parkinson pathfinder, summer 2013

4 5 8Preparing for yourNeurology Appointment

Gait in Parkinson’s Disease Preventing falls, maximizing mobility

Mucuna Pruriens A medical analysis

Washington Chapter American Parkinson Disease Association

PARKI NSONPathfinder

SUMMER 2013

APDA Information and Referral Center GRECC-S-182 1660 S Columbian Way Seattle, WA 98108

Phone: 206.277.5516 Fax: 206.764.2476

Hours: Monday–Friday 9:00AM–5:00PM

[email protected] www.waparkinsons.org

MEDICAl DIRECtoR

James leverenz, MD

Co MEDICAl DIRECtoRS

Ali Samii, MD Phil Swanson, MD, PhD

CEntER CooRDInAtoR

Zeljka Jurcevic

WASHInGton CHAPtER APDA BoARD

Kristi Murphy Executive Director Peggy o’neil Shortt President Wendell Matas Immediate Past President Kirsten Richards Accounting & Administration loryn Heath Secretary

BoARD MEMBERS

Stephen Bergenholtz Daniel Burdick, MD Suzanne Cameron Bryan Coluccio Kelly Condefer, MD Suzanna Eller, MA. lMHC nancy Griese loryn Heath Valerie Kelly, Pt, PhD Jeanne Kieffer Rene Spatz William Struyk Kimia talajour Debbie thenutai Ann Zylstra, Pt

BoARD ADDRESS

P.o. Box 75169, Seattle, WA 98175-0169 Please Send Donations to the Board Address

1 letter from the Executive Director

2 letter from the Coordinator

3 Who We Are and What We Do

4 Preparing for your neurology appointment: Helping your neurologist to help YoU! Diane L. Church, PhD

5 Gait in Parkinson’s Disease Sindhu Srivatsal, MD

7 Music therapy Bill Dluhosh, MT-BC

8 Mucuna Pruriens Paul J. Nicolai, ND and Laurie Mischley, ND

9 Support Groups

11 Donations

13 Upcoming Events

SUMMER 2013

TAblE Of CONTENTS

How to get the most out of your upcoming appointment

page 4

1ParkinsonPathfinder | sUMMEr 2013

The Parkinson Pathfinder has undergone a transformation, one I am finding reflective of our organization as a whole. We are breathing new life into our board with the recruitment of new members; we have brought on Zeljka Jurcevic as our new Information & Referral Center Coordinator, and I have transitioned into the role of Executive Director.

In January, we welcomed Leslie Chambers, our National organization’s recently elected President and CEO, to Washington State. The Yoga for Parkinson’s class at Northwest Hospital welcomed Leslie and I as group participants, and we both enjoyed waking up on a Monday morning to instructor Peter Lynch’s gentle and effective yoga. Leslie’s visit is indicative of the revitalization that is happening with our National APDA organization. With fresh faces and ideas, we are excited to be on board and help guide this transformation, as we strive to better fulfill our mission to “ease the burden and find the cure.”

As a part of our newly redesigned newsletter, we thought it would be a great opportunity to take a moment and remind our many supporters and community members of who we are, and what we do. You may have connected with us at an education program, or through our Taxi Voucher or Caregiver’s programs, but may not have a complete picture of our reach and breadth. Or perhaps you have just picked up this newsletter, and are hearing about us for the first time. To find out more, see our article “Washington Chapter, American Parkinson Disease Association: Who We Are and What We Do” on page 3.

In upcoming events, we are excited to announce our First Annual American Parkinson’s Optimism Walk. It will be held on Saturday, September 28th at Lincoln Park in West Seattle, and promises to be a day full of hope, community, and fun! Help us raise awareness and funds for Parkinson’s care, support, and critical research. Learn more at www.waparkinsons.org/walk or by contacting us.

I look forward to meeting and reconnecting with many of you in the coming months. Always feel free to reach out with your ideas, suggestions, or to just say hello. You can reach me at [email protected] or 206.419.7872.

Kristi Murphy Executive Director

Welcome to our new and improved newsletter!

from our ExECUTIvE DIRECTOR

2 ParkinsonPathfinder | sUMMEr 2013

as the Information & Referral Center Coordinator, I’d like to take the time to introduce myself to you all. I was born in Rijeka, Croatia, and although I was only 6 years old when I left, it has greatly shaped who I am. As an only child of non-English speaking parents, they relied on me for daily life. My mother’s chronic health conditions required constant trips to the doctor and I quickly realized the difficulties involved in getting adequate care and support. At eight years old I was a daughter, an interpreter, and an advocate. As time went on, I became increasingly fascinated by health and it came to be one of my greatest interests. A blessing in disguise, my parent’s struggles in adapting to a new country allowed me to discover what I wanted to do for the rest of my life. My multicultural perspective and interest in health led me to a degree in globalization, health, and development from the University of Washington. During my studies I worked as a caregiver, and although professionally I am still fairly new to the field, I have a great passion for health, science, and research stemming from my childhood. I am very excited about this new role because it brings together everything that I love about this profession; hearing individual stories, constantly learning, and making an impact in the community. Most of all, I want to hear from all of you, I am a firm believer that we all have something to learn from each other. So whether you have a general question, need a referral, or just want to talk, I’m here to listen.

Zeljka Jurcevic

Meet your Information and Referral Center Coordinator!

As I settle into my new role

...and like us onVisit our website at www.waparkinsons.org...

Visit our website by scanning this QR code, and sign up for our emails

Connect with the APDA:


FoUnDED In 1961, the American Parkinson Disease Association has fought the battle against Parkinson’s disease for more than 50 years. Our mission to “ease the burden, and find the cure,” has been made possible by the passion and dedication of our volunteers, board of directors, sponsors, and most importantly – you. The APDA is a not-for-profit organization that is funded, almost exclusively, by the generous donations of indi-viduals like you. Our local Washington Chapter has been working to ease the burden for more than 15,000 Parkinson’s patients in Washington State since 1984.

Our approach to serving the community is compre-hensive, focusing on research, patient education and support. We believe in the pow-er of knowledge, the strength in a sense of community, and the importance of independence and mobility. Our efforts aim to improve the quality of life of those living with Parkinson’s while actively supporting the search for better treat-ments and a cure.

The Information & Referral Center provides educa-tion and access to resources through our newsletter, website and comprehensive library of literature. We keep the community informed of the latest research and treatments by implementing education programs for patients, their families, and healthcare providers. Our annual HOPE Conference brings together people from all over the country for the common purpose of a healthier life. While working to raise awareness and improve quality of life, we are simultaneously de-voted to understanding the causes of Parkinson’s and developing treatments to stop its progression. For this

reason, we are committed to putting dollars directly toward Parkinson’s research in Washington State. We fund the Washington State Parkinson’s Disease Regis-try in addition to other local research studies.

We are all in this together. Advocating the impor-tance of social support, we endeavor to strengthen and maintain support group networks by providing educa-tional materials, professional facilitators, individual counseling, and trainings for facilitators. We strive to bring patients together around common interests by funding yoga, dance, and singing classes statewide that are designed specifically for people with Parkin-son’s. Recognizing that every story is unique, we aim

to tailor our service to the indi-vidual and provide a variety of programs that fit every lifestyle.

We believe that life does not need to be put on hold because you have Parkinson’s. The Washington APDA funds

programs that help maintain independence and mo-bility. Through our popular Taxi Voucher program, we provide $300 per year to provide transportation assistance to those who can no longer drive due to Parkinson’s. Similarly, our Caregiver’s Day Off program allows caregivers time away to renew and revitalize themselves, without concern for their loved one’s care. P

I encourage you all to take advantage of our pro-grams and services. If you would like more informa-tion about how we can be of service to you, please reach out to our Information & Referral Center at 206.277.5516 or [email protected].

Washington Chapter, American Parkinson Disease Association: Who We Are and What We Do

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We believe that life does not need to be put

on hold because you have Parkinson’s.


ON yOUR MARK!

An APPoIntMEnt WItH your neu-rologist will be most productive if you are prepared to share your in-formation and concerns. Here is a checklist to help you get organized.

GET READy!

IF tHIS IS your first appointment, ask the neurologist’s office what types of information you should bring. These may include office notes from other doctors, MRI or CT images of your brain, and lab reports.

Medication list Document all prescription medi-cations (including non-Parkin-son’s drugs), over-the-counter medications, vitamins, and supplements; dosages; when medications are taken; and when you first start taking each. Are there any medications that you were on in the past that

were discontinued? Have you experienced any side effects?

list of Parkinson’s symptoms you are experiencing Which are new? Which are most troublesome?

Movement symptoms (walking, getting out of chair, moving in bed etc)

fluctuations in your symptoms (typically correlated with medication cycle, eating, sleeping, and exercise)

Dyskinesias (involuntary movements caused by Parkinson’s medications)

Non-movement symptoms (swallowing, speech, nausea, constipation, urinary frequency and/or urgency, drooling, excessive sweating, dizziness upon standing, swollen ankles, sleep disorders, restless legs, and more)

Changes in mental status (depression, anxiety, cognition, ability to make plans, hallucina-tions, compulsive or excessive behaviors such as shopping, gambling, or sex)

list three items that you most want to discuss with the neurologist (There may not be time to address everything during your appointment, so it is important to prioritize your needs.)

GO!

Arrive early to allow time for park-ing, using the restroom, getting to the appropriate reception desk, checking in, and filling out paper-work.

bring along water, a snack, and any medications you might need in case your appointment is delayed.

Ask a family member or friend to accompany you, to take notes and remind you anything that seems important has not been discussed.

At your neurology appointment:You did your homework, so you are prepared when your neurolo-gist asks about your symptoms and medications!

Special requests Ask early in the appointment about prescription refills, disability forms, handi-capped parking permits, etc; often

continued on page 6

Preparing for your neurology appointment:

Helping your neurologist to help YoU!

TIPS


GAIt in Parkinson’s DiseaseSindhu Srivatsal, MD Movement Disorders Neurologist

PARKInSon’S DISEASE HAS four important features, namely rigidity or stiffness,

slowness of movements, tremor and instabil-ity of posture which affects gait. Gait distur-bance is often noted during the progression of Parkinson’s disease. It can result from a combination of any of the above factors as well as from abnormal muscle postures such as dystonia and abnormal movements such as dyskinesias. Some of the earliest noted changes in gait might be reduction in the arm swing, a mildly stooped posture, drag-ging of the affected foot and shuffling while walking. It is important to be aware of gait impairment in PD, as this is a significant risk factor for falls. Falls have been noted in up to 60% of patients with PD, with the risk increasing over time.

Impaired gait in Parkinson’s disease can manifest as reduced step height, stride length and speed of movement. There may also be a tendency for subsequent steps to become increasingly shorter and quicker resulting in a running pace. Freezing of gait is another important manifestation of impaired gait where the patient has the sense that the feet are “glued” to the ground and cannot be lifted. It can occur at the start of walking, in straight walking, in narrow or crowded spaces, and during turns. This manifestation can often result in falls.

Both pharmacologic and non-pharmaco-logic means can help manage gait impair-ment, depending on the cause. Early on, the shuffling and freezing in Parkinson’s often responds to standard medications such as

It is important to be aware of gait impairment in PD,

as this is a significant risk factor for falls. Falls have been

noted in up to 60% of patients with PD, with the risk increasing over time.

fOR ThE CARETAKER


continued from previous page dopamine agonists and levodopa. Freezing in “off” state is the term used when freezing occurs as the medication is wearing off. This freezing responds well to adjustments of dopaminergic therapy. MAOB inhibi-tors such as selegiline and rasagiline have also been shown to improve gait in Parkinson’s in the long run.

As Parkinson’s disease progresses, gait impairment and freezing can occur independent of medication use, and are often associated with significant postural instability. While optimizing medication use might still be a reasonable option, one often needs to turn to non-pharmacologic methods to help manage the same. The use of visual and auditory cues can often help improve freezing of gait, as well as gait velocity and stride length. Visual cues could include focusing on carpet patterns, stepping over objects, and even laser light cues built into canes and walkers. Auditory cues, such as using a metronome or set rhythms, can help patients improve gait dynamics, whether they have freezing or not.

Freezing during the “on” state of a medication is an uncommon phenomenon that can be seen shortly after taking dopaminergic medications. This often responds to lowering the dopaminergic medication dose. It is important to differentiate this from the freezing which occurs during the “off” state, and re-sponds to increasing the dose of the medications.

Exercise of mild to moderate intensity several times per week can help maintain stability and slow down functional decline in PD. A recent study investigated the effects of community dance in managing PD, and found that patients showed improvement in motor and non-motor aspects of PD, as well as in postural stability.

Another study on the effects of tai chi on patients with mild to moderate PD showed improvement in multiple parameters of gait, such as stride length and functional reach, as well as a reduced risk of falls, which was main-tained for months after the training ended.

While multitasking is currently a way of life, pa-tients with a compromised neurological function, such as Parkinsonian patients, are at a high risk of falls when they attempt to multitask while walking. The cognitive load produced by multitasking has been shown to increase the risk of falling as the complex-ity of the load increases. This is partly due to lack of attention to the task of walking and the maintenance of gait. This is more apparent in patients with freez-ing of gait, and therefore such patients need to pay especially close attention to visual and verbal cues, as well as to avoid multitasking while walking.

Gait impairment in Parkinson’s disease has been shown to be multifactorial, bringing with it challenges such as an increased risk of falls. However, tools exist to help manage these symptoms and mitigate the risk. Finding the optimal dose of medication as well as ear-ly assessments for behavioral and non-pharmacologic methods of management can help improve the quality of life for patients with Parkinson’s disease. P

Dr. Sindhu Srivatsal is a Movement Disorders Neurolo-gist at the Virginia Mason Neuroscience Institute in Seattle, WA and the Booth Gardner Parkinson’s Care Center in Kirkland, WA. She completed her Movement Disorders Fellowship at the University of Washington and VA Puget Sound. Dr. Srivatsal also has a master’s de-gree in Public Health from the University of Maryland.

continued from page 4 a nurse or secretary is available to work on these during your wappointment.

Address those three major con-cerns on your list of priorities.

Ask for a referral to a physical therapist for help with balance, gait, strength, pain, and flexibility issues.

Ask for a referral to an occupation-al therapist for help with handwrit-ing, home modifications, driver evaluations, computer modifica-

tions, and adaptations to make dressing, grooming, cooking, and eating easier.

Ask for a referral to a speech language pathologist for help with speech and communication prob-lems (including vocal volume, clar-ity of speech, and increasing facial expressivity) and swallowing.

Ask for recommendations regard-ing exercise and nutrition.

Ask about participation in clinical research trials.

Ask the best way to get in touch with the neurologist in between ap-pointments: Contact with nurse or secretary, by phone or email?

Ask where you can get more information about Parkinson’s disease. P

Prepared by Diane L. Church, PhD

Courtesy of the APDA Parkinson’s Center at Dartmouth-Hitchcock Medical Center, Lebanon, NH


bill Dluhosh, MT-bC Certified Neurologic Music Therapist

HAVE YoU EVER been driving down the road with your mind drifting between hunger, fatigue, traffic, to-do lists, etc. when that song comes on the radio? The song you haven’t heard in years, but instantly sparks something within you? Almost automatically, you find your hand reaching for the volume, and you begin smiling and singing along as if you had only heard the song yesterday. Your mood changes, you sit up taller, and everything you were thinking of before disappears. This is one of the many unique ways that music affects our lives. Music therapy is defined by the American Music Therapy Association (AMTA) as “the clinical and evidence-based use of music interventions to accomplish individualized goals within a therapeutic relationship by a credentialed professional who has completed an approved music therapy program.”

Music therapists don’t teach people how to play instruments, but rather use music to work on non-musical goals in a variety of settings and situations. The people who seek music therapy include children and adults with various neurological disorders such as autism, Alzheimer’s disease, Dementia, and Par-kinson’s disease, as well as physical injuries including traumatic brain injuries and strokes. Music has also been shown to be very effective in pain management, promoting relaxation and improving the quality of life.

People with Parkinson’s disease are using music to provide motor support and motivation for physical

therapy, as well as to help treat depression and anxiety while promoting relaxation. As in the example above, our brains respond to music in very unique and versa-tile ways. One way people with Parkinson’s disease are using music to help with freezing is by using technol-ogy such as iPhones and MP3 players to listen to their favorite music as they walk. Research has shown that people who listen to music as they walk have signifi-cantly less episodes of freezing. What a wonderful reason to listen to your favorite music!

Other areas where research is being done is with Alzheimer’s disease and Dementia. Some people with Alzheimer’s disease may not remember what they had for breakfast or the names of family members, but they do remember music from their lives, and will sing and play instruments (such as tambourines and shakers) along with this music. With the internet, many different types of music and songs can be at your fingertips, and this may open up a window that other forms of stimulus alone, like pictures, cannot. A soon to be released documentary entitled “Alive Inside” discusses how music is being used with elders in a variety of ways. P

Bill Dluhosh, MT-BC, is a Board Certified Music Therapist certified in neurologic music therapy in Richland, WA.

MusIC theRAPY Music, the Brain, and Technology


MUCUnA PRURIEnS, also known as “velvet bean” or “cowitch,” is a legume found in Africa, India, and the Caribbean. The seeds of this plant have historically been used in Ayurvedic medicine as an aphrodisiac, to in-crease sexual function, to treat snakebites and, perhaps most notably, in the treatment of Parkinson’s disease (PD). Levodopa, a chemical used in drugs for the clinical treatment of PD, was first isolated from the seeds of this plant in 1937. Since then, it has been determined that M. pruriens contains the highest concentration of levodopa of any known botanical source, lending credence to stories of its successful historical use in patients with PD. While there have been relatively few clinical trials conducted using M. pruriens, preliminary research sup-ports the potential usefulness of some preparations in the symptomatic management of PD.

A 2004 study compared M. pruriens with carbidopa/levodopa (C/L) in efficacy, duration of action, and side effects in eight Parkinson’s patients. In these patients, M. pruriens demonstrated a considerably faster onset of effect (35 minutes versus 69 minutes) and longer “on” time (37 minutes) compared to C/L, with no significant differences in dyskinesias or tolerability. The authors concluded that these benefits “might possess advan-tages over conventional L-dopa preparations in the long-term management of PD,” yet also stating that “[a]ssessment of long-term efficacy and tolerability in a randomized, controlled study is warranted.”

Herbalists have long held that the various components of whole plants work synergistically with one another. This appears to be true in the case of M. pruriens, as the use of whole plant extracts have demonstrated several advantages not associated with C/L. Possible advantages to be gained by using M. pruriens include the following: • M.prurienscotyledonpowder(MPCP)hasbeen

shown to have antiparkinsonian and neuroprotec-tive effects in animal models of Parkinson’s disease that are superior to those of synthetic levodopa.

• AnotherrecentstudysuggestedthattheabilityofMPCP to protect against PD-associated DNA dam-age may be due to its ability to chelate copper.

• InamousemodelofPD,M.prurienssignificantlyincreased the brain mitochondrial complex-I activ-ity. Unlike synthetic levodopa treatment, it signifi-cantly restored the endogenous L-dopa, dopamine, norepinephrine, and serotonin content in the sub-

stantia nigra (the part of the brain associated with movement and implicated in PD).

• Anotherrodentstudydemonstratedaneffectresem-bling that of carbidopa in a water-soluble extract of M. pruriens as well as an antiparkinsonian effect similar to an equivalent amount of levodopa, but with much less dyskinesia.

• M.pruriensextractswithnegligibleamountsoflevodopa still show significant neuroprotective ac-tivity, suggesting that some of its other components may also have therapeutic potential.

• Nicotineadeninedinucleotide(NADH)andcoen-zyme Q-10, which may have therapeutic benefits in treating parkinsonism, are present in the seed powder of M. pruriens.

However, it is important to keep in mind the possible disadvantages to consider before using M.pruriens, which include the following: • M.pruriensisnottypicallyacoveredbenefitofmost

insurance policies, and will probably cost more than an equivalent dose of C/L.

• Therehavebeennolong-termstudiestodeterminethe safety or efficacy of M. pruriens, and searches of scientific databases such as clinicaltrials.gov do not show that there are any currently being conducted.

• MostofthestudiesonM.prurienshavebeenper-formed using animal models of PD, not on humans. It can be difficult to find a medical practitioner who is willing and able to help guide a patient in making this choice safely and effectively. If you decide to use M. pruriens, please make sure your physician knows that you are experimenting with alternative sources of levodopa.

Numerous M. pruriens preparations are available from a variety of sources. Because several serious toxici-ties have been attributed to Ayurvedic and Chinese medicines in recent years, it is imperative that patients considering a trial of M. pruriens purchase only from reputable companies who can demonstrate that their products have been independently certified to be au-thentic and free of contaminants such as heavy metals. Unlike pharmaceutical preparations of C/L, which are chemically standardized and thus can be reliably dosed, the composition of M. pruriens extracts may vary tremendously based on how and where the plant was grown, harvested, and packaged. P

MuCunA PRuRIens Paul J. Nicolai, ND (Portland, OR) and Laurie Mischley, ND (Seattle, WA)

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hOMEOPAThIC NEWS


AlASKA Parkinson’s Support Group 3rd Saturday of the month at 3:30 pm 923 W 11th Ave, Anchorage, AK 99501 Peter Dunlap-Shohl, (907)350-9691 [email protected]

ANACORTES Anacortes PD Support Group 3rd thursday of the month at 1:00 pm Island Hospital 1211 24th St., Anacortes, WA 98221 Jerry Ramsey and nola Beeler (360)293-2185 / [email protected]

bEllEvUE bellevue young Onset Support Group 1st Wednesday of the month at 7:00 pm north Bellevue Community Center 4063 148th Ave nE, Bellevue, WA 98007 Suzanna Eller, (206)938-8298 [email protected]

blAINE Parkinson’s Support Group Blaine UCC 2nd Friday of the month at 5:00 pm 885 4th Street, Blaine, WA 98230 Inge Reuter, (360)332-4564 [email protected]

bOThEll Parkinson’s Support Group 3rd tuesday of the month at 10:00 am north Shore Senior Center 10201 E Riverside Dr., Bothell, WA 98011 Susan Quinn, (425)488-4821 [email protected]

bREMERTON Parkinson’s Support Group 1st tuesday of the month at 1:30 pm Canterbury Manor 703 Callahan Dr., Bremerton, WA 98310 David Hull, (360)895-6220

ChEhAlIS Parkinson’s Support Group 2nd thursday of the month at 1:00 pm Bethel Church 132 Kirkland Rd., napavine, WA Jan Erickson, (360)273-9987

COvINGTON PD Support Group 3rd tuesday of the month at 10:30 am St. John the Baptist Catholic Church 25810 156th Avenue SE Covington, WA 98042 Stephanie De leon lawson [email protected]

COEUR D’AlENE Coeur d’Alene Parkinson’s Support Group 1st Friday of the month at 1:00 pm lake City Senior Center 1916 n lakewood Dr., Coeur d’Alene, ID 83814 Beth Hatcher, (208)635-5243 [email protected]

DES MOINES Parkinson’s Support Group 3rd Wednesday of the month at 10:00 am Wesley Homes, 815 S. 216th St. Des Moines, WA 98198 *contact group leader before attending* Rita lambert, (206)870-1302 [email protected]

EDMONDS Deep brain Stimulation (DbS) Support Group *group meets quarterly; date, time and location to be determined* Michelle Bauer, (206)320-2883 [email protected]

Parkinson’s Support Group 2nd Wednesday of the month at 1:00 pm Edmonds Senior Center 220 Railroad Ave, Edmonds, WA 98020 Carol Agueyo, (425)743-6029 [email protected]

EvERETT lewy body Dementia Caregiver Support Group *contact facilitator for date/time info* Carl Gipson Senior Center 3025 lombard Ave, Everett, WA 98201 Joy Walker, (425)457-4793 [email protected]

fEDERAl WAy PD Support Group 3rd tuesday of the month at 1:30 pm life Care Center of Federal Way 1045 S. 308th, Federal Way WA 98003 Sandra Machado, (206)334-8440 [email protected]

GIG hARbOR Gig harbor Parkinson’s Support Group 2nd Wednesday of the month 4:00 pm St. Anthony’s Hospital 11567 Canterwood Blvd. nW, Gig Harbor, WA 98332 Doug Manuel, (253)858-8741 [email protected]

hOQUIAM PD Support Group last tuesday of the month at 6:00 pm Hoquiam library, 420 7th St., Hoquiam, WA 98550 Betsy Seidel, (360)533-5968 [email protected]

ISSAQUAh Issaquah Support Group 2nd Monday of the month at 2:00 pm our Savior lutheran Church 745 Front St. S, Issaquah, WA 98027 Suzanna Eller, (206)938-8298 [email protected]

KIRKlAND Parkinson’s Caregiver Support Group 2nd & 4th tuesday of the month at 1:00 pm EvergreenHealth room tAn-121 12040 nE 128th St., Kirkland, WA 98034 Amy Cole, (425)899-3122 [email protected]

lONGvIEW Parkinson’s Support Group 3rd Wednesday of the month at 1:45 pm Canterbury Inn in the Chateau Dining Room 1324 3rd Ave, longview, WA 98632 Barbara Sudar, [email protected]

lOPEZ ISlAND PD Support Group 3rd Monday of the month at 4:30 pm the Gathering Place lopez Village lopez Island Jackie Ashe, (360)468-2435 [email protected]

MOUNT vERNON / bURlINGTON logan Creek Support Group 1st Monday of the month at 10:00 am logan Creek Retirement Community 2311 East Division St. Mount Vernon, WA 98274 Ginger Dollarhide and tori Kelly (360)629-8426 / (360)939-0640 [email protected]

OlyMPIA PD Support Group Every Wednesday at 11:00 am *membership required* 1 year=$30/individual $55/couple olympia Senior Center 222 Columbia Street nW, olympia, WA 98501 Joyce Beckwith, (360)586-6181 [email protected]

PD Support Group/Exercise Class Support Group meets: 3rd tuesday of the month at 11 am *exercise Class meets every tuesday at 11 am* olympia Senior Center 222 Columbia Street nW, olympia, WA 98501 Rozanne Rants, (360)705-8520

ORCAS ISlAND Orcas Senior Center tuesdays at 1:00 pm ted Grossman, (360)376-4979 [email protected]

support Groups in the Pacific Northwest

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PORT ANGElES Dance with Parkinson’s 3rd Saturday of the month Sons of norway 131 West 5th St., Port Angeles, WA 98362 Darlene Jones, (360)457-7004 [email protected]

PA Senior Center 4th Wednesday of the month at 10:30 am 328 E. 7th Street (on the SW corner of 7th & Peabody), Port Angeles, WA 98362 Darlene Jones, (360)457-7004 [email protected]

POUlSbO Parkinson’s Exercise Class 3rd Monday of the month at 1:30 pm Poulsbo Athletic Club 19611 7th Avenue nE, Poulsbo, WA 98370 lana Gills, (360)779-7178 [email protected]

young at heart Support Group 1st Monday of the month at 1:00 pm north Point Church 1779 nE Hostmark St. Poulsbo, WA 98370 lana Gills, (360)779-7178 [email protected]

REDMOND PD Support Group 3rd Wednesday of the month at 1:00 pm Emerald Heights 10901 176th Cir nE, Redmond, WA 98052 John Waltner, (425)556-8140 [email protected]

PUyAllUP Caregiver Support Group 1st tuesday of the month at 1:30 pm life Care Center of Puyallup 511 10th Ave SE, Puyallup, WA 98372 Karen Williams, (253)845-7566 [email protected]

Parkinson’s Support Group 3rd thursday of the month at 11:45 am life Care Center of Puyallup 511 10th Ave SE, Puyallup, WA 98372 Karen Williams, (253)845-7566 [email protected]

RIChlAND Parkinson’s Supper Club 3rd thursday of the month at 4:30 pm Kadlec neurological Resource Center 560 Gage Blvd, Ste 106, Richland, WA 99352 Heidi Hill, (509)943-8455 [email protected]

PD Support Group 3nd Monday of the month at 1:30 pm Kadlec neurological Resource Center 560 Gage Blvd, Ste 106, Richland, WA 99352 Heidi Hill, (509)943-8455 [email protected]

SEATTlE Atypical PD Support Group (PSP, MSA, CbD) 4th Monday of the month at 4:00 pm Virginia Mason lindeman Pavilion 1201 terry Ave, Seattle, WA 98101 James Jones, (206)281-8446 [email protected]

Caregivers of veterans Every Monday at 1:00 pm Seattle VA Medical Center 1600 S. Columbian Way, Seattle, WA 98108 Room 1D-146gg (near the West Clinic) Kris Fredrickson, (206)764-2188 [email protected]

Caregiving Northwest Support Group Studio Evolve Pilates and Bodywork 333 Wallingford Ave n, Seattle, WA 98103 Joy Walker, (206)457-4793 [email protected]

The hearthstone 2nd tuesday of the month at 2:00 pm 6720 East Green lake Way n Seattle, WA 98103 Erica Campbell, (206)774-5173

MSA Support Group 4th Monday of the month at 11:00 am lindeman Pavilion at Virginia Mason 1201terry Ave, Seattle, WA 98101 Carin Mack, (206)230-0166 [email protected]

Parkinson’s Partners Support Group 2nd tuesday of the month at 1:00 pm Greenwood Senior Center 525 north 85th Street, Seattle, WA 98103 Carin Mack, (206)230-0166 [email protected]

Parkinson’s Support Group 4th Monday of the month at 1:30 pm Horizon House 900 University Street, Seattle, WA 98101 Carin Mack, (206)230-0166 [email protected]

Parkinson’s young Onset Support Group 2nd tuesday of the month at 7:00 pm *please contact facilitator for current location* Suzanna Eller, (206)938-8298 [email protected]

PD Support Group 2nd thursday of the month at 2:30 pm University House Wallingford northwest Conference Room, 1st Floor 4400 Stone Way n, Seattle 98103 Susanne M. Rossi, (206)470-8041 [email protected]

SPOKANE Parkinson’s Support Group 2nd Wednesday of the month at 1:30 pm Deaconess Health & Education Center 800 West 5th Ave, Spokane, WA 99204 Cyndi Cook, (509)473-2490 [email protected]

young Onset Support Group *contact group leader for time and location information* Cyndi Cook, (509)473-2490 [email protected]

STANWOOD Stanwood Support Group 2nd Monday of the month at 10:00 am Stanwood Senior Center; center social room 7340 276th Street nW, Stanwood, WA Victoria Kelly and Ginger Dollarhide (425)422-1067 / [email protected]

TACOMA Parkinson’s Support Group 3rd tuesday of the month at 2:00 pm Franke tobey Jones, Continuing Care Retirement Community 5340 n Bristol St., tacoma, WA 98407 Kathlyn neal, (253)752-6621 ext. 313 [email protected]

Tacoma lutheran home voice Group 3rd and 4th Friday of the month at 11:30 am 1301 n Highlands Parkway, tacoma, WA 98406 Sharon Jung, (253)752-7112 [email protected]

vANCOUvER Parkinson’s family Caregiver Support Group 2nd and 4th tuesday of the month at 1:30 the Quarry Senior living Private Dining Room (1st floor) 415 SE 177th Ave, Vancouver, WA 98683 Maria Jokela (360)944-6000 office/(503)290-4443 cell [email protected]

Parkinson’s Support Group 2nd tuesday of the month at 12:15 pm *bring brown bag lunch, snacks and drinks provided* the Quarry Senior living Marble Room (2nd Floor) 415 SE 177th Ave, Vancouver, WA 98683 Maria Jokela (360)944-6000 office/(503)290-4443 cell [email protected]

vAShON vashon lutheran Church Support Group 1st Friday of every month Vashon lutheran Church Fellowship Hall 18623 Vashon Hwy SW, Vashon, WA 98070 Steve Steffen, (206)463-2655 [email protected]

WENATChEE PD Support Group 3rd tuesday of the month at 2:00 pm laVerna Armintrout, (509)884-6833 [email protected]

WEST SEATTlE The Kenney Parkinson’s Support Group 4th Monday of the month at 2:00 pm 7125 Fauntleroy Way SW, Seattle, WA 98136 Michael Byus, (206)937-2800 ext. 5232 [email protected]

Parkinson’s Support Group 1st tuesday of the month at 1:30 pm Providence Mt. St. Vincent 4831 35th Ave SW, Seattle, WA 98126 Suzanna Eller, (206)938-8298 [email protected]

SUPPORT GROUPS


IN hONOR Of (AND DONOR)

Derry Bowles (Marilyn Bowles)

Paul Crowder (Bronwen lindskog)

Ed Ewell (Jacquie Ewell)

Eric & Andrea Johnson (SueEllen Blacknall, Jana Ferguson, nancy & Rocky Griese, thelma nies)

Gordon & Coral lee Johnson (Betsy lardent)

Randy Mosher (Darlean Mosher)

Fred nelson Jr (Kathy nelson)

Eric Paulsen (Frances B Paulsen)

Bernard Robertson (Sharon Robertson)

Cal Severns (Jo Ann Fjellman)

Fred Van Ieperen (Peggy A Van Ieperen)

Son of Alton & Jacquelyn Williams (Alton & Jacquelyn Williams)

IN MEMORy Of (AND DONOR)

Jack Abravanel (lore & Marvin Coe)

Gerry Achziger (Sheila & Robert Pollock)

Marley Anderson (Ralph & Sharyn McDonald)

Harvey Armintrout (Richard & Patricia Mclaren, Wenatchee Area PD Support Group)

Denis Berthon (lois Mansperger)

Dick Brown (Carin Mack)

Mike Carlson (Bill & Joan Carlson)

Paul Carter (Virginia Davies)

R. Paul Carter (Donald & Elaine Anderson)

Brooks Carwin (Jack & Mary Higgins)

Melvin Cummins (Mary Jayne Cummins)

neil Dickinsen (Karen & Ken Giselson)

Steve Dorsett (Sallie Fingarson)

Gerald Ecklund (l&J Kinunen trust, theodore & Marie Spearman)

Stanley A Enebo (Joanne Mackay)

Carol Ruth Erb (Raymond D & Audrey Gay Geist)

Jerry Grafa (nancy Courtright)

Jack Hanning (Barbara & Earle Addis, Richard & Dolores Barnecut, William Beck, Aggie & David Byers, Robert & Geraldine Craig, Robert & Audrey Crowley, Mary lynn Dalzell, George & trudy Halverson, Bettie Hanning, Buell & Gloria Hembree, Charles & Micheala Hoppe, David & Elizabeth Knightly, Henry & Mavis norton, Francis Ratcliff & Family, Harry & Patricia Rollins, James & Carol Shorett, Gwin & Florene Smith, lois turner, Jami Vaux, Vicki Vaux, Cal & Joyce Wiseman)

Ellen Hauge (William & Cora Auerswald)

John l. Hinkle (Frances Hinkle)

Joan Holcomb (Janet Zema)

Kenneth Hunter (John & Jackie Hoggatt)

Joe Jay (nancy Courtright)

Herb Jenkins (larry & Mary Robertson)

Henry H Judson, Jr (Phillip Gladfelter)

Vic & Vicki Keeran (linda & Gregg Ridder)

James Krogh (Barbara Krogh)

Steve lamken (Donna & Richard Clarke)

Bill Mason (John & Joy Dunne)

Jeanne Costello Masters (Margaret teramoto)

Stell McEnear (Shirley Custer)

Malcolm Mclendon (Gail Hovard, Virginia tubbs, Raymond & Edith Wicks)

Wilbert McWain Sr (Marilyn Corbin)

Marv Merkel (Mary Keys & Joseph Hettman)

Curt Mikkelsen (Summit Family foundation c/o Mary Hirschfield)

Albert Mindell (Maxine Mindell)

Beverly Murphy (lois & Alan Sands)

Kathleen Myhre (Glenn Myhre)

Ronald G nelson (Jerry & linda loney)

Don nettleton (Vesta & Everil loyd)

Perry t newman (Keith & Sophie Wallinder)

Uncle Dick nies (Patti nies)

John nixon (Kenneth l Martin, MD)

norma oberg (Kathleen Strickland)

John o’Heron (Willis & Carolyn Calhoun)

Rudolph l Peden (Eric Robertson, Brent Swearingen)

tony Petrich (Victor Grabar, Susan Jacobsen, Betty Petrick)

Stella Petrucci (Ml Renie & teresa Barnes, Paul & Judith Gilliland)

Evelyn Prewitt (Ivan & Betty Hess)

Mike Shanahan (Ferdinand Schmitz)

Robert Vernon Unglaub (Anonymous)

Donald Wade (Guyla M Wade)

Dr. Flory Wagenaar (Mr. & Mrs. Joseph Budne)

Donald Waldron (Suzanna Eller, Providence Mount St. Vincent)

Bernard A Whitney (Glen Johnson)

Phyllis Hinkins Wilbur (James R Walesby)

bUSINESS

AllState the Giving Campaign

BECU Gift Matching Program

Bill and Melinda Gates Foundation

Bridge Partners llC

Cameron Catering

Costco Wholesale

Curves of Seattle-Ballard

Dell

Employees Community Fund of the Boeing Company

Evergreen Healthcare

Gibraltar, llC

Google

Hawthorn Retirement Group llC

Hewlett Packard

libertee World

Medtronic

Microsoft Matching Gifts Program

Moneytree

Muckleshoot Casino

Providence Mount St. Vincent (gift shop tip jar)

Puget Sound Energy Foundation

Rock this Sway / Amie Schumer

Seattle Foundation

thank you for your generous donations

Donations received January 2012–March 2013


Swedish

teva Pharmaceuticals

trident Seafoods

Virginia Mason

INDIvIDUAl DONORS

noor & Bibi Aaf

Sarah Bee & James Aga

Paul & Virginia Almeida

Chris Altwegg

Marie Anchordoguy

Audrey Anderson

Anonymous

les Apigian

HP & lJ Armintrout

Kelly Askew

Joelle Averbuch

thale Balding

Robert Ballinger

Ian & Amanda Barr

Robert Bartell

Susan & James Bates

thomas & nola Beeler

Stephen & Katy Bergenholtz

Robert Beveridge

Ellen Blackstone

Perry Bourlier

Paul & Debbi Brainerd

Barbara & John Brassfield

Scott & laura Breckenridge

Aaron & Ginadoria Brown

William Brown

Camie Bruns

Estelle & Joseph Budne

Stephen Butler

Eric Camplin

Beth Carlyle

Arthur Carrier

Beverly & Brent Carter

Paul & Virginia Carter

lorrie Church

lisa Clausen

John Clay Jr.

Jim & linda Clevering

Kathleen Conner

Glenn & Sarah Corey

Patricia Cosner

Suzanne Cowan

Michael J Creeden

Ayele & Yeshearg Dagne

t. Dean

Claudia Delgrosso

Henry & Doris Demko

tamera Van ness & Dean Desilet

leanne & Randall Devitt

Kyle Dunn

Marvin & Jean Durning

Frank & Dorothy Duvall

toni Eaton

William Eddy

Stanley & Ruth Felgar

Virginia Fergueson

James Ferguson

Clive & Jeannie Fleming

Michele Flotlin

Patrick & Cora Forgette

Cindi Forslund

Hisao & Keiko Fukui

Edward Gaborski

Susan Geisler

Dale & Cindy George

David & Ruth Ann Getchell

K. Roger & Martha Gilbert

Helene Gilroy

todd & toni Goins

Betty Greiwe

Stephen & Celia Grether

nancy & Rocky Griese

James & Judy Grimes

Jewell Hanna

Gary & Jana Hannon

Mary Jane Hansen

Jeffery & Angela Harbaugh

Brendan & Patricia Hardy

nicole Harris

Robert & Dawn Hatch

ll & Gl Haugsven

loryn Heath

Maurice & Gwena Hedlund

Richard & nancy Heembrock

Margaret Hellyer

leslie Helm

Judith Herrigel

Richard Hile

linda Hilliard & louis Hilliard

Patrick Hogan, MD

Dale Hoisington

Jerald Hollenback

Wendy Holman

John Hopkins

leon Hopper

Paula Houston

James R Hoyt

Dawn Bourdo & William Hughes

Diane Hutchins

Shwu-jen Hwang

Anthony Jacob

Peter Janni

Richard D Johnson

James & Dianne Johnston

thomas Juvik

owen & Irene Kennedy

EJ Kim

Robert Koch

Julie Koehler

nelda Krohn

Robert & Pamela Krotz

Earline laFreniere

teri lazzara

Elizabeth & Charles lee

Charles lenhart

Bruce leone

George lowen

Robert & Maureen lucas

Deborah Magallanes

Ken & Alisa Malloch

Rafael & Erlinda Manzanares

Dan McGuire

Rachel J McGuire

Roy & linda McIntosh

Mark McKay

Michael McKinlay

Mary Means

Molly Meyer

Curtis & Mary Mikkelsen

Robert & Mildred Roach

Barbara Miller

James Miller

Harold & Evelyn Minea

opal Mitchell

Pam Mitchell

terri Morrison

Glenn & Kathleen Myhre

Harold & Marlene nelson

Deborah o’Brien

Gabrielle omalley

David & Barbara o’Sullivan

Mummaneni Padmalatha

Snehal Pandya

Frances Paulsen

lisa & Kevin Peake

Jay & Francoise Pearlman

Arthur Piehler

Gerry Pigotti

Dewey Potter

Harlan & Darlene Prater

Kathryn Rhodes

Susan Richardson

lawrence Rogovoy

Estate of Helen Ruark

Donald Russell

Jim & lari Ryan

Vasanti Sangani

Margaret Schmidt

larry & Cheryl Scott

Gloria Seitel

Patrick Shanahan

R & Julie Sharif

Paul Sherland

Peggy o’neil Shortt

Miya Cohen-Sieg & Ross Sieg

Rex & Donna Sines

John Sirianni

Chester & Marilyn Smith

Kathy Snyder

Harold & Barbara Solberg

Stephen A Sprenger

Madeline & Manny Stermlicht

tyler Story

Jim & Diane Stump

Joanne & Stephen Syre

Patricia taylor

Kerry thurman

Sandra timmer

Mr. & Mrs. thomas turner

Robert Utter

Samuel & lisa Verhovek

Judith Watson

thomas Wells

Donella Westfall

Mark Whipple

Glenn & Jean White

Marylou Whiteford

Herbert & Dolores Wiegand

Daniel & Kay Wilkerson

Andrew & Barbara Wold

Parvin Zabetian

Sue Zimmermann

DONORS


MARK your CALenDARs!

september

282013

november

162013

American Parkinson Optimism Walk Supporting research and information and Referral Centers

Lincoln Park in West Seattle

To register or find out more information call the Information and Referral Center at 206.277.5516.

hOPE ConferenceNew Location at the Meydenbauer Convention Center in Bellevue, Washington

yADA: Learning About Disabilities through Fun!

YADA (Youth Awareness Disability Assemblies) is a unique program seeking help in Seattle-area elementary schools. Our program was started by the vision of Sue Dahlin, a former physical education teacher sidelined by multiple sclerosis. It has now met the needs of schools for over a decade. YADA guides students through fun and informative activities about the brain, service animals, the senses and more. A follow-up Q&A session then allows participants to meet adults with various disabling conditions and learn how they adapt to everyday life.

So far, we’ve been invited to take our interactive program to forty elementary schools in King County and we are booked for another year. YADA is a completely volunteer-run endeavor, relying on a core group of station leaders and other on-call volunteers. We have been overjoyed to receive glowing evaluations from principals, teachers, PTA members and, most impor-tantly, the students. We love what we do and are committed to continue, but as a group that primarily consists of individuals challenged by disabling conditions, we need more people to join us in our inspiring work. Recent media coverage has resulted in greater interest locally and beyond. We hope to meet the new demand for programs with an emphasis on anti-bullying and respect for diversity.

you can help us in the following ways: Assist in the development of a “how-to” resource guide for interested parties

Join us as a part of the BoardGet involved in local organizations to spread awareness

Connect with additional volunteers for YADA school events

To learn more about yADA, contact us at [email protected].

New location!

Patient and Caregiver Education Programs 2013For the most up-to-date information about upcoming programs

check our website at www.waparkinsons.org

AUGUST

Bellingham, WA

SEPTEMbER

Wenatchee, WA Ellensburg, WA tri-Cities, WA Yakima, WA

OCTObER

Moses lake, WA lewiston, ID

Scan this QR code on your smartphone to be linked directly to our calendar of events on our website

Please clip and return with your check, made payable to: WAShINGTON APDA

Send checks to us at PO bOx 75169

SEATTlE, WA 98175

To donate by credit/ debit card, please visit our website WWW.WAPARKINSONS.ORG or call 425.243.2732

The Washington State Chapter of the American Parkinson Disease Association is a non-profit 501(c)3 organization. Our tax ID number is 13-1962771.

APDA Information and Referral Center GRECC-S-182 1660 S Columbian Way Seattle, WA 98108

SUbSCRIbE TO OUR NEWSlETTER!

Sign up for our newsletter by visiting our website www.waparkinsons.org or emailing [email protected]

ENClOSED IS My TAx-DEDUCTIblE GIfT Of: (ChECK bOxES)

$25 $50 $100 $250 $500 $1000 Other amount

My employer will match my gift

Please send me information on wills and how a bequest can support WA APDA.

I’m interested in learning more about Parkinson’s Disease. Please send me information.

I want to help “ease the burden, and find the cure” for Parkinson’s Disease.

Thank you for your generosity!

yES!

this gift is given in honor of/in memory of

Please notify the individual(s) listed above

Donor’s name

Address City State Zip

Email address

Address City State Zip

parkinson pathfinder, summer 2013

Documents

role of executive director

apda information

md phil swanson

md suzanna eller

recruitment of new members

national apda organization

upcoming events summer

elected president