disease management programmes in heart failure (nurse- and primary

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Disease management programmes in heart failure (Nurse- and primary care) T. Jaarsma Linköpings Universitet

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Page 1: Disease management programmes in heart failure (Nurse- and primary

Disease management

programmes in heart failure

(Nurse- and primary care)

T. Jaarsma

Linköpings Universitet

Page 2: Disease management programmes in heart failure (Nurse- and primary
Page 3: Disease management programmes in heart failure (Nurse- and primary

dietician

ph. therapist

cardiologist

GP

HF Nurse

social worker

psychologist

palliative care

home care

Emerg.Dpt

pharmacist

The HF team

Page 4: Disease management programmes in heart failure (Nurse- and primary

dietician

ph. therapist

cardiologist

GP

HF Nurse

social worker

psychologist

palliative care

home care

Emerg.Dpt

pharmacist

The HF team

Page 5: Disease management programmes in heart failure (Nurse- and primary

‘Traditional’ HF clinic model

Annema et al, 2009

Page 6: Disease management programmes in heart failure (Nurse- and primary

Case management & disease

management

Annema et al, 2009

Page 7: Disease management programmes in heart failure (Nurse- and primary

‘New’ HF Management?

Annema et al, 2009

Page 8: Disease management programmes in heart failure (Nurse- and primary

HF management

ESC HF Guidelines:

Page 9: Disease management programmes in heart failure (Nurse- and primary
Page 10: Disease management programmes in heart failure (Nurse- and primary

Hazard Ratio

0.4 0.6 0.8 1.0 1.2 1.4 1.6

Hazard Ratio

1.21.00.8

HF readmission + death

Basic vs control

Intensive vs control

All cause mortality

Basic vs control

Intensive vs control

HF readmission

Basic vs control

Intensive vs control

COACH Primary and Secondary outcomes

P=0.73

P=0.93

P=0.39

P=0.15

P=0.89

P=0.60

0.6 0.4

Page 11: Disease management programmes in heart failure (Nurse- and primary
Page 12: Disease management programmes in heart failure (Nurse- and primary

HF clinics in Europe (2003-2004)

Estimation by local expertsJaarsma et al, EJCN 2006

Page 13: Disease management programmes in heart failure (Nurse- and primary

European heart failure clinics

Several European countries have HF clinics

HF outpatient clinic seems favorite model

Multidisciplinary team can be further developed

Challenging circumstances in several countries Finances

Training

Legal issues

Page 14: Disease management programmes in heart failure (Nurse- and primary
Page 15: Disease management programmes in heart failure (Nurse- and primary
Page 16: Disease management programmes in heart failure (Nurse- and primary

Organisation of primary care

Sweden and Finland- Different professions work together and are employed by the

same employer

Rest of Europe- GPs most often self-employed, while district nurses are publicly

employed

UK- Specialized GPs

Ackn. J. Martensson

Page 17: Disease management programmes in heart failure (Nurse- and primary

Organisation of primary care

Southern Europe- Managed by physicians who have a short education in primary

care or no such education at all

United States- Managed by physicians who can be specialists in primary care,

family care, internal medicine or paediatrics

Denmark, the Netherlands and the UK- GPs plays the role of a gate-keeper

Ackn. J. Martensson

Page 18: Disease management programmes in heart failure (Nurse- and primary

Heart failure clinics in Swedish

primary health care centres

0

5

10

15

20

25

N

1995 1996 1997 1998 1999 2000 2001 2002 2003 2004

Ackn. J. Martensson

Page 19: Disease management programmes in heart failure (Nurse- and primary

Intensive home based intervention

Scotland

Spain

Page 20: Disease management programmes in heart failure (Nurse- and primary
Page 21: Disease management programmes in heart failure (Nurse- and primary

Blue et al., 2001

Page 22: Disease management programmes in heart failure (Nurse- and primary

Home visits + telephone contacts

monitor electrolyte concentrations

teach self monitoring and management (especially the early detection and treatment of decompensation),

liaise with other health care as required

Provide psychological support

Uptitrate ACE-I, adjust diuretics, and digoxin in chronic heart (written protocols)

Blue et al., 2001

Page 23: Disease management programmes in heart failure (Nurse- and primary

Blue et al., 2001

Page 24: Disease management programmes in heart failure (Nurse- and primary

Intensive home based intervention

Scotland

Spain

Page 25: Disease management programmes in heart failure (Nurse- and primary
Page 26: Disease management programmes in heart failure (Nurse- and primary

Monthly home visits by nurses

Telephone contact every 15 days

Check vital signs + fucntional status

Patient education

Contact GP if needed

Brotons, 2009

Page 27: Disease management programmes in heart failure (Nurse- and primary

Brotons, 2009

Page 28: Disease management programmes in heart failure (Nurse- and primary
Page 29: Disease management programmes in heart failure (Nurse- and primary

Home based intervention

a single home visit 1 week

after discharge (by a nurse and a

pharmacist) to optimize

medication management, identify early

clinical deterioration,

and intensify medical follow-up and

caregiver vigilance

Stewart, 1999

Page 30: Disease management programmes in heart failure (Nurse- and primary

Stewart, 1999

Page 31: Disease management programmes in heart failure (Nurse- and primary

Stewart, 1999

Page 32: Disease management programmes in heart failure (Nurse- and primary

COACH-2

Heart Failure clinics versus primary care

in the long-term follow-up of patients

with Heart Failure

Page 33: Disease management programmes in heart failure (Nurse- and primary

Objectives COACH-2

To determine whether long-term follow-up and

treatment in primary care is equally effective as

follow up at a specialized HF clinic in terms of

guideline adherence and patient compliance in

patients with heart failure initially managed and

up-titrated to optimal treatment (according to the

ESC guidelines) at the heart failure clinic.

Page 34: Disease management programmes in heart failure (Nurse- and primary

Study design

A multicentre, randomised controlled non-

inferiority design

In each centre, patients will be randomised

into one of the two conditions:

long-term follow-up in the HF clinic or

long-term follow-up in primary care

Page 35: Disease management programmes in heart failure (Nurse- and primary

2 groups

1. HF clinic:

Cardiologist and HF nurse

Scheduled contacts at 3, 6, 9 and 12

2. GP

GP’s receive a standardized follow-up advice:

- Contacts/visits advised at 3, 6, 9, 12 months

Routine visits to the cardiologist or HF nurse are

not scheduled

Availability for consultation/back referral

Page 36: Disease management programmes in heart failure (Nurse- and primary

Endpoints

Guideline adherence defined as

prescription of HF medication

Patient compliance

Page 37: Disease management programmes in heart failure (Nurse- and primary

WP3:

European criteria for optimal home based

management of heart failure patients.

Page 38: Disease management programmes in heart failure (Nurse- and primary

Phase 1:

Describe European criteria/components for optimal home based management of heart

failure patients.

Phase 2:

Feasibility studies to test the components in Sweden. Netherlands and Spain

Phase 3:

Revise components

Page 39: Disease management programmes in heart failure (Nurse- and primary

New(er) components

Remote monitoring

Group education

Nurse practitioner clinics

Internet monitoring

.

.

Page 40: Disease management programmes in heart failure (Nurse- and primary

dietician

ph. therapist

cardiologist

GP

HF Nurse

social worker

psychologist

palliative care

home care

Emerg.Dpt

pharmacist

The HF team