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Interprofessional Learning in Rehabilitation in the Context of HIV:Nursing Role in the Rehabilitation of
Persons Living with HIV
Stephen Tattle and Gillian Bone
Canadian Working Group on HIV and Rehabilitation
Session Outline
• Introduction
• Interprofessional Learning Project
• Rehabilitation Perspectives
• Interprofessional Roles and Opportunities
Canadian Working Group on HIV and Rehabilitation
Session Objectives
• To develop an understanding of the rehabilitation needs of PHAs
• To explore and expand perspectives on the role of rehabilitation in the context of HIV
• To present an interprofessional learning project for rehabilitation professionals
• To consider the role of nursing in meeting the rehabilitation needs of PHAs
Canadian Working Group on HIV and Rehabilitation
What is CWGHR?
• National, multi-sector, not for profit, working group formed in 1998
• Addresses rehabilitation issues in the context of HIV disease
• Centred on the needs of people living with HIV
Canadian Working Group on HIV and Rehabilitation
Goals of CWGHR
• Rehabilitation programs and resources for people living with HIV
• Innovation and excellence in the field of episodic disabilities
• Generate awareness of and access to rehabilitation services
• Address the needs and concerns of families, caregivers, communities and people living with HIV-related disabilities
Canadian Working Group on HIV and Rehabilitation
• People are living longer lives with HIV• Multisystemic disease affecting neurological,
cardiorespiratory and musculoskeletal systems• Increasing prevalence of impairments, activity
limitations and participation restrictions• Unpredictable cycles of wellness and illness• Rehabilitation to optimize the individual's
participation in active living
Rehabilitation in the Context of HIV
Canadian Working Group on HIV and Rehabilitation
To increase the capacity of rehabilitation professionals to respond to the rehabilitation
needs of people living with HIV/AIDS in Canada
Interprofessional Learning in Rehabilitation in the Context of HIV Project
Canadian Working Group on HIV and Rehabilitation
Project Objectives
1. To develop new and enhance existing knowledge-based relationships
2. To increase awareness of existing and new curriculum resources, educational initiatives, programs and tools
3. To increase knowledge and skills related to HIV among rehab professionals
Canadian Working Group on HIV and Rehabilitation
Emerging Themes
• Curriculum Content• HIV 101• Rehabilitation related impairments, activity
limitations and participation restrictions and strategies to address them
• Issues related to sensitive practice» Gender, stigma, multiple vulnerabilities
• Curriculum Delivery• Engaging PHAs as educators• Providing useable information in a practical form
Canadian Working Group on HIV and Rehabilitation
Common Framework
International Classification of Functioning, Disability and Health (ICF)
• Impairment» Any problem in body function or structure
• Activity Limitation» Any difficulty an individual may have in carrying out
a task or action
• Participation Restriction» Any problems an individual may experience in
involvement in life situations
International Classification of International Classification of Function Function -- ICF (WHO 2001)ICF (WHO 2001)
Health Condition Health Condition ((disorder/diseasedisorder/disease))
Environmental Environmental FactorsFactors
Personal Personal FactorsFactors
Body Body function&structurefunction&structure
(Impairment(Impairment))
ActivitiesActivities(Limitation)(Limitation)
ParticipationParticipation(Restriction)(Restriction)
Canadian Working Group on HIV and Rehabilitation
Episodic Disability
• Proctor P (2002) Looking Beyond the Silo: Disability
Issues in HIV and Other Lifelong Episodic Conditions
• Weir, Crook & Vanditelli-Chapman (2003) Unpredictable
Episodes of Illness in the Experiences of Persons Living
with HIV/AIDS: A Qualitative Study
Episodic Nature
Specialized Care and Resources
Acute Care
Primary Care, Community Programs
Primary Care, Community Programs
Acute Care
Baseline
Illness
Transitional Care
Canadian Working Group on HIV and Rehabilitation
The Need
BC Prevalence Study
Impairments, activity limitations and participation restrictions:
Prevalence and associations among persons living with
HIV/AIDS in British Columbia. Rusch, Nixon, Schilder, Braitstein,
Chan & Hogg. Health and Quality of Life Outcomes, 2004, 2:46
http://www.hqlo.com/content/2/1/46
0
10
20
30
40
50
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diarrh
eared
uced
libido
weakn
ess
poor
conc
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head
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chro
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tigue
stiff j
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decre
ased
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ory
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nsati
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shor
tness
of br
eath
wastin
gco
nstip
ation
Perc
ent
CD4 <=200CD4 201 - 500CD4 >500All part
Impairments by CD4 level
0
10
20
30
40
50
60
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80
90
walking
eatin
gget
dresse
dsh
ower
toilet
get out o
f bed
drive
public t
rans
shop
pingban
king
laundry
househ
old sex
mod act
vig ac
t
Perc
ent
CD4 <=200CD4 201 - 500CD4 >500All part
Activity Limitation by CD4 level
0
10
20
30
40
50
60
70
80
90
socia
lstu
dent
voluntee
rhouseh
oldfin
ancia
lse
xual
cultu
ralco
mmunityho
bbiesdisc
riminati
on
Perc
ent
CD4 <=200CD4 201 - 500CD4 >500All part
Participation Restrictions by CD4
Canadian Working Group on HIV and Rehabilitation
The Response
Canadian Providers Survey
Rehabilitation in HIV/AIDS: Development of an Expanded Conceptual Framework. Worthington, Myers, O'Brien, Nixon & Cockerill. AIDS Patient Care and STDs, 2005, 19:4, 258-271.
Fact Sheets www.hivandrehab.ca
Canadian Working Group on HIV and Rehabilitation
Rehabilitation Opportunities
• Across lifespanPaediatrics Elder care
• Across health care settingsAcute, long term, community, rehab, private practice
• Across specialty areasMusculoskeletal, Cardio-respiratory, Neuroscience
• New considerationsEquality, accessibility, marginalization etc.
Canadian Working Group on HIV and Rehabilitation
Interprofessional Roles
Body Function and Structure
Impairments:• pain, weakness, decreased range of motion, cognition
Interventions:• sensory modifications, pain management,
strengthening and conditioning, exercise and positioning, cognitive strategies
Canadian Working Group on HIV and Rehabilitation
Interprofessional Roles
Activity
Limitations:• Difficulty walking, unable to drive, dependent for
personal hygiene, managing a medication schedule
Interventions:• Assistive device prescription, driving assessments,
ADL strategies, support for household upkeep
Canadian Working Group on HIV and Rehabilitation
Interprofessional Roles
Participation
Restrictions:• Employment or return to work issues, difficulty in
education, volunteering, social network
Interventions:• Task/job modification, skills training, advocacy,
mentorship, peer support