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dementia & social isolation
Quality ‘I’ Statements
People want a society where they are able to say:
• I have personal choice and control over the decisions that affect me
• I know that services are designed around me, my
needs and my carer’s needs
• I have support that helps me live my life • I have the knowledge to get what I need
Quality statements
• I live in an enabling and supportive environment where I feel valued and understood
• I have a sense of belonging and of being a valued part of family, community and civic life
• I am confident my end of life wishes will be respected. I can expect a good death
• I know that there is research going on which will
deliver a better life for people with dementia, and I know how I can contribute to it.
Prime Minister’s Challenge
• 2012-2015 & 2015-2020 • 50 commitments over four themes: - Risk reduction; - Health and care; - Awareness and social action; - Research. • Most can only be met through joint efforts • Two clear phases: - to 2018, government & partners - 2018-2020 Indicative and less detailed actions, which may change as funding, research and best practice change. • Felt that an implementation plan was needed
• Better support for people with dementia & their carers following diagnosis
• People able to live in their own home with dementia for longer
• Improved waiting times for diagnosis, applied consistently and country-wide
• GPs ensuring continuity of care • All people with dementia being given the opportunity
to plan ahead at the right time through advanced care planning
PwD and their carers’ key priorities
What you could do… • Raise awareness of dementia & depression: - Reduce stigma - Increase diagnosis rate • Healthy lifestyles advice • Nutrition & hydration • Exercise • Reduce social isolation • Support groups for people with dementia and their carers • Work with partners for a joined up approach • Staff training in dementia & depression • Take part in a Dementia Friendly Communities
programme • Dementia friendly housing
Personal Assistants - Dementia
Dementia Support Worker: Hard to Reach Groups
Dudley & Walsall Mental Health Partnership Trust provide: Community team, Memory Assessment Service, wards and a day hospital
Older People Mental Health Liaison Team
Acute hospital dementia café & activities
Butterfly Tea Party
Feedback
• I was in pain but joined in and it took my mind off things • Absolutely loved it – loved the food • Enjoyed laughing and joking with the others • Mom was very talkative – the best I have seen her in
weeks • Loved the singing and activities and laughed all afternoon • Loved the stories and talking about my life • Enjoyed crafting • My wife seemed uplifted • My wife was in bed but enjoyed the activities still • Happy and smiling through the afternoon • My mom had a wonderful time and family loved it too • Lilian was a real star with her playing of the instruments
Dementia cafés
New Art Gallery, Walsall
Carers interview new staff, score tenders and are members of redesign groups
Good on Walsall!
Well done Walsall nice to hear something positive
This is great news to hear that Walsall doing something good and doing this puts Walsall on the map I'm impressed by
this caring idea
Kudos to Walsall!
Good for you Walsall the caring Black Country
Feedback on our DFC approach
Every village, town & city in the UK should follow Walsall, what an example to set for the world!!!
I'm not the biggest fan of Walsall but this is amazing
Others would do well to follow
Nice to see something being done to help those with that awful disease
Loneliness
“The most terrible poverty is loneliness, and the feeling of being unloved.”
Mother Teresa (1910 – 1997)
“People can be lonely while in the middle of a crowd. Conversely, one can be alone
and not feel lonely.” (Beaumont, J. 2013)
The National Picture- Older People 1 in 6 have contact with a family member, friend or neighbour on less than one occasion per week
1 in 9 have such contact on less than one occasion per month
Over 20% state that they are lonely (Age UK, 2014)
About 3.8 million live alone
17% are in contact with family, friends and neighbours less than once a week
12% feel trapped in their own home
9% say they feel cut off from society
Office for National Statistics
Older People Living Alone in the UK
23
0
2,000,000
4,000,000
6,000,000
8,000,000
10,000,000
12,000,000
Total populationaged 65-74
predicted to livealone
Total populationaged 75 and overpredicted to live
alone
2018
2017
2016
2015
2014
POPPI 2016
Why loneliness is a concern It is more harmful to health than: smoking 15 cigarettes, alcohol consumption, sedentary lifestyle, obesity (Campaign to end loneliness)
It is found to be higher in people with higher blood pressure
4 times more likely to have depression
9 times more likely to develop dementia in the following 15 years
9 times more likely to visit the GP
6 times more likely to visit A&E
3 times more likely to have an emergency admission
5 times more likely to enter local authority-funded residential care
Age UK
Identifying the lonely
Living alone
Being single, divorced, never married
Low income
Living in residential care
Bereavement
Becoming a carer or giving up caring
Retirement
Aged 75 plus
From an ethnic minority community
Being gay or lesbian
Poor health
Immobile
high levels of material deprivation and crime
(University of York 2013)
Interventions and Approaches
Main categories of direct loneliness interventions to:
support and maintain existing relationships
foster and enable new connections
help people to change their thinking about their social connections
Most common approaches designed to:
reach lonely individuals
understand the nature of an individual’s loneliness and developing a personalised response
support lonely individuals to access appropriate services
Connect
Be
Active
Take
Notice
Keep
Learning
Give
Five Ways to
Wellbeing
Helping strengthen my social
connections “I need help to know
where I can go and how I can get
there-I like to go to mass on Sundays
& would like to go to luncheon club.”
Helping me
participate in
physical activity.“I enjoy gardening and
short walks but need
some help.”
Enabling me to catch
sight of the
beautiful.“I don’t see many people -it would
be nice to have tea with
a visitor on the porch -
I like to know what’s
happening”
Support me to try
something new. “ Give me the opportunity
to learn new things at home
and in my community”
Make it possible for
me to do something
nice for a friend or
stranger. “I want to help others-
I have lots of
knowledge, skill and
experience I just need a
little assistance
How you can help me stay well at home by... Listen to me! – Help
me choose! By Sally Wall
Initiative Housing Could Adopt
Housing with Care
A Dining Experience
Elderly Tea Parties
Shopping Service
Neighbourhood wardens
Good neighbour schemes
Connecting neighbours
Volunteering
Men’s shed
Befriending services (face to face and telephone)
Social prescribing
Angela Aitken Senior Programme Development and Commissioning Manager
(Wellbeing, Mental Health, Older Peoples Health) Public Health
Walsall Council [email protected]
Michael Hurt
Head of Older People & Dementia Walsall Clinical Commissioning Group & Walsall Council