participatory medicine at nih
DESCRIPTION
In this presentation at NIH, Mary Madden and Susannah Fox discuss the rise of participatory medicine within the context of key internet demographics and emerging online trends. 6/10/2008TRANSCRIPT
Participatory Medicine:How user-generated media are changing Americans’ attitudes and actions, both online and offline
6.10.08Susannah Fox and Mary MaddenPew Internet & American Life Project
Presented to: NIH
June 10, 2008 2Participatory Medicine
Who we are…
June 10, 2008 3Participatory Medicine
Where we live…
June 10, 2008 4Participatory Medicine
Watching the online audience grow
0%
10%
20%
30%
40%
50%
60%
70%
80%
•75% of adults in the U.S. use the internetup from 46% in 2000
• 93% of teens ages 12-17 use the internetup from 73% in 2000
June 10, 2008 5Participatory Medicine
Older adults still less likely to be online
37
72
85
92
65+
50-64
30-49
18-29
Online Not Online
October-December 2007
June 10, 2008 6Participatory Medicine
Education still matters, too…
October-December 2007
93
84
67
38
College Grad
Some College
HS Grad
Less than HS
Online Not Online
All Whites (76%)
All Blacks (56%)
English-Speaking Hispanics (79%)
75%* of the population reports using the internet or email. Here is a breakdown of use among different groups.(shown as a percentage of population online)
18-29 Years Old (92%)
30-49 Years Old (85%)
50-64 Years Old (72%)
65+ Years Old (37%)
No High School Degree (38%)
College Graduates
(93%)
<$30K Income (61%)
>$75K Income (93%)
Men (76%)Women (74%)
*Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org
** This statistic comes from the Pew Internet Project’s Latinos Online data, collected June-October, 2006.
High School Graduates (67%)
Urban (77%)
Rural (64%)
Suburban (77%)
Spanish-Dominant Hispanics (32%)**
June 10, 2008 8Participatory Medicine
Then and Now…
2000
5% with broadband at home
50% owned a cell phone
=slow and stationary connections
2008
55% with broadband at home
80% own a cell phone
=fast and mobile connections
June 10, 2008 9Participatory Medicine
Mobile access goes mainstream
62% of Americans have some experience with “on the go” access to digital data and
information
June 10, 2008 10Participatory Medicine
Does technology improve our lives?
Attitudes about information technology
How much, if at all, have communication and information devices improved …
“A lot” or “Somewhat”
Your ability to keep in touch with friends and family 81%
Your ability to learn new things79
Your ability to do your job59
The way you pursue your hobbies or interests55
Your ability to share your ideas and creations with others55
Your ability to work with others in your community or in groups you belong to 55
Source: Pew Internet & American Life Project April 2006 Survey. N=3,355 for internet and cell phone users. Margin of error is ±2%.
June 10, 2008 11Participatory Medicine
What’s the big deal with Web 2.0?
June 10, 2008 12Participatory Medicine
How many of us are participating?
User-generated content creation activities:
% - Adult Internet Users
Share something online that you created yourself, such as your own artwork, photos, stories, or videos 19
Post comments to an online news group or website 18
Create or work on your own webpage 12
Create or work on webpages or blogs for others 11
Take material you find online – like songs, text, or images and
remix them into your own artistic creation
9
Create or work on your own online journal or blog 8
Those who have done at least one: 37
June 10, 2008 13Participatory Medicine
Content Creation: Age tells a different story
0
10
20
30
40
50
60
70
80
90
Ages 12-17
Ages 18-29
Ages 30-38
Ages 39-48
Ages 49-60
Ages 61-69
Ages 70+
Per
cent
age
Internet users Total population
June 10, 2008 14Participatory Medicine
Youth of today, innovators of today
All Whites (76%)
All Blacks (56%)
English-Speaking Hispanics (79%)
75%* of the population reports using the internet or email. Here is a breakdown of use among different groups.(shown as a percentage of population online)
18-29 Years Old (92%)
30-49 Years Old (85%)
50-64 Years Old (72%)
65+ Years Old (37%)
No High School Degree (38%)
College Graduates
(93%)
<$30K Income (61%)
>$75K Income (93%)
Men (76%)Women (74%)
*Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org
** This statistic comes from the Pew Internet Project’s Latinos Online data, collected June-October, 2006.
High School Graduates (67%)
Urban (77%)
Rural (64%)
Suburban (77%)
Spanish-Dominant Hispanics (32%)**
June 10, 2008 16Participatory Medicine
54%* of the population reports using a high-speed connection (e.g., DSL, cable, wireless) when accessing the internet from home. Here is a breakdown of use among different groups.(shown as a percentage of population using a high-speed connection from home)
Whites (55%)
Blacks (38%)
English-Speaking Hispanics (57%)
18-29 Years Old (74%)
30-49 Years Old (62%)
50-64 Years Old (49%)
65+ Years Old (20%)
No High School Degree (22%)
College Graduates (74%)
<$30K Income (40%)
>$75K Income (77%)
Men (58%)
Women (50%)
High School Graduates (43%)
Urban (60%)
Suburban (56%)
Rural (42%)
*Source: Pew Internet & American Life Survey, December 2007.http://www.pewinternet.org
June 10, 2008 17Participatory Medicine
Whites (74%) Blacks (71%)
English-Speaking Hispanics (84%)
75%* of the population reports owning a cell phone. Here is a breakdown of use among different groups.(shown as a percentage of population owning a cell phone)
18-29 Years Old (88%)
30-49 Years Old (83%)
50-64 Years Old (70%)
65+ Years Old (50%)
No High School Degree (63%)
College Graduates (86%)
<$30K Income (61%)
>$75K Income (92%)
Men (77%)
Women (73%)
High School Graduates (67%)
Urban (79%)
Suburban (77%)
Rural (62%)
*Source: Pew Internet & American Life Survey, December 2007.http://www.pewinternet.org
June 10, 2008 18Participatory Medicine
Thank you!
Susannah Fox & Mary Madden
Pew Internet & American Life Project
1615 L Street NW
Suite 700
Washington, DC 20036
202-419-4500