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VEILLER À LA PLANIFICATION DE LA PRÉSERVATION DE LA FERTILITÉ AVANT LE TRAITEMENT Créations de brochures et de vidéos portant sur la préservation du sperme Sensibiliser les gens par rapport aux répercussions du traitement contre le cancer sur la fertilité et au fait que des démarches de préservation de la fertilité devraient être entamées le plus tôt possible Mise en œuvre d’un système d’orientation standardisé visant à diriger les patients vers le Centre de la reproduction du CUSM Phase suivante : création d’une ressource similaire à l’intention des femmes atteintes de cancer des patients étaient au courant de l’existence de services de soutien et d’information, comme L’espoir, c’est la vie et CanSupport des Cèdres. 31% 15% 13% 9% 9% 7% 3% 13% 0.3% 2% 4% 15% 27% 31% 22% 18 to 24 25 to 34 35 to 44 45 to 54 55 to 64 65 to 74 75+ L’expérience des patients atteints de cancer lors du diagnostic et du traitement : Rapport sur les résultats de sondage du Réseau de cancérologie Rossy de 2014 à 2018 L’EXPÉRIENCE-PATIENT PAR DOMAINE DE SOINS Objectifs « L’expérience des patients atteints de cancer lors du diagnostic et du traitement. Rapport sur les résultats de sondage du RCR de 2014 à 2018 » est accessible sur notre site Web au : www.mcgill.ca/rcr-rcn/scorecard • Signaler les données portant sur l’expérience-patient des hôpitaux partenaires du RCR • Souligner les initiatives d’amélioration de la qualité centrées sur la personne menées au sein du RCR Conseil sur la qualité des soins contre le cancer du RCR : Amanda Afeich, Nelea Bezman, Carolyn Freeman, Laurie Hendren, Adrian Langleben, Patricia Lefebvre, Anne Lemay, Caroline Rousseau, Lucie Tardif, Tony Teti, Linda Tracey, Noé White & Carmen G. Loiselle, Doneal Thomas, Wilson Miller La taille de l’échantillon a été choisie afin de refléter la proportion approximative de patients reçus en consultation externe au sein de chacun des établissements. • Le sondage AOPSS (Ambulatory Oncology Patient Satisfaction Survey - NRC Picker) • ~ 100 questions et une discussion ouverte • Acheminé par courrier tous les 3 mois à 415 patients adultes (avril 2013 à septembre 2017) • Les répondants devaient avoir reçu un traitement (chirurgie, radiothérapie, chimiothérapie par voie orale ou intraveineuse) au cours des 6 derniers mois dans un contexte ambulatoire • N = 3 278 participants Discussion et perspectives • Les besoins, les valeurs et les perspectives du patient doivent guider la nature et la prestation des services de soins • Le questionnaire AOPSS constitue une stratégie parmi plusieurs servant à identifier les lacunes et les problématiques liées aux soins • Chaque pas vers l’amélioration de la qualité des soins contribue à l’optimisation de l’expérience-patient Résultats CE QUE NOUS AVONS APPRIS QUI SONT LES RÉPONDANTS AU SONDAGE? EN GÉNÉRAL, LE NIVEAU DE SATISFACTION EST ÉLEVÉ 98 % des patients estiment que la qualité globale des soins reçus est bonne, très bonne ou excellente POURCENTAGE DE PATIENT SIGNALANT UNE EXPÉRIENCE DE SOINS POSITIVE AU SEIN D’UNE CONSULTATION EXTERNE (2014-2018) EFFORTS D’AMÉLIORATION DE L’EXPÉRIENCE-PATIENT GARDER LES MÉDECINS DE FAMILLE INFORMÉS Initiative visant à garder les médecins de famille informés Fait appel à un modèle facile à utiliser destiné aux oncologues, à remplir à l’aide des renseignements liés au diagnostic et au plan de traitement Projet piloté au sein du CHSM 96 % des 43 médecins de famille impliqués estiment que l’outil a eu des répercussions positives sur leur pratique Incorporé à la routine de soins du CHSM Adaptation nécessaire avant la mise en œuvre à plus grande échelle « Mon réseau de traitement s’étend sur 36 kilomètres carrés à Montréal, et comprend quatre hôpitaux, cinq cliniques publiques et cinq cliniques privées. Au fil de mes recherches visant à trouver de l’information sur comment interagir avec ce type de bureaucratie de la santé lorsque l’on est gravement malade, ce que j’ai trouvé est que le dénominateur commun de mon réseau de santé, c’est moi. Je suis le point central. En tant que point central de mon réseau de santé, c’est moi qui devrais avoir la clé de mes données. Et mon téléphone constitue l’infrastructure logique à partir de laquelle je devrais pouvoir accéder à mes données compilées par mes professionnels de soins, tout comme je peux accéder à mes données bancaires en toute sécurité. » Laurie, patiente du CUSM Laurie, informaticienne et patiente atteinte de cancer du sein, s’est inspirée de son expérience pour concevoir une application mobile centrée sur le patient avec l’aide de ses collègues du CUSM. L'application (OPAL) permet aux patients de stocker et partager leurs données personnelles de santé, d’obtenir de l’information sur leurs rendez-vous et de consulter du matériel d’éducation personnalisé. EFFORTS D’AMÉLIORATION DE L’EXPÉRIENCE-PATIENT CHANGER L’EXPÉRIENCE EN SALLE D’ATTENTE Mise en œuvre d’un système de gestion de la salle d’attente en radio-oncologie au CUSM Réduction des files d’attente à la réception Création d’une application mobile permettant d’autonomiser les patients en les munissant de leurs propres renseignements de santé au CUSM Permettre aux patients d’avoir la flexibilité de quitter la salle d’attente sans manquer leur rendez-vous Mettre en œuvre une approche sur deux jours (tests sanguins au jour 1 et chimiothérapie au jour 2) Favoriser la sécurité des patients et réduire le temps d’attente le jour du traitement Limitations du sondage • Impressions autosignalées potentiellement biaisées en raison du caractère rétrospectif du sondage • Sur-représentation d’un groupe de participants (femmes atteintes de cancer du sein) • Le sondage n’est pas en mesure de documenter le degré de satisfaction découlant de l’ensemble des interactions avec les professionnels de la santé • L’expérience d’un patient est unique et en constante évolution; il est difficile de saisir sa portée à l’aide d’un sondage ponctuel HGJ 150 CUSM 150 CHSM 115 PAR ÂGE PAR SEXE Hommes 40 % Femmes 60 % PAR HÔPITAL CUSM 39 % HGJ 36 % CHSM 26 % PAR TYPE DE CANCER PAR TYPE DE TRAITEMENT 89 % recommanderaie nt l’hôpital à leurs proches satisfaits des soins reçus 91 % 98 % sont de l’avis que leurs professionnels de la santé ont fait tout en leur pouvoir pour traiter leur cancer EFFORTS D’AMÉLIORATION DE L’EXPÉRIENCE- PATIENT SURVEILLER DE PRÈS LES SYMPTÔMES ÉMOTIONNELS ET PHYSIQUES DES PATIENTS • Projet pilote de trois ans visant à explorer le recours à l’échelle d’évaluation des symptômes d’Edmonton (ESAS) • Scores de douleur élevés en matière de fièvre, d’anxiété ou de dépression servent à informer les discussions de l’équipe de soins • Orientation vers d’autres spécialistes si nécessaire • Expansion prévue pour davantage de types de cancer : on estime que 9 000 patients seront recrutés sur un an GÉRER LES SYMPTÔMES AVEC UN COUP DE FIL Création d’une ligne téléphonique visant à éviter les visites à l’urgence Lancée au début de l’année 2018 Depuis le lancement : Seulement 14 % des patients ayant téléphoné ont été dirigés vers l’urgence Près de 50 % des raisons des appels peuvent être prises en charge par le patient lui-même INITIATIVES VISANT À MIEUX PRENDRE EN CHARGE LA DOULEUR ET SOUTENIR LES PATIENTS EN FIN DE VIE Prodiguer des soins de soutien et des soins palliatifs plus tôt Avoir recours au cannabis médical pour soulager les symptômes Le RCR a lancé un projet pilote en 2018 visant à évaluer le recours au cannabis médical sous la supervision du programme de soins de soutien du CUSM Tous les services sont centralisés et offerts gratuitement Soutien émotionnel Information, éducation et communication Symptômes physiques Respect des préférences du patient 806 patients ont participé au projet pilote 2/3 patients ayant répondu au questionnaire ESAS ont signalé que l’outil leur a permis de mieux décrire leurs symptômes 9/10 Professionnels de la santé ont signalé que le questionnaire ESAS leur a permis de mieux comprendre les symptômes des patients ACCÈS AUX SOINS • La plupart des patients reçoivent leur 1 er traitement assez rapidement • Certains signalent de longues périodes d’attente avant le traitement 82 % n’ont pas attendu trop longtemps avant leur 1 er r-v de traitement 53 % estiment que des professionnels de la santé ont tenu compte du voyagement dans le plan de traitement L’expérience en salle d’attente Radiothérapie Chimiothérapie 67 % 68% 73 % 65% ont attendu plus longtemps que prévu estiment que les professionnels de la santé ont fait tout en leur pouvoir pour rendre le temps d’attente plus confortable COORDINATION ET CONTINUITÉ DES SOINS 60 % estiment que les prof. de la santé étaient toujours au courant des résultats de leurs tests 42 % estiment que leur médecin de famille était suffisamment au courant des soins anticancéreux reçus comparé à 60 % dans le reste du Canada des patients estiment que l’ensemble des soins reçus n’était pas toujours bien coordonné 37 % 20 % des patients estiment qu’aucune information de contact n’a été donnée au moment du diagnostic SOUTIEN ÉMOTIONNEL 68 % ont été informés de leur diagnostic de manière sensible 60 % ont été orientés vers un professionnel de la santé pour soulager leur anxiété et leurs peurs au moment du diagnostic 46 % ont toujours reçu autant d’aide que nécessaire pour trouver comment payer tous les coûts supplémentaires 81 % CONFORT PHYSIQUE 77 % estiment que le but du traitement oral contre le cancer a été clairement expliqué 60 % estiment que les signes de danger à surveiller à la maison ont été expliqués Degré de douleur signalé en cours de traitement 32 % sans douleur 26 % douleur légère 28 % douleur modérée 14 % douleur sévère 67% des patients estiment que les professionnels de la santé ont fait tout en leur pouvoir pour contrôler leur douleur ou soulager leur inconfort Méthodes Radiothérapie + chimiothérapie Chirurgie + radiothérapie et/ou chimiothérapie Chimiothérapie seulement Radiothérapie seulement Chirurgie seulement RCR Accès aux soins Coordination et continuité des soins Les patients signalent : - Une méconnaissance de leurs soins contre le cancer du côté de leur médecin de famille - Une méconnaissance de leurs antécédents médicaux et des résultats de leurs tests du côté de leurs spécialistes du cancer EFFORTS D’AMÉLIORATION DE L’EXPÉRIENCE-PATIENT

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Page 1: L’expérience des patients atteints de cancer lors du

VEILLER Agrave LA PLANIFICATION DE LA PREacuteSERVATION DE LA FERTILITEacute AVANT LE TRAITEMENT

Creacuteations de brochures et de videacuteos portant sur la preacuteservation du sperme

Sensibiliser les gens par rapport aux reacutepercussions du traitement contre le cancer sur la fertiliteacute et au fait que des deacutemarches de preacuteservation de la fertiliteacute devraient ecirctre entameacutees le plus tocirct possible

Mise en œuvre drsquoun systegraveme drsquoorientation standardiseacute visant agrave diriger les patients vers le Centre de la reproduction du CUSM

Phase suivante creacuteation drsquoune ressource similaire agrave lrsquointention des femmes atteintes de cancer

des patients eacutetaient au courant de lrsquoexistence de

services de soutien et

drsquoinformation comme Lrsquoespoir

crsquoest la vie et CanSupport des

Cegravedres

31

15 13 9 9 7

3

13

03

2

4

15

27

31

22

18 to24

25 to34

35 to44

45 to54

55 to64

65 to74

75+

Lrsquoexpeacuterience des patients atteints de cancer lors du diagnostic et du traitement Rapport sur les reacutesultats de sondage du Reacuteseau de canceacuterologie Rossy de 2014 agrave 2018

LrsquoEXPEacuteRIENCE-PATIENT PAR DOMAINE DE SOINS Objectifs

laquo Lrsquoexpeacuterience des patients atteints de cancer lors du diagnostic et du traitement Rapport sur les reacutesultats de sondage du RCR de 2014 agrave 2018 raquo est accessible sur notre site Web au wwwmcgillcarcr-rcnscorecard

bull Signaler les donneacutees portant sur lrsquoexpeacuterience-patient des hocircpitaux partenaires du RCR

bull Souligner les initiatives drsquoameacutelioration de la qualiteacute centreacutees sur la personne meneacutees au sein du RCR

Conseil sur la qualiteacute des soins contre le cancer du RCR Amanda Afeich Nelea Bezman Carolyn Freeman Laurie Hendren Adrian Langleben Patricia Lefebvre Anne Lemay Caroline Rousseau Lucie Tardif Tony Teti Linda Tracey Noeacute White amp Carmen G Loiselle Doneal Thomas Wilson Miller

La taille de lrsquoeacutechantillon a eacuteteacute choisie afin de refleacuteter la

proportion approximative de patients reccedilus en consultation externe au sein de chacun des

eacutetablissements

bull Le sondage AOPSS (Ambulatory Oncology Patient Satisfaction Survey - NRC Picker) bull ~ 100 questions et une discussion ouverte

bull Achemineacute par courrier tous les 3 mois agrave 415 patients adultes (avril 2013 agrave septembre 2017)

bull Les reacutepondants devaient avoir reccedilu un traitement (chirurgie radiotheacuterapie chimiotheacuterapie par voie orale ou intraveineuse) au cours des 6 derniers mois dans un contexte ambulatoire

bull N = 3 278 participants

Discussion et perspectives

bull Les besoins les valeurs et les perspectives du patient doivent guider la nature et la prestation des services de soins

bull Le questionnaire AOPSS constitue une strateacutegie parmi plusieurs servant agrave identifier les lacunes et les probleacutematiques lieacutees aux soins

bull Chaque pas vers lrsquoameacutelioration de la qualiteacute des soins contribue agrave lrsquooptimisation de lrsquoexpeacuterience-patient

Reacutesultats

CE QUE NOUS AVONS APPRIS

QUI SONT LES REacutePONDANTS AU SONDAGE

EN GEacuteNEacuteRAL LE NIVEAU DE SATISFACTION EST EacuteLEVEacute

98 des patients estiment que la qualiteacute globale des soins reccedilus est bonne tregraves bonne ou excellente

POURCENTAGE DE PATIENT SIGNALANT UNE EXPEacuteRIENCE DE SOINS POSITIVE AU SEIN DrsquoUNE CONSULTATION EXTERNE (2014-2018)

EFFORTS DrsquoAMEacuteLIORATION DE LrsquoEXPEacuteRIENCE-PATIENT GARDER LES MEacuteDECINS DE FAMILLE INFORMEacuteS

Initiative visant agrave garder les meacutedecins de famille informeacutes

Fait appel agrave un modegravele facile agrave utiliser destineacute aux oncologues agrave remplir agrave lrsquoaide des renseignements lieacutes au diagnostic et au plan de traitement

Projet piloteacute au sein du CHSM

96 des 43 meacutedecins de famille impliqueacutes estiment que lrsquooutil a eu des reacutepercussions positives sur leur pratique

Incorporeacute agrave la routine de soins du CHSM

Adaptation neacutecessaire avant la mise en œuvre agrave plus grande eacutechelle laquo Mon reacuteseau de traitement srsquoeacutetend sur 36 kilomegravetres carreacutes agrave Montreacuteal et

comprend quatre hocircpitaux cinq cliniques publiques et cinq cliniques priveacutees Au fil de mes recherches visant agrave trouver de lrsquoinformation sur comment interagir avec ce type de bureaucratie de la santeacute lorsque lrsquoon est gravement malade ce que jrsquoai trouveacute est que le deacutenominateur commun de mon reacuteseau de santeacute crsquoest moi Je suis le point central En tant que point central de mon reacuteseau de santeacute crsquoest moi qui devrais avoir la cleacute de mes donneacutees Et mon teacuteleacutephone constitue lrsquoinfrastructure logique agrave partir de laquelle je devrais pouvoir acceacuteder agrave mes donneacutees compileacutees par mes professionnels de soins tout comme je peux acceacuteder agrave mes donneacutees bancaires en toute seacutecuriteacute raquo Laurie patiente du CUSM

Laurie informaticienne et patiente atteinte de cancer du sein srsquoest inspireacutee de son expeacuterience pour concevoir une application mobile centreacutee sur le patient avec lrsquoaide de ses collegravegues du CUSM Lapplication (OPAL) permet aux patients de stocker et partager leurs donneacutees personnelles de santeacute drsquoobtenir de lrsquoinformation sur leurs rendez-vous et de consulter du mateacuteriel drsquoeacuteducation personnaliseacute

EFFORTS DrsquoAMEacuteLIORATION DE LrsquoEXPEacuteRIENCE-PATIENT

CHANGER LrsquoEXPEacuteRIENCE EN SALLE DrsquoATTENTE

Mise en œuvre drsquoun systegraveme de gestion de la salle drsquoattente en radio-oncologie au CUSM

Reacuteduction des files drsquoattente agrave la reacuteception

Creacuteation drsquoune application mobile permettant drsquoautonomiser les patients en les munissant de leurs propres renseignements de santeacute au CUSM

Permettre aux patients drsquoavoir la flexibiliteacute de quitter la salle drsquoattente sans manquer leur rendez-vous

Mettre en œuvre une approche sur deux jours (tests sanguins au jour 1 et chimiotheacuterapie au jour 2)

Favoriser la seacutecuriteacute des patients et reacuteduire le temps drsquoattente le jour du traitement

Limitations du sondage bull Impressions autosignaleacutees potentiellement biaiseacutees en raison du caractegravere

reacutetrospectif du sondage bull Sur-repreacutesentation drsquoun groupe de participants (femmes atteintes de cancer

du sein) bull Le sondage nrsquoest pas en mesure de documenter le degreacute de satisfaction

deacutecoulant de lrsquoensemble des interactions avec les professionnels de la santeacute bull Lrsquoexpeacuterience drsquoun patient est unique et en constante eacutevolution il est difficile de

saisir sa porteacutee agrave lrsquoaide drsquoun sondage ponctuel

HGJ 150

CUSM 150

CHSM 115

PAR AcircGE PAR SEXE

Hommes 40

Femmes 60

PAR HOcircPITAL

CUSM 39

HGJ 36

CHSM 26

PAR TYPE DE CANCER

PAR TYPE DE TRAITEMENT

89

recommanderaient lrsquohocircpital agrave leurs

proches

satisfaits des soins reccedilus

91 98

sont de lrsquoavis que leurs professionnels

de la santeacute ont fait tout en leur pouvoir pour traiter leur cancer

EFFORTS DrsquoAMEacuteLIORATION DE LrsquoEXPEacuteRIENCE-PATIENT SURVEILLER DE PREgraveS LES SYMPTOcircMES EacuteMOTIONNELS ET PHYSIQUES DES PATIENTS

bull Projet pilote de trois ans visant agrave explorer le recours agrave lrsquoeacutechelle drsquoeacutevaluation des symptocircmes drsquoEdmonton (ESAS)

bull Scores de douleur eacuteleveacutes en matiegravere de fiegravevre drsquoanxieacuteteacute ou de deacutepression servent agrave informer les discussions de lrsquoeacutequipe de soins

bull Orientation vers drsquoautres speacutecialistes si neacutecessaire

bull Expansion preacutevue pour davantage de types de cancer on estime que 9 000 patients seront recruteacutes sur un an

GEacuteRER LES SYMPTOcircMES AVEC UN COUP DE FIL

Creacuteation drsquoune ligne teacuteleacutephonique visant agrave eacuteviter les visites agrave lrsquourgence

Lanceacutee au deacutebut de lrsquoanneacutee 2018

Depuis le lancement

Seulement 14 des patients ayant teacuteleacutephoneacute ont eacuteteacute dirigeacutes vers lrsquourgence

Pregraves de 50 des raisons des appels peuvent ecirctre prises en charge par le patient lui-mecircme

INITIATIVES VISANT Agrave MIEUX PRENDRE EN CHARGE LA DOULEUR ET SOUTENIR LES PATIENTS EN FIN DE VIE Prodiguer des soins de soutien et des soins palliatifs plus tocirct

Avoir recours au cannabis meacutedical pour soulager les symptocircmes

Le RCR a lanceacute un projet pilote en 2018 visant agrave eacutevaluer le recours au cannabis meacutedical sous la supervision du programme de soins de soutien du CUSM

Tous les services sont centraliseacutes et offerts gratuitement

Soutien eacutemotionnel

Information eacuteducation et

communication

Symptocircmes physiques

Respect des preacutefeacuterences

du patient 806 patients ont participeacute au projet pilote

23 patients ayant reacutepondu au questionnaire ESAS ont signaleacute que lrsquooutil leur a permis de mieux deacutecrire leurs symptocircmes

910 Professionnels de la santeacute ont signaleacute que le questionnaire ESAS leur a permis de mieux comprendre les symptocircmes des patients

ACCEgraveS AUX SOINS bull La plupart des patients reccediloivent leur 1er traitement assez

rapidement bull Certains signalent de longues peacuteriodes drsquoattente avant le

traitement

82

nrsquoont pas attendu trop longtemps

avant leur 1er r-v de traitement 53

estiment que des professionnels de la

santeacute ont tenu compte du

voyagement dans le plan de traitement

Lrsquoexpeacuterience en salle drsquoattente Radiotheacuterapie Chimiotheacuterapie

67

68

73

65 ont attendu plus longtemps que preacutevu

estiment que les professionnels de la santeacute ont fait tout en leur pouvoir pour rendre le temps

drsquoattente plus confortable

COORDINATION ET CONTINUITEacute DES SOINS

60

estiment que les prof de la santeacute eacutetaient toujours au courant des reacutesultats de leurs tests

42

estiment que leur meacutedecin de famille eacutetait

suffisamment au courant des soins

anticanceacutereux reccedilus

compareacute agrave 60 dans le reste du

Canada

des patients estiment que lrsquoensemble des soins reccedilus nrsquoeacutetait pas toujours bien coordonneacute

37 20 des patients estiment qursquoaucune information de contact nrsquoa eacuteteacute donneacutee au moment du diagnostic

SOUTIEN EacuteMOTIONNEL

68 ont eacuteteacute informeacutes

de leur diagnostic de maniegravere

sensible

60 ont eacuteteacute orienteacutes

vers un professionnel de la

santeacute pour soulager leur

anxieacuteteacute et leurs peurs au moment

du diagnostic

46

ont toujours reccedilu autant drsquoaide que neacutecessaire pour trouver comment

payer tous les coucircts

suppleacutementaires

81

CONFORT PHYSIQUE

77 estiment que le

but du traitement oral contre le cancer a eacuteteacute clairement expliqueacute

60 estiment que les signes de danger agrave surveiller agrave la maison ont eacuteteacute

expliqueacutes

Degreacute de douleur signaleacute en cours de traitement

32 sans douleur 26 douleur leacutegegravere

28 douleur modeacutereacutee 14 douleur seacutevegravere

67 des patients estiment que les professionnels de la santeacute ont fait tout en leur pouvoir pour controcircler leur douleur ou soulager leur inconfort

Meacutethodes

Radiotheacuterapie + chimiotheacuterapie

Chirurgie + radiotheacuterapie etou chimiotheacuterapie

Chimiotheacuterapie seulement

Radiotheacuterapie seulement

Chirurgie seulement

RCR

Accegraves aux soins

Coordination et continuiteacute des

soins

Les patients signalent - Une meacuteconnaissance de leurs soins contre le cancer du cocircteacute de

leur meacutedecin de famille - Une meacuteconnaissance de leurs anteacuteceacutedents meacutedicaux et des

reacutesultats de leurs tests du cocircteacute de leurs speacutecialistes du cancer

EFFORTS DrsquoAMEacuteLIORATION DE LrsquoEXPEacuteRIENCE-PATIENT

Chart1

0271
0132
0134
0416
0046

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Access toCare
Coordination and Continuityof Care
RCN
Canada
063
071
067
071
05
054
062
065
073
077
076
08

NOTES

Pt Characteristics

Overall rating of care

Care domains

Care domains

RCN
Canada

1Access to care

2-day chemo-blood test

2-day chemo-blood test

15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
Time waiting before scheduled appointment for chemo treatment (min)
Time patients wait before scheduled chemotherapy appointment

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

About oral meds

6 Respect for patient pref

Chart1

1211
1845

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

1263
1163
852

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0887
0113

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0913
0087

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Sales
82
18

Sheet1

Chart1

Sales
53
47

Sheet1

Chart1

Sales
60
40

Sheet1

Chart1

Sales
42
58

Sheet1

Chart1

Sales
68
32

Sheet1

Chart1

Sales
60
40

Sheet1

Chart1

Sales
68
32

Sheet1

Chart1

Sales
77
33

Sheet1

Chart1

Sales
60
40

Sheet1

  • Slide Number 1
Sales
1st Qtr 60
2nd Qtr 40
1st Qtr
2nd Qtr
Sales
1st Qtr 77
2nd Qtr 33
1st Qtr
2nd Qtr
Sales
1st Qtr 68
2nd Qtr 32
1st Qtr
2nd Qtr
Sales
1st Qtr 60
2nd Qtr 40
1st Qtr
2nd Qtr
Sales
1st Qtr 68
2nd Qtr 32
1st Qtr
2nd Qtr
Sales
1st Qtr 42
2nd Qtr 58
1st Qtr
2nd Qtr
Sales
1st Qtr 60
2nd Qtr 40
1st Qtr
2nd Qtr
Sales
1st Qtr 53
2nd Qtr 47
1st Qtr
2nd Qtr
Sales
1st Qtr 82
2nd Qtr 18
1st Qtr
2nd Qtr
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
MUHC
JGH
SMHC
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Male
Female
Table 9 Individual question scores for the Respect for Patient Preference care dimension
Positive responses are indicated in bold For the Canadian average only the positive response is noted
Rossy Cancer Network Canada
N
Treated with dignity and respect by care providers
yes completely 2830 93 94
yes somewhat 195 6
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76
yes somewhat 837 27
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57
yes somewhat 416 25
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90
yes somewhat 328 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61
yes somewhat 789 26
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8
right amount 2186 90 95
too much 47 2
Additional questions (not included in the calculation of the Respect for Patient Preference domain score)
Rossy Cancer Network Canada
N
Do you feel your doctor listened carefully to you
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
Table 9 Patient experiences with Physical Comfort while receiving outpatient care consisting of oral cancer medication (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84
yes somewhat 71 19
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92
yes somewhat 36 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68
yes somewhat 89 24
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96
no 13 4
Who provided information about how to manage side effects of oral cancer medication
Doctor 225 33
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
Table 8 Patient experiences with Physical Comfort while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC
yes completely 1478 76 79 80 69 78
yes somewhat 418 21 18 27 19
no 61 3 2 4 3
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 76 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
Additional questions (not included in the calculation of the Physical Comfort domain score)
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Table 7 Patient experiences with Information Education and Communication while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53
yes somewhat 620 20 18 22 22
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75
yes somewhat 538 21
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82
yes somewhat 594 20
no 104 3
Test results were explained understandably
yes completely 1955 68 75
yes somewhat 828 29
no 111 4
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37
yes somewhat 296 29
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70
yes somewhat 793 26
no 212 7
nutritional needs
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
Additional questions (not included in the calculation of the Information Education and Communication domain score)
The results of my surgery were explained understandably
yes completely 1352 78 83
yes somewhat 328 19
no 51 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Told of diagnosis in a sensitive manner
yes completely 2072 68 71
yes somewhat 722 24
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness
yes 1454 60 47
no 956 40
Someone put you in touch with other care providers who could help with anxieties and fears
yes 344 54 44
no 296 46
Always received as much help as wanted in figuring out how to pay for any extra costs
never 239 21
sometimes 136 12
usually 225 20
always 519 46 50
A care provider went out of his or her way to help you or make you feel better
yes completely 1933 64 69
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible emotional changes
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in sexual activity
yes completely 798 37 49
yes somewhat 501 23
no 855 40
possible changes in relationship with partner
yes completely 527 27 38
yes somewhat 463 24
no 930 48
Additional questions (not included in the calculation of the Emotional Support domain score)
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you
yes completely 579 61 61
yes somewhat 290 30
no 87 9
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4
sometimes 191 20
usually 217 23
always 496 53 57
Aware of information and support services such as Hope amp Cope or Cedars CanSupport
yes 2209 81 Not available
no 527 19
Of patients who were aware of information and support services such as Hope amp Cope or Cedars CanSupport when were you made aware of these services
at diagnosis 825 37
during cancer treatment 1342 61
when cancer treatment was completed 46 2
I dont know 66 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Providers knew enough about cancer therapies
yes completely 2584 85 83
yes somewhat 413 14
no 53 2
Knew who was in charge of care for each therapy
yes completely 2629 86 86
yes somewhat 338 11
no 76 2
Providers always familiar with medical history
never 72 2
sometimes 281 9
usually 971 33
always 1663 56 60
Providers always aware of test results
never 47 2
sometimes 214 7
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment
never 2344 78 77
sometimes 561 19
usually 48 2
always 62 2
Always knew who to ask about health problems
never 87 3
sometimes 240 8
usually 849 28
always 1847 61 63
Always knew next step in care
never 108 4
sometimes 258 9
usually 907 30
always 1750 58 61
If you visited your family doctor within the last 6 months felt that family doctor knew enough about your cancer care
yes completely 820 42 60
yes somewhat 641 33
no 479 25
Patients who selected doesnt apply were excluded
Additional questions (not included in the calculation of the Coord amp Integration of care domain score)
Do you feel that your overall care was well coordinated
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed
yes 2259 81 Not available
no 546 19
Table 5 Patients wait less time before their scheduled chemotherapy appointment when the blood test is done on the day before
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
Table 4 Patient experiences with Access to Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89
Received all services needed in past 6 months for cancer care
yes completely 960 83 83
yes somewhat 172 15
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57
yes somewhat 562 26
no 451 21
FOR PATIENTS RECEIVING RADIATION THERAPY SS differences by hospital (plt005)
Never waited longer than expected for radiation therapy MUHC (N=585) JGH (N=453) SMHC (N=128) Note that SMHC patients receive their Radiation Therapy treatment at MUHC or JGH
never 387 33 61 36 28 38
sometimes 642 55 53 60 45
usually 94 8 7 8 13
always 43 4 4 3 5
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Additional questions (not included in the calculation of the Access to Care domain score)
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83
yes somewhat 254 17
no 91 6
Table 3 Percentage of patients who reported positive experiences while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
2014 2015 2016 2017 2018 RCN Canada 2014 2015 2016 2017 2018 RCN composite score CAN
Access to Care 52 57 61 65 70 63 71 Access to Care 52 57 61 65 70 63 71
Coordination and Continuity of Care 68 67 68 69 69 67 71 Coordination and integration of care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54 Emotional support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65 Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77 Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80 Respect for patient preferences 76 75 75 76 78 76 80
Table 2 Individual question scores for overall rating of care
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16
Good 101 87 85
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 901
Yes somewhat 99 89
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 919
Yes somewhat 73 75
No 12 07
Table 1 Patient characteristics
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Percentage may not add to 100 due to numerical rounding
Rossy Cancer Network
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 35
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age group (n=3077)
18 to 24 9 03
25 to 34 45 15
35 to 44 115 4
45 to 54 455 15
55 to 64 832 27
65 to 74 946 31
75+ 675 22
No response 201 --
Cancer type (n=2933)
Breast 903 31
HematologyLymphoma 426 15
Colorectal bowel 370 13
Lung 269 9
CervixUterineOvarian 198 7
Prostate 187 6
KidneyBladder 102 3
Head amp Neck 86 3
Stomach 53 2
Melanoma 52 2
Sarcoma 43 1
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 --
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27
RT only 336 13
Chemo only (iv or oral) 341 13
Surgery + RT andor chemo (iv or oral) 1055 42
RT + chemo (iv or oral) 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
Additional questions
Rossy Cancer Network Canada
N
Who first told you of your cancer diagnosis (n=2984)
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
NOTES
1 The Rossy Cancer Network is a partnership of McGill Universityrsquos Faculty of Medicine the McGill University Health Centre (MUHC) the Jewish General Hospital (JGH) and St Maryrsquos Hospital Center (SMHC)
2 The RCN mails out 1660 AOPSS surveys per year The survey is mailed every three months to 415 patients aged 18 years or older who have a confirmed cancer diagnosis and who received active treatment as an outpatient within the past 6 months at one of the RCN partner hospitals regardless of when they were diagnosed Patients selected to participate in the survey could have been diagnosed 6 month to 5 years prior The sample size per hospital reflects the hospital outpatient population JGH = 150 MUHC = 150 SMHC = 115 per quarter To
3 Treatment is defined as surgery radiation therapy or anti-cancer therapy (oral or IV)
4 The data in this report is presented by fiscal year For example 2014 represents data from patients mailed questionnaires between April 2013 and March 2014
5 Data for year 2018 is incomplete Only quarters 1 and 2 are reported corresponding to surveys mailed between April 2017 and September 2017
6 Completed surveys are returned to the National Research Corporation (NRC) in pre-stamped return envelopes and NRC compiles the results Responses are completely confidential
7 The Canadian averages used in this report are provided by NRC The numbers shown are the most recent data (last year) collected from at least five institutions across Canada with a sample size of over 1000 respondents for each question
Access to Care Access to Care
Coordination and Continuity of Care Coordination and Continuity of Care
Emotional Support Emotional Support
Information Education and Communication Information Education and Communication
Physical Symptom Physical Symptom
Respect for Patient Preferences Respect for Patient Preferences
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Surgery only
Radiation therapy only
Chemotherapy only
Surgery + Radiation therapy andor Chemotherapy
Radiation therapy + Chemotherapy
Page 2: L’expérience des patients atteints de cancer lors du

Chart1

0271
0132
0134
0416
0046

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Access toCare
Coordination and Continuityof Care
RCN
Canada
063
071
067
071
05
054
062
065
073
077
076
08

NOTES

Pt Characteristics

Overall rating of care

Care domains

Care domains

RCN
Canada

1Access to care

2-day chemo-blood test

2-day chemo-blood test

15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
Time waiting before scheduled appointment for chemo treatment (min)
Time patients wait before scheduled chemotherapy appointment

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

About oral meds

6 Respect for patient pref

Chart1

1211
1845

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

1263
1163
852

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0887
0113

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0913
0087

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Sales
82
18

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53
47

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60
40

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42
58

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Sales
68
32

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60
40

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Sales
68
32

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77
33

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60
40

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  • Slide Number 1
Sales
1st Qtr 60
2nd Qtr 40
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2nd Qtr
Sales
1st Qtr 77
2nd Qtr 33
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2nd Qtr
Sales
1st Qtr 68
2nd Qtr 32
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2nd Qtr
Sales
1st Qtr 60
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2nd Qtr
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1st Qtr 68
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2nd Qtr
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2nd Qtr 58
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2nd Qtr
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Sales
1st Qtr 53
2nd Qtr 47
1st Qtr
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1st Qtr 82
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1st Qtr
2nd Qtr
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
MUHC
JGH
SMHC
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Male
Female
Table 9 Individual question scores for the Respect for Patient Preference care dimension
Positive responses are indicated in bold For the Canadian average only the positive response is noted
Rossy Cancer Network Canada
N
Treated with dignity and respect by care providers
yes completely 2830 93 94
yes somewhat 195 6
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76
yes somewhat 837 27
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57
yes somewhat 416 25
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90
yes somewhat 328 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61
yes somewhat 789 26
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8
right amount 2186 90 95
too much 47 2
Additional questions (not included in the calculation of the Respect for Patient Preference domain score)
Rossy Cancer Network Canada
N
Do you feel your doctor listened carefully to you
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
Table 9 Patient experiences with Physical Comfort while receiving outpatient care consisting of oral cancer medication (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84
yes somewhat 71 19
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92
yes somewhat 36 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68
yes somewhat 89 24
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96
no 13 4
Who provided information about how to manage side effects of oral cancer medication
Doctor 225 33
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
Table 8 Patient experiences with Physical Comfort while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC
yes completely 1478 76 79 80 69 78
yes somewhat 418 21 18 27 19
no 61 3 2 4 3
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 76 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
Additional questions (not included in the calculation of the Physical Comfort domain score)
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Table 7 Patient experiences with Information Education and Communication while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53
yes somewhat 620 20 18 22 22
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75
yes somewhat 538 21
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82
yes somewhat 594 20
no 104 3
Test results were explained understandably
yes completely 1955 68 75
yes somewhat 828 29
no 111 4
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37
yes somewhat 296 29
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70
yes somewhat 793 26
no 212 7
nutritional needs
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
Additional questions (not included in the calculation of the Information Education and Communication domain score)
The results of my surgery were explained understandably
yes completely 1352 78 83
yes somewhat 328 19
no 51 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Told of diagnosis in a sensitive manner
yes completely 2072 68 71
yes somewhat 722 24
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness
yes 1454 60 47
no 956 40
Someone put you in touch with other care providers who could help with anxieties and fears
yes 344 54 44
no 296 46
Always received as much help as wanted in figuring out how to pay for any extra costs
never 239 21
sometimes 136 12
usually 225 20
always 519 46 50
A care provider went out of his or her way to help you or make you feel better
yes completely 1933 64 69
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible emotional changes
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in sexual activity
yes completely 798 37 49
yes somewhat 501 23
no 855 40
possible changes in relationship with partner
yes completely 527 27 38
yes somewhat 463 24
no 930 48
Additional questions (not included in the calculation of the Emotional Support domain score)
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you
yes completely 579 61 61
yes somewhat 290 30
no 87 9
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4
sometimes 191 20
usually 217 23
always 496 53 57
Aware of information and support services such as Hope amp Cope or Cedars CanSupport
yes 2209 81 Not available
no 527 19
Of patients who were aware of information and support services such as Hope amp Cope or Cedars CanSupport when were you made aware of these services
at diagnosis 825 37
during cancer treatment 1342 61
when cancer treatment was completed 46 2
I dont know 66 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Providers knew enough about cancer therapies
yes completely 2584 85 83
yes somewhat 413 14
no 53 2
Knew who was in charge of care for each therapy
yes completely 2629 86 86
yes somewhat 338 11
no 76 2
Providers always familiar with medical history
never 72 2
sometimes 281 9
usually 971 33
always 1663 56 60
Providers always aware of test results
never 47 2
sometimes 214 7
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment
never 2344 78 77
sometimes 561 19
usually 48 2
always 62 2
Always knew who to ask about health problems
never 87 3
sometimes 240 8
usually 849 28
always 1847 61 63
Always knew next step in care
never 108 4
sometimes 258 9
usually 907 30
always 1750 58 61
If you visited your family doctor within the last 6 months felt that family doctor knew enough about your cancer care
yes completely 820 42 60
yes somewhat 641 33
no 479 25
Patients who selected doesnt apply were excluded
Additional questions (not included in the calculation of the Coord amp Integration of care domain score)
Do you feel that your overall care was well coordinated
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed
yes 2259 81 Not available
no 546 19
Table 5 Patients wait less time before their scheduled chemotherapy appointment when the blood test is done on the day before
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
Table 4 Patient experiences with Access to Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89
Received all services needed in past 6 months for cancer care
yes completely 960 83 83
yes somewhat 172 15
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57
yes somewhat 562 26
no 451 21
FOR PATIENTS RECEIVING RADIATION THERAPY SS differences by hospital (plt005)
Never waited longer than expected for radiation therapy MUHC (N=585) JGH (N=453) SMHC (N=128) Note that SMHC patients receive their Radiation Therapy treatment at MUHC or JGH
never 387 33 61 36 28 38
sometimes 642 55 53 60 45
usually 94 8 7 8 13
always 43 4 4 3 5
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Additional questions (not included in the calculation of the Access to Care domain score)
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83
yes somewhat 254 17
no 91 6
Table 3 Percentage of patients who reported positive experiences while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
2014 2015 2016 2017 2018 RCN Canada 2014 2015 2016 2017 2018 RCN composite score CAN
Access to Care 52 57 61 65 70 63 71 Access to Care 52 57 61 65 70 63 71
Coordination and Continuity of Care 68 67 68 69 69 67 71 Coordination and integration of care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54 Emotional support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65 Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77 Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80 Respect for patient preferences 76 75 75 76 78 76 80
Table 2 Individual question scores for overall rating of care
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16
Good 101 87 85
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 901
Yes somewhat 99 89
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 919
Yes somewhat 73 75
No 12 07
Table 1 Patient characteristics
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Percentage may not add to 100 due to numerical rounding
Rossy Cancer Network
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 35
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age group (n=3077)
18 to 24 9 03
25 to 34 45 15
35 to 44 115 4
45 to 54 455 15
55 to 64 832 27
65 to 74 946 31
75+ 675 22
No response 201 --
Cancer type (n=2933)
Breast 903 31
HematologyLymphoma 426 15
Colorectal bowel 370 13
Lung 269 9
CervixUterineOvarian 198 7
Prostate 187 6
KidneyBladder 102 3
Head amp Neck 86 3
Stomach 53 2
Melanoma 52 2
Sarcoma 43 1
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 --
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27
RT only 336 13
Chemo only (iv or oral) 341 13
Surgery + RT andor chemo (iv or oral) 1055 42
RT + chemo (iv or oral) 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
Additional questions
Rossy Cancer Network Canada
N
Who first told you of your cancer diagnosis (n=2984)
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
NOTES
1 The Rossy Cancer Network is a partnership of McGill Universityrsquos Faculty of Medicine the McGill University Health Centre (MUHC) the Jewish General Hospital (JGH) and St Maryrsquos Hospital Center (SMHC)
2 The RCN mails out 1660 AOPSS surveys per year The survey is mailed every three months to 415 patients aged 18 years or older who have a confirmed cancer diagnosis and who received active treatment as an outpatient within the past 6 months at one of the RCN partner hospitals regardless of when they were diagnosed Patients selected to participate in the survey could have been diagnosed 6 month to 5 years prior The sample size per hospital reflects the hospital outpatient population JGH = 150 MUHC = 150 SMHC = 115 per quarter To
3 Treatment is defined as surgery radiation therapy or anti-cancer therapy (oral or IV)
4 The data in this report is presented by fiscal year For example 2014 represents data from patients mailed questionnaires between April 2013 and March 2014
5 Data for year 2018 is incomplete Only quarters 1 and 2 are reported corresponding to surveys mailed between April 2017 and September 2017
6 Completed surveys are returned to the National Research Corporation (NRC) in pre-stamped return envelopes and NRC compiles the results Responses are completely confidential
7 The Canadian averages used in this report are provided by NRC The numbers shown are the most recent data (last year) collected from at least five institutions across Canada with a sample size of over 1000 respondents for each question
Access to Care Access to Care
Coordination and Continuity of Care Coordination and Continuity of Care
Emotional Support Emotional Support
Information Education and Communication Information Education and Communication
Physical Symptom Physical Symptom
Respect for Patient Preferences Respect for Patient Preferences
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Surgery only
Radiation therapy only
Chemotherapy only
Surgery + Radiation therapy andor Chemotherapy
Radiation therapy + Chemotherapy
Page 3: L’expérience des patients atteints de cancer lors du

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Access toCare
Coordination and Continuityof Care
RCN
Canada
063
071
067
071
05
054
062
065
073
077
076
08

NOTES

Pt Characteristics

Overall rating of care

Care domains

Care domains

RCN
Canada

1Access to care

2-day chemo-blood test

2-day chemo-blood test

15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
Time waiting before scheduled appointment for chemo treatment (min)
Time patients wait before scheduled chemotherapy appointment

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

About oral meds

6 Respect for patient pref

Chart1

1211
1845

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

1263
1163
852

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0887
0113

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0913
0087

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Sales
82
18

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Sales
53
47

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Sales
60
40

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42
58

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Sales
68
32

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Sales
60
40

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Sales
68
32

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Sales
77
33

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60
40

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  • Slide Number 1
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1st Qtr 60
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1st Qtr
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Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
MUHC
JGH
SMHC
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Male
Female
Table 9 Individual question scores for the Respect for Patient Preference care dimension
Positive responses are indicated in bold For the Canadian average only the positive response is noted
Rossy Cancer Network Canada
N
Treated with dignity and respect by care providers
yes completely 2830 93 94
yes somewhat 195 6
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76
yes somewhat 837 27
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57
yes somewhat 416 25
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90
yes somewhat 328 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61
yes somewhat 789 26
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8
right amount 2186 90 95
too much 47 2
Additional questions (not included in the calculation of the Respect for Patient Preference domain score)
Rossy Cancer Network Canada
N
Do you feel your doctor listened carefully to you
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
Table 9 Patient experiences with Physical Comfort while receiving outpatient care consisting of oral cancer medication (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84
yes somewhat 71 19
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92
yes somewhat 36 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68
yes somewhat 89 24
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96
no 13 4
Who provided information about how to manage side effects of oral cancer medication
Doctor 225 33
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
Table 8 Patient experiences with Physical Comfort while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC
yes completely 1478 76 79 80 69 78
yes somewhat 418 21 18 27 19
no 61 3 2 4 3
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 76 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
Additional questions (not included in the calculation of the Physical Comfort domain score)
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Table 7 Patient experiences with Information Education and Communication while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53
yes somewhat 620 20 18 22 22
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75
yes somewhat 538 21
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82
yes somewhat 594 20
no 104 3
Test results were explained understandably
yes completely 1955 68 75
yes somewhat 828 29
no 111 4
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37
yes somewhat 296 29
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70
yes somewhat 793 26
no 212 7
nutritional needs
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
Additional questions (not included in the calculation of the Information Education and Communication domain score)
The results of my surgery were explained understandably
yes completely 1352 78 83
yes somewhat 328 19
no 51 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Told of diagnosis in a sensitive manner
yes completely 2072 68 71
yes somewhat 722 24
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness
yes 1454 60 47
no 956 40
Someone put you in touch with other care providers who could help with anxieties and fears
yes 344 54 44
no 296 46
Always received as much help as wanted in figuring out how to pay for any extra costs
never 239 21
sometimes 136 12
usually 225 20
always 519 46 50
A care provider went out of his or her way to help you or make you feel better
yes completely 1933 64 69
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible emotional changes
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in sexual activity
yes completely 798 37 49
yes somewhat 501 23
no 855 40
possible changes in relationship with partner
yes completely 527 27 38
yes somewhat 463 24
no 930 48
Additional questions (not included in the calculation of the Emotional Support domain score)
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you
yes completely 579 61 61
yes somewhat 290 30
no 87 9
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4
sometimes 191 20
usually 217 23
always 496 53 57
Aware of information and support services such as Hope amp Cope or Cedars CanSupport
yes 2209 81 Not available
no 527 19
Of patients who were aware of information and support services such as Hope amp Cope or Cedars CanSupport when were you made aware of these services
at diagnosis 825 37
during cancer treatment 1342 61
when cancer treatment was completed 46 2
I dont know 66 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Providers knew enough about cancer therapies
yes completely 2584 85 83
yes somewhat 413 14
no 53 2
Knew who was in charge of care for each therapy
yes completely 2629 86 86
yes somewhat 338 11
no 76 2
Providers always familiar with medical history
never 72 2
sometimes 281 9
usually 971 33
always 1663 56 60
Providers always aware of test results
never 47 2
sometimes 214 7
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment
never 2344 78 77
sometimes 561 19
usually 48 2
always 62 2
Always knew who to ask about health problems
never 87 3
sometimes 240 8
usually 849 28
always 1847 61 63
Always knew next step in care
never 108 4
sometimes 258 9
usually 907 30
always 1750 58 61
If you visited your family doctor within the last 6 months felt that family doctor knew enough about your cancer care
yes completely 820 42 60
yes somewhat 641 33
no 479 25
Patients who selected doesnt apply were excluded
Additional questions (not included in the calculation of the Coord amp Integration of care domain score)
Do you feel that your overall care was well coordinated
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed
yes 2259 81 Not available
no 546 19
Table 5 Patients wait less time before their scheduled chemotherapy appointment when the blood test is done on the day before
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
Table 4 Patient experiences with Access to Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89
Received all services needed in past 6 months for cancer care
yes completely 960 83 83
yes somewhat 172 15
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57
yes somewhat 562 26
no 451 21
FOR PATIENTS RECEIVING RADIATION THERAPY SS differences by hospital (plt005)
Never waited longer than expected for radiation therapy MUHC (N=585) JGH (N=453) SMHC (N=128) Note that SMHC patients receive their Radiation Therapy treatment at MUHC or JGH
never 387 33 61 36 28 38
sometimes 642 55 53 60 45
usually 94 8 7 8 13
always 43 4 4 3 5
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Additional questions (not included in the calculation of the Access to Care domain score)
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83
yes somewhat 254 17
no 91 6
Table 3 Percentage of patients who reported positive experiences while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
2014 2015 2016 2017 2018 RCN Canada 2014 2015 2016 2017 2018 RCN composite score CAN
Access to Care 52 57 61 65 70 63 71 Access to Care 52 57 61 65 70 63 71
Coordination and Continuity of Care 68 67 68 69 69 67 71 Coordination and integration of care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54 Emotional support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65 Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77 Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80 Respect for patient preferences 76 75 75 76 78 76 80
Table 2 Individual question scores for overall rating of care
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16
Good 101 87 85
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 901
Yes somewhat 99 89
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 919
Yes somewhat 73 75
No 12 07
Table 1 Patient characteristics
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Percentage may not add to 100 due to numerical rounding
Rossy Cancer Network
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 35
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age group (n=3077)
18 to 24 9 03
25 to 34 45 15
35 to 44 115 4
45 to 54 455 15
55 to 64 832 27
65 to 74 946 31
75+ 675 22
No response 201 --
Cancer type (n=2933)
Breast 903 31
HematologyLymphoma 426 15
Colorectal bowel 370 13
Lung 269 9
CervixUterineOvarian 198 7
Prostate 187 6
KidneyBladder 102 3
Head amp Neck 86 3
Stomach 53 2
Melanoma 52 2
Sarcoma 43 1
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 --
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27
RT only 336 13
Chemo only (iv or oral) 341 13
Surgery + RT andor chemo (iv or oral) 1055 42
RT + chemo (iv or oral) 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
Additional questions
Rossy Cancer Network Canada
N
Who first told you of your cancer diagnosis (n=2984)
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
NOTES
1 The Rossy Cancer Network is a partnership of McGill Universityrsquos Faculty of Medicine the McGill University Health Centre (MUHC) the Jewish General Hospital (JGH) and St Maryrsquos Hospital Center (SMHC)
2 The RCN mails out 1660 AOPSS surveys per year The survey is mailed every three months to 415 patients aged 18 years or older who have a confirmed cancer diagnosis and who received active treatment as an outpatient within the past 6 months at one of the RCN partner hospitals regardless of when they were diagnosed Patients selected to participate in the survey could have been diagnosed 6 month to 5 years prior The sample size per hospital reflects the hospital outpatient population JGH = 150 MUHC = 150 SMHC = 115 per quarter To
3 Treatment is defined as surgery radiation therapy or anti-cancer therapy (oral or IV)
4 The data in this report is presented by fiscal year For example 2014 represents data from patients mailed questionnaires between April 2013 and March 2014
5 Data for year 2018 is incomplete Only quarters 1 and 2 are reported corresponding to surveys mailed between April 2017 and September 2017
6 Completed surveys are returned to the National Research Corporation (NRC) in pre-stamped return envelopes and NRC compiles the results Responses are completely confidential
7 The Canadian averages used in this report are provided by NRC The numbers shown are the most recent data (last year) collected from at least five institutions across Canada with a sample size of over 1000 respondents for each question
Access to Care Access to Care
Coordination and Continuity of Care Coordination and Continuity of Care
Emotional Support Emotional Support
Information Education and Communication Information Education and Communication
Physical Symptom Physical Symptom
Respect for Patient Preferences Respect for Patient Preferences
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Page 4: L’expérience des patients atteints de cancer lors du

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Access toCare
Coordination and Continuityof Care
RCN
Canada
063
071
067
071
05
054
062
065
073
077
076
08

NOTES

Pt Characteristics

Overall rating of care

Care domains

Care domains

RCN
Canada

1Access to care

2-day chemo-blood test

2-day chemo-blood test

15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
Time waiting before scheduled appointment for chemo treatment (min)
Time patients wait before scheduled chemotherapy appointment

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

About oral meds

6 Respect for patient pref

Chart1

1211
1845

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

1263
1163
852

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0887
0113

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0913
0087

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Sales
82
18

Sheet1

Chart1

Sales
53
47

Sheet1

Chart1

Sales
60
40

Sheet1

Chart1

Sales
42
58

Sheet1

Chart1

Sales
68
32

Sheet1

Chart1

Sales
60
40

Sheet1

Chart1

Sales
68
32

Sheet1

Chart1

Sales
77
33

Sheet1

Chart1

Sales
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Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
MUHC
JGH
SMHC
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Male
Female
Table 9 Individual question scores for the Respect for Patient Preference care dimension
Positive responses are indicated in bold For the Canadian average only the positive response is noted
Rossy Cancer Network Canada
N
Treated with dignity and respect by care providers
yes completely 2830 93 94
yes somewhat 195 6
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76
yes somewhat 837 27
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57
yes somewhat 416 25
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90
yes somewhat 328 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61
yes somewhat 789 26
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8
right amount 2186 90 95
too much 47 2
Additional questions (not included in the calculation of the Respect for Patient Preference domain score)
Rossy Cancer Network Canada
N
Do you feel your doctor listened carefully to you
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
Table 9 Patient experiences with Physical Comfort while receiving outpatient care consisting of oral cancer medication (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84
yes somewhat 71 19
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92
yes somewhat 36 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68
yes somewhat 89 24
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96
no 13 4
Who provided information about how to manage side effects of oral cancer medication
Doctor 225 33
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
Table 8 Patient experiences with Physical Comfort while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC
yes completely 1478 76 79 80 69 78
yes somewhat 418 21 18 27 19
no 61 3 2 4 3
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 76 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
Additional questions (not included in the calculation of the Physical Comfort domain score)
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Table 7 Patient experiences with Information Education and Communication while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53
yes somewhat 620 20 18 22 22
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75
yes somewhat 538 21
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82
yes somewhat 594 20
no 104 3
Test results were explained understandably
yes completely 1955 68 75
yes somewhat 828 29
no 111 4
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37
yes somewhat 296 29
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70
yes somewhat 793 26
no 212 7
nutritional needs
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
Additional questions (not included in the calculation of the Information Education and Communication domain score)
The results of my surgery were explained understandably
yes completely 1352 78 83
yes somewhat 328 19
no 51 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Told of diagnosis in a sensitive manner
yes completely 2072 68 71
yes somewhat 722 24
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness
yes 1454 60 47
no 956 40
Someone put you in touch with other care providers who could help with anxieties and fears
yes 344 54 44
no 296 46
Always received as much help as wanted in figuring out how to pay for any extra costs
never 239 21
sometimes 136 12
usually 225 20
always 519 46 50
A care provider went out of his or her way to help you or make you feel better
yes completely 1933 64 69
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible emotional changes
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in sexual activity
yes completely 798 37 49
yes somewhat 501 23
no 855 40
possible changes in relationship with partner
yes completely 527 27 38
yes somewhat 463 24
no 930 48
Additional questions (not included in the calculation of the Emotional Support domain score)
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you
yes completely 579 61 61
yes somewhat 290 30
no 87 9
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4
sometimes 191 20
usually 217 23
always 496 53 57
Aware of information and support services such as Hope amp Cope or Cedars CanSupport
yes 2209 81 Not available
no 527 19
Of patients who were aware of information and support services such as Hope amp Cope or Cedars CanSupport when were you made aware of these services
at diagnosis 825 37
during cancer treatment 1342 61
when cancer treatment was completed 46 2
I dont know 66 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Providers knew enough about cancer therapies
yes completely 2584 85 83
yes somewhat 413 14
no 53 2
Knew who was in charge of care for each therapy
yes completely 2629 86 86
yes somewhat 338 11
no 76 2
Providers always familiar with medical history
never 72 2
sometimes 281 9
usually 971 33
always 1663 56 60
Providers always aware of test results
never 47 2
sometimes 214 7
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment
never 2344 78 77
sometimes 561 19
usually 48 2
always 62 2
Always knew who to ask about health problems
never 87 3
sometimes 240 8
usually 849 28
always 1847 61 63
Always knew next step in care
never 108 4
sometimes 258 9
usually 907 30
always 1750 58 61
If you visited your family doctor within the last 6 months felt that family doctor knew enough about your cancer care
yes completely 820 42 60
yes somewhat 641 33
no 479 25
Patients who selected doesnt apply were excluded
Additional questions (not included in the calculation of the Coord amp Integration of care domain score)
Do you feel that your overall care was well coordinated
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed
yes 2259 81 Not available
no 546 19
Table 5 Patients wait less time before their scheduled chemotherapy appointment when the blood test is done on the day before
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
Table 4 Patient experiences with Access to Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89
Received all services needed in past 6 months for cancer care
yes completely 960 83 83
yes somewhat 172 15
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57
yes somewhat 562 26
no 451 21
FOR PATIENTS RECEIVING RADIATION THERAPY SS differences by hospital (plt005)
Never waited longer than expected for radiation therapy MUHC (N=585) JGH (N=453) SMHC (N=128) Note that SMHC patients receive their Radiation Therapy treatment at MUHC or JGH
never 387 33 61 36 28 38
sometimes 642 55 53 60 45
usually 94 8 7 8 13
always 43 4 4 3 5
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Additional questions (not included in the calculation of the Access to Care domain score)
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83
yes somewhat 254 17
no 91 6
Table 3 Percentage of patients who reported positive experiences while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
2014 2015 2016 2017 2018 RCN Canada 2014 2015 2016 2017 2018 RCN composite score CAN
Access to Care 52 57 61 65 70 63 71 Access to Care 52 57 61 65 70 63 71
Coordination and Continuity of Care 68 67 68 69 69 67 71 Coordination and integration of care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54 Emotional support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65 Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77 Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80 Respect for patient preferences 76 75 75 76 78 76 80
Table 2 Individual question scores for overall rating of care
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16
Good 101 87 85
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 901
Yes somewhat 99 89
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 919
Yes somewhat 73 75
No 12 07
Table 1 Patient characteristics
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Percentage may not add to 100 due to numerical rounding
Rossy Cancer Network
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 35
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age group (n=3077)
18 to 24 9 03
25 to 34 45 15
35 to 44 115 4
45 to 54 455 15
55 to 64 832 27
65 to 74 946 31
75+ 675 22
No response 201 --
Cancer type (n=2933)
Breast 903 31
HematologyLymphoma 426 15
Colorectal bowel 370 13
Lung 269 9
CervixUterineOvarian 198 7
Prostate 187 6
KidneyBladder 102 3
Head amp Neck 86 3
Stomach 53 2
Melanoma 52 2
Sarcoma 43 1
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 --
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27
RT only 336 13
Chemo only (iv or oral) 341 13
Surgery + RT andor chemo (iv or oral) 1055 42
RT + chemo (iv or oral) 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
Additional questions
Rossy Cancer Network Canada
N
Who first told you of your cancer diagnosis (n=2984)
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
NOTES
1 The Rossy Cancer Network is a partnership of McGill Universityrsquos Faculty of Medicine the McGill University Health Centre (MUHC) the Jewish General Hospital (JGH) and St Maryrsquos Hospital Center (SMHC)
2 The RCN mails out 1660 AOPSS surveys per year The survey is mailed every three months to 415 patients aged 18 years or older who have a confirmed cancer diagnosis and who received active treatment as an outpatient within the past 6 months at one of the RCN partner hospitals regardless of when they were diagnosed Patients selected to participate in the survey could have been diagnosed 6 month to 5 years prior The sample size per hospital reflects the hospital outpatient population JGH = 150 MUHC = 150 SMHC = 115 per quarter To
3 Treatment is defined as surgery radiation therapy or anti-cancer therapy (oral or IV)
4 The data in this report is presented by fiscal year For example 2014 represents data from patients mailed questionnaires between April 2013 and March 2014
5 Data for year 2018 is incomplete Only quarters 1 and 2 are reported corresponding to surveys mailed between April 2017 and September 2017
6 Completed surveys are returned to the National Research Corporation (NRC) in pre-stamped return envelopes and NRC compiles the results Responses are completely confidential
7 The Canadian averages used in this report are provided by NRC The numbers shown are the most recent data (last year) collected from at least five institutions across Canada with a sample size of over 1000 respondents for each question
Access to Care Access to Care
Coordination and Continuity of Care Coordination and Continuity of Care
Emotional Support Emotional Support
Information Education and Communication Information Education and Communication
Physical Symptom Physical Symptom
Respect for Patient Preferences Respect for Patient Preferences
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
Page 5: L’expérience des patients atteints de cancer lors du

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Access toCare
Coordination and Continuityof Care
RCN
Canada
063
071
067
071
05
054
062
065
073
077
076
08

NOTES

Pt Characteristics

Overall rating of care

Care domains

Care domains

RCN
Canada

1Access to care

2-day chemo-blood test

2-day chemo-blood test

15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
Time waiting before scheduled appointment for chemo treatment (min)
Time patients wait before scheduled chemotherapy appointment

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

About oral meds

6 Respect for patient pref

Chart1

1211
1845

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

1263
1163
852

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0887
0113

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0913
0087

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Sales
82
18

Sheet1

Chart1

Sales
53
47

Sheet1

Chart1

Sales
60
40

Sheet1

Chart1

Sales
42
58

Sheet1

Chart1

Sales
68
32

Sheet1

Chart1

Sales
60
40

Sheet1

Chart1

Sales
68
32

Sheet1

Chart1

Sales
77
33

Sheet1

Chart1

Sales
60
40

Sheet1

  • Slide Number 1
Sales
1st Qtr 60
2nd Qtr 40
1st Qtr
2nd Qtr
Sales
1st Qtr 77
2nd Qtr 33
1st Qtr
2nd Qtr
Sales
1st Qtr 68
2nd Qtr 32
1st Qtr
2nd Qtr
Sales
1st Qtr 60
2nd Qtr 40
1st Qtr
2nd Qtr
Sales
1st Qtr 68
2nd Qtr 32
1st Qtr
2nd Qtr
Sales
1st Qtr 42
2nd Qtr 58
1st Qtr
2nd Qtr
Sales
1st Qtr 60
2nd Qtr 40
1st Qtr
2nd Qtr
Sales
1st Qtr 53
2nd Qtr 47
1st Qtr
2nd Qtr
Sales
1st Qtr 82
2nd Qtr 18
1st Qtr
2nd Qtr
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
MUHC
JGH
SMHC
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Male
Female
Table 9 Individual question scores for the Respect for Patient Preference care dimension
Positive responses are indicated in bold For the Canadian average only the positive response is noted
Rossy Cancer Network Canada
N
Treated with dignity and respect by care providers
yes completely 2830 93 94
yes somewhat 195 6
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76
yes somewhat 837 27
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57
yes somewhat 416 25
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90
yes somewhat 328 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61
yes somewhat 789 26
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8
right amount 2186 90 95
too much 47 2
Additional questions (not included in the calculation of the Respect for Patient Preference domain score)
Rossy Cancer Network Canada
N
Do you feel your doctor listened carefully to you
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
Table 9 Patient experiences with Physical Comfort while receiving outpatient care consisting of oral cancer medication (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84
yes somewhat 71 19
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92
yes somewhat 36 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68
yes somewhat 89 24
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96
no 13 4
Who provided information about how to manage side effects of oral cancer medication
Doctor 225 33
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
Table 8 Patient experiences with Physical Comfort while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC
yes completely 1478 76 79 80 69 78
yes somewhat 418 21 18 27 19
no 61 3 2 4 3
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 76 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
Additional questions (not included in the calculation of the Physical Comfort domain score)
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Table 7 Patient experiences with Information Education and Communication while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53
yes somewhat 620 20 18 22 22
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75
yes somewhat 538 21
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82
yes somewhat 594 20
no 104 3
Test results were explained understandably
yes completely 1955 68 75
yes somewhat 828 29
no 111 4
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37
yes somewhat 296 29
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70
yes somewhat 793 26
no 212 7
nutritional needs
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
Additional questions (not included in the calculation of the Information Education and Communication domain score)
The results of my surgery were explained understandably
yes completely 1352 78 83
yes somewhat 328 19
no 51 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Told of diagnosis in a sensitive manner
yes completely 2072 68 71
yes somewhat 722 24
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness
yes 1454 60 47
no 956 40
Someone put you in touch with other care providers who could help with anxieties and fears
yes 344 54 44
no 296 46
Always received as much help as wanted in figuring out how to pay for any extra costs
never 239 21
sometimes 136 12
usually 225 20
always 519 46 50
A care provider went out of his or her way to help you or make you feel better
yes completely 1933 64 69
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible emotional changes
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in sexual activity
yes completely 798 37 49
yes somewhat 501 23
no 855 40
possible changes in relationship with partner
yes completely 527 27 38
yes somewhat 463 24
no 930 48
Additional questions (not included in the calculation of the Emotional Support domain score)
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you
yes completely 579 61 61
yes somewhat 290 30
no 87 9
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4
sometimes 191 20
usually 217 23
always 496 53 57
Aware of information and support services such as Hope amp Cope or Cedars CanSupport
yes 2209 81 Not available
no 527 19
Of patients who were aware of information and support services such as Hope amp Cope or Cedars CanSupport when were you made aware of these services
at diagnosis 825 37
during cancer treatment 1342 61
when cancer treatment was completed 46 2
I dont know 66 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Providers knew enough about cancer therapies
yes completely 2584 85 83
yes somewhat 413 14
no 53 2
Knew who was in charge of care for each therapy
yes completely 2629 86 86
yes somewhat 338 11
no 76 2
Providers always familiar with medical history
never 72 2
sometimes 281 9
usually 971 33
always 1663 56 60
Providers always aware of test results
never 47 2
sometimes 214 7
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment
never 2344 78 77
sometimes 561 19
usually 48 2
always 62 2
Always knew who to ask about health problems
never 87 3
sometimes 240 8
usually 849 28
always 1847 61 63
Always knew next step in care
never 108 4
sometimes 258 9
usually 907 30
always 1750 58 61
If you visited your family doctor within the last 6 months felt that family doctor knew enough about your cancer care
yes completely 820 42 60
yes somewhat 641 33
no 479 25
Patients who selected doesnt apply were excluded
Additional questions (not included in the calculation of the Coord amp Integration of care domain score)
Do you feel that your overall care was well coordinated
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed
yes 2259 81 Not available
no 546 19
Table 5 Patients wait less time before their scheduled chemotherapy appointment when the blood test is done on the day before
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
Table 4 Patient experiences with Access to Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89
Received all services needed in past 6 months for cancer care
yes completely 960 83 83
yes somewhat 172 15
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57
yes somewhat 562 26
no 451 21
FOR PATIENTS RECEIVING RADIATION THERAPY SS differences by hospital (plt005)
Never waited longer than expected for radiation therapy MUHC (N=585) JGH (N=453) SMHC (N=128) Note that SMHC patients receive their Radiation Therapy treatment at MUHC or JGH
never 387 33 61 36 28 38
sometimes 642 55 53 60 45
usually 94 8 7 8 13
always 43 4 4 3 5
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Additional questions (not included in the calculation of the Access to Care domain score)
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83
yes somewhat 254 17
no 91 6
Table 3 Percentage of patients who reported positive experiences while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
2014 2015 2016 2017 2018 RCN Canada 2014 2015 2016 2017 2018 RCN composite score CAN
Access to Care 52 57 61 65 70 63 71 Access to Care 52 57 61 65 70 63 71
Coordination and Continuity of Care 68 67 68 69 69 67 71 Coordination and integration of care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54 Emotional support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65 Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77 Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80 Respect for patient preferences 76 75 75 76 78 76 80
Table 2 Individual question scores for overall rating of care
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16
Good 101 87 85
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 901
Yes somewhat 99 89
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 919
Yes somewhat 73 75
No 12 07
Table 1 Patient characteristics
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Percentage may not add to 100 due to numerical rounding
Rossy Cancer Network
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 35
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age group (n=3077)
18 to 24 9 03
25 to 34 45 15
35 to 44 115 4
45 to 54 455 15
55 to 64 832 27
65 to 74 946 31
75+ 675 22
No response 201 --
Cancer type (n=2933)
Breast 903 31
HematologyLymphoma 426 15
Colorectal bowel 370 13
Lung 269 9
CervixUterineOvarian 198 7
Prostate 187 6
KidneyBladder 102 3
Head amp Neck 86 3
Stomach 53 2
Melanoma 52 2
Sarcoma 43 1
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 --
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27
RT only 336 13
Chemo only (iv or oral) 341 13
Surgery + RT andor chemo (iv or oral) 1055 42
RT + chemo (iv or oral) 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
Additional questions
Rossy Cancer Network Canada
N
Who first told you of your cancer diagnosis (n=2984)
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
NOTES
1 The Rossy Cancer Network is a partnership of McGill Universityrsquos Faculty of Medicine the McGill University Health Centre (MUHC) the Jewish General Hospital (JGH) and St Maryrsquos Hospital Center (SMHC)
2 The RCN mails out 1660 AOPSS surveys per year The survey is mailed every three months to 415 patients aged 18 years or older who have a confirmed cancer diagnosis and who received active treatment as an outpatient within the past 6 months at one of the RCN partner hospitals regardless of when they were diagnosed Patients selected to participate in the survey could have been diagnosed 6 month to 5 years prior The sample size per hospital reflects the hospital outpatient population JGH = 150 MUHC = 150 SMHC = 115 per quarter To
3 Treatment is defined as surgery radiation therapy or anti-cancer therapy (oral or IV)
4 The data in this report is presented by fiscal year For example 2014 represents data from patients mailed questionnaires between April 2013 and March 2014
5 Data for year 2018 is incomplete Only quarters 1 and 2 are reported corresponding to surveys mailed between April 2017 and September 2017
6 Completed surveys are returned to the National Research Corporation (NRC) in pre-stamped return envelopes and NRC compiles the results Responses are completely confidential
7 The Canadian averages used in this report are provided by NRC The numbers shown are the most recent data (last year) collected from at least five institutions across Canada with a sample size of over 1000 respondents for each question
Access to Care Access to Care
Coordination and Continuity of Care Coordination and Continuity of Care
Emotional Support Emotional Support
Information Education and Communication Information Education and Communication
Physical Symptom Physical Symptom
Respect for Patient Preferences Respect for Patient Preferences
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
Page 6: L’expérience des patients atteints de cancer lors du

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Access toCare
Coordination and Continuityof Care
RCN
Canada
063
071
067
071
05
054
062
065
073
077
076
08

NOTES

Pt Characteristics

Overall rating of care

Care domains

Care domains

RCN
Canada

1Access to care

2-day chemo-blood test

2-day chemo-blood test

15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
Time waiting before scheduled appointment for chemo treatment (min)
Time patients wait before scheduled chemotherapy appointment

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

About oral meds

6 Respect for patient pref

Chart1

1211
1845

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

1263
1163
852

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

6 Respect for patient pref

2014
2015
2016
2017
2018
Canada

To Improve

RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0887
0113

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

0913
0087

Pt Characteristics

Pt Characteristics

[]
[]
[]
[]
[]
[]
[]

Overall rating of care

Care domains (Composite)

[]150
[]150
[]115

Care domains

Sheet1

1Access to care

RCN
Canada

IV chemo wait time

2 Coord amp Integration of care

3 Emotional support

4 Info Ed Comm

5 Physical comfort

5 Physical comfort

about oral meds

6 Respect for patient pref

To Improve

To Improve

2014
2015
2016
2017
2018
Canada
RCN
Canada
Composite Scores (2014-2018)
15 mins or less
16-30 mins
31-45 mins
46-60 mins
More than 60 mins
85
86
56
60
78
61
58
42
68
60
61
54
53
46
64
59
73
77
68
78
38
Told how to manage side effects
Care Provider did everything they could to help with side effects
77
90
60
96
93
63
58
89
56
90

Chart1

Sales
82
18

Sheet1

Chart1

Sales
53
47

Sheet1

Chart1

Sales
60
40

Sheet1

Chart1

Sales
42
58

Sheet1

Chart1

Sales
68
32

Sheet1

Chart1

Sales
60
40

Sheet1

Chart1

Sales
68
32

Sheet1

Chart1

Sales
77
33

Sheet1

Chart1

Sales
60
40

Sheet1

  • Slide Number 1
Sales
1st Qtr 60
2nd Qtr 40
1st Qtr
2nd Qtr
Sales
1st Qtr 77
2nd Qtr 33
1st Qtr
2nd Qtr
Sales
1st Qtr 68
2nd Qtr 32
1st Qtr
2nd Qtr
Sales
1st Qtr 60
2nd Qtr 40
1st Qtr
2nd Qtr
Sales
1st Qtr 68
2nd Qtr 32
1st Qtr
2nd Qtr
Sales
1st Qtr 42
2nd Qtr 58
1st Qtr
2nd Qtr
Sales
1st Qtr 60
2nd Qtr 40
1st Qtr
2nd Qtr
Sales
1st Qtr 53
2nd Qtr 47
1st Qtr
2nd Qtr
Sales
1st Qtr 82
2nd Qtr 18
1st Qtr
2nd Qtr
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Sein 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 HeacutematologieLymphome 15
Colorectal Bowel 370 13 ColorectalIntestinal 13
Lung 269 9 Poumons 9
Cervix Uterine Ovarian 198 7 Geacutenito-urinaire 9
Prostate 187 6 Gyneacutecologique 7
Kidney Bladder 102 4 Sphegravere ORL 3
Head amp Neck 86 3 Autre 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Chirurgie seulement 688 27 100
Radiotheacuterapie (RT) seulement 336 13
Chimiotheacuterapie seulement 341 13
Chirurgie RT etou Chimiotheacuterapie 1055 42
RT et Chimiotheacuterapie 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Yes
No
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
MUHC
JGH
SMHC
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
RCN Respondents
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 36
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age Group (n=3077) 100
18 agrave 24 9 03
25 agrave 34 45 2
35 agrave 44 115 4
45 agrave 54 455 15
55 agrave 64 832 27
65 agrave 74 946 31
75+ 675 22
No response 201 --
Cancer Type (n=2933)
Breast 903 31 100 Breast 31 PROSTATE GENITOURINARY together So the will be prostate + kidneybladder (so 10) then I would group everything that is 2 and lower together (so the OTHERS category would have 12 In the graph through I would leave OTHERS category still at the right like you did
Hematology Lymphoma 426 15 Hematology Lymphoma 15
Colorectal Bowel 370 13 Colorectal Bowel 13
Lung 269 9 Lung 9
Cervix Uterine Ovarian 198 7 Prostate Genitourinary 9
Prostate 187 6 Cervix Uterine Ovarian 7
Kidney Bladder 102 4 Head amp Neck 3
Head amp Neck 86 3 Other 13
Stomach 53 2
Melanoma 52 2
Sarcoma 43 2
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 -- Sorry Some numbers were a bit off in my data set Here is the correction and in the correct order Breast(31) Hematologylymphoma (15) Colorectalbowel (13) Lung (9) ProstateGenitourinary (9) cervixUterineOvarian (7) Head amp Neck (3) Other (13)
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27 100
Radiation therapy only 336 13
Chemotherapy only 341 13
Surgery + Radiation therapy andor Chemotherapy 1055 42
Radiation therapy + Chemotherapy 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
CAROLE - The questions below are not pt charact but could be put in as a factoid or little insert OR as you suggested us a patient trajectory arrow (diagnosis--gttreatment planning --gt treatment)
RCN Respondents CAN
N
Who first told you of your cancer diagnosis (n=2984) RCN Canada
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31 Interesting that in other provinces family doctor 13rd of patients are told of cancer diagnosis by family Dr
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13 Like other patients in Canada treatment planning was mostly done by a cancer specialist (80) or surgeon (14)
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
1 Percentages were calculated using total number of respondents to each question (ie non-responders have been excluded from numerator and denominator) Percentage may not add to 100 due to numerical rounding 2 IV andor oral chemotherapy
Male
Female
Table 9 Individual question scores for the Respect for Patient Preference care dimension
Positive responses are indicated in bold For the Canadian average only the positive response is noted
Rossy Cancer Network Canada
N
Treated with dignity and respect by care providers
yes completely 2830 93 94
yes somewhat 195 6
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76
yes somewhat 837 27
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57
yes somewhat 416 25
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90
yes somewhat 328 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61
yes somewhat 789 26
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8
right amount 2186 90 95
too much 47 2
Additional questions (not included in the calculation of the Respect for Patient Preference domain score)
Rossy Cancer Network Canada
N
Do you feel your doctor listened carefully to you
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
Table 9 Patient experiences with Physical Comfort while receiving outpatient care consisting of oral cancer medication (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84
yes somewhat 71 19
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92
yes somewhat 36 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68
yes somewhat 89 24
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96
no 13 4
Who provided information about how to manage side effects of oral cancer medication
Doctor 225 33
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
Table 8 Patient experiences with Physical Comfort while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC
yes completely 1478 76 79 80 69 78
yes somewhat 418 21 18 27 19
no 61 3 2 4 3
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 76 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
Additional questions (not included in the calculation of the Physical Comfort domain score)
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Table 7 Patient experiences with Information Education and Communication while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53
yes somewhat 620 20 18 22 22
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75
yes somewhat 538 21
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82
yes somewhat 594 20
no 104 3
Test results were explained understandably
yes completely 1955 68 75
yes somewhat 828 29
no 111 4
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37
yes somewhat 296 29
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70
yes somewhat 793 26
no 212 7
nutritional needs
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
Additional questions (not included in the calculation of the Information Education and Communication domain score)
The results of my surgery were explained understandably
yes completely 1352 78 83
yes somewhat 328 19
no 51 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Told of diagnosis in a sensitive manner
yes completely 2072 68 71
yes somewhat 722 24
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness
yes 1454 60 47
no 956 40
Someone put you in touch with other care providers who could help with anxieties and fears
yes 344 54 44
no 296 46
Always received as much help as wanted in figuring out how to pay for any extra costs
never 239 21
sometimes 136 12
usually 225 20
always 519 46 50
A care provider went out of his or her way to help you or make you feel better
yes completely 1933 64 69
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible emotional changes
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in sexual activity
yes completely 798 37 49
yes somewhat 501 23
no 855 40
possible changes in relationship with partner
yes completely 527 27 38
yes somewhat 463 24
no 930 48
Additional questions (not included in the calculation of the Emotional Support domain score)
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you
yes completely 579 61 61
yes somewhat 290 30
no 87 9
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4
sometimes 191 20
usually 217 23
always 496 53 57
Aware of information and support services such as Hope amp Cope or Cedars CanSupport
yes 2209 81 Not available
no 527 19
Of patients who were aware of information and support services such as Hope amp Cope or Cedars CanSupport when were you made aware of these services
at diagnosis 825 37
during cancer treatment 1342 61
when cancer treatment was completed 46 2
I dont know 66 3
Table 6 Patient experiences with Coordination and Integration of Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
RCN CAN
N
Providers knew enough about cancer therapies
yes completely 2584 85 83
yes somewhat 413 14
no 53 2
Knew who was in charge of care for each therapy
yes completely 2629 86 86
yes somewhat 338 11
no 76 2
Providers always familiar with medical history
never 72 2
sometimes 281 9
usually 971 33
always 1663 56 60
Providers always aware of test results
never 47 2
sometimes 214 7
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment
never 2344 78 77
sometimes 561 19
usually 48 2
always 62 2
Always knew who to ask about health problems
never 87 3
sometimes 240 8
usually 849 28
always 1847 61 63
Always knew next step in care
never 108 4
sometimes 258 9
usually 907 30
always 1750 58 61
If you visited your family doctor within the last 6 months felt that family doctor knew enough about your cancer care
yes completely 820 42 60
yes somewhat 641 33
no 479 25
Patients who selected doesnt apply were excluded
Additional questions (not included in the calculation of the Coord amp Integration of care domain score)
Do you feel that your overall care was well coordinated
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed
yes 2259 81 Not available
no 546 19
Table 5 Patients wait less time before their scheduled chemotherapy appointment when the blood test is done on the day before
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
Table 4 Patient experiences with Access to Care while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89
Received all services needed in past 6 months for cancer care
yes completely 960 83 83
yes somewhat 172 15
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57
yes somewhat 562 26
no 451 21
FOR PATIENTS RECEIVING RADIATION THERAPY SS differences by hospital (plt005)
Never waited longer than expected for radiation therapy MUHC (N=585) JGH (N=453) SMHC (N=128) Note that SMHC patients receive their Radiation Therapy treatment at MUHC or JGH
never 387 33 61 36 28 38
sometimes 642 55 53 60 45
usually 94 8 7 8 13
always 43 4 4 3 5
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Additional questions (not included in the calculation of the Access to Care domain score)
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83
yes somewhat 254 17
no 91 6
Table 3 Percentage of patients who reported positive experiences while receiving outpatient care (2014-2018)
Percentages were calculated by NRC Data is reported by fiscal year (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
2014 2015 2016 2017 2018 RCN Canada 2014 2015 2016 2017 2018 RCN composite score CAN
Access to Care 52 57 61 65 70 63 71 Access to Care 52 57 61 65 70 63 71
Coordination and Continuity of Care 68 67 68 69 69 67 71 Coordination and integration of care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54 Emotional support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65 Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77 Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80 Respect for patient preferences 76 75 75 76 78 76 80
Table 2 Individual question scores for overall rating of care
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Positive responses are indicated in bold
Rossy Cancer Network Canada
N
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16
Good 101 87 85
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 901
Yes somewhat 99 89
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 919
Yes somewhat 73 75
No 12 07
Table 1 Patient characteristics
Percentages were calculated using total number of respondents for each question (ie non-responders were excluded from the numerator and denominator) Percentage may not add to 100 due to numerical rounding
Rossy Cancer Network
N
Respondents 3278 100
Primary RCN-affiliated hospital (n=3278)
MUHC 1263 39
JGH 1163 35
SMHC 852 26
Gender (n=3056)
Male 1211 40
Female 1845 60
No response 222 --
Age group (n=3077)
18 to 24 9 03
25 to 34 45 15
35 to 44 115 4
45 to 54 455 15
55 to 64 832 27
65 to 74 946 31
75+ 675 22
No response 201 --
Cancer type (n=2933)
Breast 903 31
HematologyLymphoma 426 15
Colorectal bowel 370 13
Lung 269 9
CervixUterineOvarian 198 7
Prostate 187 6
KidneyBladder 102 3
Head amp Neck 86 3
Stomach 53 2
Melanoma 52 2
Sarcoma 43 1
Brain 31 1
Other 204 7
I donrsquot know 9 03
No response 345 --
Cancer treatment received in the past 6 months (n=2537)
Surgery only 688 27
RT only 336 13
Chemo only (iv or oral) 341 13
Surgery + RT andor chemo (iv or oral) 1055 42
RT + chemo (iv or oral) 117 5
No response 741 --
Who completed survey (n=3053)
Self 2544 83
Other than self 509 17
No response 225 --
Additional questions
Rossy Cancer Network Canada
N
Who first told you of your cancer diagnosis (n=2984)
Surgeon 949 32 25
Cancer specialist 942 32 29
Family doctor 487 16 31
Someone else 606 20 15
No response 294 --
Who was involved in most of your treatment planning
Surgeon 412 14 13
Cancer Specialist 2306 80 83
Family Dr 17 1 2
Someone else 142 5 2
NOTES
1 The Rossy Cancer Network is a partnership of McGill Universityrsquos Faculty of Medicine the McGill University Health Centre (MUHC) the Jewish General Hospital (JGH) and St Maryrsquos Hospital Center (SMHC)
2 The RCN mails out 1660 AOPSS surveys per year The survey is mailed every three months to 415 patients aged 18 years or older who have a confirmed cancer diagnosis and who received active treatment as an outpatient within the past 6 months at one of the RCN partner hospitals regardless of when they were diagnosed Patients selected to participate in the survey could have been diagnosed 6 month to 5 years prior The sample size per hospital reflects the hospital outpatient population JGH = 150 MUHC = 150 SMHC = 115 per quarter To
3 Treatment is defined as surgery radiation therapy or anti-cancer therapy (oral or IV)
4 The data in this report is presented by fiscal year For example 2014 represents data from patients mailed questionnaires between April 2013 and March 2014
5 Data for year 2018 is incomplete Only quarters 1 and 2 are reported corresponding to surveys mailed between April 2017 and September 2017
6 Completed surveys are returned to the National Research Corporation (NRC) in pre-stamped return envelopes and NRC compiles the results Responses are completely confidential
7 The Canadian averages used in this report are provided by NRC The numbers shown are the most recent data (last year) collected from at least five institutions across Canada with a sample size of over 1000 respondents for each question
Access to Care Access to Care
Coordination and Continuity of Care Coordination and Continuity of Care
Emotional Support Emotional Support
Information Education and Communication Information Education and Communication
Physical Symptom Physical Symptom
Respect for Patient Preferences Respect for Patient Preferences
Question RCN CAN
Received enough information about possible changes in relationship with partner 27 38 Information needs
Received enough information about possible emotional changes 35 45
Received enough information about possible changes in sexual activity 38 49
Received enough information about possible changes in work or usual activities 42 50
If there was a wait before first consultation appointment someone explained why 38 37
Family doctor knew enough about your cancer care 42 60
Care provider always familiar with medical history 56 60
Always knew next steps in care 58 61
Someone discussed different cancer treatments 59 60
Comfortable talking with care provider about alternative therapies 56 57
Always received as much help as wanted in figuring out how to pay for any extra costs 46 50
Care provider considered travel concerns in treatment plan 53 57
RCN CAN
N Positive response
Treated with dignity and respect by care providers
yes completely 2830 93 94 93
yes somewhat 195 6 7
no 11 0
Involved in decisions about care as much as respondent wanted
yes completely 1938 63 76 63
yes somewhat 837 27 37
no 292 10
Comfortable talking with care provider about alternative therapies
yes completely 955 58 57 58
yes somewhat 416 25 42
no 271 17
Could trust care provider with confidential information
yes completely 2692 89 90 89
yes somewhat 328 11 11
no 16 1
Family or living situation taken into account when planning treatment
yes completely 1730 56 61 56
yes somewhat 789 26 44
no 544 18
Family or friends appropriately involved in care and treatment
not enough 193 8 10
right amount 2186 90 95 90
too much 47 2
Do you feel your doctor listened carefully to you FACTOID 710 patients responded that they doctors and care provides always listened carefully to them
never 12 1
sometimes 91 8
usually 265 22
always 810 69 70
Do you feel your care provider listened carefully to you
never 5 0
sometimes 63 5
usually 304 26
always 795 68 63
RCN CAN
N Positive response
The purpose of the oral cancer medication was clearly explained
yes completely 288 77 84 77
yes somewhat 71 19 23
no 15 4
Told in clear and understandable way how to take oral cancer medication
yes completely 336 90 92 90
yes somewhat 36 10 10
no 2 1
Told how to manage any side effects of oral cancer medication
yes completely 226 62 66
yes somewhat 92 25
no 44 12
Care providers did everything they could to help with oral cancer medication side effects
yes completely 233 67 74
yes somewhat 82 24
no 33 9
Was told by care providers about any danger signals to watch for at home
yes completely 226 60 68 60
yes somewhat 89 24 40
no 62 16
Knew whom to talk to for any questions or concerns
yes 357 96 96 96
no 13 4 4
WHO PROVIDED INFORMATION ABOUT HOW TO MANAGE SIDE EFFECTS OF ORAL CANCER MEDICATION
Doctor 225 33 Patients get their information about oral meds from MDs (33) pharmacists (31) nurse (27)
Phamacist 206 31
Nurse 179 27
Support group 23 3
Care provider at information session 27 4
Others 12 2
Didnt receive info 37 6
RCN CAN
N Positive response
FOR PATIENTS WHO RECEIVED IV CHEMOTHERAPY SS differences by hospital (plt0001)
Told how to manage IV chemotherapy side effects MUHC JGH SMHC Told how to manage side effects Care Provider did everything they could to help with side effects
yes completely 1478 7552 79 80 69 78 Radiation 74 73
yes somewhat 418 21 18 27 19 IV Chemo 76 76
no 61 3 2 4 3 Oral Chemo 62 67
Care provider did everything they could to help with IV chemotherapy side effects MUHC JGH SMHC
yes completely 1458 7638 80 81 69 81
yes somewhat 391 20 17 27 17
no 60 3 2 5 3
FOR PATIENTS WHO RECEIVED RADIATION THERAPY
Told how to manage radiation therapy side effects
yes completely 861 74 81
yes somewhat 214 18
no 84 7
Care provider did everything they could to help with radiation therapy side effects
yes completely 801 73 83
yes somewhat 217 20
no 72 7
In the past 6 months if you had pain on a scale of 1-10 was it usually severe moderate or mild
Severe (7-10) 411 14 11
Moderate (4-6) 817 28 24
Mild (1-3) 754 26 27
No pain 918 32 38
Care provider did everything they could to control pain or discomfort MUHC JGH SMHC
yes completely 1294 67 70 68 62 72
yes somewhat 542 28 26 32 25
no 99 5 5 6 3
RCN CAN
N Positive response SS differences by hospital (plt0001)
Someone discussed different cancer treatments MUHC JGH SMHC
yes completely 1806 59 60 65 57 53 59
yes somewhat 620 20 18 22 22 41
no 624 20 17 21 25
Comfortable talking with staff about clinical trial or new treatment
yes completely 1862 73 75 73
yes somewhat 538 21 27
no 166 6
Provider explained understandably why tests were needed
yes completely 2288 77 82 77
yes somewhat 594 20 23
no 104 3
Test results were explained understandably
yes completely 1955 68 75 68
yes somewhat 828 29 32
no 111 4
The results of my surgery were explained understandably Not a domain question but still belongs here so lets add it
yes completely 1352 78 83 78
yes somewhat 328 19 22
no 51 100
If there was a wait before first consultation appointment someone explained why
yes completely 391 38 37 38
yes somewhat 296 29 62
no 335 33
RECEIVED ENOUGH INFORMATION ABOUT
cancer therapies
yes completely 2069 67 70 Changes in work or usual activities 43
yes somewhat 793 26 Changes in energy levels 55
no 212 7 Nutritional needs 60
Changes in physical appearance 60
nutritional needs Cancer therapies 67
yes completely 1692 60 57
yes somewhat 706 25
no 436 15
possible changes in physical appearance
yes completely 1581 60 64
yes somewhat 700 26
no 367 14
changes in work or usual activities
yes completely 987 43 50
yes somewhat 806 35
no 523 23
possible changes in energy levels
yes completely 1634 55 59
yes somewhat 950 32
no 367 12
RCN CAN
N Positive response
Told of diagnosis in a sensitive manner x At the time of DIAGNOSIS
yes completely 2072 68 71 yes completely 68
yes somewhat 722 24 Other 32
no 264 9
Someone referred you to care providers who could help with anxieties and fears when you were first told of your illness x
yes 1454 60 47 yes 60
no 956 40 Other 40
If you had any worriesconcerns before beginning your TX did the care provider discuss these with you This is not a domain questions Could we use them as factoids
yes completely 579 61 61 yes completely 61
yes somewhat 290 30 Other 39
no 87 9
Someone put you in touch with other care providers who could help with anxieties and fears x During treatment
yes 344 54 44 yes 54
no 296 46 Other 46
If you had any worriesconcerns during your TX did the care provider discuss these with you
never 40 4 This is not a domain questions Could we use them as factoids always 53
sometimes 191 20 Other 47
usually 217 23
always 496 53 57
Always received as much help as wanted in figuring out how to pay for any extra costs x always 46
never 239 21 Other 54
sometimes 136 12
usually 225 20 22727272727
always 519 46 50
A care provider went out of his or her way to help you or make you feel better x yes completely 64
yes completely 1933 64 69 Other 36
yes somewhat 761 25
no 306 10
RECEIVED ENOUGH INFORMATION ABOUT
possible changes in sexual activity x Emotional changes 35 65
yes completely 798 37 49 Changes in relationship with partner 27 73
yes somewhat 501 23 Changes in sexual activity 37 63
no 855 40
possible emotional changes x
yes completely 930 35 45
yes somewhat 843 32
no 862 33
possible changes in relationship with partner x
yes completely 527 27 38
yes somewhat 463 24
no 930 48
RCN CAN
N Positive response
Do you feel that your overall care was well coordinated This is not a domain question Could be put in as a factoid Ex 37 of patients felt that their overall care was not always well coordinated x
never 116 5
sometimes 146 6
usually 621 26
always 1481 63 Not available
Did someone on the health care team provide contact info when 1st diagnosed SO FAR I HAVE NOT PUT THIS QUESTION ANYWHERE
yes 2259 81 NA
no 546 19
Providers knew enough about cancer therapies x
yes completely 2584 85 83 yes completely 85
yes somewhat 413 14 Other 15
no 53 2
Knew who was in charge of care for each therapy x
yes completely 2629 86 86 yes completely 86
yes somewhat 338 11 Other 14
no 76 2
Providers always familiar with medical history x
never 72 2 always 56
sometimes 281 9 Other 44
usually 971 33
always 1663 56 60
Providers always aware of test results x
never 47 2 always 60
sometimes 214 7 Other 40
usually 928 31
always 1782 60 72
Never given confusing or contradictory information about health or treatment c
never 2344 78 77 never 78
sometimes 561 19 Other 22
usually 48 2
always 62 2
Always knew who to ask about health problems c
never 87 3 always 61
sometimes 240 8 Other 39
usually 849 28
always 1847 61 63
Always knew next step in care x
never 108 4 always 58
sometimes 258 9 Other 42
usually 907 30
always 1750 58 61
Family doctor knew enough about your cancer care c RCN Canada
yes completely 820 42 60 yes completely 42 60
yes somewhat 641 33 Other 58
no 479 25
Patients wo a family doctor were excluded
How long did you usually have to wait from your scheduled appointment until your chemotherapy treatment
Quality improvement project was done in Q10 2014
2014 2015 2016 2017 2018 CAN
15 mins or less 121 158 206 332 484 545 MAKE GRAPH TO SHOW REDUCTION IN DELAYS (MORE PEOPLE WAITING 15 MIN OR LESS LESS WAITING gt60 MIN)
16-30 mins 226 279 348 358 293 229
31-45 mins 151 208 162 112 93 78
46-60 mins 128 134 104 91 7 54
More than 60 mins 374 221 181 107 6 93
RCN CAN
N Positive response
100 SS differences by hospital (plt0001)
Did not have to wait too long for first treatment appointment MUHC JGH SMHC
yes completely 220 7 8 8 4
yes somewhat 342 11 12 13 7
no 2500 82 83 79 79 89 82
18
Received all services needed in past 6 months for cancer care
yes completely 960 83 83 83
yes somewhat 172 15 17
no 30 3
Care provider considered travel concerns in treatment plan
yes completely 1121 53 57 53
yes somewhat 562 26 47
no 451 21
FOR PATIENTS HAVING SURGERY Not in formal care domain but to report with Access to Care
Given enough info about how long to wait until the day of surgery
yes completely 1113 76 83 76
yes somewhat 254 17 24
no 91 6
FOR PATIENTS RECEIVING RADIATION THERAPY
Never waited longer than expected for radiation therapy
never 387 33 61
sometimes 642 55
usually 94 8
always 43 4
Care provider did everything to make radiation therapy wait comfortable
yes completely 684 68 83
yes somewhat 254 25
no 67 7
FOR PATIENTS RECEIVING CHEMOTHERAPY
Never waited longer than expected for IV chemo treatment
never 200 27 52
sometimes 379 52
usually 103 14
always 46 6
Care provider did everything to make IV chemo wait comfortable
yes completely 416 65 76
yes somewhat 179 28
no 48 7
Dimension
2014 2015 2016 2017 2018
Access to Care 52 57 61 65 70
2014 2015 2016 2017 2018 CAN
Access to Care 52 57 61 65 70 71
Coordination and integration of care 68 67 68 69 69 71
Emotional support 51 48 52 50 50 54
Information Education and Communication 63 62 63 60 61 65
Physical Symptom 71 72 73 71 69 77
Respect for patient preferences 76 75 75 76 78 80
2014 2015 2016 2017 2018 RCN Canada 5 year cumulative
Access to Care 52 57 61 65 70 63 71
Coordination and Integration of Care 68 67 68 69 69 67 71
Emotional Support 51 48 52 50 50 50 54
Information Education and Communication 63 62 63 60 61 62 65
Physical Symptom 71 72 73 71 69 73 77
Respect for Patient Preferences 76 75 75 76 78 76 80
RCN CAN
Question N Positive response Positive response
Overall how would you rate the quality of all of your care in the past 6 months (N=3278)
Poor 6 05 03
Fair 16 14 16 Not satisfied 2
Good 101 87 98 85 98 Satisfied 98
Very Good 368 316 286
Excellent 673 578 610
Would you recommend your health care providers to your family and friends
Yes completely 887 89 901 90 Yes 89
Yes somewhat 99 89 No 11
No 15 1
Did you feel that your care providers did everything they could to treat your cancer
Yes completely 913 91 919 92 Yes 91
Yes somewhat 73 75 No 9
No 12 07
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Analyse de la performance d'individus atteints de

VIVEZ L’EXPÉRIENCE MATANE

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Rapport d’activités 201 8 (synthèse) · lancement du projet de territoire, objectifs qui ont été poursuivis et atteints en 2018. Les nouveaux statuts ont été adoptés lors

Immersion d’enseignants du second degré en entreprise ...professionnels en entreprise et en classe, donnant accès à l’expérience vécue au cours du stage et lors du retour

Note de cadrage - Economie · Web viewPar exception, et dès lors que les résultats ne seraient pas atteints, le dialogue peut aussi porter sur l’adéquation des leviers d’action

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TÉLÉRÉADAPTATION POUR LES PATIENTS ATTEINTS D’UNE …

LE PARCOURS DES PATIENTS ATTEINTS …

Objectifs atteints

atteints de rhumatisme inflammatoire chronique»

CARACTERISTIQUES ET EVOLUTION DES PATIENTS ATTEINTS …

Prédiction de l’expérience plaisante en fonction de …...Parmi les études se penchant sur l’expérience plaisante dans le domaine du divertissement, l’expérience plaisante

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Amélioration de l’information des patients atteints de

Blood serum levels of proinflammatory cytokines in patients with … · 2019. 8. 1. · atteints de PBAB et a diminué systématiquement lors des mesures suivantes (les troisième,

Aompagner psyhologiquement les malades atteints d’un aner

BVA : L’expérience BVA Lab

Recherche de Supersymétrie dans le cadre de l’expérience LHCb - … · 2012. 3. 13. · Figure 1.1–LeLHC 1.3 L’expérience LHCb L’expérience LHCb étudie principalement

La scolarité des enfants atteints de drépanocytose

L’intégration des élèves atteints d’autisme en classe ordinaire · Noémie Cordey 05/2011 7 /92 2. Problématique Lors de nos différentes lectures, nous nous sommes aperçus

EVALUATION DES RESULTATS ATTEINTS PAR LES PROGRAMMES …

Vidéaste d’un jour, l’expérience vous tente · QUELQUES PETITS CONSEILS POUR RÉUSSIR SON CADRAGE La règle des tiers Lors d’une interview, aligner les ... QUELQUES RÈGLES

Légalisation du cannabis : l’expérience uruguayenne · lors de l’annonce de son projet de production et vente de cannabis ... • Le Pouvoir Exécutif réglementera l'accès

Accompagnement psychologique et cancer : parents atteints

L’expérience du codesign

Les tendinopathies et desmopathies de la région … · « British Racecourses », parmi les 1,05 % des chevaux qui se blessent lors d’une course, 46 % sont atteints de pathologies

Communication Identification des patients atteints de

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