INTRODUCTION

This presentation is made up of three elements:

What was available to survivors before the Clubhouse

What the Clubhouse is/does How people’s lives are improved by

participating in the Clubhouse

Brain injury

Hospital

Rehabilitation Services

???

What Happened to My Life? The survivor has very structured, intensive

care, then services end. The survivor sometimes experiences this as an abrupt ending to their recovery.

There is often intensive support from family and friends, but the survivor can return to the role of child in the family, impeding moving on to next steps.

The survivor can lose important markers of identity – worker, friend, partner, parent.

Eventually, the role of “patient” also ends, leaving another hole in the survivor’s identity. Progress can slow, and the survivor can become isolated.

SupportiveServices for

TBI Survivors

RehabilitationHospitals

TBI Counciland

TBI Fund

PrivateRehabilitation

Services

WesternState

Hospital

BIAWA

TBISupportGroups

SocialServices

not geared forTBI Survivors

SeattleBrainWorks

ResourceManagement

Services

EmploymentServices

Not Gearedfor TBI

Survivors

TBIResource

Line

How Seattle BrainWorks Began

Advocacy addressing the gap in community-based services for TBI survivors

TBI Clubhouse pilot contract was awarded to PROVAIL in November, 2009

Seattle BrainWorks opened March 1, 2010.

THE CLUBHOUSE MODEL

Based on a model started in 1948 for people with psychiatric disabilities

Follows International Brain Injury Clubhouse Association (IBICA) Standards- Member-driven- Productivity focus- Breaking down tasks into manageable parts

Only 16 IBICA brain injury clubhouses in the world

SCHEDULE

9:00am – 3:00pm, Tuesday-Friday Each member commits to a

schedule to participate in the Clubhouse

Structured, day-long, work-related activities — the Clubhouse is a member-driven place of work

GOAL-SETTING WITH INDIVIDUALIZED SERVICE PLANS

Initial assessment Individualized Service Plan (ISP) that

can include family, friends, and service providers

Goal-setting around increasing productivity and work skills, home and community support, and socialization

Ongoing progress check-ins

KITCHEN UNIT

BUSINESS UNIT

LUNCH AND SOCIAL ACTIVITIES

ADVOCACY AND TUESDAY WEEKLY MEETING

Supporting SHB 1614 at the State Capitol in 2011Supporting SHB 1614 at the State Capitol in 2011 Tuesday Weekly MeetingTuesday Weekly Meeting

WHO MEMBERS ARE

Gender 70% male 30% female

o Age 18-24 – 10% 25-44 – 38%

45-64 – 49% 65+ – 3%

Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.

WHO MEMBERS ARE

Ethnicity 84% White5% Mixed or more than one identified2.6% Hispanic2.6% Asian2.6% Filipino

EducationGrade School – 2.5%High School Graduation or GED – 22.5%Some College – 5%Technical Training – 27.5%Associates Degree – 10%Bachelors Degree – 17.5%Masters Degree – 7.5%Doctorate or Professional Degree – 2.5%

Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members with 2 members not indicating their ethnicity or education.

TYPE OF BRAIN INJURY

Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.

PHYSICAL/COMMUNICATION CHALLENGES

Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.

THINKING/BEHAVIORAL CHALLENGES

Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.

PARTICIPATION

Demographic data collected by self/caregiver report upon member ’s entry to program and member satisfaction survey- sample size 26 members.

CHALLENGES

Funding Difficulty for TBI survivors to break

out of isolation and seek support Emotional dysregulation sometimes

makes for challenging group dynamics

Groups, bright lights, and noise can be overstimulating for survivors

THINKING AND SOCIALIZATION SKILLS

SUCCESSES

Our members are making progress!

More time spent in the program, reducing isolation: Members now spend 93% more hours at the Clubhouse than

they did 1 year ago. A year ago, we had an average of 6.5 members per day; now see

an average of 11 per day.

Being involved: 58% surveyed feel “very much so” or “completely” involved in decision-making at the Clubhouse. Another 26% feel “somewhat involved.”

Social skills: 50% surveyed feel that the program has helped them “a lot” in increasing socialization skills, (interacting with peers, making friends).

Thinking skills: 42% surveyed fell that the program has helped them “a lot” in increasing skills in thinking (attention, problem-solving).

SUPPORT

The TBI Community has supported the Clubhouse Strong, dedicated Advisory Board Generous, growing donor support Collaboration with BIAWA and others in brain

injury community Mentoring from IBICA Clubhouse network and

local Clubhouse supporting people in recovery from mental health issues

A committed, supportive home at PROVAIL

TELL ME ABOUT THE STAFF!

Erin Rants, Program Director – Background in direct service with families experiencing homelessness. Has a sibling with a TBI. Master of Social Work from University of Washington.

Jamie Johnson, Floor Coordinator – Completed nine-month internship in TBI Clubhouse in Virginia. Bachelor of Arts in Social Work from Christopher Newport University in Newport News, Virginia.

Website: Website: seattlebrainworks.orgseattlebrainworks.org

Contact: Erin RantsContact: Erin Rants(206) 826-1072(206) 826-1072erinr@provail.orgerinr@provail.org