learn the signs. act early. webinar
TRANSCRIPT
Welcome to the USC UCEDD Parent/Consumer Webinar Series
funded by grant #90DD0695 from the Administration on Intellectual and Developmental Disabilities (AIDD)
Administration on Community Living July 30, 2015
Your Moderator
Susan Kanegawa USC UCEDD Family Support Coordinator [email protected] www.uscucedd.org
The USC University Center of Excellence in Developmental Disabilities at Children’s Hospital Los Angeles (USC UCEDD) is one of 68 UCEDDs funded to promote systemic change, advocacy, and capacity building in states on behalf of individuals with, or at risk for, developmental, behavioral and/or special health care needs and their families. The USC UCEDD Webinar series is designed to educate the community about current policy issues which impact the lives of people we serve and their families. Our primary audience is individuals with special needs and their families. However, service providers, program managers, students in training and others are welcome as space allows. At this time, our webinars are in English only. We are exploring methods to make this series available in other languages in the future.
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The Centers for Disease Control and Prevention’s (CDC’s)
“Learn the Signs. Act Early.” What Parents and Caregivers Need to Know
By Fran Goldfarb, MA, MCHES, CPSP Debbie Sarmento, Manager, FRCNCA
CDC’s Act Early Ambassadors to California
July 30, 2015
About Our Presenters
Debbie Sarmento is Manager of the Family Resource Centers Network of California, as well as “Learn the Signs. Act Early.” Ambassador to California. [email protected] (916) 993-7781
Fran Goldfarb, MA, MCHES, CPSP is Director of Family Support at the USC UCEDD, as well as “Learn the Signs. Act Early.” Ambassador to California. [email protected] (323) 361-3831
“Learn the Signs. Act Early.” Website
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You’ll learn
Why tracking each child’s
developmental milestones is
important
How “Learn The Signs. Act Early.”
will help in early identification
About free tools to track
milestones
Your role in tracking children’s
development
8
The Issue
• Developmental delays are common
o 1 in 4 children, age 0-5 years, are at moderate or
high risk for delays in development, behavior, or
social skills
o 1 in 6 children has a developmental delay
• Children with developmental delays are at
greater risk for emotional and behavioral
problems and poor educational achievement
as they get older
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Developmental Screening
• The earlier delays are found, the earlier children
can get help.
• Fewer than 50% of pediatricians use valid and
reliable screening tools*
• Fewer than 30% of delays are identified by clinician
judgment alone before entering school**
*AAPA Policy Statement, Pediatrics 2006
** Sand, et al. Pediatricians’ reported practices regarding pediatric screening. Do guidelines work?
Pediatrics 2005
10
What Does the American Academy of
Pediatrics (AAP) Recommend?
Every Well Child visit should include:
• asking about parents’ concerns
• taking a developmental history
• observing the child
• identifying risk and protective factors
• keeping a record of the findings
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What Does the American Academy of
Pediatrics (AAP) Recommend?
Standardized developmental
screening at well-child visits
• All children screened for
general development at
9,18 & 24 or 30 months
• All children screened for
autism spectrum disorders
(ASD) at 18 & 24 months
24-Month-Old Child
9-Month-Old Child
18-Month-Old Child
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LTSAE Materials
• Developed by CDC, with the AAP
• Objective, research-based
• Make visits with your provider more productive
• Helps you track development
• Completely free
• Can be ordered online and
mailed to you for free.
• Some resources are
printable online.
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LTSAE Materials
Designed for use by:
• Parents
o Books, growth chart
• Professionals
o How to discuss
milestones
o Tip sheets
• Parents and Professionals Together
o Tracking tools
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Milestone Moments Booklet
Milestone Moments Booklet – English
Panfleto: Indicadores del Desarrollo – Español
50
100
*
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Milestone Moments Booklet
• Free and customizable
• Can be ordered on the website
• Helps parents prepare for well-child visits
• Milestone checklists
• 2 months – 5 years
• Four domains of development
• Use like an Immunization Record
• Activities to foster development
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Milestone Checklists
• Free and printable online
• Checklists in English and Spanish
• Well-Child Visits
– A checklist to be given at each
corresponding well-child visit
– 2 months through 5 years
– Same information as milestone
booklets
• Parent tested
• Spanish translation on reverse
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Using Milestone Checklists…
Throughout the year,
pay attention to how
the child is meeting
milestones and mark
the checklist
accordingly.
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Growth Charts
• Select milestones at a
glance for ages 1 month
to 5 years
• English and Spanish on
reverse
Growth Chart in English and Spanish
50
100
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Parent Kit
Growth Chart
Milestone Moments Booklet
Materials specially packaged for parents - includes one
growth chart and one Milestone Moments booklet
(English or Spanish).
Ask parents to order a free
parent kit, so they can
track their child’s
development at home
using Milestone Moments
and the Growth Chart.
10
25
English Parent Kit – currently out of stock
Spanish Parent Kit
To order, click on a title above, and enter
name of kit in search bar on ordering page.
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Story Time
• Celebrates typical
development
• Age-appropriate activities
• Currently developing books
for 1 and 2 year olds
Amazing Me
Soy Maravilloso
Amazing Me Coloring Pages
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Campaign Posters
Appropriate for:
• Waiting room
• Office wall
“It’s time to
change how we
view a child’s
growth.”
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Milestones Brochure
Select milestones at a glance
for ages 6 months to 4 years
Milestones Brochure – English
Folleto: Indicadores del Desarrollo – Español
250
500
*
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Inglés y Español
Additional
languages:
• Arabic
• Korean
• Portuguese
• Somali
*some materials
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How to order
Online at CDC website http://www.cdc.gov/actearly
Download directly
Some additional materials on the site:
• Graphic Novel: It’s Better to Know • Fotonovela: Es mejor saber • How to Help Your Child Fact Sheet • How to Talk With the Doctor Fact Sheet
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What if a Child “Fails” the
Developmental Screening?
• Screenings are just a “snapshot”
o Screenings do not say if a
child has a developmental
disability
o It might mean a child needs
more assessment
Let your provider know if your child has had
more assessment
• Look at total development
• Be sure to share what you think about your child’s
development
• Link: 'If You Are Concerned' webpage
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Resources for Developmental Assessments
• California Department of Developmental Services (DDS) • Children 0-3 years of age – Early Start
http://www.dds.ca.gov/EarlyStart/WhatsES.cfm
• Children over age 3
http://www.dds.ca.gov/General/Services.cfm
• Family Resource Centers (FRCs) • Family Resource Centers Network of CA
• www.frcnca.org
• Ask your child’s pediatrician about a
referral to a developmental pediatrician
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What Is Your Role in Tracking
Developmental Milestones?
Parents: • Learn about Developmental Milestones
• Ask your child’s provider about developmental screening
• Use tools to keep track of your child’s development
• Ask questions
• Share any concerns with o Your child’s provider
o Early care and education providers
o Other family service providers
• Play with your child o Do activities that help with development
(even if you have no concerns)
• Celebrate Milestones
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What is Your Role in Tracking
Developmental Milestones?
Healthcare, Early Care and Education and other
Family Service Providers:
• Learn more about Developmental
Milestones
• Provide screening at recommended time
• Provide resources for information about
developmental milestones
• Answer parents’ questions and respond to their concerns.
• Share information about what you observe about the child.
• Refer for developmental assessments if needed.
• Celebrate Milestones
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Free Continuing Education for Professionals
WATCH ME!
• FREE, online training course
for ECE providers and other
community members (1-hour,
4-module course)
• Provides tools and best
practices for monitoring the
development of children in their
care talking about it with their
parents.
• www.hhs.gov/watchmethrive
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of “Learn the Signs. Act Early.”?
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