communicating with patients: information that matters

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Communicating with Patients: Information that Matters Lisa F. Han, MPH Partner, Insight Therapeutics April 19, 2013

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Brief review about health literacy, communicating with patients, and shared decision making

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Page 1: Communicating with Patients: Information that Matters

Communicating with Patients: Information that MattersLisa F. Han, MPHPartner, Insight Therapeutics

April 19, 2013

Page 2: Communicating with Patients: Information that Matters

Objectives Define health literacy and describe

those at highest risk Recognize barriers for patients with low

literacy Discuss strategies for improving

communication with patients and family caregivers

April 19, 2013

Page 3: Communicating with Patients: Information that Matters

Health literacy the degree to which an individual has

the capacity to obtain, communicate, process, and understand basic health information and services to make appropriate health decisions.

Patient Protection and Affordable Care Act of 2010, Title V

April 19, 2013

Page 4: Communicating with Patients: Information that Matters

Poor health literacy Lack basic skills to

execute recommended preventive care and treatment – 1/3 of US population, only 12% considered proficient

April 19, 2013

Groups at higher risk of poor literacy

Elderly, poor, minorities English not first language Low education (poor

surrogate though)

Source: ihealthtran.com

Page 5: Communicating with Patients: Information that Matters

April 19, 2013

Execute

proper inhaler

use techniq

ues

Modify insulin dose based on

food intake/fingerstick

s

Manage administration of

multiple medications Recogn

ize hypoglycemia sympto

ms

ProficientHealth

Literacy

Page 6: Communicating with Patients: Information that Matters

Take two tablets by mouth twice daily

States correctly

Health literacylevel*

Demonstrated correctly

71% Low (6th grade or below)

35%

84% Marginal 63%

89% Adequate 80%

April 19, 2013

Davis T, Wolf MS, Bass PF et al. Ann Intern Med 2006

Almost half of patients misunderstood 1 or more of prescription label instructions

* REALM Score

Page 7: Communicating with Patients: Information that Matters

Poor literacy leads to…

April 19, 2013

Missed appointments

Medication errors and adverse events

Low use of preventive services

Preventable hospital visits and admissions

High cost – $106-$238 billion annually

Higher mortality

Page 8: Communicating with Patients: Information that Matters

You can’t tell by looking

whether someone has skills to adequately understand health concepts and carry out health care instructions.

April 19, 2013

Page 9: Communicating with Patients: Information that Matters

Signals – indicators of possible limited health literacy Incomplete forms Nonadherence with treatment

regimens Excuses

Forgot my glasses Need to bring home to discuss with

family member Does not know medications names or

what they are for Many missed appointments Poor follow-through

Referral appointments, labs, imaging

Many people show no signals

April 19, 2013

Page 10: Communicating with Patients: Information that Matters

Factors Related to Understanding General ability to read and write Experience in the health care system Complexity of information presented Culture Method of communication

36% of American adults have basic or below basic skills; about 60% of those age 65 and

older have basic or below basic skills

April 19, 2013

Weiss B. Health literacy and patient safety: Help patients understand. AMA Foundation 2007.

Page 11: Communicating with Patients: Information that Matters

How can we improve? Simple, plain language (for all

patients) Slow down Visual images are helpful for

many patients Limit information quantity Repetition Teach-back Encourage questions

April 19, 2013

Weiss B. Health literacy and patient safety: Help patients understand. AMA Foundation 2007.

Page 12: Communicating with Patients: Information that Matters

Shared Decision Making

is the goal

April 19, 2013

Page 13: Communicating with Patients: Information that Matters

So what is Shared Decision Making

April 19, 2013

Must include o Options (including

no treatment)o Potential risks and

benefitso Patient preferenceso Should be balanced

and unbiased

“Collaborative process that allows patients and their providers to make health care decisions together, taking into account the best scientific evidence available as well a the patient’s values and preferences”

Page 14: Communicating with Patients: Information that Matters

Rationale for shared decision making Many decisions have no 'best choice'—more

than one appropriate option Evidence uncertain Need to consider

Benefits and harms Values & preferences Practical aspects

April 19, 2013

Page 15: Communicating with Patients: Information that Matters

PCORI1. “Given my personal characteristics,

conditions and preferences, what should I expect will happen to me?”

2. “What are my options and what are the potential benefits and harms of those options?”

3. “What can I do to improve the outcomes that are most important to me?”

4.  “How can clinicians and the care delivery systems they work in help me make the best decisions about my health and healthcare?”

April 19, 2013

Page 16: Communicating with Patients: Information that Matters

Decision Aids

April 19, 2013

http://shareddecisions.mayoclinic.org/files/2011/08/Diabetes-Choice-Pamphlet.pdf

Adjunct to prepare patients for decision making

Provides information on the alternatives, benefits, and risks appropriate for patients' clinical condition

http://summaries.cochrane.org/CD001431/decision-aids-to-help-people-who-are-facing-health-treatment-or-screening-decisions

Page 17: Communicating with Patients: Information that Matters

Health Decisions

April 19, 2013

Good decisions Informed Supported by best

evidence Compatible with

patients values Considers patient

preferences Weigh pros and cons Practical

Poor decisions Inadequate objective

data Too few options

considered Alternatives unclear Values and preferences

unexplored Roles unclear Poor communication May be impractical

Cornelia Rulandhttp://people.dbmi.columbia.edu/~cmr7001/sdm/html/shared_decision_making.htm

Page 18: Communicating with Patients: Information that Matters

Shared Decision Making Month – March 2013-We missed it!

http://informedmedicaldecisions.org/about-sdm-month/

April 19, 2013

Page 19: Communicating with Patients: Information that Matters

Resources PCORI – Patient Centered Outcomes Research

Institute |www.pcori.org

US Department of Veterans Affairs | http://www.va.gov/geriatrics/guide/longtermcare/Shared_Decision_Making.asp

AHRQ | http://www.innovations.ahrq.gov/issue.aspx?id=85

Dartmouth Hitchcock Center for Shared Decision Making |http://patients.dartmouth-hitchcock.org/shared_decision_making.html

Informed Medical Decisions Foundation |http://informedmedicaldecisions.org/

April 19, 2013