pndt
TRANSCRIPT
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Introduction
The Pre-natal Diagnostic Techniques (Regulation and Prevention ofMisuse) Act, 1994, was enacted and brought into operation from 1stJanuary, 1996, in order to check female foeticide.
" An Act to provide for the regulation of the use pre-natal diagnostictechniques for the purpose of detecting genetic abnormalities orcertain congenital malformations or sex-linked disorders and for the
prevention of the misuse of such techniques for the purpose of pre-natal sex-determination leading to female foeticide, and for matters
connected therewith or incidental thereto"
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Before going ahead,
Lets have a look at the
past..
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1 out of every 3 girls does
not live to see her 15th
birthday.
One third of these deaths
take place at birth.
Every 6thgirl childs death
is due to gender
discrimination.
Female mortality exceeds
male mortality in 224 out of
402 districts in India
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The world population has a sex
ratio of 990 females per 1000
males.
Sex Ratio:
Japan - 1041
U.S.A -1029
Indonesia - 1004 Bangladesh - 953
China - 944
India933
India has one of the lowest sex
ratio in the world
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State with Highest
Female Sex Ratio Kerala 1,058State with Lowest
Female Sex Ratio Haryana 861UT with Highest
Female Sex Ratio Pondicherry 1,001UT with Lowest
Female Sex Ratio Daman & Diu 710District with Highest
Female Sex Ratio Mahe(Pondicherry) 1,147
District with Lowest
Female Sex Ratio Daman (Daman& Diu) 591
Source: Census of India
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Sex selective abortion is a fairly recent phenomena but its root can be traced back to the age old practice
of female infanticide
In the 18th century, infanticide was initially documented by British officials
The scope of the problem became clear in 1871, at the time of Indias first census. there was asignificantly abnormal sex ratio of 940 women to 1000 men
The Infanticide Act in 1870 by the British, making it illegal. But the Act was difficult to enforce in a
country where most birth took place at home and registration was not compulsory
This inhuman practice continues even today. Unfortunately gross misuse of technological advancement
has aggravated this problem of female foeticide and ultrasound machines that were earlier used for
other medical purposes are now being extensively used to determine the sex of the child
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Female Foeticide
It is a practice that involves the
detection of the sex of the unborn
baby in the womb and the decision
to abort it if the sex is detected as a
female
This detection of the sex of the
baby is done through three
methods:
amniocentesis; chronic villus sampling
ultrasonography
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Sex Pre-selection
Parents frequently prefer their offspring to be of a particular sex for avariety of reasons. Social sex selection or human sex selection is the
attempt to control the sex of the offspring to achieve a desired sex
Three categories for methods of Sex Selection
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Causes of Female Foeticide
economic
social
governance
and policiestechnology
political
whereas
state-of-the-
art supply side
(technical andpolitical)
factors
essentially
fuel or at least
tolerate
prevailingsocial request
Demand side
(socio-
economic)
factors seem
to be primary
reasons for
the wide
spread of FF
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Economic Causes
Sons providethe workforceas they bringin a bride seenas an extra
pair of hands
Daughters donot stay withthe family.Hence parentsdo not profitfrom anyinvestmentsmade in thedaughter.
Dowry is ahuge financial
burden on thefamilies. This
burden leadsto thedaughter
being
perceived as aliability
Labour
marketdiscriminations are animportantform ofeconomic
discrimination
Women areoften paidlesser thantheir malecounterparts.
Womensearnings inIndia are only
38% of themale earnings(HDR 2004)
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Social Causes
Social causesemanate from
religiousbeliefs,
sanctions andpractices
Parents areconsidered to bethe trustees oftheir daughters,
who belongs toanother familyand in reality, isonly a guest tillshe is married off
into her
matrimonial home
Practice ofdowry furtherreduces the
status ofwomen andthe desire to
have adaughter
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Technological Factors
Before diagnostictechniques for sex detectionwere available, one couldnot carry out sex-selected
abortions at all
With technology, a newway to get rid of the
unwanted girl child wasdiscovered
According to UNICEF, theproblem of female foeticide
has been rising, astechnology has been
improving
Different technologies for sexdetermination are increasinglybeing available in rural areas
also, and this is fuelling fearsthat sex-determined abortionswill only increase in the future
Foeticide is a natural corollary of
infanticide, a result of theintroduction of technology
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Causes due to Governance and Policies
India was
one of thefirst nations
to have afamily
planningpolicy
(1952)
Two-childnorm has been
inculcated tothe people
through publicawarenesscampaigns,rather than
throughcoercion
With increasedurbanization families
have become
increasingly nuclear,there is realization of
the economicbenefits of the small
family, at the sametime, the ingrained
values such as sonpreference haveremained intact
In urban India,large no of
people adopt asmall family
femalefoeticide oftenis practiced to
limit the sizeof the family
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-- Reema Rajoli
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"Appropriate Authority" means the Appropriate Authority appointed under
section 17.
"Genetic Counselling Centre" means an institute, hospital, nursing home or anyplace, by whatever name called, which provides for genetic counselling to
patients.
"Genetic Clinic"means a clinic, institute, hospital, nursing home or any place,
by whatever name called, which is used for conducting pre-natal diagnostic
procedures.
"Genetic Laboratory" means a laboratory and includes a place where facilities
are provided for conducting analysis or tests of samples received from
Genetic Clinic for pre-natal diagnostic test.
"Regulations" means regulations framed by the Board under this Act.
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"Gynaecologist means a person who possesses a post-graduate qualification in
gynaecology and obstetrics
Medical Geneticist" means a person who possesses a degree or diploma or
certificate in medical genetics in the field of pre-natal diagnostic techniques or has
experience of not less than two years in such field after obtaining
(i) Any one of the medical qualifications recognised under the Indian Medical
Council Act, 1956 (102 of 1956)or
(ii) a post-graduate degree in biological sciences
Pre-natal diagnostic procedures" means all gynaecological or obstetrical or
medical procedures such as ultrasonography foetoscopy, taking or removingsamples of amniotic fluid, chorionic villi, blood or any tissue of a pregnant woman
for being sent to a Genetic Laboratory or Genetic Clinic for conducting pre-natal
diagnostic test
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Pre-natal diagnostic techniques includes all pre-natal diagnostic procedures and
pre-natal diagnostic tests.
Pre-natal diagnostic testmeans ultrasonography or any test or analysis of
amniotic fluid, chorionic villi, blood or any tissue of a pregnant woman conducted
to detect genetic or metabolic disorders or chromosomal abnormalities or
congential anomalies or haemoglobinopathies or sex-linked diseases.
Prescribed means prescribed by rules made under this Act.
Registered medical practitioner means a medical practitioner who possesses
any recognized medical qualification as defined in clause.
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Regulations
No Genetic Counseling Centre, Genetic Laboratory orGenetic Clinic unless registered under this Act, shall..
Conduct or associatewith, or help in, conductingactivities relating to pre-natal
diagnostic techniques
Employ any person whodoes not possess the
prescribed qualifications
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Registration
No person shall open any Genetic Counseling Centre, Genetic Laboratoryor Genetic Clinic after the commencement of this Act unless such Centre,Laboratory or Clinic is duly registered separately or jointly under this Act.
Every application for registration shall be made to the AppropriateAuthority and shall be accompanied by such fees as may be prescribed.
No Genetic Counseling Centre, Lab or Clinic shall be registered under thisAct unless the Appropriate Authority is satisfied that such Centre,
Laboratory or Clinic is in a position to provide such facilities, maintainsuch equipment and standards as may be prescribed.
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Every Genetic Counseling Centre, Lab or Clinic engaged in counseling
or conducting pre-natal diagnostic techniques,
immediately before the commencement of this Act, shall apply for
registration within sixty days from the date of such commencement.
shall cease to conduct any such counseling or technique on the expiry of six
months from the date of commencement of this Act unless such Centre,
Laboratory or Clinic has applied for registration.
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Scrutiny by Appropriate Authority
Inspection of the premises
Scrutiny by Advisory Committee
Appropriate Authority grants certificate of registration
The certificate is given in duplicate
The certificate should be displayed in the centre, laboratory or clinic
The certificate may specify one or more tests or procedures
The certificate is non-transferable
In the event of change of ownership or management, both copies of certificate to be
surrendered to Appropriate Authority
Steps After Applying
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The Certificate must mention the number of ultrasound machines in the centre. The
list of machines, including portable, should be displayed.
Rejection: If rejected, the reasons shall be given in writing and as specified in Form C.
The same shall be communicated to the applicant within 90 days from the date ofreceipt of the registration.
Cancellation / suspension of registration: The Appropriate Authority can at any time,
on its own or on a complaint issue a show cause notice as to why the registration should
not be cancelled or suspended for breach of any of the provisions of the Act or the rules.
The clinic, laboratory or centre must be given an opportunity to defend itself against thecharges. In exceptional cases, the AA may act without issuing a show cause notice.
Validity: 5 years.
Renewal 30 days before the date of expiry.
Each new owner or manager to apply a fresh
All bodies registered under the Act shall give an affidavit affirming that they will not
indulge in pre natal determination of sex as mandated by the Supreme Court.
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Regulation No.1
No place including a registered Genetic Counseling Centre or Genetic
Laboratory or Genetic Clinic shall be used by any person for conducting
pre-natal diagnostic techniques except for the purposes specified in the act
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Regulation No.2
Chromosomalabnormalities
Genetic
metabolic
diseases
Haemoglobin
opathies;
Congenital
anomalies;
Sex-linked
genetic
diseases;
No pre-natal diagnostic techniques shall beconducted except for the purposes of detection
of any of the following abnormalities, namely :
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Regulation No.3
No pre-natal diagnostic techniques shall be used or conducted unlessthe person qualified to do so is satisfied that any of the followingconditions are fulfilled, namely:--
age of the pregnant woman is above thirty-five years; the pregnant woman has undergone of two or more spontaneous abortions
or foetal loss;
the pregnant woman had been exposed to potentially teratogenic agentssuch as drugs, radiation, infection or chemicals;
the pregnant woman has a family history of mental retardation or physical
deformities such as spasticity or any other genetic disease; any other condition as may be specified by the Central Supervisory Board.
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Regulation No.4
No person, being a relative or the husband of the pregnant
woman shall seek or encourage the conduct of any pre-natal
diagnostic techniques on her except for the purpose specified
in clause (2).
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Regulation No.5
Written consent of pregnant woman and prohibition of communicating
the sex of foetus.
1. No person shall conduct the pre-natal diagnostic procedures unless
(a) he has explained all known side and after effects of such procedures to thepregnant woman concerned
(b) he has obtained in the prescribed form her written consent to undergo suchprocedures in the language which she understands; an
(c) a copy of her written consent obtained is given to the pregnant woman.
2. No person conducting pre-natal diagnostic procedures shall communicate
to the pregnant woman concerned or her relatives the sex of the foetus by
words, signs or in any other manner.
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Penalties For Violation
Imprisonment for a three years andfine of Rs 50,000. Subsequent offence,the fine can go up to Rs 1,00,000 andimprisonment up to five years
Person who seeks the aid of agenetic or ultrasound clinic
for sex selection
Imprisonment for up to 3 yearsand fined Rs. 10,000
Advertisement for pre-natal & pre-conception
sex determination
Imprisonment for up to 3 years andfined Rs. 10,000. Subsequent offence,the fine can go up to Rs 50,000 andimprisonment to five years
Gynaecologist, registeredmedical practitioner or any
person who owns an geneticcounseling center where the
test is conducted
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All records, charts, forms, reports, consent letters and all other documentsrequired to be maintained under this Act shall be preserved for a period oftwo years.
If any criminal or other proceedings are instituted against any GeneticCounseling Centre, Lab or Clinic, then the records shall be preserved tillthe final disposal of such proceedings.
All such records shall, at all reasonable times, be made available forinspection to the Appropriate Authority or to any other person authorized
by the Appropriate Authority in this behalf.
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Medico-legal Implications
Foeticide or feticide is primarily a legal issue referring to
illegal killing of a foetus
Maybe a legitimately induced abortion
Unfortunately fetal homicide are running rampant
An issue closely related to violation of not just women rightsbut more importantly, of human rights
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Medico-legal Implications
Against medical ethics to determine the sex of a foetus
As per the PCPNDT act, any attempt to determine the gender
of a foetus is a punishable act under legal jurisdiction
New Delhi, July 13: India plans to create a registry of all
pregnancies to help curb widespread female foeticide and
reduce its high infant mortality rate, although activists say thescheme will be hard to implement
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Medico-legal Implications
The Rajasthan government has filed police complaints against
21 doctors alleged to have been involved in the practice of
female foeticide. (Case of 2006) No action yet
One of the reasons why female foeticide is still quite prevalent
in the state could be the low conviction rate in such cases
Despite making strong cases against the accused, there have
hardly been any convictions under the Pre Natal Diagnostic
Techniques (Regulation and Prevention of Misuse) Act in the
recent past
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Safeguards
Ultrasound machines, including mobile ones, have to beregistered and records of all pre-natal diagnostic testsconducted to be maintained
[F ] form need to be filled by radiologists and patients
Every month the records are submitted at BMC office
The centre's which default their ultrasound machines areconfiscated by BMC
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Safeguards
SILENT SCREENER coming soon
Sonography centre's across the state will soon have to fall in
line and install a special device called a silent observer in
pregnancy test machines to help curb female foeticide
The central and state supervisory board will have
representatives of woman welfare organizations, social
scientists as well as medical experts
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HowCan You
HELP ?
-each one of
us counts
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We can contribute by:
Understanding the underlying factors that lead to sex selection
Creating awareness about this issue in our homes, communities,neighbourhoods and organisations
Encouraging a greater public debate and bringing the issue out in theopen by raising it at every possible forum
Reporting the matter to the authorities when the law is infringed
Encouraging the media to undertake in-depth reporting of this issue
Lobbying with the authorities for effective implementation of the law
Networking with groups and bodies actively involved in mobilizing thecommunity
Encouraging setting up new groups and forums to work in this area, and Taking the first steps towards gender equality in our own workplaces andhomes
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Case Study
Channo Devi is a scheduled caste Sikh from mansa district which is themost backward area of Punjab
She and her husband are illiterate and are landless labourers. She is from a
very poor family and not very religious
She has three daughters 6,5 and 3 years old. She thinks a boy is must in the
family
She has been pregnant 5 times and got female foeticide done twice. Shethinks sex of the child depends on God and came to know about ultrasound
through a neighbor.
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She thinks it is better to know the sex of the foetus as it is
very essential to have a son as he looks after the parents in old
age
According to her first child should be male and she thinks had
it been the case with her, she would not have given birth to so
many daughters
She was physically abused by her in laws for not giving birth
to a son
She got the abortion done on the advice of her husband and
has no regrets
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She is 34 and still plans to give any number of chances to have
a male child and does not want to have any more daughters,
therefore, she plans to go for sex determination and abortion incase foetus is female
She feels it is sin to kill the foetus but this does not deter her
from selective abortion
IN SUCH CASES ,RELIGIOUS ADVOCACY IN THE
PRESENT FORM IS NOT GOING TO WORK
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References
http://www.medindia.net/indian_health_act/the_pre_n
atal_diagnostic_techniques_pndt_act_rules/list-of-
acts.htm
http://pndt.gov.in/
http://www.indiafemalefoeticide.org/
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