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20 minutes for Q&A
Recording & slides, schedule of webinars: blog.dmptool.org/webinar-series
DMPTool Webinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS16 July 2013
Health Sciences and the DMPTool
#dmptwebinar
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Lisa Federer | @lisafedererUniversity of California-Los Angeles, Louise M. Darling Biomedical Library
DMPTool Webinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS16 July 2013
28 May Introduction to the DMPTool
4 June Learning about data management: Resources, tools, materials
18 June Customizing the DMPTool for your institution
25 June Environmental Scan: Who's important at your campus
9 July Promoting institutional services; EZID Outreach Made Simple!
16 July Health Sciences & DMPTool - Lisa Federer, UCLA
23 July Digital humanities and the DMPTool - Miriam Posner, UCLA
13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue
How to give the data management sales pitch to various audiences
Other tools and resources that work with/complement the DMPTool
Beyond funder requirements: more extensive DMPs
Case studies 1 – How librarians have successfully used the tool
Case studies 2 – How librarians have successfully used the tool
Outreach Kit Introduction
Certification program introduction
blog.dmptool.org/webinar-series
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
Webinar Goals
• Introduce requirements relevant to health sciences researchers
• Provide an overview of info to include in plans
• Demonstrate how to use the DMPTool to support NIH
• Point to resources for further help
From Flickr– Username: AG Gilmore
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
NIH Sharing Policies
• NIH Data Sharing Policy
• NIH Grants Policy Statement (2.3.11.2.3 Access to Research Data)
• For full list of NIH policies, see http://grants.nih.gov/grants/sharing.htm
Data Sharing Policy - Applicability
• applicants seeking >$500,000 in annual direct costs
• applications submitted after October 1, 2003
• final research data for research purposes
• all types of research data (clinical/basic science), especially unique data
From Flickr– Username: bengrey
Data Sharing Policy - Applicability
• applicants seeking >$500,000 in annual direct costs
• applications submitted after October 1, 2003
• final research data for research purposes
• all types of research data (clinical/basic science), especially unique data
From Flickr– Username: bengrey
Data Sharing Policy - Applicability
• applicants seeking >$500,000 in annual direct costs
• applications submitted after October 1, 2003
• final research data for research purposes
• all types of research data (clinical/basic science), especially unique data
From Flickr– Username: bengrey
Data Sharing Policy - Applicability
• applicants seeking >$500,000 in annual direct costs
• applications submitted after October 1, 2003
• final research data for research purposes
• all types of research data (clinical/basic science), especially unique data
From Flickr– Username: bengrey
Components of the NIH Application
• Data Sharing Plan (or explanation of why data sharing is not possible)
• Budget/Budget Justification
• Background and Significance Section
• Human Subjects Section
From Flickr– Username: Raphael Moser
Components of the NIH Application
• Data Sharing Plan (or explanation of why data sharing is not possible)
• Budget/Budget Justification
• Background and Significance Section
• Human Subjects Section
From Flickr– Username: Raphael Moser
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
NIH Guidance
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Data Sharing Plan
• schedule for sharing
• data formats• documentation
and/or analytic tools provided with datasets
• data-sharing agreement
• mode of data sharing From Wikimedia Commons – German Federal
Archives
Schedule for Sharing
• “timely fashion”• release no later
than acceptance for publication of main findings
• for epidemiological or longitudinal studies, release data in “waves” as available
From Flickr– Username: Kate Tomlinson
Schedule for Sharing
• “timely fashion”• release no later
than acceptance for publication of main findings
• for epidemiological or longitudinal studies, release data in “waves” as available
From Flickr– Username: Kate Tomlinson
Schedule for Sharing
• “timely fashion”• release no later
than acceptance for publication of main findings
• for epidemiological or longitudinal studies, release data in “waves” as available
From Flickr– Username: Kate Tomlinson
Data Formats• proprietary vs.
open formats• consider formats
required by archives
• rationale for why this format was selected
Data Formats• proprietary vs.
open formats• consider formats
required by archives
• rationale for why this format was selected
Data Formats• proprietary vs.
open formats• consider formats
required by archives
• rationale for why this format was selected
Data Documentation
metadata schemas
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Data-sharing Agreements
• outline requirements for ensuring privacy and confidentiality
• stipulate provisions for how shared data may be used
• may include penalties for violating agreement
From Wikimedia– Username: Lucas
Data-sharing Agreements
• outline requirements for ensuring privacy and confidentiality
• stipulate provisions for how shared data may be used
• may include penalties for violating agreement
From Wikimedia– Username: Lucas
Data-sharing Agreements
• outline requirements for ensuring privacy and confidentiality
• stipulate provisions for how shared data may be used
• may include penalties for violating agreement
From Wikimedia– Username: Lucas
Modes for Data Sharing
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under the auspices of the PI in a data archive
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in a data enclave
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Budget and Budget Justification
• include request for funds for sharing/archiving
• PIs may need assistance on estimating costs for data preparation and archiving
From Flickr– Username: 401(K) 2013
Budget and Budget Justification
• include request for funds for sharing/archiving
• PIs may need assistance on estimating costs for data preparation and archiving
From Flickr– Username: 401(K) 2013
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
Privacy of Human Subjects
• strip identifiers from data
• indirect identifiers and “deductive disclosure”
• restricted data enclaves
• data-sharing agreements
?
From Wikimedia Commons– National Cancer Institute
Privacy of Human Subjects
• strip identifiers from data
• indirect identifiers and “deductive disclosure”
• restricted data enclaves
• data-sharing agreements
?
From Wikimedia Commons– National Cancer Institute
Privacy of Human Subjects
• strip identifiers from data
• indirect identifiers and “deductive disclosure”
• restricted data enclaves
• data-sharing agreements
?
From Wikimedia Commons– National Cancer Institute
Privacy of Human Subjects
• strip identifiers from data
• indirect identifiers and “deductive disclosure”
• restricted data enclaves
• data-sharing agreements
?
From Wikimedia Commons– National Cancer Institute
Withholding Proprietary Data
• Small Business Innovation Research (SBIR) grantees = up to 4 years
• Private sector co-funding = 30-60 days
From Flickr– Username: m thierry
Withholding Proprietary Data
• Small Business Innovation Research (SBIR) grantees = up to 4 years
• Private sector co-funding = 30-60 days
From Flickr– Username: m thierry
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
Creating a plan with the DMPTool
Road Map
Goals of this Webinar
NIH policy overview
What to include in a plan
Special considerations
DMPTool and NIH Plans
Resources & more info
From Flickr– Username: Bastian
Resources
• NIH Data Sharing Overview: http://grants.nih.gov/grants/policy/data_sharing/
• NIH Data Sharing Policy and Implementation Guidance: http://grants.nih.gov/grants/policy/data_sharing/data_sharing_guidance.htm
• Full list of NIH sharing policies by Institute: http://www.nlm.nih.gov/NIHbmic/nih_data_sharing_policies.html
• Example data sharing agreements from NCI: https://wiki.nci.nih.gov/display/DSIC/Data+Sharing+Agreements
• Sample plan from NIH (Word doc): http://grants.nih.gov/grants/sharing_example_data_sharing_plan.doc
blog.dmptool.org/webinar-series
From Flickr by Jeff Keacher
Next week: Digital Humanities & the DMPToolPresenter: Miriam Posner, UCLA
Tuesday 23 July @ 10am PT
Register now!
blog.dmptool.org/webinar-series/
28 May Introduction to the DMPTool
4 June Learning about data management: Resources, tools, materials
18 June Customizing the DMPTool for your institution
25 June Environmental Scan: Who's important at your campus
9 July Promoting institutional services; EZID Outreach Made Simple!
16 July Health Sciences & DMPTool - Lisa Federer, UCLA
23 July Digital humanities and the DMPTool - Miriam Posner, UCLA
13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue
How to give the data management sales pitch to various audiences
Other tools and resources that work with/complement the DMPTool
Beyond funder requirements: more extensive DMPs
Case studies 1 – How librarians have successfully used the tool
Case studies 2 – How librarians have successfully used the tool
Outreach Kit Introduction
Certification program introduction
blog.dmptool.org/webinar-series
