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The Conversation ProjectNew Resources and Updates at TCP to Help Support “What Matters to Me” Conversations
September 16, 2020
Dr. Erik FrommeKate DeBartolo
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WebEx Reference
Audio settings Open chatChat to “All Participants”
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Intros/Chat Warm Up
Type into the chat box:
Your location, organization and type of organization?(faith-based, healthcare, community, government, individual
volunteer, etc.)
Make sure you send your message to“All Participants.”
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On Today’s Call4
Kate DeBartoloSenior Project Director
Dr. Erik FrommeAriadne Labs
Krissy CroninProject Coordinator
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Agenda• Updates from TCP• Introduction of our new patient guide to serious
illness conversations with Ariadne Labs• Time for Q&A
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New at TCP6
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the conversation project
Two Approaches to Advance Care Planning
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the conversation project
• The Conversation Starter Kit‐ For any adult‐ To plan for and talk
about end-of-life wishes
‐ No experts needed
• The Serious Illness Conversation Guide‐ For seriously ill‐ To discuss values
and goals if health situation worsens
‐ Initiated by clinician
Two Approaches to Advance Care Planning
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the conversation project
The What Matters to Me Workbook
• To help seriously ill patients and their important people prepare to talk to clinicians‐ Follows the questions and
order of the Serious Illness Conv Guide
‐ Uses simple language and structure similar to The Conversation Starter Kit
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Name a health care proxyName a health care proxy
Complete The Conversation Starter
Kit; Talk to your family
Complete a POLST w. clinicianEnd lifeEnd-of-life
talk
Izumi S and Fromme EK, Journal of Palliative Medicine. March 2017, 20(3): 220-221.
What matters to Me
Workbook
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the conversation project
Potential Use Cases• Daughter downloads Workbook to complete with
elderly mother, then brings to doctor’s appointment‐ Connects to “How to talk to your doctor”
• Clinician at health system that has implemented the Serious Illness Care Program gives the Workbook to a patient to complete and bring back next visit so they can discuss
• Others…what do you think?
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Evaluation
• Using in-depth interviews and surveys of people (patients and caregiver dyads)
• Will ask them to actually complete the guide• Trying to get as diverse a sample as we can –
race, ethnicity, LGBTQ, disabled, etc.• 4 questions: Utility, safety, acceptability,
usefulness.
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Interested in Being in the Research Study?
If you have a serious illness, or If you are a friend or family member of someone with
serious illness who would like to participate. 3 steps:
1) Complete the Workbook 2) Talk about it with someone (patient, family, clinician)3) Participate in an interview by phone or Zoom (~1 hour)
and complete a questionnaire
To join – complete survey at the end of this call or reach out to Kate DeBartolo at [email protected]
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Q&A • What do you think of the new workbook?• How might you use this?
(personally/professionally)• Thoughts on getting the word out – who might
be interested?
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• Tweet us, tag us on social mediaTwitter: @convoprojectFacebook: The Conversation Project Instagram: convoproject
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Ways to Engage with TCP’s Network
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https://bit.ly/2ukc7B0
Ways to Engage with TCP’s Network• Facebook discussion group
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Ways to Engage with TCP’s Network• Search, connect/network and learn together
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Add your pin!
https://theconversationproject.org/get-involved
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Ways to Engage with TCP’s Network
• Monthly Newsletters– General Newsletter– Community Engagement
Newsletter• Sign up and share your
events
https://theconversationproject.org/get-involved
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Next Community Call: October
Reaching and harnessing the power of students
Stay tuned for date/time!
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https://theconversationproject.org/get-involved
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Thanks and Appreciation24
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Additional Feedback?• After this call you will be redirected to a survey
form
Please take a few moments to answer if you have further feedback that you didn’t get to share today
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