patient access partnership · presentation agenda procedural 03 07 proposals 2018 accounts 2017. 05...

PATIENT ACCESS PARTNERSHIP

PARTNERS’ ASSEMBLY MEETING 2018

Stanimir Hasardzhiev

PACT Secretary-General

Agenda

13:00 – 13:15 Welcoming remarks

13:15 – 14:00 Annual Report and Accounts 2017

14:00 – 14:30 Procedural

14:30 – 14:45 Coffee break

14:45 – 15:30 Draft Work Plan and Budget 2018

15:30 – 15:45 Special introductions from the EU institutions

15:45 – 17:00 Workshop: “PACT: Partners’ Engagement in Future Activities”

17:00 – Closing remarks

05

BUDGET 2018

01

HIGHLIGHTS 2017

02

VISIBILITY 2017

04

06

PRESENTATION

07

WORKSHOP

PRESENTATION AGENDA

PROCEDURAL

03

07

PROPOSALS 2018

ACCOUNTS 2017

Places access high on the EU agenda

• MEP events to raise awareness on access issues

• Supports MEPs’ actions to eradicate inequities

Brings stakeholders together

• Connects EU-level health stakeholders

• Encourages national cooperation to improve access

Encourages action to improve access

• Pilot Project on access to healthcare in the EU

• Opinion on Benchmarking access to healthcare in the EU

Partnership

Policy

Research

PACT’s impact.

PARTNERSHIP.

2014

• Launch of PACT

2015 2016

• PACT Regional

Conference

2017

• Country Stakeholder

Meeting - Lithuania

• Country Stakeholder

Meeting - Romania

• 5As publication in

the Public Health

Genomics Journal

Brings stakeholders together. The national level: Lithuania.

• What?

Round-table “Patient-Centred Roundtable on Working Together for Accessible Health” (June 8, Lithuanian Parliament (Vilnius)

• Who?

POLA, PACT, EPF, Committee on Health Affairs of Lithuanian Parliamant, Lithuanian Patients‘ Forum

• Endorsements Under the auspices of the Lithuanian Minister of Health, Prof. Dr. Aurelijus Veryga

• Priority areas for action

Improving cooperation between social, health and economic sectors;

Increasing transparency and combatting corruption in healthcare;

Unleashing the potential of Lithuanian Life Sciences sector

Brings stakeholders together. The national level: Romania.

• What?

Round-table “Patient-Centred Roundtable on Working Together for Accessible Health” (Nov 20, Bucharest)

• Who?

COPAC, PACT, EPF, Health Committee of the Senate / Health Committee of the Deputy Chamber (Romanian Parliamant)

• Endorsements Under the auspices of the Romanian Minister of Health, Mr. Florian Bodog

• Priority areas for action

Universal access to healthcare for all

Access to the most effective treatment options

Comprehensive patient registries and systematic surveillance data

Transparent, inclusive and accountable decision-making

POLICY. Meetings in cooperation with MEP IG on Access.

2013

• Equity of Access

2015

• Future health needs

2017

• Future Scenarios for the EU

• Health at a Glance: Europe• EXPH Opinion on Access• “State of Health in the EU”

• Synergies

2016

PACT

Health on the EU agenda.

ENCOURAGES ACTION.

2015

• RIGA Conference

“Most tangible

initiative”

2016

• EP Resolution on the EU

Semester Annual Growth

Survey ’16

2017

• Pilot Project “Towards a

fairer and more effective

measurement of access”

• HF Gastein

session on

multimorbidity

- “…calls on the Commission to...measure access to high-quality healthcare”

- Stresses on the importance of “equal access to healthcare services for all citizens”

• EPF Roadmap on Universal

Health Coverage

Pilot Project on Measuring Access Application.

Activity 1

Literature review

Activity 2

Analysis of currently available indicators

Activity 3

Proposal for new indicators

Activity 4

Proposal for a framework for measuring access to healthcare in the EU

Activity 5

Proposal of a strategy for scale-up and implementation of new frameworks for measuring access

Title

Pilot Project “Towards a fairer and more effective measurement of access to healthcareacross the EU in order to enhance cooperation and know-how transfer”

*developed by MEP IG on Access in cooperation with PACT

Objectives

Addresses the need for comparable andtimely data on access in EU through:

improvement of existing indicators

piloting of a new set of measurements ofaccess

EPF Roadmap to Achieving Universal Health Coverage for All by 2030

Closing meeting Second Round Consultation

First Round Consultation

PACT = a member of the EPF Working Group on Access

05

BUDGET 2018

01

HIGHLIGHTS 2017

02

VISIBILITY 2017

04

06

PRESENTATION

07

WORKSHOP

PRESENTATION AGENDA

PROCEDURAL

03

07

PROPOSALS 2018

ACCOUNTS 2017

We contribute.

Q1

•Cloud in Health Advisory Council: Empowering Health

•HealthXL Global Gathering

Q2

•European Federation of Allergy Associations AGM

•MEP Konecna event: “Why Europe?”

•PACT Country meeting: Lithuania

•EPHA AGM

•HTAi conference

•EMA PCWP/HCPWP meeting

•MEP IG event

•Gastein Health Forum workshop

Q4

•POLITICO’s PM debate

•PACT Workstreams meeting

•PACT Country meeting: Romania

•MEP IG Event (Oct)

•MEP IG Event (Nov)

•EAPM Presidency Event

•EPF Roadmap event

In 2017:2 MEP IG events2 national round-tables

17 meetings attended

>160 >100

2,242

7,696

10,815

4,031

13,970

18,937

2015 2016 2017

Page views

Unique visitors

We inform.

In 2017:3119 new visitors4967 more page visits

8 press-releases5 reports

We inform.

20172016

We grow.

European CanCer Organisation

The European Forum for Good Clinical Practice (EFGCP)

International Federation for Spina Bifida and Hydrocephalus (IF)

European Confederation of Pharmaceutical Entrepreneurs (EUCOPE)

European Association of Pharmaceutical Full-line Wholesalers (GIRP)

Acumen Public Affairs

We aspire.

Jan Feb Mar Apr May Jun Jul Aug Sept Oct Nov

- WS Access on the Agenda- WS Measurement Tool- WS Mapping Access

- Partners’ Assembly

- SC (TC)- SC (TC)

2017

We care.

- SC (TC)

- SC

- Steering Group Presidency Conference Meeting

For all this…Thank you!

05

BUDGET 2018

01

HIGHLIGHTS 2017

02

VISIBILITY 2017

04

06

PRESENTATION

07

WORKSHOP

PRESENTATION AGENDA

PROCEDURAL

03

07

PROPOSALS 2018

ACCOUNTS 2017

Contribution

•Umbrella trade associations Financial

•Other Partners In-kind

Core activities

Project activities

Income / Expenditure

INCOME RES '15 RES '16 RES '17

GRANTS

EFPIA 120 000 € 30 000 € 30 000 €

Medicines for Europe - € 20 000 € 20 000 €

MedTech Europe - € 10 000 € 10 000 €

COCIR - € 7 500 € 7 500 €

EUCOPE - € - € 3 350 €

TOTAL INCOME 120 000 € 67 500 € 70 860 €

TOTAL COSTS 91 529 € 59 716 € 72 179 €

BALANCE 28 471 € 36 256 € 34 937 €

Non-industry contribution:

in kind and in cash

PARTNERS' CONTRIBUTION RES '15 RES '16 RES '17

MEP Interest Group on Access (MEP events)

Venue 9 600 € 9 600 € 9 600 €

Catering 1 650 € 600 € 600 €

Travel & Accommodation 7 800 € - € - €

SUBTOTAL 19 050 € 10 200 € 10 200 €

National Patients' Organisation - Bulgaria

PACT Regional Conference - € 146 236 € - €

PACT Country Stakeholder Meetings - € - € 12 714 €

SUBTOTAL - € 146 236 € 12 714 €

European Patients' Forum

Venue - € 4 200 € 1 800 €

Equipment - € 1 400 € 800 €

SUBTOTAL - € 5 600 € 2 600 €

COPAC Romania (Country Stakeholder Meeting)

Accommodation - € - € 300 €

Printing costs - € - € 350 €

Simultaneous translation - € - € 1 600 €

SUBTOTAL - € - € 2 250 €

POLA Lithuania (Country Stakeholder Meeting)

Venue - € - € 600 €

Equipment - € - € 200 €

SUBTOTAL - € - € 800 €

TOTAL 19 050 € 162 036 € 28 564 €

Expenditure 2017: Core activities

ITEM BUDGET '17 (Est.) EXPENDITURE '17

Workstream "Mapping Exercise" x 2 meetings (venue, equipment, catering, travel and accommodation) 3 000 € 1 500 €

Workstream "Measurement Tool" x 2 meetings (venue, equipment, catering, travel and accommodation) 3 000 € - €

Workstream "Ensuring Access on the Agenda" x 2 meetings (venue, equipment, catering, travel and accommodation) 3 000 € - €

Steering group meetings x 4 (venue, equipment, catering, travel and accommodation) 5 000 € 1 500 €

Meetings at EP (Interest Group) x 2 (venue, equipment, catering, speakers, materials, reports, travel and accommodation) 6 000 € 5 000 €

Partnership Assembly Meeting (venue, equipment, catering, speakers, materials, travel and accommodation) 7 000 € 3 300 €

Subtotal 27 000 € 11 300 €

ADMINISTRATIVE COSTS

Staff support costs (salary of coordinator, accountancy) 26 000 € 26 000 €

Office sublet (incl. telephone, equipment) 13 000 € 13 000 €

Representation (travel and accommodation) 15 000 € 7 000 €

Consultancy services (Pilot Project) 12 000 € 14 000 €

Subtotal 66 000 € 60 000 €

COMMUNICATIONS

Website / social media (contents development, website monthly maintenance fee, printouts, etc) 2 000 € 500 €

Subtotal 2 000 € 500 €

Contingency 5 000 € 400 €

TOTAL 100 000 € 72 200 €

MEETINGS

Expenditure 2017: Project activities

Expenditure for 2 events

PROJECTS BUDGET '17 (Est.) EXPENDITURE '17 SOURCE

4 country meetings (venue, equipment, catering, logistics, reports) 28 000 € 8 518 €

Representation (travel & accommodation) 10 000 € 4 046 €

Interpretation services 4 000 € 3 200 €

Contingency 2 000 € - €

Subtotal 44 000 € 15 764 € NPO / COPAC / POLA

2 meetings (venue, equipment, catering, logistics) 10 000 € - €

Representation (travel & accommodation 4 000 € - €

Remuneration (10 experts & 2 rapporteurs) 5 000 € - €

Final (extensive) report (drafting, editing and design) 5 000 € - €

Printing and dissemination of report 3 000 € - €


Subtotal 29 000 € - €

Preparation (modifications and finalisation of questionnaire - phase 1, literature review) 1 000 € - €

Approval (preparation and comminication of questionnaire - phase 2) 2 000 € - €

Validation (on-line plaform, monitoring, data analysis, presentation of results, modifications, final data analysis) 17 000 € - €

Follow-up (paper publication, presentation of results) 5 000 € - €


Subtotal 27 000 € - €

2 meetings: launch and follow-up (venue, equipment, catering, logistics) 10 000 € - €

Representation (travel & accommodation 2 000 € - €

Final report (drafting, editing and design) 2 000 € - €


Subtotal 16 000 € - €

TOTAL 116 000 € 15 764 €

COUNTRY STAKEHOLDER MEETINGS

PACT EXPERT PANEL ON UNIVERSAL ACCESS

NEXT PHASE OF MEASUREMENT TOOL OF ACCESS

MAPPING ACCESS EXERCISE

Expenditure: Country Stakeholder Meetings

COUNTRY STAKEHOLDER MEETING LITHUANIA Cost (EUR)

(A) Direct costs

Report (design) 92,03 €

Printing costs (handouts) 348,36 €

Simultaneous translation 1 600,00 €

(B) Travel, accommodation and subsistence costs

Accommodation 765,86 €

Flights 1 393,78 €

Welcome reception 1 800,00 €

Catering (lunch, 2 coffee-breaks) 2 120,00 €

Subsistence cost (PACT representatives) 533,93 €

(C) Logistics

Taxis / transfers 94,29 €

Postal services 135,88 €

(D) Other

Commission (bank transfers) / exchange rate - €

TOTAL [A]+[B]+[C]+[D] 8 884,13 €

COUNTRY STAKEHOLDER MEETING ROMANIA Cost (EUR)

(A) Direct costs

Report (design) 58,30 €

(B) Travel, accommodation and subsistence costs

Flights 667,20 €

Venue rental services and catering 2 948,79 €

Subsistence cost (PACT representatives) 144,40 €

(C) Logistics

Taxis / transfers 10,90 €

(D) Other

Commission (bank transfers) / exchange rate - €

TOTAL [A]+[B]+[C]+[D] 3 829,59 €

05

BUDGET 2018

01

HIGHLIGHTS 2017

02

VISIBILITY 2017

04

06

PRESENTATION

07

WORKSHOP

PRESENTATION AGENDA

PROCEDURAL

03

07

PROPOSALS 2018

ACCOUNTS 2017

Nominations by category

EPF

Anders Olauson

NPO

Stanimir Hasardzhiev

MEP IG

Andrey Kovatchev

HC Professionals

TBC

Academia

Kyriakos Souliotis

Public Health NGOs

Alyna Smith

Mary Lynne Van Poelgeest-

Pomfret

Umbrella trade associations

Rotation

14:30 – 14:45

05

BUDGET 2018

01

HIGHLIGHTS 2017

02

VISIBILITY 2017

04

06

PRESENTATION

07

WORKSHOP

PRESENTATION AGENDA

PROCEDURAL

03

07

PROPOSALS 2018

ACCOUNTS 2017

Inspire. Guide. Exchange!

INSPIRE

• Improve awareness on existing and explore new approaches for improving access to healthcare

GUIDE

•Support the efforts to maintain the issue of equitable access high on the EU policy agenda

EXCHANGE

•Build a sustainable organisation which supports, develops and utilizes the Partner’s potential

5 A’s of Access: Availability, Adequacy, Accessibility, Affordability, Appropriateness

PACT enables different health stakeholders to join forces to develop, drive and propose sustainable solutions to ensure equitable patients’ access to

quality healthcare in the EU.

PRIORITY 1: INSPIRE

PACT Country stakeholder meetings

PRIORITY 1: INSPIRE

Activity

• PACT Country stakeholder meetings

Countries (TBC)

• Poland

• Portugal

Output

1. Two country country-tables

2. Two meeting reports with recommendations

3. Two press-releases

4. Two dedicated webpages on PACT’s website

Timeline

• Q3 - Q4

PRIORITY 2: GUIDE

Activity 1

Activity 2

Activity 3

PRIORITY 2: GUIDE. Activity 1

Activity 1

• Meeting(s) during the EU Presidencies (BG, AT, RO)

Event

• Meeting during BG Presidency: “The future of health in the EU”

Output

1. Event

2. Meeting report

3. Press-release

4. Dedicated webpage on PACT’s website with meeting materials

Location

• Sofia, Bulgaria

Timeline

• Q2 (31 May – 1 June)


Activity 2

MEP IG on Access/PACT events Output

Two events

Two reports

Two press-releases

Timeline

Q2 / Q4


Participate in meetings of Partners and stakeholders

Q2 - Q4

Activity 3

Timeline

PRIORITY 3: EXCHANGE

1. REVISE THE METHODOLOGY FOR PARTNERS' INVOLVEMENT

• Revisit the working procedures for input / feedback from the Partners to integrate and

stimulate best-practice exchange

2. EXPAND THE PARTNERS' NETWORK

• Expand the Partners’ network to ensure broader representation of perspectives

3. INTEGRATE INTERNAL CHANNELS FOR COOPERATION AND EXCHANGE

• Integrate internal channels for dissemination of key information materials to ensure

timely interventions at the EU and national levels.

4. IMPROVE THE INTERNAL HUMAN CAPACITY

• Broaden the expertise of PACT by involving additional human capacity for administrative,

policy and communications-related tasks.

05

BUDGET 2018

01

HIGHLIGHTS 2017

02

VISIBILITY 2017

04

06

PRESENTATION

07

WORKSHOP

PRESENTATION AGENDA

PROCEDURAL

03

07

PROPOSALS 2018

ACCOUNTS 2017

Budget 2018: Core activities

ITEM BUDGET '18 (Est.)

Workstream "Mapping Exercise" x 1 meeting (venue, equipment, catering, travel and accommodation) 1 500 €

Workstream "Measurement Tool" x 1 meetings (venue, equipment, catering, travel and accommodation) 1 500 €

Workstream "Ensuring Access on the Agenda" x 1 meetings (venue, equipment, catering, travel and accommodation) 1 500 €

Steering group meetings x 2 (venue, equipment, catering, travel and accommodation) 2 500 €

Meetings at EP (Interest Group) x 2 (venue, equipment, catering, speakers, materials, reports, travel and accommodation) 8 000 €

Partnership Assembly Meeting (venue, equipment, catering, speakers, materials, travel and accommodation) 4 000 €

Subtotal 19 000 €

ADMINISTRATIVE COSTS

Staff support costs 26 000 €

Office sublet (incl. telephone, equipment) 13 000 €

Representation (travel and accommodation) 15 000 €

Subtotal 54 000 €

COMMUNICATIONS

Website / social media (contents development, website monthly maintenance fee, printouts, etc) 1 000 €

Subtotal 1 000 €

Contingency 5 000 €

TOTAL 79 000 €

BALANCE 2017 34 937 €

GRANTS 2018 (Est.) 62 500 €

BALANCE 2018 (Est.) 18 437 €

MEETINGS

Budget 2018: Project activities

PROJECTS BUDGET '18 (Est.)

2 country meetings (venue, equipment, catering, logistics) 10 000 €

Representation (travel & accommodation) 5 000 €

2 reports (drafting, editing and design) 1 000 €

Interpretation services 4 000 €


Subtotal 22 000 €

Technical services (equipment, recording / videos / photos, venue, branding), materials (website, branded materials / handouts, report) 30 000 €

Organisation (accommodation, hotel equipment, hotel service staff), flights (fees), catering 86 000 €

Taxis / transfers 3 000 €

Reimbursements, commission / exchange rate, contingency 4 500 €

Secretariat (fundraising, contents and material preparation, management) / Accounting services 20 000 €

Subtotal 143 500 €

PACT Website redesign and integration of internal platform for exchange between Partners 4 000 €


Subtotal 6 000 €

TOTAL 171 500 €

COUNTRY ROUND-TABLES IN SELECTED EU COUNTRIES

MEETING DURING THE BULGARIAN EU PRESIDENCY

INTEGRATE INTERNAL CHANNELS FOR COOPERATION AND EXCHANGE BETWEEN PARTNERS

Subject to funding

Income / Expenditure 2018

INCOME RES '15 RES '16 RES '17 EXPECTED '18

GRANTS

EFPIA 120 000 € 30 000 € 30 000 € 30 000 €

Medicines for Europe - € 20 000 € 20 000 € 10 000 €

MedTech Europe - € 10 000 € 10 000 € 10 000 €

COCIR - € 7 500 € 7 500 € 7 500 €

EUCOPE - € - € 3 350 € 5 000 €

TOTAL INCOME 120 000 € 67 500 € 70 860 € 62 500 €

TOTAL COSTS 91 529 € 59 716 € 72 179 € 79 000 €

BALANCE 28 471 € 36 256 € 34 937 € 18 437 €

Trend.

120 000 €

67 500 €

70 860 €62 500 €

91 529 €

59 716 €

72 179 € 79 000 €

€ 0

€ 20 000

€ 40 000

€ 60 000

€ 80 000

€ 100 000

€ 120 000

€ 140 000

RES '15 RES '16 RES '17 EXPECTED '18

TOTAL INCOME TOTAL COSTS

05

BUDGET 2018

01

HIGHLIGHTS 2017

02

VISIBILITY 2017

04

06

PRESENTATION

07

WORKSHOP

PRESENTATION AGENDA

PROCEDURAL

03

07

PROPOSALS 2018

ACCOUNTS 2017

1. Purpose and Methodology

2. Major Findings

3. Discussion

PACT Survey on Partners' Expectations and Engagement

Purpose and Methodology

1. Purpose

• Assess PACT focus areas and activities for 2018 onwards

• Ascertain partner engagement interest

• Identify partners’ priorities and identify common grounds of interest

2. Methodology

• Four questions (ranking, multiple choice, commentary)

3. Target audience

• PACT Partners

Overview

1 1

2 2

1 1

Consultancies Government & EUInstitutions

HealthcareProfessionals

Industry Patientorganisations

Public Health NGOsand Experts

5-22 December 2017

8 Respondents

0,00 0,50 1,00 1,50 2,00 2,50 3,00 3,50 4,00

Raising awareness on pertinent issues of access at EU level

Facilitating information exchange among healthstakeholders including MEPs, the European Commission

and the Council of the European Union

Encouraging benchmarking initiatives that enable usefulcountry comparisons

Engaging with EU institutions to flag issues of access forpatients across the EU

Bridging the gap between EU and national policies throughcountry stakeholder meetings

The activities of PACT have included the following dimensions. Please rank them in terms of importance:

SDGs

Encourage stakeholder input for evidence on access

Impact on patient care of Proportionality test Proposal

Amplify country round-table efforts

Extend MEPs Interest Group membership

PACT Strategy 2025

Actions related to Roadmap on UHC

Position statements on key topics (HTA, digital HC, medicines regulation, etc.)

Linking partners to EPSCO Council access discussions

Annual report on access

Enhance communication

Cover broader issues of access

Build on the implementation report on Directive on Patient's Rights (Oct, 2018)

Apart from the activities mentioned above, is there anything else that PACT should be doing in 2018 and onwards?

What is the added value of PACT for your activities?

“Ensuring the issue of patient

access to treatment is high on European and

national agendas”

“Engagement with range of health sector actors;

united voice on issues of access”

“Meeting public health

stakeholders and exchange of

views”

“An additional way to facilitate patient-

pharmacist engagement at local /

regional / national level”

“Cascade effect/ message

amplifier”

“Multi- stakeholder approach is

valuable – buy -in from all players

involved in health”

“Governments value a

coordinated multi-stakeholder

response”

“Provision of information”

“Linking up to other organisations

with similar concerns”

“Sharing the task of raising access

up the agenda and achieving progress” “The ideas and

initiatives are very good on

themselves”

“Ensuring that the voice of all

stakeholders is heard at EU level”

What capacity are you ready to commit to PACT activities?

63%

100%

88%

38%

Consultation feedback

Meeting attendance

Expert advice and knowledge on specific topics

Joint statements input and validation

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

WORKSHOP on Partners' Expectations and Engagement

FORMAT

Gro

up

1G

rou

p 2

Gro

up

3

QUESTIONS

1. Work Plan 2018

2. Partner’s Engagement

3. Strategic Direction

DISCUSSION

patient access partnership · presentation agenda procedural 03 07 proposals 2018 accounts 2017. 05...

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