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TACA’s AUTISM JOURNEY BLUEPRINTS ©
A visual foundation on best practices for your child
This booklet contains TACA’s unique visual reference tools to help give you
an overview of each process to guide you on the autism journey. We call
these flow charts the TACA “AUTISM JOURNEY BLUE PRINTS” for every
topic parents will face on their journey.
These step-by-step processes will help you to determine appropriate
interventions and timelines for taking action in the realms of medical and
dietary intervention, education, finances and home life. These flow charts
will provide a visual foundation on best practices for your child and work for
families new to the journey or who have been on the journey for years, and
anywhere in between.
Autism Journey Blueprints© are a copyright of Talk About Curing Autism
(TACA). Please do not copy, reproduce or distribute without the express
written consent of TACA.
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Autism JourneyYear One
Formalassessment
and diagnosis:neurologist,behaviorist,speech & OT
Ruling-outmedical tests:
geneticdisorders like:
Fragile X(boys), Rhetts.Perform MRI &
24 hour EEG.
Call ABA (AppliedBehavioral Analysis)
providers andget on wait
list. Implementintensive 1:1
program.
Start theGluten Free/Casein Free/
Soy Free(GFCFSF) Diet
Find aDOCTOR for
the long term!Performbaseline
medical testsand necessary
medical
treatments.
Removeallergens (fro
diet andenvironment
Removeadditives,
preservatives
and dyes fromall foods. Goorganic and
clean diet.
See anaudiologist for
a completehearing
evaluation.
Encourageproper
sulphation with
nightly Epsomsalt baths
Start basicsupplemen-
tation andprobiotics.
Test for andtreat YEAST
(Go low-sugarand low-
carbohydrates)
Investigate &try the “Bs” –
B6, B12, TMGor DMG,
SuperNuThera
Begin Omegasupplements
like Cod LiverOil, or
Flaxseed Meal,
etc.
Get support &information!!
Attend regularTACA or other
meetings.
It is all in thePOOPS: deal
with the
constipation ordiarrhea
EvaluateGlutathione! – try oral, topical
then IV – withyour doctor's
help!
Consider
chelation
Educateyourself aboutthe potential
risks ofvaccination.
Copyright TACA, 2010
Autism Journey Blueprint©
A visual foundation on best practices for your
Hire an specialeducationattorney or
advocate.Learn yourlegal rights!
Understandhealth
insurance
coverage anreimburseme
Start Socialskills
development –
with structuredplay dates at
home
Fathers are
important too!
Remove toxinsfrom water,
bedding,clothes, etc.
Help your childobtain 8-10
hours a sleep
each night.
Keep yourmarriage &
family intact
Further refinediet: remove
phenols,sacylilates &
corn
On to Year
Two!
This document is a “sample” checklist to consider in planning intervention for a
child affected by autism. Please note, the order and action items will vary by child.
This is only a sample. Please consult with your child’s development and medical
eam for what is appropriate for their individual needs.
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Autism Journey
Year Two
Perform annualassessments:behaviorist,speech & OT
Perform annualmedical tests:
Compreh.Stool test,RBC, Toxicmetals and
allergy panel
Evaluate allmedical andtraditionaltherapy
options for
their efficacy.
Get involved instate & federal
legislationefforts.
Continuesocial skillsefforts with
preschoolactivities.
Considersocial skills
videos.
Keep learning
your childslegal rights and
get educated.
Get an
Immuneassessmenconsider ora
IG, or IVIG
Consider
Listeningtherapies
Consider a
rotation diet toprevent future
allergies. Orother diets
SCD, BED if
GFCFSF is notenough.
Refine
supplements:takesupplement
vacations.Change
brands ofsupplementsas needed
Continueeducation:
DAN!Conferences
and others
Continuereceiving
respite andsupport! Keepyour marriage
& family intact.
If your child is6 or older,
considerCAPD
evaluation by
an audiologist.
Performannual
assessments:
behaviorist,speech & OT
Evaluate all
medical andtraditional
therapyoptions for
their efficacy.
Get involved in
state andfederal
legislation
efforts – getfamily
involved.
Performannual medical
tests:Compreh.
Stool test,RBC, Toxicmetals and
allergy panel
Copyright TACA, 2010
Autism Journey Blueprint©
A visual foundation on best practices for your
Refinesupplements:
takesupplementvacations.
Changebrands of
supplementsas needed
Evaluate
alternativetherapies:
HBOT,neurofeedbac
etc.
Continuesocial skills for
advanced
needs withlocal providers.
LAST
RESORT:Consider
pharmacologywhen medicalefforts are not
progressing.
Keep yourmarriage &
family intact.
Continueeducation:
DAN!Conferencesand others
Continue,review and testother chelation
protocols.
Autism Journey
Year Three
This document is a “sample” checklist to consider in planning
ntervention for a child affected by autism. Please note, the
order and action items will vary by child.
This is only a sample. Please consult with your child’s
development and medical team for what is appropriate for
heir individual needs.
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START
GFCFSF
BasicsRemove all
Gluten, Casein
and Soy
AllergiesRun IgG and IgE
food allergy
blood tests.
Remove
offenders.
Remove Basic
ToxinsNitrates, MSG,
Aspartame,
HFCS, fluoride,
arsenic
YeastLearn what
yeast looks like,
what causes it.
Carb JunkieLearn what
carbs are, adjust
diet
Food
LabelsLearn how to
read food labels
Go Organic9 is Fine!
Remove colors
and
preservatives.
Join a CSA.
Phenols and
SalicylatesLearn what they
are, watch for
reactions
Remove
Other ToxinsAluminum,
chlorine, BPA,
water
Cooking and
StorageRemove Teflon,
aluminum, and
plastics
$$ Costs $$On‐A‐Budget,
cook from
scratch, buy and
cook in bulk
GFCFSF not
enough?
SCD‐CFRedo Allergy
tests first.
Remember
supplements.
LODResearch
oxalates and run
24‐hour urine
oxalate test.
Dietary Intervention
BEDLow carb,
cultured foods,
fats and
probiotics.
The End
Maybe…
SupplementsDon’t forget
calcium.600-1200mg
per day
Copyright TACA, 2010
Autism Journey Blueprint©
A visual foundation on best practices for your c
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Dietary Intervention
1. Basics – Remove gluten, casein and soya. http://gfcf-diet.tacanow.org/gfcf-in-10-
weeks.htm 2. Supplements
a. Calcium – you MUST give calcium when
removing dairyi. 600-1200mg per day is the RDA
1. Available in powder, pills,chewables and liquid
b. Multivitaminsc. Specialty supplements like B6, Magnesium, P5P,
TMG, EFA’s etc.i. http://www.tacanow.org/medical/Ideas_t
o_take_supplements.htm 3. Allergies - IgG and IgE food allergy tests, rotation diet4. Toxins - MSG, aspartame, nitrates, arsenic, fluoride,
aspartame, HFCS (high fructose corn syrup).a. http://gfcf-diet.tacanow.org/toxins-in-food-and-
environment.htm b. http://www.foodnews.org/ c. http://www.iatp.org Arsenic in chicken and rice
and rice milk.5. Yeast and carbohydrates
a. Keeping the diet as low sugar as possible isimportant.
i. http://www.tacanow.org/medical/yeast-
overgrowth-candida.htm b. Recheck your diet, don’t supplant calories.c. Don’t create a carb junkie.
i. http://gfcf-diet.tacanow.org/what-are-carbohydrates.htm
6. Learn to read food packaging labelsa. http://gfcf-diet.tacanow.org/how-to-read-food-
labels.htm 7. Go Organic
a. Join a local organic CSA athttp://www.localharvest.org/csa
b. http://www.organic.org/home/faq 8. Research Phenols/Salicylates – learn what they are and
what reactions they givea. http://gfcf-diet.tacanow.org/phenols-salicylates-
additives.htm
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9. Remove more toxinsa. Test water and filter.b. Avoid aluminum in food packaging like juice,
milk sub or broth boxes and cookware.c. Replace Teflon and aluminum pans with
Stainless steel and cast iron.d. Replace plastic with glass.
e. http://www.tacanow.org/medical/living-in-a-toxic-world.html
10. Costs – Diet on a Budget http://gfcf-diet.tacanow.org/ a. Special diet foods can be deducted on taxesb. Schools can provide special diet meals
i. If you qualify, reduced- or free lunch andbreakfast programs
c. GFCFSF on Food Stampsi. http://gfcf-diet.tacanow.org/gfcfsf-diet-
on-food-stamps.htm d. Cook whole foods from scratch, it will save you a
ton of money11. Other Diets
a. SCD-CF – Specific Carbohydrate Diet, Casein-freei. http://gfcf-diet.tacanow.org/specific-
carbohydrate-diet-scd.htm b. LOD – Low Oxalate Diet
i. http://www.lowoxalate.info c. BED – Body Ecology Diet
i. http://www.bodyecology.com/autism.php
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Medical Interventions
AutismDiagnosis
Genetic testingBaselinetesting
Neurological/Seizures
GFCFSF DietGet a DAN!
DoctorAdvanced
testing
GastroSupplementsRecurring
YeastToxinsHeavy MetalsRepeat Testing
Co-morbidissues
OtherRelaxation and
Fitness
Functional
Medicine
PICA - mineraldeficiency testing
Hearingsensit ivity -bacterial and
mineral levels,Berard AIT,noiseblockerheadphones
Sleep – test forreflux, diet, check bacteria, give
melatonin
Remove all gluten,casein and soy.
Symptoms:
Undigested foodchronic oralternating
diarrhea and/oconstipation,
posturing, bloatebelly.
Testing:colonoscopy,endoscopy,
pillcam, CDSA
glutathione, CDSTNFa, C-ReactivProtein, purine
porphryins,pterins, endocrinautoimmune, AStiters, Anti DNAs
antibodies, coppezinc ratio,
oxidative stressmethylation,metabolic
diseases, myelibasic protein,viral titers,
testosterone,
ammonia, oxalat
If you getpregnant againfollow the safetyguidelines – diet,
no tylenol, novaccines, for you
and the baby.
Get your child’sgut in the BESTshape you can
BEFORE pubertystarts.
Exercise is crucialfor ASD children. Adapted Yoga,running/walking,
gym exercise,sensory input, Tai
Chi, and use theNintendo Wii forcoordination andmuscle tone. Get
them movingeveryday!
FM is personalizedmedicine that
deals with primaryprevention and
underlying causes
instead of symptoms forserious chronic
disease.
Reduce exposureto arsenic, lead,
cadmium,organophosphate
pesticides,tobacco, fluoride,ammonia, BPA,
chlorine, mercury.Check your water,
personal careproducts, food and
bedding.
Multivitamins,minerals, zinc,
antioxidants, D3,sulfation, B6,
magnesium, EFA,amino acids,
glutathione, B12,calcium, immuneboosters, TMG/
DMG, antifungals,probiotics,enzymes, GABA,
melatonin
Test with CDSA,behavioral,
medical symptoms
Treat with low-sugar diet,probiotics,colostrum,
medications
(diflucan, nizoral,nystatin), GSE,caprylic acid,
garlic, oregano oil
Test for lead,mercury, arsenic,
cadmium, bismuth,nickel, tin, thallium
Test with blood,urine, urinary
porphryin
Treat with DMSA,EDTA, DMPS, GSH;oral, transdermal,
IV.
MTHFR, Fragile X,Rett Syndrome,
Wilson’s Disease,mitochondrialdysfunction,
Chiari1, PON1 butonly if insurance
pays.
CDSA, IgG food,CMP, CBC, RBC.Have your reg
doctor order theseunder insurance!
MRI every 3 years
for comparison.
Autism, Aspergers,PDD, PDD-NOS
CDSA, lipids, Amino Acids, IgGand IgE food and
environmentalallergies, OAT,ComprehensiveMetabolic Panel,CBC, RBC, zinc,
25-Hydroxy Vit D,blood and urineImmune panel,hearing, celiac,thyroid panel
Non-sedated 2-hour+ EEG, MRI
Get a referral fromother parents.
Learn about billinginsurance before
you go.
What is it?
Regression is anormal part of thehealing process.Some kids lose askill while gainingother bigger skills.
Keeping a journalwill help find out
what went wrong.More testing may
be needed.
Copyright TACA, 2010
Autism Journey Blueprint©
A visual foundation on best practices for your
This document is a “sample” checklist to consider in planning intervention for a child
affected by autism. Please note, the order and action items will vary by child.
This is only a sample. Please consult with your child’s development and medical
team for what is appropriate for their individual needs.
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Medical Track Tests and Treatments
1. Autism Diagnosis (Autism, Asperger’s, PDD)2. Genetic testing - MTHFR, Fragile X, Rett Syndrome,
Wilson’s Disease, mitochondrial dysfunction/disease,
PON1, Chiari 1, but ONLY if insurance covered,otherwise delay these.
3. Read this Beginner’s guide to Biomedical Treatmenthttp://www.tacanow.org/medical/beginner-biomedical-treatment-for-autism.htm
4. Baseline testing – CDSA, IgG and IgE food andenvironmental allergies, Comprehensive MetabolicPanel, CBC, RBC, zinc, 25-Hydroxy Vitamin D, bloodand urine Amino Acids, OAT, Immune panel, viralpanel, hearing, lipids, celiac, thyroid panel.
a. These tests are all standard and should beordered by your regular pediatrician andinsurance-covered, but don’t bill them underautism
b. If you are unsuccessful with your pediatrician,you can have these tests run by a DAN doctor
5. Neurological/Seizures– EEG, MRIa. Non-medicated EEG, minimum 2 hours,
preferably 24 hours. Rule out seizures,Landau–Kleffner syndrome.
i. If seizures found, medications (beware
seizure meds as they affect folic acidmetabolism).
ii. Further testing with QEEG, MEG, PET,SPECT scan.
b. MRI - to be repeated every 3 years forcomparison.
6. Diet – GFCFSF, SCD-CF, LOD, Feingold, BED…7. Get a DAN! Doctor – get referrals from parents.8. Advanced testing – glutathione, CDSA, TNFa, C-
Reactive Protein, porphryins, pterins, endocrine,
purine, autoimmune, ASO titers, Anti DNAseantibodies, copper/zinc ratio, oxidative stress,methylation, metabolic, myelin basic protein, vaccineviral titers, testosterone, ammonia, oxalates.
a. Methylation – B12, TMG/DMG, Folic/Folinic,Glutathione
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b. Immune, virals – colostrum, oralimmunoglobulin, IVIG, ACTOS, Low-dosenaltrexone, Valtrex. Titres, strep, lyme disease
9. Vaccines – reactions, boosters, titers, exemptions,doctors, schools, alternative schedules
10. Anti-inflammatories – Ibuprofen; Celebrex; Actos;Curcumin; IVIG, Subq or oral IgG; HBOT; Bethanecol;GABA; Theanine; Iodine.
11. Gastro issues – maldisgestion, malabsorption,allergies, colitis, chron’s, autistic enterocolitis.
a. Testing - colonoscopy, endoscopy, pillcam,CDSA
b. Treatments - GI cleanout, sulfur-based gutmeds, reflux meds, probiotics, Oxypowder,dietary change, antibacterials, antifungals,antibiotics, antiparasitic (Vermox), HBOT.
c. http://www.tacanow.org/medical/poops.htm 12. Supplements – Multivitamins, sulfation, B6,
Magnesium, EFA, amino acids, glutathione, B12,minerals, antifungals, Probiotics, Enzymes . Be waryof B vitamins and DMG/TMG if child has yeast.
13. Recurring yeast – Test for yeast with CDSA,behavioral, medical symptoms.
a. Treat with low-sugar diet, probiotics,colostrums, medications (diflucan, nizoral,nystatin), GSE, caprylic acid, garlic, oregano oil
b. http://www.tacanow.org/medical/yeast-overgrowth-candida.htm
14. Toxins – arsenic, cadmium, organophosphatepesticides, tobacco, fluoride, ammonia, BPA, lead,chlorine
a. HBOT, sauna, GI cleanout for detoxb. Taurine for chlorine
15. Heavy Metals – lead, mercury, arsenic, cadmium,bismuth, nickel, tin, thallium.
a. Tests – blood, urine, urinary porphryin.b. Treatments – DMSA, EDTA, DMPS, GSH; oral,
transdermal, IV.c. http://www.tacanow.org/medical/glutathione.ht
m d. http://www.tacanow.org/medical/chelation.htm
16. Repeat testing – CDSA, IgG food, CMP, CBC, RBC.17. Co-morbid disorders – PICA, hearing sensitivity, sleep
issues
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a. PICA – vitamin and mineral deficiencytesting
b. Hearing sensitivity – bacterial andmineral levels, Berard AIT, noiseblockerheadphones
b. Sleep – test for reflux, diet, check bacteria, givemelatonin
18. Other – another pregnancy, pubertya. Follow safety guidelines for another pregnancy:
diet, no Tylenol or vaccines for both.b. Get the gut in shape BEFORE puberty!
19. When something isn’t right.a. http://www.tacanow.org/medical/whatisit.htm b. Know that treatment can mean “2-steps
forward, 1-step back” sometimes.c. Regression is a normal part of the healing
process. Some kids lose a skill while gainingother bigger skills.
i. Keeping a journal will help find out whatwent wrong. More testing may beneeded.
20. Relaxation and Fitness - Yoga, exercise, sensory input,Tai Chi, Wii for coordination and muscle tone.
21. Functional medicine - FM is personalized medicine thatdeals with primary prevention and underlying causesinstead of symptoms for serious chronic disease.
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Living in a Toxic World
WaterNo fluoride, BPA,lead, rocketfuel,pH, PCB, PCPs,parasites, arsenic
FoodNo pesticides,
aluminum, MSG,mercury, colors,nitrates, arsenic,
preservatives
FlooringAvoid Stainmasterand Scotchguard.Use baking soda
and water to cleancarpets.
Clothes &Bedding
No fire retardants,GoreTex, light-upsneakers, foam
mattresses
Cooking &Storage
No Teflon, plasticor aluminum.
Cook in cast ironor stainless steel.
Store in glass.
HouseholdCleaners All-purpose
cleaners, laundrydetergent,
dishwashing soap
Chlorinatedphenols found intoilet cleaners.
Diethylene glycolfound in window
cleaners.Phenols found in
disinfectants.Nonylphenol
ethoxylate found inlaundry detergents
and all-purposecleaners.
Formaldehyde
found in spray andwick deodorizers.
Petroleumsolvents in floor
cleaners.Perchloroethylenein spot remover.Butyl cellosolve,common in all-
purpose, windowand others.
PersonalCare
Sunscreen,makeup, lotion,
medications,shampoo, soaps,
antiperspirant
PaperProductsDiapers, baby
wipes, tampons,toilet paper, paper
towels,
PFC(Perfluorinated
compounds) andPFOA
(Perfluorooctanoicacid) in teflon,
stain resistants,popcorn;
Polybrominateddiphenyl ethers(PBDEs) used infire retardants,foam, plastic in
TVs and computermonitors
WHAT TO AVOID
Butyl acetate,Butylated
hydroxytoluene,Cocamide DEA/ lauramide DEA,
Diazolidinyl urea,Ethyl acetate,
Formaldehyde,Parabens (methyl,
ethyl, propyl andbutyl), Coal tar,Oxybenzone
(Benzophenone-3), Micronized
Titanium Dioxide,Nano Titanium
Dioxide, Nano ZincOxide, Petrolatum,
Phthalates,Propylene glycol,Sodium laureth/ sodium laurelsulfate, Talc,
Toluene,Triethanolamine
Brand names:Teflon,
StainMaster,ScotchGuard,Silverstone.
Anything“nonstick” orantibacterial(triclosan).
Ingredients like:hydroquinone;
ethylene dioxide;1,4-dioxane;
fluoride;formaldehyde;nitrosamines;
PAHs; acrylamide;oxybenone,
aluminum, andingredients that
include theclauses "PEG,""xynol", "oleth"and"ceteareth"
I n g e s t e d
P e r s o n a l U s e
H
o u s e h o l d
Fluoridated water,
toothpaste,mouthwash;plastic bottles,plastic-lined
bottles
Avoid nonstickpans, don’t cook in
the microwave,avoid aluminum-lined (juice, milk
sub, broth) boxes,avoid plastic-lined
cans (they arewhite inside).
Avoid products with "Warning", "Caution", or "Danger: labels (i.e., cleaningproducts and pesticides). These labels are there because one or more of the
ingredients has the potential for causing serious harm or death.
Artificial colors,preservatives,
pesticides,nitrates, sulfites,
aspartame or otherartificial
sweeteners, MSG
WHAT TO AVOID
WHAT TO AVOID
Copyright TACA, 2010
Autism Journey Blueprint©
A visual foundation on best practices for your
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Living in a Toxic World
1. Toxins - MSG, aspartame, nitrates, colors, preservatives,arsenic, fluoride, Tylenol, aluminum, chlorine, molds,Teflon, aspartame, HFCS, pesticides, phenols/salicylates,lead, mercury, cadmium, BPA, water.
a. http://gfcf-diet.tacanow.org/toxins-in-food-and-
environment.htm b. http://www.foodnews.org/
2. Go Organic – Not all “organic” is created equal.a. “100% organic” - single ingredient such as a fruit,
vegetable, meat, milk and cheese (excludes waterand salt).
b. “Organic” - multiple ingredient foods which are 95 to100% organic.
c. “Made with organic ingredients” - 70% of theingredients are organic. Can appear on the front of package, naming the specific ingredients.
d. “Contains organic ingredients” - contains less than70% organic ingredients.
e. ‘9 is fine’. On the produce PLU code, if the firstnumber is a 9, it’s organic.
f. http://www.organic.org/home/faq 3. Pots and Pans
a. stainless-steel, cast-iron and enameled cast-ironcookware are best
b. no Teflon or aluminumi. http://www.ewg.org/node/21787
4.
Household Cleaners and paper productsa. All-purpose cleaners, laundry detergent, dishwashingsoap, diapers, baby wipes, tampons, recycled toiletpaper, tissues, and paper towels
i. Seventh Generation and Ecover availablenationally
ii. No legal mandate for labeling or safetyiii. Use HEPA air filtersiv. http://www.greenlivingonline.com/article/six-
household-chemicals-avoid b. Prescriptions and Over the counter meds
5. Personal Hygiene and medicationsa. Shampoo, conditioner, lotion, deodorant, toothpaste,
soaps, bubble bath, sunscreen, make upi. For sunscreen, look for zinc oxide or titanium
dioxide, and avoid oxybenzone and
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sunscreens with fragrance. Choose SPF 30and higher that block UVA and UVB.
ii. Avoid aluminum in food packaging like juiceor broth many body lotions and creams, mostcosmetics, shampoos and conditioners, soaps,suntan lotions, lip balm.
6. Water
a. Plastic water bottles contain BPA and other toxins.Use unlined stainless bottles like Klean Kanteen (notSigg).
b. Have your home water tested – check your county’sCooperative Extension office for testing. InstallReverse Osmosis and any other needed filters, eitherfor the whole house or just for the faucet you drink out of.
7. Packaginga. Plastics like Ziploc bags, plastic wrap, Tupperware
should be avoided. Store food in glass.
8. Household items containing PFCsa. Non-stick pans, carpeting, furniture, cosmetics,
household cleaners, clothing, and packaged foodcontainers can all contain PFCs, many of whichbreak down into PFOA in the environment or in thehuman body. The brand names are well-known:Teflon, Stainmaster, Scotchgard, SilverStone, andothers.
b. Mattresses with foam and fire-retardants give off toxic gasses.
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STARTThe IEP Process
Child entersschool system
via ChildFind, EI,RC, parent referral
or regularenrollment
Parent mustreceive evaluationreports prior to IEP
meeting
IEP MeetingNever go alone,
always taperecord, never sign
IEP at firstmeeting.
DiscussevaluationsDiscuss yourchild’s current
educational levels
Discuss thedevelopmentallyappropriate stepsto get your childfrom where he is
to where he shouldbe compared to
his peers.
Createmeasurable goals
Write only goalsthat are able to bemeasured, never
vague. Whomeasures, how
and when?
Placement OfferGoals beforeplacement.
Placements are tobe individualized
to your child’sneeds, NOT their
available programs
Services offersBased on goals,document level,
frequency, setting,and duration ofeach service.
Discuss whataccommodations
your child will needto fully participatein the placement
and servicesagreed to. Put it in
writing!
CommunicationDiscuss anddocument
parent-staffcommunication indetail. Frequency,data. Don’t settlefor “a good day”.
Don’t agree withplacement or
services offers?
Don’t sign IEP!
Hire a lawyer oradvocate
Some schools willbuckle when you
threaten to file dueprocess, some
won’t. Beprepared to go the
distance.
File Due Process
Educational
Consider privateplacement options
Follow ThroughHave quarterlyreviews of your
child’s progress onthe IEP goals. If
not meetingbenchmarks, call a
new meeting.
Child referred toSpecial Education
department forevaluations in ALLareas of suspected
delay.
Copyright TACA, 2010
Disagree withassessment? Seek
independentevaluation.
Goals driveplacement andservices. Makesure there is at
least one for everyarea of need.
Does theplacement offer
meet LRE?No? Reject offer.
Yes? On toservices.
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Finance
Early
Intervention(Part B)
Ages 0-3
Private
HealthInsurance
Regional
CentersCA only
School
District(Part C)
Ages 3-22
FederalPrograms
SSDIFood Stamps/SNAP
MedicaidMedwaivers
Other StateFunding
TaxDeductions
Budget TipsGrants and
Scholarships
Does not require adiagnosis, just
delay.
Will bill privatehealth insuranceand pick up anyremaining fees.
Covers OT, PT,ST and behavioral/
developmentalinterventions.
Coverage variesby plan and state.If self-funded plan,federal ERISA law
doesn’t apply.
Do not billanything under299. Autism.
Read the TACAInsurance booklet.
Funding throughDept of Ed.
Free to families.
Pays for alleducationaltherapies,
interventions and
related servicesthat are written
into IEP.
Each RC candetermine what
services they fund.Generally, the RCsfund ABA, respite,diapers, and day
care subsidy.Children with a “substantial” developmentaldisability qualifyfor RC services.
July 09 cuts meanno “non-medical”
therapies oreducationalservices.
Medicaid will payfor medicallynecessary
treatments likedoctors, dentists,
vision,prescriptions, labtests, OT, Speech,
Behavioral, PT,diapers but is
income dependant.
Waiver programsWAIVE the
parent’s income sothat the disabledchild qualifies.
You must qualifyfor these programs
on income anddisability. If you
do qualify, you canget up to $674
cash per month forSSDI and up to
$585 a month (fora family of 4) of Food Stamps.
Most every statehas anotherprogram forchildren withdisabilities.
Google search “developmental
disabilitiesfunding” and the
name of yourstate.
There are manyways to save
money on your journey. Read all
of our “On A Budget” articlesand save whereyou can, so thatwhen you must
pay out of pocket,you can afford it.
http:// www.tacanow.org/ resources/autism-on-a-budget.htm
There are morethan 25 nationalgrants, and manymore local grant
programs availablefor children with ASD for various
funding.
Google search for“autism
scholarship” or“autism grant” and
your state.
All medicalappointment travel
and costs, alldisability-related
reading materials,all therapists and
therapyequipment, special
diet foods, andmuch more, canbe deducted on
your taxes. Keepall your receipts!
Copyright TACA, 2010
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Finance
1. Who Pays for What?a. http://www.tacanow.org/resources/who-pays-for-
what-national.pdf 2. Early Intervention – birth to age 3, full funding after billing
your private health insurance.
a. http://www.nectac.org/partc/partc.asp 3. Private Health Insurance – never bill tests or treatments
under ‘299. Autism’.a. http://www.tacanow.org/resources/autism-
insurance/insurance-coverage-for-biomedical-traditional-treatments.htm
4. School District – ages 3-22, educational only, must bewritten into IEP to get funding.
5. SSDI, Food Stamps/SNAP – You must qualify for theseprograms on income and disability. If you do qualify, youcan get up to $674 cash per month from SSDI and up to
$585 a month (for a family of 4) of Food Stamps.a. www.ssa.gov 800-772-1213b. www.fns.usda.gov/FSP
6. Medicaid/Medwaiver pays medical, hospital, dental,behavioral, OT, PT and Speech, prescription, diapers,vision, and copays.
a. http://www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/MWDL/list.asp
7. Other state programsa. Most every state has another program for children
with disabilities. Google search “developmentaldisabilities funding” and the name of your state.8. Tax deductions – all medical appointment travel and costs,
all disability-related reading materials, all therapists andtherapy equipment, special diet foods, and much more, canbe deducted on your taxes. Keep all your receipts!
a. http://www.tacanow.org/resources/tax-strategies/tax-strategies-for-parents-of-special-needs-children.htm
9. Grants and Scholarshipsa. http://www.tacanow.org/resources/autism-
grants.html b. Other funding
http://www.tacanow.org/resources/autism-on-public-assistance.htm
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Marriage Siblings
Home Life
Home Extended Family
Getting
Organized Divorce
Moms to Dads:Get involved, Stay
involved.Acknowledge her
work, Listen.
For Dads:Define roles, makea plan, realize men
act and reactdifferently
Make special timefor other kids
Physical safety,locks, fences
Prep them forproper
expectations, howto relate
Use a journal totrack progress
Build a SpecialNeeds Trust and
wills
Siblings should notbe raised to be
caregivers.
Don’t expend allresources on ASD
kid, leavingnothing for
siblings.
Durable, easy toclean furniture and
décor.
Use non-toxiccleaners andfurnishings
Holidays, traveland gatherings
Gifts to go intoSpecial Needs
Trust
Get and scan alldocuments beforethey are destroyed
Get one creditcard just for autismrelated purchasesto help track and
for taxes
No ego parenting.Lead, follow or get
out of the way.Make time away
from autism.
Plan for the worst,hope for the best.Put it all in writing.
Decide whodecides -
educational andmedical
Copyright TACA, 2010
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Home Life
1. Marriage – Keeping it together!a. Moms to Dads: Dads need to be involved, stay involved.
Let her vent. Acknowledge her work.b. For Dads: Define roles. Make a 2-year plan. Realize men
and women deal with things differently.c. For both: Give each other time away from autism,
teamwork, split the effort, talk and listen. No egoparenting.
2. Siblings – don’t forget the other kidsa. Make special time just for them.b. Don’t expend all resources on ASD child.c. Don’t raise siblings to be responsible for ASD kid.
3. Home environment – Decorating for autisma. Safety - Install double-sided deadbolts, window locks and
alarms, fence the yard, triple-secure the pool.b. In the home – check for mold, replace toxic cleaners,
carpets, bedding, pots and bottles.
c.
Decorating – replace fragile items with durable furnitureand window coverings. Use nontoxic paint.4. Extended family – can be great or disaster.
a. Prepare them for proper expectations and how to interactwith your child.
b. Holidays, travel and special events may need to beadjusted to suit your child.
c. All monetary gifts should go to a Special Needs Trust foryour ASD child.
5. Getting organized, tracking child’s progressa. Use a journal to track your child’s progress and new
treatments.
b. Scan all documents and burn to CD when starting newpractitioner
i. Get an auto-document feeder attachment for yourscanner
ii. Get copies of all past doctor and therapist visitsbefore they are destroyed
c. Get one credit card just for autism-related purchases tohelp track spending and easy tax submittal.
6. Divorce – if all else fails.a. Build a Special Needs Trust and wills for both parents.
Funnel all insurance into it.
b.
Hope for the best, plan for the worst. Get it all in writing.c. Decide who decidesi. Educational and Medical decision making is key.
Get it in writing.d. http://www.talkaboutcuringautism.org/resources/divorce-
and-autism.htm
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