overview of ad and models of caregiving ministry
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Overview of AD and Models of Caregiving Ministry. By Karen Robinson, PhD, PMHCNS-BC, FAAN Professor, ULSON. Definition of Family Caregiving. - PowerPoint PPT PresentationTRANSCRIPT
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Overview of AD and Models of
Caregiving Ministry
ByKaren Robinson, PhD, PMHCNS-BC,
FAANProfessor, ULSON
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Definition of Family Caregiving
“Extraordinary care involving significant expenditure of time and energy often for months or years, requiring the performance of tasks that may be physically demanding and unpleasant “
(Schulz, 2001)
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Statistics about Dementia
AD effects approximately 4.5 million Americans
Number effected has doubled since 1980
Estimates by year 2050, 11.3 million effected
Average person lives 8-10 years with the disease, but some live as long as 20 years
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Demographic and Social Trends
7 of 10 persons live at home Family caregivers provide 75% of care
More people growing older
More people “dying longer”
Smaller families
Working women
Mobility – caregiving at a distance
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Spouse Caregivers
Older-Advanced Age Poor Physical Health At Risk for Increased Mortality Sometimes die before PWD
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Types of Care ProvidedInstrumental
Activities of Daily Living (98%): meals,transportation, shopping, housework
Activities of Daily Living (51%): dressing, bathing, toileting, mobility
Medication management (23%)
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Dementia: Types LOTs of variability
in presentation! Within specific types . . . BETWEEN types . . .
Overlapping syndromes are common Dementia AND delirium Mixed dementia
Types
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Effects on CaregiversLess time for
other family/leisure
Suffer from mental health/emotional stress problems
Physical health/ strain problems
Financial hardships
Work-related adjustments (e.g. fewer hours, schedule changes, less demanding jobs) “opportunity costs”
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Stages of Dementia
Early - Forgetful Middle - Confused Later - Ambulatory Terminal -
Endstage
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Spiritual Support
Persons with Dementia have Long Term Memory
Sing old songs Repeat old prayers Enjoy the presence of a joyful spirit Try not to offer sermons Group is stronger than individual
interaction
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Familiar Hymns and Passages of Scripture
Amazing Grace Blessed Assurance In the Garden Jesus Loves Me Old Rugged Cross What a Friend We Have in Jesus
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Scripture Passages
Genesis 1:1-2 John 3:16Psalm 23Proverbs 3: 5-6John 3:3 Romans 6:23
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Emotional Support
Get the person’s attention before you speak
Make person feel like a VIP Help the person maintain as much of
“themselves” as possible=you remember them
Break requests down into smaller conceptual units
Remember the importance of the presence of the caregiver
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Worship with Cognitively Impaired
Those elements memorized as a child will work well
Employ rhythm, clapping or sensorial devices to keep the group tracking together
Must all elements of worship be engaged in by all congregation?
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What is the Caregivers Program of Research?
CPR is a dementia-specific, caregiver-focused education, support, and research program affiliated with the University of Louisville School of Nursing.
CPR currently serves family caregivers in the Louisville metropolitan area, including southern Indiana
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Enrollment Criteria
Medical Diagnosis PWD Caregiver Willing to Sign Research
Consent PWD Residing in Community/at
Home Interview =45 Minutes of HSC
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Skill Building
Family Focus=Same Understanding Increased Knowledge about Disease
Process Management of PWD Behavior
Problems Use of Community Resources
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Outcomes of Caregiver Program of Research
Decreased Caregiver Depression Improved Management of PWD Decreased Frequency of PWD
Problem Behavior
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Caregiver Coping MechanismsPrayer 74%Talking with friends/relatives
66%
Exercising 38%Hobbies 36%Professionals (e.g. counselors)
16%
Medications 7%Alcohol 3%
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Spirituality Improves Coping
Use spiritual behaviors to enhance coping with demands of caregiving!!
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Reading Spiritual Material The Book of Ruth
Naomi—Elimelech Ruth—Mahlon
Orpah—Chilion
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Nourish Your Spirit
Increased capacity to give care
Caregiving is inherently spiritual
Greater potential to find meaning in the care we provide
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Nurture Faith and Spirituality Find a sense of purpose in
caregiving
Continue to engage in spiritual activity
Use prayer, journaling, meditation, reading materials etc.
Try different modes of spirituality
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Contact Information
Call 502-852-CARE (2273) OR Call U of L School of Nursing Research Assistant Samantha Davis, MSSW