from data sharing to data stewardship

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Agencies such as the NSF and NIH require data management plans as part of research proposals and the Office of Science and Technology Policy (OSTP) is requiring federal agencies to develop plans to increase public access to results of federally funded scientific research. These slides explore sustainable data sharing models, including models for sharing restricted-use data. Demos of these models and tips for accessing public data access services are provided as well as resources for creating data management plans for grant applications.

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  • 1.From Data Sharing to Data Stewardship: Meeting Federal Data Sharing Requirements Now and into the Future ICPSR University of Michigan

2. Session Outline History (brief!) of federal data sharing requirements What is good data sharing? How do you achieve data stewardship? Good news: sustainable data sharing exists Public data sharing services tours & tips Resources for creating data management plans and funding quotes 3. You should leave this session with - Keen understanding of several sustainable data sharing models Ability to critique data sharing services Through review of several services Walk-away tips for evaluating Knowledge (a portal) of resources for creating data management plans for grant applications 4. Prologue Why ICPSR is Here ICPSR has been in the data stewardship business for over 50 years since 1962 Center located within the Institute for Social Research at the University of Michigan ICPSR exists to preserve and share research data to support researchers who: Write research articles, books, and papers Teach or utilize quantitative methods Write grant/contract proposals (require data management plans) Data stewardship = data curation = our purpose 5. Two Recent Moments in Federal Data Sharing History NSF: January 2011 requirement of data management plans OSTP: February 2013 Memo with subject Increasing Access to the Results of Federally Funded Scientific Research 6. The Statement Heard Round the Research World: In January 2011, the National Science Foundation released a new requirement for proposal submissions regarding the management of data generated using NSF support. All proposals must now include a data management plan (DMP). (NIH has similar DMP requirements.) The plan is to be short, no more than two pages, and is submitted as a supplementary document. The plan needs to address two main topics: What data are generated by your research? What is your plan for managing the data? 7. The OSTP Memo Released February 22, 2013 This memo directed funding agencies with an annual R&D budget over $100 million to develop a public access plan for disseminating the results of their research 8. The OSTP Memo A Review A concern for investment: Policies that mobilize these publications and data for re-use through preservation and broader public access also maximize the impact and accountability of the Federal research investment. Federal agencies with over $100 M annually in R&D expenditures to develop plans to support increased public access to the results of research funded by the Federal Government 9. The details are still developing but the focus for research data sharing includes: 1. Maximize public access (includes discoverability) 2. Protect confidentiality and privacy 3. Allow for inclusion of costs in proposals for federal funding of scientific research 4. Appropriate evaluation of submitted data plans 5. Compliance mechanisms 6. Cooperation with the private sector 7. Appropriate attribution 8. Long term preservation and sustainability 10. What is good data sharing - the basis of data stewardship? The goals are simple: Data gets used (maximizes taxpayer investment) Available today and into the future Research respondent protection 11. Data Stewardship = Getting Data Used 1. Data must be discoverable a) Ability to discover data online requires proper tagging and exposure for search engine indexing Concept of a data catalog b) Data citation data used in research articles should have a DOI and citation just like research articles 2. Data must be accessible a) On-demand (available for download) b) Well-documented (survey scope, sample population, questionnaire, study & data nuances, etc.) c) Available in usable/popular formats (SPSS, Stata, online analysis) 12. Data Stewardship = Future Availability 1. Data in preservation format (ASCII) 2. File migration to current software versions 3. Well-documented (survey scope, sample population, questionnaire, study & data nuances, etc.) 4. Stored in an ever-present archive (location) available today and XX+ years from today! 13. Data Stewardship = Respondent Confidentiality It is critically important to protect the identities of research subjects Disclosure risk is a term that is often used for the possibility that a data record from a study could be linked to a specific person Data with these risks can be shared: Data anonymized for public access Data distributed via secured virtual environment Data concerning very sensitive topics can also be shared via a secured environment 14. The Concept of Data Curation Curation, from the Latin "to care," is the process used to add value to data, maximize access, and ensure long-term preservation Data curation is akin to work performed by an art or museum curator. Data are organized, described, cleaned, enhanced, and preserved for public use, much like the work done on paintings or rare books to make the works accessible to the public now and in the future Curation provides meaningful and enduring access to data = Data Stewardship! 15. The Status of Data Sharing The Good News Good data sharing exists! The Bad News Good data sharing requires funding - sustainable funding! Sustainable funding for free public access remains a challenge 16. Sustainable Data Sharing Models Three to Explore Fee for access model (subscription model) Agency model (agency or foundation funds public access) Fee for deposit model (researcher writes fee into grant and pays at deposit to fund public access) 17. I. Fee-for-Access Data Sharing Funding is maintained by annual subscription fees charged to institutions; individuals at subscribing institutions have free (open) access to data Pooled (ongoing) subscriber fees are used to acquire, curate, and maintain the service The service, open to everyone, is thus sustained by subscribers, but agencies indicate these models are not open enough because of the access fees 18. II. Agency-funded Data Sharing Agency sponsors/funds (ongoing) data curation & sharing enabling the public to access without charge The archive is hosted with a curation entity like ICPSR where the public can easily discover and access data and restricted-use data can also be securely shared Agency directs data selection and compliance policies 19. More Agency/Foundation-Funded Collections Hosted by ICPSR 20. III. Fee-for-Deposit Data Sharing Depositor (individual or entity) pays for data to be curated and stored a fee at deposit Deposit fees should be written into the grant application Incoming deposit fees sustain the service and the professionals behind it Sustainability risk fairly high in this model as it depends upon: Continuous influx of deposit fees Depositors to put allocated fees towards curation & sharing 21. Fee for Deposit Services Arriving Daily! (tips for evaluating coming shortly) 22. First: A Side-Note on Sharing Restricted-Use Data Data with disclosure risk potential to identify a research subject Data with highly sensitive personal information What is Restricted-Use Data? 23. Common Objection/Misperception: My data are too sensitive to share. . . ICPSR has been sharing restricted-use data for over a decade via three methods: Secure Download Virtual Data Enclave Physical Enclave ICPSR stores & shares over 6,400 restricted- use datasets associated with over 2,000 active restricted-use data contracts 24. Reality: Restricted-use data can be effectively shared with the public Through the use of a virtual data enclave where the data never leave the server Where there is a process (and understanding!) to garner IRB approval from the requesting scientists university Where there is a system, technology, data professionals, and collaboration space in place to disseminate (expensive to build!) Because agencies do allow for an incremental charge to the data requestor to offset marginal costs 25. Review of Public Data Sharing Services Overview of public data sharing services we have reviewed Some key strengths of each Disclaimer: ICPSR has recently launched a public access service (hosted) Youll likely notice some bias when we talk about the strengths of openICPSR And because we built the service, we know much more about it Still, ICPSRs public access service isnt for everyone more on that shortly 26. Public Data Sharing Services 27. openICPSR currently in its beta launch 28. How is openICPSR unique? openICPSR is a public data-sharing service: Where the deposit is reviewed by professional data curators who are experts in developing metadata (tags) for the social and behavioral sciences With an immediate distribution network of over 750 institutions looking for research data, that has powerful search tools, and a data catalog indexed by major search engines Sustained by a respected organization with over 50 years of experience in reliably protecting research data Prepared to accept and disseminate sensitive and/or restricted-use data in the public-access environment 29. Why should openICPSRs unique attributes matter to depositors? While openICPSR is a new data-sharing service, it is backed by ICPSR Discoverable: Posting data online isnt enough. To maximize usage, data must be easily discovered. ICPSR is an expert in tagging scientific data for discovery by potential users Usage: ICPSRs data catalog is searched by thousands of individuals keenly interested in downloading and analyzing data; the catalog is also indexed by search engines connecting still more potential analysts to the data Sustainable for the long term: ICPSR has existed as a data archive for over 50 years; depositors need not worry that their data will suddenly disappear due to a loss, for example, of funding Secure dissemination of sensitive data: ICPSR is prepared to accept restricted-use data as it has the infrastructure and working knowledge in place to store and disseminate it s

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