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Interprofessional Learning in Rehabilitation in the Context of HIV: Nursing Role in the Rehabilitation of Persons Living with HIV Stephen Tattle and Gillian Bone

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Interprofessional Learning in Rehabilitation in the Context of HIV:Nursing Role in the Rehabilitation of

Persons Living with HIV

Stephen Tattle and Gillian Bone

Canadian Working Group on HIV and Rehabilitation

Session Outline

• Introduction

• Interprofessional Learning Project

• Rehabilitation Perspectives

• Interprofessional Roles and Opportunities

Canadian Working Group on HIV and Rehabilitation

Session Objectives

• To develop an understanding of the rehabilitation needs of PHAs

• To explore and expand perspectives on the role of rehabilitation in the context of HIV

• To present an interprofessional learning project for rehabilitation professionals

• To consider the role of nursing in meeting the rehabilitation needs of PHAs

Canadian Working Group on HIV and Rehabilitation

What is CWGHR?

• National, multi-sector, not for profit, working group formed in 1998

• Addresses rehabilitation issues in the context of HIV disease

• Centred on the needs of people living with HIV

Canadian Working Group on HIV and Rehabilitation

Goals of CWGHR

• Rehabilitation programs and resources for people living with HIV

• Innovation and excellence in the field of episodic disabilities

• Generate awareness of and access to rehabilitation services

• Address the needs and concerns of families, caregivers, communities and people living with HIV-related disabilities

Canadian Working Group on HIV and Rehabilitation

• People are living longer lives with HIV• Multisystemic disease affecting neurological,

cardiorespiratory and musculoskeletal systems• Increasing prevalence of impairments, activity

limitations and participation restrictions• Unpredictable cycles of wellness and illness• Rehabilitation to optimize the individual's

participation in active living

Rehabilitation in the Context of HIV

Canadian Working Group on HIV and Rehabilitation

To increase the capacity of rehabilitation professionals to respond to the rehabilitation

needs of people living with HIV/AIDS in Canada

Interprofessional Learning in Rehabilitation in the Context of HIV Project

Canadian Working Group on HIV and Rehabilitation

Project Objectives

1. To develop new and enhance existing knowledge-based relationships

2. To increase awareness of existing and new curriculum resources, educational initiatives, programs and tools

3. To increase knowledge and skills related to HIV among rehab professionals

Canadian Working Group on HIV and Rehabilitation

Emerging Themes

• Curriculum Content• HIV 101• Rehabilitation related impairments, activity

limitations and participation restrictions and strategies to address them

• Issues related to sensitive practice» Gender, stigma, multiple vulnerabilities

• Curriculum Delivery• Engaging PHAs as educators• Providing useable information in a practical form

Canadian Working Group on HIV and Rehabilitation

Common Framework

International Classification of Functioning, Disability and Health (ICF)

• Impairment» Any problem in body function or structure

• Activity Limitation» Any difficulty an individual may have in carrying out

a task or action

• Participation Restriction» Any problems an individual may experience in

involvement in life situations

International Classification of International Classification of Function Function -- ICF (WHO 2001)ICF (WHO 2001)

Health Condition Health Condition ((disorder/diseasedisorder/disease))

Environmental Environmental FactorsFactors

Personal Personal FactorsFactors

Body Body function&structurefunction&structure

(Impairment(Impairment))

ActivitiesActivities(Limitation)(Limitation)

ParticipationParticipation(Restriction)(Restriction)

Canadian Working Group on HIV and Rehabilitation

Episodic Disability

• Proctor P (2002) Looking Beyond the Silo: Disability

Issues in HIV and Other Lifelong Episodic Conditions

• Weir, Crook & Vanditelli-Chapman (2003) Unpredictable

Episodes of Illness in the Experiences of Persons Living

with HIV/AIDS: A Qualitative Study

Episodic Nature

Specialized Care and Resources

Acute Care

Primary Care, Community Programs

Primary Care, Community Programs

Acute Care

Baseline

Illness

Transitional Care

Canadian Working Group on HIV and Rehabilitation

The Need

BC Prevalence Study

Impairments, activity limitations and participation restrictions:

Prevalence and associations among persons living with

HIV/AIDS in British Columbia. Rusch, Nixon, Schilder, Braitstein,

Chan & Hogg. Health and Quality of Life Outcomes, 2004, 2:46

http://www.hqlo.com/content/2/1/46

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Impairments by CD4 level

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Activity Limitation by CD4 level

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Participation Restrictions by CD4

Canadian Working Group on HIV and Rehabilitation

The Response

Canadian Providers Survey

Rehabilitation in HIV/AIDS: Development of an Expanded Conceptual Framework. Worthington, Myers, O'Brien, Nixon & Cockerill. AIDS Patient Care and STDs, 2005, 19:4, 258-271.

Fact Sheets www.hivandrehab.ca

Canadian Working Group on HIV and Rehabilitation

Canadian Providers Survey Data

Canadian Working Group on HIV and Rehabilitation

Rehabilitation Opportunities

• Across lifespanPaediatrics Elder care

• Across health care settingsAcute, long term, community, rehab, private practice

• Across specialty areasMusculoskeletal, Cardio-respiratory, Neuroscience

• New considerationsEquality, accessibility, marginalization etc.

Canadian Working Group on HIV and Rehabilitation

Interprofessional Roles

Body Function and Structure

Impairments:• pain, weakness, decreased range of motion, cognition

Interventions:• sensory modifications, pain management,

strengthening and conditioning, exercise and positioning, cognitive strategies

Canadian Working Group on HIV and Rehabilitation

Interprofessional Roles

Activity

Limitations:• Difficulty walking, unable to drive, dependent for

personal hygiene, managing a medication schedule

Interventions:• Assistive device prescription, driving assessments,

ADL strategies, support for household upkeep

Canadian Working Group on HIV and Rehabilitation

Interprofessional Roles

Participation

Restrictions:• Employment or return to work issues, difficulty in

education, volunteering, social network

Interventions:• Task/job modification, skills training, advocacy,

mentorship, peer support

Canadian Working Group on HIV and Rehabilitation

www.hivandrehab.ca

[email protected]