eamon o'kane marie curie

Our Public Health Approach to End of Life Care: Marie Curie

Eamon O’Kane Divisional General Manager NI 3rd December 2015

Marie Curie Strategic Plan 2014-2019

Vision A better life for people and their families living with a terminal illness Objectives

• Reach more people and their families living with a terminal illness

• Improve the way terminally ill people are cared for across the UK

• Manage our charity as effectively and efficiently as possible.

Nursing Service Day Hospice Rapid Response Helper Service

Marie Curie in Northern Ireland

Marie Curie Helper Service

Matching specially trained volunteers (Helpers) to people with a terminal illness, their families and carers. A Marie Curie Helper provides: • One-to-one support and companionship • A short respite break for families and carers • A listening ear and emotional support • Information on local services • Some practical support e.g. shopping • Support for a few months after bereavement

Presenter

Presentation Notes

Helpers are not carers; the people we’ll be helping are our clients not our patients Helpers do not provide any nursing care or personal care We are not an emergency service – we are a befriending service We aim to complement existing support services, not duplicate For example, some of the referrals that come to us may not be appropriate and we’ll be working closely with the likes of Crossroads, to ensure that there isn’t duplication of services. There may also be health reasons that we need to take into account to ensure we are the right service for the client at the time of referral We’re looking to engage with people earlier on in their terminal diagnosis, so that there is time, over several months, for the Helper and the client to build up a relationship

Companions Project

Hospital Companions - trained volunteers supporting patients & families in final hours of life. People dying in hospital may have few visitors or, if they do, patient & visitor's can be overwhelmed Companions provide

• emotional support - someone to talk to at this difficult time • reassurance for families -someone is with their loved one when they need

to take a break or make arrangements • more local people with volunteering opportunities in the hospital to support

members of their own community

Presenter

Presentation Notes

The Marie Curie Companions service at Musgrove Park Hospital aims to improve the dying experience for people who die in hospital and to emotionally support their families. Between July 2014 and February 2015, the service received 74 referrals for support from a Companion volunteer. This has resulted in 173 hours and 55 minutes of support provided across 119 visits. Visits mainly involved companionship. The Marie Curie Companions service at Musgrove Park Hospital has had a positive impact on the families of dying people within the hospital. The service has provided them and their families with emotional support and someone they can talk to at this difficult time along with the reassurance for families that someone is with their loved one when they need to take a rest break or attend to a task. The service has helped to reduce self-reported levels of stress in the nursing staff who wish to spend time with people who are dying but do not have the time whilst working on a busy ward. The nurses have increased the number of conversations they have about death and dying since the implementation of the service and now feel that there is more support available for them to refer dying patients and their families to receive. The partnership between Marie Curie and Musgrove Park Hospital has helped to increase the profile of what Marie Curie do as an organisation. It has provided local people with more volunteering opportunities in the hospital to support members of their own community and may have increased local fundraising opportunities for both organisations.

Our Challenge

• Allow people with a terminal diagnosis to stay at home/in their communities permanently or for as long as possible

• Reduce isolation for people with a diagnosis and their families • Connect patients & families to wider support networks • Closer to home service access/provision • Support capacity growth in the voluntary sector • Build alliances with the expertise that’s out there

• Partnerships that work - Diagnosis to Prognosis to Post Bereavement

What is Mobilisation?

Community mobilisation on is a comprehensive response to an issue, involving a wide range of individuals, agencies and organisations that come together to change the ‘environment’ or ‘context’ within which the issue occurs

Families

District Nursing

Community Centres

Volunteer Groups

Businesses

Support Groups

Local Government

Therapists

Politicians

GPs

Counselling

Health Services

Care Homes

Transport

Meals on Wheels

Craft Groups

Social Clubs Google Images

Could it challenge/enhance current End of Life culture in the community?

District Nursing

Churches

Transport

Meals on Wheels

Counsellors

Therapists

Communities

FAMILY

Local Government

Day Care

Politicians GP’s

& PATIENT

The Stakeholder Jigsaw

• Develops community Ownership and Leadership in addressing approaches/cultures

• Improves levels of support for families, individuals and communities to improve End of Life experiences

• Educates/creates understanding with stakeholders in relation to their role in supporting people with changing needs

• Adopts/Introduces evidenced based action in response to locally identified need

• Develops sustainable capacity to continue/progress mobilisation in the future

• Builds Social Capital for change

Why Mobilisation?

eamon o'kane marie curie

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