What Happened After the Grant Ended?

Long-term ImpactAs demonstrated using the elements of the Collective Impact(1) Framework:

Common agenda while services for children with Autism Spectrum Disorders has provided a common focus, the perspective of families and people with different disabilities was included from the beginning and remains as an important theme, increasing impact on all service systems for CSHCN

Measuring results consistently the common measurement has been the annual participant survey, sent to all members of the CoP ASD/DD listserve, annual response rate averages 100 (80-120)/year

Mutually reinforcing activities CoP on ASD/DD aligns activities and provides complimentary content to conferences and training provided by partner organizations

Continuous communication email has worked best, but face-to-face meetings are also an important link for the steering committee and ad hoc workgroups

Backbone organization(s) Wisconsin Department of Health Services in partnership with Waisman Center UCEDD at UW-Madison and parent organizations (ASW, ASSEW, others) have continued to provide the time and infrastructure support to sustain CoP on ASD/DD activities

(1) Kania, J and Kramer, M (2011) Collective Impact, Stanford Social Innovation Review

Autism State Implementation Grant: 2008-2011

Connections Funding: $300,000 per year from HRSA to the state Title V Children and Youth with Special Health Care Needs (CYSHCN) program to implement a state plan, plus in-kind staff contributions.Key elements for sustainability: coordinator on staff, shared leadership, quarterly meetings, current topics, quality venues, food, family stipends, Leadership Education in Neurodevelopmental Disabilities (LEND) trainee involvement.

Anne B Harris, PhD, MPH, RD; Tim Markle, MA; Sharon Fleischfresser, MD, MPH

Annual Survey Comments I have a greater understanding of the services

available and the process to help families access [ASD/DD services].

I wish I could attend every {meeting} because I would.

I was able to come away with a wealth of knowledge that was helpful to pass on to others on my team as well as to callers.

Dont go away!

Grant Post-GrantState-wide meetings 9 12Average# attendees 74 92Number on listserve 651 1000

Post grant annual survey results (average):77% find attending the CoP ASD/DD highly or moderately valuable82% say it has increased their knowledge about ASD/DD82% say they have transferred this knowledge65% believe it has led to improved access for families46% say they have connected with new partners

For more information about the CoP ASD/DD go to: www.waisman.wisc.edu/connectionsUniversity of Wisconsin Madison, Waisman Center, UCEDD/LEND Program

Steering team: parent and professional co-chairs, meets by phone 3 times yearly, meets in person once each year in summer to review annual survey results, plan upcoming year focus of each CoP ASD/DD meeting

Steering Team and CoP ASD/DD Participants: family members and self-advocates, teachers/educators, clinicians, State and county public health program staff researchers representatives from regional and state parent organizations

CoP ASD/DD Meetings: 3 times per year (Fall, Winter, Spring) Half-day to full-day, location varies Ad hoc program planning group determines structure

and content/speakers for each meeting Partners organizations provide sponsorship (food,

venue, travel costs) includes: Dept. of Public Instruction, WI LEND program, Autism Society of WI

Community Engagement at the Systems LevelBuilding and Sustaining the Wisconsin Community of Practice on Autism and other Developmental Disabilities

Community of Practice on Autism and other Developmental Disabilities (CoP ASD/DD)

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