Connecting

What comes to mind when you hear “emer-gency?” Parents often think of a medical emer-gency related to their child’s special healthcondition. Preparations may involve makingsure your child’s caregivers and school knowwhich hospital you prefer, what medicationsyour child is taking, and who to call if youcannot be reached.

Those are good basic steps for an emergencythat is specific to your child, but sometimes

emergencies affect an entire school, neighbor-hood, or city. If your family needs to “shelter inplace” within your home, or evacuate and possi-bly move to a shelter, what would you need tobe prepared?

For families of children with special needs,emergency preparedness requires a broad viewand some extra attention to planning. Reviewinga variety of emergency scenarios is the first stepin being well-prepared.

Getting ReadyWhat can your family do to prepare for a disaster?

Summer 2013vol. 18, no. 2

Raising Special KidsFamilies Helping Families

— continued on page 3

Are you prepared?

Fire Captain and Paramedic, Jeff Chesleigh with his son, Connor

2

Connecting is published by Raising Special Kids

5025 E. Washington St., #204Phoenix, AZ 85034

602-242-4366 • 800-237-3007Fax: 602-242-4306

raisingspecialkids.orginfo@raisingspecialkids.org

Southern Arizona400 W. Congress St. #241, Tucson, AZ 85701

520-441-4007

Northern ArizonaPO Box 5630, Flagstaff, AZ 86011

928-523-4870

STAFFJoyce Millard HoieExecutive Director

Marissa HuthEditor

Anna Burgmann, Brianna Carreras, Cat Coscia, Gloria Demara, Vickie French,Kathy Gray-Mangerson, Rachel Hanzuk,

Denise Hauer, Marie Hoie, Jeanne Hollabaugh, Wendi Howe,

Jill McCollum, Heather Joy Magdelano,Maureen Mills, Janna Murrell,

Gabriela Parra, Genevieve Remus, Dolores Rios Herrera, Vicky Rozich,

Nannette Salasek, Paulina Serna, Heather Snider, Peggy Storrs,

Nilda Townsend, Kathleen Temple,Christopher Tiffany, Alice Villarreal,

Kelly Watson, Neil Wintle

BOARD OF DIRECTORS

Paula Banahan, PresidentBlanca Esparza-Pap, Vice President

Elizabeth Freeburg, Treasurer,Tom Batson, Secretary

Barbara BrentTonya Gray

Karen HindsRegan Iker-Lopez

Jenifer KastenJacob Robertson

Gabriela Sanchez-OrozcoJanelle TassartKarin Smith

Parent to Parent support is the heart ofRaising Special Kids. Information about

local services, educational programs, advo-cacy, or special health care needs is availablein Spanish and English. Services are provid-

ed at no charge to families in Arizona. Raising Special Kids is a

501(c)(3) non-profit organization.

My son has a diagnosis of Spina Bifidaand Hydrocephalus. I’ve prepared a back-pack with medical essential supplies forhim. In our case these are some of theessential items needed: catheters, syringes,gloves, ky-gel, chait button adapter, meds,salt, list of meds he is allergic to, medicalalert bracelet, water and insurance infor-mation. He knows what we need becausehe is used to carrying a small backpack everywhere he goes(relatives’ house, church, movies, social activities) when he’snot in school.

— Dolores Rios Herrera Family Support Specialist, Phoenix

Our family uses sign language tocommunicate. It's essential for us tohave a flashlight with plenty of sparebatteries. For children with hearingaids and cochlear implants, spare bat-teries are a must.

— Jeanne HollabaughFamily Support Specialist, Tucson

My son, who has autism, has alwaysneeded to stick to a routine and has neverdone well with change. The thing thathelps him to transition from one thing tothe next is his iPad— and a wifi connection!

— Gloria DemaraFamily Support Specialist, Yuma

Our son would need music. We’dhave to bring a radio with solar orhandcrank battery charging capabilities,as well as his meal replacement drinksand medications.

— Maureen MillsFamily Support Specialist, Phoenix

Preparedness tips from staffPersonal recommendations on getting prepared for a disaster or other emergency

Raising Special KidsFamilies Helping Families

3

— continued from page 1

What is realistic and practical?

Getting ready for every possible disaster canbe overwhelming. Will Humble, Director of theArizona Department of Health Services, said“keep it simple and use common sense—trustyour instincts as a parent. First, prepare forthings that are most likely to occur.” It is impor-tant to understand what types of events are mostlikely to affect your area. For the majority ofArizona’s population, the list includes:

• Excessive heat

• Extreme storms

• Power outages

• Wildfire

• Flooding

• Higher elevations: Snow storms and ice

Personalize

“Families are the first first responders,” saidHumble. Each family’s situation presents uniqueneeds as well as assets to draw upon. Will your fam-ily need medication? Electricity? Attendant care?

Raising Special Kids asked parents of childrenwith special needs to consider what their familywould need. Responses included:

• Ice packs and a cooler for medication

• Detailed medical records about a complexcondition

• A quiet, enclosed space or noise cancellingheadphones

• Batteries/recharger or maintenance kit forspecialized medical or assistive technolo-gy equipment

• A personal flashlight to enable sign lan-guage or lip-reading in the dark

• Supplies for a service animal

In addition to items everyone should prepare(water, first aid kit, etc.) consider what uniqueitems you should have ready to go in order tomeet your child’s essential needs if you do nothave access to resources you use every day.Would your child need additional provisions forcommunication, transportation, supervision,nutrition, personal care or medical care?

Your network

In an emergency, your support network ofother people may become your most importantasset. Consider who is in your support networkof Family, Friends, and Caregivers. Know howthey can be reached, and ensure they know thebest way to reach you. How will you reunitewith your family members if an event happenswhile you are separated? Identify a place to go ifyou need to evacuate, and check to see that yourdestination is prepared to accommodate theessential needs of your child.

Inform your local fire department

Families whose child has specialized medicalequipment or behavioral needs may benefit bydisclosing that information to local first respon-ders. Jeff Chesleigh, a Fire Captain andParamedic for Rural Metro and parent to a childwith special needs, “highly” recommends fami-lies with critical medical technology in theirhome offer an introduction to fire departmentpersonnel to familiarize them with the equip-ment. “Hospitals sometimes send kids homefrom the hospital with IV pumps or vents. If you

— continued on page 4

Nannette laid out a “Ready Kit” of essential supplies shewould need to bring for her daughter if their family evacu-ated or moved to an emergency shelter. Annie has SpinaBifida and Hydrocephalus.

4

have things like that, I would certainly let the firedepartment know.” He also noted that casualhome visits by fire department personnel may beuseful for certain behavioral situations such as achild with autism who may have extreme reac-tions to strangers. Having familiarity with emer-gency personnel in uniform before an actual emer-gency arises could reduce confusion for a child.

Ray Morris, a fireman with experience in crisisand emergency management, is also the parentof a son with special needs, and he providesinformation on Emergency Preparedness forfamilies of children with disabilities.** Heexplained that modern computerized emergencydispatch systems can inform response crewsabout special circumstances at a particularaddress. It can be helpful for fire departments toknow in advance about functional needs of a childin their area such as mobility issues or criticalmedical technology.

Locations outside your home

Create a plan for each location where yourchild will be spending time on a regular basis.Consider daily transportation routines such as aschool bus or car pool, school, day care, extra-curricular activity areas, and homes of extendedfamily and friends.

Schools are required to have an emergencyplan. Inquire whether the plan addresses how toaccommodate students with special needs. Ifyour child will have extraordinary needs duringan emergency event, such as access to medica-

tion or an attendant to prevent wandering, askthe school about the plan to address those needs.

Community Preparedness

Becoming involved in your community’s pre-paredness efforts can increase your awarenessand that of first responders and organizers.“Arizona is becoming a national leader in

Emergency Preparednessfor people with disabilitiesbecause of the collabora-tion of two communities:Emergency Services andAccess and FunctionalNeeds,” said TonyDiRienzi, Director of theArizona StatewideIndependent LivingCouncil (SILC).

SILC meets regularlywith representatives from

the Arizona Department of Health, the ArizonaDivision of Emergency Management and theMaricopa Department of EmergencyManagement to collaborate on strategies forinclusive emergency mitigation, response andrecovery for people with access and functionalneeds. “We are looking at the needs of individu-als and families in order to accomplish activitiesof daily living. Access means more than beingable to get through the front door of a building.It could include access to quiet areas, specializedequipment, electricity to recharge equipment,and other needs.”

Being proactive and getting your home andother locations ready before an event occurs cangive you confidence and reassurance that youhave done the best preparation for your family.The task may seem overwhelming, but if youtake small steps, you can improve your family’spreparedness each day. A good first step is todownload Raising Special Kids’ Emergency Factsheet and complete the attached informationform to share with all your child’s caregivers (seehow below).

— continued from page 3

Raising Special Kids Emergency Fact Sheet Download from our web page http://raisingspe-

cialkids.org/resources/emergency-preparedness/ or

call for a paper copy 602-242-4366 or 800-237-3007.

**Training information http://dads4specialkids.com/emergency-preparedness

“Since we moved away from an

earthquake zone, we’ve found it is

easy to fall out of the habit of

always being ready for a disaster.

But we’ve been through a disaster

situation in which we had no drink-

ing water for two weeks. It is so

important to be prepared!”

5

Emergency Preparedness Resources Online

• Federal Emergency Management Agency http://www.ready.gov/

• Arizona Emergency Information Network http://www.azein.gov/azein

• Do 1 Thing – A free 12-month program that makes it easy to prepare for emergencies or

disasters by doing one thing each month. http://do1thing.com

• Just In Case Arizona http://www.justincasearizona.com/

• County emergency departments in Arizona http://www.dem.azdema.gov/countymap.html

• Pediatric Emergency Preparedness http://www.pediatricemergencypreparedness.org/

Under the Individuals withDisabilities Education Act(IDEA), every child in specialeducation has the right to havecertain people included on theteam that determines the child’sIndividual Education Program(IEP). At least one of those peo-ple is a parent.

For some students, that rolemay be filled by a Foster Parentor a Surrogate Parent. TheArizona Department ofEducation published answers tosome frequently asked ques-tions about the role and rightsof Surrogate and Foster Parents.Two sample questions arereproduced below, and the fulldocument can be viewed athttp://www.azed.gov/special-education/special-projects/sur-rogate-parents/ or call RaisingSpecial Kids for assistance 602-242-4366 or 800-237-3007.

Q If a child is in the legal cus-tody of the State and hasbeen placed with a fosterparent but parental rightshave not been terminatedand the parents’ educationalrights have not been sus-pended, can the foster par-

ent participate in the IEPmeeting, etc.?

A Yes. Regardless of whetherthe biological or adoptiveparent attends, the fosterparent may participate inthe IEP meeting as a partic-ipant.

Q The child is in foster carebut parental rights have notbeen terminated and theparents’ educational rights

have not been suspendedBoth the parent and the fos-ter parent attend the IEPmeeting and a disagreementarises between the fosterand natural parent concern-ing the IEP placement.Which one has the authorityand right to serve as thedecision-making parent?

A In this scenario, the parent,not the foster parent, hasthe legal authority andrights.

Q/A on Foster or Surrogate Parent in Special Educationhttp://www.azed.gov/special-education/special-projects/surrogate-parents/

6

For workshop descriptions or to register online visit www.RaisingSpecialKids.org or call 602-242-4366 or 800-237-3007.

Our office is a fragrance-free environment. Please avoid wearing fragrances.

No Cost Workshops & Training

PhoenixDisability Empowerment Center,5025 E. Washington St., #204,Phoenix, AZ 85034

High School TransitionSat. 7/20/13, 8:00 – 9:45am

Summer School for Parents*

Getting and Keeping the First JobSat. 7/20/13, 10:00 – 11:45am

Summer School for Parents*

Thurs. 8/22/13, 6:00 - 8:00pm Tues. 9/17/13, 6:00 - 8:00pm

Parent/Professional CollaborationSat. 7/20/13, 12:45 – 2:30pm

Summer School for Parents*

GuardianshipTurning 18, What’s Next?Sat. 7/20/13, 2:45 – 4:15pm

Summer School for Parents*

Sat., 8/17/13, 10:00am - 12 noonThus., 9/12/13, 6:00 - 8:00pm

*Summer School for Parents7/20/13, 8:00am - 4:15pmLunch provided. No child care.

IFSP BasicsThurs. 9/26/13, 6:00 - 8:00pm

Positive Behavior Support Sat. 8/17/13, 10:00am - 12:00 noon Thurs. 9/12/13, 6:00 - 8:00pm

Understanding 504Sat. 8/17/13, 1:00 - 3:00pm

IEP BasicsSat. 8/17/13, 1:00 - 3:00pm Sat. 9/14/13, 10:00am - 12:00 noon

Advanced IEP TrainingSat. 9/14/13, 1:00 - 3:00pm

The Journey to AdulthoodThurs. 8/8/13, 6:00 - 8:00pm

Bullying PreventionThurs. 8/22/13, 6:00 - 8:00pm

Organizing Your Child’s RecordsThurs. 9/26/13, 6:00 - 8:00pm

Functional OutcomesTues. 9/17/13, 6:00 - 8:00pm

IDEA - What You Need to KnowThurs. 8/8/13, 6:00 - 8:00pm

YumaACHIEVE Human Services, Inc.Corporate Office3250-A East 40th StreetYuma, AZ 85365

Yuma Conference for Parents of TeensIn collaboration with the Divisionof Developmental DisabilitiesSat. 8/24/13, 9:00am - 3:30pm

• High School Transition

• Journey to Adulthood

• Guardianship

Parent Professional Collaboration Wed. 9/25/13 5:00 to 6:30pm (English)7:00 to 8:30pm (Spanish)

Tucson Area(Locations vary)

IEP BasicsThurs. 8/15/13, 1:00 to 3:00pm Woods Memorial Library3455 N. First Ave.Tucson, AZ 85719

IDEA - Parents’ RightsSat. 8/31/13, 10:00am to 12:00 noonMission Branch Library3770 S. Mission RoadTucson, AZ 85713

IEP AdvancedThurs. 9/19/13, 6:00 to 8:00pm Woods Memorial Library3455 N. First Ave.Tucson, AZ 85719

IEP BasicsThurs. 9/26/13, 6:00 to 8:00pm Sahuarita School District Admin. Bldg.350 W. Sahuarita Rd.Sahuarita, AZ 85629

NogalesCochise Community College2021 N. Grand Ave.Nogales, AZ 65621

Special Education ConferencePresented in Partnership with theSanta Cruz Parent Love ConnectionSat. 9/21/13, 8:30am to 3:30pm

• Resilient Families

• IEP Basics

• Positive Behavior Support

Northern Arizona(Locations vary)

IEP BasicsParent Professional CollaborationThurs. Evening 8/1/13HopiLocationTBD (Watch for Flyer)

Organizing Your Records8/13/13, 9:00 - 11:00amAbundant Life Church1212 N Stockton Hill Rd Kingman, AZ

White MountainConference for Special Ed.Sat. 9/28/13, 9:00 to 3:30pmTaylor Intermediate School207 N. 500 WestTaylor, AZ 85939

• Positive Behavior Support

• High School Transition

• Guardianship

• IEP Basics

• Journey to Adulthood;Understanding Puberty

7

Al cumplir los 18 años, ¿quesigue? Tutela: Tomando la Decisión yEntendiendo el ProcesoAprenda lo que la Tutela implicay sus alternativas antes de que suadolescente cumpla los 18 años deedad.lunes 8/19/13, 10:00 - 11:30amlunes 9/23/13, 10:00 - 11:30am

El Comportamiento PositivoEl vínculo entre las familias lasintervenciones y el apoyo conduc-tual positivo es muy importante.lunes 8/12/13, 10:00 - 11:30amlunes 9/16/13, 10:00 - 11:30am

Resultados FuncionalesAyuda a padres a identificarobjetivos para el Plan FamiliarIndividualizado de Servicios(IFSP) o el Plan Individualizadode Servicios (ISP) de su niño.Aprenda cómo trabajar con ter-apeutas y proveedores para apo-yar el progreso del desarrollo desu hijo.sábado 9/14/13, 10:00 - 12:00pm

Conceptos Básicos del IEPAprender acerca del propósito delIEP a través de una visión generaldel documento y reunión.lunes 8/12/13, 12:30 - 2:00pmlunes 9/16/13, 12:30 - 2:00pm

Destrezas para ser un PadreDefensor EficazUsted aprenderá:1) Qué es ser defensor 2) Cómomejorar sus destrezas de abogacia3) Cómo hacer una contibuciónsignificativaviernes 9/13/13, 12:30 - 2:00pm

El Camino a la Adultez:lo que todo padre debe saber• Preparar a los jóvenes para loscambios de la pubertad y la ado-lescencia• Identificar las destrezas nece-sarias para la adultez: qué debensaber los jóvenes, y cuándo• Identificar las ideas y her-ramientas para ayudarles en elproceso viernes 8/16/13, 10:00 - 11:30am

Adquiriendo y Conservando elPrimer TrabajoTaller diseñado para ayudar a lasfamilias con estrategias quepueden utilizar los jóvenes condiscapacidades para mejorar susposibilidades de empleo. viernes 9/13/13, 10:00 - 11:30am

Al cumplir los 3 años ¿quesigue?Intervención TempranaAprenda sobre los requisitos parala transición e ideas para lograrun proceso mas fácil.sábado 9/14/13, 1:00 - 3:00pm

CALENDARIO EN ESPAÑOLPor favor llamar al 602-242-4366 o 800-237-3007 para confirmar su asistencia a los talleres.

Vea el Calendario en español en nuestra pagina web: www.raisingspecialkids.org

Disability Empowerment Center, 5025 E. Washington St., #204, Phoenix, AZ 85034

Somos una oficina libre de fragancias.

Meet our new staff in Northern and Southern Arizona

Cat Coscia

Family SupportSpecialist

Flagstaff

Denise Hauer

Family SupportSpecialist

Flagstaff

Kathy Gray-Mangerson

Family SupportSpecialist

Tucson

Nilda Townsend

Family SupportSpecialist

Sierra Vista

Gloria Demara

Family SupportSpecialist

Yuma

8

MediationExcerpt from Preparing for Special Education Mediation and Resolution Sessions: A Guide for Families and Advocatespublished by The Advocacy Institute and The Children’s Law Clinic Duke University School of Law

Common Core and students with disabilitiesSince 2010, 45 states have

adopted standards for Englishand math called the CommonCore Standards. These stan-dards reflect knowledge andskills that students shoulddevelop in K-12 education, sothey will graduate preparedfor college or careers.

The standards apply to stu-dents with disabilities, so whatare the implications for stu-dents in special education?

The National DisseminationCenter for Children withDisabilities (NICHCY) reports:

“In the document Applicationto Students with Disabilities, thestandards indicate thatinstruction for students withdisabilities must include:• supports and related services

designed to meet students’unique needs and enable theiraccess to the general educationcurriculum;

• an IEP that includes annualgoals aligned with and chosento facilitate their attainment ofgrade-level academic stan-dards; and

• teachers and specialized instruc-tional support staff who areprepared and qualified to

deliver high quality, evidence-based individualized instructionand support services.

Additional supports providedas needed:• instructional strategies based on

the principles of UniversalDesign for Learning (UDL); and

• assistive technology devices andservices that enable access tothe standards.”

Parents of students in special education areequal members of the team that develops theirchild’s Individual Education Program (IEP). Insome cases parents are not able to reach anagreement with the other members of the team.At that point, one option many parents havefound to be effective is mediation. The followingexcerpts provide an introduction to mediation,and the full guide can be downloaded free ofcharge online (see link below).

What is special education mediation?

Special education mediation is a process inwhich a mediator helps to resolve a disputebetween a parent and school district personnelover a child’s special education program. Amediator is a neutral person who will help theparticipants arrive at a mutually satisfactoryagreement. The mediator is paid by the stateeducation agency, so there is no cost to either theschool district or the parents.

The mediator should:• Help the parents and school officials state their

positions clearly and productively;

• Help the parents and school officials stay focusedon the relevant issues;

• Provide a neutral assessment of the strength ofeach side’s position;

• Separate the parents from the school personnel, ifnecessary or useful, and become their go-betweenfor communication;

• Identify areas of agreement and disagreement;

• Suggest possibilities to each side that might bringthem closer to agreement;

• Facilitate the drafting of a mediation agreementthat resolves the dispute, if the parents and schoolofficials have come to an agreement.

Download the complete guide at:http://www.advocacyinstitute.org/resources/Preparing.for.SpEd.Mediation.Resolution.Sessions.pdf

Read more online:http://nichcy.org/schools-adminis-trators/commocore#families

9

Disability Benefits 101Website has tools and information on health coverage, benefits, and employment

Affordable Care ActVisit Healthcare.gov to get acquainted with options for your family

Changes at Childrens Rehabilitative Services

Visit db101.org for useful and free informa-tion about how disability benefits intersect withemployment. Use the calculator tools to enteryour child’s specific situation and discover howa job can affect their health coverage, cash bene-fits and total income.

Topics found under Tips for Parents include• Start Planning Now - Help your child

plan for the future.

• Benefits - Learn how your child’s benefitsmay change after they turn 18.

• Education - Find out more about yourchild’s options after high school.

• Working - Help your child plan for theirfuture career and balance work and bene-fits successfully.

October 1, 2013 marks the opening of the newHealth Insurance Marketplace established underthe Affordable Care Act (ACA) to provide a one-stop shop for consumers in each state to compareand purchase health insurance options. Coverageunder the new insurance policies will begin assoon as January 1, 2014.

Learn about the ACA and what will be avail-able to your family before the enrollment periodbegins. Information is currently available atHealthCare.gov (en Español: CuidadoSalud.gov)and more will be added during the coming

months. There is also a 24/7 call center availablein 150 languages at 800-318-2596 (TTY): 855-889-4325.

Plans in the Marketplace are required to treatyou fairly, and they cannot deny coveragebecause of a pre-existing condition. With a singleapplication, you can also see if you qualify forMedicaid or the Children’s Health InsuranceProgram, or savings you can use to lower yourhealth insurance premiums.

If you need additional assistance, please callRaising Special Kids at 800-237-3007 or 602-242-4366.

Beginning October 1, 2013 families whosechildren receive services through ChildrensRehabilitative Services (CRS) will have one offour new CRS coverage types.• Families will have a choice of receiving primary

care or behavioral health services in the CRS clin-ic, or visiting a provider in the community who is contracted with CRS.

• Members will get a new CRS identity card.

• Members who are currently enrolled under ElderlyPhysically Disabled (EPD) through Arizona Long

Term Care Services (ALTCS) will be moved intotheir ALTCS plan and will not stay in CRS as ofOctober 1.

• CRS members will be given a one-time option atage 21 to remain in CRS.

If you have further questions about changesin CRS services or the four coverage types,please call 866-275-5776, ask your CRS clinic, oremail CRS_SpecialNeeds@uhc.com.

You can go directly to the area for Arizona residentsat http://az.db101.org/.

10

Preparación ¿Qué puede hacer su familia para prepararse para un desastre?

¿Qué es lo primero que se leviene a la mente cuandoescucha la palabra “emergen-cia”? Los padres suelen pensaren una emergencia médica rela-cionada con la condición espe-cial de salud de su hijo. Lapreparación, en este caso, impli-ca asegurarse de que quienescuidan de su hijo y las autori-dades de la escuela sepan elhospital al que va, las medici-nas que toma y a quién llamarsi no pueden comunicarse conusted.

Esas son medidas básicas encaso de emergencias específicasde su hijo, pero a veces lasemergencias afectan a toda laescuela, el vecindario o la ciu-dad. Si su familia debe res-guardarse en casa, o evacuarlay trasladarse a un refugio, ¿quénecesitaría tener preparado?

Para las familias de niñoscon necesidades especiales,prepararse para una emergen-cia requiere una visión másamplia y mayor atención a lahora de planificar. Pensar endiversas situaciones de emer-gencia es el primer paso paraestar bien preparado.

¿Qué es realista y práctico?

Prepararse para todos losdesastres posibles puede serabrumador. Will Humble,Director del Departamento deServicios de Salud de Arizona,le sugiere que “no se compliquey use el sentido común, confíeen sus instintos como padre.Primero, prepárese para lo quetiene más probabilidad de ocur-

rir”. Es importante saber quétipos de eventos afectan conmayor frecuencia a la zona enla que se encuentra. Para lamayoría de la población deArizona, los casos son:

• Calor excesivo

• Tormentas fuertes

• Cortes de electricidad

• Incendios forestales

• Inundaciones

• Zonas más altas: nieve yeventos relacionados conel frío

Personalice

“Las familias son los primerosprimeros respondientes”, expli-ca Humble. Las familias tienennecesidades únicas y requierenartículos distintos. ¿Su familianecesitará medicinas?¿Electricidad? ¿Cuidados espe-cializados?

Raising Special Kids le pidióa los padres de niños connecesidades especiales que pen-saran en qué podría necesitarsu familia y algunas de lasrespuestas fueron:

• Hielo y hieleras (neveraspequeñas) para las medi-cinas

• Historias médicas detal-ladas sobre condicionescomplejas

• Un lugar tranquilo y cer-rado o auriculares concancelación de ruido

• Baterías y cargador oestuche de mantenimien-to para equipos médicosespecializados o con tec-nología de apoyo

• Linterna para poderdescifrar lenguaje de

señas o de labios en laoscuridad

• Suministros para un ani-mal de servicio

Además de los artículos quetodos deberíamos preparar(agua, botiquín de primeros aux-ilios, etc.), piense qué artículosespecíficos necesitaría para satis-facer las necesidades básicas desu hijo si no tuviese acceso arecursos que utiliza a diario. ¿Suhijo necesitaría suministros adi-cionales para comunicación,transporte, supervisión, nutri-ción, cuidado personal o médico?

Su red

En una emergencia, su redde apoyo de otras personaspodría convertirse en su ventajamás valiosa. Piense en quiénestá en su red de apoyo defamiliares, amistades ycuidadores. Averigüe como con-tactarlos y si saben la mejorforma de comunicarse conusted. ¿Cómo se reunirá con losmiembros de su familia siocurre un evento mientras estánseparados? Identifique un lugarpara ir en caso de evacuación yasegúrese de que su lugar dedestino está preparado paracubrir las necesidades básicasde su hijo.

Informe a su departamento

local de bomberos

Las familias que tienen niñoscon equipos médicos especializa-dos o necesidades de compor-tamiento pueden beneficiarseproporcionándole esa informa-ción al equipo de atencióninmediata local. Jeff Chesleigh,

Capitán de Bomberos, paramédi-co de Rural Metro y padre de unniño con necesidades especiales,le recomienda “encarecida-mente” a las familias que lebrinden orientación al personaldel departamento de bomberospara que se familiaricen con losaparatos de respiración u otrosequipos médicos imprescindiblesen el hogar familiar. “A veces, loshospitales envían a los niños acasa con bombas de infusión (IVpumps) o aparatos de res-piración. Si tiene aparatos comoesos, definitivamente recomien-do informarle al departamentode bomberos”. Chesleigh tam-bién afirma que las visitas domi-ciliarias del personal del depar-tamento de bomberospueden ser útiles paraalgunas situaciones delcomportamiento, como unniño con autismo quepudiera tener reaccionesextremas frente a personasextrañas. Familiarizarse con per-sonal de emergencia uniformadopodría ser útil para el niño encaso de una emergencia real.

Ray Morris, bombero conexperiencia en manejo de crisis yemergencias, también tiene unhijo con necesidades especiales.Explica que existen modernossistemas computarizados quepueden informarle a losequipos de respuesta sobre cir-cunstancias especiales en deter-minada dirección. Las familiaspueden ayudar a los equiposinformándole al departamentode bomberos de antemanosobre necesidades funcionalesde los residentes, como proble-mas de movilidad o tecnologíamédica imprescindible.

Lugares distintos a su hogar

Diseñe un plan para cadalugar en el que su hijo pase tiem-po regularmente. Considere ruti-nas de transporte diarias, comoel autobús escolar o el transportecompartido, la escuela, el centrode cuidado, áreas de actividadesextracurriculares y casas defamiliares y amigos.

Las escuelas deben tener unplan para emergencias.Investigue si el plan contemplacómo atender estudiantes connecesidades especiales. Si su hijotuviese necesidades extraordi-narias durante una emergencia,como acceso a medicamentos o aun asistente para evitar que se

desoriente, pregúntele a laescuela por el plan para atenderesas necesidades.

Preparación de la comunidad

Participar en las labores depreparación de su comunidadpuede incrementar su nivel deconsciencia, así como el delequipo de atención inmediata yel de los organizadores. “Arizonase está convirtiendo en lídernacional en Preparación paraEmergencias para personas condiscapacidades debido a lacolaboración de dos comu-nidades: Servicios deEmergencia y Acceso yNecesidades Funcionales”, expli-ca Tony DiRienzi, Director delConsejo Estatal de Vida

Independiente de Arizona (SILC,por sus siglas en inglés).

El SILC se reúne periódica-mente con representantes delDepartamento de Salud deArizona, la División de Manejode Emergencias de Arizona y elDepartamento de Manejo deEmergencias de Maricopa paracolaborar con estrategias relati-vas a la atención de emergenciasde forma incluyente y a larespuesta y recuperación parapersonas con necesidades fun-cionales y de acceso. “Estamosestudiando las necesidades deindividuos y familias para llevara cabo actividades de la vidadiaria. El acceso significa másque poder entrar por la puerta

principal de un edificio.Puede incluir acceso aáreas tranquilas, equipoespecializado, electricidadpara recargar equipos yotras necesidades”.

Ser proactivo y tener sucasa y otros lugares listos antesde que ocurra un evento le darála confianza y la tranquilidad desaber que hizo todo lo posiblepara preparar a su familia. Latarea puede parecer abrumado-ra, pero si va poco a poco puedemejorar la preparación de sufamilia día tras día. Un buenprimer paso es descargar la hojade datos para casos de emergen-cia de Raising Special Kids,llenar el formulario adjunto ycompartirlo con quienes cuidana su hijo. Visite el enlace queaparece más abajo o llame al602-242-4366 o 800-237-3007 parasolicitar una copia.

Hoja de datos para casos deemergencia de Raising SpecialKids http://bit.ly/15NU1jX.

11

http://www.ready.gov/translations/spanish/index.html

12

SwimmingIdeal for kids with special needs and their families

Swimming is the ideal summer activity. It’s greatfor cooling down, burning off energy, and sharingfun times with family and friends of any age.

The aquatic activity is the answer for manyfamilies as they try to help their kids keep fitthrough participation in athletics. Swimming isan essential safetyskill that can beused throughoutlife, and it can beenjoyed as an indi-vidual activity or ateam sport. Formany kids with dis-abilities or specialneeds, the buoyan-cy of water is aphysically liberat-ing environment,and swimmingoffers benefits thatmost other sports orphysical activitiescannot match.

The weightless-ness of being inwater providesrelief from effects ofpoor balance andpostural control, andreduces strain onjoints and connective tissues. The freedom ofmotion in this environment can promote move-ment and encourage exercise leading to improve-

ments in strength, stamina, flexibility, gross motorskills, muscle tone, coordination and circulation.Without the hazards of hard surfaces, there is lessrisk of injury from falls or other impacts, yet thebenefits of aerobic exercise are not lost.

Studies show exercise can improve mood anddecrease anxiety. In addition, cognitive and psy-chological benefits can result from learning anew skill and may be seen in increased confi-dence, self esteem, discipline, self-reliance, men-tal well-being and general morale.

Swim lessons can be a great opportunity topractice social skills with peers in an environ-ment in which differences in physical ability aremuted compared to most other sports. Kids candevelop cooperation and communication skills,and release frustration through physical activitywhile having fun in a group of peers.

All in all—a terrific activity for any kid!

Where can I find swimming lessons for my child with

special needs?

• Spofit Accessible Fitness Center www.spofit.org

• City Adaptive Recreation departments

• Hubbard Family Swim Schools hubbardswim.com

“From 2009 to 2011 , accidental drowningaccounted for 91% of reported wanderingrelated deaths in children with autism.Swimming lessons are a crucial component toyour child’s safety.”

—Big Red Safety Toolkit from the National Autism Association

Heather Joy and her son, Soliz, enjoy time together in the water. She commented, “Swimmingbrings us together as a family and allows my children to be free. In the water they can exploremovement, play together and gain a sense of of accomplishment. The water allows them to beequal to other kids.”

13

Join the Garland Leadership Circle Today

Thank You to Our Donors July 1, 2012-May 31, 2013Transformational

CareScape

Champions for the Cause

The Bufka FoundationJoseph Cammiso, Sr.Champagne TapMulti-Systems, Inc.GreenbergTraurig, LLPThe Hannah B FoundationMichael M Peacock FoundationHeather ProutyNothing But NETSalesforce Foundation

Pilots

Nancy AllenPatrick AlthoffAZ Family Channel 3 NEWSPaula BanahanTom BatsonKevin BonnerJeni CalkinsLinda CannonElizabeth FreeburgNancy GundersonJacob Daniel HammondJoyce Millard HoieEugene HuangMarty KrepkoDonald NeedhamMarilyn PedgJesus SosaJohn West

Mentors

Lisa Aaroe Brian Aleksa Dr. Mary AllareAmy AllenLinda AndersonScott AndersonMartin AronsonEllen BabbyMarti BaioLisa BairdPam BaldwinKaren BannonMichaelene BarlowCharles Baron

Lorrie BeanCynthia Betts Bruce BeverlyBrian BouterieBarbara BuchananEvangeline & Patrick BuckleyNancy Campbell Shari CapraCapstone Health Plan, Inc.Julie CauichAnne ChaseMiriam CoffmanDan Coleman Karim DiabMichael Disalvo Alex EckertElaine EllisBlanca Esparza-PapJill EstepJodi FeuerhelmSteve & Vickie FrenchJerry GerkSusan GillinArt GodeThomas HalpernNicole HarguindeguyKaren HayengaMildred Hayenga Mark HeitowitElizabeth HenriksonVickie Herd David HesserKaren HindsBecca Hornstein Terry HouseIngrid HuangMarissa Huth Regan Iker-LopezValerie IwinskiPotana Kumar Gupta Jamili Angela & Curtis Jennings Alison JohnsonCharles Kazilek Dr. Dan KesslerEmily KileBeth KozikRosalie KrauseGreg LechowskiSherri Lehmann Ellen LeibowNancy Licht Jill LindenBrad Lundquist

Mary ManrossAndrew MartinAlbert Martinez Liz McBrideKelly MedlynSharon MeltonVictoria Millard Zell MillardMaureen MillsSusan MorrisDebra Murrell Gayle Nobel Joni OwenTonya PriceIrma Ragsdale Pam Remsey Michael RemusMatt RibeiroJennifer Rigby Chuck RiserKristen RolesSusie SandsShelly Shaffer Chuck & Nancy Smith Karin SmithVance Smith Michael StanleyChristopher TiffanyMargaret TiffanyTrigon Executive AssessmentCenterBetsy TrombinoJan Umhay Steve VialSusan Voirol Jill WalkerWaste Management Phoenix OpenJoAnn WatkinsRob & Kelly Watson Tim & Sally WattersRobert Weigt

Gary WeinerLeslie WilliamsNeil Wintle

Friends

10 Minutes for TalkingAlyssa AdamsNadine AlfonsoMargaret AndersonLani Angell CompSusan Baker

Shirley BentleBrigitte BontemsAnna BurgmannKylie CampoBrianna CarrerasJohn Carroll IISteven CarterJames CarvalhoChallenger Little League - TucsonShauna ChristofisDianna ContrerasHolly CottorJane DalenLauren DanielsMegan Davis DeyDiane DimmockRobert DuckworthAlex DugganKristen EngJulia FavelaFeeding MattersFirst Cup - Dunkin' DonutsFirst Smiles YumaFirst Things FirstKarin FosterAngela FountainDiedra FreedmanPaula FriedlundLeticia GonzalesGoodwill Job ConnectionSusan Gregg OdomPatty HannahRobert HarbekeKathy HarfordAlejandro HernandezMargo HimesJohn HoieLinda HudnallGrace KasnickJenifer KastenMarianne KennedyMary KnightNancy KnobelTeri KoenigMelba KollingBetty KowalskiDiane KudoDoris LawsonMichael LawsonJoyce LefcoKelli LeVasseurDavid LewisKinberly MacDuffie

Nancy MaserShauna MattsonEmily MayhewMarilyn Cecelia MeadRaun MelmedAllison MerrittEileen MueskeChellappin NarayananJodie NebrichCorinne NewboldAngela NguyenNancy OreshackMaria S. PadillaPhil PangrazioGwendolyn ParkerDr. Leslie PaulusJennifer PerryKaren PetersPhoenix Children's Hospital -

The Emily CenterMaria Angelica PimentelJanice Proctor-MurphyMary PylesBecky RaabeTerisa RademacherKatrina RiveraMimi RogersBob RoperKaren RossRobin RothEllen RutemillerGabriela Sanchez OrozcoMichael SanderferPaulina SernaSharon ShelleyRobin SmithSandra SniderJonni Snyderjennifer SosnowSpecial OlympicsPeggy StorrsLin StoudtJanelle TassartDebbie TerrillDebbie Vesperman FasanoAnh Toan VuCaryn WalshRobert WaskowichJill WestPatricia WinnerWolz's FloristCynthia Zobrist

Increase your impact anddemonstrate a spirit of caringfor our community that inspiresothers with a GarlandLeadership Circle gift toRaising Special Kids.

The Garland LeadershipCircle is a new giving societyestablished by a generous giftfrom supporter RichardGarland.

As a Garland LeadershipCircle member, you lead byexample, through your finan-cial investment, actions andvoice. Your passion and gen-erosity helps Raising SpecialKids keep pace with the rising

needs of families of childrenwith disabilities.

The benefits of being a mem-ber of the Garland LeadershipCircle begin with the examplethat you are setting to yourpeers, family, and community.You will also be recognized at

our upcoming Party With APurpose 35th AnniversaryGala (spring of 2014), in ourannual report, quarterlynewsletter and website.

Mr. Garland invites you tojoin him in this prestigiousLeadership Circle with anannual investment of $1,000 ormore — just $20 per week. You

will play a vital role in thework of Raising Special Kids aswe strive to provide families ofchildren with disabilities educa-tion, resources and the supportthey need to effectively advo-cate for their children and cre-ate their own good outcomes.

Garland

Leadership

Circle

14

Raising Special Kids News

Board of Directors member TomBatson shows his support at theMedicaid Restoration Rally. TheGovernor’s Medicaid Expansion

proposal was passed by theArizona Legislature after strong

community support.

(right) SpeechPathologist

Amy Maschuepresented at

the conference

Thanks to the efforts of the Sunrise ScottsdaleRotary Club volunteers, Scottsdale Service

Learning Students, photographer Jeff Langand our Parent Leaders, more than 2,500

kids and their family members enjoyed foodfun, free family portraits, train rides and lots

more at Special Day for Special Kids in March.

We gratefully acknowledge presenters at statewide trainings

Maureen Casey, AzEIP

Amy Maschue, MS, CCC-SLP

Rebekah Enfinger, PT, DPT

Allison Crutchfield, DMD

Heather Joy Magdelano

Erin Robinson, MS, OTR/L

Sarah Studebaker, MME, MT-BC

Dr. Robin Blitz

Feeding Matters

Ryan House

Down Syndrome Network

Window Rock Community of

Practice on Transition Committee

Collaborative TherapiesConference

Special Day for Special Kids

Medicaid Rally at the Capitol

Community Recognition

Kathleen Gray-Mangersonreceived the 2013 Diane LynnAnderson Memorial Awardfrom the CommunityFoundation Southern Arizona.

Jeanne Hollabaugh receivedthe Hearing Advocacy Awardfrom the Arizona Commissionfor the Deaf and Hard ofHearing.

Raising Special Kids is hon-ored to accept the RayRafford Community Awardfrom Mesa Public SchoolDistrict.

Maureen Mills, Alice Villarreal, Vicky Rozich, Christopher Tiffany

15

In The SpotlightMaking a Difference in the Lives of Children

Thank you for referring families to Raising Special Kids

Parent Leaders are theHeart of

Raising Special KidsThank You!

February - April, 2013

Avondale

Gabriela Sanchez Orozco

Cave Creek

Kat Rivera

Chandler

Martha Burrer

Beth Maloney

Flagstaff

Laura Stanton

Gilbert

Jo Ellen Guthrie

Holland Hines

Louise Murphy

Kim Updegraff

Glendale

Fred Burgmann

Dawn Kurbat

Ellen O'Hare

Goodyear

Anne Dennis

Kingman

Art Gode

Mesa

Julie Follmer

Kristina Park

Danielle Pollett

Phoenix

Rebecca Bailey

Michelle Bowen

Jeannie Bremerkamp

Jana Caplan

Patty Coe

Sara Eaton

Jim Gootee

Sharon Hayes

Karen Hinds

Maura Knoell

Maria Lopez

Kathy McDonald

Elizabeth Naughton-Ketzler

Doris Ortega

Carolyn Sechler

Chuck Smith

Lori Stuart

Paulina Tiffany

Maura Urquidi

Leslie Williams

Queen Creek

Kathleen Coleman

Scottsdale

Chris Atherton

Megan Bopp

Steve Lee

Carol Levenseller

Lynn Michels

Katie Petersen

Mary Quinsler

Ched Salasek

Tempe

Megan Davis Dey

Michael Sanderfer

Tolleson Kristie Amator

Volunteer

Philip Sanabria

A New Leaf Arlette Townsend

Adelante Healthcare Stacey Stocks

Advisa Care Shannon King

Aid to Adoption of Special Kids (AASK) All About Kids Pediatrics American Academy of Pediatrics of Arizona Sylvia DavisArizona American Academy of Pediatrics

Emily HughesAmanda Sumner

Arizona Autism United Paulina Tiffany

Arizona Bridge to Independent Living Arizona Care Providers

Jackie RivasArizona Center for Disability Law Arizona Counseling and Treatment Services Arizona Department of Education

Bob FitzsimmonsSusan Voirol

Arizona Department of Education Parent InformationSystem

Jill CastleAmy Dill

Arizona Department of Health Services Rita Aitken

Arizona School for the Deaf and Blind Anthony PrincipleArizonas Children Association

Amanda CoeAZEIP Arizona Early Iintervention Project (0-3)

Lora BrutonCecilia FernandezErica Mellis

Baio Enterprises, Inc. Marti Baio

Banner Estrella Medical Center Mebruke Birgeoglu

Banner Good Samaritan Medical Center Annamarie Ricci, MSW, LCSW

Banner Health Center-Maricopa Anne Welch,MD

Banner Thunderbird Medical Center Mary K Wagner

Cardon Childrens Medical Center Jessica Crowell, MSWAshley GershanorShayla Paap, MSWPatty Zowada, LMSWCare 1st Avondale Resource & Housing Jennifer Griffin

Care Connect AZ Adriana AmayaMaria Larralde

Centro de Amistad Adriana Arzola-SierraElva Torres

Cheyenne Elementary School Chicanos por La Casa, Inc Child & Family Resources

Rosy AdameChild Crisis Center

Socorro EribesChild Protective Services

Mela'nie HughesLaura Priest

Children's Clinics Ana Chavez

Children's Rehabilitative Services Ramona Cano

Christian Family Care Agency Jeff Fellman

City of Phoenix Head Start Deborah AlvyMayra MoralesLiza RomanClarendon Elementary School Jocelyn MrValencia

Crisis Nursery Joanna Martinez

Deer Valley Family Resource Center Sheryl Steele

Department of Economic Security Kristen Decker

Desert Valley Pediatrics Division Of Developmental Disabilities

Robyn AbramsAndrea AdamsCarmen AguileraKim BantaWhitney BarkleyKim BeckerRuben BernalJustin BittickDominique Blackman-McKinleyLois BrooksWilliam ByersKathleen CalderAshely CannellaRobin ChantoLeonita ColoresSusan CourinosAnita DeckerAdrienne DicksonNikkia GardnerJoelle GillettNikki GillettTanya GiotiaZenobia Gipson-BurkeKathi GuildigEsther HaszTatum HemmegerBilly HendersonErika HuffSandy JanickiDawn JohnsonCarla JohnstonBonnie KaplanKristina KelschWilliam KilgoreJanet LandmanAmy LermaCandy MancusoEllyn ManzoLupe MaresLucia Marquez

Luisa MartinezChristina MatthewsKaren MauroBetty McAnleyMartha MillsMarta MonyerLaura MooreMelissa MoradoCarlos MoralesSue MumfordTomasita NajeraMi NguyenKelli O'BrienJulie Quesada-ConerYuriana RamirezLisa RennellsBrandy RowlandClaudia SaenzLauren SchmidtMarie SchritterLaura SmithCristy SpearSusan StewartJennifer StoeberCortney TiptonAndrea TurnerJake VanHoutenRafael VelazquezAngela WarrenMegan WileyElizabeth Williams

Down Syndrome Network East Mesa Early Childhood Education Center

Shelly CotesEaster Seals Blake Foundation

Pilar OjedaEbony House Inc

Lizzette NoveloEl Rio Health Center

Andrew ArthurEl Rio SW Pediatrics

Dwayne GormanEn Familia Radio 740 AM

Cristofer PereyraFACES of Crisis Nursery, Inc.

Asata VirgoFamily Learning Center

Maritsa BeltranFamily Resources - Flagstaff Family Voices of North Dakota

Donene FeistFirelands Counseling Recovery Services

Darci TellepFort Kojave Indian Tribe Vocational Rehabilitation

Gwendlyn KempFowler School District

Julie DavisG A N E Gateway Pediatics Gilbert Unified School District Golden Gate Theological Seminary Gompers Rehabilitation Center Help Line Hope Kids

Bridget AsheimHumana Health Care Indian Health Service

Candace Speakman, MDInterfaith Agency Janice Daniel

J O Combs Middle School Jane M Rupard, PhD

Liberty Traditional Charter School Tanya Lewis

Maricopa Integrated Health System Stacy Moreno

Maricopa Medical Center Mary Ashe LCSWChristine Fruchey LCSWAutumn Livinghouse, RN,BSNSara Paxton

Melmed Center Mercy Care Plan

Jennifer IbanezMexican Consulate

Virginia BojorquezMIKID - Mentally Ill Kids in Distress Milemarkers Therapy

Becky StarkMohave Mental Health Inc

Brandie MartinCrystal Witt

Moore Vision Skills Tennille Moore

Mountain Park Health Center Barbara Hare, PsyDLauren Pearlman

Mountain View High School Rebecca Whitlock

My Child is Ready Child Crisis Center Mesa Jessica BinkleyMary Holguin

North Country Health Care Kathy Taylor

PACER Center Palm Lane Elementary School Palomina Elementary School

Lucia JonesParadise Valley Unified School District

Vicky OkamotoPartners In Recovery

Peggy McAdenPendleton Pediatrics Peoria Unified School District

Janine FischerPhoenix Children's Center

Casey MilesPhoenix Childrens Hospital

Robin Blitz, MDLynda CrystalKristen Samadday, MDChristina WaltersdorfMelissa Haslam, LMSWJodi MeadowsCynthia NakamuraCheryl Searles

Phoenix Children's Hospital Behavioral Unit

Phoenix Children's Hospital- Cystic Fibrosis Center June Lundy, LCSW

Phoenix Children's Hospital Developmental Pediatrics Beth Trevino, MD

Phoenix Indian Medical Center Jesse Sandvik

Phoenix Interfaith Agency Phoenix Pediatrics

Dr. Shannon ForsheyPhoenix Union High School District

Ricky PeraltaPinal County Head Start

Tony LimbrickPorter Elementary School

Lori ScottPoston Butte High School

Ryan RodriguezQuartzsite Elementary School Recovering Innovations Rehab Without Walls

Mandy CorneliusRescare

Susan LovettRio Vista Elementary School RISE Early Intervention

Malea GraceSuzanna KirkhamCameron KizziahKristin MancusoJoanna ReshJenee Sisnroy

Riverside Elementary School District #2 Roosevelt School District Sierra Linda High School

Dawn BellinghamSonoran Heights Elementary School

John HannanSonoran Sky Elementary School

Alana KoppSouth Pointe Jr High School

Emerald JonesSouth West Human Development

Priscilla AvilaJenny HernandezDr. Daniel KesslerNiky Burr, PsyDJennifer HarrisonAmy RobinsonSarah TyreeGayle Wiens

Southwest Network Estella Gomez

St Joseph's Hospital & Medical Center Lindsey Kern, LMSWMarilyn Shepherd

St Theresa Little Flower Catholic Preschool Cissy Wolf

Stride Psychological Services LLC Mary Okaley, PsyDmCC-AASP

Sunrise Therapy Dana Southworth

Terros The Aces The Children's Center The Emily Center - Phoenix Children's Hospital

Joy MacleodEileen Mitchell

The Guidance Center Blanca Ogregon, MA, LPC

Tohono O'odham Nation - Division of Special Needs Denise Aldrich

Touchstone Behavioral Health Kathrine Allen

Tucson Central Pediatrics UMOM New Day Centers United Cerebral Palsy West Valley Family Development Center Willow Canyon High School Wilson Community Center

INDIVIDUALS Rama KrishnanClaudia CuetoCecilia RoblesValerie Kemper, PsyDLuz MuñozDr. Mary AllareSilvia AparicioJulia BahenaJudie Barnes ClarkNehal BhattMindy BiernotMegan BoppDr. Elaine EllisLacey KrauelAngelica LaraMelissa LorestoAnita MasseyDr. Karlsson RothJohn SarmientoNicki SerioAmber SextonDr. Michael TansyHolly WiltMaria Dean

February - April, 2013

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ContentsGetting Ready . . . . . . . . . . . . . . . . . .1

Calendar . . . . . . . . . . . . . . . . . . . . . .6

Education . . . . . . . . . . . . . . . . . . . . .8

Health . . . . . . . . . . . . . . . . . . . . . . . .9

Swimming . . . . . . . . . . . . . . . . . . . .12

Raising Special Kids News . . . . . . .14

ContenidoCalendario . . . . . . . . . . . . . . . . . . . .7

Preparación . . . . . . . . . . . . . . . . . . . . . . . .10

Visit RaisingSpecialKids.orgto start helping us serve families with your gift today.

Dandelion Golf ClassicDandelion Golf ClassicAll p

roceeds

to benefit

Raising

Special Kids

7h Annual

Golfers will receive: 18 holes of golf with cart, range balls, golf shirt,breakfast, lunch, player tee prize bag, one drinkticket, one door prize ticket

Sponsored by CareScape, Inc.

Saturday, September 28, 2013 Tuscany Falls at Pebble Creek Golf Resort

16262 W. Clubhouse Drive, Goodyear, Arizona 85395

Call today for sponsorship opportunities!Individual players $150, Team Early Registration Package $600

Must sign up by August 31, 2013

For details visit: www.dandeliongolfclassic.com

or contact: Kelly Watson 602-242-4366, 800-237-3007 or kellyw1@raisingspecialkids.org

6:30 am - Registration, Breakfast, & Driving Range

8:30 am - Shotgun Start

1:30 pm - Lunch, Auction, Door Prizes, & Awards