mental health and learning disability - arc projects and resources leeds conference 9th dec 2008...
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Mental Health and Learning Disability -
ARC projects and resourcesLeeds Conference
9th Dec 2008
David Grundy
About ARC (www.arcuk.org.uk)
Member led organisation (mainly social care orgs)
Offers members a voice and representation at a national level
News and policy updates
Various training LDQ - NVQ etc
CRB/POVA
Undertakes a wide range of projects of interest to members
About ARC For example -
Handling Medication In Social Care Settings
Research project into Hospital Admission for People with a Learning Disability in Wales
Hosting National Learning Disability and Ethnicity Network (www.lden.org.uk)
Moving On Up project (www.movingonup.info)
The Candle project and the Clear Thoughts project
Mental Health in Learning Disability
Increasing national focus on positive mental health/emotional well-being (for everyone)
Both Candle and Clear Thoughts projects look at positive mental health not just mental ill health
Front line social care staff might not look for signs of mental ill health - or identify what they are seeing and mental health issues
Resources also consider related issues such as physical health, diet, exercise, sensory impairment and related conditions such as autism and epilepsy - holistic view
Mental Ill Health in Learning Disability
Having a Learning Disability is the single most significant factor identified in increasing the risks of mental ill health
Percentage of people who have a learning disability who also have mental health problems
Rutter et all 1976 - 30% Count Us In 2002 - 40%
Mental Ill Health in Learning Disability
The other common risk factors also apply to people who have a Learning Disability
Family breakdown Social isolation Poor communication Little control or choice over life
Mental Health in Learning Disability
Young people with a learning disability have a greater chance of being exposed to negative life events
65% of YP with LD grow up in poverty 52% of YP with LD have a parent carer with mental ill
health 51% of YP with LD have a parent carer with no
educational or vocational qualifications 25% of YP with LD have a parent carer with physical
health needs
60% of YP with LD have been exposed to two or more of these negative life events
(Emerson & Hatton 2007)
Interaction between LD & MH Most people with learning disabilities were not aware of
the term ‘Mental Health’ Families were suspicious of the term Mental Health and
need for a separate, additional label Young people with learning disabilities or the people
they go to for advice are not well informed about mental health and mental health services
Some people from BME communities found situation more difficult due to ‘stigma’ from community members
FPLD (Foundation for People with Learning Disabilities) 2006
Cultural Issues
Many people from BME communities have had negative experiences when accessing (all) healthcare services
Families worry about responses and attitudes of others both within and outside their community
Issues of translation and interpretation
Cultural differences in perceptions of health and illness - Western Medical Model may differ from cultural ‘norm’
Health and Sensory Issues
People with a learning disability are more likely to have problems with their hearing and vision than the general population.
Core basic physical ill health often also present
Overshadowing
All these needs should be checked. Might want to be something services suggest happens during any waiting for an appointment.
ARC Mental Health in Learning Disability
Projects ARC have 2 projects regarding mental health in learning
disability (both DoH funded)
Clear Thoughts - a ‘knowledge centre’ for individuals, their families and frontline staff
- and
The Candle Project - CAMHS and New Directions in Learning Disability and Ethnicity
Mental Health in Learning Disability Projects
Clear Thoughts - a web based knowledge centre for individuals, their families and frontline staff. The website looks at positive mental health and mental illness
A mainly web-based resource offering information and links to other sources of advice and support
Aims to be clear, accessible and easy to navigate around
Involvement of a range of other organisations and professionals
6 months (or so) left of current DoH funding
Mental Health in Learning Disability Projects
Clear Thoughts - does not just look at mental health and learning disability. Holistic view required.
Pages on the website for Challenging Behaviour, Cultural Issues, Autism and Epilepsy for example
Newsletters and email groups to keep people in touch
Mental Health in Learning Disability Projects
Clear Thoughts - current developments
Images (developed by CHANGE and ‘wordbank’ (what people who have LD say about them)
Mental Health in Learning Disability Projects
Clear Thoughts - current developments
Simple checklists on 8 areas regarding mental health
Clear Thoughts Resources
Available from Clear Thoughts -
Easy to read information Full audio option on the website 22 specially commissioned images in a
CHANGE Picturebank style 8 Checklists regarding aspects of mental
health Staff mental health awareness training (one
day course)
Mental Health in Learning Disability Projects
The Candle Project - guidance and resource for frontline staff working with children and young people who have a learning disability and mental health issues
Resource covers the key areas of Mental Health, Learning Disability, Ethnicity and Transition
Will be of use in a range of settings and services Focus on practical steps people can take Makes the links between an individual’s development,
their culture, their lifestyle, their environment and their mental health
The Candle Resource The resource is easy to use and offers guidance that can
be used in a number of ways, these include – A ‘pick up and read’ resource for teams and individuals
facing general or specific problems. A tool for discussion within team meetings or with other
professionals. For individual personal development and training. Developing a training programme for staff. A signpost to other resources and material that will
assist staff. A signpost to other organisations and government
departments involved in CAMHS provision
The Candle Resource
Additional sources of advice and support are highlighted throughout the resource and these can help with specific problems
Individuals or organisations can photocopy the
handouts, case studies and tips These can be used to help think through the
key issues individually or as a team during team meetings, away days or informally
Mental Health in Learning Disability Projects
The Candle resource can be downloaded from the Clear Thoughts website www.clearthoughts.info
Or available in hard copy - £25.00 for B&W or on CD £5.00
Mental Health in Learning Disability Projects
The Clear Thoughts checklists can be downloaded from the Clear Thoughts website
www.clearthoughts.info
The images and wordbank and the checklists are available on CD £15.00