Knowledge Database

• Slide Presentation for the lecture of: Dana RothBeit Issie Shapiro, Israel

• Topic of lecture: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learning Disabilities, Adjustment and Function Disorders: An Inclusive Research

• The lecture was given at Beit Issie Shapiro’s 6th International Conference on Disabilities - Israel

• Year: 2015

Autonomy, dependency, self-Image (perception) & Quality of life of

people with complex learning disabilities, adjustment and function disorders –

an inclusive research

Dana Roth, Heli Peretz – Beit Issie ShapiroDoron Lorenzi, Ruti Cohen, Yoni Simani,

Ofer Dafna – Research partners

Inclusion

“Nothing

about us

without

us”

“No longer researching about us without us”

Action Research

Action research generates knowledge to impact practice

Inclusive Action Research

Inclusive / participatory research approach includes representatives of those who are the “Subjects” of the research.

This approach is geared to study the issues most relevant and important to the group.

Based on finding of the research one outcome is action (Social, Policy, etc.)

People with disabilities participate in establishing the research topic and research question (s).

People with disabilities participate in the literature review.

People with disabilities participate in designing the research methods?

People with disabilities participate in designing the instruments to assure relevance, accessibility, and usability.

People with disabilities participate in selecting and recruiting study participants (sample).

How Inclusive is the research ?

D. N. Bryen 2012

People with disabilities participate in designing the institutional review application (ethics review), especially as it relates to informed consent.

People with disabilities participate in data collection.

People with disabilities participate in data analysis.

People with disabilities participate in writing the research results and conclusions.

People with disabilities participate in research dissemination, including publication, presentations, brochures, papers in easy language to ensure accessibility and ease of understanding.

People with disabilities participate in ensuring that research findings are sustainable and are used for social justice changes.

The ResearchersAdults with complex learning, adjustment & Function disabilities (4); Professional researches (2).

The Research process20 work meetings, about 3 hours each, (May 2012-may 2015), all graduates of BIS “Inclusive University”.

The Research Question

Is there a correlation between autonomy, dependency, self- image (perception) & Quality of life of people with complex learning disabilities, adjustment and function disorders

Literature Review

[Patricia ,Sitlington and Frank (1990) Cuskelly and Bryde (2004) Deci, Hodges, Pierson and Tommasone (2001), Margalit and Schulman (2001), shessel and reif (1999), Gereber (1999)]

Discussion pre-study• What is the difference between disability &

dependency?• Does disability means dependence?• Are autonomy & dependency Antonyms?• Is autonomy positive & dependency negative?

Almost no publications regarding ADULTS with LD

Research Measures (based on)

1. Quality of life Questionnaire, (Cummins, 2005).

2. Autonomy, Dependence scale, (ACS -30)

(Bekker & Van - Assen, 2006)

3. Self Esteem Questionnaire, (Rosenberg, 1965)

4. Sociodemographic information

-pilot-

Research Measures

2. Autonomy, Dependence scale (ACS -30)

1. Quality of life Questionnairei.e. How satisfied are you from your life generally How satisfied are you from thing you achieved in life

3. Self Esteem Questionnairei.e. I feel that I am worth less than others I don't feel there is much I can be proud of

i.e. I can not stand that someone is angry at me Very rarely I think about experiences or feelings of others

A. Autonomy in relationships

i.e. Many times I am not sure of what my opinions are Usually when I am asked I know the answer

B. Autonomy in thinking/thought

C. Initiations i.e. It is hard for me to plan new activities I easily deal with problems

Data Collection

• Respondents recruited by the researchers with disability :

• explaining the study• Supporting respondents• Collecting questionnaires

gender% N

49.1 45 Female

55.9 57 Male

7 No response

109

Age7.2 S.D. 33.9 Mean

21-54 Range

Employment Statues% N

90.9 90 Employed

9.1 9 Un-Employed

10 No response

109

Family Statues% N

69.9 72 Single

31.1 31 In relationship

Residential Setting% N

10.1 11 Independent

14.7 16 With parents

37.6 41 Satellite 13.8 15 Training apt.

8.3 9 Therapeutic apt.

Social Demographic Profile

Means of Scales

Quality of li

fe

Self e

steem

Autonomy in re

lationsh

ips

independent thinkin

g

Initiative0

0.51

1.52

2.53

3.54

r=.461

r=.320

r=.501

r=.354

r=.292

Significant findings Based on indept. Var

QOLSelf Esteem0

0.5

1

1.5

2

2.5

3

3.5

SingleIn a relationship

Correlations among the variable

independent thinking Initiative Autonomy in

relationships Self esteem Quality of life

.083 .354** .292** .461** 1 Quality of life

.311** .320** .074 1 Self esteem

.211* .278** 1 Autonomy in relationships

.501** 1 Initiative

1 Independent thinking

Conclusion Relationship is an area where emphasis must take

place, its complexity, significance in self esteem and quality of life , with relations to independence and dependence, etc.

The correlation of independent thinking and initiative, implication for early intervention approach.

The correlation of self-esteem and QOL, and the fact that those in relationships rate a higher self esteem.

RecommendationsInclusive research is a MUST when conducting

research on lives of people, critical in formulating the relevant questions and in selecting the measures.

In the future a measure of efficacy and self-efficacy should be included.