multidisciplinary assessment & interventions for fasd in

8
04/10/2019 1 Multidisciplinary Assessment & Interventions for FASD in Scotland Dr Jennifer Shields, Principal Clinical Psychologist Scottish Government funded Fetal Alcohol Advisory & Support Team Introducing the Scottish SIGN Guideline Published in January 2019 based on Canadian Guidelines Advocates assessment of brain areas using standardised assessment (where possible) including mental health & emotion regulation Scotland have chosen to implement this guideline in mainstream services e.g. CAMHS & Paediatrics rather than specialist clinics. Our team piloted the first Scottish FASD pathway & now support the implementation of FASD assessment nationally via training, consultation & research – see Twitter: @fasdadvisoryaaa 1 2

Upload: others

Post on 19-Jun-2022

2 views

Category:

Documents


0 download

TRANSCRIPT

Page 1: Multidisciplinary Assessment & Interventions for FASD in

04/10/2019

1

Multidisciplinary Assessment & Interventions for FASD in Scotland

Dr Jennifer Shields, Principal Clinical Psychologist

Scottish Government funded Fetal Alcohol Advisory & Support Team

Introducing the Scottish SIGN Guideline 

• Published in January 2019 based on Canadian Guidelines

• Advocates assessment of brain areas using standardised assessment (where possible) including mental health & emotion regulation 

• Scotland have chosen to implement this guideline in mainstream services e.g. CAMHS & Paediatrics rather than specialist clinics.  

• Our team piloted the first Scottish FASD pathway & now support the implementation of FASD assessment nationally via training, consultation & research – see Twitter: @fasdadvisoryaaa

1

2

Page 2: Multidisciplinary Assessment & Interventions for FASD in

04/10/2019

2

Pilot Project Summary Report (now online) McGruer & Shields (2018) www.nhsaaa.net- outlines main findings (free access)

3

4

Page 3: Multidisciplinary Assessment & Interventions for FASD in

04/10/2019

3

A brief overview of assessment of FASD in Ayrshire

FASD is explored largely within child & yp

neurodevelopmental pathways   

We recommend children are referred with 

neurodevelopmental queries rather than for 

FASD specifically

Only if a +ve alcohol history or full facial features should 

FASD be considered.        

Potential Assessment Tools

Behavioural Assessment of Dysexecutive Syndrome –children (C‐BADS)**

School Reports / Wechsler Individual Achievement Test 

Movement ABC & Beery Visual Motor Integration + Sensory Profile Measure

Paediatric Assessment & Genetics

Adaptive Behaviour Assessment Schedule (ABAS) + Theory of Mind Subtests

Test of Everyday Attention in Children  (TEA‐Ch 2)

Wechsler Intelligence Scale for Children (WISC)  / WIPPSI

Clinical Evaluation of Language Fundamentals (CELF)

Children’s Memory Scale / RivermeadBehavioural Memory TestTwitter @jenspsy

5

6

Page 4: Multidisciplinary Assessment & Interventions for FASD in

04/10/2019

4

Mental Health Assessment(a necessary first step!)

31.8%“I think about suicide,

but wouldn’t do it”

4.5%“I want to kill myself

Child’s Depression Inventory (CDI) indicated this: - >

Key Learning:

Children with FASD may not appear as or describe being depressed / anxious & may say they are ‘okay’- this cannot be taken at face value given the responses seen on the CDI.

(McGruer & Shields, 2018)

1st brain area assessed: Speech and Language

0

20

40

60

80

100

120

Core Receptive Expressive Content Memory Structure

CELF4

CELF PS

This graph depicts average scores of our pilot data – many children had significant comprehension & expressive issues & struggle more as they 

get older.  These issues can be well masked by sociability....

Twitter @jenspsy

7

8

Page 5: Multidisciplinary Assessment & Interventions for FASD in

04/10/2019

5

Cognitive Assessment

Pilot children acquired reasonable scores on a cognitive assessment – the key point ‐ don’t stop here!

65

70

75

80

85

90

FSIQ VCI PRI WMI PS

Overall 1.5 SD+ below

7.7% FSIQ <50

7.7% Learning Disability Diagnosis

Twitter @jenspsy

(McGruer & Shields, 2018)

Attention

75

80

85

90

95

100

Teach 2 SAI Teach 2 Sus Teach 2 EAI

75

76

77

78

79

80

81

82

83

84

85

TEA‐Ch2 Connors 3 Parent

Children can often have other reasons to ‘appear’ inattentive or restless e.g. Motor issues, sensory issues, not understanding in class etc ....

Sustained attention was a relative strength

9

10

Page 6: Multidisciplinary Assessment & Interventions for FASD in

04/10/2019

6

Executive FunctionBehavioural Assessment of Dysexecutive Syndrome

66

67

68

69

70

71

72

73

74

GEC BRI ERI CRI

BRIEF‐2 Parent

65

70

75

80

85

Overall Scaled Score

Male

Female

Overall

60

62

64

66

68

70

72

74

76

78

80

GEC BRI ERI CRI

Male

Female

Overall

Twitter @jenspsy

This is an area of significant difficulty in FASD. 

Our BRIEF screening QA correlated well with the Behavioural Assessment of 

Dysexecutive Syndrome (BADS – 35 min) .  

Adaptive Behaviour Assessment System (ABAS)

66

68

70

72

74

76

78

80

GAC Concept Practical Social

Parent

Teacher

Again – this is an area of significant difficulty – an ABAS can be included in most assessments, whether this takes place in CAMHS or Paediatrics & often scores are lower than a cognitive assessment would suggest. In school appear more able   

ABAS‐3

11

12

Page 7: Multidisciplinary Assessment & Interventions for FASD in

04/10/2019

7

What you see is NOT always what you get: (an example profile)

Communicating the findings

13

14

Page 8: Multidisciplinary Assessment & Interventions for FASD in

04/10/2019

8

Key Learning Points...

• In Scotland over 300 clinicians are now trained in FASD assessment.  

• Cognitive assessment is insufficient for affected individuals. 

• Two thirds of our pilot children had a previous diagnosis of ADHD.  Bear in mind that inattention & overactivity can be due to executive function, motor, sensory or language issues.   

• Scottish clinicians may use the descriptor of “FASD with / without SFF  alongside a DSM V – diagnosis of Specified Neurodevelopmental Disorder (pre‐natal alcohol exposed)

• All of these issues impact day to day function at school and at home and can be incorrectly formulated as behavioural / emotional difficulties. Understandingstrengths and difficulties is often an intervention in itself.  Strategies & supports should always be guided by a profile of strengths and difficulties.  

All materials within this presentation and available todaybelong to NHS Ayrshire and Arran. If you would like to

reproduce any of this material for educational purposes,please contact  us for permission.

Sincere apologies I couldn’t be here today

I’ll be following / tweeting 

@jenspsy 

@fasdadvisoryaaa

Huge thanks to Alex for 

presenting my slides 

Thank you

15

16