disability rights expanding accessible markets kick-off meeting 23 rd -25 th november, 2011...
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Disability Rights Expanding Disability Rights Expanding Accessible Markets Accessible Markets
Kick-off Meeting23rd -25th November, 2011
Brussels, Belgium
Dimitris Skempes, PT, MPHDisability Policy GroupSwiss Paraplegic Research and Dept. of Health Sciences & Health PolicyUniversity of Lucerne, [email protected]
“Quantitative or qualitative factor or variable that provides a simple and reliable means to measure achievement, to reflect the changes connected to an intervention, or to help assess the performance of a development actor.” (OECD Development Assistance Committee)
“Indicators are data used by analysts or institutions and organizations to describe situations that exist or to measure changes or trends over a period of time. They are communicative descriptions of conditions or of performance that may provide insights into matters of larger significance beyond what is actually measured.” (Andersen and Sano, 1998)
What is an indicator?
Why do we need indicators?
Performance measurement(Millennium Development Goals)
Why do we need indicators?
Performance measurement(Millennium Development Goals)Effectiveness &
Effectiveness &
EfficiencyEfficiency
Why do we need indicators?
Performance measurement(Millennium Development Goals)
Compliance measurement ( UN CRPD)
Why do we need indicators?
Performance measurement(Millennium Development Goals)
Compliance measurement ( UN CRPD)Accountability
Accountability
Why do we need indicators?
Performance measurement(Millennium Development Goals)
Compliance measurement ( UN CRPD)
Planning Tool( EU Disability Strategy 2010-2020)
Why do we need indicators?
Performance measurement(Millennium Development Goals)
Compliance measurement ( UN CRPD)
Planning Tool( EU Disability Strategy 2010-2020)
Evidence based Policy
Evidence based Policy
Despite the fact that 18 out of the 27 EU member states have ratified the UN CRPD we still not have a valid, reliable and comparable set of indicators to assess compliance with obligations and monitor the progress towards implementation of the Convention
The problem
The overall aim
To develop operationally feasible measurement tools (indicators) to monitor the implementation of Articles 25 and 26 of UN CRPD in Europe Article 25 - HealthStates Parties recognize that persons with disabilities have the right to the enjoyment of the highest attainable standard of health without discrimination on the basis of disability. States Parties shall take all appropriate measures to ensure access for persons with disabilities to health services that are gender-sensitive, including health-related rehabilitation
Article 26 – Habilitation & RehabilitationStates Parties shall take effective and appropriate measures, including through peer support, to enable persons with disabilities to attain and maintain maximum independence, full physical, mental, social and vocational ability, and full inclusion and participation in all aspects of life.
The specific objectives
The specific objectives
1. To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use
The specific objectives
1. To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use
2. To discuss the appropriateness of the data sets available for the development of human rights based indicators
The specific objectives
1. To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use
2. To discuss the appropriateness of the data sets available for the development of human rights based indicators
1st Report
The specific objectives
1. To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use
2. To discuss the appropriateness of the data sets available for the development of human rights based indicators
3. To develop a valid and reliable set of core indicators to monitor State compliance with articles 25 and 26 of the Convention
The specific objectives
1. To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use
2. To discuss the appropriateness of the data sets available for the development of human rights based indicators
3. To develop a valid and reliable set of core indicators to monitor State compliance with articles 25 and 26 of the Convention
2nd Report
The specific objectives
1. To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use
2. To discuss the appropriateness of the data sets available for the development of human rights based indicators
3. To develop a valid and reliable set of core indicators to monitor State compliance with articles 25 and 26 of the Convention
4. To produce evidence based guidelines and recommendations on the adoption of the set produced into existing European and National data collection practices
The specific objectives
1. To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use
2. To discuss the appropriateness of the data sets available for the development of human rights based indicators
3. To develop a valid and reliable set of core indicators to monitor State compliance with articles 25 and 26 of the Convention
4. To produce evidence based guidelines and recommendations on the adoption of the set produced into existing European and National data collection practices
3rd Report
Research Methods
• Report 1: Systematic Literature Review• Report 2:
– Nominal group of experts will propose the technical criteria that indicators must fulfill (academics, NGO representatives, Int’l organizations and statistical agencies officials)
– Delphi technique will be employed as a method to validate the proposed set of indicators
• Report 3: The 3A’s approach to policy recommendations (Adopt, Adapt, Act)
Research Barriers
• Indicators Development Process: – 2 stage process with expert consensus panels
(qualitative, expensive and maybe time consuming)– The most common approach to developing
indicators in the literature– Alternative methods that would cover the evidence
based criterion (feasibility-pilot study?)
• Placement to be completed by the end of 2nd year the latest (PhD interrupted)
Secondment
Disability and Rehabilitation Team (DAR)
Department of Violence and Injury Prevention and Disability
World Health Organization HQ
Geneva, Switzerland
Spring semester 2013
Proposed Timeline
DREAMWork Package 3.4Project Schedule
Sep Feb Mar Sep Oct Mar Apr Sep Oct Feb Mar Aug Sep2011 2012 2012 2012 2012 2013 2013 2013 2013 2014 2014 2014 2014
Project Start First Report
Placement at WHO
Evaluation From DREAM Supervisory Board and SPF
end Sept., 2012
Second ReportEnd Sep, 2013
Major Report
End of Project
Final Report
March 2014
Research Plan
1-10 March, 2012
Presentation to DAR TeamSep 2013 (tentative)Sep 1, 2011
Project Start First Report
Placement at WHO
Evaluation From DREAM Supervisory Board and SPF
end Sept., 2012
Second ReportEnd Sep, 2013
Major Report
End of Project
Final Report
March 2014
Research Plan
1-10 March, 2012
Presentation to DAR TeamSep 2013 (tentative)Sep 1, 2011
Thank you!