ms connection: 2011 spring edition

MOVING TOWARD A WORLD FREE OF MS | SPRING • 2011

GATEWAY AREA CHAPTER

MS=MS=?What does MS mean to you? Educate others during MS Awareness Week March 14-20

MS TALKING POINTSLearn why it’s important to educate

others about MS and techniques on how to do it | 3

LEGISLATIVE ACTION DAY Chapter staff and volunteers make

voices heard in Jefferson City | 6

WOMEN ON THE MOVE New York Times Bestseller to be featured speaker | 7

COMMUNITY

HOPE RALLYING POINT

=

E M K E S D N E I R F E L E T I R C G SC K E E P S M Y E L I N F M N E E N U NN I N O X M N E T A N O D W W I I T A OE S E E H K E X S M A N I O R N N T E YR C W B L L R D O I N T P P N P T T R EE D C I A A R A U E C S A A T D E A U GF C O N N W Y E A C I R L I N I R K B ON S N F I E A O T E A P E K C B S E S LO P N E O G L L G P L T L X I H H A R DC U E N R N H D K A A T E L E O I C E EE O C I S E E T I M S H G I O A P T K NL R T L I L F C O B S N C R N T S I A CE G I A W L N F C F I S A Y R S A O E IT S O O U A Y G I D S K E M A A P N P RA M N R N H P C N D T T E N T W Y I S CC K S I P C S E M V A S A M L A E R R LO L F M K A L H T N N E P R S L E T B EV A Q U A T I C S O C E K E S L E I A CD T O V O L U N T E E R S A L A E W R GA R E S E A R C H M S C H A M P I O N S

WORD SEARCH

2 | JOIN THE MOVEMENT: nationalMSsociety.org

INSIDE THIS ISSUEA LETTER FROM THE PRESIDENT PHYLLIS ROBSHAM

NYT Bestseller to VisitPAGE 7

Ask the Professional PAGE 10

Night of 1000 StarsPAGES16-17

MS Brain GamesPAGE 13

Springtime at the MS Society is about coming together and raising awareness.

MS Awareness Week is March 14-20, 2011, and this year’s theme is “MS = ”. While MS can represent challenges to overcome, it can also represent opportunities to help others. MS can mean learning to adapt. Please think about what MS equals in your life, and share that with others.

Walk MS has long been a signature event and rallying point for people who want to do something about MS now. For many, Walk MS is the single most important action they can take for their health, spirit and future. Walk MS says to everyone living with MS: You are not alone.

This year thousands of people in our 90-county area will rally together to speak with one voice at one of our 10 Walk MS locations on April 16. In addition, walks will be held in Carbondale, IL (April 2) and Cape Girardeau, MO (April 10). We will also paint downtown St. Louis orange at the Steppin’ Out for MS Night Walk on Thursday, April 21 at Kiener Plaza.

Walk MS and MS Awareness Week are chances to celebrate how far we’ve come and how far we are determined to go to create a world free of MS. If each of us does our part to share our stories or the stories of those we care about, to raise money and raise awareness, someday soon we will be able to say that MS equals a thing of the past.

P.S. Please display the pull-out poster in the middle of this magazine in your workplace or home to show your commitment to a world free of MS!

MS TALKING POINTS 3-4

MS AMBASSADORS 5

LEGISLATIVE ACTION DAY 6

WOMEN ON THE MOVE 7

VOLUNTEER COLUMNS 8-9

ASK THE PROFESSIONAL 10

FROM THE BOARD 11

NEWS BRIEFS 12

MS BRAIN GAMES 13-14

RESEARCH 15

NIGHT OF 1000 STARS 16-17

WALK MS TALK MS 18

HAPPENINGS 19-36

TOLL FREE NUMBER 1 800 344 4867 | 3

LIVING WITH MS

A LETTER FROM THE PRESIDENT PHYLLIS ROBSHAM

MS Brain GamesPAGE 13

Aside from facing symptoms like fatigue, numbness, balance issues and vision problems, people living with MS have to face something else – educating others about MS.

While most people probably have heard of MS, it certainly doesn’t mean they understand what the disease really is.

“Most of what people think is misconception,” said Karen Tripp, a licensed marriage and family counselor and leader of the Chapter’s monthly CarePartner Talk MS group. “People end up thinking a wheelchair and all kinds of different things when that may not be part of the person’s diagnosis at all. A lot of people aren’t aware of the progress that has been made and the medications now available to people with MS.”

Telling people you have MS can be scary, but it’s important to be able to talk to people so you can build a support system.

“It’s important that you aren’t in a state of isolation when you’re coping with something like MS,” Tripp said. “It’s important to tell someone and have some level of support group where you don’t have a sense of secrecy. If you want people to understand your situation and what you’re going through, you have to educate them.”

TALKING TO YOUR EMPLOYER One of the most nerve-racking situations people with MS may face is telling their employer they have MS. If you do decide to tell your employer, you don’t have to come out and overwhelm them by blurting ‘I have MS.’

“I would start to tell them about their symptoms and things that they’re coping with before telling them the diagnosis,” Tripp said. “I would explain ‘I have this condition and I’m having some issues with memory right now and a little bit of vertigo’ and whatever other things are affecting them, and describe what the situation is before telling them the diagnosis.”

It may also be a good idea to explain to them a bit about the treatment, and it’s important to educate them that the degree of symptoms can vary from day to day and that if you relapse you will probably be able to recover.

TALKING TO YOUR CHILDREN MS is hard enough to understand and it can be such a complicated issue - how do you tell your children?

Tripp said it’s important to communicate with them at their level and describe how it may affect the child’s daily life.

MS TALKING POINTS: EDUCATING OTHERS ABOUT MS

CONTINUED ON PAGE 4

MS AWARENES WEEK = O P P O R T U N I T Y

MS Awareness Week is March 14-20 and is a great chance to spread awareness about MS and what MS means to you through the national theme of ‘MS =’. Post something on your Facebook page or add a tag on your email to educate others about MS.

“The first thing to do is really think about it from your child’s point of view,” Tripp said. “What are the things that mom or dad can’t do anymore? What are the things that mom or dad still can do? That’s the information the child needs. They need to know that mom gets tired very easily and is going to take more naps but mom is still going to be the one to pick them up from school every day.”

Even if the signs of MS may not be visible to children, it is important to communicate with them and not be secretive.

“When you’re doing that with children, our non-verbal communication is so loud,” Tripp said. “The kids know something is going on. Kids may start to develop their own problems in response to the tension in the home. Even if the symptoms are mild it’s important to let the kids know that mom sees a special doctor or mom needs some special medicine.”

TALKING TO YOUR PARTNER

Most likely your partner will be the first person other than your

neurologist and you to know of your diagnosis, and Tripp says that’s exactly how it should be.

“From the very beginning you want to develop a relationship with your partner being involved, informed and aware of your disease, symptoms and treatments,” Tripp said.

“Developing that partnership early before physical issues may become more severe is really primary to the stability of the relationship. It’s not obsessing over the MS. It’s just making sure everyone is on the same page. We signed up and we said we’d be with each other through sickness and health — this is it.”

TALKING TO SOMEONE YOU’RE NEWLY DATING

While most first-date conversations may surround where you grew up, what you like to do for fun, your family and pet preferences, it doesn’t have to include a declaration of your MS. But how do you know when to tell someone you’ve been dating?

“You probably need to share it

when it’s becoming a burden not to,” Tripp said. “When it’s becoming really painful keeping it from them, it may be time to have the conversation.”

PRIVATE LIFE NOT SECRET LIFE

If you have MS it doesn’t mean you have to give everyone the details of all the symptoms you’re dealing with and the different types of treatments you’ve taken, but keeping it a secret shouldn’t be a burden.

“Having the stress of feeling that I’m walking around in my life and I have this secret about myself that I’m not sharing with other people is not a good thing,” Tripp said. “That doesn’t mean that you have to wear a T-shirt that reads ‘I have MS’ or you have to broadcast it to the universe. But it does mean that on some level you’re sharing it with people.”

While talking to others about MS can be scary and frustrating, it can also be therapeutic and relieve a burden.

“The last thing people with MS need is more stress,” Tripp said. “If you’re living in a place where you’re frightened of people knowing, that’s not good and needs to be dealt with.”

Karen Tripp, a licensed marriage and family counselor, leads the Chapter’s monthly CarePartner Talk MS group. See pages 28-29 for a listing of Talk MS groups.


LIVING WITH MS

MS TALKING POINTS: CONTINUED

When you are out and about town, and you see a small table covered with an orange table cloth and literature on MS manned by a volunteer handing out Tootsie Rolls, make it a point to stop by and talk for a few minutes to see what the passion is all about.

You just might get interested enough to join us in the movement, to do something about MS now and become an MS Ambassador.

We participate in health fairs, consumer shows, and a variety of other event venues, as representatives of the Chapter.

We are trying to grow a small army of people, who have been impacted by MS in one way or another, who would be willing to volunteer their time and talents, and meet the public at large to share their experiences.

Our volunteer group has touched more than 8,000 area residents in the past four months…and we’re only just beginning.

If you’re interested in our progress, check out our pages on the Chapter’s website at www.gatewaymsambassadors.org.

Currently, we are looking for 100 people across the Chapter who are willing to make a nominal commitment of their time to become an MS Ambassador: to attend an orientation session, and then to meet people and talk about MS and the Gateway Area Chapter. We offer tools to make our Ambassadors successful, and offer the opportunity to get as

involved as they choose to be.

We multiply the Chapter staff’s efforts to reach local businesses, civic groups, schools, universities, and medical groups. We deliver a message that is clear and consistent, so everyone we talk to gets the facts that they need to learn about MS, to volunteer, to participate, to fund research, to donate to help people address the challenges of living with MS… to do something about MS now.

If you are interested in becoming an Ambassador or having an Ambassador speak to your group, let us know. Contact Tim Roccia at 314-651-0622 or [email protected].


ADVOCACY

MS AMBASSADORS: SPREADING THE WORD AT A GRASSROOTS LEVEL

The MS Ambassadors have been busy spreading the word about MS and the Chapter.

If you would like to volunteer as an MS Ambassador or would like one to speak at your group go to gatewaymsambassadors.org.

On February 15-16, about 70 volunteers and staff members from the Gateway Area and Mid-America Chapters visited with their legislators to raise awareness of MS and the needs of people living with disabilities in Missouri. Volunteers personally spoke with about 80 state representatives and senators, and delivered materials to the offices of other legislators.

Volunteers successfully pushed for a change that will make the Missouri legislative process more accessible for people with disabilities.

Missouri’s beautiful domed capitol building was completed in 1917, decades before the Americans with Disabilities Act. Many of the legislators are in offices with stairs or narrow doorways that are inaccessible to people with mobility issues. Stephen Kinstler, an advocacy volunteer who has visited Jefferson City many times, described a visit with Rep. Kate Meiners, “I was surprised that I couldn’t get to her office on the Mezzanine. Instead we talked in the hallway, which was noisy and provided no privacy.”

With the support of MO Speaker of the House Steven Tilley, this problem has been

solved. An accessible area of the Capitol has been designated as a private meeting space that can be reserved by legislators for meetings with constituents who are unable to visit their offices.

The second issue volunteers raised with legislators was maintaining the Home Accessibility Tax Credit, which makes home modifications, such as ramp installations and door widening, more affordable for middle class Missourians. The tax credit helps people with disabilities stay independent in their homes, which both improves their quality of life and saves taxpayers money by

delaying the need for expensive long-term care facility care. For more information on the Home Accessibility Tax Credit, please call the MO Dept. of Economic Development at 573-751-4539.

Legislative Action Day also included the presentation of 2010 Committed Statesperson Awards to Representative Tim Meadows, Senator Jay Wasson, Senator Bob Dixon, and Senator Eric Schmitt for their support of the Society’s legislative priorities.

ADVOCACY


REPRESENTATIVES MAKE VOICES HEARD AT CAPITOL

Among the many things representatives from the National MS Society did during legislative action day in Jefferson City was presenting Senator Eric Schmitt with a Committed Statesperson Award. Representative Tim Meadows, Senator Jay Wasson and Senator Bob Dixon also received awards.

While this year’s Women on the Move Luncheon keynote speaker does not have MS, she knows all about the affects of MS and is one of the National MS Society’s biggest advocates.

The Chapter is pleased to welcome New York Times bestselling author Jacquelyn Mitchard at the Women on the Move Luncheon May 5 at The Ritz-Carlton St. Louis. Mitchard, the 2006 recipient of the Society’s Advancing MS Awareness Award, is widely involved in the Society’s activities.

Her most popular novel, “The Deep End of the Ocean,” has been chosen as one of the 10 most influential books in the past 25 years and was selected as the first novel in Oprah Winfrey’s book club.

Mitchard became interested in learning and doing more for the MS community when her best friend of 40 years, Jeanine, was diagnosed.

“Being an MS advocate lets me feel as though I’m really in the fight,” she said. “It’s possible that I’ll be able to be there when my best friend walks, runs and then leaps again.”

Mitchard honors Jeanine for her courageous will against MS in her 2005 novel, “The Breakdown Lane,” by basing the main character on her. She is humbled by her friend, who despite whatever pain she feels, is still a constant source of support.

“A thousand times, although she was weak, or post-injection, or in pain, Jeanine has been the shoulder for me,” Mitchard said.

Mitchard is looking forward to speaking at the annual luncheon to encourage those facing the disease to hold on and keep loving to every degree possible because they will someday all “stand together for the moment of the cure.”

Speaking engagements such as this are a gentle reminder of how her challenges pale in comparison to what Jeanine and others deal with on a daily

basis. Mitchard is greatly inspired by the tenacity of the people she has engaged with and often learns important life lessons from them.

“People with MS are not just tough. They’re engaged, fierce and powerful,” she said. “They don’t let MS win. Ever.”

When she isn’t writing, Mitchard spends time with her husband and seven children. She is also an advocate for another disease close to her heart, colorectal cancer.

EVENTS


NYT BESTSELLER HEADLINES ANNUAL LUNCHEON

New York Times bestselling author Jacquelyn Mitchard, will be the guest speaker at the Women on the Move Luncheon on May 5.

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. The National MS Society’s medical advisors recommend that people with MS talk with their health-care professional about using one of these medications and about strategies and effective treatments to manage symptoms. The National MS Society is committed to ensuring that people with MS have the information and quality care they need to live healthy, productive and independent lives. If you or someone you know has MS, please contact the National Multiple Sclerosis Society today at www.nationalmssociety.org or 1-800-344-4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

CALL TO ACTION

In my professional life, I’m a sales trainer at Slumberland Furniture. In my volunteer life I’ve become the buddy coordinator for the Gateway Area Chapter of the National MS Society where we connect people living with MS at a long-term care community with volunteer ‘buddies.’

You may be asking how a furniture salesman becomes a buddy coordinator. I’ll tell you. I love finding out information on how I can better take care of the customers I see at Slumberland. In the past year we’ve had a few customers with MS. So I contacted the Gateway Area Chapter and requested a speaker come to the store and help educate our staff on how to properly assist our customers with MS.

The Chapter’s MS Ambassadors sent Jennifer Luner who came in and did a great presentation for us and asked me to visit the office and meet some staff and I was hooked.

I was introduced to The Heights, a wing of a long-term care community in west St. Louis County especially for people living with MS. I started visiting once a week just to hang out with the residents. I was surprised by how upbeat, positive, and funny everyone was. It felt really good just to hang out and talk at The Heights. I was having a great time so I started going to the meetings and helping out as often as I could.

Then I was asked to be a buddy coordinator for The Heights. I was honored and very excited to be given the opportunity to help improve and change the lives of my newfound friends.

My favorite thing about being part of The Heights is you don’t have to do anything special — just be yourself. You don’t have to spend money, have a

cool car, flashy clothes, or try to impress anyone. You just get to be you and show up and have fun. Whenever I feel down or alone I always think about my friends at The Heights.

I was always scared to volunteer because I felt almost guilty since I’m in good health. I would always wonder if I could even have a positive impact on anyone. I have found though, that something as simple as just being a good friend who listens and cares for another person goes a long way. I don’t do anything special, I just go where I’m always welcome and visit with friends. We have so much fun talking and joking, and laugh all day. We have had pizza parties at the mall and a Super Bowl party. Everyone is always grateful when I come and glad to see me, I love The Heights and am thankful every day to be a part of it.

To learn more about the Chapter’s Buddy Program contact the Chapter at 1-800-344-4867.


VOLUNTEER

RICHARD KOSSMEYER ‘BUDDY’ COORDINATOR AT THE HEIGHTS

THROUGH THE EYES

The Chapter’s Buddy Program connects residents at The Heights MS Wing at NHC Town and Country with volunteers.


DONOR

I’ve had a long history with my MS, since 1987. I’ve also had a long history with the Gateway Area Chapter, I started volunteering in 1993.

A couple of weeks after my MS prevented me from working, I knew I had to do something. So I got involved with the Chapter in the program which is now called Telefriends.

The program connects trained volunteers who have MS with other people with MS who simply want someone to talk to. The volunteer calls their Telefriend regularly to answer questions, share tips on how to manage symptoms, to just chat and sometimes just to listen.

After a couple of months of making connections with other people with MS, I was asked to be the volunteer coordinator for the

program. This meant I was kind of a Telefriend to the Telefriend volunteers. The role included checking on the Telefriend volunteers each month, asking how many calls they made and how their Telefriends were doing. It became very, very important to me and it has been ever since, even 18 years later.

I don’t know of any other program quite like it in any other non-profit organization where they have this many volunteers making as much contact as we do. The people receiving the calls need to be getting these calls. They need to talk to somebody who has MS. Telefriend volunteers have MS, so we kind of understand what they’re going through. We may not have exactly the same symptoms that they do, but we understand why they have them. We can relate to them and that’s what this program is about.

I’ve had people ask me why I’ve volunteered in the Telefriend program for so many years. I do it because it helps me because I’m helping that person with MS who may be scared and has questions.

It’s a win-win-win. It’s a win for the person receiving the calls to talk to someone who can relate to them. It’s a win for Chapter because it has a successful program that

reaches out to people with MS. It’s a win for the volunteer because it makes them feel good because they’re able to help somebody. That’s what keeps me going.

The best thing about the program is that it helps the volunteers as much as it helps the person receiving the calls. And it doesn’t take much to make an impact as a Telefriend volunteer. You don’t have to have all the answers, but just being there can make all the difference. When they say ‘thank you Sandy for listening’ that makes me feel so, so good. It’s working both ways since I’m helping them, and they in turn help me keep going.

VOLUNTEERTHROUGH THE EYES OF VOLUNTEERS

SANDY SHERMAN TELEFRIEND VOLUNTEER COORDINATOR

TELEFRIENDS The TeleFriend program con-nects people with MS to trained volunteers living with MS who truly understand the challenges MS can present. Weekly phone calls provide support, friendship, and a chance to share thoughts and feelings with others who are coping with MS. TeleFriend volunteers are people living with MS who want to share their own experience and sup-port their peers. Volunteers are prepared to share information on MS research, treatments, and resources available through the Chapter. Contact the Chap-ter to get involved.


Among the patients who see me in my office for multiple sclerosis some have opinions that can be described as myths or misconceptions about the disease.

Some of them think MS is fatal while others assume poor dietary habits or hereditary traits cause the disease. While genetic factors raise the risk of MS, they are not the sole cause. The list of myths that hound MS is endless but I will try and highlight a few of the misconceptions that seem to ‘make the rounds’.

Jagannadha Avasarala MD, Ph.D. Cape Neurology Specialists

In general, MS is not fatal and most of the deaths are related to complications in the chronic/progres-sive stages of the disease.

Diet and MS have always intersected and patients are very keen about the type of diet they should fol-low to avoid further attacks.

Anxious patients seek a ‘gluten-free’ diet or wonder if they should eat more calcium, but no nutritional deficiency is known to be a factor in MS, and addi-tion of vitamins or minerals has not been proven to alter the disease course. Polyunsaturated fatty acids (PUFA) have slight immunosuppressive properties, but studies involving oils from sunflower/safflower seeds, primrose, and fish have yielded conflicting results. Of note, high circulating vitamin D levels in blood probably lower the risk of MS.

Another myth is the fact that there are ‘cures’ in MS. There are none. We all acknowledge that the choices for a clinician to treat MS are many and continue to expand but no cures can be promised.

As well, the extreme variability of presentation in MS makes it a perfect disease for ‘quacks.’ The only way to know whether a treatment is effective is to follow many patients for years to see whether those who receive the treatment do better than those who do not. ‘Quacks’ claim credit whenever

anyone who consults them improves, and since the majority of attacks are followed by some partial recovery, persuasive ‘quacks’ can acquire patients who swear by whatever they recommend.

Strategies promoted in the name of producing benefit include prokarin (skin cream/patch applica-tion), hyperbaric oxygen, hydrogen peroxide, coral calcium, bee venom therapy and other snake oil claims of success. The Therapeutic Claims Commit-tee of the International Federation of Multiple Scle-rosis Societies has analyzed more than a hundred alleged treatments and published the results in a book titled “Therapeutic Claims in Multiple Scle-rosis,” which is updated frequently (Sibley W and others. Therapeutic Claims in Multiple Sclerosis, 4th edition. New York: Demos Vernande, 1996).

MS patients should not fear pregnancy and must not mix up the disease with muscular dystrophy, two other areas where ignorance reigns. While mothers with MS can face special challenges in car-ing for their babies it should in no way deter them from considering the option of having children – indeed, acute attacks are sometimes lessened in the second and third trimesters.

While it will take research to unravel the secrets of this complex disease, it pays to be aware of some common myths.

MS CONNECTION

ASK THE PROFESSIONALPATIENT QUESTION: What are some common misconceptions about MS?

TOLL FREE NUMBER 1 800 344 4867 | 11

What drew you to the Gateway Area Chapter? My mother was diagnosed with MS in 1994. Upon diagnosis, her neurologist immediately directed our family to the Gateway Area Chapter. The Chapter provides immense amounts of information for patients and their families, all in the spirit of support.

What is your connection to MS? My mother suffered with MS for 14 years before dying from associated complications. I also have a number of friends and colleagues who live with the effects of MS daily. Seeing their spirit and perseverance is inspiring.

What do you hope to bring to the Chapter? I hope to contribute both professionally and personally in advancing the organization’s mission to raise community awareness and support.

Why did you want to join the board? I was approached by current board members, due to my experience in both finance and marketing. Honored by the invitation, coupled with my personal experience of seeing the support the Chapter provides — I felt obligated to participate and to give back.

What do you hope to accomplish with the board? Utilizing my background, my goal is to contribute meaningful insight, effective counsel to my assigned committees, the Chapter and my fellow board members.

2011 BOARD OF TRUSTEES

What drew you to the Gateway Area Chapter? We attended the Summer Swizzle in 2009 to give our son an opportunity to meet others living with MS. During the evening, he met the Volunteer Manager of the Gateway Area Chapter. What is your connection to MS? Our son has been living with MS since 1986. We also have a daughter who was diagnosed with MS eight years ago.

What do you hope to bring to the Chapter? My hope is to share my expertise in fundraising. I have worked with many organizations in St. Louis, none as compelling as the MS Society.

Why did you want to join the Board? After spending an afternoon with (board member) Mike Houlihan and (Chapter President) Phyllis Robsham, they convinced me I had qualities and experience to bring to the Board. I also have an ulterior motive — I want to help keep my kids moving!

What do you hope to accomplish with the board? I am a “people” person. I plan to connect with as many people in the community as possible to help them realize that together we can work for a world free of MS.

WHY DID I JOIN THE MOVEMENT?Rhonda Ries-Aguilar Partner & CFOOsborn & Barr

Lynette Roccia Community Volunteer

AWARENESS WEEK = MARCH 14-20MS Awareness Week is upon us! This year people throughout the nation are sharing what MS means to them through the ‘MS =’ campaign. This is a great opportunity to help educate others about MS and the National MS Society.

WALK MS SEASON IS HERE! Walk MS is the rallying point of the MS Movement and this year thousands of people throughout our area will get together to celebrate hope on Saturday April 16 at 10 walks throughout the area. In addition there will be walks in Carbondale (April 2) and Cape Girardeau (April 10). We will also paint downtown orange for the Steppin’ Out for MS Night Walk, Thursday April 21 at Kiener Plaza in downtown St. Louis, MO. Another change this year is the St. Peters walk is moving from Kircher Park to St. Charles Community College. See the center spread for information on a walk in your community.

15TH ANNUAL MS CORPORATE ACHIEVERS CAMPAIGN KICKS OFF On February 9, the 15th annual MS Corporate Achiever Campaign kicked off at Thompson Coburn. About 50 participants in the business community raise a minimum of $2011 each and honorees are featured in a special insert of the St. Louis Business Journal.

AN AMAZING PREMIER The Chapter was thrilled to welcome Amazing Race host Phil Keoghan at a special premier of his movie ‘The Ride.’ The documentary chronicles Keoghan’s 3,500-mile ride from Los Angeles to New York to raise awareness and funds for MS. The event was held at the Regal St. Louis Mills Stadium 14 in Hazelwood. Go to noopportunitywasted.com for more information.

CHALLENGE WALK MS TO CELEBRATE 10TH ANNIVERSARY This year Challenge Walk MS is celebrating its 10th anniversary. The 50-mile, 3-day journey will be June 3-5 at St. Charles Community College. Go to www.gatewaymschallenge.org for more information.

CAMP HOPE The Chapter will initiate a brand new program this July just for youth ages 8-15 who have MS or a loved one with MS. The camp will be held at Touch of Nature, just outside Carbondale, IL and will include both recreational and educational activities to help young people affected by MS better understand the disease and ways to live with it in their lives.

READY. SET. PLAY! Illinois Lottery tickets benefiting the National MS Society will start hitting stores in March. If your local convenience store does not carry them, ask them to order “It’s Double-Time” scratch-off tickets!


NEWS BRIEFS

TOLL FREE NUMBER 1 800 344 4867 | 13

MS BRAIN GAMESMS CROSS WORD PUZZLEAll of the words have something to do with Walk MS. To register for Walk MS go to www.gatewayMSwalk.org.

•ARNOLD•BALLOONS•CAPE GIRARDEAU•CAPTAINS•CARBONDALE•CHAMPIONS•CLAYTON•COLUMBIA•EDWARDSVILLE

•EUREKA•FAMILY•FRIENDS•FUNDRAISING•GODFREY•MILLSTADT•NIGHT WALK•MOBERLY•RALLYING POINT

•REST STOPS•ST. PETERS•TEAMS•TROY•VOLUNTEERS•WALK MS•WEAR ORANGE

ANSWER KEY ON PAGE 14

NOTE: WORDS WITH SPACES SPACES NOT USED ON WORD GRID.

SOME WORDSOVERLAP.

L V K R P K N X T D P R S T P E T E R S

A J U C T L I X V O L U N T E E R S H Z

A H I E W E A R O R A N G E E O N N R E

C F Z D C E U R E K A W A L K M S N F A

H U G W N I G H T W A L K L V N F M I H

A N C A F A A I I Q B C O L U M B I A A

M D X R A V U C C S R E S T S T O P S I

P R C D M K Q R A L L Y I N G P O I N T

I A A S I F Y M P R G D X N N Q L M M X

O I P V L H U A E P B G H N X B F M B R

N S T I Y K P J G M G O B G X V T O A P

S I A L M P S S I I F D N T H T L B L O

E N I L B D T P R L A F S D J N L E L G

Y G N E N C A I A L T R O Y A S J R O C

G O S E Z L R L R S Z E B P M L H L O X

H X I C M A N N D T A Y T A R O E Y N G

V R J W U Y O K E A S I E O H W Y Q S E

F V T C C T L R A D P T O B X W C N D N

D S T O V O D T U T B S W G B U H F S A

U H Q G W N J L P I P A I W T Y K Q C J


MS CONNECTION

FACEBOOK.COM/GATEWAYMSSOCIETY

MYSPACE.COM/NATIONALMSSOCIETYGATEWAY

TWITTER.COM/GATEWAYMS

YOUTUBE.COM/GATEWAYMSSOCIETY

SAVE THE DATE(S) - VOLUNTEER AT AN EVENT!If you can’t join us as a participant at one of our events, you, your family and friends can be a key part of the event by volunteering. Contact Bobbie Appelbaum at [email protected] if you’re interested in volunteering.

2011

10th AnniversaryAPRIL 2Carbondale, IL

APRIL 10Cape Girardeau, MO

APRIL 21Steppin’ Out for MS

Night WalkSt. Louis, MO

APRIL 16Arnold, MOClayton, MO

Columbia, MOEdwardsville, IL

Eureka, MOGodfrey, ILMillstadt, IL

Moberly, MOSt. Peters, MO

Troy, MO

MAY 7St. Louis, MO

Harrah’s St. Louis

JUNE 3-5St. Louis, MO

St. Charles Community College

SEPTEMBER 10-11Columbia, MO

Boone County Fair-grounds

L V K R P K N X T D P R S T P E T E R S

A J U C T L I X V O L U N T E E R S H Z

A H I E W E A R O R A N G E E O N N R E

C F Z D C E U R E K A W A L K M S N F A

H U G W N I G H T W A L K L V N F M I H

A N C A F A A I I Q B C O L U M B I A A

M D X R A V U C C S R E S T S T O P S I

P R C D M K Q R A L L Y I N G P O I N T

I A A S I F Y M P R G D X N N Q L M M X

O I P V L H U A E P B G H N X B F M B R

N S T I Y K P J G M G O B G X V T O A P

S I A L M P S S I I F D N T H T L B L O

E N I L B D T P R L A F S D J N L E L G

Y G N E N C A I A L T R O Y A S J R O C

G O S E Z L R L R S Z E B P M L H L O X

H X I C M A N N D T A Y T A R O E Y N G

V R J W U Y O K E A S I E O H W Y Q S E

F V T C C T L R A D P T O B X W C N D N

D S T O V O D T U T B S W G B U H F S A

U H Q G W N J L P I P A I W T Y K Q C J

MS CROSS WORD SEARCH ANSWER KEY

TOLL FREE NUMBER 1 800 344 4867 | 15TOLL FREE NUMBER 1 800 344 4867 | 15

RESEARCH

THE WORLD OF MS RESEARCH

In October, more than 5,500 neurologists and other investigators from around the world covered almost every aspect of current MS research in some 900 scientific presentations and posters at the annual ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) conference in Gothenberg, Sweden.

Some research highlights

A newly completed two-year, phase III trial of teriflunomide, an oral compound that inhibits specific immune cells, in 1,088 people with relapsing MS, found positive results. Dr. Paul O’Connor of the University of Toronto reported that two different doses of teriflunomide significantly reduced the rate of MS relapses by up to 31.5% compared to placebo, and that the higher dose reduced the risk of disability progression by 29.8%. It also reduced the risk of new MS lesions and reduced disease activity. Additional clinical trials are underway.

Other medications also show promise at various trial stages. An oral compound called firategrast caused a significant decrease in the rate of new MRI-detected lesions in a six-month trial in relapsing-remitting MS. Ocrelizumab, which targets and kills immune B cells, reduced new lesions by at least 89% over placebo in a 24-week trial.

In a separate session, Dr. Antonio Uccelli of the University of Genoa described attempts to stop MS progression using infusions of an individual’s own bone marrow or blood stem cells (mesenchymal cells). Dr. Uccelli is now collaborating on a study that he hopes will show that these cells are beneficial.

Restoring function

Several research teams reported progress in improving quality of life and specific symptoms, including fatigue and mobility issues, through group physical therapy, and supervised aerobics, yoga and resistance training classes. Another study suggested that memory training can improve brain function. Many

reports focused on CCSVI (chronic cerebrospinal venous insufficiency), with mixed or conflicting results. Lab studies identified additional molecules that may block the ability of myelin-making cells to repair damage caused by MS; selectively turning them off could be useful for encouraging myelin repair in people with MS.

Risk factors

Dr. Trond Riise of the University of Bergen reviewed the growing list of factors that may contribute to an individual’s susceptibility to developing MS, and pointed to current studies that may lead to a better understanding of the interactions and variations of these multiple risk factors.

For a more complete report on the conference, search “ECTRIMS” at nationalmssociety.org.

Two different doses of teriflunomide significantly

reduced the rate of MS relapses by up to 31.5%

compared to placebo, and the higher dose reduced the risk of disability progression

by 29.8%.


EVENTS

Some have MS and live with the disease and the difficulties it presents. Some do not, but live with those who do, and their difficulties may be greater. They are mothers and fathers and children whose lives have been changed by MS, whether directly or indirectly. One is a company that understands the disease and is aware of how it affects their employees.

But they’re all winners — winners of the annual achievement awards that were an integral part of the Night of a Thousand Stars celebration Thursday, February 17 at the Sheraton Westport Lakeside Chalet Hotel.

People with MS understand that it is a constantly changing disease, and those who love them and live with them understand that their lives change constantly, too. Today’s challenge may vanish tomorrow, or tomorrow may bring a different challenge, or one that is more severe. The caretaker must be constantly adaptable, like a utility infielder who may be playing a different position tomorrow, just like someone who has MS may learn that tomorrow’s pain may be a different one,

stronger or in an unfamiliar place.

“She’s one of my personal touchstones,” said nominator Leann Chilton about Wendy Schneider, the Individual of the Year, adding, “It is her dogged passion to demonstrate her commitment to a cure and to help those of us who do not have MS by living, by giving and by doing. Wendy is the reason I walk.”

“I know my Dad has MS because he has wobbly legs,” said six-year-old Liza about Rudy Yanuck in a family letter that earned him the Father of the Year award. “He rocks!” added 15-year-old Carley. Rudy’s wife, Tamara, notes, “We were in a restaurant and the owner looked at Rudy walking out with his crutches and smiled at me and said ‘You are taking care of him.’ I had to say, ‘No. He takes care of me.’ That is what is beautiful about Rudy.”

“Kendra is a person of character to the core,” wrote Debbie Robertson, one of many who nominated Kendra Yancey, the Mother of the Year.

Neither Becky Salacki, Caregiver of the Year, nor Nancy Friedhoff, the Unsung

Hero, has MS, but their efforts have had a wide-ranging effect while showing how people can help one person, or hundreds. Becky has been married for 18 years to Joe, more than half of them since he was first diagnosed with MS. She not only takes care of him while handling a full-time job, but also wore #1 at the 2010 Challenge Walk as the top fundraiser for 2009. “Things might be a little harder

CHAPTER HONORS ACHIEVEMENT AWARD WINNERS AT ANNUAL NIGHT OF 1000 STARSACHIEVEMENT AWARD WINNERS

INDIVIDUAL OF THE YEAR WENDY SCHNEIDER

FATHER OF THE YEAR RUDY YANUCK MOTHER OF THE YEAR KENDRA YANCEYCAREGIVER OF THE YEAR BECKY SALACKI

UNSUNG HERO NANCY FRIEDHOFF

YOUNG ACHIEVER AUTUMN BROWN

EMPLOYER OF THE YEAR MEDASSETS

TOLL FREE NUMBER 1 800 344 4867 | 17

EVENTS

or it might take us a little longer but that’s OK,” he wrote in his nominating letter. “You have to play the cards life deals you and I couldn’t ask for a better partner.”

Nancy, nominated by a number of her co-workers at Express Scripts, organized and led its team in Bike MS for the last five

years. Under her passionate leadership, a team that began with 30 volunteers and riders ballooned to more than 200, and fundraising grew from $50,000 to more than a quarter-million. When she was offered a promotion at Express Scripts, her sole stipulation was that she would take it only if she could continue as leader of the MS team. Sadly, she was 49 when she passed away suddenly in November.

Sandy Hoffman nominated MedAssets, her employer, as Employer of the Year. She has MS, and pointed out how MedAssets makes it possible for her to have comfortable and considerate working

conditions, making necessary adaptations at the work place. Equally important is MedAssets’ approach to charitable efforts by its workers, including matching funds they raise.

The Chapter added a new achievement award this year, the Young Achiever of the Year. The inaugural winner is Autumn Brown who has helped grow Walk MS in Carbondale, and increased MS Awareness on the campus of Southern Illinois University in Carbondale. Autumn’s passion for the cause comes from her dedication to her brother, who was diagnosed with MS in 2008 at age 21.

CHAPTER HONORS ACHIEVEMENT AWARD WINNERS AT ANNUAL NIGHT OF 1000 STARSPATHLIGHTER AWARDS

Pathlighter Awards honor volunteers who have provided at least three years of service to the Chapter. These extraordinary volunteers are some of the finest examples of true stars who are blazing a path to create a world free of MS.

ADMINISTRATIVE ROBYN HULSEYHEALTHCARE PROFESSIONAL ELISSA BRADFORD

COMMUNITY AMY ANDERSON

DEVELOPMENT AL GUISE

The Chapter honored its Achievement Award and Pathlighter Award winners as well as its Mission Possible honorees Thursday, February 17 at the annual Night of 1000 Stars Dinner at the Sheraton Westport Lakeside Chalet Hotel.

Everyone who participates in Walk MS does so for a reason. Team Orange Lightning walks in the Godfrey Walk MS because all of their team members either have MS or have a close connection to it.

“We’re a close group, and we’re excited to participate and raise MS awareness in the community,” says team captain Lisa Hemphill, who is also the co-leader of the Alton/RiverBend Talk MS group.

What makes this team special is that most of its members are also part of the Alton/RiverBend Talk MS group.

“In the group, we get to talk to and support each other and learn about different topics on MS,” she said. “The Walk is our chance to go out and about and talk to other people about MS and the Walk.”

Orange Lightning has also grown along with the Godfrey Walk. After being a rookie team last year, they have set a goal of $3,000, which will make them an Elite Team and earn them special perks.

The team name is inspired by one of their team members.

“We were brainstorming at one of our Talk MS meetings and one of our members is jokingly but lovingly called ‘Lightning’ by her neighbor because she moves so slowly,” Lisa said. “ We all thought that was funny, so we took it and added ‘Orange’ for MS. The lady whose nickname is ‘Lightning’ always walks at Walk MS at least one time around the path, and we’re so glad she does. She inspires us.”


TALKING THE TALK AND WALKING THE WALK

The Alton/RiverBend Talk MS group has also formed a Walk MS team called Orange Lightning. For more on Talk MS groups see pages 28-29.

J O I N T H E M O V E M E N T

Did you know that 6,885 Walk MS

participants raised $713,000 in 2010?

Did you know that 3,341 Bike MS

participants raised $2.6 million in 2010?

Did you know that 522 Mud Run MS participants raised $109,000 in 2010?

Did you know that 211 Challenge Walkers

raised $510,000 in 2010?

Did you know that YOU can be a part of these events without leaving your home?Inspire and educate these fundraisers through our MS Champions Program.Contact Traci Buss at 314-446-4186 or [email protected].

DEVELOPMENT

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MS Wellness Fair PROGRAM INCLUDES:g Individual screening appointments with a

physical and occupational therapistg Strength assessmentg Balance assessmentg Activity assessmentg Mobility device assessmentg Range of motion testsg Various health screenings with a nurseg Opportunity to meet with a variety of healthcare

disciplinesg Opportunity to ask specific health and wellness

questionsg A continental breakfast or afternoon snacksg Information on the Chapter’s wellness programs

and community wellness resources

St. Louis, MOMarch 26, 2011The Rehabilitation Institute of St. Louis4455 Duncan Avenue, St. Louis, MO 63110

COST: $10

The CarePartner Teleconference program provides an opportunity for family members or friends of those living with MS to connect. These calls are a chance to share coping tech-niques, experiences, and information. These calls include guest speakers to discuss topics important to carepartners and family mem-bers. Upcoming CarePartner Teleconferences: Monday, April 4, 2011 7-8 p.m.Monday, June 6, 2011 7-8 p.m.

GUEST SPEAKER: Karen TrippLicensed Marriage and Family Counselor Leader of CarePartner and Family Talk MS Group

TOPIC: Struggling with Loneliness: Finding Connections as a CarepartnerCOST: FREE PROGRAM

REGISTER: Go to gatewaymssociety.org or see Page 35.

CarePartner TeleconferenceCarole, diagnosed in 2005

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Wednesday, April 6, 2011Locations: Cape Girardeau, MO Columbia, MO St. Louis, MO Metro East, IL

Program I (for people with MS, friends, family), 3-5 p.m. What Does the Affordable Care Act Mean to Me and What Do I Need to Know?Participants will learn:

•The resources available to help navigate MS and health care reform•What support services will be available for people with disabilities•How to apply knowledge to help in planning their future coverage

Panel Discussion Featuring:•Judy Baker, Regional Director, Department of Health and Human Services (moderator) •Lauren Chiarello, Director of Federal Affairs, National MS Society •Linda Redford, RN, PhD, Director of Central Plains Geriatric Education Center & parent of young adult with MS •Erica Kiehnhoff, BSW, MSCIR, Manager of Direct Services, National MS Society, Mid America Chapter

FREE PROGRAM

Program II (for health providers) 5:30 - 7:30 p.m.Navigating the Affordable Care Act: What to expect after the one year anniversaryCONTINUING EDUCATION CREDITS WILL BE AVAILABLE. At the conclusion of the session, participants should be able to:

•Identify and utilize resources available to patients with MS and other disabilities. •Access and plan for support services that will be available for people with disabilities across their continuum of care. •Describe available insurance coverage and exchanges.

Panel Discussion Featuring:•Judy Baker, Regional Director, Department of Health & Human Services (moderator) •Andrew Allison, Executive Director, Kansas Health Policy Authority •Sandy Praeger, Kansas Insurance Commissioner and Chair of the NAIC Health Insurance & Managed Care Committee.

PROGRAM COST: $25For more information, visit MSmidamerica.org or GatewayMSsociety.org, or call 1-800-344-4867. TO REGISTER, VISIT HTTP://COA.KUMC.EDU/CPGEC OR CALL 913-588-1464.

Understanding the Affordable Care Act


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Take one weekend to relax and have funwith other couples living with MS.

April 30 - May 1Pere Marquette LodgeGrafton, Illinois

Cost: $60 (before April 13), $70 (after April 13)Registration deadline: April 18.

The lodge is located in the 8,000-acre Pere Marquette State Park, overlooking the Illinois River. Built in the 1930s and continually maintained, the lodge combines rustic charm with modern amenities, all just 45 minutes from St. Louis.

Guests may choose a variety of activities including:

A limited number of fee waivers are available for the program and/or accessible transportation. For details, please call Allison at 314-446-4184.

For more information, questions, or to RSVP, contact the Chapter’s office at 1-800-344-4867. This program fills up quickly, so register early!

Mark Your Calendar for Spring Rendezvous!

Come meet with other people who have been newly diagnosed with MS in the past five years or who have recently moved to the area.

Staff members from the Chapter will be at-tending to let you know what we do and how we can help.

April 12, 2011Location: DoubleTree Hotel 422 Monroe Jefferson City, MO 65101Time: 6-8 p.m.Registration Deadline: April 1

This program will feature guest speaker Dr. Barbara Green. A three-course dinner will also be included with this free program. Space is limited so make your reservation today!

New ConnectionsImani, diagnosed in 2006

•Guest speakers on relationship build-ing, effective com-munication and intimacy

•Arts and Crafts

•Art Therapy Demonstration

•Accessible Swim-ming

• Evening Entertain-ment

Saturday, May 21, 2011Time: 6:30-9 p.m.

Grant’s Farm10501 Gravois RoadSt. Louis, MO 63123

Time to enjoy an evening with your friends and family and Grant’s Farm! The program begins with a ride on a Grant’s Farm tram and enjoying a tour of Deer Park. Your next stop is at The Bauernhof, home world-renowned stables, and location of the evening’s festivities.

Activities include: g Meeting others living with MSg Photo with Clydesdalesg Accessible tram tour of Deer

Park-home to exotic animals from around the world!g Arts and Crafts areag Live musicg Food buffet and beverages

Register before May 2 to receive a special early registration fee.

Early Bird Fee (Register before May 2)$10 adult $5 childRegular Fee$20 adult $10 childRegistration deadline: May 9

Fee waivers available for program and transportation.

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Family Evening: Night at the BallparkBatter Up! Nothing says summertime like a trip to the ballpark. Grab your family and friends and cheer on the Southern Illinois Miners on Saturday June 4. Check www.gatewaymssociety.org for our night at the Gateway Grizzlies and River City Rascals games.

Call now to reserve your seats, as these events are sure to fill up quickly!

Saturday, June 4Time: 6-9 p.m.Southern Illinois Miners vs. Lake ErieGame time: 7:05 p.m.Rent One Park1000 Miners Dr.Marion, IL, 62959Cost: FREE (no meal option)

Family Evening at Grant’s Farm

Saturday, June 11, 2011Time: 3-7 p.m.Stephens Lake ParkRiechmann Pavilion2300 E. Walnut, Columbia, MO Family Evening-Columbia, MO is a great way to meet other people living with MS. Join us for an afternoon of fun, food, family and friends. The program will take place at an air-conditioned, indoor pavilion located with easy access to Stephens Lake.


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Family Evening in Columbia, MO

Saturday, June 18, 201110 a.m. - 2 p.m.Cape Girardeau, MO; Carbondale, ILColumbia, MO; Metro East, IL; St. Louis, MOGo to www.gatewaymssociety.org for details on locations and registration.

Progressive MS SymposiumProgressive MS manifests itself differently in each person. Whether your MS is “secondary-progressive,” which follows a period of “relapsing-remitting” MS, or “primary-progressive,” meaning it has been slowly progressing from the beginning, it is important to realize that “progressive” does not necessarily imply severe disability.

While there are still no effective medical treatments to repair nerves or reverse permanent losses of function, there are many useful strategies and treatments. It is possible to alleviate many symptoms, to improve some functions, and — just as important — to compensate for disabilities and thus lessen their impact on your life.

This program will directly address the issues of those living with progressive MS and research in the field of progressive MS.

PROGRAM INCLUDES:g Keynote speaker presentation by Dr. Lauren Krupp,

Neurologist and Co-Director of MS Center at Stony Brook University in New York

g Live at St. Louis location, via live video to all locationsg Lunchg Resource Fairg Breakout Sessions at each location including: Bowel &

Bladder, Caregiver support, Physical and Occupational Therapy

Activities include:g Arts and crafts areag Face paintingg Raffle prizesg Barbequeg Dessert potluckg Games and other outdoor activities

Cost: FREE PROGRAMFee waivers are available for transportation to program.Registration deadline: June 6

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Cost: $40 per couple

Having a satisfactory relationship is hard work even in the best of times. MS can make it even harder. In this workshop you are able to explore ways to develop a team approach to living well with MS.

This interactive and energetic workshop will focus on: •Improvingcommunicationand resolving conflicts •Havinggreaterfulfillmentinyour relationship •ManagingMSasateam•Helpingyourrelationshipthrive

When you know how to take charge as a couple, MS doesn’t have to rule your relationship.

Overnight lodging and meals are included with your registration.

FEE WAIVERS FOR THIS PROGRAM AND/OR TRANSPORTATION ARE AVAILABLE.

Relationship Matters Enrichment Course: 8 Hours to a Lifetime of Relationship Satisfaction

Relationship Matters

June 25-26, 2011Conference Location: Drury Lodge at Cape Girardeau 104 South Vantage Dr. Cape Girardeau, MO 63701

Lodging: Victorian Inn & Suites 3265 William St. Cape Girardeau, MO 63701

Rick, diagnosed in 1991

For 10 years, MS Learn Online has provided educational webcasts, featuring health professionals from all over North America, accessible at nationalMSsociety.org/mslearnonline any time, day or night.

A recent feature presentation is “Getting a Good Night’s Sleep with MS,” in which Rock Heyman, MD, chief of the division of neuroimmunology and director of the MS Center, the University of Pittsburgh, explains why people with MS seem to be more prone to sleep disorders. He has some tips for dealing with the problem.

Another new presentation is on Gilenya, the first oral disease-modifying therapy to be FDA-approved. Aaron Miller, MD, professor of neurology at Mount Sinai and medical director at the Corinne Goldsmith Dickinson Center for Multiple Sclerosis in New York City, discusses Gilenya in two sessions covering how it works, who might

benefit, pros, cons and potential side effects. There are more than 50 other Learn Online videos available. Transcripts (.pdf format) and podcasts (.mp3 audio format) are available for most programs

Correspondents who interview the MS experts not only have a professional background in broadcasting, they have MS themselves. “So what they want to know is often what other people with MS want to know,” said Julie Gibson, special projects consultant for the Society.

Sign up at nationalmssociety.org/mslearnonline to receive an e-mail whenever a new webcast debuts.


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SDr. Aaron Miller discusses Gilenya, the first FDA-approved oral therapy for MS.

Explore Learn Online videos online:

Basic Facts of MS, Treatments, Symptom Management, Healthy Living, Progressive MS, Research, Family Life and Relationships, Employment and Insurance, and En Español.

On the first and third Thursdays of each month, two new videos are added. An update on disease-modifying therapy is generally added once a year.

In a hurry?

Visit Daily Minutes. In 60 seconds you’ll get some basics on Who Gets MS, What is Myelin, What is Relapsing-Remitting MS– and more. Click on the Daily Minute link in the blue box at nationalMSsociety.org/mslearnonline.

Learn About MS - Anytime

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People live with MS, but is it possible to live well with MS? Many people do. They learn ways to address issues central to their overall well-being.

“Wellness is not dependent on not having a disease—you can have a health issue and still live well. You can learn strategies to live optimally with the disease,” said Stephanie Fisher, MA, executive director of the Marilyn Hilton MS Achievement Center at UCLA, a joint program of the UCLA Department of Neurology and the Southern California Chapter of the Society.

The Hilton Center recently shared its experiences as a leader in the wellness field. Here are some of what they view as core components of wellness.

•Exercise.Physicalactivitybluntstheimpactof MS by improving the body’s overall condition—increasing strength, range of motion and cardiovascular health. “We know exercise is beneficial, within one’s personal limits,” said Denise Nowack, RD, executive vice president, Programs and Services, Southern California Chapter. Working with a health-care professional will help determine what and how much exercise works for you—whether it is tai chi, yoga, aquatic exercises, bicycling, or something else.

•Eatingwell.“Goodnutritionisimportant,as is managing weight, since extra weight adds to fatigue,” Nowack added. There are

lots of resources on eating healthily (and deliciously). Visit nationalMSsociety.org and search for “nutrition” to find recipes, meal planning and information on nutrients important to people with MS.

•Knowledge.Acurrentandaccurateunderstanding of MS, its symptoms and treatments can help people navigate medical decisions and get more from their partnerships with health-care professionals. However, there’s lots of misinformation both online and off. Call us or visit nationalMSsociety.org to start finding up-to-date and helpful resources.

•Emotionalandspiritualresources.Thegriefand sense of loss that a diagnosis brings up are powerful factors. Paying attention to one’s inner self can help people learn “to recognize the things that drain them emotionally and how they can minimize them,” Nowack said. “People can develop practices to carry them through their lifetime.”

For more information on all the aspects of living well with MS, visit nationalMSsociety.org/healthyliving or call us for information about wellness-focused programs, classes, support groups and more for people with MS in this area.

Living Well With MS


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Allen Kerperien was diagnosed with multiple sclerosis following a horrific motorcycle accident in 2003. With his legs severely broken and multiple surgeries on the horizon, doctors told Allen he would never walk again.

Undeterred, Allen pushed forward. Today, with surgeries a relic of the past and MS his primary concern, Allen proudly boasts a daily exercise regimen that includes cardiovascular work, strength training and even swimming – all developed through a personal trainer at Gold’s Gym, made possible with financial assistance from the Chapter.

“The personal trainer knew what I wanted to do and what I wanted to get out of working out,” Allen said. “He told me what to do and what not to do in terms of pushing it.”

Denise Pisciotta, a competitive runner through her freshman year of college, turned to a personal trainer after MS-related mobility concerns and a broken femur left her using a wheelchair.

“Once using a wheelchair, I knew I needed to continue maintaining strength, but did not know what exercises I should or should not be doing,” Denise said. “A friend of mine suggested a trainer who could model a program around my needs. The rest is history; I have been seeing a trainer for approximately 15 years.”

Denise and one of her trainers, physical therapist Pam Fisher of NutriFormance, work on trunk strengthening exercises and balance and motor skills once a week.

“We work all muscles through the abdomen and the sides, and along the back,” Pam said. “We also challenge her eye-hand coordination and timing.”

As a result, Denise says she is able to sit up straighter in her wheelchair and has maintained strength in her arms, which allows her to get around and transfer into and out of her wheelchair.

In addition to the physical benefits a personal trainer can bring, Janet Yost – who opted for a personal trainer after

MS left her struggling to stay positive – says the experience has transformed her demeanor and outlook.

“My self confidence is back,” Janet said. “My life used to be filled with what I could not do. Now I am constantly encouraged by what I can do, and what I will be able to do. Years of MS robbed me of not only my mobility, but of my hope. Now, I may have a few scars, but I look at them as battle wounds. And guess what: I’m winning the war.”

For more information go gatewaymssociety.org g Programs & Services g Wellness.

Personal Training Pays Off For People With MS

Janet Yost has had great success working with a personal trainer.

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TALK MS GROUPSMISSOURI

Cape Girardeau 3rd Saturday 10 a.m.

St. Francis Health & Wellness Center Healing Arts Building, Conference Room 150 S. Auburn, Cape Girardeau, MO 63703

Sharon (573) 332-8148

Columbia Call for DatesUniversity of Missouri-ColumbiaQuarterdeck Bldg., Rm. 1182401 Lemone Ind. Dr., Columbia, MO 65201

Deanna (573) 882-6767

Crystal City/Festus 2nd Tuesday 1 p.m.

Disability Resource Assn. 420B S. Truman Bl., Crystal City, MO 63019

Marlene (636) 464-2533 Sharon [email protected]

Fulton 1st Wedneday 3 p.m.

At Home Real Estate2606 North Blutt, Fulton, MO 65251 Cindy (573) 220-0177

Jefferson City 1st Monday 6 p.m.

St. Mary’s Health Center, Assembly HallSt. Mary’s Medical Plaza, off of West Dunklin, Jefferson City, MO 65101

Chris (573) 645-0130 [email protected]

New London 2nd Monday 7 p.m. Call for Location Debby (573) 267-3365

[email protected]

Bootheel Area 2nd Sunday 2 p.m.

Keller Public Library, 402 W. Grant St.Dexter, MO 63841

Tamra (573) 624-0130 [email protected]

Salem TBA A new group is being formed. Contact Allison at 800-344-4867 or [email protected] if interested.

St. Charles 3rd Sunday 3p.m.

Hardees Restaurant at Mid Rivers Mall Dr. and Mexico Rd. Jim (636) 940-1521

Washington 3rd Monday 6 p.m.

St. Peter’s United Church of Christ, 20 East 5th St., Washington, MO 63090 Anne (636) 359-6037

West Plains 3rd Wednesday 5 p.m.

Ozark Medical Ctr. Shaw Medical Bldg. 2nd Fl. 909 Kentucky St., West Plains, MO 65775

Charline (417) 469-1068 Sally (417) 469-4842

ST. LOUIS METRO

Affton 3rd Wednesday 7 p.m.

Weber Road Library 4444 Weber Rd, St. Louis, MO 63123 Linda (314) 544-5623

Mid-St. Louis County 2nd Saturday 1:30 p.m.

St. John Rehab Hospital, 14561 North Outer Hwy 40, St. Louis, MO 63017 Kevin (314) 841-3755

West County 2nd Tuesday 7 p.m.

Living Word United Methodist Church17315 Manchester Rd., Wildwood, MO 63038 Walt (636) 256-9171

Generation OptiMiSTic 1st Saturday 10 a.m.

NMSS Office Gateway Area Chapter 1867 Lackland Hill Pkwy, St. Louis, MO 63146 Michelle (636) 447-5407

NEW GROUP!


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ILLINOIS

Alton/River Bend 3rd Tuesday 7-9 p.m.

The United Presbyterian Church, 2550 Rock Hill Rd., Wood River, IL 62095 Amy (618) 235-4226

Belleville/ O’Fallon 2nd Sunday 2:30 p.m.

First United Methodist Church 504 East Highway 50, O’Fallon, IL 62269 Amy (618) 235-4226

S’myelin Gang of Litchfield 4th Tuesday 6:30 p.m.

Christian Church of Litchfield 131 Yaeger Lake Trail, Litchfield, IL 62056 Meredith (217) 556-4418

Metro East April 27, 7 p.m. LINC, Inc. 120 East A Street, Belleville, IL 62220

Diane (618) 235-8823 [email protected]

Southern Illinois 2nd Tuesday 5 p.m.

Heartland Regional-Medical Center Classroom #23333 West DeYoung, Marion, IL 62959

Robert (618) 983-0321

SPECIALIZED GROUPS

Men’s Chat Last Tuesday 7 p.m. Telephone group Joe S. [email protected]

MS Fun, Friends & Food May 36 p.m.

David C. Pratt Cancer CenterSt. John’s Mercy Medical Center607 S. New Ballas Rd., St. Louis, MO 63147

Michelle (314) 251-6400Debbie (636) [email protected]

Veterans with MS 2nd Wednesday 10 a.m.

Veterans Admin. Medical Center 1 Jefferson Barracks Dr., St. Louis, MO 63125 Penny (314) 652-4100 ext. 63274

CarePartner and Family Group

3rd Wednesday 7 p.m.

NMSS Office Gateway Area Chapter1867 Lackland Hill Parkway, St. Louis, MO 63146 Allison (800) 344-4867

[email protected]

TALK MS GROUPS

NEW TALK MS GROUP - PROGRESSIVE MS CHATThe Gateway Area Chapter is excited to announce a new Progressive MS Talk MS telephone group. This group will address the many needs of people living with progressive forms of MS, such as plan-ning for the future and working through feelings of isolation. This group will be led by licensed professional counselor Mary DuParri, who will guide topic specific discussions.

The group is scheduled to meet the first Thursday of most months from 2-3 p.m. The first meeting of the Progressive MS Talk MS Group is scheduled for April 7. To learn more and to register, please contact Allison at 314-446-4184 or [email protected].

Martha, diagnosed in 1973

Lisa (618) 258-0615

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DIVE IN!Everyone can participate in an aquatics class. You don’t need to know how to swim – you just need the desire to improve yourself, have fun, and make friends.

Why aquatics?g The buoyancy of the water

reduces your body weight, meaning less stress on joints!

g Better cardiovascular fitness is gained using the resistance of the water!

g Water keeps you cool and guards against fatigue, so you can exercise longer!

The Chapter offers financial assistance for attendance and transportation to therapeutic recreation programs.

MS Aquatics

ST. LOUIS METRO AREABridgeton Community Center Contact: Cole (314) 739-5599

Carondelet Park Rec Plex Contact: Shannon (314) 768-9622

Center of Clayton Contact: Diane (314) 353-4960

Chesterfield JCCContact: Sheena Koster (314) 442-3495

Emerson Family YMCA (North County)Contact: Georgia/Chris (314) 521-1822

Hazelwood Community CenterContact: Jill A. (314) 731-0980

Jefferson College (Hillsboro)Contact Christina C.(636) 942-3000 x382

Mid-County YMCA (Brentwood)Contact: Sandi (314) 962-9450

Show Me AquaticsContact: Carolyn (636) 896-0999

South City Family YMCA Contact: Rich (314) 644-3100

St. Charles County YMCAContact: Joyce (636) 928-1928 x250

The Pointe at Ballwin CommonsContact: Leslie or Adam (636) 227-8950

Washington Four Rivers Family YMCAContact: Ann (636) 239-5704

Wellbridge Athletic Club –( Clayton) Contact: Trudy C. (314) 746-1500 x1551

Wellbridge Athletic Club – (Town & Country)Contact: Abby (636) 207-3000

MID-MISSOURIColumbia Activity & Recreation CenterContact: Janel (573) 874-7460 x7700

Jefferson City YMCAContact: Erica Hart (573) 761-9021

Mexico Family YMCA Contact: Consuelo (573) 581-1540

SOUTHERN AND METRO ILLINOISJohn A. Logan College Contact: Chris G. (618) 985-2828 x8504

Jerseyville Wellness CenterContact: Jennifer R. (618) 498-3500

O’Fallon Community YMCAContact: (618) 628-7701

SOUTHEAST MISSOURIBlack River ColiseumContact: Mandi E. (573) 686-8009

Cape Girardeau Municipal PoolContact: Pat Grebe (573) 335-4040

To register for an aquatics, yoga or Tai Chi class, please call the number listed. You do not register directly through the Chapter.


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Yoga SitesST. LOUIS:Olivette Community Center9723 Grandview Drive, St. Louis, MO 63132Cost: $10/ classCall: 314-781-9020 or 1-800-344-4867ThursdaysNoon - 1:30 p.m. (Iyengar Yoga Class)Instructor: Kathy Simon

Yoga St. LouisIyengar Yoga Class3305 Jamieson Ave.St. Louis, MO 63139Call: 314-645-9785www.iyengaryogastlouis.com

St. John’s Mercy Medical Building 12348 Old Tesson Rd. , St. Louis MOInstructor: Linda Whitney Call: 314-729-0181Tuesdays February 15 - April 12April 19 - June 7 5:30-6:30 p.m. (Beginner)7-8 p.m. (Gentle)

Thursdays February 17 - April 14April 21 - June 9 9:30-10:30 a.m. (Beginner)Saturdays April 23 - June 11 9-10 a.m. (Beginner)**Cost: $54 for 6 weeks, $72 for 8 weeks.

Dragonfly Health Spa & Yoga 1272 A Jungermann Road St. Peters, MO 63376Call: 636-498-5544Mondays Restorative Yoga: 10-11 a.m.Gentle Chair/Floor Yoga: 11:30 a.m. - 12: 30 p.m. Core Strengthening Yoga: 6:30-7:30 p.m.Tuesdays Open Level Yoga: 6-7 p.m.Open Level Yoga: 7:15-8:15 p.m.Wednesdays Meditation Class: 6:30-7:30 p.m.Thursdays Open Level Yoga: 7-8 p.m.Saturdays Open Level Yoga: 9-10 a.m.

MID-MISSOURIElm Street Yoga904 Elm St. Suite 210, Columbia, MO 65201www.elmstreetyoga.comTuesdays, 1:15-2:15 p.m.Thursdays, 4:30-5:30 p.m.Instructor: Linda LutzCost: $35 for 5 classesClass size limited to six peopleContact: Linda (573) 441-8566 or [email protected]

METRO & SOUTHERN ILLINOISSukha Yoga Center18 South High St., Belleville, IL 62220Instructor: Sarah FraserCost: call for class times/feesContact: Sarah (618) 236-9642Web site: www.sukhayogacenter.comOne-O-One Yoga101 South GrahamCarbondale, IL 62901

Contact: Sarah Miller (618) 457-8186Cost: Call for class times/feesWeb site: www.center101yoga.com

SOUTHEAST MISSOURI PARC Fitness Center2620 N. Westwood Blvd Poplar Bluff, MO 63901 Phone: (573) 686-5985Mondays, 7 - 7:45 p.m.Wednesdays, 6 - 7:30 p.m. (slower paced class)Walk-ins welcome!Instructor: Mindy Matthews

Yoga at the Firm1610 Freedom Dr.West Plains, MO 65775Instructor: Vicki HoganContact: Vicki (417) 293-1184 or the Firm at (417) 257-7800Cost: $40 for an 8-week session

Columbia, MO Yoga & Tai ChiNMSS Office4816 Santana Circle Columbia, MO 65203

Tai ChiMondays: 10-10:45 a.m.Instructor: Mary Cruise

YogaFridays, 11:45 a.m. - 12:45 p.m.Instructor: Linda LutzCost: $35 for 5 classes or $10 per classContact: Kimberly at 1-800-344-4867 or [email protected]

Money Matters: The First Steps to Smart Money Management

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Financial planning is crucial for people with MS and their families. As the disease continues, expenses tend to grow which may bring difficult financial choices. Early planning can help.

Get started: Call us Begin by calling 1-800-344-4867 to connect with an MS Navigator™. This highly trained professional can refer you to service providers who can help you address issues like health insurance, employment and taxes.

Next: Read up One key resource the Navigator will recommend is a brochure called Adapting: Financial Planning for a Life with Multiple Sclerosis.

Full of worksheets, tips, and references, the 72-page publication is an overview of your financial options. The Navigator can mail you a free copy, or you can download it at nationalmssociety.org/financialplanning.

Finally: Talk to a professional You may need more specific information, which means consulting one-on-one with a financial planning professional.

Through the Society’s partnership with the Society of Financial Service Professionals (SFSP), the Financial Education Partners Program provides free personal counseling.

In this program, you receive advice during a telephone session with a volunteer

from SFSP’s membership. These volunteers are certified public accountants, attorneys, or other professionals.

The more honest and open you are the more your advisor can help. Sessions are completely confidential, and the volunteers are not there to sell you anything but to share their financial knowledge.

Be aware that the program cannot help with crisis needs, such as foreclosure assistance. It is not a funding source and offers no programs for indigent care. The idea is to help you forge a workable plan to prevent crises from occurring in the future.

While the advisor can’t serve as a long-term advisor, he or she can get you started toward whatever your financial goals might be.

FREE TAX PREPARATION SERVICESThe IRS will help you prepare tax returns. The online Interactive Tax Assistant answers questions about deductions, eligibility for credit and more. For those who qualify, the IRS’s Volunteer Income Tax Assistance program offers free tax help by certified volunteers. Call 1-800-906-9887. For general information, go to www.irs.gov or the IRS general number, 1-800-829-1040.

CHECK OFF FOR MS ON YOUR

TAX FORM!

On line 45 of Missouri 1040 taxpayers

can donate up to $200 of their refund

by inserting the “Addl Trust fund

code” of 10 with the donation amount

inserted directly below the code.


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Dial. Listen. Learn. The Wellness Network connects people who have an interest in or who are actively participating in exercise programs through a monthly teleconference. Upcoming topics include:•March24,Zumba!•April28,DietandNutrition•May26,AdaptiveDevices•June23,AlternativeMassageTherapy

These monthly calls are an opportunity to share ideas and encouragement about exercise and include special guest speakers.

The teleconferences are facilitated by Toni Kodner, a volunteer with extensive knowledge of MS and wellness, and are held from 7-8 p.m.

The Wellness Network is free and provides resources to a wide variety of people with MS of all abilities. It is also helpful to those who are new to seeking out wellness opportunities and need some guidance and direction.

If you are interested in becoming a member of the Wellness Network, please call 1-800-344-4867 or visit our website to register for the monthly calls.

Getting to know the facilitator, Toni Kodner:Toni Kodner has been living with MS for over 20 years. She is very physically active and currently takes yoga classes two days per week and is dedicated to her own home exercise program. She volunteers weekly at the Chapter as a therapeutic exercise volunteer.

Wellness Network

Mark your calendars on every second Monday of the month for the Midwest Teleconference Series. The series topics from March through June are:Know Your RightsPart I: Standing Up for Yourself Speaker: Julie BrinkhoffAssistant DirectorGreat Plains ADA Center Date/Time: March 14, 2011, 7-8 p.m. Know Your RightsPart II: Taking Control of Your Healthcare Speaker: Pat Kennedy, RN, CPN, MSCNNurse Educator, Programs AdvisorCan Do Multiple SclerosisDate/Time: April 11, 2011, 7-8 p.m. Intimacy: Preparing for PregnancySpeakers: Dr. Barbara Green, Director, West County MS Center at St. John’s Mercy Medical CenterMichelle Keating, RN Date/Time: May 9, 2011, 7-8 p.m. Navigating Through RelationshipsPart 1: Taking Care of Yourself While Taking Care of OthersSpeaker: Julie BrinkhoffAssistant DirectorGreat Plains ADA Center Date/Time: June 13, 2011, 7-8 p.m.

Midwest Teleconference Series




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MARCH 20113 New Connections Social Gathering, Washington, MO14-20 MS Awareness Week14 Midwest Teleconference Series14 Talk MS Meet & Greet, Hannibal, MO24 Wellness Network26 MS Wellness Fair, St. Louis, MO

APRIL 20112 Walk MS – Carbondale, IL4 Carepartner Teleconference7 New Connections Social Gathering, Jefferson City, MO10 Walk MS – Cape Girardeau, MO11 Midwest Teleconference Series13 Young Professionals Meeting16 Walk MS – Arnold, MO; Clayton, MO; Columbia, MO;

Edwardsville, IL; Eureka, MO; Godfrey, IL; Millstadt, IL; Moberly, MO; St. Peters, MO; Troy, MO

21 Walk MS – Steppin’ Out for MS Night Walk, St. Louis, MO28 Wellness Network30 Spring Rendezvous, Grafton, IL

MAY 20111 Spring Rendezvous, Grafton, IL1 Bike MS Kickoff Ride, St. Louis, MO5 Women On the Move Luncheon, St. Louis, MO7 Mud Run MS9 Midwest Teleconference Series14 Bike MS Kickoff Ride, Columbia, MO 20 Young Professionals Night on the Greens21 Family Evening at Grant’s Farm, St. Louis, MO26 Wellness Network

JUNE 20113-5 Challenge Walk MS, St. Charles County, MO4 Family Evening at the Ballpark, Marion, IL6 Carepartner Teleconference8 Young Professionals Meeting11 Family Evening, Columbia, MO13 Midwest Teleconference Series18 Progressive MS Symposium23 Wellness Network25-26 Relationship Matters, Cape Girardeau, MO

Chapter Calendar

Contact Us atNational MS SocietyGateway Area Chapter1867 Lackland Hill ParkwaySt. Louis, MO 63146314-781-9020 or 1-800-344-4867www.gatewaymssociety.org

MS Connection © 2011A quarterly magazine published by the National Multiple Sclerosis Society, Gateway Area Chapter.

Chapter President • Phyllis RobshamNewsletter Editor • Joe Cavato Writers • Dr. Jagannadha Avasarala • Joe Cavato • Kim Fitzsimmons • Dan Friedman • Joe Pollack • Tim Roccia • Nick Rosinia • Sandy Sherman • Stephanie Walgamott NOTICE: The Gateway Area Chapter of the National Multiple Sclerosis Society is proud to be a source of information about multiple sclerosis. Our comments are based on professional advice, published experience, and expert opinion, but do not represent therapeutic recommendations or prescriptions. For specific information and advice, consult a qualified physician. The National Multiple Sclerosis Society does not endorse products, services, or manufacturers. Such names appear here solely because they are considered valuable as information. The National Multiple Sclerosis Society assumes no liability whatsoever for the contents or use of any product or service mentioned.

Proud member of

PUBLICATION OF THE NATIONAL MULTIPLE SCLEROSIS SOCIETY


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Program Registration

Name _______________________________

Address ______________________________

___________________________________

City/State/Zip __________________________

Home phone ___________________________

Work phone ___________________________

E-mail ______________________________

Guest Names and Ages _____________________

___________________________________

Does anyone in your party use a mobility device? ______

Would you like to request a fee waiver? ___________

Do you prefer a vegetarian meal? _______________

Date of Diagnosis ________________________ Payment Information( ) Fee waiver requested( ) Check enclosed payable to MS Society( ) Visa ( ) MasterCard ( ) Discover ( ) Am. ExpressCard # ___________________________Expiration Date: ______________________

Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440

To register online go to www.gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend.

[ ] Know Your Rights Part I Teleconference March 14, 2011 COST: FREE PROGRAM[ ] New London, MO Meet & Greet March 14, 2011 COST: FREE PROGRAM[ ] Wellness Network - Zumba! March 24, 2011 COST: FREE PROGRAM[ ] MS Wellness Fair, St. Louis, MO March 26, 2011 COST: FREE PROGRAM[ ] CarePartner Teleconference April 4, 2011 COST: FREE PROGRAM[ ] Understanding the Affordable Health Care Act for people with MS, friends and family April 6, 2011 COST: FREE PROGRAM[ ] Understanding the Affordable Health Care Act for health providers April 6, 2011 COST: $25[ ] Know Your Rights Part II Teleconference April 11, 2011 COST: FREE PROGRAM[ ] New Connections, Jefferson City, MO April 12, 2011 COST: FREE PROGRAM[ ] Wellness Network - Diet and Nutrition April 28, 2011 COST: FREE PROGRAM[ ] Spring Rendezvous at Pere Marquette April 30 - May 1, Grafton, IL Registration Deadline: April 18 COST: $60 before April 13, $70 after April 13[ ] Intimacy: Preparing for Pregnancy Teleconference May 9, 2011 COST: FREE PROGRAM[ ] Family Evening at Grant’s Farm May 21, 2011 COST: $10/adult, $5 child by May 2 COST: $20/adult, $10 child after May 2[ ] Wellness Network - Adaptive Devices May 26, 2011 COST: FREE PROGRAM[ ] Family Evening at the Ballpark, Marion, IL June 4, 2011 COST: FREE PROGRAM[ ] CarePartner Teleconference June 6, 2011 COST: FREE PROGRAM[ ] Family Evening, Columbia, MO June 11, 2011 COST: FREE PROGRAM[ ] Navigating Through Relationships Part 1: Teleconference June 13, 2011 COST: FREE PROGRAM[ ] Progressive MS Symposium June 18, 2011 COST: FREE PROGRAM[ ] Wellness Network - Alternative Massage Therapy June 23, 2011 COST: FREE PROGRAM[ ] Relationship Matters Enrichment Course, Cape Girardeau, MO June 25-26, 2011 COST: $40/COUPLE

NON-PROFITORGANIZATION

U.S. POSTAGEPAID

Permit No. 3914St. Louis, MO

Gateway Area Chapter1867 Lackland Hill ParkwaySt. Louis, MO 63146

Gateway Area Chapter1867 Lackland Hill ParkwaySt. Louis, MO 63146


happeningsmaking the most of life and the least of MS

In this issueMS Wellness Fair . . . . . . . . . . . . . . . . 19CarePartner Teleconference . . . . . . . . 19Affordable Care Act . . . . . . . . . . . . . . 20New Connections . . . . . . . . . . . . . . . 21Spring Rendezvous . . . . . . . . . . . . . . 21Family Evening at Grant’s Farm . . . . 22Family Evening at the Ballpark . . . . . 22Family Evening, Columbia . . . . . . . . 23Progressive MS Symposium . . . . . . . 23Relationship Matters . . . . . . . . . . . . . 24MS Learn Online . . . . . . . . . . . . . . . . 25Living Well With MS . . . . . . . . . . . . . 26Personal Training & MS . . . . . . . . . . . 27Talk MS Groups . . . . . . . . . . . . . . 28-29Therapeutic Recreation . . . . . . . . 30-31Money Matters . . . . . . . . . . . . . . . . . 32Wellness Network . . . . . . . . . . . . . . . 33Midwest Teleconference Series . . . . 33Chapter Calendar . . . . . . . . . . . . . . . . 34 Registration Page . . . . . . . . . . . . . . . . 35Your Source for Knowledge, Wellness, and Support Spring 2011

The cold winter is finally behind us and spring is here. With it come great family programs (pgs. 22-23) and the always popular Spring Rendezvous (pg. 21). The Chapter will play host to another getaway at the Relationship Matters program (pg. 24).

In addition to all these programs at great locations, the Chapter has resources you can access from your home like the CarePartner Teleconference (pg. 19), the Wellness Network and Midwest Teleconference series (pg. 33) and MS Learn Online (pg. 25).

Spring is also a great time to get out and get moving. Read about how people living with MS have benefitted from personal trainers (pg. 27) and there is sure to be a Walk MS event near you (see center spread).

We are always adding programing so be sure to go to www.gatewayMSsociety.org gPrograms & Services g Program Calendar for the latest updates.

ms connection: 2011 spring edition

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