divided we fall, united we inform building alliances for a...

14th EAHIL Conference, 11-13 June 2014, Rome, Italy 1

14th EAHIL Conference

DIVIDED WE FALL, UNITED WE INFORM Building alliances for a new European cooperation

Biblioteca Nazionale Centrale

11-13 June 2014 Rome, Italy

CONFERENCE PROGRAMME &

BOOK OF ABSTRACTS

2 14th EAHIL Conference, 11-13 June 2014, Rome, Italy

14th Conference of the European Association for Health Information and Libraries (EAHIL). Divided we fall, united we inform. Building alliances for a new European cooperation. Rome, Italy, 11-13 June, 2014. Conference programme & Book of abstracts. Edited by Federica Napolitani, Patrizia Mochi, Egiziana Colletta and Paola De Castro 2014, xi, 158 p.

This volume includes the abstracts of both oral presentations and posters presented at the 14th Conference of the European Association for Health Information and Libraries (EAHIL), held in Rome in June 2014. EAHIL is an active professional association uniting and motivating librarians and information specialists working in medical and health science libraries in Europe. The association, which counts over 1000 members from about 30 European countries, encourages professional development, improves cooperation and enables exchanges of experience amongst its members. The EAHIL Conference, this year in its 14th edition, has an intense and stimulating scientific programme which analyses and discusses a variety of interesting topics such as technology, semantics, metrics, patients, economics and research. Plenary and parallel sessions, poster presentations, round tables and the sponsor sessions will contribute in stressing the importance of sharing information and building alliances between countries, institutions and professionals for a better cooperation in the profession and for the benefit of public health.

Key words: Libraries, Health information, Information science, Public health.

14a Conferenza della European Association for Health Information and Libraries (EAHIL). Divided we fall, united we inform. Building alliances for a new European cooperation. Roma, 11-13 giugno, 2014. Programma della conferenza & Riassunti. A cura di Federica Napolitani, Patrizia Mochi, Egiziana Colletta e Paola De Castro 2014, xi, 158 p. (in English)

Il presente volume raccoglie gli abstract delle comunicazioni orali e dei poster presentati alla 14a Conferenza della European Association for Health Information and Libraries (EAHIL), che si terrà a Roma dall’11 al 13 giugno 2014. EAHIL è una associazione di professionisti bibliotecari e specialisti dell’informazione che operano nei diversi settori della medicina e delle scienze della salute in Europa. L’associazione, che conta più di 1000 membri provenienti da oltre 30 paesi europei, ha tra i suoi obiettivi quello di promuovere lo sviluppo professionale, la cooperazione e gli scambi di esperienze e competenze tra i propri membri. La Conferenza dell’EAHIL, giunta alla sua quattordicesima edizione, si svolgerà secondo un programma scientifico intenso e stimolante che analizzerà numerosi temi quali lo sviluppo tecnologico, la semantica, la metrica, i pazienti, gli aspetti economici e la ricerca. La Conferenza, che si articola, come di consueto, in sessioni plenarie e parallele, in tavole rotonde e in numerose presentazioni di poster e di sponsor intende richiamare l’attenzione su quanto sia fondamentale oggi promuovere attivamente lo scambio di informazioni e costruire alleanze tra paesi, tra istituzioni e tra singoli professionisti per una cooperazione maggiormente efficace e per la promozione della salute pubblica.

Parole chiave: Biblioteche, Informazione sanitaria, Scienza dell’informazione, Salute pubblica. Graphics: Stefano Bonifazi Cite this document as:

Napolitani F, Mochi P, Colletta E, De Castro P (Ed.). 14th Conference of the European Association for Health Information and Libraries (EAHIL). Divided we fall, united we inform. Building alliances for a new European cooperation. Rome, Italy 11-13 June, 2014. Abstract Book. Roma: Istituto Superiore di Sanità; 2014.

La responsabilità dei dati scientifici e tecnici è dei singoli autori. © Istituto Superiore di Sanità 2014

viale Regina Elena, 299 – 00161 Roma

14th EAHIL Conference, 11-13 June 2014, Rome, Italy i

International Programme Committee Chair: Maurella Della Seta (Istituto Superiore di Sanità, Rome, Italy) Co-Chair: Franco Toni (Istituto Superiore di Sanità, Rome, Italy) Members Suzanne Bakker Central Cancer Library, Amsterdam,

The Netherlands Marina Ceccarini Istituto Superiore di Sanità, Rome, Italy Manuela Colombi Janssen-Cilag SpA, Milan, Italy Ghislaine Declève Université Catholique de Louvain, Louvain,

Belgium Ewa Dobrogowska-Schlebush Medical Library, Krakow, Poland Marshall Dozier EAHIL President University of Edinburgh, Edinburgh, United

Kingdom Patricia Flor Telemark University College, Porsgrunn,

Norway Francesca Gualtieri Rottapharm|Madaus, Monza, Italy Roberto Guarasci Università della Calabria, Cosenza, Italy Anna Kågedal University Library, Uppsala, Sweden Margarida Meira I.G.C. Fundacao Calouste Gulbenkian, Lisboa,

Portugal Peter Morgan Cambridge University, Cambridge, United

Kingdom Oliver Obst Munster University, Munster, Germany

Local Organising Committee Chair: Franco Toni (Istituto Superiore di Sanità, Rome, Italy) Co-Chair: Maurella Della Seta (Istituto Superiore di Sanità, Rome, Italy)

Members Rosaria Rosanna Cammarano*, Alessandra Ceccarini*, Paola De Castro*, Maria Alessandra Falcone*, Rosalia Ferrara*, Cristina Mancini*, Federica Napolitani*, Scilla Pizzarelli*, Elisabetta Poltronieri*, Paolo Roazzi*, Letizia Sampaolo*, Ivana Truccolo** * Istituto Superiore di Sanità, Rome, Italy ** Centro di Riferimento Oncologico, Aviano, Italy

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Communications, website and secretariat (Istituto Superiore di Sanità, Rome, Italy) Roberta Berardi, Stefano Bonifazi, Paola De Vito, Maria Pia Fattapposta, Luca Felici, Elisabetta Gambini, Italo Gentilini, Daniela Lami, Paola Moghelli, Antonietta Monaco, Vincenza Virgallita Welcome and information office (Istituto Superiore di Sanità, Rome, Italy) Sofia Enrica Amicarella, Giuse Ardita, Annarita Barbaro, Ornella Ferrari, Paola Ferrari, Donatella Gentili, Maria Salvatorina Graziani, Vito Lamorgese, Orlando Lostumbo, Antonella Mecchia, Paola Pecci, Vittorio Ponzani, Maria Letizia Putti, Ilaria Sorcini, Monica Zedda

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TABLE OF CONTENTS

Conference programme ................................................................... v

Plenary P1 .......................................................................................... 1

Parallel session A1 Technology ................................................................................. 5

Parallel session A2 Semantics/Metrics ..................................................................... 11

Round Table ...................................................................................... 19

Plenary P3 Projects ...................................................................................... 25

Parallel session B1 Patients ..................................................................................... 31

Parallel session B2 Economics ................................................................................. 37

Parallel session C1 Research ................................................................................... 43

Parallel session C2 Technology ................................................................................ 49

Parallel session D1 Research ................................................................................... 57

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Parallel session D2 Patients ..................................................................................... 65

Parallel session E1 Future of libraries ....................................................................... 73

Parallel session E2 Education/Cooperation .............................................................. 79

Plenary P4 Professional Development/Role of Librarians ............................ 85

Poster session .................................................................................. 89

Authors’ Index ................................................................................... 155

14th EAHIL Conference, 11-13 June 2014, Rome, Italy v

Conference Programme

Wednesday 11 June 2014

8.00 Registration 9.00 Welcome

Opening Ceremony 10.00 Plenary P1 Chairperson: Marshall Dozier

Key Note Speaker Maria Cassella The open paradigm and the knowledge society: recomposing

the fragmentation. The role of the librarians 11.00 Coffee 11.30 Parallel session A1 TECHNOLOGY Chairperson: Peter Morgan Journal Apps: a comparison of 4 Journal Apps specifically designed

for personalized reading (medical) scientific literature Guus van den Brekel Hints & tips - using a blog to promote library services and to provide training Tuulevi Ovaska Mendeley Institutional Edition: a Pharmaceutical Industry application as corporate literature repository Francesca Gualtieri Working SMARTer, not harder: using technology to build a successful remote library site Thomas Derek Halling, Catherine Pepper

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11.30 Parallel session A2 SEMANTICS/METRICS Chairperson: Maurella Della Seta

What is Altmetrics? The impact of Altmetrics on San Matteo researchers and on librarian's professional life Valeria Scotti, Annalisa De Silvestri, Anna Balduini, Alberto Perlini, Funda Topuz, Moreno Curti A bibliometric methodology for identifying interdisciplinary and collaborative publications Heather K. Moberly, Jessica R. Page, Gregory K. Youngen, Barbara J. Hamel From concepts to ontologies in metadata: a happy explication of a cognitive scenario for discoverability

Raisa Iivonen, Päivi Lipsanen, Ari Muhonen, Esko Siirala Finding scientific medical information through collaborative tagging systems: a task-oriented evaluation performed by healthcare professionals

Valérie Durieux 13.00 Lunch 14.00 Special Interest Group Meetings

14.00 Round Table Chairperson: Claudia Navarini

Research infrastructures and data papers as new forms of information resources

Carla Basili Ethics & scientific information for reflective society

Rosalia Azzaro From patient information to patient consent in France and Europe:

ethical and legal aspects, resources Guillemette Utard Wlerick 15.00 Poster Presentation (Plenary - P2) 16.00 Poster Exhibition 18.00 Welcome Reception (ISS)

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Thursday 12 June 2014

8.00 Registration 9.00 Plenary P3 PROJECTS Chairperson: Franco Toni

ELiQSR European Library Quality Standards for Health Janet Harrison, Marta de la Mano Working in the health information profession: perspectives, experiences and trends - The results of an EAHIL 25th Anniversary project

Barbara Sen, Robert Villa, Elizabeth Chapman 10.00 Sponsor session 11.00 Coffee 11.30 Parallel session B1 PATIENTS Chairperson: Manuela Colombi

Challenges and opportunities for patient information provision in the new landscape of National Health Services, England

Syed Adnan Adil, Noureddine Kenssous, Christine Halpin Bringing the library 2.0 closer to the people: storytelling in the theater, scientific lectures and nice food

Raoul Ciappelloni, Agnese Benedetti, Debora Nucci, Anna Julia Heymann, Luisa Fruttini Using bibliotherapy to promote consumer health information in a library setting

Natalia Tukhareli Helping patients get up from their knees

Ivana Truccolo, Chiara Cipolat Mis, Emanuela Ferrarin, Mauro Mazzocut, Nicolas Gruarin, Paolo De Paoli, CRO Patient Education & Empowerment Group

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11.30 Parallel session B2 ECONOMICS Chairperson: Oliver Obst

Market and strategy: the New German National Library of Medicine

(ZB MED) Ulrich Korwitz

Evidence-based decision making at the Medical library-a shorter way to better decisions?

Regina Küfner Lein, Marion Mühlburger Negotiation Techniques in a digital library

Laura Muñoz-Gonzalez, Veronica Juan-Quilis 13.00 Lunch 14.00 Parallel session C1 RESEARCH Chairperson: Ewa Dobrogowska-Schlebusch

How to get started with research data management training services for the academic library?

Maria Elisa Kuusniemi, Tiina Heino, Katri Larmo Improving reference service using EBM resources and methods

Alicia F. Gómez-Sánchez, Rebeca Isabel-Gómez Hunting zebra: retrieving rare disease clinical guidelines

Jan Manson, Michele Hilton Boon, Karen Ritchie for the RARE-Bestpractices Consortium KnowledgeShare: a web-based tool to connect people with evidence and to connect people with people

Ben J. Skinner 14.00 Parallel session C2 TECHNOLOGY Chairperson: Anna Kågedal

How deep is the sea: web intelligence for patient education

Mauro Mazzocut, Paolo Omero, Ivana Truccolo, Nicolas Gruarin, Roberto Ricci, Carlo Tasso

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The iPad is the successor of the printed textbook Oliver Obst

Technological evolution in health libraries, and the implications for librarians: the experience of the Virtual Health Sciences Library of the Balearic Islands (Bibliosalut)

Virgili Páez, Sílvia Sastre-Suárez, Elena Pastor-Ramon, Maria Costa-Marín

Removing duplicates in retrieval sets from electronic databases: comparing the efficiency and accuracy of the Bramer-method

with other methods and software packages Wichor M. Bramer, Leslie Holland, Jurgen Mollema, Todd Hannon,

Tanja Bekhuis 15.30 Visit National Library 17.00 Visit Galleria Borghese 20.00 Conference Dinner Friday 13 June 2014 8.00 Registration 9.00 Parallel session D1 RESEARCH Chairperson: Roberto Guarasci

Improving the reliability and value of medical research literature: a new role for librarians in promoting good research reporting practices

Shona Kirtley Keeping up to date with information retrieval research: Summarized Research in Information Retrieval for HTA (SuRe Info)

Patrice X. Chalon, Sari Ormstad, Jaana Isojärvim, Mick Arber, Sigrid Droste, Steven Duffy, Julie Glanville, Su Golder, David Kaunelis, Carol Lefebvre, Hannah Wood

New challenges, new skills for a digital library

Veronica Juan-Quilis, Laura Muñoz-Gonzalez

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9.00 Parallel session D2 PATIENTS Chairperson: Margarida Meira

Power to the patient: the development of a literature search filter for patients' perspectives and preferences

Lian Hielkema, Monique Wessels Evidence-based information for patients: teaching health care professionals to find, adapt and develop it

Irina Ibraghimova Assessment of the quality of online health resources in order to identify

the examples of best practices in creating portals for patients Ewa Dobrogowska-Schlebusch, Barbara Niedźwiedzka

Compassion fatigue: a content analysis of public postings in terms of information needs in healthcare contexts

Ina Fourie, Herman Fourie 10.30 Coffee 11.00 Parallel session E1 FUTURE OF LIBRARIES Chairperson: Ghislaine Declève

Two of your five-a-day: the role of the Librarian in Clinical Audit

Niamh Lucey, Anne Madden The medical information scene in 2020: being agile and beyond

Ingeborg van Dusseldorp, Eugenie Delvaux There's more to life than systematic reviews: the librarian's role in supporting review types to inform health policy

Louise Farragher, Martin Keane, Marie Sutton

Embedded librarians The missing link between researchers and their library?

Norbert Sunderbrink

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11.00 Parallel session E2 EDUCATION/COOPERATION Chairperson: Patricia Flor

Blending e-learning with face-to-face teaching: the best of both worlds or just twice the work?

Elena Prigoda-Springall A study of knowledge management among last year medical students: implications for the library

Marte Ødegaard Sharing to learn, learning to share: co-operation among health information professionals

Tiina Heino, Katri Larmo, Leena Lodenius, Tuulevi Ovaska Cooperation of libraries within the Leiden University Medical Teaching and Training Region

Johannes Belt 12.30 General Assembly 13.30 Lunch 14.30 Plenary P4 PROFESSIONAL DEVELOPMENT/ROLE OF LIBRARIANS Chairperson: Francesca Gualtieri

Personal strategies to meet the future challenges of supporting researchers and student learning a content analysis of the output from EAHIL 2013 Stockholm Workshop

David Herron, Sara Jansen, Anna Kågedal 15.00 Closing Ceremony & Awards

Chairperson: Marshall Dozier

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Plenary P1

Chairperson Marshall Dozier


The open paradigm and the knowledge society: recomposing the fragmentation. The role of the librarians

Maria Cassella Digital library specialist and consultant, Torino [email protected]

The open paradigm (Open Access, Open Source, Open Data, Open Learning, Open Knowledge) has accelerated the centrifugal trend in digital environment. Data, research data, enhanced publications, learning objects, video, social tools etc. are diffused in the net, fragmented by the interoperability stream and by a low level of effective cooperation among organizations. The keynote will highlight the role of the librarians in recomposing a meaningful knowledge framework for the open paradigm, from the creation to the evaluation of the digital open content.


Parallel session A1 TECHNOLOGY

Chairperson Peter Morgan


Journal Apps: a comparison of 4 Journal Apps specifically designed for personalized reading (medical) scientific literature

Guus van den Brekel University Medical Center Groningen, Central Medical Library, Groningen, The Netherlands [email protected]

Keeping up to date is one of the most difficult tasks in modern times for medical staff and librarians. The constant exponentially growth of information (on the Web) is causing many to dispare. But on the same Web comes up with new innovative ways of dealing with this task constantly. While email alerts are still the most dominant way for medical staff to keep up to date, the use of mobile devices and medical Apps is catching up fast. At the start of 2013 the Central Medical Library of the UMCG started a public trial and comparison period between 4 Journal Apps specifically designed for personalized reading of scientific literature. I will offer an extensive comparison for 3 medical Journal Apps (docwise, Read by QxMD & Docphin) plus BrowZine which covers all academic areas. Many practicalities for medical libraries to set up these Apps for their patrons and access to the collections will be shared. Supporting and facilitating medical professionals in education, patient-care and research is the main focus for medical and health librarians. We constantly have to attempt to make their workflow more efficient and easier. To be abled to advice patrons about efficient ways of keeping up to date, we have to know what tools are out there. In this presentation I will picture the wide range of possibilities of keeping up to date in relation to the rise of (medical) Apps.

mailto:[email protected]


Hints & tips – using a blog to promote library services and to provide training

Tuulevi Ovaska University of Eastern Finland Library, Kuopio University Hospital Medical Library, Kuopio, Finland [email protected]

Introduction. A blog is usually an informational and interactive website and blogging is a form of social media. When the University of Eastern Finland (UEF) Library last updated the website in the process subject specific sites were created, and the possibility to start subject specific blogs, wikis, chats etc. was opened. Aim. The author, being responsible for the information specialist tasks relating to ergonomics, dentistry, public health, exercise medicine and medicine in UEF library as well as all the information specialist tasks in the Kuopio University Hospital (KUH), decided to start a blog to provide tips about information retrieval on these subjects and also to promote and market library services. Methods. In addition to describing the categories, contents and topics of the blog the paper provides and analyses the statistics of usage. The meaning and relevance of library blogging, especially in other languages, in this case Finnish, are also discussed. Discussion and conclusions. A blog can be an alternative and supplementary tool for sharing information, training, disseminating news and marketing.


Mendeley Institutional Edition: a Pharmaceutical Industry application as a corporate literature repository

Francesca Gualtieri Rottapharm SpA, Monza, Italy [email protected]

Bibliographic management tools have been widely used by researchers to store, organize and manage references from journals articles and other scientific publications. In today’s environment, there is a proliferation of web-based softwares. Mendeley offers a new twist on traditional reference management programs. Indeed, this tool can be compared with innovations in other fields, e.g. the online radio service last.fm, or iTunes for music files: similarly to the latter, it treats scientific papers pdf in an innovative and user-friendly way. Mendeley is a desktop and web program for managing and sharing research papers, retrieving research data and collaborating online. The two components of the Mendeley system allow researchers to organize their personal library on a local machine (Mendeley Desktop – MD), and to store the contents in the cloud (Mendeley Web – MW). The user can access MD independently of MW. MD extracts meta-data from imported documents and builds an index of the text contained within such documents. Users can quickly search across their entire library and easily build bibliographical references. The built-in document viewer includes text highlighting, sticky notes, and other annotation tools. Conversely, MW simply allows users to upload their documents in the web, access them from there. MD and MW can be synchronised. Taking advantage of these features, users can collaborate with others (via group) in reviewing and editing documents. The aim of this presentation is to show how to create groups, share documents, collaborate in R&D teams and explore the Mendeley Institutional Edition (MIE) as a literature repository in the Corporate Library of a Pharmaceutical Company.



Working SMARTer, not harder: using technology to build a successful remote library site

Thomas Derek Halling (1), Catherine Pepper (2) (1) Medical Sciences Library, Texas A&M University, College Station, Texas, USA [email protected] (2) Medical Sciences Library, Texas A&M University, Austin, Texas, USA

Purpose and setting. The Medical Sciences Library (MSL) at Texas A&M University supports several physical locations at distant sites. These locations have a limited budget, but in many ways require the same resources and services that are available at the main library. This has led to an increased focus on effective distance communication, resource access, and service delivery. Increasing levels of technological devices and expertise make it possible to identify effective methods of succeeding in each of these areas in both academic and clinical settings. Objective. To test and evaluate the effectiveness of smart device technologies as novel methods for circulation and printing processes at a distance campus of an academic medical library with challenges of a limited budget and unstaffed hours. Additionally, to implement technologies designed to provide consistent services and provide staff with a versatile set of tools. Methods/Process. Circulation of a curriculum-based clinical print collection and printing of class materials are two highly-used services at an academic medical library embedded at a distant campus. The library space is available through badged access 24/7, but staffing is only funded for 40 hours/week. Due to significant periods of non-staffed hours, a check-out process was developed that takes advantage of the smart technologies prevalent throughout the growing population. A camera application is used to capture both the resource and the user photo ID. The resulting image is sent to library staff, and a record manually entered to the circulation system. Additionally, through the use of a printer “hot spot,” the same smart devices were used to deliver print jobs, and pay for charges via PayPal. Patron interactions are captured through manual data input, and circulation-based applications are accessed by authentication through a virtual private network and using a virtual server. Outcomes/Conclusions. This paper will highlight the results of these technological implementations and report on the effectiveness of all efforts for effective delivery of library resources and service on a limited budget.



Parallel session A2 Semantics/Metrics

Chairperson Maurella Della Seta


What is Altmetrics? The impact of Altmetrics on San Matteo researchers and on librarian’s professional life

Valeria Scotti (1), Annalisa De Silvestri (2), Anna Balduini (1), Alberto Perlini (1), Funda Topuz (1), Moreno Curti (1)

(1) Center for Scientific Documentation, Fondazione IRCCS Policlinico San Matteo, Pavia, Italy

[email protected] (2) Service of Biometry & Statistics Unit, Fondazione IRCCS Policlinico San

Matteo, Pavia, Italy

Introduction. In the last decade there has been a rapid evolution in the world of bibliometrics indicators and networks. The traditional metrics have shown their limits in the evaluation of research for many purposes including funding activities. New indicators are emerging to analyze scientific research activity based on Web 2.0 for measuring the impact of individual scientists' works. Recently, Altmetrics has also gained growing interest in the scientific community, with many scientists more concerned about research impact on society; researchers are very keen on how social media talk about their research, particularly at the article level. Aims. Our purposes are firstly to understand these new metrics, acknowledge how they work and assess their validity on research impact. Then we aim to explore some of our researchers on two different Altmetrics Tools: Impact Story & Altmetrics.com and compare the Almetrics scores with citations received by their article in Web of Science (WoS). Methods. We first sought the main platforms and indicators for this type of measurement named Alternative Metrics or Altmetrics. We explored the functionality of tools such as Impact Story and Altmetric.org. We calculated the Cohen Kappa concordance between Impact Story and WoS identifying articles with greater impact. Furthermore we correlated the number of citation in WoS and number of Mendeley readers or Pubmed citation. Discussion. These new metrics resulted to be “user friendly” and quite helpful for librarians and researchers providing a valid measure of impact on society. Preliminary results showed good Kappa higher than 0.6 between Impact Story and WoS identifying articles with greater impact and significant correlation values were observed in a subset of researchers at San Matteo between the number of citation in WoS and number of Mendeley readers or Pubmed citation. Conclusion. Even the new metrics are constantly changing and librarians play a crucial role in guiding researchers and decision makers in their use but also in contributing towards product development. In this new metrics, there are some limits but mostly potential power. From this first results, Altmetrics is useful and may well be considered reliable; furthermore could actually represent an interesting



relevant complement to citations providing researchers and institutes with a framework within which they can evaluate not only their academic influence but also their social impact. Together with traditional metrics, they could also be a useful tool in guiding decision makers in funding public research.


A bibliometric methodology for identifying interdisciplinary and collaborative publications

Heather K. Moberly (1), Jessica R. Page (2), Gregory K. Youngen (3), Barbara J. Hamel (4) (1) Texas A&M University, College Station, Texas, USA [email protected] (2) Ohio State University, Columbus, Ohio, USA [email protected] (3) Indiana State University, Bloomington, Indiana, USA [email protected] (4) University of Wisconsin, Madison, Wisconsin, USA [email protected]

This paper describes developing a bibliometric methodology to define an ancillary journal list as a complement to a core journal list. Although it can be applied to any discipline with a core journal literature, our case study data set is research published by faculty at the 28 American Veterinary Medical Association accredited veterinary schools in the United States. Eleven years of citation data were collected from Thompson Reuters’ Web of Knowledge and exported to Microsoft Excel. Data in several fields were normalized, pivot tables were created, and data were uploaded into the Many Eyes visualization tool. The result sets were compared to the current core veterinary serials list. The images from both the pivot tables and Many Eyes showed clear trends in the data. Overall 56% of articles were published in the core veterinary journals. Bradford’s Law and a Bradford-Zipf plot show an enormous breadth of veterinary publications.


From concepts to ontologies in metadata: a happy explication of a cognitive scenario for discoverability

Raisa Iivonen, Päivi Lipsanen, Ari Muhonen, Esko Siirala Viikki Campus Library, University of Helsinki, Finland and Jyväskylä University Library, Finland [email protected]

Summary. The start of a research project is the key point of the basic process of discovery and is one of the most important parts to study the information seeking behavior of a scientist. Metadata embedded with ontologies will be Santa’s best help in the future, assuming the ground work is thoroughly done by scientists themselves and professionals of metadata. In this presentation, we will explicate a scenario how to support a collaborative method in order to create a reliable bank of terminology where the concepts are defined, validated and accepted by the scientific community. Scientific knowledge is available only if it is discovered. Academic libraries bring happiness by producing discoverability. Aim. In computer science and information science, ontology formally represents knowledge as a set of concepts within a domain, using a shared vocabulary to denote the types, properties and interrelationships of those concepts. Ontologies are the structural frameworks for organizing information and are used in artificial intelligence, the Semantic Web, biomedical informatics, library science, and information architecture as a form of knowledge representation about the world or some part of it. The Finnish national metadata repository ARTO is an example of how Finnish General Upper Ontology YSO will be embedded in the metadata. The project ARTIVA is developing a web-based cataloging interface for “dummies”: easy to use, smart functionalities, using linked data, metadata elements for different needs, e.g. publication and discovery data, for indexing practice. Relevant information. The core of the work is to translate and create scientific terms into Finnish – a language with no structural relations to Indo-European languages such as English, German or French. A consistent, systematic and relatively long tradition of translating e.g. medical entries into Finnish is in the Finnish Medical Society Duodecim. Its publications anchor the new medical terms into the Finnish language. The outcome of this work is e.g. the database FinMeSH, which is used through the interface Termix, created and maintained by the medical library Terkko. When the semantical part of the work is reliably done, then it is possible to create user-friendly applications using ontology as means. A case study will be presented: a reasonable way to create a Finnish veterinary terminology is needed. Crowd sourcing and wiki are means to solve the acute problem of translating e.g. MeSH terms – those which are veterinary medical concepts – into Finnish.



Finding scientific medical information through collaborative tagging systems: a task-oriented evaluation performed by healthcare professionals

Valérie Durieux Université Libre de Bruxelles, Brussels, Belgium [email protected]

Introduction. Finding relevant scientific information is crucial for healthcare professionals. But with the exponential number of resources published on the Internet, the task has become a lot more difficult and time-consuming. Collaborative tagging systems, such as CiteULike, allow Web users to store and organize their bookmarks of online content by assigning them metadata in the form of tags (natural language terms). This type of systems could help physicians to find medical scientific information. Aim. The study investigated the extent to which tags assigned in the collaborative tagging system CiteULike contribute to the finding of relevant medical scientific papers by healthcare professionals. Methods. A task-oriented evaluation using a “simulated information needs” approach was designed and conducted in a laboratory environment with a sample of 22 physicians from various specialisations at different career levels. Their information behaviour in PubMed/Medline (the most widely used bibliographic database in the medical field) and CiteULike was observed and compared. The evaluation was followed by a semi-structured interview mostly used as a debriefing session. Results. Relevant tags are assigned in CiteULike but their number is too low to efficiently contribute to the searching process. Nevertheless the study also showed that CiteULike helped physicians to find relevant papers thanks to its social bookmarking features. In addition to measuring the efficiency of collaborative tagging systems for healthcare professionals in their information seeking process, the study also presents various observations and insights into the information behaviour of physicians. It showed among other things the influence of online information seeking through search engines (e.g. Google) on their information behaviour. This phenomenon is called the “internetalisation” of the information seeking process.


Round Table Chairperson

Claudia Navarini


Research infrastructures and data papers as new forms of information resources

Carla Basili Consiglio Nazionale delle Ricerche, Ceris Institute, Rome, Italy [email protected]

Scientific research has gradually gained importance in economy and society, along with a transformation of both the norms of conduct and the institutional configurations for the production and dissemination of new knowledge. The clear specificity of the social impact of medical sciences is directly reflected in medical information which in turn constitutes a specific sector within the broader context of scientific information. Despite this characterisation, however, the area of biomedical information has not remained alien to the transformations of the scientific system, and in particular to the strategic and economic solicitations from the European Commission. Against this background, the paper, just moving from an overview of the EC guidelines concerning scientific information, continues mapping these recommendations and the situation in biomedical information, in particular as regards to the status and prospects of research infrastructures and data papers in the life sciences. The paper is aimed at describing how the deep transformations occurred and ongoing in the scientific system have affected some basic pillars in scientific information policies, namely for knowledge sharing and transfer. A specific focus will be on data papers and research infrastructures as new kinds of information resources to be taken into account in medical information sciences.



Ethics & scientific information for reflective society

Rosalia Azzaro Consiglio Nazionale delle Ricerche, Ceris Institute, Rome, Italy [email protected]

The obligation to account to authorities and citizens for the correct use of resources and the results obtained in research has become mutual not only between the spheres of science and politics, but also with regards to civil society. The task of public communication is one of the challenges of bioethics. From 1991 to 2003, the CNR Commission on Bioethics fulfilled an important role, guiding a debate between the scientific, ethical and social spheres. However by the close of its mandate a conviction emerged that the elaboration of complex ethical arguments about scientific issues was practically useless, if in the end we couldn’t transmit the right message to the world. Numerous initiatives for public understanding of science are promoted by various institutions however these fail to include innovative and successful approaches regarding ethical aspects. A first step is that they offer potentially useful occasions. In common opinion and the theories of moral law, the light of reason is the root of all that is just, and of moral good and wrong. The exercise of free will thus becomes a noble virtue, provided we act on the basis of knowledge and according to the light of reason. Indeed freedom is intrinsic and essential to all moral action. On the other hand the concept of absolute relativism, which is gaining force daily, is the enemy of true scientific information and activity. It is the doctrine that there is no certain truth in religion, in morals, or even in science, and that all must be tolerated because in fact all is a matter of opinion. Today even certain state institutions and policies, rather than acting as moral authorities and teachers, would substitute for this a universal and thoroughly secular education, accommodating the individual interests of all. It can thus be no surprise to us that many ordinary people in Europe refuse this kind of “ethics” and “education”. They are first of all defending their freedom: the freedom of moral action, based on the on the light of universal reason. “Horizon 2020” reflects the policy priorities of the Europe 2020 strategy and addresses major concerns shared by the citizens of Europe. Point 6, Europe in a changing world – Inclusive, innovative and reflective societies, calls for the engagement of citizens in a common European approach to modelling society, supported by the interdisciplinary approaches of the social sciences and humanities. But is a common European approach even possible without first searching for common values, without firm ethics in information and communication? Indeed developing public understanding of ethics seems to be a good way for European societies to become more reflective and so lead to a sense of personal security and freedom. In this context, how can medical libraries contribute to sharing useful information about the ethics and knowledge of science with society, in good and constructive ways?



From patient information to patient consent in France and Europe: ethical and legal aspects, resources

Guillemette Utard Wlerick BIU Sante Library, Paris Descartes University, Paris, France [email protected]

Introduction. In recent years, medical information has been at the heart of major changes in the physician-patient relationship, which is an integral part of the coordinated healthcare system. Medical information is not restricted to health professionals but must be available to patients and their care providers. It is now accepted that patients should be the ultimate decision makers in the choices that affect or result from their own health. Physicians have a crucial and extremely regulated role to allow them to make those informed decisions. Aim. In France, patient information is mandatory by law. What are the consequences for healthcare and biomedical librarian? The following questions will be discussed: − when and where does patient information take place within the coordinated

healthcare system? What can be the consequences of insufficient information? May patients refuse to be informed?

− who delivers medical information to patients? − when do health professionals and patients seek the help of biomedical librarians

to find information? − where and how to find patient information leaflets, and more generally, reliable

information on pathologies and therapeutic options? − where to find reliable information about the costs of medical procedures? In

which regulatory context? − what are the specific regulations concerning clinical trials, inability to consent

(children, end of life, critical care…) and advance directives? An emphasis will be made on aspects of patient information directly involving the biomedical librarians: − when healthcare professionals search literature in order to deliver accurate

clinical information to their patients, the main medical, ethical, legal and philosophical issues should be known to the librarians to optimize the accuracy of the search;

− the fact that patients and their caregivers increasingly seek relevant information directly from biomedical librarians also raises a number of sensitive issues and necessitates a different approach by librarians.

Conclusion. In France, the information of patients is required by law. The consequences for health practitioners, the patients and for the biomedical information community may differ from countries with a different regulatory approach.



Plenary P3 Projects

Chairperson Franco Toni


ELiQSR European Library Quality Standards for Health

Janet Harrison (1), Marta de la Mano (2) (1) Department of Information Science, Loughborough University, United Kingdom [email protected] (2) Departamento de Biblioteconomía y Documentación, University of Salamanca,

Spain

Background. The presentation will report the findings from the European Library Quality Standards for Health project. The project proposal won one of the two 25th EAHIL Anniversary research grant awarded in 2012. There is not a recognised and established European quality standards framework for Health libraries. Worldwide, some quality standards have been developed, the majority of which are in Anglo Saxon speaking countries e.g. in England in the USA, and are similar in content. Therefore this project seeks to explore the situation surrounding Health Library quality standards in Europe. Aim of project. To develop the framework of a Model to inform Health Library quality standards in Europe. To adhere to the objectives of EAHIL by the promotion, sharing and implementation of good practice in health libraries. Objectives of project. The objectives of this project are: − to undertake a critical literature review of Health Library standards worldwide; − to scope the existing Health Library standards worldwide; − to gain views and opinions of Health Librarians in Europe regarding: Health

Library quality standards; − to develop a set of standards for European Health libraries quality assessment; − to review Health Library accreditation processes across Europe. Methodology. A mixed methods approach has been used allowing the researchers to use both quantitative and qualitative methods. The major benefit of using mixed methods is the opportunity to gather rich seams of data and triangulate these data. Resulting findings are therefore guaranteed to be of a robust quality and empirically sound. To gather the stakeholder view of existing Health Library Standards across Europe a survey was developed. The survey was subsequently piloted with key stakeholders prior to distribution, several questions were ratified as a result of the pilot. The survey was distributed via the EAHIL membership list during 2013. Findings. The scope of the literature review revealed Health Library standards existed in Anglo Saxon countries, but not in the rest of Europe. Results from the survey show wide interest in Library standards from a variety of European countries, with respondents from Turkey, Poland, England, Spain, Germany, France, Slovinia, Portugal, Scotland and Ireland. The researchers invited several leading European Librarians to comment and advise on the results of the survey, as “Critical Friends”.


The resulting findings and opinions from the survey, “Critical Friends” and the literature will form the basis of a model for a European Library Quality Standards for Health. Outcomes. The outcomes of the project will be: − the development of a Model for European Health Library Quality Standards; − a roadmap for use by Health Librarians for both practical implementation and to

inform the accreditation process.


Working in the health information profession: perspectives, experiences and trends – The results of an EAHIL funded 25th anniversary project

Barbara Sen, Robert Villa, Elizabeth Chapman Information School, University of Sheffield, Sheffield, UK [email protected] [email protected] [email protected]

Aim. To record the stories and experiences of health information professionals practicing across Europe Methods. Interviews, surveys, and focus groups were used to gather data in order to understand the diversity and range of roles in the health information sector, and the critical nature of those roles in supporting effective healthcare. We conducted focus groups and interviews in Sheffield, York, and Stockholm. The focus groups and interviews informed the survey design. Discussion. The survey produced 513 fully completed responses from 32 countries across Europe and beyond. A further 146 partially completed responses were received. Preliminary analysis shows a predominantly female workforce, 429 females and 77 males, with 5 people not disclosing their gender. There is a spread of ages within the profession, not an aging workforce. Most respondents work in state healthcare (273), or in education (186), with 30 working in the charity and voluntary sector, 21 in industry, 17 in private healthcare, and 55 in other organisations. The respondents have a wide range of job titles many identified as “library”, “information” or “knowledge” roles. The main user groups identified were students, doctors, researchers, nurses and allied health professionals, with very few providing services to patients or the public. The respondents are engaged in a wide range of roles. Many are predominantly traditional such as literature searching, teaching, user support, collection development. Top challenges are reducing budgets, problems with time and workload, and too many priorities. People identified key skills they needed in their jobs. They acquired these skills mainly in the workplace, at library school, and from life experience. Only 28% have acquired their skills via online learning. Technical skills are high on the list of development needs. Many respondents felt they made an impact for example in times of war supplying frontline and hospital staff with literature on war injuries. Providing quality literature and evidence was identified as making a clear contribution either directly or indirectly. Conclusions. The changing healthcare context provides challenges. Our roles have developed, encompassing these challenges, often embracing technologies and pushing the boundaries of traditional library roles. This study enhances our understanding of the complexity of the domain, how it is evolving and impacting on healthcare.




Parallel session B1 Patients

Chairperson Manuela Colombi


Challenges and opportunities for patient information provision in the new landscape of National Health Services, England

Syed Adnan Adil (1), Noureddine Kenssous (2), Christine Halpin (2) (1) Knowledge, Research and Library Services, Central London Community

Healthcare NHS Trust, London, United Kingdom [email protected] (2) Central London Community Healthcare NHS Trust, London, United Kingdom

Recent large scale reorganization of the National Health Services (NHS) in the England has established such a context in which care and support services have to demonstrate more productive results with squeezing resources. Health Inform (a patient information service for the staff and the public) within Central London Community Healthcare NHS Trust has no exception in this unprecedented scenario. This case study will elaborate the challenges and opportunities for a patient information service whose parent organization offers services to almost one million people in four Boroughs of the London. This study will highlight how review of strategic objectives and direction, analysis of operational capacity and ability to engage with stakeholders can help to survive change. Lessons learned from this case study can offer insights to other health information service managers who are facing similar challenges. This case study aims to enlist and share the tips and tricks of managing change in the healthcare information services. Although the strategies opted in this case are context specific but still it highlights how important it is for the service managers to be aware of national, regional and local scenarios. Ability to demonstrate the impact of health information (on both public and healthcare staff) can convince budget holders and decision makers. This study will also reflect why it is important to be involved in “professional groups and forums”. Medical library managers can benefit from the outcomes of this study on area like 'engagement strategies', how to motivate staff during the times of change, importance of CPD and effect of communication with right people at right time. This study will also highlight how to apply 'improvement methods' in a service without compromising its routine service delivery.



Bringing the Library 2.0 closer to the people: storytelling in the theater, scientific lectures and nice food

Raoul Ciappelloni, Agnese Benedetti, Debora Nucci, Anna Julia Heymann, Luisa Fruttini Library, Istituto Zooprofilattico Sperimentale, Perugia, Italy [email protected]

The paper introduces and discusses the efficacy of a Library 2.0, for the dissemination of scientific information about food, through readings performed at the theatre. This way it is actually possible to talk about scientific literature in front of a large number of people, in unconventional setting, meantime bringing new life to old and beautiful theatres in the Italian countryside. A collaborative writing group, which includes herdmen and butchers as well as librarians, writers and food scientists, made the script. The text was read and acted by the same professionals, in the stage. Real and “literary” food world, from the field to the kitchen, was so communicated to participants. They utilised mobile devices, such as cell phones and smartphones, to send sms to the storytellers at the stage, in order to ask questions or expound their opinions. Finally, the public have had the opportunity to participate to a “collective sensory analysis test” (on meat or cheese), right in the theatre. So that way, writers, scientists and small food makers, have been economically sustained, thank to library readings.


Using bibliotherapy to promote consumer health information in a library setting

Natalia Tukhareli Librarian, Health Sciences Library, Rouge Valley Health System, Toronto, Ontario, Canada [email protected]

In the light of increased focus on consumer health information and patient education, libraries are looking for innovative ways of delivering health information to patients and the public. The paper will address bibliotherapy as an effective method of health education and promotion. It will identify different ways of how self-help and creative bibliotherapy can be used to provide consumers with high quality and accessible health information. After a brief historical overview of bibliotherapy in a library setting, the paper will provide a detailed description of the most recent bibliotherapy-based projects successfully implemented in medical and public libraries to promote health and well-being to patients and the general public. The paper will also provide an overview of the development and implementation of the bibliotherapy program for children and women living with HIV/AIDS that the author has conducted at Nkosi’s Haven Village, Johannesburg, South Africa. The findings of the study show that bibliotherapy could be used as an effective tool in health promotion and education, particularly in a situation where a strong stigma is associated with a medical condition or disorder.



Helping patients get up from their knees...

Ivana Truccolo (1), Chiara Cipolat Mis (1), Emanuela Ferrarin (1,2), Mauro Mazzocut (1), Nicolas Gruarin (1), Paolo De Paoli (3), CRO Patient Education & Empowerment Group (1) Scientific and Patients Library, IRCCS Centro di Riferimento Oncologico, CRO,

National Cancer Institute, Aviano (PN), Italy [email protected] (2) CIFAV ONLUS, CRO Pharmacy, Aviano (PN), Italy (3) CRO Scientific Director, Aviano (PN), Italy

Introduction. While reporting on key topics of the recent first European Conference on Patient Empowerment, the 5th May 2012 Lancet Editorial 'Patient empowerment. Who empowers whom?' quoted a sentence by Robert Johnstone of the International Alliance of Patients Organization: Doctors should get down from their pedestals, but patients must get up from their knees.Yet he adds: Empowerment is not about trying to wrest power from the doctors. Instead, it is essentially about helping people lead more proactive and fulfilling lives. This concept of empowerment is the aim of the Centro di Riferimento Oncologico of Aviano (CRO)'s Patient Education & Empowerment Group, a multiprofessional, transdisciplinary, non-hierarchical Work Team including patients, their representatives, and volunteers along with members of clinical, research and technical staff. The librarian is the coordinator of this Team, which sees the library as the pivot of patients' involvement. Aim. The first goal is to expose the skills that a librarian can use in order to play this role. The second one is to demonstrate the methodology and he preliminary results of the Patient Education Process mainly at our Institute but also some indicators from other Italian Cancer Institutes. Methods. Particular attention is paid to the Patient Education Process “technology” through the planning and realization, as well as from feedback obtained from patients involved in the different activities such as classes about health topics, writing for and with patients, involving them in the re-organization of some facilities etc. The feedback is then employed to improve activities, modify health care priorities and plan new patient centered activities Discussion. Aims, activities, strengths and weaknesses of this work team are reported and discussed. Conclusions. A biomedical librarian expert in handling with patients information & communication needs can help doctors in “learning” from their patients. A biomedical librarian's expertise in the management of scientific literature (e.g. its ability to collaborate with drug experts) can support patients in strengthening their priorities, ease their information & communication needs, but also help them get more cautious on certain controversial and deceptive issues. The librarian's expertise in quality evaluation of the Internet information is highly required as well as his/her attitude to effectively collaborate with other healthcare workers.



Parallel session B2 Economics Chairperson Oliver Obst


Market and strategy: the New German National Library of Medicine (ZB MED)

Ulrich Korwitz German National Library of Medicine, Koeln, Germany [email protected]

As a result of the latest external evaluation of ZB MED in 2011 a comprehensive market study and a market oriented new strategy were strongly recommended. Additionally, a focus on application-oriented research was requested. ZB MED took these recommendations very seriously and started a complete strategy process. A call for tenders for the market study including GAP-analysis was submitted and a company contracted. The results of the market study (2.300 questionnaires filled out) on the information habits and the needs of the users are now available. The GAP-analysis and in-depth interviews showed what products should be offered continuously and what new products would be useful for the target groups. As a result the new ZB MED with a professional product and innovation mangement is now getting into shape. Market studies are basic prerequisites for the development of a professional library strategy. The design of such a study is a critical point. It will be shown how such a study with a GAP-analysis should be set up so that strategic consequences can be drawn easily for the future development of a library.



Evidence-based decision making at the Medical library – a shorter way to better decisions?

Regina Küfner Lein, Marion Mühlburger University of Bergen Library, Medical and Dental Library, Bergen, Norway [email protected]

The transition from print to electronic literature has resulted in great physical changes in our library. Unnecessary shelves had to be removed and we had to decide how to use the remaining open space. We used evidence-based practice as a method for better decision making, and we wanted to find out if working evidence-based is possible within a short time frame. In the presentation we touch into the different steps during the project: from finding literature, to user involvement and our own experience. We will also describe the implementation process where we had to overcome some new problems (financial and organizational issues) and show pictures of the results. Conclusion. The gathering of information on the subject was easier and faster than expected. Even if the implementation process was more demanding, the results of the project were satisfying. Working evidence-based contributed positively to the decision making process. Time spent with the project fit into our everyday working situation.



Negotiation techniques in a digital library

Laura Muñoz-Gonzalez, Veronica Juan-Quilis Andalusian eHealth Library, Sevilla, Spain [email protected]

Introduction. The Andalusian eHealth Library (Biblioteca Virtual del Sistema Sanitario Público de Andalucía, BV-SSPA), created in June 2006 as a strategic action of the Andalusian Government with the aim of becoming the engine for the knowledge management of the health system in the region, has meant a radical change of mind in the way libraries can be managed: − as a regional library, it coordinates the 41 document library centers of the

hospital network; − it is an organization in charge of its own budget and managing; − it is the only intermediary for contracting health scientific resources. Objectives. Andalusia is the widest region of Spain, with more than 8 million inhabitants, 105,000 health professionals for 41 hospitals, 1,500 Primary Healthcare Centers, and 28 centers for research, training and managing purposes, and this Virtual Library was created to cover all these Health Services. Before the creation of the BV-SSPA every center had its own budget and management decisions concerning scientific resources. With the setting up of the BV-SSPA, both management and budget were centralized in order to rationalize the subscriptions into the Andalusian Health System and democratizing the health professional access to qualify scientific information, regardless of the professional workplace. The main objective to be aimed by this work is to demonstrate that the central purchasing for electronic scientific resources implies a change in negotiation techniques with suppliers, and that it is necessary to establish a new license model for digital resources in regional digital libraries. Methods. As the BV-SSPA was named the only intermediary for contracting electronics resources, hospitals were not allowed to subscribe any resources. The collection was rationalized according to user studies, and a wide analysis to avoid the duplicated titles in the Health System. Consequently, not only big hospitals had access to the scientific information but also the professionals who worked for Primary Care and other Centers. Negotiations techniques changed as the BV-SSPA is stronger than individual hospitals and it moved to a digital scenario. Nowadays, the Andalusian eHealth Library deals directly with editors and negotiates not only the cost of the access to electronic resources but also the conditions in which these resources are accessible to the users. We analyze both the prices of the subscriptions and the clauses of the licenses to be checked: − number of titles and price; − authorized users; − embargo clauses; − access model (remote, site, online…);



− authorized uses: interlibrary loan, training, institutional repositories; − procedure for title changes; − payment, due date and interests; − applicable laws; − perpetual access; − backfiles; − etc. Results. − Before the BV-SSPA, 5,267 titles were subscribed by hospitals and 2,967

of them were subscribed repeatedly (by two or more hospitals), this represented more than 55%. The rationalization of the subscription investment has been reached, as the BV- SSPA offers access to 1,697 subscribed titles for all the professionals of the Health System.

− The negotiation techniques and license models have changed accordingly, obtaining lower prices and additional advantages for our users. In 2012, it reached a saving of 14% from the original budget, which allowed the continuity of the BV-SSPA without decreasing the quality offered to their users.

− The editors are starting to accept the change of their license clauses according to the new digital centralized scenario.

Conclusions. The BV-SSPA has become the Central Unit for purchasing offering librarian services, and a reference to users in terms of knowledge management. This fact made her strong enough to deal with suppliers and reach more advantageous price conditions and access to its users. From its position it is easier to negotiate good prices and use conditions for the Andalusian Health System. The conditions of use for the electronic scientific resources must be carefully studied, and a change of licensing models adapted to regional digital libraries is necessary offering safe and advantageous use of the products.


Parallel session C1 Research Chairperson

Ewa Dobrogowska-Schlebusch


How to get started with research data management training services for the academic library?

Mari Elisa Kuusniemi, Tiina Heino, Katri Larmo Helsinki University Library, Helsinki, Finland [email protected]

Introduction. In 2012, Helsinki University Library began a one-year staff training to enhance research data expertise. The objective was to learn data management practices of the researchers. After training we started to plan RDM training and guidance services. Case. The staff training was implemented as workshops, seminars as well as learning and development assignments between meetings. By teaching each other, the participants got to know national and international research data repositories of various fields of science. Researchers visited the workshops and provided examples of real-world data practices, for example metadata and handling of personal data in register-based studies. Repository service providers presented their services. The trainees carried out an assessment of the needs of RDM services. After the staff training project, we started to plan RDM training and guidance services for researchers, not all at once, but in small doses. In spring of 2014, we organize three workshops to plan RDM training for newly organized postgraduate schools in the University of Helsinki. The training plan will be implemented during the same spring, when the post graduate schools start for the first time. The training is part of information literacy education, and its contents will be the very basics about RDM. The training will be given in collaboration with the university’s IT unit. Our aim is to get PhD-students to think RDM as a tool for successful research and urge them to find out more. This is our first step to develop research data management (RDM) training services and we hope that it will create demand for more. Conclusions. Many libraries in Europe are getting started with research data management (RDM). We have successfully trained our staff about the RDM practices of the researchers. Now we have a new project to plan for RDM training and guidance services. We pilot these services in the medical campus, with medical researchers. This case report tells us one true story how library can get started with RDM. Step by step. We are willing to share our experiences about supporting research data management and looking forward to fruitful information exchange among our international colleagues. Hopefully others can benefit from what we have learned and implement some practices also in their organizations.


Improving reference service using EBM resources and methods

Alicia F. Gómez-Sánchez (1), Rebeca Isabel-Gómez (2) (1) Fundación Centro Nacional de Investigaciones Cardiovasculares, CNIC,

Madrid, Spain [email protected] (2) Agencia de Evaluación de Tecnologías Sanitarias de Andalucía, AETSA,

Sevilla, Spain [email protected]

Introduction. EBM provides accurate methods to identify, summarize and analyze information. EBM includes methodologies and mechanisms for assessing the quality of studies accepted and endorsed by the scientific community. These resources and methodologies must be known by clinical librarians who carry out literature searches and answer queries that arise in a Reference Service (RS). In parallel, new roles are integrating medical librarians into the research and decision-making workflow in health institutions. In this manner, librarians should anticipate users’ needs. Aim. To bring the main widely protocols and methodological proposals used by the scientific community in EBM to all kind of medical and clinical librarians and to provide support for medical librarians in the choice of both, strategies and clinical and biomedical specific informational resources. Methods. We analyzed the main proposals for selecting information resources and their adequacy for medical libraries, focusing on the COSI protocol. Results. The RS of a medical library has to stay ahead of the needs of clinicians and managers in order to assist them in their questions and decision making. COSI adaptation project was developed as part of Workpackage 5 of the EUnetHTA to help Health Technologies Assessment agencies in their work. COSI helps locate information systematically and select pertinent sources based on CORE, Standard and Ideal searches, fitting searches to target information and available time and resources. Whether RS apply this kind of methods into their daily routines, quality of service would improve. Conclusions. COSI is a valuable tool for assuring exhaustiveness in systematic information retrieval. Librarians should be involved from the start in formulating research questions (PICO) adapting searches to the study and resources available. The application of EBM resources can be of great help, providing researchers, clinicians and health managers with filtered, quality and accurate information. Although clinical librarians need not to be specialists in EBM, use of these models will maximize the quality of their work for their users.



Hunting zebra: retrieving rare disease clinical guidelines

Jan Manson, Michele Hilton Boon, Karen Ritchie, for The RARE-Bestpractices Consortium Healthcare Improvement Scotland, Glasgow, United Kingdom [email protected]

Background. A rare disease is defined as a condition affecting fewer than 5 in 10,000 people in Europe. There are 6,000-8,000 such conditions recognised in Europe, equating to 30 million people living with a rare disease. These conditions are often life threatening or severely life limiting with optimal medical management impaired by a lack of information and clinical expertise. RARE-Bestpractices (http://www.rarebestpractices.eu/) is a European Union 7th Framework Programme funded project aiming to create a platform for sharing best practices in the management of rare disease. As evidence specialists we are contributing to the project by leading collection development for new online databases for rare disease guidelines and research recommendations. Aim. To describe the basis for collection development of rare disease guidelines and research recommendations for new online databases. Methods. A systematic literature search was carried out to ascertain existing practice in rare disease guideline retrieval. We then compared the recall and yield of clinical guidelines in established guideline databases, specialist rare disease resources, a medical literature database and internet searching using a purposive sample of rare conditions. Results. The literature search did not locate any evidence specific to the retrieval of clinical guidelines on rare conditions. We found that the established guideline databases returned only a small selection of documents relevant to the three test conditions. The rare disease specific resources provided direct access to relevant guidelines, many of which were non-English language. The highest percentage yield was from the medical literature database although this remained very low ranging from 0-11.8%. The restricted internet strategy retrieved all guideline documents identified through the other resources within the first 100 results. Conclusions. Our results suggest that searching established guideline resources may not be sufficient to identify available rare disease guidance. Restricted internet searching appears to offer specificity with an acceptable level of sensitivity although further testing is required to establish if this is the most effective method of identifying published guidelines. These findings may reflect a lack of access to or knowledge of mainstream guideline dissemination portals among rare disease guideline developers. The low yield demonstrated by all resources in our test protocol indicates a barrier faced by patients, clinicians and researchers to accessing guidance on the treatment of rare conditions. Our findings will inform the collection development policy for the RARE-Bestpractices clinical guidelines and research recommendation databases.


http://www.rarebestpractices.eu/


KnowledgeShare: a web-based tool to connect people with evidence and to connect people with people

Ben J. Skinner

Library and Knowledge Services, Brighton and Sussex University Hospitals NHS Trust, Brighton and Hove, United Kingdom [email protected].

Introduction. A need was identified for a system to allow Library and Knowledge Services (LKS) to manage core services, to increase access to evidence, and to aid collaborative working. KnowledgeShare was developed to meet these needs and is currently being extended across the South East of England. Aim. Aside from providing books, journals and information resources, library and knowledge services in the NHS deliver three core services. They offer evidence reviews to inform research and patient care; they teach staff to find and evaluate evidence; and they help colleagues to stay up-to-date in their field. Whereas there are systems to manage library resources there is little available to help manage searching, teaching and updating. A system designed to manage these services could potentially benefit LKS members by increasing accessibility of evidence and allow the sharing of knowledge more widely. Methods. KnowledgeShare, a web-based application, was produced to assist in the management of core services. The system enables LKS staff to collaborate on and deliver personalised, targeted updates to members about healthcare topics in their field. It also allows LKS teams to manage requests for evidence reviews and teaching and report on uptake and impact. Through KnowledgeShare, members can connect with one another based on shared professional interests. From October 2013 KnowledgeShare was implemented at Brighton and Sussex NHS Library and Knowledge Service and then extended to eight other LKS teams in the South East of England. Discussions. KnowledgeShare has enabled the creation of an extended network of LKS teams who can standardise quality, spread the workload of current awareness provision and share evidence reviews more widely than ever before. It provides a model of technology-enhanced evidence provision. The standardisation involved as LKS teams join KnowledgeShare is a benefit but also a challenge in terms of change management. The system facilitates networking and collaborative working among members; however it remains to be seen whether this function will be utilised. Survey data shows considerable benefits of the personalised approach to current awareness and high impact on patient care. Conclusions. With each LKS team that joins, the benefit to healthcare staff grows and efficiency is increased; our aim is to continue to extend KnowledgeShare across England.



Parallel session C2 Technology

Chairperson Anna Kågedal


How deep is the sea: web intelligence for patient education

Mauro Mazzocut (1), Paolo Omero (2), Ivana Truccolo (1), Nicolas Gruarin (1), Roberto Ricci (3), Carlo Tasso (2) (1) Scientific and Patient Library CRO Aviano IRCCS National Cancer Institute,

Aviano (PN), Italy [email protected] (2) Artificial Intelligence Laboratory at University of Udine, Udine, Italy (3) IT Service at CRO Aviano IRCCS National Cancer Institute, Aviano (PN), Italy

Summary. Web users have become information producers who share with others contents and opinions. The literature reports that patients using the web for searching health information, also share their feelings and experience with others going through the same condition. The peer-to-peer communication has relevant effects on patients’ decisions about their own clinical path. That’s why we think that social web is full of implicit knowledge lying in the semantic relationships among users, in their opinions expressed by tags and comments. We can get an insight of the actual patients perspectives on relevant cancer topics analyzing the health consumers web conversations about oncology in Italian language, using Web Intelligence (WI) to map main information topics, sources and network among users. WI is a new direction for scientific research that combines Artificial Intelligence (AI) and advanced Information Technology to develop a next generation of web empowered products, system, services and activities. Aim and scope. We aim to present the results of a preliminary WI survey made with the University of Udine AI-lab. The innovation is the application of WI approach to the oncologic field to increase the evidence available of cancer health consumers’ untold perspectives. The WI approach can be applied in other fields of the cancer research and clinical area. It can enhance the communication for the clinical trial and screening enrolment and follow-up. This implicit knowledge can be "revealed" to the health professionals & researchers offering insights into the patient perspectives, in order to make communication and therapy more effective. At the same time, it can be used to enhance education initiatives in the “real world”, especially for people who do not have access to the internet or lack the basic literacy skills to utilize Web information. The challenge for medical librarianship is to look for a new effective way to index and assess web information useful for our users.



The iPad is the successor of the printed textbook

Oliver Obst Universitäts- und Landesbibliothek Münster, Zweigbibliothek Medizin, Münster, Germany [email protected]

We are living in the very transition from the printed to the digital age. It took only ten years from the printed to the electronic journal. What about the printed textbook? Is it also a discontinued model? As printed textbooks represent a highly successful business model for both libraries and publishers, it is literally vital to know, when and how the transition will proceed. If nobody knows what comes next, it is essential to experiment. What is the status quo? From our surveys we know that more and more students are practicing a purely digital learning flow. They remix and reconfigure all available content, be it from libraries, publishers, BitTorrent sites, Google, or Wikipedia. With the wide spread possession of tablet computers among students, intelligent learning resources on a tablet could be a decisive step forward to the textbook of the future. The Branch Library of Medicine at Münster, Germany, together with the Faculty of Medicine examined what are the best available learning products and subsequently developed a tablet based e-learning platform. For that purpose, 60 preconfigured iPad Air were provided to pre exam students on loan for 4-5 months. A thourough evaluation will examine if they perform better than their tablet-free colleagues.



Technological evolution in health libraries, and the implications for librarians: the experience of the Virtual Health Sciences Library of the Balearic Islands (Bibliosalut)

Virgili Páez, Sílvia Sastre-Suárez, Elena Pastor-Ramon, Maria Costa-Marín Virtual Health Sciences Library of the Balearic Islands, Balearic Local Health Authority, Palma de Mallorca, Balearic Islands, Spain [email protected]

The development of information and communication technologies brings with it radical changes in the functioning of health sciences libraries. These changes often imply the appearance of new models of libraries, from face to face to virtual. The need to adapt to new times and new ways of working with users is a constant challenge for information and documentation professional, who, now more than ever needs to be continually updated in the application of information technologies to library services. In this communication we present the experience of the technology evolution in the Virtual Health Sciences Library of the Balearic Islands (Bibliosalut), which was created in 2003, where a small team of enthusiastic and dedicated professionals, work daily with the aim of constant technology improvement and the corresponding improvement of the services given to the users. We refer to: remote access development, document supply service, subscription centralization, content management, user attention service, social network, screencasts, etc. Technological development is a very important challenge for librarians. We want to emphasize that the new libraries need more and better trained professionals, who will require some of the following skills: − highly qualified and motivated; − able to adapt to new times; − innovative and trend setting; − continuously updating; − capable of working in multidisciplinary teams. These librarian skills have brought with them a transformation in the relationship between the library and the users, who are now more independent, with the possibility of self-service and self-learning. With this presentation we want to paint the new vision of how librarians work in these ever-evolving times, and also to reiterate the importance of high visibility.



Removing duplicates in retrieval sets from electronic databases: comparing the efficiency and accuracy of the Bramer-method with other methods and software packages

Wichor M. Bramer (1), Leslie Holland (2), Jurgen Mollema (3), Todd Hannon (4), Tanja Bekhuis (5) (1) Medical Library, Erasmus MC, University Medical Center, Rotterdam, The

Netherlands [email protected] (2) Library, Southern College of Optometry, Memphis, TN, USA (3) Library, Faculty of Health Care, HU University of Applied Sciences Utrecht, The

Netherlands (4) Library, Oregon Health & Science University, Portland, OR, USA (5) Department of Biomedical Informatics, School of Medicine, University of

Pittsburgh, PA, USA

Introduction. Evidence-based medicine rests, in part, on exhaustive reviews of the research literature given topics of interest. This typically requires thoroughly searching several electronic databases. However, database content often overlaps and storage of bibliographic data differs. Information specialists and researchers who execute comprehensive searches face problems when removing duplicate records in their retrieval sets. Depending on the number of records and databases, this process can be quite challenging. Consider, the same research article may be represented in different ways depending on the database (e.g., journal titles and page numbers may be complete or abbreviated). In contrast, different articles may be represented as if equivalent in some fields (e.g., the title and author list may be the same, but the journal may differ). Therefore, removing duplicate records is quite time consuming and prone to errors. Many software packages for managing bibliographic references, such as EndNote, Reference Manager, Refworks, Mendeley, Papers, and Zotero, enable de-duplication, but how well do they perform? Aim. In this research, we compare the performance of different software packages 'out-of-the-box,' i.e., with default settings. We consider how efficient is the process and how accurate the results? Can users easily change the settings of the various de-duplication algorithms? If so, how well can an EndNote algorithm with good performance characteristics be translated in other packages? Which software is the best choice for de-duplication and with which settings, and are improvements in software design needed or desirable? Methods. We developed an algorithm in EndNote that speeds de-duplication with good precision by normalizing field contents when needed. For instance, we expand the last page numbers of a range in MEDLINE records and abbreviate journal titles in Embase records during the export-import process from database to


reference software. In EndNote, we use varying combinations of fields to quickly scan potential duplicate references. In this way, we have de-duplicated large libraries of up to 10,000 records in less than 30 minutes and have reduced the number of references, as well as the effort needed to review them, by up to 50%, with few errors. When possible, we translate this algorithm in several popular software packages and compare performance. Conclusions. Preliminary results suggest that performance associated with default settings of popular bibliographic software packages varies considerably. Moreover, translation of an efficient and accurate EndNote algorithm is often difficult or even impossible. We offer suggestions regarding de-duplication for informationists and researchers based on our experience.


Parallel session D1 Research Chairperson

Roberto Guarasci


Improving the reliability and value of medical research literature: a new role for librarians in promoting good research reporting practices

Shona Kirtley EQUATOR Network, Centre for Statistics in Medicine, Botnar Research Centre, Oxford, United Kingdom [email protected]

Background. Poor reporting of health research is a serious and widespread issue, distorting evidence, limiting its transfer into practice, and providing an unreliable basis for clinical decisions and further research. Reporting guidelines have been developed to address this problem. Librarians support healthcare professionals undertaking research and therefore have a unique opportunity to raise awareness of these guidelines. This presentation highlights the EQUATOR Network and proposes an exciting new role for librarians. Methods. The EQUATOR Network (www.equator-network.org) was established to improve the reliability and value of medical research literature by promoting transparent and accurate reporting. Our key output is an online portal hosting our Library for Health Research Reporting, Reporting Guideline Database and other resources providing a ‘one stop shop’ for researchers writing up studies. The website also contains practical toolkits developed for specific user groups including authors, editors and librarians. Good reporting is part of responsible research conduct and it is essential that researchers are informed about reporting guidelines and educated in their use. Librarians are excellently positioned to raise awareness of reporting guidelines and encourage their implementation through promotion, education, and researcher support. Results. The EQUATOR Network proposes a fundamental new role for librarians in utilising EQUATOR resources to promote good reporting practices to improve the quality of the research publications produced by their organisation. Development of the EQUATOR International Librarian Network is underway providing a librarian toolkit containing practical ‘how to’ information and resources, webinars providing both support and training for librarians and an email discussion list. Through this global network, we hope that librarians will exchange ideas and experiences and that together we can develop additional toolkit resources that are useful, practical and relevant to the specific settings in which librarians work. Conclusion. This presentation will benefit medical librarians as it proposes an important new role. By raising awareness of reporting guidelines, librarians can influence the practical implementation of these guidelines within the research papers being written by the researchers with whom they work and therefore contribute to improving the quality and subsequent usability of published health research. Further Network and Toolkit development will enable EQUATOR to support librarians worldwide. In the current economic climate, librarians


increasingly must justify their services in light of decreasing funding. By adopting an additional role that can have a direct impact on the quality of the research output of their organisation librarians can demonstrate that they play a vital role in its overall academic success.


Keeping up to date with information retrieval research: Summarized Research in Information Retrieval for HTA (SuRe Info)

Patrice X. Chalon (1), Sari Ormstad (2), Jaana Isojärvim (3), Mick Arber (4), Sigrid Droste (5), Steven Duffy (6), Julie Glanville (4), Su Golder (7), David Kaunelis (8), Carol Lefebvre (9), Hannah Wood (4) (1) Belgian Health Care Knowledge Centre (KCE), Brussels, Belgium [email protected] (2) Norwegian Knowledge Centre for the Health Services (NOKC), Oslo, Norway (3) National Institute for Health and Welfare (THL), Finnish Office for Health

Technology Assessment (Finohta), Helsinki, Finland (4) York Health Economics Consortium (YHEC), University of York, York, United

Kingdom (5) Institute for Quality and Efficiency in Health Care (IQWiG), Köln, Germany (6) Kleijnen Systematic Reviews Ltd, York, United Kingdom (7) Centre for Reviews and Dissemination (CRD), University of York, York, United

Kingdom (8) Canadian Agency for Drugs and Technologies in Health (CADTH), Ottawa,

Canada (9) Lefebvre Associates Ltd, Oxford, United Kingdom

Introduction. Increasing numbers of research papers about information retrieval for health technology assessments, systematic reviews and other evidence syntheses are being published. To meet the challenge of keeping up-to-date, the Interest Sub-Group on Information Resources of the Health Technology Assessment international (HTAi IRG) organization has launched a web resource entitled Summarized Research in Information Retrieval for HTA (SuRe Info). The main target groups for this resource are information specialists and others who conduct searches to inform evidence syntheses. Aim. To present the SuRe Info methodology and output. Methods. A methodology has been elaborated to identify, appraise and summarise the relevant literature. Appraisals and chapters are produced by an international project group who shares preparatory documents through free cloud services (Box, Zotero). The web resource is updated every six months and published as a specific section of the HTAi Vortal. Results. Information retrieval methods publications are identified by running topic-specific search strategies in selected relevant databases. Alerts are set up for the prospective identification of publications. Publications fulfilling the SuRe Info inclusion criteria are included in the web resource as structured abstracts with brief critical appraisals. Abstracts are tagged with keywords. The appraisals are then synthesized into topic specific chapters organised in two sections: 1) chapters on general search methods common across all health technologies and 2) chapters



describing the methods to use when searching for specific aspects of health technologies. The latter chapters are mainly based on the structure of the HTA Core Model® developed by EUnetHTA. Twenty-eight appraisals had been published by January 2014. Six chapters are available summarizing the current research findings concerning a particular aspect of information retrieval. Each chapter has an Introduction, a list of sources to search, information on designing search strategies and a list of references. Each reference is followed by links to: 1) the full reference that can be exported; 2) the structured appraisal, written by SuRe Info project group members; and 3) where possible, the full-text. Several new chapters are in preparation and the aim is to publish all chapters by the middle of 2015. Conclusion. SuRe Info is a new open-access web resource that provides research-based information relating to the information retrieval aspects of producing health technology assessments and systematic reviews. It seeks to help information specialists to stay up-to-date in the latest developments in this field and to support research-based information retrieval practice.


New challenges, new skills for a digital library

Veronica Juan-Quilis, Laura Muñoz-Gonzalez Andalusian eHealth Library, Seville, Spain [email protected] [email protected]

Objectives. The decision to create a digital library in 2006 for a Spanish region with more than 41 hospitals, 1,500 primary care centers and 28 centers for non-medical purposes, which attended a population of more than 8 million inhabitants was a turning point in the strategy of the Andalusian Health Ministry, but it also constituted a big challenge for the librarians who had worked at the Health System, most of them for more than 20 years. The skills developed by these librarians and the new profiles needed to ensure the sustainability of the Andalusian eHealth Library are the object of this study. Methods. The Andalusian eHealth Library has become the Andalusian Health Knowledge Manager. Forty-two librarians already worked for this Health System in 2006 and they had to acquire new skills to work in this new scenario: a digital platform where all the health scientific resources and services were at the disposal of the end user. Besides that, people in charge of managing this organization needed to be used to dealing with budgets, accountancy, legal provisions, editor policies, and developing strong negotiation abilities. A multidisciplinary team was created, composed of information technologists and librarians in order to create the following applications in accordance with librarians’ expertise at the research support field: Meta-Searcher; Central Inter-Library Loan Program; Online Training Platform; Remote Access Application; Research Output quantification System; Institutional Repository; User Assistant Service Platform; Social Networks. Results. The Andalusian eHealth Library coordinates a team of 42 librarians who work throughout the whole Andalusian territory, organized in several working groups such as: Inter-Library Loan; Thematic Areas; Scientific Production Studies; Information Technologies; Institutional Repository; Social Networks;




Science Web Page; Citizen Web Page; Copyright and Intellectual Property; Statistics; Scientific Resource Contracting. Besides that, there is a central team who manage the Library and the work of these librarians, composed of this staff: Director; Managing Department; Electronic Resource Department; Information Technology Department. Conclusions. During these seven years of functioning, the versatility and the adaptability of librarians have been demonstrated. We stopped being reactive to start being proactive and switched to being the research engine of our Health System. We are managers, technicians, publisher dealers, negotiators, trainers, community and content managers and research assistants.


Parallel session D2 Patients

Chairperson Margarida Meira


Power to the patient: the development of a literature search filter for patients’ perspectives and preferences

Lian Hielkema (1), Monique Wessels (2) (1) Dutch College of General Practitioners (NHG), Utrecht, The Netherlands [email protected] (2) Knowledge Institute of Medical Specialists (KiMS), Utrecht, The Netherlands [email protected]

Scope. The patient perspective in guideline development is of vital importance. To find out what this perspective entails, different methods may be considered, such as participation of patients or their representatives in guideline development groups or in focus group discussions, or by conducting patient surveys addressing specific problems and needs. In addition, a review of the literature can provide relevant information. As literature searchers at two national organizations involved in guideline development (primary care and secondary care) we felt the need for a search filter to address patient issues. Aim. To develop validated search filters for patients' perspectives and preferences (applicable for Medline-OVID, PubMed, and Embase). Summary. A search filter to identify articles regarding patient issues already existed, but the sensitivity of this filter was too high and the specificity too low for our purpose. We therefore took this filter as a starting point to develop a more specific filter that would be better adapted to our needs. First we defined the scope of the new filter. Then we built a reference database as gold standard for the development of the filters and finally we compared the performance of both filters with each other (sensitivity and specificity in three different disease categories and in two different settings (primary care, secondary care). The sensitivity of the filters was further estimated by using the references of a recent Cochrane Review on Interventions for providers to promote a patient-centred approach in clinical consultations as a gold standard. Sensitivity, specificity, and precision of the new filters were (%): 90.5/98/77(Medline-OVID), 90.1/98.8/79,3 (PubMed), and 94.7/98.9/81 (Embase). The search filters retrieved, respectively, 72 (Medline-OVID/PubMed) and 67 (Embase) of 73 references included in the Cochrane Review (mean sensitivity 96,3%). Benefit. The original validation process appeared to be a good indicator for the sensitivity of the filter in practice. Nevertheless, we made some minor adaptations to the original Embase filter to enhance sensitivity without compromising on specificity, thus illustrating that filters are dynamic tools.




Evidence-based information for patients: teaching health care professionals to find, adapt and develop it

Irina Ibraghimova HealthConnect International, Zadar, Croatia [email protected]

Background. − Most patients want more information and greater share in decision-making. − Evidence-based information is a prerequisite for informed choice. − Health care professionals are not always aware of patient information needs

and tend to overestimate the amount of information they provide. − A variety of patient information initiatives and resources exist online and offline

on national and international levels. − Recent research provides solid evidence on what constitutes evidence-based

patient information, what type of content can be provided to health care professionals as internet-based learning, and what makes internet-based learning successful.

Method. Health care professionals need skills to: − determine information needs of their patients; − identify evidence-based information sources; − provide information to patients using appropriate language, format and media. To achieve these goals, a 4-week distance training course was developed and provided by the American International Health Alliance to partnering institutions in Eurasia and Africa. Between 2009 and 2013 the course was offered 5 times: to specialists in infectious diseases (Russia); nurses and clinical pharmacists (Zambia, Ethiopia, Croatia); and nursing school faculty and nurses (Botswana, Zambia). Course content. Patient information needs; internet-based resources and initiatives; hospital information policy; planning information package; patient information quality; collecting patients' views; presenting evidence to patients; writing style and media; dissemination and evaluation of patient information materials. Assessment. Pre- and post-course self-evaluation requiring participants to evaluate their confidence in applying evidence-based practice (EBP) principles when providing information to patients; online quizzes; learning portfolio; course evaluation questionnaire. Results. Health care professionals felt the gap in their knowledge and skills in all aspects of providing information to patients. They were eager to learn those skills and considered distance training very practical. Most changes in confidence after training were for (1) defining effective media and delivery method for providing information to selected audience, (2) preparing a search strategy, and (3) critical appraisal of patient information materials.



Conclusions. Distance training showed to be a practical method in helping health care professionals to acquire knowledge and skills in (1) identifying the best sources of evidence, (2) searching the Internet effectively for evidence-based resources, (3) critically appraising available patient information, and (4) identifying methods for developing and introducing patient information materials in their own practice. The content and learning activities can be easily adapted to different audiences.


Assessment of the quality of online health resources in order to identify the examples of best practices in creating portals for patients

Ewa Dobrogowska-Schlebusch, Barbara Niedźwiedzka Information Studies Department, Institute of Public Health, Jagiellonian University Medical College, Krakow, Poland [email protected]

Introduction. Poland was one of the eight countries which participated in 2011 in the HLS-EU survey, which main aim was to measure health literacy in Europe. The research results showed alarming deficiency - nearly every second Polish citizen has inadequate or limited health literacy. One of the means to increase health literacy of Polish population is to create evidence-based, comprehensive, easy to find source of health information addressed to citizens. Aims and scope. The presentation shows the results of the preliminary phases of the study undertaken to reach this goal, namely the development of the evaluation instrument and the assessment of the quality of existing health information websites from around the world, created for lay users, in order to identify the examples of best practices. Identification of the best practice in creating online health resources for health care consumers can serve as a model for polish websites developers to create high-quality and evidence-based source of online health information and can be used by medical and public librarians to help their patrons to successfully navigate through large quantities and diffusion of online health information in order to find the most reliable one. Development and validation of a new tool for evaluation of health information websites (Narzędzie Ewaluacji Stron Internetowych o Zdrowiu – NESIOZ) will also be presented.



Compassion fatigue: a content analysis of public postings in terms of information needs in healthcare contexts

Ina Fourie, Herman Fourie Pretoria University, Pretoria, South Africa [email protected]

An increasing number of professions are reporting compassion fatigue. This is especially true of healthcare professionals. The emotional labour of librarians has also been noted. This might even be more prominent for health librarians. If not addressed in a timely and appropriate manner, compassion fatigue can lead to burnout with serious implications for individuals, their employers, co-workers and patients. Prevention, identification and treatment of compassion fatigue require timely action, information and professional support. Health librarians can make two contributions: (1) designing portals as access points to information resources and expert advice, and (2) analysing information needs and information behaviour, and aligning these with what information services and systems can offer. This paper reports a content analysis (a non-intrusive research method) of the information needs of healthcare professionals posted on Answers.Yahoo.com. The purpose of the paper is to raise awareness for the issues and dangers of compassion fatigue, and to encourage health librarians to take timely action in developing portals and other types of information services to support healthcare professionals, as well as the caregivers of patients to take timely action in finding information and seeking professional help and advice. The intention is furthermore to promote content analysis of public postings (e.g. Answers.Yahoo.com) as a non-intrusive method of data collection that, as an exploratory study, can path the way for in-depth contextualised (i.e. relevant to a specific institution/organisation) research.


Parallel session E1 Future of libraries

Chairperson Ghislaine Declève


Two of your five-a-day: the role of the librarian in clinical audit

Niamh Lucey, Anne Madden St Vincent’s University Hospital, Dublin, Ireland [email protected] [email protected]

Introduction. The clinical audit process has been described as a quality improvement process that seeks to improve patient care and outcomes through systematic review of care against explicit criteria. The process cycle has five elements, the first two of which overlap with the basic principles of information retrieval: identifying a problem or question; and finding criteria and standards against which to measure. We describe the evolving role of librarians in the clinical audit function of a major academic teaching hospital in Dublin, Ireland. Aim. We aim to demonstrate the benefit to our profession of aligning our work with the core strategic objectives of our parent organisation. Methods. We outline how we have successfully inserted our skills into the clinical audit process – as members of the Clinical Audit Committee, as expert searches and as trainers. We also outline the clinical audits we have undertaken in our library. Discussion/Conclusions. Through the practical application of our skills, we have provided tangible benefits and support to the Quality Improvement agenda of the hospital. By aligning ourselves to a core strategic objective of our parent organisation, we have increased the perceived value of our expertise, and we have gained an increased respect from both clinical and senior management staff. Becoming more directly relevant to patient care and patient outcomes is essential to the survival of health science librarianship as a profession, especially in times of financial difficulty.




The medical information scene in 2020: being agile and beyond

Ingeborg van Dusseldorp (1), Eugenie Delvaux (2)

(1) Medisch Centrum Leeuwarden, Kennis-en informatiecentrum, Leeuwarden, The Netherlands

(2) Máxima Medisch Centrum, Kennis-en informatiecentrum, Veldhoven, The Netherlands

[email protected]

Healthcare and the information specialist’s role is subject to change. One way to anticipate these changes is optimising our profession and change course. In the Netherlands, a quality working group of the BioMedical Information department (BMI) of the Royal Dutch Association of Information Specialists (KNVI) defined a positioning paper where they present the ambition of the information specialist and illustrate the changes in the medical information scene. These changes can be determined as: − changes in the healthcare system: from a standing organisation to a network of

knowledge and skills; − changes in information: cloud based and accessible; − changes in education: MOOC’s and informal learning; − changes in science: open and transparent. Integrated in the positioning paper is the concept of the “business case”. Several cases were created for different products and services like an alerting service for physician’s in such a way that they can manage their literature in an accurate manner. Or the implementation of the educational process of the Critical Appraisal of a Topic (CAT) in the organization with a central role of the information specialist. Although every healthcare facility has its own ambition, vision and points of expertise and excellence, there are also enough similarities to make these business cases with their elaborated Return on Investment (ROI) and Return on Value (ROV) useful for the BMI members. They can build their own business case and use the existing cases as an example or inspiration. It is the strength of co-operation and co-creation that saves the information specialist time to be even more agile than one can imagine.



There’s more to life than systematic reviews: the librarian’s role in supporting review types to inform health policy

Louise Farragher, Martin Keane, Marie Sutton Health Research Board, Dublin, Ireland [email protected]

Introduction. Health librarians and information specialists frequently support and participate in the process of generating systematic reviews, health technology assessments or clinical practice guidelines to support clinical decision making. Government departments and agencies, especially in the field of health care, are increasingly using an evidence-based approach to policy development and decision making. The traditional “systematic review” may not be the most appropriate tool to inform such decision making. Aim. This paper will present a brief overview of review types, based on the work of Grant and Booth 2009 and Gough et al. 2012 and will explore the challenges and opportunities for health information professionals to support, participate and lead in the development and use of different review types to inform health policy and decision making. Method. A review of recent scientific literature on the theory and use of systematic reviews and other review types will be presented. A case study of the Health Research Board’s experience of setting up a new unit to conduct “evidence reviews” on behalf of the Department of Health will be presented and the presenter will also comment on her experience working with the review team to develop a new “review protocol” to guide their work. Discussion. Review types such as scoping reviews, evidence reviews and rapid evidence assessments are used by policy researchers as a means of assessing and synthesising the best available evidence for policy makers. Such review types require a specific approach, breadth and depth of work. This approach differs from the traditional systematic review, and has implications for the work of health librarians and information professionals who work with policy researchers. Conclusions. Traditional review methods are often not the most appropriate tools for evidence-based decision making in the area of health policy. Health librarians and information specialists have a role to play in supporting and participating in a variety of review types beyond the traditional systematic review. However we must have a clear understanding of these review types, the similarities and differences between such review types and traditional systematic reviews, and how we can best employ our skills to participate in such reviews.



Embedded librarians – The missing link between researchers and their library?

Norbert Sunderbrink University Medical Center Hamburg-Eppendorf, Central Medical Library, Hamburg, Germany [email protected]

Aim. The lecture is about the potential and added benefits that embedded librarians can offer particularly to the libraries of university clinics. The high publication output generated by research projects means these often have lighthouse status for the organisations involved. As part of a team of researchers embedded librarians assume responsibility for a variety of tasks such as gathering and processing information as well as supporting and preparing material for publication. This process demands that they possess, among others, the skill to act as members of an extended library team and as “power-users“. Since researchers use the library almost exclusively virtually, embedded librarians get to know researchers’ information needs at the point where they originate. Therefore, they can act as initiators for extended library services and as trailblazers for new areas of activity. This will affect many aspects of the ordinary librarian's work such as collection development, interlibrary loan or issues to do with licensing.


Parallel session E2 Education/Cooperation

Chairperson Patricia Flor


Blending e-learning with face-to-face teaching: the best of both worlds or just twice the work?

Elena Prigoda-Springall Gerstein Science Information Centre, University of Toronto Libraries, Toronto, Canada [email protected]

Introduction. Blended learning involves the use of both online and in-person instruction in teaching and learning. The Faculty of Medicine at the University of Toronto is moving increasingly towards this model of instruction. The library that supports the Faculty of Medicine has been experimenting with blended learning for the past several years, but given the current trend in the Faculty of Medicine, is taking this opportunity to do a thorough examination of how well this approach works for health information literacy education. Methods. Conclusions will be formed based on data (assignment grades, student evaluations) from two pilot tests in the information literacy curriculum of the medical school, semi-structured interviews with librarian and medical educator colleagues, and a thorough review of the published and grey literature. Results and discussion. The study is currently in progress, scheduled to be completed in June, 2014. Preliminary findings suggest that blended learning is very useful for teaching health information literacy, but that planning the optimal balance between online and in-person content is a challenge. Strategies for achieving success will be a key focus of this presentation.



A study of knowledge management among last year medical students: implications for the library

Marte Ødegaard University of Oslo, Medical Library, Oslo, Norway [email protected]

Introduction. At the University of Oslo, Norway, medical students are expected to learn Evidence Based Practice (EBP) before they graduate. In their 11th semester, the students write a major assignment in EBP. They are supposed to explore a case from clinical practice and determine if the evidence shows that change of practice is needed, why and how this could be implemented. A part of this assignment is a methodology chapter in which they are expected to explain their knowledge management skills in relation to literature search. The library offers courses and individual guidance in literature searching throughout the studies, but the relevance of courses and guideance to students has not been given adequate attention. By reading these assignments, categorizing and structuring the students’ choices when it comes to literature searching, we can say something about their understanding of the tools they will meet as a graduated doctor. Method. The methodology chapter of 29 assignments was examined, focusing on the students choices in their decisions around knowledge management and search technique. The analysis covered choices on where to search with emphasis on why, the use of boolean operators, PICO, use of the term “systematic search", use of MeSH, whether they customize their searching to the source and whether they recommend change of clinical practice based on their findings. Findings. Preliminary results from the 11th semester medical students assignments indicate that the basics of literature search are mastered. However, the analysis shows that there are challenges in relation to both research methodology and technical skills. The results indicate that an increased integration between the courses may be of advantage in the steps of EBM regarding searching, research methodology and technology. This paper also reflects on the limitations of the study, the applicability of the methods, and future research.


Sharing to learn, learning to share: co-operation among health information professionals

Tiina Heino (1), Katri Larmo (1), Leena Lodenius (2), Tuulevi Ovaska (3) (1) Terkko, Meilahti Campus Library, University of Helsinki, Helsinki, Finland [email protected], [email protected] (2) Finnish Medical Society Duodecim, Helsinki, Finland [email protected] (3) Kuopio University Hospital Medical Library, University of Eastern Finland

Library, Kuopio, Finland [email protected]

Objectives. The aim of our study is to find out Finnish health information professionals' views and expectations on European cooperation within the framework of EAHIL. The results could be used to share best practices in an open learning environment. Methods. A web-based semi-structured questionnaire will be sent to BMF members (totally about 100 Finnish health information professionals). It includes questions on five themes, such as sharing teaching materials, marketing library services, co-operation with library schools (continuing education for information professionals) and professional peer support. Results and Conclusions. Based on the results suggestions and action plans for the European professional cooperation in EAHIL will be made.






Cooperation of libraries within the Leiden University Medical Teaching and Training Region

Johannes Belt Walaeus Library, Leiden University Medical Center, Leiden, The Netherland [email protected]

The Leiden Graduate and Postgraduate Teaching and Training Region comprises 12 hospitals in an urban region with approx one and a half million inhabitants. Medical students and residents do part of their training in the Leiden Region. During this phase, they visit the libraries of the local hospital to fulfil their needs for scientific information. To obtain a uniformly high quality of information services throughout the region, the library organizes exchange meetings to share best practices and benchmarks. Every six weeks information specialists from the libraries meet to discuss search strategies and to optimize skills. Several times a year the entire staff of all libraries come together to discuss about collection management, document delivery and positioning of the library within the organisation. This form of cooperation leads to a uniform and high quality of information services in the Leiden Region and end-users who are optimally supported and know that they can expect a uniformly high quality of information. The aim of the contribution is to demonstrate that cooperation through bottom-up knowledge management e.g. best practices and lessons learned can develop in a natural way and that it can lead to a high quality of information provision. The scope of this contribution is to show that by developing the skills, experiences and information literacy of the library staff within the Leiden Region it enhances the quality of their support for the clinicians, residents, students and researchers in this Region and enhances directly the quality of research and patient care. At the same time it leads to a uniformly high quality of information provision of the medical libraries in the whole region and a natural assessment of the skills and information literacy of the medical librarians and information specialists.


Plenary P4 Professional Development/Role of Librarians

Chairperson Francesca Gualtieri


Personal strategies to meet the future challenges of supporting researchers and student learning – a content analysis of the output from the EAHIL 2013 Stockholm Workshop

David Herron (1), Sara Janzen (1), Anna Kågedal (2) (1) Karolinska Institutet University Library, Stockholm, Sweden [email protected] (2) Uppsala University Bio-Medical Library, Uppsala, Sweden

Introduction. The EAHIL 2013 Stockholm Workshop was designed in response to eight social and technical trends which are predicted to impact medical libraries in the near future. Each of these trends represents different challenges and, using various dialog-creating methods, the Workshop tried to address these challenges. The digital/written output from the various discussion sessions is, however, diverse and for the non-attendee, it is difficult to understand what was actually concluded during the sessions and even more so to discern own personal strategies from the material available. Aim. The aim of this study is to analyze the output from EAHIL 2013 Stockholm Workshop which is primarily available through the Workshop website (kib.ki.se/eahil2013), but also in the Journal of EAHIL (volume 9 no. 3, 2013). Methods. We will do a content analysis of the various Workshop outputs to see if we can suggest personal strategies in the areas of support to researchers and support to student learning for non-attending health librarians. Discussion/Conclusions. It is predicted that we will be able to summarize and categorize the Workshop output under the following headings: personal, communicative, strategic and professional skills and abilities. The personal strategies will incorporate suggestions for continuing professional development.



Poster session


ECDL Health Syllabus for scientific documentation and information: certified training for health professionals (P86)

Giuse Ardita (1), Gaetana Cognetti (2), Paola De Castro (1), Rosalia Ferrara (1), Paolo Gardois (3), Gaetano Grillo (4), Pierpaolo Maggi (5), Saba Motta (6), Elisabetta Poltronieri (1), Renata Solimini (1)

(1) Istituto Superiore di Sanità, Rome, Italy [email protected] (2) Istituto Regina Elena, Rome, Italy (3) Università degli Studi di Torino, Turin, Italy (4) Azienda Ospedaliero Universitaria Città della Salute e della Scienza di Torino,

Turin, Italy (5) Associazione Italiana per l’Informatica ed il Calcolo Automatico, Milan, Italy (6) Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy

Introduction. Access to updated quality health information is crucial in order to provide patients with appropriate medical treatment. Good-quality information is, as well known, the guarantee for developing adequate health services. However, the information retrieval methodology, the critical appraisal of literature and other related key issues are not always considered as fundamental components of health professionals education in Italy, where, currently, biomedical librarians, documentalists and scientific editors are not regulated professions within the National Health Service. Aim. In order to bridge the existing gap, in 2013 the Associazione Bibliotecari Documentalisti Sanità ABDS (Health Librarians Documentalists Association) founded the ECDL HealthDoc Working Group promoted by AICA (Associazione Italiana per l’Informatica ed il Calcolo Automatico), the Italian Association for Informatics and Computation who releases the European Computer Driving Licence certification. Thanks to the agreement signed between ABDS and AICA, an ECDL (European Computer Driving Licence) Health module for information and documentation was developed. Methods. ECDL HealthDoc Working Group, consisting of medical and scientific information experts affiliated with Italian health and research institutions, produced the first version of the ECDL Health Syllabus and related tests. Such a Syllabus, organized according to a modular structure, was intended to provide the basic skills needed for managing scientific information across different topics: biomedical databases, research evaluation parameters, scientific writing, open access publishing, websites assessment, tools for patient education and empowerment, Web 2.0 applications. A pilot course and related training material (handouts, manuals, etc.) has been shortly scheduled to test and validate the methodology of ECDL HealthDoc courses to be held in the future. Feedback from participants to the pilot course will be considered as an useful hint in order to improve course methodology in view of future training initiatives.


Conclusions. ECDL HealthDoc will contribute to integrate information literacy into the education of public health professionals. It may also maximize the value, skills and competences of information specialists in the biomedical field providing them with a recognized European certification.


Medical students and textbooks as e-books – a project of acquisition, marketing and availability (P87)

Katrine Aronsen, Karina Kojedahl Bjørkedal, Jan Ove Rein NTNU University Library, Medicine and Health Library, Trondheim, Norway [email protected]

Introduction. At the EAHIL conference in Istanbul 2011, the NTNU University Library presented a paper: Digital reading lists and e-readers; e-readers as a marketing tool for the digital library. We concluded: “The library must be updated and well-informed on the progress of the e-literature market. We will buy and make the resources easy to get at for researchers and students on the platforms where they are present”. Trying to live as we learn the NTNU Medical library launched a two year project starting in 2013. We wanted to provide medical students with e-books from their curriculum, knowing that these titles are popular. We know that students are an important target group for e-books. They are “on the move” and not having to carry heavy books will be a huge advantage. However textbooks are expensive to purchase for the library, so high usage is needed to defend the investment. Aim. To facilitate high usage we identified three aims. We wanted the e-book titles to be titles in high demand. Also accessing the e-books had to be as easy and tailored as possible. The third aim was to make sure every student had been thoroughly informed about this new service. Method. In our experience library users often have problems finding and getting access to relevant e-books despite their presence in the library catalogue. We addressed this by offering a tailored web page for medical students. The site presented e-books by semester/year, and linked to full text. We also offered a direct link between the faculty curriculum lists and our e-books. To make sure all medical students was informed about our new e-books and the related web page, we implemented several measures. We attended information meetings for all medical students. All students received a mail from the library with links to the new web site. We issued a press release, resulting in several articles about the project. In addition we wanted to link the e-books to the physical books in the library. We therefore made sure all visitors were reminded of the e-books through various marketing material. Conclusion. The e-book portfolio of libraries has potential for much higher usage. But problems with marketing, finding and accessing the books lead to under-usage. By addressing these problems we saw a considerable rise in usage statistics. We believe this defends the high purchase expenses.


What about the involvement of the European health librarian in Health Technology Assessment? Results of a survey (P16)

Anna Balduini, Saba Motta, Silvia Molinari, Fabio Bernardini, Ivana Truccolo, Moreno Curti Fondazione IRCCS Policlinico San Matteo, Pavia, Italy [email protected]

Background. Health Technology Assessment (HTA) is a multidisciplinary activity that would require the involvement of a scientific librarian to perform literature searches and critical appraisal of the papers retrieved. In September 2011, a survey was conducted among 56 Italian scientific research institutions about the role of the health librarian in HTA. The results obtained revealed a widespread lack of involvement of any scientific library in the process of health technology assessment. Methods. We designed a survey, based on the one administered in Italy in 2011, to be distributed by e-mail to all EAHIL members. The questionnaire is divided into several multiple choice questions. Aims. The objective of this work is to check the spread of Health Technology Assessment in health centers in Europe, the possible involvement of the scientific librarian, and the ways and times when this may take place. Conclusions. The survey is still in the process of distribution.



How is Emilia-Romagna Region supporting clinical research (P107)

Chiara Bassi, Tania Salandin, Donato Papini, Antonio Addis Area Governance della Ricerca, Agenzia Sanitaria e Sociale Regionale, Emilia-Romagna, Italy [email protected]

Emilia-Romagna Region dedicates special efforts in promoting better research for better healthcare, through regional research capacity enhancement, by means – among others – of the Region-University Research Program, that aims to underline the importance of research as part of clinical practice (detailed information about the Program at http://assr.regione.emilia-romagna.it and www.laniuseltter.it). Activated at the beginning of 2007, the Program aims at developing scientific innovation, new management, organisational and training models through the collaboration and integration between Universities, University Hospital Trusts and all Health Trusts. Furthermore, it is worth underlining that project results have been published in 152 peer-reviewed journals so far (about 1/3 of them in OA journals). The amount of publications is likely to increase, since a number of projects financed in the end of the six-year period 2007-2012 are still ongoing and will end in the next months. The Emilia-Romagna Region is strongly interested in publishing and disseminating research results and making them useful for healthcare system. Furthermore, in accordance with the European recommendation on Access to and preservation of scientific information (dated 17.07.2012) and Helsinki Declaration, the Emilia-Romagna Region is committed in optimising the impact and dissemination of (public) funded scientific research: indeed, the Program awards with a greater co-financing principal investigators who publish their research results in “Open Access”.


Efficiently supporting large numbers of systematic reviews with high quality searches: quick thorough optimization and semi-automatic translation between multiple databases (P93)

Wichor M. Bramer, Gerdien B. de Jonge, Frans Mast Medical Library, Erasmus MC, University Medical Center, Rotterdam, The Netherlands [email protected]

Aim and scope. The researchers from Erasmus MC produce on estimate over 400 systematic reviews (SRs) per year. Two information specialists from the Medical Library support, upon request, over 200 of these SRs on a yearly basis, creating search queries for multiple databases and de-duplicating the results in EndNote. To reach such a high volume of support we have designed a methodology that allows us to design sensitive queries within a limited time span. With this efficient method we are able to satisfy the need of our patrons with high quality searches, and thus improve the scientific performance of our institution. Methods. Search Queries are developed and optimized in Embase.com. With the help of relevance ranking and a standardized optimization method the information specialist and the Principle Investigator (PI) together come to a better focused query by testing the added value of individual terms. The developed methodology is a step-by-step roadmap to easily find missing thesaurus terms or free text words. Macros have been developed in MS Word to translate the query into the syntax of 6 other databases (Medline (OvidSP), Cochrane, Web-of-Science, PubMed, PsycINFO and CINAHL), thesaurus terms have to be edited manually. For de-duplication in EndNote a fast and reliable algorithm has been developed to reduce a database of circa 10,000 references to 50-60% within about half an hour. Results. We can complete the process starting with only a research question to a complete de-duplicated EndNote file often within 2 hours. The searches created in such a short time frame are on average 1000 characters long, and on average more than 6 databases are used. The resulting number of included references can become very high (up to 250, average 53) while the precision is acceptable for SRs (average 3.0%). Conclusion. With our developed method we are able to serve more researchers with high quality searches for our institution's SRs, and thus increased the scientific output. If each SR would be treated as a week-long project with many appointments between PI and Information Specialist, we would be able to serve only a quarter of the current demand. Those SRs that we could not support would result in much more time needed by the PI to create a query, and in lower quality searches and thus lower quality reviews. Our method can also be used for day-to-day searches and has been used to create specialist workshops on systematic literature retrieval.


Exploring LIS practitioner engagement with research –Lessons from a UK case study (P11)

Helen Buckley Woods, Andrew Booth School of Health and Related Research (ScHARR), University of Sheffield, Sheffield, United Kingdom [email protected]

Introduction. LIS academics and professionals across the globe share a need to understand how practitioners engage with research. In 2013 a research team from the University of Sheffield was commissioned by the UK CILIP Library and Information Research Group (LIRG) to conduct a research scan to address the question “What do LIS Practitioners want from research?” The team, comprising an academic and an LIS practitioner, conducted a scoping review of current literature (2010-12), augmented by an investigation of ephemeral material. Research methods. Initial data was gathered from bibliographic database searching with 142 papers identified as relevant. Papers were coded against bespoke frameworks and mapped against the research questions. Ephemeral material was also explored using a systematic approach, in order to find evidence not available through database searching. Aim and scope of presentation. This poster presentation will describe and evaluate particular methods to expand the horizons typically offered by a literature scanning exercise thus compensating for the limitations commonly encountered by this type of activity. Noteworthy elements of the methods/methodology will be shared from the key stages of the project along with findings from the research of most relevance to a European audience. Conclusion. This case study offers one exemplar for other information professionals who wish to investigate the relationship between practitioners and research, or indeed any area of professional activity that may be imperfectly captured from a literature-only scanning approach.



Facilitating access to high quality health system and public health evidence for decision makers (P51)

Maria Camerlingo Health and Social Regional Agency, Regional Observatory for Innovation, Bologna, Italy mailto:[email protected]

Evidence-informed health policymaking is an approach to policy decisions that aims to ensure that decision making is well-informed by the best available research evidence. Knowledge transfer is a process by which relevant research information is made available and accessible for practice, planning, and policy-making. An appropriate approach to effective and sustainable knowledge transfer may be the development of research knowledge infrastructures by healthcare systems that address the needs of their various stakeholders. Library and information services play an important role in the support, dissemination and application of health research. The Health and Social Regional Agency of Emilia-Romagna is going to implement an information service (research knowledge infrastructure) to facilitate access, dissemination, exchange, and use of evidence. The service will include electronic databases and search engines in a specific field. The aim and scope of this contribution is to improve medical information sciences by offering a new method to summarise “at a glance” the body of evidence in order to support prioritizaton of research and decision making.



First-quality information to foster collaboration, participation and capacity building in the patient community (P67)

Rosaria Rosanna Cammarano (1), Eugenio Carrani (1), Mauro Ceccanti (2), Alessandra Ceccarini (1), Rosaria Ciccarelli (2), Maurella Della Seta (1), Simona Deodati (1), Corrado Di Benedetto (1), Luca Felici (1), Arnold Knijn (1), Tania Lopez (2), Scilla Pizzarelli (1), Letizia Sampaolo (1), Antonio Sette (1) (1) Istituto Superiore di Sanità, Rome, Italy [email protected] (2) Dipartimento di Medicina Clinica, Sapienza Università di Roma, Rome, Italy

Introduction. As to Healthy People 2010, Health Literacy is “the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions”. Given the complexity of national health systems, health literacy plays an active role in health promotion, and through the patients and citizens empowerment, can improve health quality, efficiency and outcomes, thus contributing to reduce health inequalities. Aim. Through a pioneering pack of tools, the Project aims at: collecting and organizing the existing health information; developing a portal as an Italian reference point granting easy access to comprehensive bio-medical information; developing a training pathway to enhance participants health information retrieval; developing a patient-friendly educational multimedia toolkit on biomedical information; providing subject approach for information retrieval by information indexation based on the Italian Translation of MeSH Thesaurus. Methods. The Project includes three research areas: data collection, organization and validation through the analysis and selection of macro-areas of interest according to the National Health Plan of the Ministry of Health; development of a software suitable for an heterogeneous system architecture; training methodology combining face-to-face training with hands-on sessions, also utilizing a cascade pattern. Discussion. The project makes use of a groundbreaker pack of tools within the Italian scenario of patient-targeted biomedical information. Given the core objective of this project, the expected outcomes concern a higher citizens health awareness and empowerment, allowing their role in the implementation of patient-centered clinical research strategies, approval processes, access to treatments and treatment optimization. This contribution will be of particular interest to those medical librarians and information specialists willing to establish a training program especially addressed to patients. Although the development of an e-portal devoted to citizens and patients is not a new idea, it is new for our country and it is innovative in software development.


Conclusions. Based on the 2011-13 National Health Plan – that mentions the aim of expanding, consolidating and spreading information, and boosting citizens participation – the setting up of a modular and dynamic web resource on health information besides responding to these aims, is deemed able to increase personal and collective consciousness of disease and health status, improve healthy lifestyles and patient compliance, and reduce health care costs.


HINARI usage in WHO EURO Region (P120)

Gaby Caro HINARI Technical Officer, WHO HQ Library, Geneva, Switzerland [email protected]

Aim and scope. HINARI is a virtual library and currently at the World Health Organization, we are interested in measuring the impact of the trainings that we have been doing in the last 10 years. Summary. The Health Access to Research programme (HINARI) is a public-private partnership set up by the World Health Organization (WHO) together with major publishers, Yale University Library, the International Association of Scientific, Technical & Medical Publishers and Microsoft. HINARI enables developing countries to gain access to one of the world's largest collections of biomedical and health literature. Currently 116 eligible countries around the world. In WHO EURO Region, 14 countries have access to HINARI. We are following up on the poster presented at EAHIL 2010 "HINARI: Increasing awareness in Eastern Europe". From that time onwards, the HINARI Team have been working to that goal. Today after almost four years we would like to demonstrate how the figures and usage statistics have been affected by outreach and training activities. HINARI Usage Analysis for EURO countries. Currently, HINARI is available for 116 countries around the world, 13 out of these are in the WHO EURO Region (11%). − HINARI Training workshops started in Nov. 2009. − 2009 at Republic of Moldova. − 2012 Sub-Regional Workshop at Kyrgyzstan, Uzbekistan & Tajikistan. − 2013 at Albania and The Former Yugoslav Republic of Macedonia. − 2014 at Montenegro and Bosnia and Herzegovina. − Six national training workshops during this period. − EURO Registered institutions = 432. − From Jan. 2002 to Oct. 2009 = 256 registered institutions = 59% (almost 8

years). − From Nov. 2009 to Dec. 2013 = 176 new registered institutions = 41% (4 years). Usage statistics. The Logins (a Login is a single session accessing the website and proceeding through the site via internal links) statistics information were analysed from June 2007 to Oct. 2009 and from Nov. 2009 to Nov. 2013 (before and after the trainings). Each country increased its usage in at least 50% during the second period.


Implementation of the LOINC Italian version into the national EHR infrastructure: analysis of the results and evaluation of the social impact of the new e-health technologies (P66)

Maria Teresa Chiaravalloti Consiglio Nazionale delle Ricerche (CNR), Istituto di Calcolo e Reti ad Alte Prestazioni (ICAR), Rende, CS, Italy [email protected]

Introduction. Biomedical terminologies and classification systems have the important role to transmit, in a unique and standardized way, information that needs to be registered, pooled and reused within health information systems. This paper describes the process of implementing LOINC® (Logical Observation Identifiers Names and Codes), the most used international standard for clinical and laboratory tests encoding, into some Italian laboratories to guarantee semantic interoperability of the electronic clinical documents within the national technological Electronic Health Record (EHR) infrastructure. Aim. This research activity aims at demonstrating the important role played by coding and classification systems into the healthcare digitalization process. This paper describes the introduction of the LOINC Italian version into some laboratories, chosen for the test phase. Mapping their local tests to the standard allows to overcome the idiosyncrasy of laboratories’ local codes and to have laboratory observations meaningfully identified through unique and internationally interoperable codes, which can be used in the electronic clinical documents, structured according to HL7 (Health Level Seven) CDA2 (Clinical Document Architecture release 2) standard, for their efficient integration into the national EHR technological infrastructure. Methods. This work is based on methodology and results deriving from the CNR project InFSE (Infrastruttura tecnologica del Fascicolo Sanitario Elettronico) and is focused on: a) the training activities aiming at introducing the use of LOINC into laboratories, b) the analysis and validation of the results gained through mapping operations, c) the evaluation of the sociological dimension related to the introduction of e-health technologies into the everyday work activities of healthcare professionals. Conclusions. The chance to identify clinical information in a precise way, controlling at the same time healthcare costs, makes LOINC codes the key element for clinical and laboratory tests encoding to realize a modern, digitalized and interoperable healthcare system. The case study shows how numerous criticalities, that could arise during the process, can be easily solved if experts from different domains cooperate to balance requirements of standardized vocabularies and needs of their local destination environment.


ETHIC – Evaluation Tool of Health Information for Consumers. Development, features and validation (P81)

Simone Cocchi (1), Mauro Mazzocut (2), Chiara Cipolat Mis (2), Ivana Truccolo (2), Elena Cervi (1), Rita Iori (1), Danilo Orlandini (3) (1) Medical Library, IRCCS Arcispedale Santa Maria Nuova, Research Hospital,

Reggio Emilia, Italy [email protected] (2) Scientific and Patients Library, Centro di Riferimento Oncologico (CRO),

National Cancer Institute, Aviano (PN), Italy (3) Education and Health Innovation, IRCCS Arcispedale Santa Maria Nuova,

Research Hospital, Reggio Emilia, Italy

Introduction. In the last years, issues like Patient Information and Health Literacy are becoming more and more relevant. Good information is a fundamental component of the therapeutic process and Health Information issues are of strategic importance especially in social and cultural contexts characterized by low levels of literacy of the population, as the Italian one. Aim. ETHIC (Evaluation Tool of Health Information for Consumers) is an instrument designed and developed for the quality assessment of health information materials from a linguistic, textual and documentary point of view. The aim of this project is to provide bio-medical librarians and health information specialists with a tool that could be helpful in: − directing consumers toward the best information available; − supporting healthcare professionals in developing health information materials. Methods. ETHIC (now in version 1.0) allows to assess printed health information resources (e.g. booklets, depliants etc.) and consists of a checklist and an instruction manual. ETHIC: − has been drawn up according to the present literature; − is inspired to presently available tools (e.g. SAM, DISCERN etc.), publications

and guidelines on plain language writing; − embeds instruments (specifically calibrated on Italian language) for the

evaluation of text readability and lexical understandability; − embeds a specific instrument for the assessment of non-textual elements such

as tables (PMOSE/IKIRSCH). The checklist consists in 24 items, grouped in 5 sections (Transparency, Suitability, Documentary Features, Linguistic and Textual Features, Graphical Features). It is possible to assign 3 different scores to each single item. The scoring system allows to compare each other different information materials (total score, or section by section). The instruction manual: − shows how to perform the evaluation, item by item; − explains how to assign the correct score to each single item and when some

items cannot be applied;



− contains practical examples which can guide trough the evaluation process. ETHIC will undergo to a validation procedure (now being drawn) to prove its effectiveness and efficiency. Discussion. ETHIC could represent an effective tool for bio-medical librarians and health information specialists: − to assess the quality of information materials to be made available to

consumers; − to support healthcare professionals in drawing up health information materials

of increasing quality, suitable and comprehensible for patients/consumers; − to contribute in facilitating knowledge creation; − to enhance their professionals skills. Conclusions. The validation procedure is necessary to confirm the accuracy of development process and tool itself.


e-Bug: a web tool to empower students on antibiotic use (P53)

Paola De Castro, Maria Cristina Barbaro, Sandra Salinetti, Annamaria Carinci, Annalisa Pantosti Istituto Superiore di Sanità, Rome, Italy [email protected]

Introduction. Health information literacy is pivotal to promote life skills and healthy styles among different target audiences. Librarians, editors and research scientists can develop collaborative initiatives addressed to teachers and school children to improve awareness on health information literacy and contribute to create informed and empowered citizens. In this context, the European project e-Bug, developed by the Health Protection Agency in the UK, represents an interesting case. It provides school education resources to face antimicrobial resistance, an emerging key issue in public health. Methods. Educational packs on microbes, hygiene, spread and prevention of infections, together with a website with interactive games allow students to learn about responsible antibiotic use while having fun. The Istituto Superiore di Sanità, as Italian e-Bug partner, translated and adapted all web material to fit contents to the Italian context and disseminated e-Bug project in Italy through participation in conferences, organization of meetings, publications and production of ad hoc materials (i.e., a leaflet both in English and Italian). Objective. This project aims to improve young people’s understanding of the importance of responsible antibiotic use, thus helping society as a whole. Moreover, school librarians can benefit from sound and reliable information to help students in their study on microbes, hygiene, spread and prevention of infections. Conclusion. Now e-Bug project consists of a consortium of 28 countries thus guaranteeing a wide diffusion throughout Europe. During 2013 Italian e-Bug website had more than 3600 visits.


How relevant are relevance sorting options in scientific search engines (P113)

Isabelle de Kaenel, Pablo Iriarte Medical Library, University of Lausanne, Lausanne, Switzerland [email protected]

Introduction. In 2013 PubMed joined the other leading scientific search engines in providing relevance ranking in the display options for the results list. This poster attempts to evaluate this new relevance ranking option in comparison with similar functions in two other scientific databases: Web of Science and Embase.com. Background. Relevance ranking algorithms calculate some measures in order to display best matches first, followed by results ordered by decreasing probability of relevance to the query. These techniques have been mostly developed for engines handling unstructured web pages and full-text documents. How relevance ranking performs when it is adapted to structured bibliographic records? In PubMed the relevance sort order is based on an algorithm in which the frequency of search terms in citations and the field types containing these terms are weighted. In addition, recently published articles are given a somewhat higher weight in sorting. In Web of Science and Embase, the relevance ranking algorithms are apparently similar. Explanations in the help files of these search engines do not give much detailed information. None of these systems display relevance score as we can find in other engines. Methods. Three subject searches were performed in PubMed using the commonly used search features combining free text and controlled vocabulary. The searches were adapted for Web of Science and Embase.com. Topics included orthopaedics, drug therapy and laboratory animal welfare. For each topic a referee chose the top 5 citations he would like to find in the first 30 results. The queries were tested to retrieve these selected citations and were sufficiently focused to produce relatively small results sets from the databases (less than 300). Then we compared the total number of hits, the number of unique citations in each search engine and the number of common references. Then the first 30 records ranked by relevance were compared for each database. Results. All search engines failed to display the 5 selected citations in the first 30 result page for the three subject searches. It is not proven that relevance ranking will ensure that users can automatically find the best matches available in bibliographic databases. It is a tool among others to assist the search process.


Health information support service to empower patients (P2)

Uma Devalapalli Patricia Bowen Library & Knowledge Service, West Middlesex University Hospital, Isleworth, Middlesex, United Kingdom [email protected]

Information for patients is at the heart of modern National Health Service in Great Britain. Good quality information which is reliable, timely, relevant and easy to understand is essential to promote self-care, shared-decision-making, medication adherence, recovery and patients’ well-being. With this objective in mind, the Patricia Bowen Library at West Middlesex Hospital in United Kingdom has taken up various Health Information Support projects like development of “Health Information Library” online website and providing tailor made “health information directly to patients”. One such project is to provide health information to Cardiology inpatients to assist in empowering them with evidence based high quality health information. After evaluating the information provided, the librarians made few recommendations on provision of health information to further improve the health outcomes of the patients.


Teaching information literacy – for the benefit of the future profession and lifelong learning? (P123)

Madeleine du Toit, Helena Rydberg Malmö University, Malmö, Sweden [email protected] [email protected]

Introduction. Lifelong learning is a core concept nowadays. In a world changing rapidly one of the assignments of higher education institutions is to stimulate and encourage the students to lifelong learning. To train the students in information searching and information evaluation are therefore important tasks for university librarians. Do we teach for the future that awaits the students? Aim. To examine under what conditions graduated dentists, dental hygienists and dental technicians search for needed scientific information. A study was made to investigate to what information resources they have access, and how they experience the information literacy training in retrospect. Our aim was to be able to evaluate our teaching in information searching. Are the information literacy skills that they learned during their education useful in their daily work? Methods. An online web survey was sent to 164 students that had graduated from the Faculty of Odontology at Malmo University during the period 2005-2009. The survey consisted by 11 questions whereof 6 allowed comments. 97 persons (21 dental hygienists, 58 dentists and 18 dental technicians) responded which resulted in a response rate of 46%. Results and discussion. The mostly used information resources are Google, colleagues, books and journals. PubMed is the mostly used database. The use of other databases (Cinahl, Cochrane, ScienceDirect, Sociological abstracts and Web of Science) is very scarce. Dentists are the ones who most frequently seek information in books and journals. 79% of the respondents answer that they benefit from what they learned through the library's instruction and guidance in their work. However, lack of time often determines how often, and where, the information searching is conducted. Many of the respondents express that they have forgotten what they learned in information searching during their studies and commented that refreshing these skills would be beneficial. Conclusions. How can we follow up the results from the survey? Inform of the services libraries provide such as walk-in-use to databases,

interlibrary loans and book lending. Conduct refresher courses in information searching for alumni. Inform in what way free search engines or databases can be used for retrieving

scientific information. Highlight open access medical journals.




Budget shrinking – does the jump to an open source citation manager worth it? (P105)

Nicolas Ariste Fairon, Patrice Chalon Belgium Health Care Knowledge Centre, Brussels, Belgium [email protected]

Introduction. In 2004 the Belgian Healthcare Knowledge Centre (KCE) made the choice of EndNote as its reference manager software among a list of 6 candidates. Since then, the software has been updated twice up to the EndNote X4 version. Today, we are considering an update of our software but as a public institution depending on public funding, the KCE has to take part of a global effort to reduce costs in public sector. Among other actions, the move to open source software is considered whenever possible. As an important tool in the publication process, the reference software should not be replaced without a thoroughful evaluation. Other aspects than licence cost must be considered, such as features and training. The presentation will describe the steps in this evaluation process, with an emphasis on the retained evaluation criteria in order to answer the following question “Is Zotero or Mendeley a good alternative to Endnote for our team?”. Methods. In order to evaluate possible candidates rigorously and with an Evidence-Based mindset, we designed a methodology based on an analytic hierarchy process. To do so we defined a set of features of the different aspects perfect reference management software should have to meet our institution needs. Features were grouped in higher categories: user interface, collaboration, import and export, publishing, performances and scalability, security, documentation and budget. A weight was assigned to each feature in order to compute a score for each software and to choose the one with the highest score as our new reference management software. Some of the features were considered as critical and all candidates must comply with our needs for these features. These critical features are the handling of big databases (at least 3000 references) and the ability to design custom import and export filters. Conclusions. The evaluation procedure we decided to follow has been shorter than we expected. Indeed, the main competitors to EndNote X7 failed quickly due to weaknesses on features we consider as critical: performances and custom importation filters. Endnote X7 is for now the reference management software which, even if not perfect, fulfil our needs at best. As the softwares in this domain quickly evolve we keep looking at the upgrades and new software coming on the market.



Anatomical tables in the Rare Book Collection of the ISS Library (P91)

Rosalia Ferrara, Maria Alessandra Falcone, Ornella Ferrari, Paola Ferrari, Donatella Gentili, Maria Salvatorina Graziani, Maria Letizia Putti Istituto Superiore di Sanità, Rome, Italy [email protected]

Introduction. The Rare Book Collection belonging to the Library of the Istituto Superiore di Sanità, the Italian National Institute of Health, consists of over 1,000 printed volumes published between the XVIth and the XIXth century. The Collection mainly covers medical and health-related subjects, among which human anatomy is widely represented. The Library’s anatomical collection consists of several illustrated atlases dating from the XVIth to the XIXth century and 17 anatomical sketches drawn by the sculptor Antonio Canova (1757-1822) in his youth. Aim. This poster presents the Library’s anatomical collection which includes some of the most important representations made by renowned authors from Andreas Vesalius (1514-1564), the founder of modern anatomy, to Paolo Mascagni (1755-1815). It has been designed to illustrate the collection, choosing from the atlases some of the most important images to be highlighted. The study is completed by the Canova’s precious drawings that give further luster to the Library Fund and are indisputable masterpieces of a competent scientific study of the human body that serves art. Methods. The anatomical atlases in the Rare Book Collection have been identified through the Library's catalogue. The images in the poster have been selected from the Library’s collection, principally for their historical and artistic significance, giving priority to the most relevant authors in the history of anatomy. Conclusions. The tables owned by the Library testify that anatomical studies throughout the centuries have been fundamental both for scientists and artists whose cooperation represented a significant moment in the history of science. Despite their different purposes, anatomists and artists have often worked together to investigate the human body producing images that combined medical knowledge and art.


Partnerships in academic libraries: the librarian in research teams (P103)

Jette Frost Jepsen, Louise Stenholt, Marianne Buschmann Nielsen, Conni Skrubbeltrang

Medical Library, Aalborg University Hospital, Aalborg, Denmark [email protected]

Introduction and aim. Partnerships between libraries and research teams have become an established part of the academic libraries’ portfolio of services. It is also a part of the Medical Library Association’s official policy statement. The Medical Library at Aalborg University Hospital initiated the project “Research Librarian” to study and develop the library’s research support as a core service. Though research support is well incorporated in our daily service, we wanted to structure and enhance it as a complete package solution. Methods. In the study we formed partnerships with researchers from three medical specialties; Cardiology, Nuclear Medicine and Psychiatry with the projects “Lung cancer”, “New oral anticoagulants” and “Clozapine”. The three projects were all initiated with meetings between researchers and librarians to identify the information needs using PICO and from that point the librarians handled the searches. We suggested relevant databases and filled in forms with search terms and synonyms for each database and sent them to the researchers for approval. After performing the searches we imported the files to RefWorks and removed duplicates. Eventually we outlined search protocols and presented the results in flowcharts. To evaluate the outcome of the project we conducted semi-structured interviews with the participating researchers. Results. The participants valued our partnership because it strengthened the scientific basis in their research projects by providing more exhaustive and well-documented searches in more databases. Usually the researchers themselves performed random searches with only few search terms in one database. The researchers accepted the increased workload associated with the larger result sets, because of the higher quality. By participating in this project we have become increasingly experienced with a wider selection of databases, as in the past we usually included only few databases in our searches. Furthermore we developed filters for specific document types in some databases for future use. Our findings were outlined in a “cookbook” in order to document and facilitate future librarian-researcher partnerships. It contains chronological checklists and templates for search protocols and flowcharts. The different procedures are presented in text as well as in graphics. Conclusions. This project has made it evident to the researchers that the medical library provides research support as a package solution. Our work and expert knowledge is time-saving for the researchers and improves the quality of their projects. Prospectively we want to use our “cookbook” to promote our research support and offer a more consistent service to the researchers.


Working together to improve public access to health information: case studies from Africa (P114)

Nasra Gathoni (1), Shane Godbolt (2), Jean Newman (3), Jean Shaw (2) (1) Association of Health Information & Libraries in Africa (AHILA) [email protected] (2) Partnerships in Health Information (Phi) [email protected] (3) Kenya Health Information Partnership (Ken-HIP)

The policy shift to the promotion of good health and the prevention of disease is a complex one requiring greater cooperation between health information specialists in different sectors and a willingness to work in partnerships with others. The Association of Health Information and Libraries in Africa (AHILA) works across Africa and its aims are similar to EAHIL. AHILA encourages health librarians to form Country Chapters of AHILA which are proactive within their home countries. This involves major challenges as health librarians are few and scattered. The poster focuses on case studies demonstrating the impact of librarians working in partnerships in which projects with African leadership and based on co-development, have been delivered in Africa. The first case study showcases Kenya and the work of their country chapter, Ken-AHILA with a consortium of UK health librarians, Partnerships in Health Information (Phi) and the US National Library of Medicine, which has improved access for patients & public. The second study focuses on Zambia and alliance building work with AHILA, Phi & the Information Training & Outreach Centre for Africa (ITOCA) which has maximised synergy in projects and brought links with the UK’s Tropical Health and Education Trust (THET). Partnerships contribute to enhancing professional skills and abilities needed for working within multiple networks at local, national, regional and international levels to achieve shared goals. Lessons learnt are transferable and are applicable in both high and low resource settings.




The Bibliosan 2.0 project: online tools for librarians, researchers and health professionals (P34)

Donatella Gentili, Annarita Barbaro, Chiara Rebuffi Istituto Superiore di Sanità, Rome, Italy [email protected]

Introduction. Recently the potential of Web 2.0 technologies for collaboration and communication has become widely recognised. Social media offer the scientific community the opportunity to utilise new tools that can transform the way they collaborate and share their knowledge. The volume of information that can be retrieved online is potentially overwhelming and social media can also be a powerful tool to manage it. Aim. The aim of this poster is to present an approach to filtering and aggregating Web 2.0 tools and technologies in a website (http://bibliosan20.wordpress.com/, online since April 2013) in order to share knowledge with and improve the skills of librarians, researchers and health professionals. Methods. The first step of the Bibliosan 2.0 project, funded by the Italian Ministry of Health, was the creation of a website to collect all the resources we had selected. We decided to utilise Wordpress, the free and open source blogging tool. We adopted a very targeted, strategic approach in selecting which tools to present, keeping in mind that our audience is made up of librarians, researchers and health professionals. We used some of the same tools we are promoting to provide guidance to this audience: a blog, Twitter, RSS, Delicious to collect useful links, and Zotero to organize selected bibliographical references. Regarding the material selected, we decided to consider only free, reliable and regularly updated resources. We presented the tools and information in two sections: Risorse per l’aggiornamento (resources for staying up-to-date) and Risorse per la condivisione (sharing resources) to help our audience in content retrieval. We have also provided tutorials related to the selected tools and a glossary. In November 2013, we conducted, via SurveyMonkey, an online survey in order to receive a feedback on our first year’s activity. Conclusions. The survey results gave us an insight into the issues our users are experiencing accessing information via social networks, regarding their lack of knowledge of these tools (especially Twitter), as well as their institutions’ policies of banning access to some social media. We therefore decided to concentrate on the blog as a disseminating tool even though we believe that Twitter is an extremely effective vehicle for communicating up-to-the-minute news and to be constantly updated. Next step will be the organisation of training sessions to educate users on the Web 2.0 tools.

http://bibliosan20.wordpress.com/


Health technology assessment reports: update, bias and visibility (P124)

Alicia F. Gómez-Sánchez (1), Rebeca Isabel-Gómez (2)

(1) Fundación Centro Nacional de Investigación Cardiovascular (CNIC), Madrid, Spain

[email protected] (2) Agencia de Evaluación de Tecnologías Sanitarias de Andalucía (AETSA),

Sevilla, Spain [email protected]

Background. The constant increase of Systematic Reviews (SR) published in Health Technology Assessment (HTA) reports highlights the need to select qualitatively the studies supplied for answering a research question. We go over the work of the main European Health Technology Assessment Agencies and their publications. Health Technology Assessment (HTA) reports are a great source of information that includes several types of documents, especially systematic reviews. Aim. To analyze visibility and publication delays of SR in HTA reports, synopses and summaries, until they reach end users for guiding decision making. Given the fact that the publication of EBM HTA reports suffers some delays, we analyze the reasons for these delays, providing reliable data to clarify and quantify the reasons for it. Method. We ran a search in the CDR-databases for SR published on HTA reports of the European agencies for the period 2009-2012. We analyzed publication dates and we also reviewed the time required to appear in synthesis and summaries. Results. The mean delay to do a SR is about 2 years, time until publication must be added, and further the way to transfer into synopses of syntheses or summaries. We also analyze the visibility in the major biomedical DBs and we found that these resources should have a greater visibility among medical librarians. Finally, we want to note that the classification of the main evidence-based practice resources is based on the EBM 6S hierarchy model. Conclusions. Since the update and lack of bias are essential in making EBM decisions, the usual delay in the publication of SR on HTA reports can reduce their utility, this should be speeded up and their visibility increased.


Roles of health sciences librarians. United at work, united in the information. Do we do the same? (P100)

Mar González-Cantalejo (1), Juan-María De-la-Cámara-De-las-Heras (2), Enrique España-Álvarez (3) (1) Biblioteca Hospital Universitario Miguel Servet, Zaragoza, Aragón, Spain [email protected] (2) Biblioteca Hospital Universitario de la Ribera, Alzira, Valencia, Spain (3) Biblioteca del Departamento de Salud, Dénia, Valencia, Spain

Introduction. The 21st century imposes new great challenges to the biomedical librarians. This paper tries to reflect the roles of these professionals in two different Spanish regions, Valencia and Aragon, following the working lines of EAHIL and their study of the current biomedical librarian profile. Objectives. The objectives of the poster are: a) to identify the different roles of the current biomedical librarian, b) to describe their professional competences within their organizations c) to detect the possible incorporation of emerging roles as well as the barriers found to assume them, in two different Spanish regions, Valencia and Aragón. Methodology. A descriptive study was carried out. Firstly, we focused our research on hospital libraries and on the Virtual Health Libraries of both regions, which are in the Health Sciences Spanish Collective Catalogue (C17). Secondly, we set up an online survey to collect information on the daily activities performed by the librarians in the selected libraries. The surveys were sent to the heads of these libraries.The survey consisted of 7 questions, multiple choice questions and closed questions, and it was launched through the online survey site “EncuestaFacil”, http://www.encuestafacil.com. Based on the data, these items were measured: type of library in which librarians work; type of users; professional refresher courses, type of training; daily work activities; areas of skill improvement. Discussion. A total of 24 libraries were initially selected for the survey, 18 contributed to our study. It shows a participation of the 75% (100% Aragon, 70% Valencia). Both the Valencia and the Aragon region have similar results in terms of users they service, and knowledge updating (self-learning). In the section of most frequent daily work activities, Valencia has higher frequency in technical library work and literature searches; Aragon in literature searches and social media. Both match the literature searches and technical library work, within the three main activities. In the area of learning reinforcement the study highlights new technologies and copyright licenses, followed in smaller proportion by e-teaching, smart phone’s and tablets apps, inter alia. The responses extracted from these two


http://www.encuestafacil.com/


regions, as a sample of librarians in Health Sciences, lead us to the conclusion that our profession begins to evolve, but very slowly. Reflect the librarians’ restlessness to take on new emerging roles in our changing and continuous beta version working environment, getting out of their comfort zone. The lack of time is the biggest barrier that biomedical librarians face when trying to adopt new roles. These new roles are also are associated with increased collaboration with individuals and/or groups outside the library.


Health literacy and its impact on health care (P44)

Güssün Güneş (1), Huriye Çolaklar (2), Bahar Biçen Aras (3), Abdullah Turan (4) (1) Marmara University, İstanbul, Göztepe Turkey [email protected] (2) İstanbul University, İstanbul, Çapa Turkey [email protected] (3) İstanbul, Beşiktaş Turkey [email protected] (4) Bilgi University, İstanbul, Kuştepe, Turkey [email protected]

The structures of health systems today are highly complicated, both for current users of health services and for future users. Health systems require individuals to adopt new roles – becoming informed about the services offered, being knowledgeable about their responsibilities and rights within the system, and being able to make decisions about their own health. At this point, then, it is important that people become “health-literate”. This is necessary because it is clear that changing health systems require improvements in the health literacy levels of society. The work initiated in the 1950’s in Turkey on “Health Literacy” entered the medical literature in 1974. Although there is a considerable volume of research and scientific studies that have been undertaken outside of Turkey on this subject, health literacy is a relatively new concept in Turkey and Turkish testing and research related to this concept are still inadequate. It is for this reason that it is difficult for the public to reach and access data on health literacy. This study reviews the scientific studies on health literacy in Turkey and evaluates the significance of the concept in terms of patient well-being and health professionals.




CATs: an educational instrument for Evidence-Based Practice (EBP) (P94)

Marion Heijmans (1), Hans Ket (2), Ingeborg van Dusseldorp (3) (1) Bibliotheek & InformatieCentrum, Leerhuis OMC, Orbis Medisch Centrum,

Sittard, The Netherlands [email protected] (2) Vrije Universiteit, University Library, Medical Library, Amsterdam, The Netherlands [email protected] (3) Medisch Centrum Leeuwarden, Kennis- en Informatiecentrum, Leeuwarden,

The Netherlands [email protected]

CATs (Critical Appraisal of a Topic, also known as Critically Appraised Topics) are well known as an educational instrument to teach medical students, interns and residents about finding, appraising and applying scientific research to patient care. In The Netherlands CATs are obligatory for residents during their training to become a specialist. In higher education for nurses CATs are gradually also introduced. Information specialists are regularly involved in the CAT-training and -searching of residents and interns. We need to establish the role and the importance of CATs for nursing education and for evidence-based practice (EBP) as well and we need to integrate the role of the information specialist in the process. Therefore we sent a questionnaire to the schools for nursing education and established the integration of CATs in the nurses curriculum. We also informed ourselves about the role of EBP in the improvement of the quality of patient care. There is really no research done about the worth and evidence of CATs as a useful educational instrument. The role of the information specialist in CATs becomes gradually more apparent and the role of the information specialist in nursing education and application of evidence, in for example guidelines, becomes more apparent too. But there is definitely real strong evidence needed to proof the value of the information specialist’s role for nurses and, through nurses, for patient care.





HealthAware and DiasMundialesDe: promoting health awareness through social media and collaboration around the world (P19)

Bonnie Heim (1), José Manuel Estrada (2), Eulália Grifol (3), Mª Belén Jaén (4), Juan Medino (5), Elena Primo (4), Cristina Puyal (6), Leonor Roa (7), Montaña Vivas (8) (1) Queensland Health, Brisbane, Australia [email protected] (2) Hospital Universitario Doce de Octubre, Madrid, Spain (3) Hospital Universitario Fundación Alcorcón, Madrid, Spain (4) Biblioteca Nacional de Ciencias de la Salud, Madrid, Spain (5) Hospital Universitario de Fuenlabrada, Madrid, Spain (6) Hospital Universitari Vall d'Hebron, Barcelona, Spain (7) Hospital de Torrejón, Madrid, Spain (8) Hospital San Pedro de Alcántara, Cáceres, Spain

Australian HealthAware (HA) and Spanish DiasMundialesDe (DMD) are two web resources created by Health Librarians to collect and disseminate information on health promotion. Using international days dedicated to diseases as a starting point, they emerged separately (on opposite sides of the world) as they saw the need to collect and review online information on health promotion. HA is characterized by its global focus of event information, and DMD specialises in selecting days and expanding information. Though results differ, they share basic principles in source selection; revisions; web 2.0 dissemination to health professionals and citizens; and preparation by health information specialists. They met through Twitter and found through collaboration a complementary vision and have reaffirmed the benefits of cooperation. Transformation in the world of information requires reorienting library functions to new challenges where they can generate new and dynamic information resources. The aim of the presentation is to show, compare and contrast ways that two projects have spread health awareness information using web 2.0 tools and social media. We have emphasised and refocused medical libraries functions and services to generate quality information that is proactive and timely. In addition, the benefits of cooperation with other professionals in a multidisciplinary framework were realised during the generation of these resources.


The “S&I Bibliosan” Project: improving the library performance, in Italian biomedical research network, through monitoring and support (P49)

Anna Julia Heymann, Raoul Ciappelloni, Moreno Curti, Nadia Gaggioli, Nadia Montanucci, Luigi Spaccini, Luisa Fruttini Istituto Zooprofilattico Umbria e Marche, Perugia, Italy [email protected]

In 2003 Bibliosan (the Ministry of Health Research Institute Libraries Network) had 52 libraries. Today it includes 66 biomedical libraries and is the only Network of this kind, across the entire national territory. The investment, supported by the Ministry of Health for the purchase of more than 5,000 journals and online databases, required the establishment of an Evaluation Team. This team is responsible for monitoring the System, so that informational resources are used for the best and available for all the consortium members. The “S&I Bibliosan” started in 2012 in order to enforce the standards set by the Ministry encouraging the improvement of the libraries performance across Bibliosan Network. Thanks to “S&I Bibliosan”, critical cases, needed of corrective have been identified. In the first year, critical points such as: updating of the personnel, the actual availability of resources and equipment, training programs for operators and users, were monitored. The paper has the aim of highlight strategies capable to generate an informational flow for the adjournment of librarians (and users) of the medical libraries, in Italy. We suggest to facilitate the access to citation data, and the interaction within the Bibliosan Network, through methods and tools, based on information exchange between stakeholder. Finally, the trend which brought the Bibliosan System to become one of the most important resource for scientific information, is outlined; so as to suggest its application in other public health institutions. Finally we try to propose a range of quality performance indicators for medical libraries in Italy.


Evaluating the impact of a scientific institution by use of free web tools (P3)

Luc Hourlay, Patrice Chalon Belgian Health Care Knowledge Centre, Brussels, Belgium [email protected]

Introduction. The Belgian Health Care Knowledge Center (KCE) is a federal institution established in 2003 that produces studies and reports to advice policy-makers about health care and health insurance. Aims. To describe a model of tools that allows to look at what is said about an organisation on the web and social media and expose the experience gained after more than one year of testing. Methods. A general model of monitoring has been defined and produced with a selection of free web tools as modular elements. In a second step, queries have been created to monitor the impact of the institution, or a specific publication. Identified items are curate by the librarian for dissemination to the patrons through various channels. Use and utility of the curated items have been evaluated through a survey of patrons. Discussion. After one year of operations, the system allowed to identify 924 items related to our institution or its scientific reports; from them 229 were not already identified through a standard press review. The communication manager at the origin of the project was very pleased with these results. They permitted to identify unexpected groups debating on our reports; also false information was identified, and corrected by the editors. The selection of information sources and the tool’s maintenance requires a significant time investment. In addition, the use of free tools, that can be seen as an advantage, must be weighed against a possible lack of continuity or maintenance. However, failing applications can be replaced by an equivalent; but not necessarily with exactly the same options. The three types of audiences targeted by the tool does not valued it in the same way. The management accesses to the information but items are rarely useful. For the researchers the information proposed is interesting but rarely useful in their daily work environment. The staff of the institution in its majority doesn’t consult it. Conclusions. The modular structure has proven its effectiveness, but the workload is high and the benefits for customers are not always obvious. In the specific context of our institution, the balance cost/benefit is not fully visible and should lead to assess the interest of maintaining these tools. But from a broader point of view, free tools helped to test the need without having to buy costly professional tool.



Supporting researchers – back to the future! (P10)

Yvonne Hultman Özek, Carola Tilgmann, Matthias Bank Library & ICT, Faculty of Medicine, Lund University, Lund, Sweden [email protected]

Introduction. Traditionally, the academic librarian has served as an information specialist working in close professional contact with researchers to provide support in the process of scientific investigation. When the Internet entered the academic world, the belief emerged that researchers could handle information on their own. Thus, the value of personal professional interaction between the academic librarian and the researcher diminished and was no longer prioritized in the library organization. The support provided by academic librarians shifted to represent a more service-oriented relationship. Concomitantly, the researchers regarded lack of time as the predominant factor interfering with their ability to improve their information retrieval skills in order to stay updated in their field. By looking back on the value of having a professional role as information specialists interacting closely with researchers, we can recreate, develop, and expand the support we offer in the future. Background. The Lund University Libraries network completed a project in 2013. The aim of that work was to identify areas that needed to be strengthened and developed to support researchers. We analyzed the results related to the Faculty of Medicine, focusing specifically on the local setting and the researchers’ need for support within the health sciences and medicine which led to initiation of the present in-depth study. Aim. The aim of our current project is to gain a better understanding of the researchers´ needs of tailored support in their scientific process. Further, we want to identify what expertise and knowledge are needed in the organization in order to provide and develop professional support. The study also aims at an understanding of how the organization should carry out continued professional development and strategic planning for future recruitments. Method. We are conducting individual semi-structured interviews with selected researchers working in the areas of health sciences and medicine. Preliminary results. The researchers at the Faculty of Medicine are heterogeneous with respect to their publishing practices, information retrieval behavior, use of scientific methods, and approaches for evaluating research. Our results thus far show that there is uncertainty among the researchers with regard to the individual skills of the librarians and the concrete ways in which the library can provide support. A continued professional development program for the librarians is a necessity.


Book an information specialist service: supporting researchers’ and future researchers’ information skills (P30)

Saila Huuskonen, Maritta Tuhkio Department of Health Sciences, Tampere University Library, Tampere, Finland [email protected] and [email protected]

Introduction. The Branch Library of Health Sciences at University of Tampere provides services for biotechnology, health sciences, medical and nursing students and faculty members and university hospital staff. Book an information specialist service was implemented in 2009. In this service, the information specialists offer tailored guidance to researchers, PhD-students, Masters - and Bachelor students, and hospital staff e.g. about information retrieval and reference management. The first one hour of the service is free of charge. Commonly, clients book the service through Internet form or contacting by e-mail. Aim. The purpose of our poster is to analyze the importance of this service for our clients from three perspectives: client’s reasons to use this service, their perceived benefits of it and their suggestions to further develop this service. Methods. The poster is based on three different kinds of data: statistics, “filled book a librarian forms” and questionnaire among the service users. The statistics on the service use is collected in the library and it provides background information about users such as amount, position and discipline. The filled Book an information specialist forms and consequent e-mails between an information specialist and a client are rich qualitative and natural data where clients describe their topics, search strategies in databases and their needs and reasons to turn to this specialist service. The short questionnaire about the service use, feedback and suggestions to further develop the service was conducted among clients. Altogether, there were 42 responses. Results. In 2013 there were 173 bookings for the information specialists, altogether 158 hours. The Book an information specialist service seems to respond to clients’ burning information needs in various kinds of research tasks. Clients want to e.g. strengthen confidence on their own skills and check their own already done search strategies in databases. The clients perceived that the service was very useful and supported them proceeding in their research tasks. Discussion. The findings enhanced our understanding of researchers’ and future researchers’ varied information needs but also the changing role of information specialists. Currently, specifically the nursing students have found Book an information specialist service. In the future, we aim to reach wider audience, like research groups. The role of information specialists has developed from a teacher to a consultant. Information specialists need pedagogical education and skills to be able to give both group and individual guidance for clients.


The modern information discovery tools for Lithuanian academic libraries: Lithuanian academic E-Library (Elaba) (P21)

Daiva Jurksaitiene Lithuanian University of Health Sciences Library and Information Centre, Kaunas, Lithuania [email protected]

Introduction. Now more than ever, libraries are facing the challenges of escalating user expectations, a diverse and rapidly expanding information universe, and the demand for increased operational efficiencies. To meet these challenges, libraries require an infrastructure that enables them to continue offering their services in a constantly evolving environment. So, in the May of 2012 a study group was set up within librarians and IT specialists to look into the future of discovery tools, which was posed tasks: quick and comfortable access to scientific literature and information; improve communication between education and research; to combine in one institutional e-repositories in each Consortia Library for university research output and study materials archiving, searching and open access for users. Aim. The aim of Lithuanian Academic e-Library (eLABa) is by the use of information and communication technologies to develop favorable conditions to disseminate more quickly the newest scientific knowledge and learning material, to improve the quality of research and higher education processes, to develop distance and lifelong learning, to promote the activity and achievements of Lithuanian scientists institutions of research, science and higher education, to educate e-Society and develop knowledge economy, to improve the quality of society’s life in general. Methods. In the autumn of 2013 eLABa was created developing Lithuanian Academic Libraries Network and Lithuanian Academic Libraries can offer their users with new innovative tool, providing the opportunity using the internet, World Wide Web, retrieve various information recourses, including full text documents. eLABa was integrated into Lithuanian Academic Libraries information retrieval system, thus combining into one search gateway all information resources – Electronic catalogues, Databases, Open Access and full text documents, archiving in the e-repositories in each Lithuanian Academic Library, for university research output, study materials and etc. eLABa is supporting Open Archives Initiative (OAI) standards and protocols and ensures the efficient dissemination of content allows metadata harvesting from different archives and is searchable in databases and search engines. It might contain pre/post-prints, book chapters, conference papers, etc. It ensures author self-archiving and institution self-archiving may post articles on behalf of authors. Conclusions. eLABa was created for Lithuanian Academic Libraries Consortia. It is very important as general searching engine and publications submitting tool for all scientists in Lithuanian academic institutions and for libraries readers.



Language-friendly web-site increases utilization of information (P117)

Tatyana V. Kaigorodova, Irina A. Kriukova, Ekaterina I. Zimina, Anastasia I. Korotkova WHO Documentation Centre based at the Public Health Research Institute of the Ministry of Health of the Russian Federation, Moscow, Russian Federation [email protected]

Aim. The aim of the study was to analyze utilization of WHO information by users of the WHO Documentation centre web-site. Methods. Statistical, bibliometrics and content analysis. Objectives: to analyze number of views and downloads of WHO publications by health

topics; to analyze number of views and downloads of selected WHO publications; to understand why some topics and publications are more popular among our

users. Results. Top health topics by views and downloads: Economics, Health care management and planning, Primary health care, Occupation health, Long term care, NCD prevention, Air quality. Top WHO publications by downloads include analytical reports, statistical materials, proceedings of conferences & workshops and handbooks. About 70% of top downloads materials were translated into Russian and merely 30% were available in English only. Therefore, translation of information into native language of the audience significantly increases its utilization. Results of our analysis help to identify health topics and specific publications for translation into native language to both effectively utilize recourses and better meet users’ demands for WHO information.


MLPubMed(fr): a PubMed third party for French language (and possibly others) (P109)

Gaétan Kerdelhué, Julien Grosjean, Stéfan J. Darmoni CISMeF, Rouen University Hospital & TIBS, LITIS EA 4108, Institute of Biomedical Research, University of Rouen, Rouen, France [email protected]

Background. English language has a preeminent role in health sciences publications. For example PubMed references more than 960,000 articles first published in 2013 and only 5% of them are written in another language. Furthermore interfaces and search engines of bibliographic databases are rarely translated. French speaking health professionals may use the CISMeF catalog (French acronym for Catalog and Index of French Language Health Resources on the Internet, http://doccismef.chu-rouen.fr/) but it is centered around free Internet resources and lacks bibliographic data. Objective. The objective of MLPubMed(fr) (Multilingual PubMed, French version) is to provide a bibliographic database that will be usable in a user-friendly environment in their native language (titles, MeSH keywords and interface). Moreover, the CISMeF search engine should improve the information retrieval compared to PubMed (semantic extensions, French querying strategies, etc.). Methods. More than 600,000 entries in French language were extracted from PubMed in XML format using the NCBI Entrez Programming Utilities. The resulting data were parsed and included in the CISMeF information system. A specific interface was then designed based on the existing CISMeF website. Results. MLPubMed(fr) is freely available on the Internet for health professionals (URL: http://doccismef.chu-rouen.fr/mlpubmed). Limits. Many data are still to be included in MLPubMed(fr) to make it comprehensive: abstracts in French language and bibliographic data coming from journals non indexed in PubMed. Both imply an active collaboration with publishers. MLPubMed(fr) usability and user-friendliness are yet to be perfected. Focus groups with physicians took place in December 2013. Their conclusions will help defining the most adapted interface. Perspective. New versions of Multilingual PubMed in other languages could be, should the need arise, easily set up using the same process.


http://doccismef.chu-rouen.fr/

http://doccismef.chu-rouen.fr/mlpubmed


Citation reports in easy way – Using ResearcherID for creating bibliometrics reports in Medical University of Lodz (P25)

Witold Kozakiewicz , Bogumila Bruc, Piotr Kolodziejski

Library of Medical University of Lodz, Lodz, Poland Introduction [email protected]

One of the indexes used for measurement of authors scientific value is number of citations and h-index. The accurate values of this indexes depend on proper identification of publications. Polish Ministry of Science and Higher Education points Web of Science as a reference database for evaluation purpose. To make preparing of citation reports easier and more efficient we decided to create ResearcherID for every author from Medical University of Lodz whose publications are indexed by Web of Knowledge. Aim. The main aim of creating ResearcherID was to ease the process of identification authors from our University and their publications. This would help librarians in creating bibliometric analyses for different purposes like reports for Ministry of Science and Higher Education, grant applications etc. We want to present how to use the well-known tool which is ResearcherID for evaluating publications and authors from different departments and institutes of Medical University of Lodz, and ease the process of identification authors and their publications. Methods. In cooperation with Thompson Reuters we prepared an XML file with list of authors from our university and plan to import it into the system. The whole process includes not only the simple import of data, but also the information and promotion among employees. To make the whole system work, all publications must be properly identified by their authors. Next step we plan is to connect commercial ResearcherID with a new, open initiative which is ORCID helping scientists and researchers with creating their own profile and importing data from databases like Web of Science or Scopus. Creating ResearcherID would be also good moment for promoting ORCID among researchers in our University. Discussion. Implementation process has two critical points that may lead to the failure of the project. First is cooperation with Thomson Reuters in importing of the data, second is cooperation with authors in identification process. The very important is also understanding and support of authorities of our university for these efforts. Conclusions. At the time of submission of the abstract (January 2014) the whole project is still in the implementation phase. We have a full acceptance of the university authorities, prepared and accepted plan of promotion of the project, and ongoing tests of data importing. The definitive conclusions and the final results will be presented at the Poster session.


Paving the Green Road – Implementation of self-archiving as a library service (P99)

Filip Kriz (1), Helena Bouzkova (1), Ondřej Horsak (1), Adela Jarolimkova (1), Lenka Maixnerova (1), Eva Lesenkova (1), Petr Lesny (2) (1) National Medical Library, Prague, Czech Republic [email protected] (2) Charles University, 2nd Faculty of Medicine, Prague, Czech Republic

National Medical Library (NML), Czech Republic, has implemented self-archiving as a service for Czech authors of biomedical research publications, supporting the Green OA Self-archiving mandate. The self-archiving service is composed from mainly Open Source components. A publication in the PDF format pre-print, post-print and even published version is conveniently submitted through Medvik web portal. Authorized submitter is guided through the process and is obliged to select a suitable Creative Commons license using the license chooser. Several steps are taken to ensure that the submitted material can be archived and made freely accessible for everyone using the CC license. The uploaded PDF file is transformed into an archiving package which is automatically imported into our Fedora Commons based digital library using Fedora API-M web service interface. The archived publications are integrated into Medvik portal and access statistics are collected to show a publication’s popularity. The NML’s Digital library Open Source system (Kramerius 4) is open to metadata harvesting through OAI-PMH standard and thus the archived publications can be promoted to higher level repositories, i.e. Open-AIRE and Czech Digital Library. Other functionalities have been implemented using integration of Scopus, Web of Science, JCR and Sherpa/RoMEO web services which allows to provide additional relevant information in a publication public view context. This contribution provides detailed overview of how to implement self-archiving as a standard library service. This contribution was supported by the Ministry of Health Internal Grant Agency, Czech Republic, project no. NT12345.


Patrons’ needs – Librarians’ challenges (P27)

Regina Küfner Lein (1), Hilde Wedvich (2), Christine Tarlebø Mjøs (1), Marion Mühlburger (1) (1) University of Bergen Library, Medical and Dental library, Bergen, Norway [email protected] (2) University of Bergen Library, Psychology, Education and Health Library,

Bergen, Norway

Our patrons' needs for librarian support are steadily increasing, as the patrons' student life and workplace is evolving with new demands and challenges. Users at the Medical library ask for literature searching with regard to different purposes, from student assignments to clinical procedures, doctoral thesis, systematic reviews and research. The variety of needs challenges the library. Library staff must possess sound knowledge in databases, and be familiar with search methods, used for systematic reviews, clinical procedures, HTAs or other projects. Despite a limited number of staff we have dedicated at least two librarians for each type of literature search. We teach students and staff in searching; we support by phone, email, personally, and offer a Book a librarian-service. We keep current by internal competence transfer, collaboration and informal talks. We also benefit from a national network for procedure searching. Data from a user survey showed that our users are highly satisfied. The variety of searching services provided by the library is good promotion of the library as a relevant partner within research.



Teaching a systematic approach to literature research: effective use of blended learning and integrated education (P26)

Jessica M. Langenhoff, Karin A.M. van der Hoorn Walaeus Library, Leiden University Medical Center, Leiden, The Netherlands [email protected]

At our university medical center, we as information specialists teach information literacy to our medicine and biomedical sciences students. The education we offer is based on the ACRL norms for information literacy and integrated in the curriculum. Integrating, together with the use of blended learning, is very efficient in helping students master information literacy skills. In many places, students are taught basic searching skills, making use of the basic search possibilities of bibliographical databases. We have chosen to teach students the systematic and advanced system of literature research we use ourselves. Starting with formulating a question and ending with documenting the search process, every phase of the research process is clear and reproducible. Acquiring this high level of literature research skills requires extensive training of students, by means of so-called “blended” learning. In blended learning, different educational activities are combined to have the best of all. Our team develops lectures, e-learning modules, assignments and methods to provide rich feedback. Themes are taken from the courses we are hosted in and references retrieved in the assignments are often input for presentations or other projects within the same course. Our biomedical sciences students start their academic scientific training, including literature research, in the very first week of the bachelor phase and improve their skills every year. Developing educational materials and teaching a diverse range of groups requires good educational skills and training, which we experience as an enrichment of our profession. Outside the curriculum, our e-learnings are available for home study for every student and professional who wants to improve his or her information literacy. Based on course evaluations and on literature, we have learned that both our approach of blended learning and the integration of information literacy in the students' curriculum, enhances students' motivation and educational performance. As a result, they can search for literature to support grant proposals, introductions and discussions with literature. After graduation, our students are information literate scientists, knowing how to cooperate with an information specialist when they have to perform comprehensive searches for systematic reviews and meta-analyses. The cooperation of information specialists and information literate scientists is very effective, resulting in literature research that meets the same high standards as any kind of true scientific research.


New directions of user education in an academic library –Challenges and future perspectives (P50)

Petró Leonárd Kenezy Life Sciences Library, University of Debrecen, Debrecen, Hungary [email protected]

Being information literate is considered essential in the 21st century. These competencies are beyond the scope of computer skills, since information literacy includes the abilities to effectively locate, evaluate, and use information. There is a growing demand among students in higher educations to improve these skills considering the ever increasing amount of digital information sources. Information literacy courses should focus on methods and tools to improve the acqusition of these competencies to reduce problems of content reliability and the difficulties in searching. The new educational program, developed for medical students and researchers by the University Library of the University of Debrecen in 2013, aims to improve and restructure the previous library instruction courses by putting more emphasis on teaching and practicing digital literacy competencies. Besides the reorganisation of the content, the methods of teaching have also been changed: the previously dominant face-to-face instruction is now effectively supplemented by web-based tutorials. The process of redesigning the structure of teaching advances a redefinition of the library’s role in the institution’s teaching framework. The organization of the program follows the international trends and developments in digital literacy programs and adapts best practices of teaching strategies. The presentation reviews the experiences of the first year of the new teaching strategy in the library and projects an information literacy program on an institutional level in which the library could play an active role.


The Italian arthroplasty registry website: a practical example to help patients (P125)

Luisa Leone, Ilaria Luzi, Eugenio Carrani, Antonio Sette, Corrado Di Benedetto, Mascia Masciocchi, Marina Torre

Istituto Superiore di Sanità, Rome, Italy [email protected]

Background. Since 2006, the National Institute of Health in Italy (ISS) is the coordinator of a project funded by the Ministry of Health aimed at organising a national registry of hip arthroplasties structured as a federation of regional registries. The registry started for hip implants and then extended to knee replacements. It involves the Ministry of Health and the National commission on medical devices, Regions, some regional registries (e.g. the ROLP in Lombardia and the RIPO in Puglia), the "Livio Sciutto Foundation" for Medical Research, a No-profit Social Organisation, the Italian society of orthopaedics and traumatology (SIOT), manufacturers’ and patients’ associations (Assobiomedica, APMAR). Aim of the project RIAP (Italian Arthroplasty Registry) is to organise a national registry for: maintaining under constant control the use of joint replacements; protecting patients safety. The registry architecture is based on the following 3 main pillars: federation of regional registries coordinated by the ISS; data collection using information already available from the routinely collected

data like the hospital discharge records integrated by additional information (minimum dataset);

identification and characterization of the implanted device by linking to the medical device database active at the Ministry of Health since 2007.

Methods. This paper aims to introduce the RIAP website (www.iss.it/riap) and its future developments. The website has been created to collect data, to spread institutional information and to help patients to manage their disease and improve the quality and the safety of their healthcare, as well. At present the website is divided in different sections, one of which is devoted to patients. The patients section is considered the core of the portal and it will be soon enriched with different tools: a web platform with different web 2.0 tools (blog, forum and social network

groups); a questionnaire used as a measure of patient quality of life to assess their opinion

on their hip and associated problems; a set of forms that can be downloaded (examples of medical certificate, certificate

for insurance etc.) or used as model for physicians and patients; qualified information on “hot” topics regarding arthroplasty and related implantable

devices.

http://www.salute.gov.it/

http://dev.iss.it/riap/index.php?lang=2&anno=2012&tipo=26

http://www.assobiomedica.it/it/index.html


Conclusions. The active role of the patient to take decisions on her/his healthcare is now recognized. It is well known from the literature and is confirmed by studies on health literacy that a close collaboration between physicians and patients can improve the quality of care and reduce costs. Actually the achievement of this cooperation is strictly connected with the adoption of appropriate tools and qualified information. Due to the very large amount of arthroplasty annually performed in Italy, the RIAP website wants to represent a reference web information point, especially for patients. Also, the registry – through its portal – wants to play a major role in providing and disseminating relevant health-related information in the field of arthroplasty.


Teaching in medical libraries – An analysis of publications from Europe in Medline (P64)

Leena Lodenius, Mari Honkanen Current Care Guidelines, the Finnish Medical Society Duodecim, Helsinki, Finland [email protected]

Introduction. Teaching is one of the key functions in medical libraries. Accordingly it can be assumed that there are a lot of publications on teaching in Medline. As the members of EAHIL are looking forward to closer cooperation in educational field, the publication activity in Europe is of special interest. Methods. A search in Medline was carried out by using the focused MeSH Teaching and Medical Libraries since year 2000. The results were sorted geographically (Europe, USA, rest of the world) and analyzed by publication types and contents. Results. Of 92 references when the duplicates had been omitted only 23 were published by Europeans, 62 were published by Americans and 7 by the rest of the world. These results are mainly based on the indexing of Medline. Surprisingly small number of publications were of better quality such as systematic reviews, meta-analysis or randomized controlled trials: in Europe two systematic reviews and in USA one randomized controlled trials. The themes of the publications will be further analyzed. Conclusions. The proportion of European publications on teaching in medical libraries is very low. Cooperation in the research of educational matters in medical libraries is highly recommended. Publications of high quality will help the libraries to develop teaching practices and thus implement evidence-based practice.



Making the most of collection budgets: creating a core list of monographs to guide and assess collections (P118)

Heather K. Moberly (1), Esther Carrigan (1), Jessica R. Page (2) (1) Texas A&M University, College Station, Texas, USA (2) Ohio State University, Columbus, Ohio, USA This project defines a core list of veterinary monographs to complement the current basic list of veterinary serials. The goal is to produce a list to assist veterinary, agricultural, animal health, and medical libraries as a collection development tool to inform local holdings. The current basic veterinary serials list was defined through a new methodology based a transparent, repeatable metric and weighted formula. This core monograph list is modeled on it. Common elements include using expert lists and bibliographies to create a base list. Careful diligence to include both veterinary subject expert and librarian subject expert input is paramount. Veterinary librarian opinion is sought through a ranked survey about titles, the value of individual titles, and their use in veterinary school curricula. Veterinarian opinion is represented by including the specialty reading lists for the American Veterinary Medical Association recognized specialties among the sources for the base list. As medical library spaces and personnel shrink and subject responsibilities for individual librarians grow, core lists are essential for assuring adequate holdings to support local patrons. As material costs inflate, monograph core lists play an especially important role because larger portions of material budgets are being spent acquiring journals. This list is created by subject experts using a repeatable methodology which allows it to be updated and remain relevant. The sources used to create the base list can be modified to include or exclude American or European specialty reading lists if geographic differentiation is needed.


A new bibliometric tool for evaluating bioresource-based research. The BRIF initiative and why it matters to librarians and information specialists (P24)

Federica Napolitani (1), Elena Bravo (1), Alessia Calzolari (1), Anne Cambon-Thomsen (2), Laurence Mabile (2), Anna Maria Rossi (1), Paola De Castro (1) (1) Istituto Superiore di Sanità, Rome, Italy [email protected] (2) UMR U 1027, Inserm, Université Toulouse III - Paul Sabatier, Toulouse, France

Introduction. Most of the current biomedical research is based on the use and sharing of bioresources, i.e. on the collections of biological materials which are stored in biobanks along with the many associated data. Nonetheless, quantitative parameters to evaluate the use of bioresources in science journal articles have not yet been developed. Aim. The concept of a Bioresource Research Impact Factor (BRIF) has been conceived as an international initiative which is working to define and implement a parameter modeled on the publication “impact factor”. A working group was established, consisting of 134 members from 22 countries, most of whom are European or North American. The group was divided into five subgroups with different tasks: 1) BRIF and digital identifiers, 2) BRIF parameters, 3) BRIF in sharing policies, 4) BRIF and journal editors and 5) BRIF dissemination. Discussion. The “BRIF and journal editors subgroup”, in particular, has fueled discussion among editors about how to standardize bioresources citations in journal articles, which would allow their traceability and thus facilitate their assessment. The poster presents a number of initiatives recently carried out to sensitize the different actors of the scientific community on this matter. Among them the results of a survey addressed to science editors and the inclusion of BRIF issues in the editorial guidelines published by important associations like the International Committee of Medical Journal Editors, the European Association of Science Editors, the Committee on Publication Ethics and others. Conclusions. Other actions are also reported, as those involving in particular the National Library of Medicine (NLM). The insertion of a dedicated reference standard in the NLM Citing Medicine and a proposal of revision of the MeSH term regarding bioresources are part of the subgroup initiatives. These will facilitate the creation of an Impact Factor to evaluate bioresources. These actions are of specific interest both for librarians and information specialists. As a matter of fact, the BRIF initiative has started and is developing through a strict collaboration between different professionals. An integration which is very common in our rapidly changing work environment.



The Bartholomew Mosse Tercentenary exhibition and online tour (P61)

Anne M. O’ Byrne Rotunda Hospital, Dublin, Ireland [email protected]

Introduction. Founded in 1757 by Dr. Bartholomew Mosse, Dublin’s Rotunda Hospital is famously the first purpose-built Maternity Hospital in the world. The then-named “Lying-in Hospital” officially opened its doors on the 8th of December of that year, providing care to the needy expectant women of Dublin and their new-borns. Known today as the Rotunda, this 150-bed hospital continues to invite the needy and not so needy through its doors, supporting the wellbeing of mother and baby regardless of rank. Over 750,000 babies have been delivered at the Rotunda to date, and 8,000 babies are born there annually. The Rotunda Hospital is recognized worldwide as a forerunner in obstetrical care and has set a high standard as a Teaching Hospital. Aim. November 2012 marked the Tercentenary of the founding of the hospital by Dr. Mosse. To coincide with the “Bartholomew Mosse Tercentenary Celebrations” the Master and Librarian of the Rotunda hosted an exhibition of graphic and print wall hangings. The work was undertaken under the guidance and assistance of Vermillion Design. The project charted the life’s work of Dr. Mosse as founder in 1745 of the original “Lying-in Hospital for Poor Women” in a house in George’s Lane (this was the first midwifery hospital in the British Isles and the precursor to the Rotunda). It depicts his contribution to the development of maternity services and the progress of midwifery teaching and practice. The contribution of the fourteen Masters who followed him is also depicted, charting their individual contributions from 1745-1952. The contribution of the First Lady Superintendent is also significant during this time. This exhibition was formally opened in the front hall of the Hospital on December 10th, 2012. It is a unique journey through the history of maternity care in Ireland. Through Mosse’s work the Royal Charter for the Hospital was granted in December 1756, further stabilising its position and funding of services. Discussion. Mosse’s knowledge and passion for the arts is reflected in the development of the Hospital’s Chapel, which is the finest example of the celebration of the symbols of fertility and Christian virtue. For this reason, the Hospital sought funding from the Department of Arts and Heritage, Ireland to extend online access to the Master’s Exhibition, the Chapel, and to the history of the Royal Charter. The Bartholomew Mosse Online Exhibition was thus born, creating a virtual tour of the Master’s Exhibition, the history of the Chapel and the Royal Charter of the Rotunda. http:rotundaexhibition.com/virtual- tour/ Conclusion. This online tour will make the hidden treasures of the Rotunda available to a new and interested audience.



#PublicaSalutIB: dissemination of biomedical production of the Balearic Islands in the social networking of Bibliosalut (P106)

Elena Pastor-Ramon, Virgili Páez, Sílvia Sastre-Suárez Virtual Health Sciences Library of the Balearic Islands, Balearic Local Health Authority, Palma de Mallorca, Balearic Islands, Spain [email protected]

Any library objective is to provide access to information to the users. In the case of science libraries we must be aware of the scientific production of our users too. The Virtual Health Sciences Library of the Balearic Islands (Bibliosalut) has been active in social networks from 2012. From the beginning we wanted to disseminate research production of the Balearic Public Health Service, this is why we created the hashtag #PublicaSalutIB. With this tag we wanted to give to any user the option to use it. In order to detect published articles Bibliosalut we created some RSS in the following databases and platforms: Pubmed, CINAHL, Embase.com and Web of Science. Searches are also performed manually in databases that do not have the option of RSS. Information is broadcast on Twitter, Facebook and Google+, an email is also sent to the authors to inform the dissemination has been made. Many of the authors inform to Bibliosalut they publish a document. This service improves the user-library relationship as the authors know the usefulness of this work and gives visibility of our researchers work. In nearly two years over 600 documents have been disseminated.



Medical librarians and physicians as partners in teaching healthcare professionals to use point-of-care-resources (P89)

Jarmila Potomkova (1), Eva Lesenkova (2), Adela Jarolimkova (2), Dana Subova (1), Vladimir Mihal (3), Barbora Ludikova (3)

(1) Palacky University in Olomouc, Medical Library, Olomouc, Czech Republic [email protected] (2) National Medical Library, Prague, Czech Republic (3) Palacky University in Olomouc, Department of Paediatrics, Olomouc, Czech

Republic

Introduction. Healthcare professionals have been adopting the evidence-based practice (EBP) paradigm to improve quality of patient care, but its application requires access to pre-appraised evidence. For EBP to become a reality in patient care, it needs to be consistently taught by competent teachers. Some of them can be librarians working together with health sciences educators. Purpose. The aim of the paper is to demonstrate inter-institutional opportunities modelling and endorsing collaboration between medical librarians and clinician-teachers to offer a new tool for teaching evidence-based practice skills at different levels of medical education. Materials and methods. A team consisting of medical librarians affiliated with the National Medical Library (Prague, Czech R.) and the Palacky University Medical Library (Olomouc, Czech R.) were working together with Palacky University (Olomouc, Czech R.) medical teachers who had previously developed an online interactive collection of 187 paediatric cases. It serves as a virtual educational tool to help master PICO questions in the absence of doctor-patient encounter. This is followed by searching for best evidence in Dynamed, a reputable point-of-care resource, containing around 3,200 topic summaries with links to the original clinical studies. Results. A “blended learning” model has been elaborated of a case-based approach to teach implementation of pre-appraised evidence in virtual clinical settings. Participants of the training courses can be any healthcare professionals, including students, who get registered with the National Medical Library (Prague) to benefit from remote access to a selection of electronic information resources. A pre-requisite to the contact hours of the course is preparatory online communication with course facilitators. Limitations. It should be admitted that point-of-care resources will never be robust enough to answer all clinical questions. Librarian-guided demonstration of database searches using building blocks can be a suitable supplementary part of the training course. Conclusions. Medical librarians seem to be valuable multiprofessional team members to help improve practical skills in evidence-based healthcare and decrease clinicians' barriers to effective information seeking.



Health corners in public libraries – Spots of social marketing for public health (P115)

Anamarija Rožić (1), Nada Tržan-Herman (2), Tomaž Pevec (3), Tatjana Kodela (3) (1) Central Medical Library, University of Ljubljana, Ljubljana, Slovenia (2) Ministry of Health Consultant (3) Ljubljana City Library, Public Library Oton Zupančič, Slovenia [email protected]

For the last three years in Slovenia the health corner model in public libraries has been developed. It is not just a place but rather a concept of health literacy promotion encompassing broad spectrum of activities. The audience can receive relevant health information from trustworthy resources. Social marketing approaches are used to influence public behaviours so that individuals and local communities can benefit for the greater social good. Special attention is put to the training of the librarians interested in health literacy promotion activities. Counselling a few hours per week health professionals (volunteers) bring additional value to health corners. The poster presents a training programme for librarians which offer knowledge and skills for appropriate health information seeking as well as communication with users regarding health issues. The training is organized by the Central Medical Library (CML) of University of Ljubljana in collaboration with the Institute of Public Health of Ljubljana and Ljubljana City Library, the Public Library "Oton Župančič". CML upgrades the programme for a new content every year in order to adapt it to current needs of the librarians and users as well.


Our JUSP (Journal Usage Statistics Portal) experience (P82)

Valeria Scotti, Funda Topuz, Anna Balduini, Alberto Perlini, Moreno Curti Center for Scientific Documentation, Fondazione IRCCS Policlinico San Matteo, Pavia, Italy [email protected]

Introduction. In the face of increasingly scarce resources and rationalization of subscriptions, one of the tools one can use in making choices are the utilization statistics of journals. The difficulty is in the gathering of these statistics: every publisher requires a separate password to download usage data. There are various portals that have been developed which provide with a single point of access for all vendor usage statistics: Serial Solutions, ScholarlyStats, SFX, etc., and one of such portals is JUSP (Journal Usage Statistics Portal). JUSP is managed by a consortium of Jisc Collections, Mimas at The University of Manchester, Evidence Base at Birmingham City University and Cranfield University, based in the UK. Aim. On March of 2013 we were designated (with a “dummy account”) with a one-month trial with the JUSP portal by providing a single point of access to e-journal usage data. Our purpose was to explore the functionality of the portal and its real usefulness for our library needs. Methods. The trial enabled us to see how JUSP works with a set of statistics, graphics, and various Counter Code of Practice reports (like JR1 and JR1a) from the most important SUSHI server-base publishers and NESLi2. From this portal it’s possible to download usage statistics directly avoiding the need to visit multiple publisher sites. It enables libraries to quickly and easily compare usage within a wide range of publishers and years, admitting the comparison and combination of various reports. Conclusions. We probed the difference between miscellaneous Counter compliant statistics, heterogeneous kinds of reports and other tools provided by JUSP. The portal best owes a single gateway for libraries to access their statistics and offers important data to help in collection decision making, but the personal knowledge of individual librarians are needed.



Health sciences libraries and public health education awareness in social media platforms (P121)

Mesra Şendir Koç University Suna Kıraç Library, Sarıyer-İstanbul, Turkey [email protected]

Information sciences in the current social media age can not be thought of separately from social media platforms. The most popular of these platforms as regards to free and easy access and use are facebook and twitter. How can health sciences libraries and medical librarians help the users reach information services using these social media? In this presentation, the main argument is that academic health sciences libraries shall support their users by invoking public health education in social media platforms such as facebook and twitter. As Koç University School of Nursing Library, our purpose in this presentation is to use facebook's insight attribute in order to evaluate how many people reach public health education information in social media. In order to develop our argument, first we defined our methodology depending on our goals and metrics. We focused on subject titles injections, breast cancer, diabetics, first aid, hypertension, air pollution, infectious dieases, tuberculosis, quit smoking, cervical cancer, birth control, AIDS etc. and content management tools such as like, share, timeline, photo post.Through this analysis, we aim to discuss why medical libraries shall use social media efficiently.


Working with the literature seeking and watching for new demands in the development of a new Nursing Bachelor education (P78)

Karina Sjögren Medical University Library, Umea University, Umea, Sweden

The Medical University Library in Umea, Sweden, have had a librarian as a part in the advisory board to the Nursing Education since 2003, as a consultant in literacy – library – and information-seeking-questions. From the beginning all courses (bachelor and specialty master programs) made their decisions there, but is now divided into three boards, where the librarian became a member of the board of the Bachelor education. Now the Bachelor Education will develop a new curriculum. At the start meeting, when we chose the developing groups, the librarian suggested that she could take care of all the information seeking for different subject watches for the different questions that the groups would like to investigate. The members of the different groups could either mail their searching questions and get the result back in mail, or they could make an appointment like other literature seeking customers and come to an appointment with the librarian when making the literature seeking.


Irish librarians supporting national clinical guideline development (P79)

Breffni Smith (1), Gethin White (2) (1) Royal College of Surgeons, Dublin, Ireland [email protected] (2) Health Service Executive, Ireland The National Clinical Effectiveness Committee (NCEC), established by the Irish Minister for Health in 2010 as part of a national Patient Safety First Initiative, provides a framework for national endorsement of clinical guidelines and audit to optimise patient and service user care. Following a consultation process, the Health Science Librarians Group (HSLG) of the Library Association of Ireland established a new national network of librarians to support the literature review phase of NCEC clinical guideline development by providing a centralised query service for clinical research teams. Within the Irish context, this project was based on a model of regional collaboration established by the Health Service Executive (HSE) East Regional Library and the Royal College of Surgeons in Ireland (RCSI). This earlier collaboration provided a centralised clinical query service for hospital staff in two Dublin teaching hospitals whose clinicians were affiliated with both RCSI and the HSE. This poster highlights the development of a national model of cooperation in medical librarianship in Ireland.



HealthInfo4Life: an all Wales approach to the provision of health and wellbeing information (P119)

Sue Thomas Health Promotion Library, Public Health Wales, Cardiff, United Kingdom [email protected]

Introduction. People need to access health information to be able to make informed choices. The vision in Wales is for people to “find more, reliable, up-to-date information and to understand it quickly by seeing it presented in a more user-friendly way”. People need information which is comprehensive and integrated. In reality the provision of health information is often patchy, not joined up and lacks an overarching strategic approach. Aims. The Health Promotion Library works in partnership with public libraries in Wales to develop a “health and wellbeing offer”. We want to show that libraries can not only have a lead role in achieving the all Wales vision for health information. Methods. The Health Promotion Library firstly developed an information booklet on diabetes for use in a general practice in Cardiff. This contained sources of information on diabetes, and signposting people to local organisations. There was positive feedback on this, with practice staff saying this would be useful. A successful bid to the Welsh Government as part of a marketing festival gave us the opportunity to further develop this product. We worked with public libraries and college libraries to organise health and wellbeing events as part of the festival in November 2013. We decided to produce a more extensive booklet covering more health topics for these events. We created the new booklets and the “HealthInfo4Life” brand to make the booklets more attractive and easy to use. We wanted to create a “brand” for the booklets which could be more widely used if these were successful. The “HealthInfo4Life” brand links to an existing range of 4Life brands in Wales – “Change4Life” “Start4Life” “Walk4Life”. Discussion. The topics included in the booklets are: alcohol, physical activity, healthy eating, mental health and smoking. The booklets contain information which signposts people to national services as well as those available in their local area. 1,000 copies of the booklets were printed – 500 for each area. Copies of the booklets were distributed at the events with booklets also sent to all the organisations listed in them. Returned evaluation forms state that the booklets contain the right information and are easy to use. Other services including “Healthy Working Wales” and a Library Macmillan Cancer Health and Wellbeing Co-ordinator want to use these as a template for work they need to do. Local organisations have ordered copies of the booklets for use with their clients. Conclusions. This pilot has shown that libraries can take the lead in helping professionals and the public to access health information. At the same time we help to bring together public and voluntary organisations. The HealthInfo4Life brand will be further developed as part of the health and wellbeing offer for public libraries in Wales, and we have registered HealthInfo4Life as a web domain.



The State of The Research (P14)

Carola Tilgmann (1), Mikael Graffner (2), Jesper Bristulf (3), Yvonne Hultman Özek (1) (1) Library & ICT, Faculty of Medicine, Lund University, Sweden [email protected] (2) Department of Research and Study Services, Lund University Library, Lund

University, Sweden (3) Lund Innovation Systems, Lund University, Sweden

Introduction. Information overload, special competences need in the area of information analysis, demand of business innovation, a struggle in the grant jungle are strong factors that influence the daily work flow for a researcher. Taking these aspects into consideration, we introduce a concept that we have named The State of The Research. Aim. We aim to broaden the researcher’s view in his/her research area and give insights into new opportunities for innovation and collaboration. The idea here is that the researchers would also be able to use a part or the whole package of the State of The Research in their future grant applications. Method. Our concept is a comprehensive package containing medical information analysis and visualization, news and social media monitoring, patent landscape analysis, and bibliometric analysis – all based on the particular research area of interest for the individual researcher/research group. We are using text mining tools in combination with visualization related to PubMed and Chemical Abstracts to extract research related questions from larger data sets. By using bibliometric mapping techniques, we can also reveal structures in the studied research field, e.g. networks of influential authors, clusters of key concepts and frequently cited articles. We are approaching the researchers face to face in their environment where we present the compiled material describing The State of The Research. For example, we cover a broad disease area that has been selected in advance in collaboration with the researchers. With our analysis tools, we recognize collaboration opportunities and approximate freedom to operate within the research based on patents. We have taken trend analysis in a form of co-word analysis related to time to indicate possible rising or falling research within a disease area. Preliminary results. Personal communication and an understanding in each individual field of The State of The Research get the researchers attention. This in turn has also led to increased requests for deeper analysis. Future prospects and developments will be to offer education in grant application writing Moreover, we would like to use more general text mining approaches to answer research related questions faster and with larger datasets. In sum, allocation of research funds is becoming more competitive and we need to support our researchers not only with bibliometric analysis but with new concepts like The State of The Research to give support to researcher´s grant applications.



The contribution of a narrative-based librarian in a rehabilitation project in oncology (P70)

Ivana Truccolo (1), Marilena Bongiovanni (2), Margherita Venturelli (3), Alba Chiarlone (4) (1) Scientific and Patients Library, IRCCS Centro di Riferimento Oncologico (CRO)

National Cancer Institute, Aviano (PN), Italy [email protected] (2) ANGOLO (Italian Association of Cancer Survivors ) ONLUS, Italy (3) Comune di Aviano Public Library, Aviano (PN), Italy (4) Psychologist Psychoterapist, Syracuse, Italy

Introduction. The Narrative-Based Medicine (NBM) is a different way to look at the three basic elements of the EBM, taking the patients' preferences as real priorities, “honouring” the stories of illness that people (patients) tell and learning how to listen and use them so that patients and healthcare workers may together build the patient's care pathway (Rita Charon). Traditionally the librarians are not included in this process. But the librarians can play a specific role in the NBM process as experts not only of the scientific but also of the general literature. Aim. The aim is to making evident the possible role of librarians in the narrative-based medicine approach. Methods. In this poster we report some preliminary results of a cancer rehabilitation collaborative project managed by an Italian Association of Cancer Survivors (ANGOLO). The aim of the project is giving a small group of cancer patients the chance to live a learning experience in a peaceful and relaxed context filled with positive emotions. The 12 women, almost all of them breast cancer patients coming from several Italian regions, spent a week together in the island of Favignana, Sicily. The “main course” of the project was providing them with trustworthy information about food, diet and nutrition by a specialist (MD). No less important was the role of the librarians, both public and biomedical, in collaboration with the psychologist-psychoterapist. Discussion. The different areas of expertise and specialization of these three professionists showed good synergy in “making the group”, through assuming specific roles and a skillful use of the narrative literature, the real key to the success of the project. Conclusions. Thus, the librarians can play a specific role in the NBM process as experts not only of the scientific but also of the general literature. This is especially true if they are able to set up a collaboration between public, academic and biomedical librarians, as well as network with other professionals – such as psychologists, educators, nurses, etc. – and with patients, so to create a favourable learning environment.



The perceived impact of a cancer library on the patient care: the results of a survey (P68)

Ivana Truccolo (1), Laura Ciolfi (1), Mauro Mazzocut (1), Nicolas Gruarin

(1), Chiara Cipolat Mis (1), Emanuela Ferrarin (1,2), Paolo De Paoli (1) (1) Scientific and Patients Library, IRCCS Centro di Riferimento Oncologico (CRO)

National Cancer Institute, Aviano (PN), Italy [email protected] (2) CIFAV Onlus, CRO Pharmacy, Aviano (PN), Italy

Introduction. The Centro di Riferimento Oncologico of Aviano (CRO) is one of the nine Cancer Comprehensive Centres in Italy. Established in 1984, the CRO Library supports the information and documentation needs both of the Staff and the Patients' (specific section, 1998). The library enjoys a wide network, as a unit of the CRO Scientific Directorate and a Bibliosan member. It has been under ISO 9001:2008 certification since 2009 and it is involved in several Institute Accreditation Programs (Accreditation Canada/Qmenutum, OECI etc.). Aim. Taking advantage of this high-quality process and inspiration from some recent debate and articles about the topic, we planned a survey in order to investigate the library's perceived impact on patient care. The aim is to get a picture about what the various kinds of library users – clinicians, researchers, technical staff, students, and patients as well – think about the various library services' impact on patient care. Methods. We set up a Google drive questionnaire composed of about 20 items related to the different services of the library. For each of them we are interested in getting the perception of the different users about the impact of these services on patient care. We tried to make not ambiguous questions in order to distinguish users' opinions from personal “pre-judices” about the library as a general matter. The questionnaire will be online administered in the second half of March 2014. Discussion. The results of this survey will be reported and discussed. Some other objective indicators will be considered – library costs, ILL, DD, patient safety data, customer satisfaction etc. – comparing them with the users' subjective perception. Conclusions. The main goal of this survey is to give a contribution to the current professional debate about the impact of academic and non-academic libraries on patient care. The topic can be seen as a challenge for health librarians, as it puts our profession at centre stage, together with the other healthcare and research professions.



Finding documentation with personalized strategies of Health Technology Assessment (P41)

Claudia Vidale Azienda Ospedaliero-Universitaria di Udine, Udine, Italy [email protected]

Overview. The University Hospital of Udine has a strong tradition in helping, teaching and coaching health personnel in bibliographic search. Almost 650 health professionals have been trained up to now. Some courses are focused on the Health Technology Assessment (HTA) methodology as well. For this reason we created resources and opportunities, in order to simplify the search in HTA. These resource are: a) Health Technology Assessment Engine; b) Personalized HTA filters in PubMed. Introduction. The literature search in the field of HTA often requires a different methodology than that used to respond to clinical questions. The utilization of tools, organized in virtual aggregators, which assess health technologies, however, is less frequent. The literature search of primary sources reporting on single studies about HTA is widely used for technologies which generally have not yet been assessed and/or reported by HTA agencies. Sometimes it is necessary to find all the published articles about a specific, multidisciplinary approach subject to have an idea about the trend of the literature. In these cases the search in PubMed can be helpful. Aim. To obtain, in a short time through Google, the best information produced by reliable sources in the field of HTA is the aim of Health Technology Assessment Engine. To obtain pertinent results and utilize a system to update the published international literature (i.e. articles that describe single studies) when formulating a HTA research question with PubMed is the aim of HTA filters. Methods. Our University Hospital thought to create a search engine that allows one to obtain in a short time the available information found in reports of international agencies and qualified organizations thus avoiding searching each individual site. The engine, called Health Technology Assessment Engine, was built thanks to Google technology and it is an “aggregator” of 100 URLs international and national agencies whose objective is disseminating reports/evaluations and documents related to HTA. Furthermore, in order to quickly identify the most relevant citations in the field of HTA, we built, through My NCBI PubMed options, a group of custom filters. Conclusion. These two tools are a creative contribution for achieving good information without any added cost. HTAE is a useful support that produces quality results by providing an overview of the available documents on the web. HTAE is a public engine, it is host at the Home page of the Società Italiana di HTA - SIHTA. HTA filters are available to everybody after request to our Biomedical Documentation Service.


The transforming role of research libraries in knowledge management (P54)

Marta Viragos (1), Edit Gorogh (2) (1) Life Sciences Library, University of Debrecen, Debrecen, Hungary [email protected] (2) Kenezy Life Sciences Library, University of Debrecen, Debrecen, Hungary [email protected]

The concept of scholarly communication has been recently redefined and broadened to include the creation, transformation, dissemination and preservation of knowledge. It represents an entire process by which academics and researchers not only publish their findings, but also disseminate them within and beyond their academic communities. However, due to the strengthening impact of the serial crisis, the methods and tools of scholarly communication have been changing. Libraries are getting more involved in the transforming discourse of scholarly communication. As open access publishing strengthens within the scholarly publishing scene, libraries have to dedicate more resources to develop repository infrastructures. In an effort to increase visibility and to provide open access to digital intellectual assets, many disciplines and institutions are building repositories for authors to deposit their works. Due to the libraries’ expanding responsibilities, they must assume the roles of the educator, advocate, infrastucture designer, project partner, publisher. The University Library of Debrecen, operating as an active open access point both on national and international levels, plays a significant role in open access advocacy and in adapting new directions of scholarly communication. As part of the dissemination process, the University Library of Debrecen has developed a portal system (iDEa). As an essential part of the iDEa portal, the Research Profiles present the academic activities and the professional profiles of the institution’s researchers. The primary goals of the Profiles are: (1) creating an electronic calling card for our researchers, which provides a comprehensive picture about the researchers’ scholarly and teaching activities and their off-campus lives, (2) developing a social forum for researchers enhancing the cooperations among various disciplines, and (3) bringing the professionals close to us. Open access publishing has special significance in medicine, since the easy and fast availability of research results can contribute to the emergence of new medical projects and to the cooperation of researchers. Medical libraries have a primary role in facilitating easy access to research literature by developing and maintaining the infrastucture needed for personal and institutional archiving. In order to meet the demands of contemporary scholarly communication and to support effectively medical research, it is quintessential for medical libraries to follow international developments and to share experiences with other higher institutions in the field.


Creating value through altmetrics: challenge 2.0 for health libraries (P22)

Femke H.J.A. Vluggen Library & Information Centre, Orbis Medisch Centrum, Sittard, The Netherlands [email protected]

In the past, a scientific journal publication was one of the few possibilities to connect with other researchers and learn about advancements in the field. The “importance” of a journal is measured almost exclusively through the journal Impact Factor (IF). Digital advancement and the evolution of the internet into a social web transforms the way the scientific community connects. Social media websites such as Mendeley, Facebook and Twitter present new ways to accumulate information about impact on an article level through altmetrics. Collection of different altmetrics, e.g. the number of times an article is viewed/discussed/saved/cited can be useful for libraries in multiple ways. The main question answered in the poster presentation is: How can libraries expand their services through altmetrics, thus increase value for their visitors? The aim is to investigate and present the possibilities to incorporate altmetrics in a health library setting, specifically Orbis Medisch Centrum's hospital library, with a special focus on its institutional repository. The institutional repository entries from the past years were used to gather and interpret altmetrics data. The resulting altmetrics data can be used in a health library for collection development, research support to assess the impact of research, information literacy awareness creation and management data collection. This application of altmetrics data is presented in the poster presentation, and may serve as inspiration and guidance. It is important to realise that altmetrics are a useful tool to utilise in conjunction with the journal Impact Factor when interpreting data and making informed decisions for your health library and its users, since both metrics have its benefits and shortcomings. Altmetrics allow for an almost immediate insight into the impact of an article, hence presenting us with a myriad of possibilities to use its data instantaneously, long before the journal Impact Factor makes its appearance. Incorporating altmetrics into our daily practice as a health library is another, useful way to add value to our healthcare, education and research library services.



Veterinary science and open access (P33)

Bea Winkler, Melissa Bándi Veterinary Science Library, Museum and Archives, Budapest, Hungary [email protected]

HuVetA is the institutional repository of the Faculty of Veterinary Science, Budapest, Hungary. It collects BSc, MSc and PhD theses, but also any Hungarian or Hungarian-related veterinary articles and papers. In our study we will analyze students’ theses from the open access point of view, i.e. based on students’ copyright declarations. In addition, we will check the number of views of PhD theses taking into account the number and spatial distribution of visits, and time elapsed between publication and views, etc. The possibility of long term preservation of articles is still in the development phase at our Faculty. In this context, we would examine pre-selected OA and non-OA articles written on the same topic, possibly even by the same authors, and how citations are distributed in time and space among articles published in subscribed journals, OA articles, and pay-per-view articles.


Searching for mental health and religion studies: methods and evidence for selecting databases for rapid reviews and evidence syntheses (P37)

Judy Wright, Ghazala Mir, David Cottrell University of Leeds, Leeds, United Kingdom [email protected]

Introduction. Identifying research studies that address religion and health is important for researchers developing and evaluating interventions that are sensitive to culture and religion. It is impossible to search every potentially relevant database and website in existence. A manageable and appropriate set of resources must be selected for reviews. Our findings can help guide searchers to identify key sources in this area, they suggest search terms and may also help in the planning and costing of search activities for evidence syntheses or reviews of health and religion studies. Aim. To identify the relative value of searching a variety of health, social science, religion, grey literature and non-western databases for syntheses and reviews of mental health and religion studies. Method. We searched 23 health, social science, religion and grey literature databases for an evidence synthesis. Databases were prioritised by yield of search results, screened references and references included in the synthesis. We assessed each database’s impact by its ability to supply studies with new themes/ issues. We identified workload factors that influence database selection. Results were compared with an ongoing mental health and religion RCT review search. Results. For the evidence synthesis, PsycINFO was the best performing database but EMBASE, MEDLINE, CINAHL, ArabPsyNet, Global Health, Dissertations & Theses, Sociological Abstracts and Health Management Information Consortium (HMIC) were also needed to retrieve all included references. Citation tracking and a researcher’s personal library identified relevant references. Religion databases did not provide unique relevant references. For the RCT review, the top 10 databases in terms of database yield were MEDLINE, EMBASE, PsycINFO, CINAHL, Dissertations and Theses, HMIC, Cochrane Library Clinical Trials, ArabPsyNet, Global Health and FRANCIS. Workload factors to consider when selecting databases included: number of databases searched, familiarity with search interface, proximity search functions, ability to process complex search strings, reference download functions and the availability of full text documents. Conclusion. Literature searches for reviews and evidence syntheses of religion and health studies should go beyond MEDLINE, EMBASE and PsycINFO and include social science, grey literature, non-western databases, personal libraries and citation tracking activities. The number and impact of relevant references found in databases, practical workload factors, published evidence and database guides should all be considered when selecting databases.


Adoption of Web 2.0 tools among STM publishers. How social are scientific journals? (P36)

Monica Zedda, Annarita Barbaro, Sofia Enrica Amicarella Istituto Superiore di Sanità, Rome, Italy [email protected]

Introduction.The internet has today become an essential tool for scholarly communication and has offered scientific publishers the possibility of experimenting with a wide range of innovative features and services. Most recently, publishers have embraced so-called Web 2.0 features to promote and share the content of their publications and to enhance their visibility and use. These tools are a powerful marketing and promotion channel, thanks in part to their free availability and ease of use, and their resulting rapid adoption by researchers. In particular, publishers aim to use Web 2.0 to create a closer relationship with their audience by providing tools to facilitate communication between users of their platforms. Aim. Due to the rapid evolution of Web 2.0 technologies there is little data available on the adoption of these tools by publishers. The purpose of this study is to examine the use of social media tools in health sciences journals: which tools are in use, and how widely used they are. Methods. A selection of STM (Science, Technology and Medicine) publishers, specialised in the biomedical field, was compiled from the membership directories of the Open Access Scholarly Publishers Association (OASPA), the Association of Learned & Professional Society Publishers (ALPSP) and the International Association of Scientific, Technical & Medical Publishers. The websites of these publishers, both commercial and open access, were examined to establish the prevalence of use of Facebook, Twitter, sharing tools, RSS/ATOM feeds, blogs and podcasts. The analysis was conducted by reviewing the homepage of each publisher and a recently published article (to find implementations of Web 2.0 tools at article level). Quantitative methods were used to describe the application of these social media tools on scientific publisher’s websites, and the data are summarized in statistical tables. Conclusions. Publishers are at different stages of development in their implementation of Web 2.0 technologies with the aim of becoming “scientific communication facilitators” in the near future. Nonetheless, these technologies are already quite widespread, indicating that most scientific and technical publishers are investing in social media, experimenting with new services and evaluating their impact on the scientific community.


AUTHORS’ INDEX Addis A.; 95 Adil S.A.; 33 Amicarella S.E.; 154 Aras B.B.; 117 Arber M.; 61 Ardita G.; 91 Aronsen K.; 93 Azzaro R.; 22 Balduini A.; 13; 94; 141 Bándi M.; 152 Bank M.; 122 Barbaro A.; 113; 154 Barbaro M.C.; 105 Basili C.; 21 Bassi C.; 95 Bekhuis T.; 54 Belt J.; 84 Benedetti A.; 34 Bernardini F.; 94 Bongiovanni M.; 147 Booth A.; 97 Bouzkova H.; 128 Bramer W.M.; 54; 96 Bravo E.; 136 Bristulf J.; 146 Bruc B.; 127 Buckley Woods H.; 97 Buschmann Nielsen M.; 111 Calzolari A.; 136 Cambon-Thomsen A.; 136 Camerlingo M.; 98 Cammarano R.R.; 99 Carinci A.; 105 Caro G.; 101 Carrani E.; 99; 132 Carrigan E.; 135 Cassella M.; 3 Ceccanti M.; 99 Ceccarini A.; 99 Cervi E.; 103 Chalon P.; 109; 121

Chalon P.X.; 61 Chapman E.; 29 Chiaravalloti M.T.; 102 Chiarlone A.; 147 Ciappelloni R.; 34; 120 Ciccarelli R.; 99 Ciolfi L.; 148 Cipolat Mis C.; 36; 103; 148 Cocchi S.; 103 Cognetti G.; 91 Çolaklar H.; 117 Costa-Marín M.; 53 Cottrell D.; 153 CRO Patient Education &

Empowerment Group; 36 Curti M.; 13; 94; 120; 141 Darmoni S.J.; 126 De Castro P.; 91; 105; 136 de Jonge G.B.; 96 de Kaenel I.; 106 de la Mano M.; 27 De Paoli P.; 36; 148 De Silvestri A.; 13 De-la-Cámara-De-las-Heras J.-M.;

115 Della Seta M.; 99 Delvaux E.; 76 Deodati S.; 99 Devalapall U.; 107 Di Benedetto C.; 99; 132 Dobrogowska-Schlebusch E.; 70 Droste S.; 61 du Toit M.; 108 Duffy S.; 61 Durieux V.; 17 España- Álvarez E.; 115 Estrada J.M.; 119 Fairon N.A.; 109 Falcone M.A.; 110 Farragher L.; 77 Felici L.; 99


Ferrara R.; 91; 110 Ferrari O.; 110 Ferrari P.; 110 Ferrarin E.; 36; 148 Fourie H.; 71 Fourie I.; 71 Frost Jepsen J.; 111 Fruttini L.; 34; 120 Gaggioli N.; 120 Gardois P.; 91 Gathoni N.; 112 Gentili D.; 110; 113 Glanville J.; 61 Godbolt S.; 112 GoldeR S.; 61 Gómez R.I.; 46 Gómez-Sánchez A.F.; 46; 114 González-Cantalejo M.; 115 Gorogh; 150 Graffner M.; 146 Graziani M.S.; 110 Grifol E.; 119 Grillo G.; 91 Grosjean J.; 126 Gruarin N.; 36; 51; 148 Gualtieri F.; 9 Güneş G.; 117 Halling T.D.; 10 Halpin C.; 33 Hamel B.J.; 15 Hannon T.; 54 Harrison J.; 27 Heijmans M.; 118 Heim B.; 119 Heino T.; 45; 83 Herron D.; 87 Heymann A.J.; 34; 120 Hielkema L.; 67 Hilton Boon M.; 47 Holland L.; 54 Honkanen M.; 134 Horsak O.; 128 Hourlay L.; 121 Hultman Özek Y.; 122; 146

Huuskonen S.; 123 Ibraghimova I.; 68 Iivonen R.; 16 Iori R.; 103 Iriarte P.; 106 Isabel-Gómez R.; 114 Isojärvim J.; 61 Jaén M.B.; 119 Janzen S.; 87 Jarolimkova A.; 128; 139 Juan-Quilis V.; 41; 63 Jurksaitiene D.; 124 Kågedal A.; 87 Kaigorodova T.V.; 125 KauneliS D.; 61 Keane M.; 77 Kenssous N.; 33 Kerdelhué G.; 126 Ket H.; 118 Kirtley S.; 59 Knijn A.; 99 Kodela T.; 140 Kojedahl Bjørkedal K.; 93 Kolodziejski P.; 127 Korotkova A.I.; 125 Korwitz U.; 39 Kozakiewicz W.; 127 Kriukova I.A.; 125 Kriz F.; 128 Küfner Lein R.; 40; 129 Kuusniemi M.E.; 45 Langenhoff J.M.; 130 Larmo K.; 45; 83 Lefebvre C.; 61 Leonárd P.; 131 Leone L.; 132 Lesenkova E.; 128; 139 Lesny P.; 128 Lipsanen P.; 16 Lodenius L.; 83; 134 Lopez T.; 99 Lucey N.; 75 Ludikova B.; 139 Luzi I.; 132


Mabile L.; 136 Madden A.; 75 Maggi P.; 91 Maixnerova L.; 128 Manson J.; 47 Masciocchi M.; 132 Mast F.; 96 Mazzocut M.; 36; 51; 103; 148 Medino J.; 119 Mihal V.; 139 Mir G.; 153 Moberly H.K.; 15; 135 Molinari S.; 94 Mollema J.; 54 Montanucci N.; 120 Motta S.; 91; 94 Mühlburger M.; 40; 129 Muhonen A.; 16 Muñoz-Gonzalez L.; 41; 63 Napolitani F.; 136 Newman J.; 112 Niedźwiedzka B.; 70 Nucci D.; 34 O’ Byrne A.M.; 137 Obst O.; 52 Ødegaard M.; 82 Omero P.; 51 Orlandini D.; 103 Ormstad S.; 61 Ovaska T.; 8; 83 Ove Rein J.; 93 Páez V.; 53; 138 Page J.R.; 15; 135 Pantosti A.; 105 Papini D.; 95 Pastor-Ramon E.; 53; 138 Pepper C.; 10 Perlini A.; 13; 141 Pevec T.; 140 Pizzarelli S.; 99 Poltronieri E.; 91 Potomkova J.; 139 Prigoda-Springall E.; 81 Primo E.; 119

Putti M.L.; 110 Puyal C.; 119 Rebuffi C.; 113 Ricci R.; 51 Ritchie K.; 47 Roa L.; 119 Rossi A.M.; 136 Rožić A.; 140 Rydberg H.; 108 Salandin T.; 95 Salinetti S.; 105 Sampaolo L.; 99 Sastre-Suárez S.; 53; 138 Scotti V.; 13; 141 Sen B.; 29 Şendir M.; 142 Sette A.; 99; 132 Shaw J.; 112 Siirala E.; 16 Sjögren K.; 143 Skinner B.J.; 48 Skrubbeltrang C.; 111 Smith B.; 144 Solimini R.; 91 Spaccini L.; 120 Stenholt L.; 111 Subova D.; 139 Sunderbrink N.; 78 Sutton M.; 77 Tarlebø Mjøs C.; 129 Tasso C.; 51 The RARE-Bestpractices

Consortium; 47 Thomas S.; 145 Tilgmann C.; 122; 146 Topuz F.; 13; 141 Torre M.; 132 Truccolo I.; 36; 51; 94; 103; 147; 148 Tržan-Herman N.; 140 Tuhkio M.; 123 Tukhareli N.; 35 Turan A.; 117 Utard Wlerick G.; 23 van den Brekel G.; 7


van der Hoorn K.A.M.; 130 van Dusseldorp I.; 76; 118 Venturelli M.; 147 Vidale C.; 149 Villa R.; 29 Viragos M.; 150 Vivas M.; 119 Vluggen F.H.J.A.; 151 Wedvich H.; 129

Wessels M.; 67 White G.; 144 Winkler B.; 152 WooD H.; 61 Wright J.; 153 Youngen G.K.; 15 Zedda M.; 154 Zimina E.I.; 125

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