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Creative Partnerships with the “Learn the Signs. Act Early.”
Campaign
The findings and conclusions in the presentation are those of the presenters and do not necessarily represent the official position of the Centers for Disease Control and Prevention
Acknowledgment The Act Early Ambassador project is a collaborative effort of the Centers for Disease Control and Prevention (CDC), Health Resources and Services Administration (HRSA) and Association of University Centers on Disabilities (AUCD) and the Association of Maternal and Child Health Programs (AMCHP) to advance CDC’s “Learn the Signs. Act Early.” program to improve early identification of developmental disabilities. The project is funded by CDC and HRSA. www.cdc.gov/ActEarly
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Presenters
Catherine Rice, PhD (Moderator) Centers for Disease Control and Prevention
Rae Sonnenmeier, PhD, CC-SLP New Hampshire LEND Program, NH Act Early Ambassador
Janet Farmer, PhD, ABPP University of Missouri
Tracy Golden, PhD, MSW Center for Persons with Disabilities, LEND/UCEDD, UT Act Early
Ambassador
Barbara Leavitt, UT Help me Grow
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Learn the Signs: Resources for monitoring key
developmental milestones and “red flags” that can indicate concern
Act Early: Discuss Concerns Proactive Screening (as appropriate) Refer for evaluation and services Find resources for early
intervention and family support
Learn the Signs. Act Early.
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Learn the Signs. Act Early. Components
1. Health communication campaign 2. Act Early Initiatives
• Act Early Ambassadors • State Teams
3. Research and evaluation
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Health communication
• Aims to change perceptions about the importance of identifying developmental concerns early
• Promotes awareness of milestones, warning signs, the importance of acting early, and how to get help
• Gives parents, professionals tools to help track development
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Learn the Signs. Act Early.
www.cdc.gov/ActEarly
Examples of Tools & Resources
6
Milestone Moments Booklet All checklists ages 2m-5y, tips for promoting development, warning signs; how to get help
Milestones Brochure sample milestones ages 6m-5y; how to get help
Milestones Checklists ages 2m- 5y, warning signs; how to get help
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Learn the Signs. Act Early.
www.cdc.gov/ActEarly
3 Ways to Get Learn the Signs. Act Early. Products
Download and print Order Customize
• www.cdc.gov/ActEarly • 1-800-CDC-INFO • [email protected]
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Learn the Signs. Act Early. Putting the information to
use to improve early identification –
www.cdc.gov/ActEarly
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New Hampshire’s Act Early
Partnership with Watch Me Grow
Rae Sonnenmeier, Ph.D., CCC-SLP NH’s Act Early Ambassador Clinical Associate Professor
NH LEND, University of New Hampshire
December 4, 2012 AUCD Annual Meeting
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Universal Developmental Screening
• Statewide system • State partners:
– MCH – Home Visiting – Part C – Family Centered Early Supports & Services – Head Start
• Family Resource Centers – Coordination with local partners
• Ages and Stages (ASQ-3 and ASQ-SE)
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Act Early Activities
• Regional Summit April 2010 – LEND coordination – Public Awareness
• Dissemination of Act Early posters with NH specific contact info
– Coordination with other efforts • NH Council on ASD – Screening & Diagnosis Workgroup • Watch Me Grow • Website presence
– Coordination of funding efforts
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Act Early Activities
• AMCHP State Systems Grant 2012 – Coordination with CSCHN
• Act Early Ambassador 2012: – Infant Mental Health – Home Visiting – Division of Children, Youth, and Families – Part C – Watch Me Grow
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Outreach to Health Care Community
• Act Early – WMG Coordinated Meeting - NH Pediatric Society - Quality Improvement Team - Endowment for Health (funding) - NH LEND - MCH Home Visiting - Head Start - CSHCN
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Open Forums on Early Developmental Screening
• Target Audience – Primary Health Care Providers – Early Care Providers – Families
• Held in two regions – Northern NH – rural, underserved – Southern NH
• Focus on Dialogue
– What’s working? – Where are the gaps? – What can we do?
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Participant Feedback What are Two Things You will Do…
Screening & Developmental Information: • Will do informal frequent screenings / assessments. • Work to implement ASQ in practice. • Give pamphlets to parents. • Add developmental info to visit summary mailing. Community Partnerships: • Partner with business community as well as health, school, social
service providers • Enhance access to teleconferencing, etc. • Knowing who to reach out to to help children I see that have signs
of special needs. • Increase face to face meetings to develop relationships in rural Coos
County. • Build better relationship with community partners.
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Ongoing Act Early and WMG Collaboration
• WMG Steering Committee • Integration of MCHAT within WMG • Focus on Autism screening in all funding requests • Focus on Sustainability
– Implementation Science – Restructuring of Committees – Coordination with other statewide early childhood
efforts (SPARK NH) – NH Pediatric Society endorsement
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Learn the Signs. Act Early.
Promoting Parental Awareness of Developmental Milestones Through WIC Partnerships
Janet E. Farmer, Ph.D. University of Missouri
Part of a project funded by the U.S. Department of Health and Human Services and the Centers for Disease Control and Prevention (grant number H6MMC11059)
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Background
Grant to develop effective implementation strategies for CDC Learn the Signs. Act Early. campaign
Materials encourage parental awareness of developmental milestones for earlier identification of autism and other developmental disorders
One of four pilot programs funded nationwide,
2010-2012
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Target Audience
Targeted underserved families in St. Louis City
Recognized that rates of diagnosis of autism and other developmental disorders lag among underserved populations
Sought partnership with St. Louis WIC program, serving approximately 19,000 low income individuals/families
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Partnership with St. Louis City WIC
Pilot closely aligned with WIC’s mission and objectives
Both focus on healthy development of young
children Fit neatly with WIC’s objective to provide
referrals for services
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Interactive Process
Developed based on WIC staff input
Families complete and discuss age-appropriate CDC milestones checklist during WIC visits
If concerns surface, family is referred to primary care provider for immediate follow-up
Process integrated into certification appointment
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Environment Reinforces Messages
Engaging, family-friendly signage throughout WIC
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Growth Chart, Wall & Floor Blocks
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Impact on WIC and Families
WIC staff have helped 8,650 families complete checklists over ten months
47 WIC staff trained at 14 sites
11 WIC sites with graphics installed
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Secondary Targets
Healthcare Providers About 75 providers have received information on
Learn the Signs and AAP screening recommendations
Childcare Providers Licensed in St. Louis City Two mailings to all 330 providers plus 149 Learn the
Signs folders distributed at professional trainings
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Assessing the Pilot
Input from WIC staff Pre- and post-implementation surveys to
measure change in families’ awareness
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How Is the Pilot Working for Families?
96% 96%
81% 81%
100%
4% 4%
19% 19%
0% 0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Families are willing tocomplete the checklists
Checklists are easy forfamilies to understand
Families indicate thatchecklists help them learn
about their children'sdevelopment
Families indicate thatthey share the checklists
with their children'shealthcare providers
Families look at theenvironmental graphics
% Agree
% Do NotAgree
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How Is the Pilot Working for WIC Staff?
100% 100%
88%
0% 0% 12%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
The toolkit is easy to use The checklists are easy to use The checklists fit easily into the flowof a WIC appointment
% Agree
% Do NotAgree
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How often do you incorporate the checklist into your WIC certification appointment?
35%
31%
23%
12%
At every certification apptAbout 75% of the timeAbout 50% of the timeAbout 25% of the time
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How much extra time does the program add to WIC certification appointments?
35%
50%
15%
Less than 2 minutes2 - 5 minutesMore than 5 minutes
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Which best helps families understand the importance of monitoring developmental milestones?
61%
35%
4%
Checklist / Referral EnvelopeEnvironmental GraphicsParent Handouts
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What has been the biggest barrier to implementing the program?
42%
27%
19%
4% 8%
Lack of time
Lack of family interest
Only English/Spanish available
Materials hard to understand
Other
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About how many children have shown signs of potential developmental delay?
81%
4%
8% 4%
1 - 5 children6 - 10 childrenMore than 10 childrenNo children
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Parent Survey Respondents
Pre-Implementation
(n = 321)
Post-Implementation
(n = 208) Parental age = 21 to 34 years
65.9% 69.7%
Education = High school or less
70.8% 72.2%
Minority status
71.0% 69.3%
Family has 1 or 2 children
86.6% 85.6%
Enrolled in WIC more than 1 year
--- 65.9%
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Parent Survey: Awareness Indicators
Is there an increase in the percentage of parents who… Item Pre-
Implementation (n = 321)
Post-Implementation
(n = 208)
Change
Have heard of the Learn the Signs campaign?
8.1% 24.0% +15.9%
Have heard of developmental milestones?
39.9%
56.7% +16.8%
Have heard of Learn the Signs campaign from “a program in my community/WIC”?
5.6% 20.2% +14.6%
Have heard of developmental milestones from “a program in my community/WIC”?
7.5% 26.9% +19.4%
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Factors Behind Program Success
Alignment with WIC mission Process built on WIC staff input Flexible, resilient, family-focused pilot
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Success Story: Engaging Children, Engaging Parents
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Success Story: Positive Atmosphere Supports Staff
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Conclusion
WIC has a unique ability to make a difference for children with developmental concerns and their families
Promising pilot warrants further evaluation
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Acknowledgements
Project Director: Katie Dunne Project Coordinator: Lee Falk Program Officer: Katie Green Families and WIC staff For more information: Contact Janet Farmer, [email protected]
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Help Me Grow and Learn the Signs. Act Early: Partnering in Utah
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Me, Myself, & I
Interdependence
Teamwork
Agenda
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Learn the Signs. Act Early.
• The Centers for the Disease Control and Prevention’s (CDC) national campaign to help parents and professionals learn
• the signs of healthy development
• the warning signs of delay
• the importance of acting early on developmental concerns
Interdependence Me, Myself, & I Teamwork
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Learn the Sign’s Strategy
Interdependence Me, Myself, & I Teamwork
Teach
• Teach parents about developmental milestones (physical and social/emotional)
Provide Tools
• Provide parents with tracking tools
Support • Encourage parents to act early on their concerns
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Learn the Sign’s Parent Resources
Interdependence Me, Myself, & I Teamwork
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Help Me Grow
• A parent information and referral line designed to connect families to community resources and information on child development
• Supported by United Way of Utah County, United Way of Salt Lake, and the Utah State Health Department
• Target area: Utah and Salt Lake County
Interdependence Me, Myself, & I Teamwork
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Help Me Grow
Interdependence Me, Myself, & I Teamwork
Families
Child Healthcare Providers
Community Resources
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Help Me Grow
Interdependence Me, Myself, & I Teamwork
Family connected to Help Me Grow
HMG staff contacts
family and makes referral
HMG notifies provider of
assessment/ referral
Family utilizes resource(s)
HMG follows-up with family
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Sharing Information and Materials
Interdependence Me, Myself, & I Teamwork
Using professionally developed materials
Using a community-
based approach in
presentation of materials
Increasing a system for early detection and
intervention
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Sharing Information and Materials
Interdependence Me, Myself, & I Teamwork
Do the materials get
used?
Do the materials get
used correctly?
Do users act on their concerns?
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The Information Gap
Interdependence Me, Myself, & I Teamwork
At-risk child:
Unidentified Developmental Delay
Identified Delay
Easy Access to Resources
At-risk child:
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The Information Gap
Interdependence Me, Myself, & I Teamwork
Shared Events
At-risk child:
Unidentified Developmental Delay
Identified Delay
Easy Access to Resources
Supported child:
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Increasing Impact
Interdependence Me, Myself, & I Teamwork
Connecting with families in their
natural environments.
Collaborating with local
providers to increase referrals.
Building community
partnerships with established
entities.
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Mutually Reinforcing Events
Interdependence Me, Myself, & I Teamwork
Help Me Grow
Utah State Health
Department
Learn the Signs. Act
Early.
Improved outcomes of early detection
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Mutually Beneficial Support
Interdependence Me, Myself, & I Teamwork
Utah Ambassador Program Help Me Grow Provides information and materials
Provides information and referrals
Leverages resources Provides developmental screening questionnaires
Locates families and venues Links families, physicians, and community providers
Improved Outcomes of Early Detection
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Shared Events
Interdependence Me, Myself, & I Teamwork
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Teamwork and Sustainability
Interdependence Me, Myself, & I Teamwork
• Increased awareness of events
• Co-branding and messaging
• Shared resources • Mutual goals
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The Future of Our Collaborations?
Interdependence Me, Myself, & I Teamwork
Help Me Grow
Utah State Health
Department
Learn the Signs. Act
Early.
? How important are people to making programs work?
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The Future of Our Collaborations?
Interdependence Me, Myself, & I Teamwork
Help Me Grow
Utah State Health
Department
Learn the Signs. Act
Early.
? How do you build institutional knowledge and sustainability in collaborations?
![Page 60: Creative Partnerships with the “Learn the Signs. Act Early ... · • Add developmental info to visit summary mailing. Community Partnerships: • Partner with business community](https://reader035.vdocuments.mx/reader035/viewer/2022070915/5fb59b9e94d76e615c550c7f/html5/thumbnails/60.jpg)
The Future of Our Collaborations?
Interdependence Me, Myself, & I Teamwork
Help Me Grow
Utah State Health
Department
Learn the Signs. Act
Early.
• How important are people to making programs work?
• How do you build institutional knowledge and sustainability in collaboration?
![Page 61: Creative Partnerships with the “Learn the Signs. Act Early ... · • Add developmental info to visit summary mailing. Community Partnerships: • Partner with business community](https://reader035.vdocuments.mx/reader035/viewer/2022070915/5fb59b9e94d76e615c550c7f/html5/thumbnails/61.jpg)
Contact Information
Tracy Golden (Utah Act Early Ambassador) C 801.597.5386 [email protected]
Barbara Leavitt (Help Me Grow Utah Director) O 801.691.5304 C 801.472.2136 [email protected] helpmegrowutah.org helpmegrownational.org
The CDC: Learn the Signs Act Early Program cdc.gov/ncbddd/autism/actearly cdc.gov/pronto