LTHTREpilepsy Team

Change is the law of life. And those who look only to the past and present are certain to miss the future.”J.F Kennedy.

Successes to date

Closer working between paediatric and adult epilepsy teams

Excellent communication

Development of new joint teenage/transition clinic

Focus group

Links with other teams within the project and Steven Edwards- patient experience lead

Developing links with other paediatric teams out of area

Challenges

To have designated adult consultant interest – currently adult services have consultant vacancies

Ensure that we all keep engaged with goals – we have regular update meetings as a team to keep us focused and on target/goals

Data – Poor data completion due to limited numbers of patients in the right age group coming through clinic.

What’s Gone Well

Positive feedback from patients regarding the teenage clinic

Successful focus group

Whats next?Evaluating focus group ideas – Clinic schedules, hospital passports, welcome booklet, ‘drop in’ sessions

Continuation of nurse led teenage clinics

Development of specific epilepsy care plan

Early identification of patients to be transitioned

Become more proactive in data collection – look at ways in which we can be more effective