MileStones Gala May 14, 2014presented by

2014 Events pages 16-19

Family Matters page 6

Exercise and MS pages 11 & 12

Volunteers page 15

MOVING TOWARD A WORLD FREE OF MS SUMMER 2014

GREATER NEW ENGLAND CHAPTER

MARATHON STRONG

Inside MS Connection:

HonoringDavid Meeker, MD

Visit www.worldmsday.org

Share a One day wish and help raise awareness of MS. “One day MS won’t be a problem.”

2 JOIN THE MOVEMENT: MSnewengland.org

Volunteer support is absolutely essential to the operation and success of the Greater New England Chapter. Among our wonderful volunteers are our Chapter Trustees, a group of 38 individuals who take time from their careers to provide strategic leadership and to develop essential resources for the chapter to thrive and grow. In my new role as Chapter President, I’m working even more closely with the Board, and wanted to share with you some of our work together and how it directly affects our ability to serve people with MS.

In addition to the regular quarterly Board meetings, each year our Trustees set aside an afternoon from their own jobs to focus on issues that will directly impact the success of the chapter over the coming year. With their professional and personal experience in mind, the Trustees are assigned to work groups on select topics and are charged with determining action steps to produce results.

One of the groups addressed the topic of assisting the new Chapter President. Although I have been on staff for 12 years, Trustees were asked to define what changes would naturally occur because of my new role as Chapter President, and in what way they can support that transition. The discussion also asked me to contemplate the ways that I can enhance my relationships with Trustees. One outcome was a series of informal gatherings to gain a greater understanding of each other’s perspective.

Another group was asked, “In what ways can Trustees expand existing and build new corporate relationships?” Trustees in this group considered the resources and support they would need to be successful. And they reviewed what has worked in the past, what has not worked, and how efforts can be improved. Among the intended outcomes are generating more and greater corporate support of fundraising events and program activities.

The discussion in each group was robust and productive, and reflected deep engagement from each Trustee. In May, the Governance Committee will review the recommendations. Implementation is planned to roll out at the Board’s June meeting. The work of our Trustees has always impressed me. Participating in the retreat now as Chapter President only reaffirms my commitment to create a world free of MS. The spirit of our Board truly reflects the strength of all volunteers in the Greater New England Chapter, and I am very grateful to be part of such a wonderful organization.

Lori Espino President

Publication of the National Multiple Sclerosis Society Greater New England Chapter

101A First Avenue Waltham, MA 02451-1115 800-344-4867 www.MSnewengland.org facebook.com/MSnewengland tweet @ MS_newengland youtube.com/MSnewengland

Chairman • Douglas E. Bryant President • Lori Espino MSConnection Editor • Steven R. Sookikian Publications Manager • Wendy Feign

The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The NMSS assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The NMSS recommends that all questions and information be discussed with a personal physician. The NMSS is dedicated to mobilizing people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

Multiple sclerosis interrupts the flow of information between brain and body and can stop people from moving forward in their lives. With the help of people like you, the National MS Society addresses the challenges of each person whose life is affected by MS and helps them stay connected to the great big moving world.

© 2014 National Multiple Sclerosis Society, Greater New England Chapter

From the President

Moving Toward a World Free of MS

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Top Stories

OUR WEBSITE HAS A NEW LOOK!CONNECT AT: www.MSNEWENGLAND.org

Sort by date, alphabet, or location.

To find program registration, services, and on-line forms, click Find Resources and Support

To get to the Calendar, click About this Chapter, then click, Calendar

Search for programs and other information under Find Resources and Support on the left. In that view you can sort by date, alphabetically, or by location, and filter by format or audience. Enter your ZIP Code under Location to get a list of programs and services near you.

4 JOIN THE MOVEMENT: MSnewengland.org

News

MS Awareness Week March 3-9, 2014The goal of MS Awareness Week (MSAW) is to increase awareness

about the disease and about the programs and services of the National MS Society.

Following are just a few of the activities in which the Society and its members engaged.

MS Awareness Bookmarks: Eighty-five public libraries and a dozen bookstores handed out our bookmarks.

Self-Help Groups: Groups were challenged to participate in awareness events.

Flags of Hope: One orange flag is planted to represent each individual living with MS. We planted 3,000 flags at the Auburn Mall in Auburn, Maine.

Light it Up!: In Boston, the Zakim Bridge, South Station, TD Garden, and the Prudential Building were lit in orange, as well as the Crosspoint Building in Lowell.

Orange Ribbons: At Settlers Green Outlets in North Conway, New Hampshire, retailers wore orange ribbons and gave out discount coupon books.

Authors’ Luncheon: In Burlington, Vermont, nearly 300 attended this new event.

Channel 5 EyeOpener: Our office staff greeted morning viewers on the ABC affiliate. n

MEDICARE IMPROVEMENT STANDARD For decades, Medicare beneficiaries – particularly those with long-term or degenerative conditions and those who need rehabilitation services – have been denied necessary care based on the Improvement Standard: on the grounds that their condition was stable, chronic, or not improving, or that the necessary rehabilitative services were for "maintenance only."

In January 2013, a Medicare Improvement Standard case (called Jimmo vs. Sebelius) was approved and was immediately effective for potential claimants. The ruling meant that coverage of skilled services from a health care professional was determined by whether the services are needed, not if the beneficiary will “improve” if they receive these services. This applies to nursing and therapy services provided both in home and skilled nursing facility settings that are received under Medicare A and B.

January 24, 2014 marked the beginning of the “re-review” process created under the Settlement. This process allows Medicare beneficiaries who were denied coverage for skilled services received to request that their case be “re-reviewed” under the new guidelines. To qualify for re-review, all of the following criteria must be met:

• You are a Medicare beneficiary

• You received skilled nursing or therapy services in a skilled nursing facility, home health, or outpatient setting

• Services you received were denied by Medicare because you were not improving or no longer had the potential to improve

• Your failure to improve was the only reason for denying all or part of your claim

• The claim was not eligible for further appeal between January 18, 2011 and January 23, 2014

• You paid or still owe money for the services that were denied by Medicare

If you aren’t sure if you meet all of these criteria, you should still submit a request for re-review.

Although the Settlement Agreement rejects the Improvement Standard, it does not guarantee coverage. The case was not intended to – nor could it – eliminate the need to prove that care is medically reasonable and necessary.

If the claim had a final denial by January 24, 2013, the re-review request must be submitted by July 23, 2014. If it was finalized between January 25, 2013 and January 23, 2014, the deadline is July 23, 2015.

The form to request a re-review is available on both the Centers for Medicare and Medicaid Services website and on the Center for Medicare Advocacy website. Both are listed below. The Center for Medicare Advocacy also offers a Frequently Asked Questions page. n

www.q2a.com/Portals/0/JIMMO_REREVIEWFORM-508.pdf

www.medicareadvocacy.org/medicare-info/improvement-standard/improvement-standard-update-cms-revises-medicare-policy

5TOLL FREE NUMBER 1 800 344 4867

Moving Toward a World Free of MS Money Matters

WORKING WITH INCENTIVESBY STEVEN W. NISSEN, MS, CRC

Effective January 1, 2014, recipients of Social Security Disability Insurance, or SSDI, received a 1.5% cost of living adjustment (COLA) to their monthly benefit check. However, COLA also affects certain work incentives that recipients often turn to when attempting to return to work.

THE TRIAL WORK PERIODFor individuals who receive SSDI, the trial work period, or TWP, allows that person to test his or her ability to work while retaining full benefits. The TWP comprises nine months, which do not have to be consecutive, in a 60-month time period. In 2014, the amount that someone can earn to count toward the TWP has been increased to $770 per month gross income. However, regardless of how much you earn during the TWP, you will continue to receive your full financial SSDI benefit.

SUBSTANTIAL GAINFUL ACTIVITYOnce you have completed the TWP, you will no longer meet the Social Security Administration’s (SSA) definition of disability if you continue working and earning a significant amount of money. However, the Substantial Gainful Activity (SGA) is another work incentive that may help people transition back to work. In 2014, the amount you can earn per month toward the SGA has been increased to $1070 per month gross income. For people deemed legally blind by

the SSA, the SGA is now $1800 per month. If your income exceeds the SGA limit, then SSDI benefits may cease.

DO YOUR RESEARCHBefore doing anything that could jeopardize your benefits, do your research. Contact your local Work Incentive Planning and Assistance (WIPA) program to speak with a Community Work Incentive Coordinator, who can discuss these work incentives, as well as others including Impairment-Related Work Expenses, Ticket to Work, and Expedited Reinstatement of Benefits.

Visit www.socialsecurity.gov/work/WIPA.html for information about WIPA, or find contact information for local programs at www.choosework.net/resource/jsp/searchByState.jsp. Also call an MS Navigator at 1-800-344-4867 for your local WIPA program.

You can also learn more about work incentives by participating in a Work Incentive Seminar Event (WISE) online webinar. Visit www.choosework.net/wise for more.

Get informed and determine if work incentives can work for you. n

Steven W. Nissen, MS, CRC, is the Society’s senior director of Employment & Community Programs in Washington, D.C.

EMPLOYMENT AND BENEFIT RESOURCESNational MS Society Publications:

` Information for Employers

`Adapting: Financial Planning for a Life with MS

`ADA and People with MS

`Know Your Rights: A Legal Guide for People Living with MS

`Should I Work

DVD and Workbook:

Employment Matters: Managing MS in the Workplace

The workbook and videos are available for download on the employment page at www.nationalmssociety.org . Both the DVD and workbook are available upon request by contacting an MS Navigator at 800-344-4867.

Online:

` Job Seekers Support Group

Join the monthly tele-job club and share with others living with MS your job search efforts, what has worked for you, as well as resources and general support. The last two group calls are June 26 and July 31 from 1:30-2:30 p.m. Space is limited so register early. To register, e-mail EmploymentQuestions@nmss.org or call 212-453-3218

`Ask the Employment Specialist

Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation, or are you thinking about returning to work? If so send your employment issues questions to: EmploymentQuestions@nmss.org. An Employment Specialist will respond within 48 hours.

More resources at www.nationalMSsociety.org

MANAGINGMS IN THE WORKPLACE

EMPLOYMENT MATTERS

6 JOIN THE MOVEMENT: MSnewengland.org

Family Matters

Relationship Matters: 8 Hours to a Lifetime of Relationship Satisfaction

Couples who are living with MS often find it difficult to make their relationship a priority. This in-person workshop is designed to address the needs of couples living with MS who experience these and other issues through effective communication and listening skills, problem solving and conflict resolution skills, ways to break old patterns and manage relationships proactively. Two opportunities for this great couples program coming this fall.

SAVE THE DATES!

September 6 & 7 Basin Harbor Club, Vergennes, Vermont

September 26 & 27 Hilton Garden Inn, Bangor, Maine

$50.00 per couple SPACE IS LIMITED

Watch your email and mailbox for registration information coming in July!

Mike and Jim Derick

MY DAD, MY HEROBY MICHAEL DERICK

When I was a kid, I viewed the world with a certain naiveté, as time was measured in hours or days between pick-up wiffle ball or football games. I looked at my parents as flawless human beings who had an answer for everything, including, but not limited to, the awkward apology to the teacher whose class I disrupted, or how to admit defeat and congratulate my opponent after a little league championship loss. In effect, they had superhuman powers.

In August of 2007, my parents sat my brothers and me down and told us that my father, Jim, was diagnosed with multiple sclerosis. My reaction was confusion. We knew nothing about the disease. Selflessly, my father told us that no significant data exists to show that there is a genetic component to the disease. In the weeks that followed I could see the fear in his eyes. Even Superman has his kryptonite.

After countless trial and error with medications, and conversations with doctors, pharmaceutical sales reps, and friends and family, my dad finally began to feel pretty good, all things considered. One Monday, I accompanied my father to his infusion at Brigham and Women’s Hospital in Boston. Upon our arrival, we were greeted by nurses, administrative staff, and doctors with smiles and laughter, and I felt a sense of pride. We sat in the infusion room as the nurse prepared his medication, and for the next four hours we talked and traded rounds of Angry Birds.

In the year that followed, I quickly realized that what began as my father’s weaknesses – his physical limitations and sheer exhaustion – in fact became his strengths. I began to see a fire in my father’s eyes, and hear talk of aggressively pursuing fundraising to beat this damned disease. We started a walk team in Easton. The experience was inspiring and fueled the fire. Somehow, this terrible disease had sharpened his focus and invigorated a passion for life in all of us.

In August of 2010, I registered for a walk on Cape Cod. I knew two things: first, the funds would help my Dad and everyone affected by MS; and second, it was three days long. I asked my girlfriend to join me and she graciously obliged. Missing a weekend on my college campus was a rarity for me, but I decided to do it, despite the fact that we were missing Bryant’ University’s biggest weekend of the fall semester. What unfolded truly changed me as a person. We returned blistered, bruised, but most importantly, inspired.

I demanded that we register for the 2011 Challenge Walk.

The following September, I found myself walking alongside my Dad on the Cape Cod Rail Trail, blaring Bruce Springsteen’s “Wrecking Ball,” my Dad’s personal anthem.

From that point forward, our already great relationship grew into a bond that could never be broken. I realized that he and I need

these conversations.

Now, I am tremendously proud to be a member of a community of people who are all touched by MS. Our Challenge Walk team, The Lombardi Party, broke the $100,000 fundraising mark in 2013. My Dad, Kevin Lombardi, and others established the Multiple Sclerosis Community Foundation, which raises money for families touched by MS.

People often ask what MS has done to change my life. I’ve learned that the better question is what have I done to change MS? I have a role model and confidant who I strive to be like, and I am so fortunate to call him my Dad. There will be a day where we no longer need to raise money for this disease. Bring on the wrecking ball. After all, we have a superhero fighting for our cause. n

7TOLL FREE NUMBER 1 800 344 4867

Moving Toward a World Free of MS Living with MS

LEARN TO BE FALL FREEBY KELLY JO TULLBERG AND JENNIFER PHILP

Are you feeling more unstable on your feet, using a wall, or furniture to help with balance? Does the thought of going down a flight of stairs make you especially nervous? Do you cancel plans because you are afraid you might fall in public?

Society blogger Julie Stachowiak, PhD, an epidemiologist who also lives with multiple sclerosis, understands how you feel. “Falls separate us from ‘healthy people’ in a very literal way,” she writes at www.MSConnection.org/blog. “We are completely alone in that moment when we hit the floor.” However, research shows that many individuals living with MS experience falls.

A 2011 survey among adults diagnosed with MS reported that 60% of individuals have fallen, with many of them experiencing multiple falls in the past six months. Besides the physical impact, falling can lead to a loss of independence, loss of confidence, and social isolation brought on by both physical limitations and fear of future falling.

There are several reasons people with MS may fall. Incoordination and weakness may contribute to fall risk, as can dizziness or vertigo–all common MS symptoms. Drop foot, another MS symptom, can cause someone to stumble on flat surfaces or trip when stepping up a curb or stair. And the neurological damage caused by MS can affect how the brain perceives the movement and position of the body, which affects in turn how quickly someone reacts to an obstacle. Furthermore, other factors, such as clutter, poor

lighting, uneven surfaces, and medications with side-effects such as drowsiness also increase the risk of falling.

To help people living with MS address falling issues, the National MS Society developed Free From Falls, a comprehensive fall prevention program. In the 8-week program, participants:

n Learn what can contribute to falls

n Identify strategies to use to prevent falls

n Develop a fitness plan to improve balance endurance, strength and mobility

n Increase their confidence about how to avoid and manage falls, if they occur

Call an MS Navigator at 1-800-344-4867 to request the DVD and accompanying brochure, and to find a fall prevention program near you. Visit www.nationalMSsociety.org/freefromfalls to learn more about fall prevention. And remember that you are not alone. n

Kelly Jo Tullberg and Jennifer Philp are Society staff members.

Would you like to help plan a program in your area? Call Amber Stalker at 800-344-4867, option 2

Fall Prevention Resources AvailableFree From Falls DVD along with the brochure entitled:

Minimizing Your Risk of Falling: A Guide for People with MS.

These materials were created to:

n Increase awareness of fall risk factors n Offer tips and strategies to minimize risk n Encourage participation in a fall prevention program

Programs

JOIN THE MOVEMENT: MSnewengland.org8

Because MS affects more than just the individual diagnosed, our programs welcome friends and family members unaccompanied by a person with MS.

Teleconference: The Disease Modifying Therapies:

Your Treatment Options Wednesday, June 11, 7 - 8 p.m.

Learn about new oral medications and current treatment choices for MS.

Speaker: Ilana Katz Sand, MD, Assistant Professor and Associate Medical Director of Corinne Goldsmith Dickinson Center for MS at Mount Sinai Medical Center .

Can Do MS Jumpstart® in MotionSaturday, July 19, 8:30 a.m. - 3:15 p.m.

Sheraton Monarch Hotel Springfield, Mass.

A free one-day program where participants will gain knowledge on goal setting, exercise and emotional well-being. This program also welcomes support partners who will participate in sessions specific to them. Get a JUMPSTART on your MS, and join us as we explore an interactive and multi-disciplinary approach to MS care management!

Topics include: Invisible Symptoms with Pain Management, Staying Mobile as a Family, Mood Changes, Support Partner Session.Register online at www.mscando.org/INMOTION or call 800-367-3101

**Participants and support partners are accepted into the JUMPSTART IN MOTION Program on a first come, first served basis.

In collaboration with the National MS Society, Greater New England Chapter. This program is made possible thanks to the generous support of Acorda Therapeutics, Inc.

Café Con Leche: Conversación y Apoyo para Personas Viviendo

con la Esclerosis Múltiple (EM) Un grupo telefónico, totalmente en español.

Aproveche la oportunidad para hablar de sus preocupaciones y conozca a otras personas que entienden su situación. Además, invitaremos a expertos de diferentes ramas de especialidad en la EM para conversar sobre temas importantes para Ud. Para más información o para inscribirse llame al 1-800-344-4867, opción 3.

Beyond Diagnosis: Moving Forward Have you or a family member been diagnosed with MS within the last five years? Do you want to meet others also recently diagnosed? An MS expert presents information on MS, answers your questions, and facilitates the discussion. Refreshments and socializing will follow the presentation. Advanced registration is required.

Two locations:Brockton, Massachusetts

Saturday, June 21, 4:00 - 6:30 p.m. (dinner provided)Speaker: Ranbir Dhillon, MD

Register by June 13, 2014

W. Lebanon, New Hampshire:Saturday, June 28, 10:30 a.m. - 12:30 p.m.

Speaker: Christine St. Laurent, MS, RN, MSCN

Register by June 20, 2014

Ask the DoctorJoin us on picturesque Martha’s Vineyard!

Featuring Ann Cabot, DO, Neurology Associates and the MS Clinic at Concord Hospital, Concord, NH.

Dr. Cabot will discuss current treatments and promising therapies in the research pipeline. Dr. Cabot is involved in MS research and specializes in the care and treatment of people with MS. Following her presentation, Dr. Cabot will answer your questions about MS. Refreshments provided.

Tuesday, July 22, 4:30 p.m. - 6:00 p.m. West Tisbury, Martha’s Vineyard

Register by July 18

Teens With MS Phone Support GroupThis monthly group offers teens (ages 13-19) with MS an opportunity to openly share experiences, coping strategies, concerns about the new diagnosis, school or the impact of MS on the family. Free.

Sundays • 5:30 – 7:00 p.m.

Register for information on upcoming dates: www.MSnyc.org or 1-800-344-4867, opt 1 or moyra.rondon@nmss.org

Note: Parental consent is required for teens under 18.

To register for our programs, call 800-344-4867 or visit us at MSnewengland.org

Connections

9TOLL FREE NUMBER 1 800 344 4867

Moving Toward a World Free of MS

MAX MICHAUDWhat is my “connection” to the Greater New England Chapter of the National MS Society? First thing that comes to mind is the self-help group that I have been leading since November, 2010. Our group meets once a month, year round. We named the group, WINSLOW WINNERS Self-Help Group, and we live by that motto. Meetings are positive, supportive, respectful, and alive, and we “connect” with each other in a variety of ways, such as sharing within the group and helping out in the community. My thought is, “Yes, we have MS and we have our own issues, but there is always someone we can help.”

Over the years I have held several jobs. My most recent was as a Certified Occupational Therapy Assistant working with adults with disabilities. I was known as “Sarge” or the “Slave Driver,” as I live with one motto, Can’t is NOT in my dictionary. In 2007, per my neurologist’s recommendation, I had to stop working. It had been recommended two years prior, but I wasn’t ready to slow down. Even now, I’m always doing something: volunteering, training, or chores around the house.

I “connect” by taking advantage of community events and services at every opportunity. Whether an in-person program or a teleconference, it is all good information. I am able to share this with my group and other members in my “MS network.” This year I “connected” with State Legislators in Augusta at the Maine MS Statehouse Day. I “connect” by participating in events. Whether it was Bike or Walk, I was there. As participating became physically frustrating, I ramped up my volunteering for these events. These events also give me another way of “connecting.”

My MS has been my survival and I live this way by connecting with others I meet through my actions and by focusing to live in the LIGHT. I know that there are many solutions to hurdles that we encounter through our journey with MS. Surviving through my varied way of “connecting” is my way. I try to live each day with a balance of work, rest, and play to maintain a healthy quality of life. “Connecting” has always been there, it is who I am. It just HAPPENS. n

Max is from Northern Maine and is a veteran Self-Help Group Leader. Max talks about our programs and events in her community and makes sure that the people she connects with know how they can be involved. Max makes her connections count!

THE MAKING OF AN MS RESEARCHERWhen Faatima Khan was a high school freshman in 2008, she randomly chose multiple sclerosis as the topic for a research project. A week after she turned it in, her mother told her the news that she had been diagnosed with MS.

“I had just spent months listening to all these stories about people with MS,” Khan remembers. “It was overwhelming.” But the Hartland, Wisc., resident soon began volunteering at the Society, helping with data entry, writing thank-you cards, preparing participant bags for events, and registering Bike MS participants. “I liked going to the office and seeing familiar faces,” she said.

In 2011, Khan applied for—and received—a National MS Society Scholarship to help her pursue a college education. She is currently double majoring in biology and Spanish at the University of Wisconsin-Madison with the goal of going to medical school. Despite her busy schedule, she also tutors bilingual students at Madison West High School and is on the board of the Muslim Student Association.

DISCOVERING MS RESEARCH

In 2013, one of Khan’s classes required her to work in a laboratory and write a paper on the experience. She searched the college’s website for MS researchers, and found Dr. Michael Carrithers, MD, PhD, who had published a paper in the Journal of Neuropathology and Experimental Neurology about a potential pathway to a new treatment for MS.

Dr. Carrithers acknowledges how important the contributions of young researchers like Khan are to advancing MS research. “Faatima has been a great addition to my lab,” he explains. “It is the best mechanism for students to become interested in pursuing a research career in the future.”

“I feel like I’m doing something,” Khan agrees. “Knowing that he’s taking the time to research MS is something that I find exciting. And we’re making progress.” n

Faatima Khan, young MS researcher

Programs

JOIN THE MOVEMENT: MSnewengland.org10

No matter where you live, you can access programs and services by telephone and the internet.

Help is a Call Away * 800-344-4867No matter where you live, if you have questions about multiple sclerosis, an MS Navigator can help you. Submit a request to generalmailbox@nmss.org. Please include your name, mailing address, and phone number. Or call us toll-free, Monday-Friday, 9 a.m. to 5 p.m. Find resources for all of the following, and much more!

n REFERRALS to Neurologists, MS Clinical Centers, Legal Services, Mental Health Providers, Allied Health Professionals, Housing Needs, Self-Help and Support Groups

n RESOURCES for Medical Equipment, Home Modifications, Transportation, Independent Living, Financial Assistance

n PROGRAMS in Home Care and Day Care, Recreation and Wellness

n COUNSELING for Employment, Insurance, and Public Benefits

Keep S’myelinKeep S’myelin is published quarterly by the National MS Society for children 5 - 10 years old and their relatives who have MS. Games, fun, and information. To sign up, call the chapter or email: keepsmyelin@nmss.org.

MSConnection.orgWhat if everyone who cares about MS could join together in one place?

Share what you know at www.MSConnection.org. When you join the National MS Society’s newest online community you’ll be able to make meaningful connections when, where and how you want, with easy access to the best content and resources the MS community can bring you. You can share information about the topics that are most important to you, connect with people, and have expert MS information and opinions right at your fingertips. Join today!

No computer? ≈ MSFriends is a telephone support program. Call toll

free: 866-673-7436

≈ The Online Peer Connections Program has a telephone component for individuals with limited computer access: 303-698-6100 ext. 15169.

MS Learn OnlineWebcasts and podcasts are pre-recorded and may be played at any time

MS Learn Online is an educational webcast series featuring three channels of programming —

n Feature Presentation: Experts present on topics such as Research, Treatments, Relationships, Employment, Insurance, Staying Well, and Living with MS.

n Daily Minute: A short informational clip about MS. n Q&A: Every week, MS Learn Online experts answer a

new viewer question.

Transcripts (.pdf format) and podcasts (.mp3 audio format) are available for most programs. Visit: nationalMSsociety.org > Multimedia Library > Webcasts & Podcasts

A series of online classes that will help you boost your decision-making power.

It’s your MS and it’s your medical care, but sometimes it can feel like other people are making your decisions for you. These classes keep you in the driver’s seat.

n Be an active member of your healthcare team

n Understand your doctor’s medication recommendations

n Improve your health and well-being

n Articulate the reasoning behind your decisions

n Improve communication with your healthcare providers

n Use sound reasoning to make decisions about your health

n Decide whether participation in clinical trials is right for you

This course is offered as an online program so you can access the class when and where it is most convenient for you. 800-344-4867 or www.nationalMSsociety.org.

Home LINKSOffers case management services to help identify problems and stabilize client and family during times of difficulty or crisis. To learn more, call 800-344-4867 or email gnehomelinks@nmss.org.

Research

11TOLL FREE NUMBER 1 800 344 4867

NEW RESEARCH ON WELLNESS AND LIFESTYLEOne of the National MS Society’s priorities is to drive research on wellness and lifestyle, where advancements could make a difference in the quality of life for people living with multiple sclerosis. These studies are also offering clues to risk factors that could help determine who is more likely to develop MS, which could lead to preventive strategies to end MS forever.

EXERCISE AND MEMORY

Aerobic exercise has been shown to increase the volume of an area of the brain associated with memory, called the hippocampus, so Victoria Leavitt, PhD, of the Kessler Foundation Research Center in West Orange, N.J., and her colleagues conducted a small pilot study to determine the effects of aerobic exercise on two people with MS who experienced memory impairment.

One person was randomly assigned to an aerobic exercise program involving stationery cycling, and the other was assigned to a non-aerobic exercise program of stretching.

Each program consisted of three 30-minute sessions per week for 12 weeks. Before and after the program, MRI images were taken to assess the size of the hippocampus; functional MRI images were taken to assess real-time brain activity; and memory assessments were also conducted.

The researchers found that aerobic exercise resulted in a 16.5% increase in hippocampal volume, a 53.7% increase in memory and a significant increase in hippocampal activity. No significant changes occurred in the person doing nonaerobic exercise. (Neurocase, published online October 4, 2013) These preliminary results need further confirmation, but are in line with an emerging body of evidence showcasing the potential of exercise to provide broad benefits for people with MS. The Society is funding several studies exploring the potential benefits of exercise, including a trial of aerobic exercise as a strategy to treat cognitive dysfunction. n

To find out more about trials in Maine, Massachusetts, New Hampshire, and Vermont, visit www.nationalMSsociety.org/clinicaltrialsGNE

FINDING SOLUTIONS THAT WILL CHANGE LIVESThe National MS Society pursues all promising paths to uncover solutions for EVERYONE with MS, wherever those opportunities exist. Research going on right now on lifestyle and wellness may uncover substantial results that will help people with MS live their best lives.

The Society now funds more than 30 projects in the area of rehabilitation research, testing these and other solutions so that people with MS can live their best lives every day:

• New strategies for balance control• Methods for improving lung function• Cycling regimens to reduce spasticity• Exercise regimens for people with advanced MS• Home-based exercise to improve mobility and

cardiovascular health• New strategies for improving cognitive function and

psychosocial wellness

We are making progress — here are some recent reports:• Weight training improves walking and quality

of life: Women participating in a small study of progressive resistance (weight) training improved significantly in walking. The Society-funded study used

in-depth interviews of participants to determine full effects on quality of life, which improved significantly.

• Balance/eye movement training improves fatigue: A 6-week balance and eye movement-focused exercise program improved balance, reduced fatigue, and reduced disability due to dizziness or disequilibrium in a group of people with MS. The results lasted for at least 4 weeks following supervised training. The study was funded by a pilot research grant from the Society.

• Strong evidence that cognitive rehabilitation improves learning and memory: Researchers at Kessler Foundation in New Jersey reported that a specific type of memory training improves learning in people with MS. Effects lasted for 6 months after training ended, and also benefits other aspects of quality of life. The Kessler team is training rehab researchers through the Society’s mentor-based fellowship program.

The National MS Society pursues all promising paths to uncover solutions for EVERYONE with MS, wherever

those opportunities exist. Research going on right now on on lifestyle and wellness may uncover substantial results that will help people with MS live their best lives. n

Research

12 JOIN THE MOVEMENT: MSnewengland.org

IMPACTING MS THROUGH EXERCISEBY BRENDAN WALDOCH

As he tells it, Robert Motl, PhD, didn’t set out to study multiple sclerosis.

Dr. Motl, who is currently associate professor at the University of Illinois at Urbana-Champaign in the Department of Kinesiology and Community Health, began his graduate studies with a focus on high-end exercise physiology, working almost exclusively with elite athletes. But after studying the effects of exercise on the central nervous system, he found a connection between his studies and MS research.

“We applied for a grant from the National MS Society to study the effect of single sessions of exercise on spasticity and spinal reflexes in people living with MS. We were awarded the funds, and we haven’t looked back.” The results of the study were published in Neuroscience Letters 406 (2006) 289-292.

“Only a handful of people were doing research on exercise and MS,” Dr. Motl says. “And the people who came into our lab to participate thought it was the greatest thing ever. With these two things in mind, it was an easy decision to make MS the focus of my research.”

His commitment led to the establishment of the Exercise Neuroscience Research Laboratory (ENRL) at the university. At any given time, anywhere from a handful to a dozen research projects are taking place at ENRL.

Over the past two years, ENRL was awarded four year-long pilot research grants from the Illinois Lottery Research Fund, which uses proceeds from a scratch-off ticket to fund MS research statewide. One such project is a home-based exercise study led by Lara Pilutti, PhD, assistant professor of Kinesiology and Community Health at the university, which looks at how strength, aerobic fitness and cardiovascular function can be affected by exercise training. “Participants come into the lab, they learn the exercises, and we teach them a few strategies to maintain their routine and adapt it to their lifestyles,” explains Dr. Pilutti.

One participant, David Oost of Bloomington, Ill., has been part of at least six published studies at ENRL. “Three years ago, I walked with a cane and now I don’t,” he says. “My ability to walk has improved greatly, my endurance has increased, and my desire to continue working out has been ignited. Even the cognitive tasks that the tests require have become easier, less frustrating, and fun.”

A RECIPROCAL RELATIONSHIP

Oost credits a large part of his improvement to the personal attention given to every study participant. He notes that the graduate students work very closely with him throughout the projects. In return, he is glad to help them advance their education, especially considering that it will most likely lead to more MS research.

“It’s a no-brainer,” Oost says. “The tests help you fight against disease progression, you get to help graduate students earn their PhD so they can continue their research, you gain confidence in yourself, and most importantly, you are taking part in finding a solution. That’s a big deal.”

“Where I’m from, there’s a high prevalence of MS,” says post-doctorate researcher Yvonne Learmonth, a native of Scotland with a background in physical therapy. “I know that good rehabilitation and exercise can have positive effects, but I want to expand this knowledge and benefit everyone that I can.”

First-year PhD student Dominique Hopkins, a native of Chicago, chose to focus on specific populations of people living with MS. She began work with the ENRL team as an undergraduate, and continued on as a graduate student.

“For a long time, MS was seen as a disease mainly in Caucasian women, and treatments were largely developed for this demographic,” says Hopkins. “But recent literature has shown that African Americans often experience a more severe disease course. I want to know about the differences in their experience, and how can we tailor interventions to that population.”

The goal — to slow, stop, and reverse the life-altering effects of MS — remains ongoing, with collaborative efforts and advances in research and treatments now better than ever before, explains Dr. Motl.

“To me, if there’s ever been a good time to be diagnosed with MS, probably right now is the best time,” he says. “I think most of our disease-modifying therapies and the scientific information on the benefits of exercise training and how that can be integrated into managing MS and improving function are being optimized.”

Brendan Waldoch is an Americorp VISTA volunteer for the Society.

ADVOCACY

Toll free number 1 800 344 4867 13

TWENTY-THIRD MS PUBLIC POLICY CONFERENCE, WASHINGTON D.C. This annual conference was held March 10-13, and the chapter

delegation included chapter leadership, an MS activist from each chapter state, chapter board members, and a neurologist. MS Activist John Pierce from Vermont was publicly recognized as a new inductee in the advocacy category for the NMSS Volunteer Hall of Fame. Our chapter delegation made 23 visits to our members of Congress on Capitol Hill. This year’s priority issues were a request for $32 billion dollars for NIH funding, $10 million for MS research at the Department of Defense Congressional Directed Medical Research Program (CDMRP), robust funding for the FDA, and support for a new bill S. 948./H.R. 942, Ensuring Access to Quality Complex Rehabilitation Technology Act.

MEDICAID EXPANSION BILL VETOED BY THE GOVERNOR!

This high-priority bill for the chapter was voted favorably by the full legislature on a compromise bill

to require Maine to pursue Medicaid expanded coverage of citizens up to 138 percent of the Federal Poverty Level ($15,856/year for an individual, $26,951 for a family of 3). Governor LePage vetoed the bill and the legislative override fell two votes short in the senate. Medicaid Expansion is still in play this session as the legislature regroups and drafts new compromise language.

MAINE DAY AT THE STATE HOUSE

This fourth annual event held March 18 was attended by staff and volunteer activists to meet legislators to urge support from Medicaid expansion and educate our legislators about MS. A joint resolution designating MS Day in Maine was sponsored by Representative Verow and Senator Youngblood. The resolution was read on the House floor and attendees were recognized.

Cont. on next page

New chapter advocacy webpages launched!Check out the new interactive advocacy webpages for full details on our priority issues.

Take action and get involved!

KEY PRIORITY ISSUES1) The Governor’s FY’15 proposed budget includes funding for the chapter’s care management program. The House Budget for FY’15 matched

the Governor’s appropriation for 4513-1111 at $3,242,377. We are seeking higher funding for the overall line item and working to ensure key language around Home LINKS from the legislature this spring. Our goal is to ensure that the chapter receives the minimum level funding of $75,000 from the Department of Public Health.

2) S1869 An act relative to the Architectural Access Board which extends the jurisdiction of the Architectural Access Board (AAB) to make it co-extensive with the Americans with Disabilities Act. The bill is in its third reading in the Senate and we will be actively advocating for passage in the house.

3) H136 An Act to increase the Commonwealth’s compliance with federal law meeting requirements of the Americans with Disabilities Act. This bill requires the Commonwealth to set standards for recruiting, hiring, and reporting on employment of people with disabilities on multi-year vendor contracts.

IMPROVING MASSACHUSETTS TRANSPORTATION FOR PERSON WITH DISABILITIES The Massachusetts Statewide Coordinating Council on Community Transportation (SCCCT) is going to be relying heavily on new Regional Coordinating Councils (RCCs) to implement many of the 60 recommendations of the Governor’s Commission for the Reform of Community, Social Service, and Paratransit Transportation Services to improve accessible transportation options and they are actively seeking members to populate the RCCs. To learn more, go to: www.massdot.state.ma.us/transit/StatewideMobilityManagement/SCCCT.aspx

WORLD MS DAY DECLARED IN MASSACHUSETTSGovernor Deval Patrick has officially declared May 28 as WORLD MS DAY throughout the Commonwealth supporting a global day to raise awareness about MS

and the needs of people affected by the disease. To read the governor’s declaration in its entirety, go to msnewengland.org and click on “Advocate for Change.”

JOIN THE MOVEMENT: MSnewengland.org14

ADVOCACYMS DAY AT THE STATEHOUSE

This annual event was held March 5 at the State House. The Governor’s Commission

on Disability attended. Staff and volunteers met many legislators and state staff to provide education about MS and our priority policy issues. Governor Hassan visited the information tables!

MEDICAID EXPANSION BILL SIGNED BY GOVERNOR HASSAN!Following a two year debate in the legislature, a compromise landmark bill was approved and signed into law in April that will allow NH to accept 100 pecent match of federal dollars for at least 3 years. Medicaid Expansion increases eligibility up to 138 percent FPL ($15,856/year for an individual, $26,951 for a family of 3) If you are a person with MS who will be eligible for Medicaid under the expanded criteria contact Allyssa.Thompson@nmss.org

OPPOSING THE WEAKENING OF STATE HEALTH INSURANCE MANDATESThe chapter testified in opposition to HB 1541-FN which would allow health insurance plans to be sold without any mandates including the state requirements for all plans. The bill was defeated.

MS DAY AT THE VERMONT STATE HOUSE

Staff and activists participated in the annual MS Day in Montpelier. A resolution was read on

the House floor recognizing April 15, 2014 as MS Awareness Day in Vermont and attendees were recognized. We spoke with legislators and Governor Shumlin to increase awareness about MS.

ACCESSIBLE ADVENTURESCheck out these peer to peer reviews on the accessibility of places to go; dining shopping and having fun!

www.accessibleadventuresvt.org/accessible-adventures.html

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NEW RESPITE CARE LOCATOR WEBSITE TO LAUNCH SOON!A new state option to connect family caregivers to trained, screened care workers in the home is scheduled to be launched in 2014. This tool is the product of the NH Lifespan Respite Care Coalition. Contact Allyssa.Thompson@nmss.org for more information.

NH PARKING ACCESS AISLE SIGNS FOR SALE!Are the handicap parking spaces with striped access aisles in your New Hampshire community frequently blocked by drivers or debris? Urge private or municipal officials to purchase and install these signs to deter blockage. Signs are (12” x 18”): $23.40 or $15.82 when you buy more than 6. Posts: 10ft - $28.40 or 12ft - $34.08. To order call the DOC sign shop at 603- 271-1874.

Be a digital MS activistDigital MS activists—like all MS activists—want to drive change and do so by amplifying their voice and connecting with elected officials over social media.

At www.nationalMSsociety.org/digiMSactivist, learn how to share your story, connect with other MS activists and build relationships through social media and email. The webpage includes ways to:

n Get informed. Receive e-newsletters and Action Alerts about important pieces of legislation. Send emails with a few clicks of your mouse.

n Rise up. Learn where your elected officials stand. Speak out on issues important to you as a person affected by MS.

n Take Action. Build relationships with elected officials via Facebook or Twitter.

n Recruit. Encourage others to join directing them to ntl.ms/YouCanBeAnMSActivist, or the website above.

Seeking access to care consumer stories! 1) Are you a person with MS who has encountered physical barriers to accessing care in a medical facility? (e.g. inaccessible exam tables, diagnostic equipment or other barriers)

2) Are you a person with progressed MS who is married and been denied Medicaid eligibility due to income ineligibility?

If either situation applies to you, contact Michelle.Dickson@nmss.org

Moving Toward a World Free of MS

15TOLL FREE NUMBER 1 800 344 4867

Volunteers

Classified Ads SALE: Silverts Wheelchair winter cape. One size fits all. Navy blue, Sherpa lined with hood. Slips on and is waist long in the back and goes down over legs in the front. Brand new. $75.00. Bangor, Maine 207-991-7337

To post your free ad, contact wendy.feign@nmss.org.

VOLUNTEERING AND ITS SURPRISING BENEFITSAuthors: Joanna Saisan, M.S.W., Melinda Smith, M.A., and Gina Kemp, M.A. Article taken from HelpGuide.org.

With busy lives, it can be hard to find time to volunteer. However, the benefits of volunteering are enormous to you, your family, and your community. The right match can help you find friends, reach out to the community, learn new skills, and even advance your career. Volunteering can also help protect your mental and physical health. Learn more about the many benefits of volunteering and find tips on getting started as a volunteer.

Volunteering connects you to othersOne of the better-known benefits of volunteering is the impact on the community. Unpaid volunteers are often the glue that holds a community together. Volunteering allows you to connect to your community and make it a better place. However, volunteering is a two-way street, and it can benefit you and your family as much as the cause you choose to help. “Especially at the National MS Society,” says Brenda Barbour, AVP Volunteer Development. Dedicating your time as a volunteer helps you make new friends, expand your network, and boost your social skills.

Volunteering helps you make new friends and contactsOne of the best ways to make new friends and strengthen existing relationships is to commit to a shared activity. Volunteering is a great way to meet new people, especially

if you are new to an area. Volunteering also strengthens your ties to the community and broadens your support network, exposing you to people with common interests, neighborhood resources, and fun and fulfilling activities.

Volunteering increases your social and relationship skillsWhile some people are naturally outgoing, others are shy and have a hard time meeting new people. Volunteering gives you the opportunity to practice and develop your social skills, since you are meeting regularly with a group of people with common interests. Once you have momentum, it’s easier to branch out and make more friends and contacts.

The Greater New England Chapter has many different volunteer opportunities. Please go to www.msnewengland.org and click on Volunteer.

Now that the warmer months are here, we have many events that have volunteer needs.

If you have any questions, please contact Brenda Barbour at 781-693-5135 or brenda.barbour@nmss.org.

Volunteers are the backbone of our Chapter.

Government Relations CommitteeVolunteers Wanted!The chapter is seeking committed individuals to join us for our monthly meetings in person or by teleconference to help determine our priority issues and activities. Are you a person with MS or have a connection to the disease? Do you have professional expertise in the area of law, medicine, insurance, disability, fundraising, policy, or community organizing? Are you willing to speak before government officials, at public hearings or with the media? Are you committed to working as a team and working on public policy projects? If any of these describe you, please contact Michelle.Dickson@nmss.org.

16 JOIN THE MOVEMENT: MSnewengland.org

Fundraising

Winner Nicole Duval of Manchester, N.H., collects the keys to her 2013 Harley-Davidson Softail® Deluxe from Larry Rubin, CEO of Bernie and Phyl’s Furniture, at the Nashua store. The company sold 2,335 raffle tickets to 999 people at $10 each, raising $23,350 for the National MS Society. The winning ticket was drawn Sunday, March 31, in the store at 243 Daniel Webster Highway. Nicole noted that now she can ride alongside her husband when he rolls out his bike, saying, “I don’t have to be a passenger anymore!” In addition to a chance to win a sweet ride, Nicole noted that in her job as a dental hygienist she has more than one patient who has MS. She sees first-hand the challenges presented by the disease, and was glad the raffle money was donated to the National MS Society. MS is a special cause for Bernie & Phyl’s Furniture, because co-owner Phyl Rubin has been living with the disease for more than 40 years. Pictured in the photo (left to right) are Lori Espino, Greater New England Chapter President, Larry Rubin, CEO Bernie & Phyl’s Furniture, Nicole Duval of Manchester, and Doug Bryant, Greater New England Chapter Chairman.

EVENT RECAPSMS Climb to the Top BostonThe 2014 mass-market event season kicked off on Saturday, March 1, with our climb at the John Hancock Tower. Among the almost 500 climbers were five teams of local firefighters climbing in full gear. With funds still coming in, revenue is expected to top $225,000. With expected growth for 2015, we have already established a date of March 7, 2015. Thanks to Boston Properties for their support and assistance.

Marathon Strides Against MSWith the addition of runners not able to finish their race in 2013, our 2014 Boston Marathon team grew to 113 runners. On Monday, April 21, our dedicated runners proudly wore their Marathon Strides Against MS colors and ran in the second biggest Boston Marathon. These committed and focused group combined to raise more than $561,000.

Muckfest MSWith more than 5,100 registered participants, our MuckFest MS expanded into Sunday, becoming only the second MuckFest MS in the society to be a two-day event. On April 26 and 27, the 2014 MuckFest MS surpassed fundraising expectations and put us near $560,000. Neither cold nor rain dampened spirits as folks ran five kilometers through mud, water, and obstacle courses.

(From left) Madeleine Kunin, Jacquelyn Mitchard, Marilyn Cormier, Mary Lintermann and Chris Bohjalian.

Authors’ LuncheonThe Authors’ Luncheon, held March 7, is new to the state of Vermont and had close to 300 people attending. Everyone had a chance to mingle with local Vermont authors. This year recognized some of the finest and most accomplished writers; Chris Bohjalian, Vermont’s own best-selling author; Madeleine Kunin, former Governor of Vermont; and Jacquelyn Mitchard, first author selected for Oprah Winfrey’s Book Club. Thank you to our authors for giving their time, and to our sponsors Pomerleau Real Estate, Saint Michael’s College, and SymQuest Group for their support.

Moving Toward a World Free of MS

17TOLL FREE NUMBER 1 800 344 4867

Fundraising

THANK YOU TO OUR SPONSORS!

Burns & McDonnell

Coca-Cola

Co-op Insurance

Domino’s Pizza

Designer Bath

DJ Mark Watson

Dunkin Donuts

Industrial Roofing

Norton Insurance

Pepsi Beverage

Sturdy Memorial Hospital

Subway

The 2014 Walk MS season began on Saturday April 5 with the first weekend of spring walks. Our spring and fall walks bring together more than 13,000 walkers in 41 sites throughout Maine, Massachusetts, New Hampshire, and Vermont.

Do you know someone living with MS who is riding in Bike MS this year?

Encourage them to participate in our “I Ride with MS” program by visiting www.MSonetoone.com and registering. Participants will receive a complimentary

“I Ride with MS” jersey that will help us celebrate them and their accomplishments, as well as provide inspiration to other cyclists and volunteers participating in Bike MS. This program is made possible through partnership with Genzyme and MS One to One.

Erin Hennessey, diagnosed 2011, of Pep’s Peddlers and Chip Maurer, diagnosed 2009, of the Spokesmen, Ride with MS at the Cape Cod Getaway.

Advances in research are a top priority for people living with MS and their

families. Although significant progress has been made, current therapies don’t work for everyone, nor do they offer solutions to end MS.

Now is our time to move MS research farther and faster than ever before. Together we must ensure that no potential solutions go unexplored and no opportunity is wasted. With your leadership we can reach our $250 million goal and fund these urgent research priorities:

n Understand the mechanisms of disease progression and accelerate the development of therapies

n Understand how nerve cells are damaged and potentially repaired

n Enhance quality of life through rehabilitation techniques and symptomatic treatments

n Identify risk factors and triggering events that cause MS to facilitate prevention

n Increase quantity and quality of research worldwide to speed discovery and treatment development

WE ARE THE RESEARCH REVOLUTION n Make your gift to the NOW campaign and encourage

others to do the same. n Be informed — understand and share the three solutions

to end MS forever: STOP, RESTORE, END. n Introduce and engage your network in NOW — we are

all connected to someone affected by MS.

For more information or to make a gift, please contact jonathan.nierman@nmss.org or 781-693-5150.

18 JOIN THE MOVEMENT: MSnewengland.org

Fundraising

LINK UP FOR MS GOLF TOURNAMENT

Monday, August 18, 2014Noon Lunch ● 1:30 Shotgun StartDinner and Auction to followIpswich Country Club, Ipswich, Massachusetts

To register: Staci Colby 781-693-5120 or staci.colby@nmss.org

June 7Portland Jetport, Portland, MaineFor more information:

MSnewengland.org 207-781-7960

CAPE COD GETAWAY Saturday-Sunday, June 28-29 UMASS Boston to Provincetown, MA• 75 & 100 mile route options on Saturday

75 miles on Sunday• Largest MS Ride in New England with

more than 2,000 riders

MINUTEMAN RIDE Saturday, July 19 - Concord District Court, Concord, MA• 25 & 60 mile route options through Metro-West towns

GREEN MOUNTAIN GETAWAY Saturday-Sunday, August 2-3University of Vermont, Burlington, VT• Saturday routes include 20, 50, 80 & 100

mile options• Sunday choose between 45, 75 & 100

mile routes

GREAT MAINE GETAWAY Saturday-Sunday, August 9-10 University of New England, Biddeford, Maine• Saturday routes include 25, 50, 75 & 100

mile options• Sunday choose between 25, 50 & 75 mile

routes

NH SEACOAST ESCAPE Saturday, August 23 - Stratham Hill Park, Stratham, NH• Route options include 25 & 60 mile options

BIKE & HIKE THE BERKSHIRES Saturday, September 20 - Jiminy Peak, Hancock, MA• Ride 25, 50, or the 100-mile Mt. Greylock challenge • Hike one of two trails to the summit of

Mt. Greylock

To Register: bikeMSgne.org or 800-344-4867

Moving Toward a World Free of MS Fundraising

19TOLL FREE NUMBER 1 800 344 4867

REGISTER TODAY!MSchallengewalkcapecod.org1.800.344.4867

Friday, August 15

MS Harborfest Benefit AuctionThe Portland Company

Saturday, August 16

MS RegattaPortland Harbor & Fore River, Portland

Sunday, August 17

MS Tugboat Muster & RacesPortland Ocean Terminal/Maine State Pier, Portland

MS Lobster Boat RacesThe Portland Company, Portland

MS Shoreside 5K Run/WalkFort Allen Park

August 15-17, 2014Three days of sailboats, tugboats, and lobster boats

—under the banner of the MS Harborfest— all for the benefit of the National Multiple Sclerosis Society.

REGISTER TODAY & BEGIN FUNDRAISING

As soon as you register, you’ll have access to our online fundraising tools, making fundraising easier and more convenient than ever! A minimum fundraising goal of $1,500 is required, but we’ll be with you every step of the way.

Register to walk or volunteer as ...

• An individual participant

• A member of an existing team

• A team captain (set up a team)

TEAM UP FOR MORE FUN

Forming a Challenge Walk MS team is an opportunity to share a great experience with friends, family members, or co-workers — all while moving us closer to a world free of MS.

SEPTEMBER 5-7, 2014

3 DAYS. 50 MILES.CONNECT TO END MULTIPLE SCLEROSIS

ROUTE Day 1: 20 miles from Hyannis to Brewster, via Yarmouth.

Day 2: 20 miles through Orleans and Eastham, then back to Brewster

Day 3: 10 miles to Dennis and return to Hyannis

NationalMultiple SclerosisSocietyGreaterNew EnglandChapter

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www.nationalMSsociety.org/ newsletterGNE

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Summer & Winter online only. Spring & Fall delivered by U.S. mail. Donate your used car!

To participate in current studies, clinical trials, and MS surveys visit the chapter online at www.MSnewengland.org

Calendar

June 7 - MS Plane Pull®

June 7 - Nashua 5K Run/Walk for MS

June 11 - The Disease Modifying Therapies: Your Treatment Options

June 21 - Beyond Diagnosis: Moving Forward, Brockton, MA

June 22 - Walk MS: Wakefield, MA

June 28 - Beyond Diagnosis: Moving Forward, Lebanon, NH

June 28-29 - Bike MS: Cape Cod Getaway, Boston to Provincetown

July 19 - Bike MS: Minuteman Ride

July 19 - Can Do MS Jumpstart® in Motion, Springfield, MA

August 2-3 - Bike MS: Green Mountain Getaway, Burlington, VT

August 9-10 - Bike MS: Great Maine Getaway, Biddeford, ME

August 12 - Challenge Walk Crew Training, Waltham, MA

August 15-17 - MS Harborfest, Portland, ME

August 17 - Falmouth Road Race

August 18 - Link Up for MS Golf Tournament

August 23 - Bike MS: New Hampshire Seacoast Escape

September 5-7 - MS Challenge Walk, Cape Cod

September 6 - Walk MS: Brewster, MA

September 20 - Bike MS: Bike & Hike the Berkshires

September 20 - Walk MS: Sturbridge, MA and Gorham, NH

September 27 - Walk MS: Keene, NH and St. Albans & St. Johnsbury, VT

September 28 - Walk MS: Falmouth, MA

September 28 - Walk MS: Journey of Hope, Concord, NH

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