Combating Autism Act Initiative (CAAI)Initiative (CAAI)

Act Early Summit, y ,March 5-6, 2009

LT Deidre Washington, MPH, CHESDivision of Services for Children with

Special Health Care NeedsMaternal and Child Health Bureau, HRSA

History of Combating Autism Act

• Enacted as Public Law 109-416 onEnacted as Public Law 109 416 on December 19, 2006

• Amends the Public Health Service Act to “ b t ti th h h“combat autism through research, screening, intervention and education”

Combating Autism Act

• NIH research into causes, diagnosis, early detection, intervention and treatment ($114.5 , ($million)

CDC’s Disabilities S r eillance and Research• CDC’s Disabilities Surveillance and Research Program ($16.5 million)

• HRSA to increase awareness, promote evidence based interventions, reduce barriers to screening & diagnosis and train professionals toscreening & diagnosis, and train professionals to diagnose and provide evidence based interventions ($37 million)

Goal of CAAI

E bl ll i f t hild dEnable all infants, children, and adolescents who have, or are at risk for d l i ti t di ddeveloping, autism spectrum disorders (ASD) and other developmental disabilities t h th i f ll t ti lto reach their full potential.

How we’ll achieve this goal

Develop a system of services including:– screening children early for possible ASD and other

DD

– conducting early, interdisciplinary, evaluations to fi l t ASD d th DD dconfirm or rule out ASD and other DD and

if di i i fi d idi id– if a diagnosis is confirmed, providing evidence-based, early interventions

CAAI Overview

Address ASD and other developmental disabilities by:disabilities by: – Increasing awareness;– Reducing barriers to screening and diagnosis;Reducing barriers to screening and diagnosis;– Supporting research on evidence-based

interventions;– Promoting evidence-based guideline development; – Training professionals to utilize valid screening tools

to diagnose and to provide evidence basedto diagnose and to provide evidence based interventions.

CAAI Programs in 4 Areas

1 Training Programs1. Training Programs– 18 Expansions and 4 new LEND programs

– Expansions to Developmental Behavioral Pediatrics training programsPediatrics training programs

National Interdisciplinary Training Resource– National Interdisciplinary Training Resource Center (AUCD)

Purpose of Training Programs

• Educate interdisciplinary healthEducate interdisciplinary health professionals

• Provide continuing education and technical assistance to other providerstechnical assistance to other providers– Increase awareness, evidence based tools

• Contribute to building systems of care

LEND Programs (* = New)Program City StateUniversity of Alabama at Birmingham Birmingham ALUniversity of Arkansas for Medical Sciences* Little Rock ARUniversity of Southern California, Childrens H it l f L A l

Los Angeles CAHospital of Los AngelesUniversity of Colorado* Aurora COUniversity of Connecticut Health Center* Farmington CTUniversity of Connecticut Health Center* Farmington CTChildren’s Research Institute Washington DCUniversity of Illinois at Chicago* Chicago ILUniversity of Illinois at Chicago Chicago ILIndiana University, School of Medicine Kansas City KSChildren’s Hospital Boston MAChildren s Hospital Boston MA

LEND Programs (* = New)

Program City StateUniversity of Nebraska Omaha NEUniversity of Nebraska Omaha NEUniversity of New Hampshire Hanover NHAlbert Einstein College of Medicine Bronx NYgUniversity of Rochester Rochester NYUniversity of North Carolina at Chapel Hill Chapel Hill NCThe Children’s Hospital of Philadelphia Philadelphia PAUniversity of Tennessee Memphis TNVanderbilt University Medical Center Nashville TNUniversity of Utah Salt Lake City UT

LEND Programs (* = New)

P Cit St tProgram City StateUniversity of Vermont Burlington VTUniversity of Washington Seattle WAUniversity of Washington Seattle WAWest Virginia University Morgantown WV

Developmental Behavioral Pediatrics (*=New)

Program City State

Albert Einstein College of Medicine New York NYLeland Stanford Junior University* Palo Alto CABoston University Boston MAChildren’s Hospital Boston Boston MACase Western Reserve University Cleveland OHRhode Island Hospital* Pro idence RIRhode Island Hospital* Providence RIUniversity of Arkansas for Med Sciences* Little Rock ARUniversity of Oklahoma Hlth Sci Center* Oklahoma City OKUniversity of Oklahoma Hlth Sci Center Oklahoma City OKUniversity of Penn School of Medicine Philadelphia PAYale University New Haven CTYale University New Haven CT

CAAI Programs in 4 Areas

2 Autism Intervention Research (AIR)2. Autism Intervention Research (AIR) Networks

– Physical Health—The General Hospital Corporation of BostonCorporation of Boston

B h i l H lth U i it f C lif i– Behavioral Health—University of California at Los Angeles

Purpose of AIR Networks

Improve the health of children and adolescentsImprove the health of children and adolescents with ASD and other DD by:

• Establishing and maintaining a network infrastructureinfrastructure

• Utilizing the networks as platforms from which to conduct research on evidence based practice for co duct esea c o e de ce based p act ce ointerventions

AIR Networks

• Conduct research on evidence based practices;

• Develop evidenced based guidelines and validate tools for interventions to improve health; andtools for interventions to improve health; and

Disseminate information on research guidelines• Disseminate information on research, guidelines, and tools to health professionals and the public, especially families impacted by ASD and other DDespecially families impacted by ASD and other DD.

CAAI Programs in 4 Areas

3. State Demonstration and Policy PPrograms– Six State Grants to implement state autism

l t i t f i fplans to improve systems of services for children with ASD and other DD

– State Public Health Coordinating Center (AMCHP)(AMCHP)

State Demonstration Programs

Organization City State

Al k D t t f H lth d S i l A h AKAlaska Department of Health and Social Services

Anchorage AK

The Hope School Springfield ILThe Hope School Springfield ILThe Curators of the University of Missouri/Thompson Center

Columbia MO

Utah Department of Health Salt Lake City UTWashington Department of Health Olympia WAWisconsin Department of Health and Family Services

Madison WI

CAAI Programs in 4 Areas

4 National Evaluation4. National Evaluation Logic Model and Research Questions for the

entire Initiativeentire Initiative Will be reported in HHS Secretary’s Report to

Congress on progress related to ASD andCongress on progress related to ASD and other developmental disabilities

Required by the “Combating Autism Act of q y g2006.”

Partnership with CDC

A working group has been established between g g pMCHB and CDC to look at areas of collaboration, some examples are:

• Learn the Signs, Act Early Regional SummitsJ i t it i it f St t ith HRSA/CDC t• Joint site visits for States with HRSA/CDC grants

• Use HRSA State infrastructure to reach State and local MCH for public information campaignand local MCH for public information campaign

Partnership with CDC

• Collaborate to improve knowledge of physician-p g p yin-training and other health care provider knowledge of child development and early warning signs of autism through work withwarning signs of autism through work with Developmental-Behavioral Pediatrics grantees;

• Work together on evaluation components forWork together on evaluation components for both agency’s activities; and

• Create a map of activities related to autism for both agencies

• Map of currentMap of current investments

Partnership within MCHB

• Multi Division/Office Steering Committee• Joint site visits• Joint site visits• Linking Project Officers from State

D t ti P j t ith th fDemonstration Projects with those from State Block Grants

• Joint training opportunities

MCHBOffice of the

Associate Administrator

Oversight

Division of Services for Children Division of State and

Division of Research, Training, and EducationChildren

with Special Health Needs

State Demonstration Grants And Evaluation

Division of State and Community Health

Public Health Resource Center

g,

Training Programs (LEND and DBP) ,

Research Networks, Training Resource Centerg

MCHB Autism Team• Associate Administrator’s Office

– Peter van Dyck– Anne Leitch

• Research and Training– Jon Nelson– Chris DeGrawe e tc

• Children with Special Health Needs– Bonnie Strickland

Deidre Washington

C s eG a– Stella Yu– Hae Young Park– Laura Kavanagh

Denise Sofka– Deidre Washington– Lynda Honberg

• State and Community Health

– Denise Sofka– Nanette Pepper Callahan– Madhavi Reddy– Robyn Schulhof

• Cassie Lauver• Michele Lawler• Ellen Volpe

y– LaTasha Covington

• Evaluation– Lisa Wright Solomon

• Healthy Start– David de la Cruz

Lisa Wright Solomon

Office of the Associate Office of the Associate AdministratorAdministrator

Peter C. van DyckAssociate Administrator

Jon NelsonDeputy Director

Anne LeitchStaff Assistantp y

Division of Research, Training and Division of Research, Training and EducationEducationEducationEducation

Jon Ne lsonJon Ne lsonAc ting

Division Dire ctor

Laura Kavanagh Ste lla Y uTraining Br anc h

Chief

Ste lla Y uRe search Br anc h

Chief

De nise SofkaN anette Pe pper

C ll h Madhavi R eddy Hae Young ParkRobyn Sc hulhofe se So aPr oject Offic er

LEND

CallahanProjec t Officer

DBP

ad av eddyPr oject Offic er

LEND

ae ou g aProje ct Office r

AIR -P

oby Sc u oProjec t Officer

LEN D and A IR-B

Division of Services For Children Division of Services For Children S

• Screen shot of new

with Special Health Needswith Special Health NeedsScreen shot of new CAAI web site

Bonnie StricklandDivision Director

Diana D enbobaBranch C hief

Lynda Honb ergBranch C hief

D id W hi tD eidre WashingtonProje ct Office r,

State Demonstr ation Gr an ts andC AAI Progr am Evaluation

Division of State and Community Division of State and Community HealthHealth

Cassie LauverDirector

Michele Lawler Ellen Volpe Project OfficerProject Officer,

AMCHP Cooperative Agreement

www.mchb.hrsa.gov/autism

For Additional InformationFor Additional Information

LT Deidre Washington, MPH, CHESg , ,Senior Public Health Analyst/Project OfficerMaternal and Child Health Bureau(301) 443-6844dwashington@hrsa.govg @ g