Funded by the Australian Government Department of Health

Program ofExperience in the Palliative Approach

NEWSLETTERNEWSLETTERAUTUMN/WINTER 2018

2018 has been a busy one so far and for PEPA teams across Australia as they have been coordinating an increased amount of placements and workshops across the country. Thank you to the teams in each state for the amount of effort you are putting into PEPA every day.

PEPA Nationally has had some change this year. Karen Innes-Walker has moved onto other valuable role in health care and I have been fortunate to be able to take on the role and continue her wonderful work. Thank you Karen for everything and we wish you great things with your new role.

A little bit about me. I have a background in Acute care Nursing and over 10 years’ experience working in Vocational Education and Training - mainly through teaching and management positions. I hold a Bachelor of Nursing and a Master of Advanced Nursing Practice (MANP) and I am passionate about holistic care for all people who are experiencing health care interventions. I look forward to working within the PEPA team to support the Palliative Approach to care.

PEPA has been providing many opportunities for learning recently with an ongoing relationship with the Primary Health Network (PHN) in regards to Palliative Care Education for General Practitioner’s (GP) being conducted on top of its usual business.

Coming up in May there are many Palliative care activities that PEPA will be involved in including:-

• Palliative Care Nurses Australia conference “Fostering Excellence in Palliative Care” at the Brisbane Hilton May 20 and 21 http://www.pcna.org.au/conference

UPDATE FROM THE NATIONAL PEPA MANAGER • National Palliative Care Week “What Matters Most?”

20 – 26 May. Various activities Australia wide – see your state and territory Palliative Care online sites for more information. This is a great week of learning and networking opportunities – book in now!

In this final paper issue we wanted to update you in regards to what we have seen change and grow in palliative care since late 2017. We needed to ensure you were abreast of the changes to the Palliative Care Standards from Palliative Care Australia that were changed at January 2018. We are sharing the success of the End of Life Directions for Aged Care (ELDAC) launch at March and updating you in regards to the PEPA PHN - GP project that has been working since 2017. PEPA State and Territory team experiences are vital to what we do so please enjoy reading what has been happening across Australia.

This will be the final paper copy printed for the quarterly newsletter. We will be going to an online format for the future newsletters to reduce our carbon footprint. Please update us with your email now via https://pepaeducation.com/whats-new/newsletters-general/

Until next time… Suzanne Cosgrove

Inside this issue

National Update

PEPA PHN GP Update

Educational Component• Palliative

Care Australia Standards

Industry Update• ELDAC Launch

State News• ACT• NT

• QLD• WA

EDUCATING. TRAINING. IMPROVING CARE.The Program of Experience in the Palliative Approach (PEPA) provides an opportunity for health, aged and community care professionals to improve confidence and develop skills in working with people with palliative care needs. PEPA offers funded observational placements in palliative care specialist services.

Placements have three components:

• A supervised clinical placement in a specialist palliative care service (inpatient, community and/or hospital based consultancy)

• Integration of learning into the participant’s practice

• Post-placement support

PEPA also offers tailored workshops. Please access the PEPA webpage for further details: www.pepaeducation.com/

PEPA is a national palliative care project funded by the Australian Government Department of Health as part of the Palliative Care Education and Training Collaborative (incorporating PEPA and PCC4U).

THIS IS OUR LAST PRINTED NEWSLETTER, SO ACT NOW!

To be environmentally friendly, we will start emailing our newsletters. Please visit www.pepaeducation.com/whats-new/newsletters-general/

or Google “PEPA newsletters” and click the top result to ensure that you keep receiving our newsletter.

2

PEPA – PRIMARY HEALTH NETWORK (PHN) GP UPDATEThe Department has provided funding for PEPA to work with PHNs to deliver a Palliative Approach Workshop for GPs in each of the 31 PHNs by the end of June 2018. The funding demonstrated the Government’s commitment to improving palliative care provision in Australia. The project assisted PHNs in their endeavours to improve coordination of care for patients requiring palliative care through building capacity and improving networks between GPs and specialist palliative care services.

The tailored workshops have been facilitated by medical practitioners and/or clinicians with extensive palliative care experience. They provide opportunities for participant interaction with the content.

Key topics include:

• Principles of a Palliative Approach• Communication and Advance Care Planning• Symptom Assessment and Management• Terminal Phase Care• Local Service Networks and other resources

So far since the commencement of funding PEPA has supported 28 workshops with a further 22 planned. The workshops have been attended well and the interaction with the presenters has been supportive and informative for both the participants and the presenters.

EDUCATIONAL COMPONENT: NATIONAL PALLIATIVE CARE STANDARDS UPDATE The National Palliative Care Standards (Edition 5) have been updated following consultation with the palliative care community and other stakeholders. Much has changed within palliative care over the past decade, including expansion of the evidence base for clinical care, re-design of service delivery models of care to meet changing community expectations and needs, and changes to the language used to describe those we care for. Most importantly there is increasing recognition that caring for people who are approaching and reaching the end of life is everybody’s business – everybody in health, aged and social care has a role to play.

In alignment with the World Health Organisation definition, Palliative Care Australia defines palliative care in the contemporary Australian context as:

“Palliative care is person and family-centred care provided for a person with an active, progressive, advanced disease, who has little or no prospect of cure and who is expected to die, and for whom the primary treatment goal is to optimise the quality of life.”

Palliative Care Australia considers that the following elements are integral to understanding this definition of palliative care:

• Palliative care should be strongly responsive to the needs, preferences and values of people, their families and carers. A person and family-centred approach to palliative care is based on effective communication, shared decision-making and personal autonomy.

• Palliative care should be available to all people living with an active, progressive, advanced disease, regardless of the diagnosis.

• Palliative care affirms life while recognising that dying is an inevitable part of life. This means that palliative care is provided during the time that the person is living with a life-limiting illness, but it is not directed at either bringing forward or delaying death.

Ensure you read the new standards with the ‘Background Report to the Palliative Care Service Development Guidelines’.

For more information go to Palliative Care Australia

INDUSTRY UPDATE: ELDAC LAUNCH Palliative care in aged care services has received a boost with $15 million Federal funding for the End-of-Life Directions for Aged Care (ELDAC) project led by QUT in partnership with Flinders University and University of Technology Sydney.

ELDAC is a new online resource supporting aged care workers find palliative care and advance care planning resources and state-specific information and services. Evidence-based toolkits make providing care easier.

Aged care workers, nurses and GPs accessing the website and the five evidence-based toolkits will find meaningful and practical materials they can use when providing care to older Australians.

Join our national approach to improve palliative care and advance care planning for older Australians at www.eldac.com.au.

GP PHN Workshop 19th April with Dr Louise Elliott presenting at Bankstown

3

freely about their “instructions” to staff and their families around end of life care long before the time to “finish up” is upon us. The local Aboriginal community of Groote Eylandt have further strengthened this process by supporting EOL Care activities where there is a gap in service provision with their own community funds.

The Groote Eylandt story is one of success, one of Aboriginal People being empowered to take control of their local EOL care and more importantly could be a framework used to assist remote Aboriginal communities all over Australia in achieving best possible outcomes in regards to Advanced Care Plans and Palliative Care in general.

Angurugu Health Centre first came into contact with the PEPA program over 10 years ago and has continued to work closely with both PEPA and Territory Palliative Care, with staff attending workshops and clinical placements every year.

We are really excited that the success of the Groote Eylandts peoples will be available for all to see. This documentary will be released soon and we will make sure you are kept up to date with the release.

Groote Eylandt is the largest island in the Gulf of Carpentaria and the fourth largest island in Australia. It is the homeland of, and is owned by, the Warnindhilyagwa who speak the isolated Anindilyakwa language.

For more information about PEPA NT contact Jonathon Jauncey at Jonathan.Jauncey@nt.gov.au or 08 8922 8929

PEPA QLD: Aurora HodgesWhilst the Commonwealth Games were on in Queensland, PEPA has had a marathon of its own organising a large number of placements in the last two months.

Participants have given verbal feedback stating how much they have learned about palliative care and how they look forward to educating their colleagues and caring for patients at end of life.

PEPA continues to deliver presentations as part of the Cancer Council Queensland’s “Caring for Our Community” workshops with the last workshop in Mt Isa postponed to Monday 14 to Tuesday 15 May 2018.

Negotiations have begun with Queensland Health to deliver PEPA Workshops in specific Hospital and Health Services. The first workshop was at Nambour Hospital on the Sunshine Coast on Tuesday 10 April 2018. Invited speakers included Mary MacDonald, Nurse Practitioner and Wendy Pearse, End of Life Care Project Officer from Sunshine Coast Palliative Care Service. Eleven Aboriginal and Torres Strait Islander Health Workers and Liaison Officers attended and feedback received was positive.

STATE NEWS:

PEPA ACT: Ros KirkPEPA ACT has been busy providing a variety of learning opportunities for frontline workers in ACT. We started off the year with a PEPA Palliative Approach Workshop and the room was packed to capacity with participants attending from a variety of settings across ACT including residential aged care facilities, acute care hospitals and the community setting. In March we joined with PICAC NSW and held a Palliative Approach and Cultural Competence Workshop for staff working in the aged care sector. The workshop was engaging with lots of discussion and laughter as we went through the day.

ACT Specialist Palliative Care hosts all the PEPA students here in ACT for a four day clinical placement and since the beginning of the year that has included staff from Residential Aged Care Facilities and the Community Setting. The PEPA participants are able to spend time with a number of different parts of the specialist service including: inpatient unit, outpatient clinic, home based palliative care team and the aged care liaison team.

Over the coming month there are a number workshops being provided by PEPA ACT. Please register via the Eventbrite web page. Clinical placement opportunities are limited. If you are interested in this great learning opportunity please apply now so that you don’t miss out.

WORKSHOP TARGET GROUP DATE LOCATION

Palliative Approach

All disciplines Tuesday 22 May

Clare Holland House Menindee Dve Barton

Palliative Approach for Paramedics

ACT Paramedics Wednesday 6 June

Clare Holland House Menindee Dve Barton

Post Placement Support – Palliative Emergencies

Past PEPA Placement Participant

Wednesday 13 June

Clare Holland House Menindee Dve Barton

Palliative Approach

All disciplines Tuesday 14 August

Clare Holland House Menindee Dve Barton

Palliative Approach in Aged Care

AINs & PCWs To be confirmed. Please contact ACT PEPA Manager to book for your Residential Aged Care Facility

For further information: Roslyn Kirk ACT PEPA Manager Email: roslynkirk@calvary-act.com.au Phone: 02 6264 7300 To register for workshops: https://pepa-act.eventbrite.com.au/

PEPA NT - Jonathon JaunceyGroote Eylandt Documentary filmed in the Norther Territory in association with Palliative Care Australia – March/April 2018

Advanced Care Plans or “Dura” as the Groote Eylandt People have come to call them, have been a part of routine Primary Health Care now for some time. Angurugu Health Centre Staff, in particular, Senior Aboriginal Health Practitioner, Helen Lalara and Clinic Manager Jenny Langrell assist Nursing and Medical staff to demystify, the often difficult topic, of end of life wishes. They have empowered the community to speak

4

PEPA presented at the Aboriginal and Torres Strait Islander Health Workers Forum which was hosted by Darling Downs Hospital and Health Service at Warwick Hospital on 19th April 2018. PEPA participant Kayleen Wallace completed her workplace activity by presenting a reflection of her learnings and newly acquired knowledge of palliative care.

NSW and QLD PEPA are collaborating to deliver a workshop for Aboriginal and Torres Strait Islander Health Professionals in North West, New South Wales and Darling Downs, Queensland district.

Negotiations continue with Aboriginal and Torres Strait Islander Health Managers at Hunter New England Area Health Service, Pius-X Aboriginal Medical Service, Moree and IndigiCare, Goondiwindi to source local presenters. The workshop is planned for week of 27th August with the specific day to be confirmed.

Moving forward, all future Aboriginal and Torres Strait Islander Health Worker workshops delivered in Queensland will offer a Healing component. Please contact Eliza Munro on 3646 5251 or eliza.munro@health.qld.gov.au if you are interested in a workshop in your workplace.

Education Opportunities

WORKSHOP TARGET GROUP DATE LOCATION

PEPA workshop RNs and ENs from NGOs

Monday 21 May

Gold Coast

PEPA Study Day All Health Professionals

Friday 25 May

Townsville

PEPA Palliative Approach workshop

All Health Professionals

TBC Thursday Island

PEPA Indigenous Health Worker workshop

AHW’s TBC Goondiwindi

PEPA Palliative Approach workshop

Nurses TBC Goondiwindi

PEPA Palliative Care Conference

All Health Professionals

Friday 9 November

Townsville

For further information: Aurora Hodges, QLD PEPA Manager Email: Aurora.Hodges@health.qld.gov.au Phone: 07 3646 6216 To register for workshops: https://pepa-qld.eventbrite.com.au/

PEPA Queensland invites all clinicians interested in palliative care to apply for a funded supervised placement with a specialist palliative care service. There are places available in 2018 for GPs, Medical Officers, Registered and Enrolled Nurses, Allied Health Professionals and Indigenous Liaison Officers/Health Workers.

PEPA WA: Brooke Wilkinson and Michael WearThe WA PEPA team hit the ground running in 2018, we have already facilitated workshops in the metropolitan area along with visits to Carnarvon, Exmouth and Kellerberrin in regional WA.

We plan on visiting South Hedland, Bunbury, Busselton and Mt Barker in the coming months to deliver palliative care education, so keep an eye out for our flyer’s to register.

Michael (PEPA Aboriginal Project Officer) has been working closely with the Aboriginal Health Council of WA to arrange upcoming palliative care education for the Aboriginal health worker’s in the metropolitan area and the South West. You may have also seen him waving the PEPA flag high at the AHCWA Conference.

Please see below for other upcoming PEPA workshops that may be of interest to you in 2018;

WORKSHOP TARGET GROUP DATE LOCATION

Palliative Approach for Aboriginal Health Professionals

AHW’s, ALO’s, AOW’s ect

Tuesday 15 May

Perth

Palliative Approach Workshop

All Health Professionals

Tuesday 17 July

Mt Barker

Australian Indigenous Culture Centred Care

All Health Professionals

Tuesday 31 July & Wednesday 1 August

Broome

Palliative Approach in Aged Care

All health professionals working in aged care

Tuesday 28 August

Busselton

If your regional health care setting is interested in palliative care education please don’t hesitate to contact PEPA WA on 9382 9372. PEPA Placements are available for all health professionals in metropolitan & regional area’s, so we encourage all to apply as soon as possible.

For further information about any of the workshops or placement opportunities please contact Brooke Wilkinson or Michael Wear on (08)9382 9372 or Pepa@cancerwa.asn.au

Other States and TerritoriesRest assured PEPA activities are taking place around the country, find out what the rest of the country are up to in our next online newsletter.

A copy of this newsletter is available online at: http://www.pepaeducation.comDon’t forget to visit www.pepaeducation.com/whats-new/newsletters-general/ to continue receiving our newsletter.

© Q

UT

2018

23

476

Australian Capital Territory: Ros Kirk • Roslyn.Kirk@calvary-act.com.au • Ph: 02 6264 7330New South Wales: Janeen Foffani • pepansw@sswahs.nsw.gov.au • Ph: 02 9515 6424Northern Territory: Jonathon Jauncey • Jonathan.Jauncey@nt.gov.au • Ph: 08 8922 8929Queensland: Aurora Hodges and Eliza Munro • pepaqld@health.qld.gov.au • Ph: 07 3646 6216South Australia: John McMahon • jmcmahon@pallcare.asn.au • Ph: 08 8271 1643Victoria: Tracey Mander • pepa@svha.org.au • Ph: 03 9231 5657Western Australia: Brooke Wilkinson and Michael Wear • PEPA@cancerwa.asn.au • Ph: 08 9382 9372Tasmania: Helen Woodbridge • mary.woodbridge@ths.tas.gov.au • Ph: 03 6166 2821National Coordinator for Indigenous PEPA: TBC • Ph: 07 3138 0134PEPA National Manager: Suzanne Cosgrove • pepa@qut.edu.au • Ph: 07 3138 6121PEPA GP Project Manager: Wendy Gain • wendy.gain@qut.edu.au • Ph: 07 3138 6123

PEPA

Con

tact

s

For further information on PEPA please contact your local manager: