EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

Copenhagen, October 2013

Dorica Dan

www.edubolirare.ro

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EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAINING PROVIDER

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• Romanian Prader Willi Association

• RPWA was created in May 2003. • October 16, 2005 we opened the

Information Center for Rare Genetic Diseases.

• 9 August 2007 – established the Romanian National Alliance for Rare Diseases

• 29 February 2008 – partnership with Romanian Ministry of Health for a National Plan for Rare Disease

• June 2008 – the first national program for rare diseases

• 2011 – Opened NoRo Center • 2011 - established ARCrare

• Romania

• www.edubolirare.ro 2011

CăutareAutentificare

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAININGFACT SHEET

Diseases or Therapeutic Domain

Target Public

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• Patients • Personal assistants• Therapists • Social workers• Psychologists• Volunteers• Nurses • Doctors

• EDUBOLIRARE – an online platform for information and education

Rare diseases;• The training courses are designed for

professionals involved in diagnosing and management of RD

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAININGFACT SHEET

Total hours of training

Place for face to face training

Format of the programme

Nr. hours of face to face training

Nr. hours of eLearning

Nr. hours of group/class training

Nr. hours of individual training

% of practical training

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Ex. 108 h / depends on the training

108 h: 36 h theory and 72 h practice

36 h

72 h

Max. 6 h/ day, 20-24 participants

NoRo Center, Center for Information about rare genetic diseases;

66% (2/3 of the time)

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAININGFACT SHEET

Total costs of the training/person

Costs covered by participants

Costs and Funding

Funding sources for remaining costs

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• 100% in case that we have not a project to cover the cost or other sources of funding;

• ≈ 100 eur/person

• RPWA

• Even when we provide the training for free, it is a worthwhile investment in long term!

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAININGFACT SHEET

Trainers’ Background

Partners

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• Romanian Genetics Society in the development of the module of RD;

• Ministry of Health – communication and promotion of the project to the medical departments;

• Romanian Doctors’ Colegium - accreditation• Frambu – general support in the project

implementation and know how;• Ministry of Work and Education – authorization• Medical Universities – trainers

- therapists, doctors, psychologists, special education teachers, kinetoherapists, all trained as trainers of adults;

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAININGMISSION AND OBJECTIVES

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What is www.edubolirare.ro?An innovative initiative of Romanian Prader Willi Association which aims to highlight the potential of web resources in the field of training and information on rare diseases.

Mission : • to improve the competence of professionals

working in the specialized social services for RD.

• Objectives:1. Create curricula and adapt the existent

training courses for professionals and add knowledge about RD, in order for provide them with necessary skills when patients with RD ask for their services.

2. This way, the training courses can be also authorized and accredited by the competent authorities.

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAININGCERTIFICATION AND

RECOGNITION

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Rehabilitation teacher (Code COR: 333003)• Who should attend the course?• Specialists (psychologists, special

education teachers, social workers, etc.) from recovery centers for people with disabilities, community services, daycare centers for children and adults;

• Teachers from special and general education system;

• Staff from hospitals and clinics (nurses, occupational therapists, etc.);

A recognized certificate is provided as the job is in COR nomenclature;

A module of RD is added at the official training curricula;

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAININGPROGRAMME CONTENTS

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Rehabilitation teacher (Code COR: 333003)Knowledge or studies required:Secondary education (high school or post-high school)

Course contents (table of contents): Rare diseases management

1. Interpersonal Communication2. Multidisciplinary teamwork3. Personal development and continuous professional training4. Establishing the plan of specific activities for stimulating and recovery of the assisted person5. Organize activities6. Providing care of the assisted person 7. Rights and interests of the beneficiary8. Participation at the evaluation of the beneficiary9. Participation in the implementation of the personalized intervention plan10. The development of personal skills and social autonomy to the assisted person11. Overseeing the integration/ reintegration of beneficiary in the community12. The development of positive attitudes towards themselves and others.

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAININGPROGRAMME CONTENTS

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Insert your pictureTraining methods:• Blended Learning: meeting face to

face and online self-study• Completion of the course• Written examination and a

graduation practical project• Practical activities in NoRo Center

• Certificate type:• Graduation Certificate recognized by the Ministry of Education and

Ministry of Labor.• Accreditation system: The course is accredited by the National Council

for Adult Professionals Training.• Duration of training: 108 hours of which 36 hours theory and 72 hours

practice training

http://www.edubolirare.ro/content/capitolul_02

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013

ABOUT THE TRAININGEVALUATION AND IMPACT

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• Each training course is evaluated by the participants in terms of: content of curricula, trainer performance, facilities, support documents;

• For final exams, the evaluation will be assisted by a commission of National Authority of Qualification.

• The structure and delivery of the training program can be individualized to meet the needs of specific programs or communities.

• Respecting the common requirements but adding specific modules on RD could be a way to do this trainings or…

• http://www.edubolirare.ro/modulc01/modulcurs1979xll_ro.html

EUCERD Joint-Action Workshop Training Social Services Providers, Copenhagen, October 2013 12

• “When you know better you do better.” ― Maya Angelou

• High achievement always takes place in the framework of high expectations…

THANK YOU!