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Making a difference Participation and wellbeing Professor Carolyn Kagan, Research Institute for Health and Social Change Manchester Metropolitan University RENEW Intelligence Report

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Page 1: Making a difference v5 - Community Psychology a difference (proof 3).pdf · Making a difference:Participation and wellbeing Participation – both as a form of consultation and as

Making a differenceParticipation and wellbeing

Professor Carolyn Kagan,Research Institute for Health and Social ChangeManchester Metropolitan University

RENEW Intelligence Report

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Summary

Is community activism bad for your health? Everyoneagrees that regeneration projects benefit when localpeople get involved; not many have stopped to ask howsuch involvement affects the participants.

In an ideal world, people who take an active part intheir communities gain confidence and pride from whatthey do. Everyone wins as the neighbourhood improvesand the activists increase their sense of satisfactionfrom a job well done.

But research summarised by Professor Carolyn Kaganin this report suggests that far from being a source ofwellbeing, participation can actually increase stress. It tellsof community activists working under unrelentingpressure: isolated, without supervision, coping with localconflict, without time off – and without pay.

By definition, these activists are themselves alreadyunder considerable stress from the constant grind oflife in an area of deprivation.Their communityinvolvement then often results in them giving hours ofemotional support to other group members, who mayhave been struggling all their lives with poor facilitiesand living conditions, and sometimes addictions, abuseand even violence.

On the one hand, local people may see the activistsas the problem solvers of the community; on the other,their links with the authorities can provoke suspicionor even hostility.

One woman interviewed for this research wasworking with the police to tackle drunk and disorderlybehaviour. She had her windows broken.Another had‘grass’ daubed on the side of her house.

RENEW Intelligence Report

RENEW Northwest is publishing aseries of papers based on currentgood practice in regeneration.Theyaim to provide leaders, practitionersand professionals in Northwestregeneration with accessible, evidencebased summaries of ‘what works’ inorder to inform their own activities.Compiled by a respected researcher inthe field, their intention is to draw oncurrent research to challenge currentpractice and suggest new ways to buildsustainable communities in the region.

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The constant hassles and stress can produceburnout similar to that which is well recognised amonghighly paid executives.

This research suggests two ways to counter such athreat.To start with, it is vital that everyone who getsinvolved has the information and support they need tomake the experience enjoyable and not exhausting,fulfilling and not frustrating.Too often, activists fail toget the access to power and resources that they need.

Second, it is crucial to recognise that there aredifferent approaches to and degrees of participation.Formal participation, such as consulting residents abouta regeneration project, is a top-down system that canoften result in local needs being defined by theprofessionals, with little ‘ownership’ by residents.

Informal participation – a local campaign to save ahospital or parents setting up an after-school club, forexample – works from the bottom up. It emerges fromthe people and is not initiated by a professional or anauthority. General participation, such as getting to knowthe neighbours or attending a local cultural event, is athird type, more low key than the other two but stilllikely to improve social cohesion and wellbeing.

In any project it is vital for everyone – organisersand participants – to be clear about what kind ofparticipation they are looking for; and to ensure thatadequate support and resources are in place for themembers of the community actively involved.

● Participation can over-burden some people, causingstress and burn-out, and the very skills, knowledge andenergies essential for meaningful regeneration might belost.

Making a difference: Participation and wellbeing

● Participation – both as a form of consultation and asa grass roots movement – needs to be supported if thepressure on some community members is to berelieved.● Cultural enrichment that offers short term andvaried opportunities for participation can contribute towellbeing, but the converse is also true, whereunrealistic expectations or unsympathetic behaviour byprofessionals or organisations creates problems.● There is a need for more research and, based on theevidence we already have, a much wider dialogue aboutthe positive and negative effects of participation onwellbeing if we are to ensure positive, effective andsustainable regeneration practice in the future.

‘In an ideal world,

people who take an

active part in their

communities gain

confidence and pride

from what they do’

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Introduction

Participation by local people is the cornerstone ofsocial regeneration policies and practices. FewGovernment policies or programmes fail to set outcommunity engagement as critical to success, whethertackling social inclusion, promoting urban renaissance orimproving service delivery.The following useful list1

summarises the reasons for encouraging participation:● Community definitions of need, problems andsolutions are different from those put forward byservice planners and providers.● Community knowledge is an important resource andwidens the pool of experience and expertise thatregeneration and renewal strategies can draw on.● Community participation gives localresidents the opportunity to develop skillsand networks that they need to addresssocial exclusion.● Active participation of local residents isessential to improve democratic andservice accountability.● Central government requirescommunity participation in regenerationand neighbourhood renewal strategies.

But there is nothing here aboutwhether participation is good for thepeople who take part. Plenty of researchhas been done on the physical,environmental and economic benefits ofregeneration; little attention has been paidto the psychological aspects.

Wellbeing and living in areas of social andeconomic deprivation

Wellbeing refers to health in its broadest sense:physical, emotional and psychological. It also includesthe development of identity, attainment of personalgoals, pursuit of spiritual meaning, prevention ofmaladaptive behaviours, development of skills, and socialsupport.Wellbeing is closely linked to quality of life andto what is known as ‘autonomy of agency’, or controlover events in one’s life.2

There is plenty of evidence to support the idea thatpeople who live in poverty experience poorer healthand are likely to die earlier than other people. Similarly,there is widespread recognition that wellbeing is

RENEW Intelligence Report

‘Wellbeing refers to

health in its broadest

sense: physical,

emotional and

psychological’

Figure 1The determinants of health (from Wanless, 2004, p25)

Gen

er

al so

cioeconomic, cultural and environmental conditions

Livin

g and working conditions

So

cial an

d community influences

Indi

vidual lifestyle factors

Age, sex andhereditary

factors

Source: Policies and strategies for promoting social equity in health,G Dahlgren and M Whitehead, 1991

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affected by many factors, even if individual behaviour isnearly always blamed more than anything else for poorhealth.3 Figure 1 illustrates the different layers ofinfluence on health and wellbeing.

When we consider health in the context ofregeneration, we are clearly talking about the outerlayers of influence, particularly those factors linked tothe material conditions of poverty and deprivation.

Wellbeing is not so simply related to absolutepoverty. Income distribution is the most importantfactor.The greater the gap between rich and poor, theworse the health of those at the bottom of the socialhierarchy. It seems that socio-economic stress resultingfrom material deprivation gives rise to poor health.4

Such stress can have physical effects, such as a weakimmune system, slow physical growth and low height. Italso has important psychological consequences thatthen contribute to poor health behaviours (Figure 2).

The situation peoplefind themselves in isvery similar to what isknown in the contextof stress as burnout.Wecan argue that peopleliving in areas ofdeprivation with little inthe way of communityactivity live in aconstant state ofexhaustion from thedaily grind, hopelessnessand despair.They areprone to ill health,accidents andrelationship breakdown.

To feel depressed,cheated, bitter, desperate,

vulnerable, frightened, angry, worried about debts or job andhousing insecurity; to feel devalued, useless, helpless, uncaredfor, hopeless, isolated, anxious and a failure: these feelings candominate people’s whole experience of life… it is the chronicstress arising from feelings which matters, not exposure to asupposedly toxic material environment.The materialenvironment is merely the indelible mark and constantreminder of the oppressive fact of one’s failure and of theatrophy of any sense of having a place in a community and ofone’s social exclusion and devaluation as a human being.5

Making a difference: Participation and wellbeing

Figure 2Socio-economic stress and its impact on health

Constant threat and worryRelationship strainAngerBitternessAggressionPessimism

EmotionalDespairTensionUnhappiness

PhysiologicalReduced immune system andsusceptibility

SocialIsolationRelationship breakdownIntolerance

BurnoutExhaustionApathy and helplessnessLow self esteemLow self-confidenceLow aspirationsTension reduction – eating,smoking, alcohol, prescriptionor illicit drugsColds, flu etcCoronary heart diseaseIncreased accidentsSelf absorption, depressionAttempts to retain control –eating/obesity, smoking,aggression, racism?

Material conditionsAbsolute povertyPoor housing and environmentUnemploymentDebtFew cultural activities

InsecureFinancesHousingWorkRelationshipsSafety

Material conditions leads to lack of leads to emotional, with negative health engagement which social and outcomes physiological effects

‘It seems that socio-

economic stress

resulting from

material deprivation

gives rise to

poor health’

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Participation can contribute to positive wellbeing

At the very least, participation in community life helpsprevent social isolation. Participation in collective actionmay even lead to increased social support, which in turnacts as a buffer against the damaging effects of stress.

This looks like a straightforward link betweenparticipation and increased wellbeing. However, we needto look at different forms of participation.

In his book Participation: the new tyranny? (edited withKothari)6, Bill Cooke argues that there is a differencebetween ‘participation as a means’ and ‘participation asan end’ in social development. Referring to formalparticipation, such as consultation processes inregeneration, he argues that participation as a meansbuilds a sense of commitment and improves servicedelivery.

Participation as an end, however, increases localpeople’s control over development activities that hadpreviously excluded them.

There are two other main types of participation inthe UK at the moment.As well as formal participationby invitation from above, such as resident task orconsultation groups, there is informal, bottom-upparticipation. Residents’ groups that emerge to deal withspecific local problems are an example.

Local informal participation often arises throughcampaigns to retain facilities such as hospitals orschools, or in opposition to planned developments likeroad schemes.This participation is often short-lived but

RENEW Intelligence Report

Participation-consultation as a means:Darwen Town Centre Partnership

The regeneration strategy for Darwen town centre recognisedthe need to strengthen the consensus between local residentsand other town centre stakeholders. Every household receiveda copy of the draft masterplan, a wide range of stakeholderswas consulted, and the plan was then discussed at a publicmeeting.The whole process was overseen by the DarwenPartnership Board, which includes representatives fromdisadvantaged groups such as the elderly and young people.Decision making was kept informal so as to retain theinvolvement of the different interest groups.www.retail-network.org (you need to subscribe to this siteto access this content).

Participation-consultation as an end:Neighbourhood Learning Project, Blackburn withDarwen Borough Council

The Neighbourhood Learning Project not only encouragesresidents to say how they would like their neighbourhoodsto change, it also teaches them how decisions are made. Alearning process based on the work of Paulo Freire aims tobring awareness and understanding, empowering people tochallenge service providers about local issues. A ‘buddy’scheme ensures that the skills are passed on, and morethan 400 local residents have been involved. Local groupsnow have the knowledge they need to hold key decisionmakers to account, and this has brought about manyresident-led improvements in services and facilities.Thoseinvolved have also been accredited for their learning.www.active-citizen.org.uk/works_details.asp?id=2004820113715&cat=11&parentid=3

‘Participation in

collective action may

even lead to

increased social

support’

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may lead to stronger networks, that in turn stimulateother participation networks.The fuel protests of 2001and the anti-war protests of 2003 are examples of localinitiatives that grew into wider movements for change.Bottom-up participation also arises from the wish forpositive action – residents may need a local service oradditional support, or may combine their energies tohelp themselves.The crucial thing about this kind ofparticipation is that it is not initiated by an agency,professional or authority. It emerges from the people.

Lastly, there is general participation or involvementin community life.According to the latest census, manymore people in the UK are involved in a low key way,on a one to one basis with others, than are in organisedcommunity groups.There has also been an explosion ofinterest in what is known as social capital: the networkof relationships and civic involvement that create theconditions for a happier, healthier society.Among itsadvocates is Harvard University professor RobertPutnam, author of Bowling Alone7, the seminal study onthe breakdown and revival of social networks in theUnited States.

Bodies such as the Organisation for Economic Co-operation and Development and World Bank haveaccepted the thesis that social capital is at the root ofsuccessful communities.The World Bank’s definition isthat ‘social capital refers to the institutions, relationships,and norms that shape the quality and quantity of asociety’s social interactions. Social capital is not just thesum of the institutions which underpin a society – it isthe glue that holds them together.’ These can includeeverything from membership of a church, mosque oreven an allotment society to taking part in informal five-a-side football games or forming a reading circle.

Making a difference: Participation and wellbeing

Informal participation:Tenants’ groups, campaign and protest groups

Most authorities have a tenant participation support unitwhich offers support for emerging tenants’ groups.TheTenant Participation Advisory Service is an independentproject based in Salford which provides information andnetworking opportunities for new and established residents’groups.www.tpas.org.uk

Different levels of involvement:Salford Action Research Project (SARP)

The SARP project sought to find innovative ways ofinvolving local people in decisions about theirneighbourhoods. In one case, members of the Oxfam UKPoverty Programme trained residents in ParticipatoryAppraisal, an involvement and empowerment process usedin developing countries.That team then developed anumber of ways of engaging with the local community tocontribute to the development of the local regenerationdelivery plan.www.hda.nhs.uk/sarp/outputs/rtfdocs/artf/sal1interim.rtf

The Seedley and Langworthy area of Salford has alsodeveloped strategies for involving local people, including aPlanning for Real process, in which local people and staffworked alongside each other to develop and deliver aconsultation.www.communitypride.org.uk

‘This participation is

often short-lived but

may lead to stronger

networks that in turn

lead to other

participation

networks’

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Top down participation is only ever likely to involverelatively few people, although those who are involvedmay well gain better knowledge, understanding andpossibly control over decision-making.The prolongedinvolvement of a few may also lead to different kinds ofinvolvement by many more.

Participation may also lead to increased confidenceand skills.These gains are particularly important foryoung people, and there is some evidence that involvingyoung people in regeneration projects also helps divertthem from antisocial behaviour.The two youth projectsdescribed below emphasise developing responsibility anda sense of positive citizenship.These are only possible ifwellbeing is also improved (see boxes, below and right).

All these examples of participation in practice arerelatively new and need to be evaluated in detail,

especially in regard to how they affect health andwellbeing. Some of the studies that are emerging intothe effects of regeneration on mental health andwellbeing are not encouraging.

It seems that participation-consultation andinvolvement that is based on external requirements toinvolve local people will often proceed too rapidly,

RENEW Intelligence Report

The participation of young people inregeneration:Youth Works, Colne, Lancashire

Youth Works is a national partnership that helps ‘at risk’young people between the ages of 8 and 25 play acreative role in the regeneration of their communities andin creating safer environments. A partnership betweenLancashire County Council and Groundwork EastLancashire worked with young people to plan a range ofactivities and facilities on a local estate. It had considerablesuccess in reducing youth crime and antisocial behaviour,and many of the young people involved have also foundjobs or training places.The key to the project’s success wasthe participation of young people in all the activities.www.active-citizen.org.uk/works.asp

Rochdale youth projects:Youth Inclusion Project and Junior NeighbourhoodWardens

Two linked projects in the Langley neighbourhood ofRochdale sought to engage local young people.The youthinclusion project involved outreach work with young peopleaged 13 to 16, offering them a range of opportunities,particularly at peak times for offending.The young peoplewere involved in the planning and decision makingprocesses.They were offered training workshops andopportunities to take part in community activities andsafety projects. One initiative to have arisen from this is theJunior Neighbourhood Wardens Project.Its aim was to give children aged 9 to 11 a way ofcontributing to their community, building self respect anddeveloping a sense of responsibility.Young people are givenuniforms and asked to record local problems in a bookthat is then passed to the neighbourhood wardens.Thejunior wardens also help community groups with activitiessuch as gardening. Family members can become volunteersupervisors. Some young people have taken a real pride inbeing wardens and the community has developed respectfor them, which in turn contributes to positive wellbeing.www.active-citizen.org.uk/works.asp

‘Some of the studies

that are emerging

into the effects of

regeneration on

mental health are

not encouraging’

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missing the preliminary stages of listening to localpeople, or failing to build in ways for people todiscuss and develop their own awareness andideas.8 This results in local needs being defined bythe professionals and regeneration workers, whooften live outside the area and have labelled aparticular neighbourhood as lacking in some way.Local people – who know about invisible strengths,networks and economic activity – may well take adifferent view.

Other studies that have looked at changes inmental health and wellbeing more generally are alsodiscouraging.9,10 General participation, such ascontact with neighbours or going to a local event,tends to reduce stress, largely because of the socialcontacts and physical activity involved. It may alsoimprove social cohesion and general wellbeing, butit is unlikely to have a direct impact on people’sliving conditions. Bottom-up participation andcollective action are likely to have the greatest impacton wellbeing and the highest potential for changing thematerial circumstances of life.This type of participationdoes several things.11

First, through a process we can call conscientisation, thegroup’s critical awareness is developed.This may be partof what was happening in the examples from Blackburnand Salford (pages 6 and 7). Second, members of thegroup re-negotiate their collective social identity andviews of the world, sharing information and understandingin a way that increases the likelihood of adopting morehealthy behaviours.This may be part of what washappening in Darwen’s Partnership Board (page 6). Finally,people’s confidence and ability to take control of their

lives is reinforced, particularly in relation to their health.People are empowered to make changes to their lives, asmay be the case in the young people’s projects describedon page 8 (see Figure 3).

Participation as a threat to wellbeing

In practice, however, bottom-up, active participation andcollective action is exhausting. It takes time, energy andperseverance. Not everyone who opts to take part isstrong and resilient.They may have been struggling withhardship all their lives. Community leaders and otheractivists are under relentless pressure.They have no

Making a difference: Participation and wellbeing

Figure 3Participation contributing to positive health outcomes

Participation and involvementSocial supportCollective actionAlliancesPartnershipsResourcesCultural activityOptimism

Shared understandingConscientisationSense of purpose andraised aspirationsPhysical and cultural activitySense of ‘other’ perspectiveShared representationsControlPositive identity

Engagement and good healthEnergyPositive sources of controlRaised self esteem and selfconfidenceNo time to be ill – positivehealth behavioursEmpowermentPro-social behaviourPositive individual andcollective identitySocial cohesion and safetyStrong sense of community

Material conditionsAbsolute povertyPoor housing and environmentUnemploymentDebtFew cultural activities

InsecureFinancesHousingWorkRelationshipsSafety

Possibility of changingmaterial conditions

or health

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supervision, despite working in complex humansystems, often with people with extensive personaldifficulties.They have no colleagues to share the loadwhen the going gets tough, no working hours, time offor holidays, no development activities built into therole.And they do not get paid.

The Community Psychology Team at ManchesterMetropolitan University is working closely withresidents who participate in tenants’ groups in northManchester, one of the most deprived areas of thecountry.12 These residents are all working hard toimprove their areas and to motivate more people toget involved.As a team, we are not measuring wellbeing;we are listening to and recording each others’ stories,observing what happens at meetings with professionalsinvolved, and seeing how community participationaffects lives in different ways.13,14,15

People who take an active part often get satisfaction,a feeling of wellbeing and pride in what they do.Theircommunity involvement ‘fills their lives’ and they cannotimagine any other way of living. However, they oftenstruggle to get the information and resources tosupport their work.When they liaise with professionals,they may be treated with suspicion, and sometimes withwhat they consider intimidation. Other communitymembers sometimes view their involvement withdistrust, sometimes with hostility, and at other timeswith gratitude and praise. Community activists are atone and the same time seen as the problem solvers ofthe community, and as part of the authorities.

There is extensive media coverage of how somepeople’s lives are destroyed by ‘yobbish’ antisocialbehaviour, crime and vandalism. Community activists are

affected by these things too; their wellbeing also suffers.Yet many of the battles they have are with professionalsand agencies. Imagine how the pressure on activistsincreases when authorities encourage the formation ofresidents’ groups and then ask those same groups to

RENEW Intelligence Report

Two activists who are working closely with the police toresolve problems of drunk and disorderly youth passpeople in the street who hiss at them ‘grass’. One thenhas her windows broken and two months later the otherhas ‘grass’ daubed on the side of her house.

Another community activist has worked hard to involve agroup of local people, including children, in campaigningfor a clean and high quality environment. One day sheshows an environmental officer round the area and pointsout all the problems. He keeps asking her to report themto the one stop shop – which he manages. ‘Do you think Ihave nothing to do but sit on the telephone all day doingyour job for you?’ she retorts. ‘You have seen the problems– why don’t you report it?’

A crime and disorder liaison worker recently wrote to thechair of a tenants’ association to ask the members of thegroup to report to the police any local people whoappeared to be ‘living beyond their means’.

A community activist was asked to report incidentsperpetrated by a ‘neighbour from hell’ to the housingagency. She ran up a considerable debt on her phone andgot no help with paying the bill.What made it worse wasthat the housing agency did nothing with all theinformation she supplied.14

‘People who take

an active part often

get satisfaction, a

feeling of wellbeing

and pride in what

they do’

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identify problems,collect ‘evidence’against theirneighbours – andtake action too.

The examples(see box, left)illustrate some ofthe pressures.

Friendships havebeen fractured amidmisunderstandingabout who sayswhat to whom, andsome people havefound little time fortheir families because they are so busy.We know aboutthe effects of emotional labour (being ‘nice’, pleasantand supportive all the time), stress and burnout onhighly paid executives. I have suggested above that livingin an area of deprivation has a similar effect. Far less isknown about the emotional labour, stress and burnoutin community participation. In our work, however, wehave seen community activists who are overloaded andthwarted in their attempts to improve things, leading toburnout and the spread of low wellbeing (see Figure 4).

In order to reduce the danger of burnout, and toimprove wellbeing, top down and bottom upparticipation in regeneration must be supportedthrough information and hard resources. Professionalattitudes must change: there must be more opennessand social support. Every effort must be made not tooverload particular community activists and to ensure

people’s energies and enthusiasms are renewed.If participation is going to work, the blocks identified

in figure 4 must be removed, not by local people but bythe professionals and agencies involved.

Ways of thinking about and supportingparticipation

As we consider how to encourage participation forwellbeing, we need to take a closer look at theparticipative process.This will help us clarify what effecton wellbeing we would expect from it, and reflectcarefully to see if this has been achieved.

David Wilcox, in his Guide to Effective Participation,16

suggests five levels, or stances towards participation,that offer increasing degrees of control to the people

Making a difference: Participation and wellbeing

Increased participation leads to social, emotional and physiological effects. If thwarted, people return to hopelessness

Shared understandingConscientisationSense of purpose andraised aspirationsPhysical and cultural activitySense of ‘other’ perspectiveShared representationsControlPositive identity

Lack of resourcesLack of informationLack capacity and leadershipObstructionThwartingLack support

BurnoutExhaustionApathy and helplessnessLow self esteemLow self-confidenceLow aspirationsTension reduction – eating,smoking, alcohol, prescriptionor illicit drugsColds, flu etcCoronary heart diseaseIncreased accidentsSelf absorption, depressionAttempts to retain control –eating/obesity, smoking,aggression, racism?

No change in material circumstances

or health

Figure 4If participation is unsupported, burnout still occurs

Participation and involvementSocial supportCollective actionAlliancesPartnershipsResourcesCultural activityOptimism

‘In order to reduce

the danger of

burnout, and to

improve wellbeing,

top down and

bottom up

regeneration must be

supported’

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involved. Figure 5 summarises the five levels. Being clearabout what type of participation is expected orencouraged will help to ensure that people’sexpectations are not raised falsely, which is importantas blocked expectations can be perceived asobstruction and contribute to frustration and stress.

The community psychologist Maritza Montero, whowrites from a Latin American perspective, discussesparticipation from the point of view of those who areparticipating.17 She conceptualises participation as aprocess closely connected to the concept of‘commitment’, rather than a linear ladder with itsmetaphor of higher and lower forms of participation.

Montero pictures a dynamic system of concentric

circles with the nucleus of maximum participation andcommitment at the centre.The circles radiate throughdifferent levels of participation-commitment to the outerlayer of positive friendly curiosity with no commitment(see Figure 6).

For Montero, participation is a dynamic system.Individuals or groups can move in and out. Part of the taskof trying to encourage participation is to enablemovement from the outer to the inner levels, and anotherpart is to support those at the inner levels so that theyare able to retain their levels of commitment.

This paper has already discussed how there aredifferent kinds of participation in the UK, ranging fromcomplex projects with opportunities for involvement inmany different ways over a period of time, to smaller,simpler projects aimed at one group for a particularpurpose. In our work, we have found it useful to think ofparticipatory work along two dimensions of participation(proactive and passive) and commitment (high to low).

We can then map different activities and degrees ofinvolvement along these dimensions, as in Figure 7. Herewe can position the types of participation required bypolicy (similar to Wilcox’s levels) as well as participationroles in practice (similar to Montero’s positions in theparticipation space).

Community activists, who identify their own needs andset their own agendas and often find their own strategiesfor achieving change, are in the proactive participation, highcommitment quadrant. Community members andrepresentatives who work in partnership with agencies onpolicy agendas can also be situated in this quadrant.

Self-appointed community representatives who get co-opted into processes with agendas set by professionals

RENEW Intelligence Report

Figure 5

Levels of participation (Wilcox, 1994) –levels 3 to 5 involve substantial participation

Level of participation Activity

1. Information Tell people what is planned

2. Consultation Offer a number of options and listen to the feedback

3. Deciding together Encourage others to provide some additional ideas and options, and join in deciding what is the best way forward

4. Acting together Not only do different interests decide together what is best, they also form a partnership to carry it out

5. Supporting independent community initiatives Others are helped to do what they want – perhaps within a framework of grants advice and support provided by the resource holder

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could be situated in the proactive participation, lowcommitment quadrant. Professionals who are committed toworking on community issues but who work weekdays onlyand go home at night can also be placed in this quadrant.

This mapping of participation and commitment can beuseful for exploring movement over time, and for identifyingthose most at risk of stress, disaffection or burnout.

There are other ways in which increasedparticipation might be recognised. Fraser and Lepofskyhave some suggestions about how those defined as‘experts’ in the participatory process can boostresident-driven initiatives for change.18 These include:

● Questioning definitions of expert and resident● Legitimising alternative forms of collective action byneighbourhood residents (for example, situationswhereby ‘experts’ are not always intermediaries throughwhich residents must act)● Using research methods that give voice to residents’concerns (particularly as such concerns might conflictwith each other and with initiatives’ goals)● Pursuing techniques that use forms of knowledge thatare hybrids between ‘expert’ and ‘local’● Documenting the process of the initiatives tounderstand when practices are operating progressively

Making a difference: Participation and wellbeing

Figure 6Levels of participation and commitment inthe community (Montero, 2004)

1

4

3

6

7

5

2

1. Nucleus of maximum participationand commitment2. Frequent participation andhigh commitment3. Specific participation,medium commitment4. Sporadic participation, low commitment5. New and tentative participation, low commitment (eg financial donation, support material)6. Tangential participation,unclear (eg approval, agreement)7. Positive, friendly curiosity.No commitment.

People moving in and out withgreater or lesser levels ofcommitment

Figure 7Mapping participation in terms of proactivity and commitment

Highcommitment

Passiveparticipation

Lowcommitment

Proactiveparticipation

Community activistsengaged in bottom upparticipation

Community representative onpartnership boards

AGMattendees

Participation eventattendees

Quality of lifesurvey respondents

Regenerationprofessionals

Co-optedcommunityrepresentatives

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to relieve poverty and when they are not.They suggest that these activities can…contribute to situating community-building experts more

deeply as part of the community they help build, and thereforeincrease the responsibility and obligation they feel towards thecommunity, whilst increasing the trust residents have towards‘external’ stakeholders (p.11)18

This still sounds like a professional-oriented purpose,albeit one that might shift well-meaning professionals likeregeneration workers towards the high commitmentquadrant in our mapping diagram.

We must not forget the third type of participation –general participation. Most people participate in theircommunities not as part of organised groups, but in doing

acts of kindness, or just spending time with others on aone to one basis.This requires us to look beyondimmediate needs for regeneration to the very fabric ofsocial life and the re-acculturation of vast areas of life inthe UK that are culturally barren.

We need to put the emphasis back on people, nottraffic; on the use of public and open spaces, not justbuildings; on social contact not just consumption; oncelebration not just despair; on the generation of art andentertainment, not just the passive receipt of the massmedia.The list could go on.

A change of thinking that will challenge priorities inurban development might need us to rethink how weencourage and identify formal and informal participation.We might need to target resources on more intangiblesocial outcomes. Perhaps we should make wellbeing thetop priority for public services and private enterprises.This is a matter that affects us all.

In terms of quality of life which is ultimately a matter ofpeople’s subjective sense of wellbeing, the psycho-socialprocesses round inequality, social cohesion and its effects onhealth, are overwhelmingly important.They are important notonly from the point of view of those low down the social scalewho suffer them most, but also because of the deterioration ofpublic life, the loss of a sense of community and particularly theincrease in crime and violence, are fundamentally important tothe quality of life for everyone.19

Conclusion

Participation can improve quality of life and wellbeing forpeople who live in areas of deprivation. But we must not

RENEW Intelligence Report

‘Most people

participate in their

communities not as

part of organised

groups but in doing

acts of kindness’

Support for participation:New East Manchester Beacons programme

The Beacons programme is a complex regenerationprogramme in an area of Manchester with high levels ofunemployment, long term structural decline, poor health,poor facilities and poor housing. A partnership was formedto co-ordinate existing regeneration activities and to developa community led regeneration framework. From the outsetthere was an emphasis on strengthening and buildingtenants’ and residents’ groups by creating a resident liaisonteam.The number of groups has quadrupled over five years.The team also supports residents so that they can carry outnew responsibilities and, sometimes, gain qualifications incommunity involvement. A social inclusion toolkit has beendeveloped to help service providers examine their provisionand make it more accessible to the community.www.beaconsndc.com/Template.asp?l1=18

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15

lose sight of a number of lessons that experience hastaught us.

In any project it is vital for everyone – organisers andparticipants – to be clear about what kind ofparticipation they are looking for; and to ensure thatadequate support and resources are in place for themembers of the community actively involved.● Participation can overburden some people, causingstress and burn-out, and the very skills, knowledge andenergies essential for meaningful regeneration might belost.● Participation – both as a form of consultation and as agrass roots movement – needs to be supported if thepressure on some community members is to be relieved.● Cultural enrichment that offers short term and variedopportunities for participation can contribute towellbeing, but the converse is also true, where unrealisticexpectations or unsympathetic behaviour byprofessionals or organisations creates problems.● There is a need for more research and, based on theevidence we already have, a much wider dialogue aboutthe positive and negative effects of participation onwellbeing if we are to ensure positive, effective andsustainable regeneration practice in the future.

It is one thing to understand participation and itseffect on wellbeing in theory. It is perhaps another tounderstand the reality. Bill Cooke has written thatregeneration professionals need to practise what theypreach.20 Only when they themselves undergo theprocedures they ‘inflict on others’ will they understandhow it feels to be a participant. Everyone who expectsothers to participate should themselves participate intheir own home and work communities. ■

Making a difference: Participation and wellbeing

References1. Burns, D., & Taylor, M. (2000).Auditing CommunityParticipation.An assessment handbook. Bristol:Policy Press/Joseph Rowntree Foundation.2. Doyal, L., & Gough, I. (1984).A theory of humanneeds. Critical Social Policy, 4, 6-38. Doyal, L., &Gough, I. (1991).A theory of human need.Basingstoke: Macmillan.3.Wanless, D. (2004). Securing Good Health for theWhole Population. Final report. London: HMTreasury, HMSO.4.Wilkinson, D. (1996). Unhealthy Societies London,Routledge.5.Wilkinson, p. 2156. Cooke, B. (2001).The social psychological limitsof participation? In B. Cooke & U. Kothari (Eds.),Participation:The new tyranny? London: Zed Books.7. Putnam, R. (2000) Bowling Alone:The Collapseand Revival of American Community. New York:Simon & Schuster.8. Diamond, J. (2004). Local regeneration initiativesand capacity building:Whose ‘capacity’ and ‘building’for what? Community Development Journal, 39(2),177-189.9. Huxley, P., & Rogers,A. (2001). Urbanregeneration and mental health. Health Variations,issue 7, 8-9.10. Huxley, P., Evans, S., Leese, M., Gately, C., Rogers,A.,Thomas, R., et al. (2004). Urban regeneration andmental health. Social Psychiatry and PsychiatricEpidemiology, 39(4), 280-295.11. Campbell, C., & Jovchelovitch, S. (2000). Health,

community and development. Journal of Communityand Applied Social Psychology, 10, 255-270.12. SDRC. (2004). Indices of Deprivation 2004.London: OPPM/Social Disadvantage ResearchCentre, Oxford.http://www.odpm.gov.uk/index.asp?id=112844413. Edge, I., Kagan, C., & Stewart,A. (2004). LivingPoverty: Surviving on the edge. Clinical Psychology(38 June 2004), 28-31.14. Kagan, C., Castile, S., & Stewart,A. (2005).Participation:Are some more equal than others?Clinical Psychology, No.153, 30-34.15. Raschini, S., Stewart,A., & Kagan, C. (2005).Voices of community participation: report of theCommunity Activists’ Project. Manchester: ResearchInstitute for Health and Social Change, ManchesterMetropolitan University.16.Wilcox, D. (1994). Guide to effectiveparticipation.York: Joseph Rowntree Foundation.http://www.partnerships.org.uk/guide/index.htm17. Montero, M. (2004). Introducción a la PsicologíaComunitaria: Desarrollo, conceptos y procesos.(Introduction to community psychology:development, concepts and processes) BuenosAires: Paidós.18. Fraser, J., & Lepofsky, J. (2004).The uses ofknowledge in neighbourhood revitalization.Community Development Journal, 39(1), 4-12.19.Wilkinson, 1990, p. 21520. Cooke,W. (2004). Rules of thumb forparticipatory change agents. In S. Hickey & G.Mohan (Eds.), Participation: From tyranny totransformation? Exploring new approaches toparticipation in development. London: Zed Books.

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Professor Carolyn Kagan is Professor ofCommunity Social Psychology at ManchesterMetropolitan University.Throughout her career shehas worked on action research projects incommunity settings, in pursuit of greater socialjustice with those marginalised by the social system.

This work has included:• developing more effective models of communitypolicing in multi-racial neighbourhoods• pioneering projects based on citizen advocacyprinciples with disabled people• influencing social policy through researching howfamilies with disabled children manage to combinework with caring• ways of enabling people living in poverty to sharetheir experiences• understanding and promoting ways of enabling

the participation of citizens, in the context ofregeneration, that will not damage their mentalhealth• researching and advising on organisational changein public services so that they facilitateindependence of the clients they support.

She has worked with agencies supportingfamilies with disabled children in the slums ofKolkata, India, as well as with community activistsin the barrios of Caracas,Venezuela. She is aqualified social worker and chartered counsellingpsychologist.

Some of her publications are available atwww.compsy.org.uk

Professor Kagan is a founding co-editor of thejournal Community,Work and Family.

Contact: [email protected]

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