east of england regional network of parent carer · pdf fileeast of england regional network...

East of England Regional Network of Parent Carer

Forums

Parents and carers working with commissioners

and providers to improve services for disabled

children, young people and their families.

Chair’s Introduction

The world for everyone involved with children and young people with special educational needs and disabilities (SEND) is changing at a startling rate. The Children and Families Act and the Care Act are bringing in new legislation, new working practises and new challenges. But equally well, we have a once in a generation opportunity to make things better for some of the most vulnerable, needy and worthy people in our community.

The National Network of Parent Carer Forums was established to ensure that parents and carers, the people who share the every-day lives, experiences, highs and lows of those living with SEND, have a voice and can help grasp this opportunity. We have grown from humble beginnings to a group of 63,000 parent carers work-ing together to further these ends.

In the Eastern region, we are proud to be a part of that national network and as eleven parent carer forums coming together we share our experiences, our learning and our journey. We work with commissioners, policy makers and those who deliver services to design, develop and review what they offer, articulating what really matters to children with SEND and their families with the aim of improving outcomes. As parent carers we bring our own experi-ences but behind every one of us stand 63,000 other parents in the national network. Our training, our ethos and our approach mean that we are able to represent the views and experiences of families in our region.

This is an exciting time in the world of SEND and never has parent carer participation been more important. I hope that the information in this leaflet will introduce you to who we are and the work we do in the Eastern region leading to better partnerships and better outcomes for our children.

Mrunal Sisodia

Norfolk Parent Carer Forum for Norfolk, we are the strategic voice of parent carers in service design, development and review.

Working together and in partnership with service providers and commissioners to improve outcomes for children and young people with Special Educational Needs and Disabilities and reduce stress for families.

Email: [email protected]

Website: www.familyvoice.org.uk

Tel: 07950 302937 (ansaphone only)

Address: PO Box 1290, Long Stratton, Norfolk, NR15 2HD

Facebook: Family Voice Norfolk Twitter: Familyvoicenfk

Suffolk Have your voice listened

to and acted on by those

that make decisions

about our families.

We are a network of parents and carers of children with additional

needs who are dedicated to playing an active part in the planning

and delivery of services for our children.


Website: www.spcn.org.uk

Tel: 01473 345375

Address: Suffolk Parent Carer Network, Brightspace,

160 Hadleigh Road, Ipswich, IP2 0HH

Bedfordshire

SNAP’s purpose is to improve services for children and young people with disabilities and additional needs, aged between 0 and 25 years.

We are a pro-active forum of parents and carers: we work with individuals and organisations, to influence and improve the provisions of local services. We focus on raising the standard of Social Care, Education and Health services in Central Bedfordshire.


Website: www.snapcentralbeds.org.uk

Tel: 07984 545044

Address: Disability Resource Centre, Poynters House, Poynters Road, Dunstable, LU5 4TP

BBPCF is a group of parents carers of children and young people with SEN and disabilities who work with local authorities, education, health and other providers to make sure the services they plan and deliver meet the needs of the children, young people and families. We represent all families who live in or access ser-vices in Bedford Borough.


Website: www.bbpcf.org.uk

Tel: 07943 524553

Luton Parent Carer Forum is a parent led organisation, set up as part of the Children and Families Act 2014. The specific aim is to involve parents of children with special educational needs and or disabilities to have a real say in shaping services for the future.

At present, the Forum is working in partnership with Luton Borough Council, the NHS and other providers such as the Network of Voluntary Consortia (NVC) to deliver services for children and young people with special educational needs and or disabilities.


Website: www.lutonforum.org.uk

Tel: 07985 470156

Address: Disability Resource Centre, Poynters House, Poynters Road, Dunstable, LU5 4TP

Cambridgeshire

Pinpoint provides a ‘place’ where parents can ask questions and know they won’t be judged, get information about services, and meet other parents like them.

A ‘place’ where they’ll be listened to, and know that they have been heard and that something will happen as a result. A 'place' where they have the opportunity to get involved in deciding how local services for their family will be provided.


Website: www.pinpoint-cambs.org.uk

Tel: 01480 499043

Address: 4 The Meadow, Meadow Lane, St Ives, PE27 4LG

Hertfordshire

We are a parent carer led organisation which represents the views of and experiences of families in order to influence the improvement of services for children and young people with special educational needs and disabilities (and their families) in Hertfordshire.


Website: www.hertsparentcarers.org.uk

Tel: 07840 360245

Address: PO Box 540, Welwyn Garden City, Hertfordshire, AL7 9LD

Southend

A parent led group representing parents in Southend, ensuring their voice is heard in the decision making process for local services.


Website: www.family-voice-southend.co.uk

Tel: 01702 507184

Address: C/o Toy Library, Lighthouse CDC, Snakes Road, Southend on Sea, SS2 6XT

Thurrock

A parent carer led forum offering opportunities

for parents and carers of children and young

people aged 0-25 in Thurrock to have their say

on important SEND issues and to work in

co-production with education, health and social

care professionals and organisations in order to

design, develop and improve services that meet their needs.


Tel: 07508 090200

Address: C/o The Beehive Resource Centre, West Street, Grays, Essex, RM17 6XP

Facebook: CaPa Participation Group

Twitter: @capathurrock

Peterborough

Helping families have their say in how services are shaped. Working in Partnership to ensure needs are met.

We are here for Parents and Carers of children and young people

aged 0-25 years with a disability or additional needs.


Website: www.familyvoice.org

Tel: 01733 313184

Address: 61 Second Drove, Fengate, Peterborough,

Cambridgeshire, PE1 5XA

Essex

Families Acting for Change Essex (FACE) is a parent led

organisation that represents the views and experiences of parents

and carers of children and young people with disabilities and

additional needs to influence the services they receive in Essex.


Website: www.face-essex.org

Tel: 01245 608231 or

Text: 07910 883337

Address: Moulsham Mill, Parkway, Chelmsford, Essex, CM2 7PX

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