isle of wight dementia alliance newsletter autumn 2016

Isle of Wight Dementia Alliance NewsletterAutumn 2016 – Issue 2

Welcome to the second edition of the Isle of Wight Dementia Alliance Newsletter, a new quarterly publication for those whose lives are touched by dementia and their families, friends and carers.

We have developed this in partnership so we can bring together in one place news and information along with details of local support groups and events.

The newsletter, which will be published every three months, includes a calendar showing the location, days/dates and times of all the regular support groups available, which we hope you will find helpful. In addition, you will find details of other events and training sessions within the main newsletter.

News from the Alzheimer’s Society

Friendship/Activity Group

Our friendship group enables people living with dementia and carers to meet regularly in a relaxed social setting, and share their experience with others in similar situations.

Activities are planned around the interests of those that attend the group and include: reminiscence sessions on many themes, art, indoor sports (nothing too energetic!) and music.

Individuals are supported by experienced volunteers.

Friendship/Activity Groups take place on the third Wednesday of the month, usually at Red Cross House, Hunnycross Way, Newport.

Coming Up:

21st September - Let’s go back to our school days with a Reminiscence Session. Please bring along photos or your old schoolbooks if you still have them.

19th October & 16th November - sessions yet to be finalised, please contact the Alzheimer’s Society (details overleaf) for further information.

Isle of Wight

Dementia Alliance

News from the Alzheimer’s Society

Isle of Wight Information Provision

Our team provides information and practical support to help people with dementia, and their carers and families, to gain a greater understanding around dementia.

Our Information Provision Service is provided by our professionally trained, experienced team who can offer advice, information and support over the phone at a time to suit you.

We operate an open referral service so that anyone including professionals, carers, relatives, friends or the person themselves can refer to the service.

Alzheimer’s Society Campaign – Fix Dementia Care

Care homes:Over 18,800 people have signed the petition to Jeremy Hunt calling on him to put an end to unfair charging of care homes, to sign the petition go to:-https://e-activist.com/ea-action/action?ea.client.id=153&ea.campaign.id=38760

Hospitals:Almost 9,500 people emailed Simon Stevens, the CEO of NHS England, calling on him to make sure all hospitals publish an annual dementia statement.

Simon’s response to Alzheimer’s Society was: ‘NHS England will be encouraging trusts to publish an annual dementia statement, to set out the quality of the care they provide. Additionally, we are exploring, with the Department of Health, ways in which we could require hospitals to publish an annual dementia statement.’

For further information about Alzheimer’s Society services please contact the main office:-Tel: 023 9289 2035 Email: [email protected]

Alzheimer’s Memory Walk – Sunday 25th September, 11am – 1pm

The walk starts/finishes at Puckpool Tea Rooms, Puckpool Park, PO34 5AR

This is a 3 mile charity walk along Ryde’s glorious seafront, organised by a local carerto help raise money and awareness for sufferers of Alzheimer’s and Dementia. The walk

is pushchair and wheelchair friendly and dogs are most welcome. Do come along!

To donate go to: www.justgiving.com/fundraising/IW-MemoryWalk2016

News from Alzheimer Café

We have seven café’s at various locations around the Island – please see the support groups calendar for full details, including the revised time and venue for our Ventnor Café.

Each café provides a space in which the issues surrounding dementia can be aired and problems voiced in a friendly and relaxed atmosphere.

Over the May-July period our cafés across the Island welcomed more than 700 guests, including 45 new faces. Their continued popularity is due to the good relationships built up with the volunteers and co-ordinators, as seen from some of the recent entries in our comments book:

• ‘Thank you for the lovely welcome on our first visit, I am glad I came – lifesaver!’• ‘This talk from Kate reinforces everything I have learned in the process of being a carer’

Our July social evening at the Newport café was a huge success. Guests enjoyed a buffet meal and the entertainment was a short play on a dementia related subject.

Our ACE7 sessions (for those under the age of 65 with early onset dementia) have included everything from Nordic Walking and a trip with Sailability to a visit from Independent Arts. We thank our co-ordinator, Maurice Dix, for all his efforts in setting up this café and wish him well as he leaves us to travel across Australia. Anna Roberts will be taking over and brings a wealth of experience of working with those people living with dementia to our team.

Alzheimer Café won two awards at the Community Action Awards evening - the ‘Older people’ category and ‘Overall winners’.

Pictured here are: Maggie Bennett, Marion Brettell and volunteers at the event.

For more information about Alzheimer Cafe just phone: (01983) 220200 or visit our website: www.alzheimerca-feiow.org.uk or Facebook: Alzheimer Café, Isle of Wight

Forthcoming training

Maggie Bennett (Executive of Alzheimer Café IW) along with support from the Ageing Better Lottery Fund has commissioned some one day training sessions on: 5th, 6th October, 10th, 23rd and 24th November and anyone is welcome to attend these.

The sessions - “Lighting DARC – Dementia Awareness Reaching Communities” presented by Dr Gemma Jones - provide accurate information about dementing illnesses to help reduce misunderstandings and fear about dementia so that people with dementia will be actively supported in their communities and their families.

For further information and a booking flyer on the sessions, please phone Ann on:(01983) 882236 ext 113 or email: [email protected]

Purpose

Name of Support Group Where When What time

Family, friends and carers

Those living with dementia

Age UK - Community Memory GroupsTel: (01983) 525282Brading St Mary's Church Hall, High Street, Brading, PO36 0AT Every Wednesday 10am - 3pm Weekly groups offering memory Cowes Northwood Cricket Club, Park Road, Cowes, PO31 7NN Every Monday 10am - 3pm therapy and social activity. MemoryFreshwater The Gouldings, St Andrews Way, Freshwater, PO40 9NH Every Thursday 10am - 3pm groups bring people together whoLake The Lions Club, New Road, Lake, PO36 9LA Every Tuesday 10am - 3pm have memory loss, i.e. haveNewport Congregational Church Hall, 98 Pyle Street, Newport, PO30 1UH Every Monday 10am - 3pm dementiaRyde St John the Baptist Church Hall, High Park Road, Ryde, PO33 1BP Every Thursday 10am - 3pm

Alzheimer CaféTel: (01983) 220200Cowes The Masonic Centre, Castle Road, Cowes PO31 7QY 2nd Wed' monthly: 14/9,12/10,9/11 2pm - 4.30pm Newport St John's Church Hall, Nodehill, Newport, PO30 1EQ Last Thur' monthly: 29/9,27/10,24/11 6pm - 8.30pm A welcoming friendly environment Ryde All Saints Church, Queen's Road, Ryde, PO33 3BG 1st Fri' monthly: 2/9,7/10,4/11 11.30am - 2pm offering an opportunity to chat with Sandown The Methodist Church, York Road, Sandown, PO36 8ET 2nd Tues' monthly: 13/9,11/10,8/11 6pm - 8.30pm health and social care professionals,Totland St Saviour's Holy Family Centre, Weston Lane, Totland, PO39 0HE 3rd Wed' monthly: 21/9,19/10,16/11 2pm - 4.30pm our volunteers and make new friendsVentnor 1 Salisbury Gardens, Dudley Road, Ventnor, PO38 1EJ 1st Wed' monthly: 7/9,5/10,2/11 6pm - 8.30pm

ACE7 (for under 65's) Red Cross House, Hunnycross Way, Newport, PO30 5ZD Every other Tues' from 13 Sept 10.30am-12.30pm Especially for those aged under 65 Alzheimer's SocietyTel: 023 9289 2035Friendship/Activity Group Red Cross House, Hunnycross Way, Newport, PO30 5ZD 3rd Wednesday monthly - 10.30am-12.30pm Enables people living with dementia

Next date: 21 September (see and carers to regularly meet andnewsletter for planned activities share their experience with others inin Sept', Oct' and Nov') similar situations

Carers IWTel: (01983) 533173Take a break Please phone for details 2nd Tuesday monthly - Enables carers to have respite by

Next dates: 13 Sept, 11 Oct, 8 joining a creative session and the Nov opportunity for holistic therapy

IW Emotional Support Please phone for details Arranged individually Providing support to carers on a oneto one basis, or peer support withother carers who understand

Carers Support Groups and Various locations - To request the Carers IW monthly newsletter Various days and dates A good opportunity to meet others in a Events containing details of groups/events and locations phone: 533173 or similar position, enjoy a social event or

email: [email protected] take part in an activityDementia PathfindersTel: 0845 257 2250Dementia Conversations St James Church, Church Path, Well Rd, East Cowes, PO32 6RL Thursday 15 September 6.30pm - 8.30pm An opportunity for carers, relatives and

Tuesday 18 October friends of those living with dementia to Tuesday 22 November share experiences and gain knowledge(see newsletter for session titles)

Memories Group Ryde Methodist Church Hall, Garfield Road, Ryde, PO33 2PT Every other Wednesday - 10am - 12 noon A time and place for those with Next date: 7 September dementia & their carers to socialise

with others in a relaxed atmosphereSt Margaret's Independent St Margaret's Hall, Lowtherville Road, Upper Ventnor, PO38 1BJ Every Tuesday 10am - 3pm A community based service forMemory Group those affected by dementia. PromotesTel: (01983) 865645 mental stimulation, friendship and

understanding of difficulties broughtabout by changes in memory function

The Elephant Club The Garden Room, All Saints Church, Tuttons Hill, Gurnard, 3rd Thursday monthly - 2pm - 4pm Provides Melody and Memory Tel: (01983) 291185 Cowes, PO31 8JA Next dates: 15 Sept, 20 Oct, 17 stimulation to those with dementia in aor 07736 548480 Nov relaxed and informal setting

Support Groups Calendar - September, October and November 2016 Suitable for

Community Memory Groups

We have weekly groups offering memory therapy and social activity for people who have memory loss. The benefits include cognitive stimulation (working the mind), social activities, reminiscence and respite for carers. We currently have six groups that run across the Island. The cost of the group session, which runs from 10am to 3pm, is £23 for the day.

We currently have vacancies at all the groups, particularly Newport.

Homebased Memory Therapy Service

This provides weekly memory therapy and activities to allow someone who has memory loss, or mild to moderate dementia, the chance to ‘work’ their minds in their own homes on a one to one basis. We undertake an initial free assessment, and sessions are then charged at £15 per hour.

If you are interested in attending our Community Memory Groups or receiving Homebased Memory Therapy, or would like more information, please contact Jodi or Debbie on:Tel: (01983) 525282 or email: [email protected]

News from Age UK Isle of Wight

News from Dementia Pathfinders

Dementia Conversations

FREE for carers’ of people living with dementia and anyone with an interest in dementia, this initiative is offered by Dementia Pathfinders and St James’ Church and provides an opportunity for carers, relatives and friends of people living with dementia, to share experiences, gain knowledge and explore issues that challenge our beliefs and attitudes.

These discussions are held at St James Church, East Cowes from 6.30pm – 8.30pm and are co-delivered by Barbara Stephens and Reverend Veronica Brown. You can either book in advance or simply turn up on the day.

Up and coming dates Session titleTuesday 18 October Dental healthTuesday 22 November How to manage Christmas

For further information or to book:-Tel: 0845 257 2250 or email: [email protected]

News from Carers IW

Are you caring for someone with dementia or memory issues? Carers IW can support you in a number of ways:

Take a BreakCome and join us in a creative session and have the opportunity for some holistic therapy.With prior notice, we are also able to care for the person you care for at the Centre, enabling you to fully benefit from a couple of hours respite. We meet on the second Tuesday of the month at The Riverside Centre, Newport.

Carers Support Groups and EventsWe have a number of support groups which take place regularly at various locations around the Island – Bembridge, Freshwater, Newport, Ryde and Sandown - which are for all carers. These are a good opportunity to meet others in a similar position, to have a chat and enjoy a cuppa.Carers IW also runs many other support events for all carers.

Training for Carers On Friday 7th October there will be a one-day training session specifically for carers at the Riverside Centre, Newport. “Lighting DARC - Dementia Awareness Reaching Communities”, is facilitated by Dr Gemma Jones who will help you learn strategies that help your personal situation.

If required, there will be activities and sandwiches available for cared for people on the day with Maggie Bennett and Lizzie Martin. To find out more about the training session and to book please contact Carers IW, details below.

Moving & Handling CourseThis will take place on Friday 28th October at 1.15pm, at the Riverside Centre, and is aimed at all carers. If you are struggling to get someone to stand, sit, move in the bed, or get up from a fall then please do come along and learn some techniques. Carers can get in touch to book a place by using the details below.

Respite for Carers WeekendWe have booked Totland Bay Youth Hostel for our exclusive use on Friday 14th – Sunday 16th October to offer carers a bit of respite time.

The hostel is located at Hurst Hill, Totland Bay, PO39 OHD and has a beautiful garden, delightful views and a good range of pleasant rooms. Our respite weekend offers carers a break away from caring, giving them time for themselves and with others who understand the difficulties carers face. Weekend activities will include walks, relaxation, holistic therapies, creative activities and wonderful food. Carers have the option of staying for the weekend - Friday evening to Sunday afternoon - or you can stay for one night or just come for the day and enjoy a meal, an activity or a holistic therapy. A donation of £40 per weekend stay or £12.50 per day, to include evening meal, is requested to help cover costs. To book a place just contact us using the details below.

For further information about any of the services available through Carers IW please phone: (01983) 533173 or email: [email protected]

Memories Group

This FREE event is held on alternate Wednesdays from 10am – 12 noon for people with dementia and their carers to get together for refreshments, music and to socialise with one another in a relaxed atmosphere.

Come and go as you please, stay as long as you can and feel amongst friends. We look forward to meeting you and finding out what you would like to do. The meeting place is Ryde Methodist Church Hall, Garfield Road, Ryde, and there is easy wheelchair access.

Other News

And Finally...

Please keep our support groups calendar handy - you will find this in the centre of this newsletter. It shows the locations, days/dates and times of all the regular groups taking place on the Island. We welcome any feedback you may have about this newsletter, or other items for inclusion in future issues.

The Elephant Club

This club provides Melody and Memory stimulation to those with dementia and is held in a relaxed and informal setting. Come and listen to some gentle music, join in with a discussion around a particular chosen subject, and socialise with others – all while enjoying tea and biscuits!

The club is run by Anne, Mandy or Cheryl and held on the third Thursday of the month in The Garden Room, All Saints Church, Tuttons Hill, Gurnard, from 2pm – 4pm. It is FREE of charge and family, friends and carers are most welcome to stay. For further information please phone:-

Mandy: (01983) 291185 or Cheryl: 07736 548 480

St Margaret’s Independent Memory Group

Our Memory Group is managed by volunteers and we meet every Tuesday in Upper Ventnor, offering a community-based service for those affected by dementia. The group meetings promote mental stimulation, friendship and understanding of difficulties brought about by changes in memory function.

Joining a new group can be a daunting prospect, but you are welcome to stay for coffee and join in with the activities if you wish. All we ask for is a donation to help cover the cost of refreshments. If you find the group is for you, a start date can be arranged. Half days run from 10am – 12.30pm at a cost of £5 and full days run from 10am - 3pm at a cost of £10 if you bring your own lunch, or £15 if lunch is provided.

For more details phone Pam on: (01983) 865645

Please contact: Helen Randall, Age UK IW. Tel: 525282or Email: [email protected]

Age UK IW have prepared this newsletter from content provided by external parties and therefore do not take responsibility for the accuracy of this information. Please check in advance that the event you wish to attend is going ahead.

isle of wight dementia alliance newsletter autumn 2016

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