XII International Hemophilia Forum
Intercontinental Phoenicia Hotel, Beirut, Lebanon, October 19 – 22, 2017
Program
This Forum is made possible in cooperation with Biotest AG, Dreieich, Germany
08:15 – 08:45 Registration
Welcome and Opening Session 08:45 – 09:00 WFH in the Middle East Alain Weill, Rana Saifi
09:00 – 09:15 The Hemophilia Situation in Lebanon Solange Sakr El-Hage
09:15 – 09:30 Opening Remarks by His Excellency the Lebanese Minister of Public Health
Mr Ghassan Hasbani
I. Session: Prophylaxis
Chairs: Prof. Wolfgang Schramm, Solange Sakr El-Hage 09:30 – 10:00 Low-Dose Prophylaxis for Children Dr. Marijke van den Berg
10:00 – 10:30 Treatment Options for severe hemophilia A Previously Untreated Patients (PUPs)
Dr. Steve Austin
10:30 – 11:15 Middle East Regional Experience in Low-Dose Prophylaxis Tunisia: Dr. Emna GouiderEgypt: Dr. Magdy El-EkiabyMorocco: Dr. Mohammed El Khorassani
11:15 – 11:30 Discussion / Q & A
11:30 – 12:00 Coffee Break
II. Session: Hemophilia Management and Treatment Products
Chairs: Dr. Magdy El-Ekiaby, Dr. Peter Noon 12:00 – 12:30 Selection of Treatment Products – CFCs and EHL Prof. Manuel Carcao
Friday, 20 October
12:30 –- 12:45 Humanitarian Aid Donations Dr. Assad Haffar 12:45 – 13:00 Discussion / Q & A 13:00 – 14:00 Lunch
III. Session: Enhanced Hemophilia Care Chairs: Prof. Wolfgang Schramm, Dr. Miguel Abboud 14:00 – 14:30 Hemophilia in Old Age Dr. Evelien Mauser-Bunschoten 14:30 – 15:00 Cardiovascular Disease and Hemophilia Dr. Steve Austin 15:00 – 15:15 Discussion / Q & A
15:15 – 15:30 Coffee Break IV. Session: Hemophilia Atrophy and Surgery
Chairs: Dr. Magdy El-Ekiaby, Dr. Adlette Inati
15:30 – 16:00 Orthopedic Surgery and Radio / Chemical Synovectomy Prof. Andreas Kurth
16:00 – 16:15 Physiotherapy Care for Hemophilia – A European view Piet de Kleijn
16:15 – 17:00 Physiotherapy in the Middle East - Lebanon: Cesar Haddad - Egypt: Prof. Adly Sabbour - WFH: Rana Saifi – Update on the WFH Proposed Arab MSK Network
17:00 – 17:15 Discussion / Q & A
V. Session: Inhibitor Development
Chairs: Dr. Emna Gouider, Dr. Claudia Khayyat
08:30 – 09:00 Inhibitor Development and Diagnosis Dr. Daniel Hart
09:00 – 09:30 Treatment of bleedings in patients with inhibitors Dr. Roseline de`Oiron
09:30 – 10:15 The SIPPET study – Today and tomorrow. Dr. Maria Elisa Mancuso
10:15 – 10:30 Discussion / Q & A
10:30-11:00 Coffee Break
VI. Session: Other Bleeding Disorders / Women with Bleeding Disorders
Chairs: Dr. Marijke van den Berg, Dr. Claudia Khayyat
11:00 – 11:30 VWD and Rare Bleeding Disorders Dr. Susan Halimeh
11:30 – 12:00 Women with Bleeding Disorders Dr. Rezan Abdul-Kadir
12:00 – 12:15 Discussion / Q & A
VII. Session: Novel Therapy for Hemophilia Treatment
Chairs: Dr. Bulent Zülfi kar, Dr. Hanadi Samaha
12:15 – 12:45 Gene Therapy Prof. Thierry VandenDriessche
12:45 – 13:00 Discussion / Q & A
13:00 – 14:00 Lunch
VIII. Session: Diagnostics in Hemophilia
Chairs: Dr. Marijke van den Berg, Prof. Ali Taher
14:00 – 14:30 Ultrasound diagnostics in hemophilia a pediatric approach Dr. Michael Sigl-Kraetzig
14:30 – 15:00 A good quality lab as a key factor in hemophilia diagnosis Dr. Günther Kappert
15:00 – 15:15 Discussion / Q & A
Closing Session
15:15 – 15:45 Closing Remarks Alain Weill
Robert LefebvreSolange Saker El-HageProf. Ali Taher
Saturday, 21 October
Cesar HaddadLebanese Association for HemophiliaPhysiotherapy UnitJal el DibLebanon
Dr. Assad HaffarWorld Federation of Hemophilia1425, boul. Rene-Levesque Ouest, bureau 1010Montreal, Quebec H3G 1T7Canada
Dr. Susan HalimehGerinnungszentrum Rhein-RuhrKönigstraße 1347051 DuisburgGermany
Dr. Daniel HartRoyal London Haemophilia CentreHaemophilia Centre OfficesBarts Health NHS trust - The Royal London HospitalWhitechapelLondon E1 1BBUnited Kingdom
Ghassan HasbaniMinistry of Public HealthBir Hassan, Jnah, next to OgeroBeirutLebanon
Dr. Adlette InatiRafik Hariri University Hospital Division of Pediatric Hematology Oncology Bir Hassan Beirut Lebanon
Dr. Günther KappertCRC Coagulation Research Center GmbH Königstraße 1347051 DuisburgGermany
Dr. Claudia KhayatDepartment of Pediatrics Hotel-Dieu de France University Hospital Achrafieh BeyrouthBeirutLebanon
Piet de KleijnFysiotherapeut | Divisie Hersenen, R,V&SUniversitair Medisch Centrum UtrechtC.01.409 | C.01.425 | Postbus 855003508 GA UtrechtNetherlands
Prof. Dr. Andreas KurthAsklepios Klinik BirkenwerderHubertusstraße 12-22 16547 BirkenwerderGermany
Robert LefebvreBiotest AGLandsteinerstraße 563303 DreieichGermany
Dr. Maria Elisa MancusoUniversity of Milan and IRCCS MaggioreHospital, A. Bianchi Bonomi Haemophiliaand Thrombosis CentreVia Pace 920122 MilanItaly
Dr. Evelien Mauser-BunschotenUniversitair Medisch Centrum UtrechtHeidelberglaan 1003584 CX UtrechtNetherlands
Dr. Peter NounSaint George Hospital University Medical CenterP.O. Box: 166 378 BeirutLebanon
Dr. Roseline d`Oiron Centre de Traitement de l’Hémophilie et autres Maladies Hémorragiques Constitutionnelles RaresHôpitaux Universitaires Paris Sud - Hôpital Bicêtre94270 Le Kremlin-Bicêtre CedexFrance
Prof. Dr. Adly SabbourUniversity of Cairo24 Sheab St MohandsienEl GizaEgypt
Rana SaifiWorld Federation of Hemophilia1425, boul. Rene-Levesque Ouest, bureau 1010Montreal, Quebec H3G 1T7Canada
Solange Sakr El-HageLebanese Hemophilia SocietyJal el DibLebanon
Dr. Hanadi SamahaSaint George Hospital University Medical CenterP.O. Box: 166 378 BeirutLebanon
Prof. Dr. Dr. h.c. Wolfgang SchrammRudolf-Marx-Stiftung fur HamostaseologieSchillerstraße 4080336 MunichGermany
Dr. Michael Sigl-KraetzigWeilerstraße 4189143 BlaubeurenGermany
Prof. Dr. Ali TaherAmerican University of Beirut Medical CenterP.O. Box 11-0236Riad El-Solh, Beirut 1107 2020BeirutLebanon
Prof. Dr. Thierry VandenDriesscheVrije Universiteit Brussel (VUB)Faculty of Medicine & PharmacyDept. of Gene Therapy and RegenerativeBuilding D - 3rd FloorLaarbeeklaan 103B-1090 Brussels (Jette)Belgium
Alain WeillWorld Federation of Hemophilia1425, boul. Rene-Levesque Ouest, bureau 1010Montreal, Quebec H3G 1T7Canada
Chairpersons and Speakers
Dr. Miguel AbboudDepartment of Pediatrics and Adolescent MedicineAmerican University of Beirut Medical CenterP.O. Box 11-0236Riad El-Solh, Beirut 1107 2020BeirutLebanon
Dr. Rezan Abdul-KadirRoyal Free HospitalPond Street London, NW3 2QGUnited Kingdom
Dr. Steve AustinSt Georges HospitalDepartment of HaematologySW17 0QT LondonUnited Kingdom
Dr. Marijke van den BergWorld Federation of Hemophilia1425, boul. Rene-Levesque Ouest, bureau 1010Montreal, Quebec H3G 1T7Canada
Prof. Dr. Manuel CarcaoThe Hospital for Sick ChildrenUniversity of Toronto555 University AvenueToronto, OntarioCanada, M5G 1X8
Dr. Magdy El-EkiabyShabrawishi HospitalFenni Square – El Karma Compound, Vill F7Dokki CairoEgypt
Dr. Mohamed El KhorassaniCentre de Traitement de l‘Hémophilie et des Mala-dies HémorragiquesCentre d‘hématologie et d‘oncologie pédiatriqueHôpital des enfants RabatRue Mfadel CherkaouiRabatMaroc
Dr. Emna Gouider BelhadjaliHemophilia Center Aziza Othmana Hospital Tunis Tunisia