Nursing Facility Transition and Diversion

Module 2:Independent Living and

Person-Centered Planning

Overview of Module #2

Independent Living Philosophy Adolf Ratzka Independent Living versus Medical Model Independent Living — Language and Etiquette People First Language Person-Centered Planning

What it is and is not Values and principles of Person-Centered Planning Essential elements for individual planning Facilitator roles and skills Overview of the planning

Independent Living (IL) Philosophy

Basis for transition work Right & Responsibility to make choices Live independently in the community with

supports Participate as full, equal citizens Goals

Empowerment Self determination Full participation

Adolf Ratzka

As long as we regard our disabilities as tragedies, we will be pitied.

As long as we feel ashamed of who we are, our lives will be regarded as useless.

As long as we remain silent, we will be told by others what to do.

Independent Living

Philosophy

People with Disabilities of all ages:

Are the real experts on disability issues Work for self determination, equal opportunities, and

self respect Demand the same control and choices as non-disabled

people Need to be in charge of their lives Have the same need for recognition, love, and inclusion

Independent Living versus Medical Model

Independent Living

Problem is lack of supports and accommodations, lack of freedom and autonomy, and inaccessibility

Locus of problem is the environment or interaction with it

Medical Model

Problem is physical or mental impairment or lack of certain skills

Locus of problem lies with individual — the individual needs to be “fixed”

I

Independent Living versus Medical Model

Independent Living

Individual is a participant NOT a patient

Consumer is the primary decision maker

Medical Model

Role of Individual is a patient

Physician is primary decision maker

People with disabilities play the sick role

People with disabilities are impaired

Independent Living versus Medical Model

Independent Living

Solutions focus on removing barriers and providing supports

Medical Model

Solutions are dominated by professional intervention, care and treatment

Independent Living – Language and Etiquette

Some basic rules of etiquette

Language is important

People First Language

Are you myopic or do you wear glasses? Are you cancerous or do you have cancer? Is a person disabled or do they have a

disability? Instead of “she is confined to a wheelchair,”

say “she uses a wheelchair for mobility.” Instead of saying “he’s a quadriplegic,” say

“he has a physical disability.”

What is Person-Centered Planning?

Person-Centered Planning is a process for planning and supporting a person’s life. The process builds upon the individual’s capacity to engage in activities that promote community life and honors the individual’s preferences, choices and abilities. Person-Centered Planning involves families, friends, and professionals, as the individual desires.

What is Person-Centered Planning?

Supports self-direction

Based on values and principles:

Choices and preferences will be honored Everyone has contributions to offer the

community Maximize independence, community connections,

and achievement of goals and expectations Presuming competence Respecting and accommodating cultural diversity

What is Person-Centered Planning?

Identifies goals and preferences

Plan that builds upon capacity to engage in community life

Process for planning a life and the care/services/supports needed to meet goals

May also be a plan for “end of life” care

What is Person-Centered Planning?

Planning with a broad scopeConsumers control the scope

Circular process, not one time only

Tracking progress of process and implementation

Person-Centered Planning is:

Honoring a person’s life Choice over many aspects of life Control over what each day includes

and doesn’t include Freedom Assisting an individual to determine

what makes life worth living for them

Person-Centered Planning is NOT:

Health and Safety plans or assessments

Medication or therapy compliance

Crisis stabilization

Role of the Professional

Ensuring the process follows expressed wishes

Supporting carrying out of roles

Providing information

Identifying resources and accessing services

Coordinating

ADVOCATING

Outcomes of the Process

Drive the individual’s support plan

Determine services and supports

Based on real life

Resources

Independent Living History http://www.lcil.org/lcil/history/articles.htm

Disability Culture www.adapt.org http://www.lcil.org/lcil/history/culture.htm

Disability Etiquette http://www.unitedspinal.org/documents/DownLoad/DisabilityEtiquette.pdf

People First Language www.disabilityisnatural.com