mortality among the working age population receiving incapacity benefits in new zealand, 1981–2004

8
Mortality among the working age population receiving incapacity benets in New Zealand, 1981e2004 q Caroline Shaw a, * , Tony Blakely a , Martin Tobias b a Department of Public Health, University of Otago, PO Box 7343, Wellington South, New Zealand b Health and Disability Intelligence, Ministry of Health, Wellington, New Zealand article info Article history: Available online 30 June 2011 Keywords: New Zealand Mortality Adult Disability insurance Follow-up studies abstract Like many OECD countries New Zealand has experienced a large increase in the number of working-age people receiving incapacity benets in the last 3 decades, despite apparent improvements in population health. This paper examines trends in mortality rates of people receiving sickness benet or invalids benet (SBIB) between 1981 and 2004 using repeated cohort studies (linking the 1981,1986, 1991,1996, and 2001 censuses to mortality data). Mortality rates, standardised for age and ethnicity, were calculated for each census cohort for 25e64 year olds by benet receipt status. Standardised rate differences and rate ratios and 95% condence intervals were calculated to measure disparities on both absolute and relative scales. Between 1981 and 2004 overall SBIB receipt increased from 2% to 5% of the working age population. Mortality rates were at least three times higher in the SBIB than the non-SBIB group at all points in time for men and women. Mortality rates declined in all groups, for example in men receiving SBIB, mortality decreased from 2354/100 000 in the 1981e84 cohort to 1371/100 000 in the 2001e04 cohort. Absolute inequalities between SBIB and non-SBIB declined in both men and women (for example in women standardised rate differences decreased from 954/100 000 to 688/100 000) but relative inequalities remained largely stable (for example in men the risk ratio increased from 4.27 to 4.54). Mortality rates declined more in sickness benet than invalids benet recipients. The substantial expansion of SBIB receipt in New Zealand has not been accompanied by any reduction in the excess mortality risk experienced by SBIB recipients. These ndings are likely to reect the changing nature of the economy, labour force and disability experience in New Zealand. Ó 2011 Elsevier Ltd. All rights reserved. Introduction Similar to other developed countries New Zealand provides income support for working age people with an illness or disability which limits employment. To be eligible for an invalids benet (IB) an individual must be permanently and severely restricted in his or her capacity for work. Permanentlyis dened as an illness/ disability which is either expected to last longer than 2 years or is terminal, with survival being estimated at less than two years. Severeindicates that an individual is not capable of working 15 h or more a week. Sickness benet (SB) is targeted to individuals with shorter-term conditions; to qualify an individual must have a condition that limits capacity to seek or undertake full time employment, or be in employment but losing earnings through sickness or injury (Wilson, McLeod, & Sathiyandra, 2005). There is however evidence that the distinctions between these groups are less clear in practice than in theory (Beynon & Tucker, 2006). Both of these benets are income tested (i.e. dependent on the income of the person and their partner, but not assets). In New Zealand disability caused by injury is covered by a separate employment- related social insurance scheme (Accident Compensation Corpo- ration), which pays earnings-related weekly compensation (Wilson et al., 2005). Payments for all of these benets continue as long as the incapacity is present. q The New Zealand Census e Mortality Study is a study of the relationship between social factors and mortality in New Zealand, based on the integration of anonymised population census data from Statistics New Zealand and mortality data from the New Zealand Health Information Service. The project was approved by Statistics New Zealand as a Data Laboratory project under the Microdata Access Protocols in 1997. The data sets created by the integration process are covered by the Statistics Act and can be used for statistical purposes only. Only approved researchers who have signed Statistics New Zealands declaration of secrecy can access the integrated data in the Data Laboratory. For further information about condentiality matters in regard to this study, please contact Statistics New Zealand. This paper is published with the approval of the Deputy Director General (Health and Disability Systems and Strategy), Ministry of Health. However, opinions are the authorsown and do not necessarily reect the Ministrys policy advice. * Corresponding author. Tel.: þ64 4 918 5087. E-mail address: [email protected] (C. Shaw). Contents lists available at ScienceDirect Social Science & Medicine journal homepage: www.elsevier.com/locate/socscimed 0277-9536/$ e see front matter Ó 2011 Elsevier Ltd. All rights reserved. doi:10.1016/j.socscimed.2011.06.003 Social Science & Medicine 73 (2011) 568e575

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Social Science & Medicine 73 (2011) 568e575

Contents lists avai

Social Science & Medicine

journal homepage: www.elsevier .com/locate/socscimed

Mortality among the working age population receiving incapacity benefitsin New Zealand, 1981e2004q

Caroline Shawa,*, Tony Blakely a, Martin Tobias b

aDepartment of Public Health, University of Otago, PO Box 7343, Wellington South, New ZealandbHealth and Disability Intelligence, Ministry of Health, Wellington, New Zealand

a r t i c l e i n f o

Article history:Available online 30 June 2011

Keywords:New ZealandMortalityAdultDisability insuranceFollow-up studies

q TheNewZealand CensuseMortality Study is a studsocial factors and mortality in New Zealand, based on tpopulation census data fromStatistics NewZealand anZealand Health Information Service. The project wasZealand as a Data Laboratory project under the MicroThe data sets created by the integration process are cocan be used for statistical purposes only. Only approvedStatistics New Zealand’s declaration of secrecy can accData Laboratory. For further information about confidthis study, please contact Statistics New Zealand.This paper is publishedwith the approval of the DeputyDisability Systems and Strategy), Ministry of Healthauthors’ own and do not necessarily reflect the Minist* Corresponding author. Tel.: þ64 4 918 5087.

E-mail address: [email protected] (C. Sha

0277-9536/$ e see front matter � 2011 Elsevier Ltd.doi:10.1016/j.socscimed.2011.06.003

a b s t r a c t

Like many OECD countries New Zealand has experienced a large increase in the number of working-agepeople receiving incapacity benefits in the last 3 decades, despite apparent improvements in populationhealth. This paper examines trends in mortality rates of people receiving sickness benefit or invalid’sbenefit (SBIB) between 1981 and 2004 using repeated cohort studies (linking the 1981, 1986, 1991, 1996,and 2001 censuses to mortality data). Mortality rates, standardised for age and ethnicity, were calculatedfor each census cohort for 25e64 year olds by benefit receipt status. Standardised rate differences andrate ratios and 95% confidence intervals were calculated to measure disparities on both absolute andrelative scales. Between 1981 and 2004 overall SBIB receipt increased from 2% to 5% of the working agepopulation. Mortality rates were at least three times higher in the SBIB than the non-SBIB group at allpoints in time for men and women. Mortality rates declined in all groups, for example in men receivingSBIB, mortality decreased from 2354/100 000 in the 1981e84 cohort to 1371/100 000 in the 2001e04cohort. Absolute inequalities between SBIB and non-SBIB declined in both men and women (for examplein women standardised rate differences decreased from 954/100 000 to 688/100 000) but relativeinequalities remained largely stable (for example in men the risk ratio increased from 4.27 to 4.54).Mortality rates declined more in sickness benefit than invalid’s benefit recipients. The substantialexpansion of SBIB receipt in New Zealand has not been accompanied by any reduction in the excessmortality risk experienced by SBIB recipients. These findings are likely to reflect the changing nature ofthe economy, labour force and disability experience in New Zealand.

� 2011 Elsevier Ltd. All rights reserved.

Introduction

Similar to other developed countries New Zealand providesincome support for working age people with an illness or disabilitywhich limits employment. To be eligible for an invalid’s benefit (IB)

y of the relationship betweenhe integration of anonymiseddmortality data from theNewapproved by Statistics New

data Access Protocols in 1997.vered by the Statistics Act andresearcherswho have signedess the integrated data in theentiality matters in regard to

Director General (Health and. However, opinions are thery’s policy advice.

w).

All rights reserved.

an individual must be permanently and severely restricted in his orher capacity for work. “Permanently” is defined as an illness/disability which is either expected to last longer than 2 years or isterminal, with survival being estimated at less than two years.“Severe” indicates that an individual is not capable of working 15 hormore aweek. Sickness benefit (SB) is targeted to individuals withshorter-term conditions; to qualify an individual must havea condition that limits capacity to seek or undertake full timeemployment, or be in employment but losing earnings throughsickness or injury (Wilson, McLeod, & Sathiyandra, 2005). There ishowever evidence that the distinctions between these groups areless clear in practice than in theory (Beynon & Tucker, 2006). Bothof these benefits are income tested (i.e. dependent on the income ofthe person and their partner, but not assets). In New Zealanddisability caused by injury is covered by a separate employment-related social insurance scheme (Accident Compensation Corpo-ration), which pays earnings-related weekly compensation (Wilsonet al., 2005). Payments for all of these benefits continue as long asthe incapacity is present.

Textbox 1. The New Zealand macroeconomic environment

1980s and beyond

The number of people receiving SBIB in New Zealand has

increased substantially introduction of these benefits in the

1970s through to the present time (see Fig. 1). This increase

is against a backdrop of changes in the conceptualisation of

disability in society, as well as substantive (and largely

unevaluated) modifications in benefit policy e.g. changes in

medical entitlement, benefit levels, and work expectations.

(Wilson et al., 2005) Additionally this consistent increase in

numbers receiving SBIB occurred during a period of

upheaval in the New Zealand macro-and micro- economic

environment. This included a transition from a universal

welfare state to a more residual welfare state from 1984 to

the late 1990s, followed by a return to policies more

consistent with a universal welfare state model from 1999

onwards. (Belich, 2001; Boston, Dalziel, & John, 1999a;

Cheyne, O’Brien, & Belgrave, 1997).

The economy was largely stagnant during the 1980s; there

were economic recessions in the early 1990s and again in

1998/1999 followed by a sustained and unprecedented

period of economic growth in the early 2000s. Over this time

unemployment increased from 4.1% in 1986 to 10.2% in

1993 and then fell to 3.7% by 2005 (Ministry of Social

Development, 2008).

C. Shaw et al. / Social Science & Medicine 73 (2011) 568e575 569

In New Zealand the number of people receiving sickness bene-fits and invalids’ benefits (SBIB) has increased in a relatively linearfashion in the last 3 decades, in comparison to uptake of unem-ployment benefit which clearly shows the impact of macroeco-nomic cycles (see Fig. 1). While the New Zealand macro-economiccontext may be relatively unique (see Box 1), New Zealand hasnot been alone in facing an increase in the population receivingdisability-type benefits. For example in the UK between 1984 and2003 the proportion of the working age population receivingdisability benefits increased from about 3% to 7%. The Netherlandsexperienced increases in this population in the 1970s, which thenstabilised over the 1980s and 1990s at about 10% of theworking agepopulation, whereas the Scandinavian countries showed sustainedincreases between 1984 and 2003 (Kemp, 2006a).

Correspondingly the proportion of GDP spent on SBIB orequivalent incapacity benefits has also increased in many countries(Kemp, 2006a; Organisation for Economic Co-operation andDevelopment, 2003).

Concerns have been voiced, locally and internationally, aboutthe increase in numbers of people receiving disability benefits(Kemp, 2006b; Lunt, 2006). In the context of a global economicrecession and associated governmental parsimony, this will onlyintensify.(Bambra, 2008, 2010; Welfare Working Group, 2010) Atfirst glance, the increase in numbers of people receiving SBIB isparadoxical: the number of working age people receiving incomesupplementation for disability or sickness is increasing, but, in NewZealand at least, the population is increasingly long-lived andhealthy (Ajwani, Blakely, Robson, Tobias, & Bonne, 2003; Ministryof Health, 2008; New Zealand Health Information Service, 2007).

Internationally the increase in numbers of people receivingdisability-type benefits is thought to be due to a complex range ofsociological, policy and economic processes; changes in populationprevalence of illness and disability are not thought to account fora large proportion of the growth in benefit numbers (Kemp, 2006a).Specifically any growth in numbers of people on SBIB is due to anincrease in inflow and/or a decrease in outflow (i.e. increasedduration on benefit) (Wilson et al., 2005). These flows are influ-enced by drivers acting on the supply side (e.g. benefit coverage,eligibility criteria or benefit level, the availability of other benefits,the facilitated restructuring of the workforce and financial

-

20,000

40,000

60,000

80,000

100,000

120,000

140,000

160,000

180,000

200,000

1976

1978

1980

1982

1984

1986

1988

End of March to 1

Nu

mb

er o

f recip

ien

ts

Unemployment and Training Benefits

Domestic Purposes and Widows Benefits

Note: Unemployment benefit also includ

Fig. 1. Number receiving state benefits all ages, 1975e2005. Source: Wilson et a

incentives/disincentives) and demand side (e.g. demographictrends, trends in population health, disability and mortality andeconomic cycles) (Kemp, Sunden, & Bakker-Tauritz, 2006).

The increase in SBIB between 1981 and 2004 in New Zealandreflects a complexmix of supply and demand side factors, similar toother OECD countries (Kemp et al., 2006). Some potential factorsinclude:

� Growth and ageing of the New Zealand population (Wilson &McLeod, 2006; Wilson et al., 2005).

� The increase in female participation in the New Zealandworkforce (Statistics New Zealand, 2008).

1990

1992

1994

1996

1998

2000

2002

2004

2006

989, end of June thereafter

Invalid's Benefit

Sickness Benefit

es an emergency benefit

l., 2005. Note: Unemployment benefit also includes an emergency benefit.

C. Shaw et al. / Social Science & Medicine 73 (2011) 568e575570

� Deinstitutionalisation of long-term residents of mental healthunits (Wilson et al., 2005).

� The effect of macroeconomic cycles over this time period,although the direction of the effect of such cycles on benefituptake is not entirely clear (Gjesdal, Lie, & Maeland, 2004;Kemp et al., 2006; Wilson & McLeod, 2006).

� The effect of structural reforms in New Zealand between 1984and the early 1990s, which (simplistically) involved neoliberalreforms from a universal to a residual type welfare state(Boston et al., 1999b).

In addition to these structural societal changes there have beenextensive policy reforms to SB and IB (as well as other benefits,which had flow on effects to SB and IB). Changes include increasingthe age of New Zealand Superannuation eligibility from 60 to 65between 1992 and 2001; cutting the level of all working agebenefits except SB in 1991; changes in the eligibility for IB from ‘75%incapacitated’ to ‘permanently and severely restricted’; and theintroduction and then abandonment of a ‘designated doctor’scheme, which required individuals to prove ongoing incapacityfrom specific doctors. In addition there were changes in thestructure and focus of the agency responsible for welfare paymentsand in expectations around work and case management of indi-viduals on benefits (Wilson et al., 2005). The impact of many ofthese changes seems to have been largely unevaluated; however SBand IB receipt in New Zealand has continued to rise despite thesechanges. This is consistent with policy efforts in other jurisdictionsaimed at decreasing the numbers of people receiving disabilitybenefits, which have had little success (Organisation for EconomicCo-operation and Development, 2003).

Given increasing numbers of people receiving benefits,improving overall population health and the lack of successfulpolicy interventions to limit the increase in benefit uptake, ananalysis of mortality patterns in the beneficiary population shouldbe of interest to policy makers. Mortality is an objective measure of(poor) health. There are good reasons to expect that the SBIBpopulation would have higher mortality risks than the rest of theworking age population, as this is a population with moderate tosevere incapacity, which might be expected to increase theirmortality risks. Box 2 summarises what is known aboutmortality inrecipients of SBIB.

Textbox 2. Mortality in populations receiving disability

benefits

Little is known about this in New Zealand. Twenty five

percent of a cohort of people who commenced IB in 1993

died in the subsequent 9 years, compared to 4% of SB

recipients (Wilson et al., 2005). Internationally it has been

noted in a number of (largely Scandinavian) studies that

people receiving disability benefits have higher mortality

than the remainder of the working age population (Ahs &

Westerling, 2006b; Karlsson, Carstensen, Gjesdal, &

Alexanderson, 2007; Quaade, Engholm, Johansen, &

Moller, 2002; Rupp & Scott, 1996; Wallman et al., 2006).

The majority of these studies show mortality risk 2e3 times

higher than the remainder of the working age population.

Studies that have looked at cause-specific mortality have

shown that people who receive disability benefits die of

similar causes to those who do not receive them, although

some causes of death (such as psychiatric conditions) may

be more common in this group (Lunt, 2006; Quaade et al.,

2002; Wallman et al., 2006).

All available information on mortality in populations receivingdisability benefits is cross-sectional; to our knowledge no one hasexamined mortality trends in the SBIB population over time,specifically over this period characterised by expansion of receipt inbenefits and substantive improvements in population health.

This paper examinesmortality rates and trends in SBIB recipientsin New Zealand and compares themwith the rest of theworking agepopulation. We hypothesise that mortality rates will be higheramong SBIB recipients but that rates will have declined over time(similar to the rest of the New Zealand population).Wewere unsurewhether SBIB mortality rates will have declined more or less thanthe rest of the New Zealand population. If mortality rates declinemore for the SBIB group (in percentage terms at least), one mightdeduce that the average health of this group has improved overtime. On the other hand, if SBIB mortality rates decrease less thanthose of the general population, one might speculate that (amongother reasons) the targeting of these benefits to the sicker people inthe population has improved over time. Findings from New Zealandwill be of interest to other countries as, despite contextual differ-ences, there are probably common processes occurring acrossjurisdictions that have led to increases in benefit receipt over time.Having a better understanding of the health outcomes of this groupmay be useful to inform ongoing policy work.

Methods

Data

We created five retrospective cohort studies of the entire NewZealand population, by linking records from 1981, 1986, 1991, 1996,or 2001 census respondents aged 0e74 to mortality records for thethree years following each census. We used probabilistic recordlinkage methods to anonymously link these data, using Automatchand Validity software. The matching variables were sex, date ofbirth, country of birth, and ethnic group. The blocking variable wasaddress geocoded at meshblock (about 100 people) or census areaunit level (about 2000 people), so individuals who changed addressbetween the census night and death were less likely to be linked.The percentages of eligible mortality records linked to a censusrecordwere 70.9%, 73.7%, 76.3%, 77.6%, and 79.6% for the five censuscohorts, respectively (Fawcett, Atkinson, Herd, & Blakely, 2008; Hill,Atkinson, & Blakely, 2002). Over 96% of these linkages were esti-mated to be true positives (T Blakely & Salmond, 2002). To correctfor any linkage bias and to avoid underestimation of mortality ratesusing the linked datasets, we calculated weights for strata based onage, sex, ethnicity, and small area deprivation. For example, if, out of30 M�aori men who died aged 45e64 years and had lived inmoderately deprived small areas of New Zealand, 20 were linked toa census record, each of the 20 linked records received a weight of1.5 (30/20). All analyses presented in this report use these weights,and they have been shown to satisfactorily adjust for linkage bias(Fawcett, Blakely, & Atkinson, 2002).

Statistical analysis

This analysis was restricted to individuals aged 25e64 yearswho were present in their usual residence on census night. Receiptof benefit was identified from census forms, which ask aboutsource(s) of income for the preceding 12 months. Individuals couldreport receiving one or both benefits over the last 12 months (butcould not receive the benefits concurrently). In two New Zealandcensuses (1986 and 1991) censuses SBIB receipt were combined inone question. Hence for all cohorts analyses are presented for bothbenefits together and separately for the 1981, 1996 and 2001cohorts.

Table

1Se

xan

dag

edistribution

ofSB

IBrecipients

compared

totherest

oftheNew

Zealan

dworkingag

epop

ulation

.

1981

e84

1986

e89

1991

e94

1996

e99

2001

e04

NoSB

IBSB

IBNoSB

IBSB

IBNoSB

IBSB

IBNoSB

IBSB

IBNoSB

IBSB

IB

n%

n%

n%

n%

n%

n%

n%

n%

n%

n%

Female

25e39

32,189

799

.032

401.0

359,00

798

.555

801.5

378,52

297

.884

572.2

397,45

596

.514

,304

3.5

385,53

996

.514

,043

3.5

40e49

150,69

398

.719

471.3

169,59

998

.231

921.8

199,48

897

.061

473.0

227,72

795

.810

,092

4.2

246,34

595

.511

,508

4.5

50e59

139,98

398

.126

431.9

134,35

597

.533

962.5

134,63

795

.070

175.0

151,52

793

.310

,899

6.7

181,13

792

.414

,880

7.6

60e64

62,490

99.4

351

0.6

66,051

99.3

480

0.7

65,253

98.9

735

1.1

60,546

96.6

2139

3.4

66,753

92.2

5631

7.8

25e64

6750

6098

.881

811.2

729,01

598

.312

,651

1.7

777,90

097

.222

,356

2.8

837,25

295

.737

,437

4.3

879,77

495

.046

,065

5.0

Male

25e39

313,84

898

.451

121.6

345,84

097

.782

682.3

354,86

197

.210

,224

2.8

364,98

996

.015

,276

4.0

340,98

995

.814

,820

4.2

40e49

151,42

298

.030

212.0

167,60

497

.641

402.4

196,58

497

.158

472.9

219,48

395

.896

244.2

229,88

195

.311

,277

4.7

50e59

140,97

996

.255

293.8

135,43

895

.268

224.8

133,75

893

.986

316.1

149,31

393

.210

,881

6.8

178,09

293

.312

,807

6.7

60e64

56,109

98.7

714

1.3

62,718

98.3

1074

1.7

65,217

98.0

1314

2.0

58,839

94.7

3315

5.3

628,14

90.1

6933

9.9

25e64

662,35

597

.914

,373

2.1

711,60

097

.220

,307

2.8

750,41

796

.626

,016

3.4

792,61

895

.339

,090

4.7

811,77

394

.745

,840

5.3

SBIB

¼sick

nessbe

nefi

tor

inva

lid’s’be

nefi

t.Numbe

rsareweigh

tedto

dea

lwithlin

kage

bias

andhav

ebe

enrandom

rounded

asper

Statistics

New

Zealan

dprotoco

lsto

preserveco

nfiden

tiality.

C. Shaw et al. / Social Science & Medicine 73 (2011) 568e575 571

All other individual (and household) characteristics werederived from the relevant census forms. A modified “totalethnicity” approach was used to classify ethnicity (Statistics NewZealand, 2005), meaning that if an individual indicated ethnicaffiliation with M�aori, Pacific and/or Asian peoples they werecounted in any/all of these groups. People who did not indicateaffiliation with any of these groups were placed in a residual group(non M�aori/Pacific/Asian- nMPA). This approach allows multipleethnic affiliations to be recorded when breaking down the SBIBpopulation. (However, for standardisation results a prioritised (oneethnic group only per person) approach was used.) Overall, theproportion of this population with affiliation to more than oneethnic group was <1% in all cohorts.

In the scenario of decreasing average mortality rates over time,there could be four types of trend in inequalities: both increasingrelative and absolute inequalities; increasing relative inequalities,but stable absolute inequalities; stable relative inequalities, butdecreasing absolute inequalities; and both decreasing relative andabsolute inequalities (Blakely, Tobias, & Atkinson, 2008). Therefore,it is important to present trends in mortality rates, rate differences,and rate ratios (Mackenbach & Kunst, 1997).

We calculated rates standardised for age and ethnicity, ratedifferences, and rate ratios. We applied the age distribution fromWHO’s world population to each of the three main ethnic groups ofNew Zealand (M�aori, Pacific and other), and ensured that the sumof age-weights within each ethnic group equalled that ethnicgroup’s proportion of the 2001 census (14.1% M�aori, 5.2% Pacific,80.7% other). Ethnicity is a determinant of both benefit receipt andmortality and varies in its distribution over time, making ita confounder of associations between benefit receipt and mortality.We conducted comparisons over time by comparing age andethnicity standardised mortality rates, rate differences, and rateratios over the five census cohorts, looking for patterns andconsidering 95% confidence intervals.

All analyses were conducted in SAS.Ethics approval was granted to the NZCMS work programme by

the Wellington Regional Ethics Committee (WGT/98/01/001).

Results

Table 1 and Fig. 2 show the basic demographics of SBIB recipi-ents in the 5 cohorts. There has been an increase in the proportionof the working age population in New Zealand receiving SBIB overtime, from 1.7% in the 1981 cohort to 5.2% in the 2001 cohort. Therewas a change in the gender distribution of SBIB receipt over thistime period. In the 1981 cohort, menwere twice as likely to receivethe SBIB compared towomen; however, by the 2001 cohort, receiptof SBIB was equal by gender.

Receipt of SBIB was linked to age: the 50e59-year age-groupwere more likely to be in receipt of SBIB than the 25e39-year-oldage group. For example 50e59 year old males in 1986e89 weretwice as likely to be receiving SBIB as males aged 25e46 and in the2001e2004 period were 1.6 times more likely. Over the 25 yearsstudied, however, all age groups had an increase in SBIB receipt. Theincrease was most marked in 60e64-year-olds (from 1% of this agegroup in 1981-84 to 8e10% in 2001e04) reflecting the gradualincrease in the age of eligibility for New Zealand Superannuationfrom 60 to 65 between 1992 and 2001.

Between 69 and 85 percent of people receiving SBIB were in thenon-M�aori/Pacific/Asian (nMPA) group depending on sex andcohort. However, there were differences in the likelihood ofreceiving a benefit which varied by ethnic group. People of Asianethnicity were roughly half as likely to receive SBIB as nMPA. Theproportion of the Pacific population receiving SBIB was initiallyquite similar to the nMPA, but by the 2001 cohort Pacific men and

0.0%

1.0%

2.0%

3.0%

4.0%

5.0%

6.0%

7.0%

8.0%

9.0%

10.0%

Maori Pacific Asian nMPA Maori Pacific Asian nMPA

Female Male

19811986199119962001

Fig. 2. Proportion of population receiving SBIB by ethnicity aged 25e64 1981e2004.

C. Shaw et al. / Social Science & Medicine 73 (2011) 568e575572

women were more likely to receive SBIB than nMPA (e.g. 7.2% inPacific males compared to 4.6% in nMPA males in the 2001 cohort).Fig. 3 and Tables 2 and 3 show age and ethnicity standardised rates,rate ratios and rate differences for all cause mortality in men andwomen aged 25e64 between 1981 and 2004 by SBIB receipt status.

Age- and ethnicity-standardised mortality rates were consis-tently substantially higher in both men and women receiving theSBIB compared to thosewho did not. For example in the 1986 cohortmen receiving SBIB had a standardised mortality rate of 2130/100 000 (95% CI 1992-2268) compared to 494/100 000 (95% CI 480-507) inmen not receiving SBIB. In all cohortsmen receiving SBIB hadat least four times higher probability of dying and women 3.4 timeshigher compared to men and women who did not receive SBIB.

Considering trends in standardised mortality rates, a declinewas seen in all groups between 1981 and 2004. However, the extentof decline varied. For men receiving SBIB, mortality rates declined42% (2354/100 000 to 1371/100 000), compared to 45% in those notreceiving SBIB (551/100 000 to 302/100 000). In women receivingSBIB, the decline in mortality rates was 31% (1295/100 000 to 889/100 000) compared to 41% in the non-SBIB group (342/100 000 to202/100 000). The female SBIB mortality rate decline was non-linear, with a slight increase (albeit with overlapping confidenceintervals) between the 1996e99 and 2001e04 cohorts.

SBIB = sickness benefit or invalid’s benefitMortality rates are age and ethnicity standardised to 2001 population.

0

500

1000

1500

2000

2500

3000

No SBIB SBIB No SBIB SBIB

Female Male

Stan

dard

ised

m

ortality/100 000

1981-841986-891991-941996-992001-04

Fig. 3. All cause mortality rates by benefit receipt ages 25e64. SBIB ¼ sickness benefitor invalid’s benefit. Mortality rates are age and ethnicity standardised to 2001population.

Looking at trends in inequality, there was a modest decline inrelative inequality in men from 4.27 (95% CI 3.94 to 4.63) to 4.04(3.80e4.30) between 1981e84 and 1996e99. This was followed byan increase in the 2001 cohort to 4.54 (4.28e4.82), just overlappingwith the 1996e99 confidence interval. For women, relativeinequality declined from 3.79 (3.28e4.39) to 3.39 (3.07e3.74)between 1981e84 and 1991e94, but then increased to 4.41(4.11e4.74) by the 2001e04 cohort, non-overlapping with all butthe 1981e84 cohort. Absolute inequalities in men declined ina constant and statistically significant fashion from1803/100 000 to1069/100 000 between 1981e84 and 2001e04. Inwomen, absoluteinequalities declined between 1981e84 and 1996e99 from 954/100 000 to 604/100 000 and then increased to 688/100 000 in the2001 cohort (although confidence intervals overlap).

Table 4 disaggregates SB and IB for the 1981e84, 1996e99 and2001e04 cohorts. (Less than 5% of SBIB people received both SB andIB in the year preceding the census.) Inwomen the proportion of allSBIB that were SB increased from 39% in 1981 to 51% in 1996 andthen declined to 42% in 2001. In men SB was 53% of all SBIB in 1981declining to 43% in 2001. Table 4 shows that the growth in numbersof recipients of SBIB between 1996 and 2001 was driven by growthin the IB category e SB remained largely stable. While mortalityrates in both groups were higher than the rest of the working agepopulation at all points in time there were variations in trends. In1981e84 recipients of SB and IB had similar mortality rates withinsex. But by 1996e99 and 2001e04, the SB mortality rates had fallenby about 58%, compared to declines of 32% for IB in men. Forwomen on SB, mortality declined 51% compared to 19% in invalid’sbenefit recipients.

Discussion

There was an increase in the proportion of the populationreceiving SBIB between 1981 and 2004 in New Zealand, from 2% of25d64-year-olds to 5% in 2001. The increase was sharpest in the60e64-year age group. Over this time SBIB receipt went from beingpredominantly distributed to men to being equally divided amongmen and women. People in receipt of SBIB had substantially highermortality rates (at least three times higher) at all points in timecompared to those who did not receive SBIB. Mortality ratesdeclined in all groups between 1981 and 2004. Relative inequalityin mortality rates between SBIB and non-SBIB was largely constant,but absolute inequality reduced. Considering SB and IB separately(not possible for full time series), mortality rates fell more for SB

Table 2Person time, deaths, standardised rates, rate ratios and rate differences all cause mortality by SBIB status for females.

Cohort SBIB receipt Person Time (years) Deaths (n) Std Rate 95 % CI SRR 95 % CI SRD 95 % CI

1981 No SBIB 1,961,440 6228 341.7 329.7e353.6 Reference groupSBIB 24,060 336 1295.4 1112.3e1478.5 3.79 3.28e4.39 953.7 770.2e1137.2

1986 No SBIB 2,119,379 5889 312 301.5e322.5 Reference groupSBIB 37,262 417 1084.7 955.5e1213.9 3.48 3.07e 3.93 772.7 643.1e902.3

1991 No SBIB 2,267,953 5349 277.2 267.8e286.5 Reference groupSBIB 65,961 696 939.6 853e1026.2 3.39 3.07e3.74 662.4 575.3e749.5

1996 No SBIB 2,448,567 5019 234.7 226.8e242.6 Reference groupSBIB 110,287 1083 838.6 779.4e897.8 3.57 3.30e3.86 603.9 544.2e663.6

2001 No SBIB 2,595,331 4725 201.5 194.6e208.4 Reference groupSBIB 76,678 1530 889.3 833.8e944.9 4.41 4.11e4.74 687.8 631.9e743.8

Numbers of deaths are random rounded after calculation of rates.Mortality rates are age and ethnicity standardised to 2001 population.SBIB¼ sickness benefit or invalid’s benefit.

C. Shaw et al. / Social Science & Medicine 73 (2011) 568e575 573

(over 50%) than IB (about a quarter) between 1981 and 2004. At thesame time, a shift in the composition of the beneficiary populationoccurred, with the proportion of SB recipients decreasing (and IBrecipients increasing) over the study period.

The increase in uptake seen, and the proportion of the workingage population receiving SBIB in New Zealand, is similar to that seenin many other OECD countries (Gjesdal et al., 2004; Kemp et al.,2006; Organisation for Economic Co-operation and Development,2003). About 5e7% of the working age population were receivingdisability benefits in most OECD countries in the late 1990s(Organisation for Economic Co-operation and Development, 2003).

The level of excess mortality among SBIB recipients in NewZealand is similar to, or slightly higher than, other countries (Ahs &Westerling, 2006a; Karlsson et al., 2007; Quaade et al., 2002; Rupp& Scott, 1996; Wallman et al., 2006). Four non-mutually-exclusiveexplanations have been posited for the increased mortality rates inrecipients of incapacity benefits in working age persons. Firstly,excess mortality risk could be due to the underlying disease forwhich the person was awarded the specific benefit. Secondly, it ispossible that individuals that receive SBIB may have other seriousmedical conditions that both preclude employment and increasemortality risk, but were not the recorded reason for receiving SBIB.Thirdly, people who receive the SBIB may have other risk factorsthat increase mortality risk. Finally, lack of work itself couldincrease the risk of mortality (Wallman et al., 2006).

While this study is not able to look at most of these factorsdirectly due to the use of linked census data (as opposed to healthsurvey follow-up) there is some evidence from other New Zealanddata to support the second and fourth explanations (T. Blakely,Collings, & Atkinson, 2003; Ministry of Health/IntersectoralAdvisory Group, 2004). Additionally, analysis of other informationon the NZCMS dataset provides support for the third explanation as

Table 3Person time, deaths, standardised rates, rate ratios and rate differences all cause mortali

Cohort SBIB receipt Person Time (years) Deaths (n) Std Rate

1981 No SBIB 1,923,956 10,071 551.1SBIB 41,543 1203 2353.7

1986 No SBIB 2,066,312 9456 493.6SBIB 59,145 1488 2130.5

1991 No SBIB 2,180,950 8280 428.5SBIB 75,973 1641 1846.2

1996 No SBIB 2,311,584 7467 366.6SBIB 114,054 2037 1482.2

2001 No SBIB 2,397,858 6768 301.6SBIB 74,020 2289 1370.5

Numbers of deaths are random rounded after calculation of rates.Mortality rates are age and ethnicity standardised to 2001 population.SBIB ¼ sickness benefit or invalid’s benefit.

the population of people receiving SBIB in New Zealand are morelikely to smoke, be unmarried, live in a deprived neighbourhood,have low income and no educational qualifications compared to therest of the working age population (data not shown). These are allrisk factors that increase mortality risk either in their own right orclustered with the others (Marmot & Wilkinson, 2006). Althoughthe first explanation is intuitively appealing there is no New Zea-land-specific evidence to support it. Interestingly one follow-upstudy of mortality in individuals receiving incapacity benefits inSweden showed no significant association between cause of deathand original reason for the award of the incapacity benefits(Wallman et al., 2006).

The decline in mortality rates among SBIB recipients reflectssecular trends in mortality among the New Zealand population ingeneral (T. Blakely, Tobias, Atkinson, Yeh, & Huang, 2007). There area number of possible explanations for why the differences inmortality between the two populations have been preserved overthis time period, despite both declining. These explanations includefirstly, mortality drivers are the same in both groups and arechanging at similar rates in both groups (thus preserving the gap).Secondly, that mortality drivers are different between the groupsbut change in such a way that the net effect is comparable declinesin the two populations. In the absence of detailed panel data canweshed any light on these theories? We could consider what thecauses of death are in the SBIB population compared to theremainder of the working age population and we could also look attrends in the distributions of drivers/risk factors for mortalitybetween the populations. The NZCMS allows us to look at high levelcauses of death. This data shows that broadly speaking, althoughrates are higher in the SBIB population, causes of death are thesame as the non-SBIB population at any point in time (e.g. cancer,cardiovascular disease)(data not presented). In terms of risk factors,

ty by SBIB status for males.

95 % CI SRR 95 % CI SRD 95 % CI

535.6e566.6 Reference group2174.8e2532.5 4.27 3.94e4.63 1802.6 1623.1e1982.1480.2e507 Reference group1992.5e2268.5 4.32 4.02e4.63 1636.9 1498.2e1775.5416.3e440.7 Reference group1731.8e1960.6 4.31 4.02e4.61 1417.7 1302.6e1532.7356e377.2 Reference group1400.9e1563.5 4.04 3.80e4.30 1115.6 1033.6e1197.6292.7e310.4 Reference group1298.7e1442.4 4.54 4.28e4.82 1069 996.6e1141.4

Table 4Sickness and invalid’s benefit numbers, death and mortality rates.

Sex Benefit Type Cohort Number on benefit Number of deaths Std Rate 95% CI

Female Invalid’s Benefit 1981 5046 225 1378.5 1126e1630.91996 19,227 747 1081.0 982.6e1179.52001 27,309 1161 1118.9 1032e1205.3

Sickness Benefit 1981 3168 114 1204.8 923.6e14861996 19,620 390 623.3 548.5e698.22001 19,926 417 588.9 520.7e657.1

Male Invalid’s Benefit 1981 6765 591 2445.8 2144.4e2747.21996 19,620 1326 1867.2 1734.5e20002001 26,763 1674 1699.6 1591e1808.2

Sickness Benefit 1981 7680 621 2326.0 2086.3e2565.71996 21,057 834 1166.3 1067.9e1264.72001 20,442 708 976.0 886.3e1065.7

Mortality rates are age and ethnicity standardised to 2001 population.

C. Shaw et al. / Social Science & Medicine 73 (2011) 568e575574

the NZCMS has access to smoking data in the 1981 and 1996cohorts. This shows that the proportion of the SBIB populationwhosmoked in 1981 was higher than the rest of the working age pop-ulation (42% vs. 34%) and did not reduce as much over the 15-yearperiod between 1981 and 1996 (38% vs. 24%). Thus, factors otherthan smoking must have improved over time among SBIB tocounteract the lesser fall in smoking rates. Further work is justifiedto explore possible reasons for similar percentage declines inmortality between SBIB and non-SBIB, despite different risk factorprofiles at any point in time.

The finding of different mortality rates between SB and IBrecipients was not surprising given the different purposes of thebenefits. However the different rates of decline in mortalitybetween SB and IB populations is intriguing. As most of the declineoccurred between the 1981 and 1996 cohorts, it is difficult to knowwhether this was a gradual process, or whether the 1981 cohortwas an outlier. If it is a real finding then one potential explanation isthat, over time, the targeting of the IB to the long-term disabled andthe SB to the short-term sick populations improved, possibly due tosome of the extensive policy and operational changes that occurredto these benefits over that time (Wilson et al., 2005).

Strengths and limitations

The strengths of this study include the use of census data withalmost complete population coverage (Statistics New Zealand,1996, 2002), thus results are unlikely to be affected by selectionbias. There was also relative stability of benefit identification andascertainment of death over this time in New Zealand.

There are some limitations. Firstly, we could not completely linkall eligiblemortality records to census records, thoughwebelieve theweights used in our analyses remove resultant linkage bias by socio-demographics. It may be that due to higher residential mobilityamong SBIBwe are less likely to link themand their rates are not fullycorrected. However, to bias the trend results in this paper wouldrequire a changing amount of linkage bias over timee somethingweconsider unlikely. Secondly, there may be under-reporting of benefitincome in the census, but this is likely to be consistent over time.Finally, due to thewording of the census question, wewere unable toseparately analyse SB and IB in all cohorts.

Conclusion

Mortality rates in SB and IB recipients are high and, despitedeclining over time, they remain substantially higher than theremainder of the working age population. The factors that deter-mine this high mortality rate and the trends in rates are not simpleto disentangle. One possible explanation for these trends is that the

drivers of mortality in this group have been declining at the samerate as the population not receiving SBIB, thus preserving the ‘gap’.To examine these factors further, research is required that includesbetter data on pre-existing health status, more detail on reasons forreceipt of any benefit, and incorporates comprehensive analysis ofthe structural determinants of benefit receipt.

Acknowledgements

Thanks to Moira Wilson, Keith McLeod and Joanna Broad forhelpful discussions. Thanks also to June Atkinson for assistancewith the data analysis.

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