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    NURSING IN THE NEW MILLENIUM:

    TOUCHING PATIENTS LIVES THROUGH COMPUTERS

    Shirley M. Moore Constance Visovsky

    Case Western Reserve University

    Cleveland, Ohio

    Common nursing functions, previously done in face-to-face interactions, are beginning to be done

    using computer interactions, thus changing the work environment of nurses. This paper reports

    experiences from a series of projects +bout the potential impact of electronic care delivery

    systems on nurses work systems. Nurses attitudes towards technology, values central to nursing

    practice and nursing functional roles are important factors to consider when designing

    computerized nursing care delivery systems.

    BACKGROUND

    Although computers often are associated with

    the business functions o f health care delivery (B rend,

    1994) and decision support for professionals (Papemy,

    Aono, Lehman, Hamar, Risser, 1990), their use to

    deliver patient care has progressed slowly. More

    recently, however, common nursing functions,

    previously accomplished in face-to-face interactions,

    are beginning to be done using computer

    communications. Integrating the high touch values

    commonly associated with nursing care into the design

    of computerized nursing care deliveT systems is

    essential if the widespread use of technology-mediated

    care

    is to be realized. This paper describes

    characteristics of nurses and the work of nurses that are

    important to consider when designing computerized

    nursing care delivery systems. These characteristics are

    nurses attitudes towards technology, values central to

    nursmg practice and nursing functional roles.

    Experiences from several projects in wh ich electronic

    nursing care delivery systems were developed and

    evaluated are described.

    Nurses Attitudes toward Technology

    Over the past 50 years nurses have increasingly

    used technology to support the care they provide.

    Widespread use of technology by nurses began

    following the development of monitors, ventilators and

    other machines for use in intensive care units by critical

    care nurses. The use of technology in healthcare has

    progressed to the point where machines, such as

    ventilators are frequently used by home care nurses in

    peoples homes. It has been proposed that modem

    nursing is deeply connected to technology development

    (Barnard, 1999). However, nurses attitudes toward

    computers tend to indicate that they are undecided

    about computer technology. In a survey of hospital

    nurses, McConnell and colleagues (1989) found that

    although nurses thought that the use of computers

    improved the quality of patient care, they also believed

    that their use dehumanized the care. It should be noted

    that one half of the nurses surveyed had no experience

    with computers. Another view dominant in the nursing

    literature is that nurses are the patients bridge from the

    impersonal, technologic world to the humanistic world

    (McConnell, 1998). This technologic-humanistic

    dualism philosophica l view has fostered nurses fears

    about the increase of technical quality at the expense of

    humanness. Thus, as a group, nurses have been reticent

    to embrace computer-mediated care. Understanding

    nurses professional values and their functional roles

    may enhance he transition from traditional nursing care

    delivery modes to a model that integrates widespread use

    of computer-assistednursing care.

    Nursing Values

    Nurses are socialized to a set of values in their

    professional education and practice. Nurse values of (1)

    individualizing care, (2) fostering self-care, (3)

    vigilance, (4) maintaining caring interpersonal

    relationships, (5) supporting patient autonomy and (6)

    providing collaborative care are factors that must be

    considered in the design and implementation of

    electronic tools to support nursing care. Although the

    successful delivery of health care presumes a certain

    degree of standardization of treatments

    and

    interventions, nursing values reinforce mod ifying care

    away from the one size fits all model. Nursing care

    focuses on tailoring care to the unique needs of patients

    and their families. Fostering self-care refers to nurses

    support and education of patients to engage n activities

    that are health-promoting. Another value central to

    nursing is vigilance. V igilance refers to the careful

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    watchfulness of nurses in assessing, screening, and

    monitoring patient clinical status and patient responses

    to the application of interventions.

    Basic to nursing values is the helping

    relationships in which nurses engage with their patients

    (Morse, 1990). This relationship progresses over time

    as the nurse interacts with patients to m anage health

    problems by building trust through genuine caring and

    encouraging patients to share thoughts and feelings.

    Through intimate interpersonal relationships, nurses

    conduct activities aimed at restoring physical,

    emotional, spiritual and social well being. Additionally,

    nurses historically have fostered patient autonomy by

    suppor ting patients rights to make decisions about their

    health. Nurses also value collaboration with other

    healthcare professionals to plan care.

    Nursing Functional Roles

    Common roles and functions of nurses are

    caregiver, client advocate, case manager, rehab ilitator,

    comforter, communicator, and teacher.

    While

    caregiving will always require some face-to-face

    interaction (i.e. bathing patients, physical

    examinations), many nursing caregiver functions are

    amenable to computer mediation, such as symptom

    monitoring, the provision of information, assistance

    with decision-making,

    and providing emotional

    support. As patient advocates, nurses support and

    uphold patients values and assist them to navigate the

    health care system to get their needs addressed.Nurses

    also act to protect the human and legal rights of those in

    their care. As case managers, nurses assess,coordinate

    and organize the healthcare resources needed by

    patients throughout their illnesses. As rehabilitators,

    nurses direct and engage n activities aimed at restoring

    physical and psychological functioning. As comforters,

    nurses direct care of the whole person, giving the

    physical and emotional support needed for coping with

    illness or preparing for death.

    The role of

    communicator is central to nurses in their interactions

    with patients, families and other healthcare

    professiona ls. As teachers, nurses offer explanations

    about the patients condition, necessary treatments, and

    demonstrate procedures to facilitate the persons self-

    care abilities.

    Nurses work in several types of environments.

    Hospitals, a major work environment of nurses, are

    complex orgamzatmns in which nurses have

    traditionally had a large responsibility for system

    maintenance. Nurses also provide ca re in clinics,

    homes, schools, industrial companies, and health

    advocacy agencies. But, common to all of these work

    environments of nurses, is the nurse-patient relationship

    as the most basic of environments. Computer-mediated

    nursing care delivery systems represent a new

    environment for therapeutic nurse-patient relationships.

    Therefore, as electronic healthcare delivery systems are

    developed, we must be mindful of professional nursing

    values and essential nursing functional roles.

    EXPERHXNCES WITH ELECTRONIC

    NURSING CARE DELIVERY SYSTEMS

    ComputerLink

    Electronic care delivery systems are creating

    new work environments for nurses. The use of electronic

    systems to deliver nursing care has been refined by the

    authors in a series of projects and is described below. In

    the first project, Brennan, Moore and Smyth (1995)

    provided home care support to caregivers of persons

    with Alzheimers disease using a computer network,

    ComputerLink. Computer terminals placed in clients

    homes allowed 24-hour access to a variety of features,

    including a communications module, an information

    module and a decision assistance module. The

    communications module included a public bulletin

    board, where clients and a nurse moderator publicly

    posted and read messages; a Question and Answer

    section in which clients anonymously posted questions

    to a registered nurse; and a private mail system. The

    information system provided several hundred indexed

    screens of information about the disease course,

    diagnosis, and treatment, symptom management, care

    issues and community services. The decision support

    module guided clients through decisions using an

    analysis process that incorporated their own words and

    preferences, thus assisting them to make choices

    consistent with their own values. The nurse moderator

    employed both individual and group interventions of

    support, information-giving, encouraging expression of

    feelings and ideas, acceptance, eassurance,clarification,

    and interpretation. In the ComputerLink project, we

    learned that clients with little or no compu ter skills

    easily learned to use computers and accessed

    information and support electronically.

    Clinical interventions using ComputerLink

    required the nurse to have an understandirig of how

    computer technology affected client participation,

    communication, relationship development, and group

    norms, both social and computer behavior (Moore,

    1997). Several

    challenges of the computer

    communications that affected the nursing system of care

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    included: (1) the lack of physical presence of clients,

    (2) diffuse time referents, (3) asynchronous

    communication, and (4) the necessity to teach clients to

    use the technology. The absence of face-to-face visual

    cues required the nurse to rely on a new set of cues,

    many of which differ from those of clinical encounters

    involving face-to-face or voice communication.

    Developing and maintaining relationships is a goal in

    any therapeutic clinical encoun ter. Rapport and trust

    were developed between the nurse and clients though

    the use of standard protocols for comptiter

    introductions

    among

    participating

    parties,

    encouragement of the use of a conversational tone in

    messagesposted on the system, and nurse modeling of

    emotional expressions n messages.

    Changing Cardiac Risk Factors

    In another project, interd isciplinary teams of

    health professions students (medical, nursing, nutrition,

    and epidemiology) worked w ith an electronic

    community of individuals to change cardiac risk

    factors, such as increasing physical activity and

    following a low fat, reduced calorie diet (Moore, in

    press). Using on-line methods without face-to-face

    interactions, the students: (1) deve loped a therapeutic

    relationship w ith clients over a computer network (2)

    assessedclients current health patterns regarding diet

    and exercise compliance with heart-healthy lifestyle

    guidelines, (3) employed a series of behavior change

    strategies while electronically coaching clients to

    make these lifestyle behavior changes, and (4) tracked

    trend da ta related to diet and exercise behavior over the

    project period. The interdisciplinary teams held virtual

    team meetings for case discussion of their client load.

    This virtual approach to team care solved some of the

    challenges normally associated with interdisciplinary

    collaboration in the health professions, such as finding

    convenient times to meet and creating efficient records

    of team discussions and decisions.

    He Care

    In a recent project, HeartCare (Brennan, et al.,

    1998), customized teaching and home management

    support are provided by nurses to patients for six

    months following cardiac surgery using home-based

    WebTV. In this project, several hundred pages of

    cardiac recovery information on the Internet were

    evaluated for accuracy, appropriateness, reading level,

    and gender focus. Additionally, nearly 200 pages of

    cardiac information not available on the Internet were

    created by the project team. These Web pages were

    entered into a data-base and are dynamically pulled

    according to a tailoring algorithm based on information

    known to the nurse about patient health status, gender,

    co-morb idities, risk factors and recovery time frame. For

    example, the Web pages provided for a patient with a

    smoking history and diabetes are different from those

    given to a patient who needs weight managemen t and an

    exercise program. The nurse also is able to add or delete

    pages any time during the six-month recovery period for

    individual patients based on changes in the their health

    status or treatment plan. Thus, individualizing recover

    information for each client is cenhal in the design of the

    HeartCare system.

    Patient self-care is fostered by the design of the

    content on the Web pages. The content of the Web pages

    was built following the guidelines of a nursing theory of

    self-regulation (Johnson, 1999) that specifies the type of

    information to provide to individuals to assist them to

    self-manage stressful illness situations. In addition, a

    search function using patient, rather than medical

    language terms allows patients to seek healthcare

    information on the HeartCare system.

    Maintenance of the Heart -e system also is

    conducted by the nurse moderator who provides vigilant

    attention to server performance, Web page address and

    content changes. Although an automated link checking

    system is employed, supplemental manual checks are

    done to insure link stability and the nurse checks weekly

    for unexpected changes or alterations in W eb page

    content to insure clinical applicability of the information.

    The nurses role as educator has expanded with

    the increased use of Web-based healthcare information

    by patients. Nurses are learning to critically analyze Web

    site content, source of content, quality o f content, and

    intended audience. When patients present information

    downloaded from the Internet, nurses must be prepared

    to analyze the information for accuracy and applicability

    and advise patients about proper use of Web-based

    health care resources and current treatment interventions.

    Teaching patients how to use search engines, bookmark

    favorite Web sites, and access health-re lated support

    groups are examples of patient education skills nurses

    soon will be providing on a daily basis. Nurses are

    beginning to develop Web pages containing health

    information for clients. This is an important role for

    nurses since they are knowledgeable about hdw to tailor

    information to appropriate reading levels, cultural

    aspects, and developmental needs of patients.

    The HeartCare system also has an electronic

    mailing communication feature though which the nurse

    monitors patients progress, manages symptoms, and

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    provides personal recovery advice. The nurse is able to

    develop an interpersonal relationship with clients that

    encompassed the roles of teacher, communicator,

    comforter, rehabilitator, and caregiver. In its current

    form, the He Care system does not support

    collaboration among health care professionals, although

    this function easily could be added.

    SUMMARY

    Over the past ten years, om experiences n the

    design and testing of electronic nursing care delivery

    systems has provided us with insights about the

    potential impact of electronic care delivery systems on

    nurses work systems. We are learning abou t the ideal

    client load that can be reasonably managed

    electronically by a nurse or healthcare team, how much

    electronic client contact should be done individually or

    in groups, the extent to which clients families can be

    involved, and the correct balance between the amount

    of work done with clients on-line and using other forms

    of communication, i.e., telephone, written, or face-to-

    face. We also are learning about design features that are

    important to patients and nurses.

    Technology is an important factor in the

    evolution of nursing practice and the experience of

    nursing (Barnard, 1996). It is suggested that adequate

    conceptions of technology will emerge when nursing

    defines technology as influential in the organization of

    human labor and fundamental to its moral and political

    goals. Our experience has shown us that a technologic-

    humanistic dualism does not have to exist in

    technology-mediated nursing care. Challenges to the

    humanistic aspects of nursing (maintaining high

    touch in a high tech system) can be sufficiently

    managed f computerized nursing care deliveT systems

    include design features mindful of professional nursing

    values and functional roles.

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