitted Patient Care extract will undergo validation at the at the file level before being loaded into the HSCIC’s Data Management Environment (DME), which involves the following 4 steps:
Step 1) Load
For the primary care data extracted via GPES, one Extensible Markup Language (XML) data file per general practice (approximately 7,800 in total) will be loaded into DME.
The HES data extract clone will be moved into the DME server space for filtering.
Step 2) Validate
The validation of the primary care data in DME will take place at the field level for following data fields:
GP_USUAL NHS_Number GP_Practice_Code
It is anticipated that the HES data will have already been validated prior to being loaded into DME. If this is not the case then the necessary validation on the NHS_Number data field will take place.
Step 3) Transform
This is where the primary care data will be linked to the secondary care data for the 1 metric covering emergency admissions and bed days. The data linkage will involve a many to many join on NHS Number from both data extracts. This will be due to multiple instances of the same NHS Number being included in the primary care and secondary care extracts. Multiple instances of the same NHS Number will be present in the secondary care data extract due to patients being admitted for different ambulatory care sensitive conditions or being admitted for the same ambulatory care sensitive condition on more than one occasion (see section 3.4 What data are needed).
Step 4) Release
The data will be imported into a Microsoft Structured Query Language (SQL) Sever database so that a Microsoft SQL Server Reporting Services (SSRS) report can then be produced. This will include all relevant analyses, such as:
Calculating the percentages for each of the 11 metrics covering public health, management of long term conditions and mental health and dementia, broken down by individual GP.
Determining the number of patients who were admitted to hospital as an emergency for each of the 19 ambulatory care sensitive conditions, broken down
Page 17 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 18: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/18.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
by individual GP. Determining the number of emergency admissions to hospital (not the number of
patients who were admitted to hospital as an emergency) for each of the 19 ambulatory care sensitive conditions, broken down by individual GP.
Any data quality issues, such as the number (and percentage) of invalid NHS Numbers, broken down by individual GP.
See 9 Appendix C: Data flow process map for a high level overview of the steps involved in extracting and disseminating the data.
3.11 How the data will be deliveredThe intention is to produce one SSRS Portable Document Format (PDF) report per general practice, which will include the metrics for all of the individual GPs who are registered as working at that general practice.
This report will then be pushed out to general practices so as to place the minimum burden on reporting the benchmarked data to general practices. The HSCIC are aiming to use the Messaging Exchange for Social Care and Health (MESH) mailbox to send the reports to general practices. This will involve a member of each general practice (most likely a Practice Manager) accessing the data via a new Role Based Access Control (RBAC) codes and a smartcard.
Page 18 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 19: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/19.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
4 Burden Advice and Assessment Service4.1 BAAS Unique Reference NumberR01246
4.2 Burden Assessment findingsTo avoid duplication, the findings of the Burden Assessment for this data extraction have not been included in this document. Instead, these findings should be viewed in conjunction with this Primary Care Data Application Form at the relevant SCCI meeting.
Page 19 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 20: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/20.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
5 Data management5.1 Data retentionIt is anticipated that the primary care and secondary care data that are loaded into DME will be retained for a maximum period of 1 quarter.
5.2 Data Sharing AgreementA Data Sharing Agreement is not applicable for this data extraction as the HSCIC will report the benchmarked to the general practices.
5.3 Data controller, data processor and data recipientThe below diagram illustrates the relationship between the data controller, data processor and data recipient:
5.4 Location of processing, data storage and territory of useProcessingOrganisation: HSCICTeam: GPESAddress: 8th Floor | Bridgewater Place | Water Lane | Leeds | LS11 5BZ
Data storageOrganisation: HSCICTeam: DMEAddress: 1 Trevelyan Square | Boar Lane | Leeds | LS1 6AE
Page 20 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 21: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/21.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
Organisation: HSCICTeam: HESAddress: 1 Trevelyan Square | Boar Lane | Leeds | LS1 6AE
Note that the servers that store the data are based in Harrogate or Plymouth.
Territory of useEngland
5.5 Data minimisationThis data extraction follows the data minimisation principles in that:
The data will only be held for the minimum amount of time required (i.e. 1 quarter). Only the minimum amount of data necessary for the data linkage between the
primary care and secondary care data are being extracted. This linkage is just taking place on NHS Number alone, as opposed to using other personal identifiers, such as date of birth, sex, etc.
5.6 Data disseminationAs the data will not be made publically available, it is anticipated that there will be no small number suppression in the data reports as the data are only being reported back to general practices (i.e. the data controllers), rather than being made available to the general public.
The HSCIC’s Disclosure Control Panel (DCP) and Infrastructure Security Team (IST) will decide the outcome to this decision.
Prior to dissemination, the data will also be assured by the HSCIC’s Solutions Assurance team.
Page 21 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 22: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/22.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
6 Data access request (for patient-level data only)Not applicable to this data extraction due to the HSCIC reporting the benchmarked data to the general practices (i.e. the data controllers); DCP and IST will advise as appropriate.
Page 22 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 23: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/23.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
7 Appendix A: Data extraction optionsOption 1: Combined aggregate level and patient level data extraction
For the each of the 11 metrics covering public health, management of long term conditions and mental health and dementia, GPES will extract a numerator and denominator for each individual GP within the general practice. Each numerator and denominator will be an aggregated count of the number of patients who fall into the necessary criteria for the metrics.
For the 1 metric covering emergency admissions and bed days, GPES will extract the NHS Numbers of all of the patients that are assigned to each individual GP within the general practice. Determining which patients are linked to which individual GP will be done by using the GP_USUAL data field from the GPES Patient Table. The GP_USUAL data field is defined as “doctor usually seen by” and the data item returned in this field is detailed as being the NHS specified doctor number, which is expected to be either the GMC reference number or the GMP reference number.
For each data extraction, GPES will extract one data file per general practice. This will include the aggregated counts of the number of patients for the numerators and denominators for each of the 11 aggregated metrics, broken down by individual GP, as well as a list of the NHS Numbers of the patients that are assigned to each individual GP. Note that GP practice code does not need to be extracted as this will be included separately in the data file that is returned to GPES. The below table illustrates what each data file will look like; the ellipses (i.e. “. . .”) signify that numerous patient NHS Numbers may be assigned to each of the individual GPs.
GP_USUAL Indicator_ID Value
G1048937 1_Numerator 38
G1048937 1_Denominator 48
G1048937 2_Numerator 51
G1048937 2_Denominator 56
G1048937 3_Numerator 52
G1048937 3_Denominator 76
G1048937 4_Numerator 68
G1048937 4_Denominator 91
G1048937 5_Numerator 32
G1048937 5_Denominator 57
G1048937 6_Numerator 16
G1048937 6_Denominator 30
G1048937 7_Numerator 20
G1048937 7_Denominator 82
G1048937 8_Numerator 24
Page 23 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 24: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/24.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
G1048937 8_Denominator 55
G1048937 9_Numerator 15
G1048937 9_Denominator 31
G1048937 10_Numerator 72
G1048937 10_Denominator 97
G1048937 11_Numerator 17
G1048937 11_Denominator 68
G1048937 12_NHS_Number 6620120044
G1048937 12_NHS_Number 9063163605
G1048937 12_NHS_Number 2849358807
G1048937 12_NHS_Number . . .
G5128295 1_Numerator 66
G5128295 1_Denominator 76
G5128295 2_Numerator 38
G5128295 2_Denominator 94
G5128295 3_Numerator 31
G5128295 3_Denominator 99
G5128295 4_Numerator 30
G5128295 4_Denominator 46
G5128295 5_Numerator 42
G5128295 5_Denominator 89
G5128295 6_Numerator 63
G5128295 6_Denominator 68
G5128295 7_Numerator 28
G5128295 7_Denominator 39
G5128295 8_Numerator 27
G5128295 8_Denominator 61
G5128295 9_Numerator 48
G5128295 9_Denominator 55
G5128295 10_Numerator 32
G5128295 10_Denominator 64
G5128295 11_Numerator 14
G5128295 11_Denominator 82
G5128295 12_NHS_Number 2338635026
Page 24 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 25: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/25.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
G5128295 12_NHS_Number 1251616289
G5128295 12_NHS_Number 7837780505
G5128295 12_NHS_Number . . .
Option 2: Full patient level data extraction
GPES will extract the NHS Numbers of all of the patients that fall into the numerator and denominator for each of the 11 metrics covering public health, management of long term conditions and mental health and dementia. These NHS Numbers will be aggregated into counts of the number of patients, in order to provide a numerator and denominator count for each metric, following the data extraction.
For the 1 metric covering emergency admissions and bed days, GPES will extract the NHS Numbers of all of the patients that are assigned to each individual GP within the general practice and that have not already been captured in the 11 metrics covering public health, management of long term conditions and mental health and dementia.
As in option 1, determining which patients are linked to which individual GP will be done by using the GP_USUAL data field from the GPES Patient Table. The GP_USUAL data field is defined as “doctor usually seen by” and the data item returned in this field is detailed as being the NHS specified doctor number, which is expected to be either the GMC reference number or the GMP reference number.
For each data extraction, GPES will extract one data file per general practice. This will be a full patient level extraction that will include the NHS Numbers of all of the patients that fall into the numerator and denominator of each of the 11 metrics covering public health, management of long term conditions and mental health and dementia, as well as NHS Numbers of all of the patients that are not captured by these 11 metrics; these NHS Numbers will be broken down by individual GP. Note that GP practice code does not need to be extracted as this will be included separately in the data file that is returned to GPES. The below table illustrates what each data file will look like; the ellipses (i.e. “. . .”) signify that numerous patient NHS Numbers may be assigned to each of the individual GPs.
GP_USUAL Indicator_ID NHS_Number
G1048937 1_Numerator 4022783529
G1048937 1_Numerator 5700034109
G1048937 1_Numerator 9250614267
G1048937 . . . . . .
G1048937 1_Denominator 5535466518
G1048937 1_Denominator 1072320917
G1048937 1_Denominator 3108268500
G1048937 . . . . . .
G1048937 2_Numerator 6724033918
Page 25 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 26: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/26.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
G1048937 2_Numerator 7191089862
G1048937 2_Numerator 3700016024
G1048937 . . . . . .
G1048937 2_Denominator 9393917660
G1048937 2_Denominator 4371567201
G1048937 2_Denominator 1481849715
G1048937 . . . . . .
G1048937 . . . . . .
G1048937 . . . . . .
G1048937 12_NHS_Number 6973748961
G1048937 12_NHS_Number 3074459899
G1048937 12_NHS_Number 8254172775
G1048937 . . . . . .
G4735495 1_Numerator 7639840629
G4735495 1_Numerator 9783985571
G4735495 1_Numerator 3921214372
G4735495 . . . . . .
G4735495 1_Denominator 8950795839
G4735495 1_Denominator 1864615613
G4735495 1_Denominator 6364554514
G4735495 . . . . . .
G4735495 2_Numerator 5163870934
G4735495 2_Numerator 4131068941
G4735495 2_Numerator 6210229540
G4735495 . . . . . .
G4735495 2_Denominator 1895371525
G4735495 2_Denominator 4627158148
G4735495 2_Denominator 5161091798
G4735495 . . . . . .
G4735495 . . . . . .
G4735495 . . . . . .
G4735495 12_NHS_Number 3012404839
G4735495 12_NHS_Number 9694067537
G4735495 12_NHS_Number 1643902162
Page 26 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 27: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/27.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
G4735495 . . . . . .
Page 27 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 28: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/28.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
8 Appendix B: AcronymsAcronym Description
BAAS Burden Advice and Assessment Service
BMA British Medical Association
CQC Care Quality Commission
CTV3 Clinical Terms Version 3
DH Department of Health
DME Data Management Environment
EMIS Egton Medical Information Systems
GMC General Medical Council
GMP General Medical Practitioner
GMS General Medical Services
GP General Practitioner
GPC General Practitioners Committee
GPES General Practice Extraction Service
GPET-E General Practice Extraction Tool – Extract
GPET-Q General Practice Extraction Tool – Query
HES Hospital Episode Statistics
HSCIC Health and Social Care Information Centre
IMAS Indicator and Methodology Assurance Service
INPS In Practice Systems
MESH Messaging Exchange for Social Care and Health
NHS National Health Service
NICE National Institute for Health and Care Excellence
PDF Portable Document Format
RBAC Role Based Access Control
SCCI Standardisation Committee for Care Information
SNOMED CT Systematized Nomenclature of Medicine -- Clinical Terms
SQL Structured Query Language
SSRS SQL Server Reporting Services
TPP The Phoenix Partnership
XML Extensible Markup Language
Page 28 of 29 Copyright © 2016 Health and Social Care Information Centre
![Page 29: Primary Care Data Application Form · Web viewbenchmarking information for named patient lists. Metrics at the individual GP level are currently unavailable, which is why this data](https://reader036.vdocuments.mx/reader036/viewer/2022070609/5ae901e17f8b9ac3618be3dd/html5/thumbnails/29.jpg)
Primary Care Data Application Form: NIC-391038-T4Q7Q v0.1 07/07/2016
9 Appendix C: Data flow process mapThe purpose of this process map if to provide a high level overview of the steps involved in extracting and disseminating the data.
Steps that take place prior to the data being extracted are coloured in Prussian Blue.Steps showing the data flowing into the HSCIC are coloured in Violet.Steps showing the data flowing out of the HSCIC are coloured in Deep Rubine.
Page 29 of 29 Copyright © 2016 Health and Social Care Information Centre