mn leadership council on aging. 2010 policy summit: caregiving policy in minnesota december 7, 2010

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  • MN Leadership Council on Aging. 2010 Policy Summit: Caregiving Policy in Minnesota December 7, 2010
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  • Michele Fedderly Mark Hoisser Co-Chairs MNLCOA Welcome
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  • Mission Minnesota Leadership Council on Aging The Minnesota Leadership Council on Aging (MNLCOA) coalesces the resources and power of consumer, advocacy, social and health service organizations, to advocate boldly for and achieve positive system changes for older adults and their families.
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  • Mature Voices Minnesota Minnesota Association of Area Agencies on Aging Minnesota HomeCare Association Minnesota Medical Directors Association Minnesota Network of Hospice and Palliative Care Senior Community Services Volunteers of America of Minnesota AARP Minnesota Aging Services of Minnesota Alzheimer's Association Minnesota -North Dakota Amherst H. Wilder Foundation Care Providers of Minnesota DARTS ElderCare Rights Alliance Lutheran Social Service of Minnesota MNLCOA Member Agencies
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  • Welcome & Introductions MNLCOA Overview Supporting Caregivers in Minnesota o Variety Stakeholder - Broad Perspectives Public Sector - Funding and Needs Caregivers Personal Stories and Issues Leaders in Service - Whats Possible Break o Value of Informal System of Caregiving Research on Effectiveness of Caregiver Support o Reactor Panel Legislative Leaders Businesses and Employers Caregivers Participation Survey 2010 Summit Agenda
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  • Jean Wood, Director, Aging & Adult Services, Department of Human Services and Executive Director, MN Board On Aging Defining the Challenge: Need for Caregivers and Their Relationship to Formal Services
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  • Defining the Challenge: Need for Family Caregivers and Their Relationship to Formal Services 2010 MNLCOA Summit Jean Wood Aging and Adult Services, MN DHS Minnesota Board on Aging
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  • Who are Minnesotas Caregivers? Source: 2005 Survey of Older Minnesotans
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  • Who are Minnesotas Caregivers? Source: MN Behavioral Risk Factor Surveillance System
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  • Many Faces of Caregiving Between now and 2035, all regions of the state will become more racially and ethnically diverse. Important differences exist regarding need for support, preferences for support and acceptance of support among caregivers from different race and ethnic groups.
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  • Economic Value of Caregiving Source: AARP Public Policy Institute, 2007
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  • Demographic Pressures Source: MN State Demographic Center, 2007
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  • Demographic Pressures Source: MN State Demographic Center, 2007
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  • Demographic Pressures Transform 2010 Baby Boomer Survey If faced with health change, most would seek assistance in their home from family, friends and/or agency. More than 1/3 expect to spend some time providing care for friend or family member by 2020.
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  • Impact of Economic Downturn Economic downturn has caused caregivers to: Spend more of their own money and savings to cover caregiving expenses Move into same household as loved one Ask for time off less often to provide care Experience more stress in caring for their loved one Experience reduction in outside help
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  • Our Challenge Today We must reach more family caregivers with targeted and individualized support so that they can maintain their role longer and healthier. o Bring current evidence-based efforts to scale o Support a portfolio of interventions o Reach across the lifespan to maximize resources o Maximize opportunity with health care reform
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  • David Foster, Spousal Caregiver Caregiver Perspective
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  • Dr. Ed Ratner, Moderator Dawn Simonson, Overview of MN Initiatives Krista Oconnor, Eldercare Partners Susan Bulger, Evercare Caregiver Solutions Whats New in the Caregiving World?? Recent Changes and Trends in Caregiving and Caregiver Support
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  • Overview of services delivered through Minnesotas Aging Network
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  • Decade of Development National Family Caregiver Support Program created in 2000 by Congress Older Americans Act Program Provided a policy framework and funds for services to support family caregivers, primarily of older adults Necessitated a paradigm shift to focus on caregivers Grounded in long-standing recognition of caregiver burden and need for respite
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  • Caregiver Support Service Development Policies Recognizes the tremendous value of family caregiving Strives to be person-centered, affordable and accessible First sliding fee donation policy incorporated Important to meet unique needs of diverse caregivers and their families Goal was to develop a network of support through a statewide, coordinated system
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  • Minnesotas Approach Minnesota Board on Aging and Area Agency on Aging service development and provider Network Services developed and subsidized by Older Americans Act funds. Most became available in the LTC Waiver menu. Some expansion of existing models of respite care, education and training Early focus areas included statewide awareness campaigns to spur caregivers to self-identify
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  • Minnesotas Approach Core Services Developed Information about available services and supports Assistance in finding and arranging services Education and Training Coaching/consultation Support Groups Respite Adult Day Services Supplemental Services
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  • Minnesotas Approach By mid-decade, established Network began integrating innovative practice models and evidence- informed and evidence-based services Tailored Caregiver Assessment and Referral (TCARE) Translation of the Mittleman-New York University caregiver counseling and support intervention Powerful Tools for Caregivers Refined family caregiver coaching and counseling Adaptation of some services and supports for ethnic caregivers
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  • For Information Dawn Simonson, 651-917-4602 Leanna Smith, 651-917-4653
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  • 2010 MNLCOA Summit Caregiving Policy in Minnesota Tuesday, December 7, 2010 Wilder Center 451 Lexington Parkway N. St. Paul, MN 55104
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  • Changes & Trends in Caregiving & Caregiver Support Provider Perspective Krista OConnor Administrator Eldercare Partners
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  • Key Historical Events Caregiving NFCSPMCSC National Award Research Transform 2010 Service Delivery
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  • National Family Caregiver Support Program (NFCSP) 2000 Under Older Americans Act Title III-E Funding Area Agencies on Aging Program Development for Family Caregivers
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  • Metropolitan Caregiver Service Collaborative (MCSC) December, 2002 Title III-E Funded 20 Organizations Vision- Community will recognize, value and sustain the work of family caregivers. Purpose Share knowledge Promote caregiver services Strengthen public policy
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  • National Caregiving Award November, 2006 National Alliance for Caregiving MetLife Foundation Innovation, Responsiveness, & Effectiveness Caregiver Coaching Program
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  • Evidence Based Research November, 2006 9.5 Year Study 406 Spouse Caregivers Community Dwelling Patients w/Alzheimers Six Sessions of Counseling Support Group Participation Ad Hoc Phone Support 28.3% Reduction of NH Placement Caregivers Satisfaction Key Component
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  • Transform 2010 June, 2007 Five Themes Identified #2 Theme: Supporting Caregivers of All Ages Increase Supply & Types of CG Support Increase Public Awareness
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  • Caregiver Service Delivery 2000 2010 Title IIIE Funds EW/AC Coverage CS/SD Funding TCARE National Demonstration Project Minnesota Family Memory Care Creative Partnerships MSCS Provider Trainings
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  • Barriers to Caregiver Support Barriers Administrative Inefficiencies Caregiver Awareness Professional Awareness
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  • Administrative Inefficiencies Authorization Requirements County Contracts DHS Registration MN-ITS & Claims Submission Health Plans Reporting Requirements Reimbursement per Session
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  • Lack of Awareness General Population Role of the family caregiver NOT recognized Value and burden of family caregiving NOT recognized/understood Effectiveness of caregiver support programs NOT recognized/understood Messages must be heard several times Messages must be reinforced by health care professionals, employers, community resources Restricts private pay market
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  • Lack of Awareness - Health Care & Other Professionals Focus is on the patient Disconnect between CG health and patients health Limited contracts between health plans, counties, DHS Limited referrals for caregiver support services Benefits exhausted or not offered
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  • MNLCOA Policy Proposal Ensure Funding Ensure Availability of Services Increase Awareness Address Administrative Ine