www.ostomygroupsnj.org SERVING OSTOMATES IN SOUTH JERSEY SINCE 1977 March 2018

INSIGHTS

The Newsletter of the

OSTOMY ASSOCIATION OF SOUTHERN NEW JERSEY

WELCOME!

The Ostomy Association of Southern New Jersey (OASNJ) is dedicated to providing information, advocacy and peer support to our members, their family and caregivers, and to the area’s intestinal and urinary diversion community at large.

We meet regularly to share experiences, provide mutual support and learn about the latest products and information for colostomy, ileostomy, urostomy and con-tinent diversions.

Meetings are held at the Virtua-Memorial Hospital Burlington County, located at 175 Madison Avenue, Mt. Holly, NJ 08060 in the 1st floor Con-ference Center. We meet on the 3rd Monday of each month with the ex-ception of July and August. The June meeting is traditionally held in an area restaurant. Meetings begin at 7:00 pm and adjourn by 9:00 pm. Families and friends of ostomy patients are always welcome to attend. There is no fee to at-tend and refreshments are served.

For more information about the OASNJ, contact us at our NEW web-site... www.ostomygroupsnj.org

AFFILIATION:

OASNJ is an affiliate of UOAA, the United Ostomy Associations of America. It has IRS 501(c)(3) Charity Status and 330 affiliates nationwide. Contact UOAA at 800-826-0826 or www.ostomy.org For more info sign on to Twitter.com/UOAAinc or Facebook.com/UOAAinc.

MARCH 19, 2018 Dr. Avi Galler , MD will join us to share his thoughts about colon cancer awareness.

APRIL 23, 2018 Program to be announced.

MAY 21, 2018 Program to be announced.

OASNJ Satellite Support Groups . Where: Virtua Health and Wellness Center, 401 Young Avenue, Moorestown, NJ When: The 1st Wednesday of the month, from Noon to 2:00 PM .. The next meeting is March 7th. Contact Lois Moskowitz, 609-707-4368 for information.

Where: Virtua Health and Wellness Center, 200 Bowman Drive, Voorhees When: The 4th Monday of the month, from 1:30 to 3:30 PM .. The next meeting is March 26th, 2018 Contact: Lois Moskowitz, 609-707-4368 for information

Attention Gloucester County Ostomates and any-one else that is interested! The Woodbury Ostomy Sup-port Group meets the 3rd Wednesday of each month at the Inspira Medical Center Woodbury, Medical Arts Building, Suite #14 Contact Kathy Pfleger at pflegerk@ihn.org for info for the March 21 meeting

Attention Cumberland County Ostomates and any-one else that is interested! The Cumberland County Ostomy Support Group meets the 1st Wednesday at the Inspira Medical Center Vineland. Contact: Jeanne Spencer 856-327-6505 for info for March 18 meeting

VISITING PROGRAM: If you, or someone you know is in need of a trained ostomy patient visitor, call Sandy Ritter at 856-983-1433 to arrange for an in-person or telephone visit.

Production and distribution of this INSIGHTS newsletter is made possible thanks to

the generosity of the:

AMERICAN CANCER SOCIETY.

MARCH IS

COLON CANCER

AWARENESS

MONTH

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EXECUTIVE TEAM OF THE OSTOMY ASSOCIATION OF SOUTHERN NEWJERSEY

Ken Aukett .. Chair, Newsletter Editor, Treasurer George Bishop ... Board Member 609-315-8115 ... kenaukett@gmail.com 609-871-6920 ... bishop.george12@comcast.net

Cos Contento ... Board Member Vikki Brisko ... Board Member 856-235-1899 ... chcontento@aol.com vikki_bee@comcast.net

Sandy Ritter ... Visiting Program Coordinator 856-983-1433 ... sanritter@comcast.net Medical Advisors

Kathleen Schuler ... Board Member Avi S. Galler, MD. Colon & Rectal Surgeon 856-266-8705 ... kaschul119@gmail.com 856-247-7210 … agaller@virtua.org

Lois Moskowitz ... Patient Advocate, Chair Wed Grp Jane N. Johnson, CWOCN, MSN, APRN, ANP-C 856-273-1493 ... strongcoffee1@verizon.net 856-247-7260 jjohnson7@virtua.org

DISCLAIMER : No suggestions made, or any products named in any article or advertisement in this news-

letter, at our meetings or recommended by a member of our organization is to be considered as an endorse-ment by the Ostomy Association of Southern New Jersey or the United Ostomy Associations of America, Inc.. Always consult your doctor and/or WOCNurse before using any products of ostomy management procedures published in this newsletter.

OSTOMY PRODUCT DISTRIBUTORS OSTOMY PRODUCT MANUFACTURERS

American Ostomy Supply .... (800) 858-5858 Coloplast .......................... (888) 726-7872 Bruce Medical Supply ....... .. (800) 225-8446 ConvaTec .......................... (800) 422-8811 Byram Healthcare .................(877) 90-BYRAM Cymed ............................... (800) 582-0707 Edgepark Surgical .................(800) 321-0591 Dansac .............................. (800) 538-0890 Express Medical Supply ........(800) 633-2139 Securi-T USA........................ (877) 726-4400 Liberty Medical Supply ..........(866) 486-2379 Hollister Incorporated ...... (888) 740-8999 Medical Care Products ..........(800) 741-0110 Marlen Manufacturing .... (216) 292-7060 Ostomy Care Supply ..............(866) 207-5909 New Hope Laboratories ... (800) 899-5017 Parthenon ..............................(800) 453-8898 Ostaway x-Bag ................. (800) 774-6097 SGV .......................................(800) 395-6099 Ostomy Secrets ................ (800) 518-8515 Shield Healthcare ..................(800)-675-8847 Schena Ostomy Technologies 239-263-9957 Sterling Medical Services ......(877)-856-1286 Torbot .............................. (800) 545-4254 TOTAL eMEDICAL ............... (800)-809-9806 Trio Ostomy Care USA (844)-331-8746

WOUND, OSTOMY and CONTINENCE NURSES SOCIETY ... www.wocn.org

Area WOCNurses: Kathy Judge (856) 247-7260 Arlene Peahota (856) 764-6634 Diane Wagner (215) 707-3092 Kathy Pfleger (856) 845-0100 x 3725__________ Gillian Reeve_______ (856) 809-4311

Nancy Fonte, WOCN ... (609)-484-7300 ext 185 ... Nancy.Fonte@atlanticare.org Ostomy Support Group meets 2nd Wed of each month at 4:00 PM at the Atlanticare Center,

2500 English Creek Avenue in EHT, in the Fitness Building, Egg Harbor Township, NJ

WHEN TO CALL A DOCTOR OR WOC NURSE

1. If cramps last more than two or three hours. 2. If you get a deep cut in your stoma or bleeding at the juncture of the skin and stoma. 3. If you have excessive bleeding from the stoma opening or a moderate amount in the

pouch after several emptying. 4. If you have a strong odor lasting more than a week. 5. If you have severe skin irritation or deep ulcers. 6. If you have severe watery discharge lasting more than five or six hours. 7. If you have an unusual change in the size or appearance of your stoma.

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February really flew by, especially since we started off with a bang and an Eagles Super Bowl win! E-A-G-L-E-S! Eagles! Super Bowl Champions! Clearly, I’m all for gang green. But now, as we head into March, I’m all about blue. I’m blue because it is the official color of colorectal cancer awareness month.

During March we try to bring awareness to some serious issues and ways to prevent them. We know that about 140,000 people will be diagnosed with colorectal cancer this year and about 56,000 people will succumb to this disease. But with early detection and screening, an estimated 40,000 or more lives can be saved. That’s why it’s so important to learn about early screening and what people can do to minimize their chances of getting colorectal cancer. Ostomates have the same risk of developing colorectal cancer as the general population, and an even greater one if you have inflammatory bowel disease such as ulcerative colitis or Crohn’s disease. Even ostomates who have had the majority of their colon removed may still be at risk if portions of your rectum or colon remain. You should still be screened.

Colorectal cancer is the 4th most common cancer in the USA. It affects men and women equally. The risk of developing a colorectal cancer is about 1 in 20, or about 5%. The majority of new diagnoses occur in people 50 years or older, but we are seeing an increase in colorectal cancer in younger peo-ple. Still, colorectal cancer is a preventable and curable disease.

Often there are no symptoms when colorectal cancer is developing and the only way to catch it early is through regular screening. Most colorectal cancers start as non-cancerous growths called polyps, and these can be detected and removed before a cancer even appears. With screening, major surgery can often be avoided.

There are several different methods for screening; below are guidelines from the American Society of Colon and Rectal Surgeons. As always, if you have any questions related to colorectal cancer, your stoma, or other issues, please do not hesitate to call or email me at 856-247-7295 or agaller@virtua.org.

ASCRS Screening Guidelines *

The American Society of Colon and Rectal Surgeons (ASCRS), which is dedicated to advancing the treatment of patients with diseases affecting the colon, rectum and anus, supports the following colo-rectal cancer screening guidelines:

For people at average risk of getting colorectal cancer, a digital rectal examination and fecal occult blood test, which screens for hidden blood in the stool, are recommended annually beginning at age 50.

Flexible sigmoidoscopy (a test that allows the physician to look directly at the lining of the lower colon and rectum) is recommended every 5 years at age 50 or older. * https://www.fascrs.org/sample-newsletter-article-colon-cancer-awareness (continued page 4)

The Importance of Colorectal Cancer

Awareness

By Dr. Avi S. Galler , MD, Colorectal Surgeon. He is

affiliated in New Jersey with Virtua Voorhees, Virtua Marlton

and Virtua Berlin

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The Importance of Colorectal Cancer Awareness (continued)

A colonoscopy (a test that allows the physician to look directly at the lining of the entire colon and rectum) every 10 years or a barium enema (x-ray of the colon) every 5 to 10 years are acceptable alter-natives.

People at increased risk for colorectal cancer include those with a personal or family history of co-lorectal polyps or cancer, those with a personal history of breast, uterine or ovarian cancer, and those with chronic ulcerative colitis or Crohn's disease. Increased risk patients may need earlier and more frequent screening depending upon the recommendation of their healthcare provider.

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Whole or Skim Milk: Which Is Healthier? By: Chris Mohr, Ph.D. February 9, 2017 via Men’sHealth

As a dietitian, I keep hearing clients tell me that they’ve heard full-fat milk is better for them because non-fat milk is loaded with sugar.

First off, unflavored milk (non-fat, 1%, 2% and whole) has 12 grams of naturally occurring sugar per cup. No more. No less. And, yes, “naturally occurring” sugar. This sugar, called “lactose;” it’s not added sugar, which is what the government recommends you limit. Only the level of fat in milk changes the total calories. One cup of non-fat milk has about 90 calories and 0 grams of fat. A cop of whole milk has about 145 calories and 8 grams of fat. All other essential nutrients—calcium, potassium, vitamin D and the rest—are the same.

But what about saturated fat? Yes, dairy fat is primarily saturated, but a May 2015 study in Advances in Nutrition examined the recent data on saturated fat and cardiovascular health. While the “optimal mix” of macronutrients wasn’t defined, the authors noted the importance of what nutrients replace saturated fat rather than blindly recommending a blanket reduction. Further, it’s important to re-member that the 2015 Dietary Guidelines report eliminates the concern over total fat in the diet.

So whole fat or fat free milk: Which Is Healthier? It’s not as simple as saying everyone who eats dairy should switch immediately to whole fat dairy products. Because doing so does mean total calories go up. If I have an overweight or obese client who regularly drinks whole milk, I’d suggest switching to a lower fat option. Saving those calories would be worthwhile. On the flip side, if I have someone who isn’t looking for fat loss but may be more interested in performance or what I say “leveling up” their nutrition game, I’m fine with whole dairy. This means it’s important to look at the big picture—nutrition isn’t black or white, one size fits all. The client matters and so do their goals and needs.

Led Zeppelin famously sang “The Song Remains the Same.” I, much less famously, say the diet mes-sage remains the same: Consider the entire diet and not a single ingredient or food.

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What to Eat and What to Avoid When You Have Diarrhea By Beth W. Orenstein .. Medically Reviewed by Kareem Sassi, MD via Everyday Health 2/14/18

Having diarrhea on occasion is nothing to worry about. The causes of diarrhea can range from a stomach flu to a meal or just an ingredient you ate that didn’t agree with you. Because certain foods can worsen symptoms, in order to start feeling better you need to know what to eat when you have diarrhea — and what not to eat.

You should eat: plain, simple foods for diarrhea, especially in the first 24 hours, saysPeter Doyle Higgins, MD, PhD, director of the inflammatory bowel disease program at the University of Michi-gan in Ann Arbor. “It is best to eat thicker, bland foods, including oatmeal, bananas, plain rice, and applesauce,” he says.

Other bland foods that you’re likely to tolerate include: Boiled potatoes; toast; plain crackers such as saltines; pretzels; baked chicken without any skin or fat.

Also, a review published in December 2011 in the Journal of Clinical Gastroenterology suggested that foods with probiotics — often called “good” bacteria — may shorten the duration of a bout of di-arrhea. Probiotics have become very popular and can be found in a number of foods, including yo-gurt.

As important as it is to know what to eat when you have diarrhea, it's equally important to know what not to eat. Certain foods can travel through your intestines very fast and aggravate your digestion, or worsen diarrhea in other ways. Avoid the following for diarrhea relief:

Fatty Foods: These include fried foods and foods that are greasy or covered in gravy, which can make diarrhea worse.

Milk, Butter, Ice Cream, and Cheese: Even if the diarrhea isn’t caused by lactose intoler-ance — a difficulty processing the sugar lactose, found in dairy products — stay away from these foods during a bout with diarrhea. You may be temporarily sensitive to dairy products, even if you usually have no problem with them. Probiotic-rich yogurt may be the one exception to this rule.

Alcohol and Caffeine Drinks: When you have diarrhea, you want to avoid foods and beverages that cause you to lose fluids. Alcohol and caffeine can act as diuretics, meaning they are dehydrating, and should be avoided.

Sorbitol and Other Artificial Sweeteners: Some people find that artificial sweeteners have a laxative effect on their digestive system. If you have diarrhea, it’s best to avoid sugarless candy and gum, diet soft drinks, and sugar substitutes.

Foods That Cause Excess Gas: It’s important that you eat generous amounts of fruits and vegetables every day. But when diarrhea strikes, you want to avoid choices that are likely to increase intestinal gas, such as cabbage, beans, broccoli, and cauliflower, until you’re feeling better.

Foods That May Be Tainted: Stay away from foods that may have been mishandled, including foods that have been out of the refrigerator for too long or improperly stored. Raw meat or fish can be problematic, too. Follow the old expression, “when in doubt, throw it out,” and you may save yourself some stomach upset.

(continued on page 8)

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May 4-6, 2018

Holiday Inn Washington Dulles 45425 Holiday Drive,

Sterling, VA 20166

Hosted by the Ostomy Support Group of Northern Virginia

Registration Includes: Educational Workshops...meeting spaces are 100% accessible

Friday Night Reception, Saturday Breakfast, Lunch and Breaks

Exhibition of Ostomy Products and Services

Stoma Clinic—Friday evening and all day Saturday.

Sunday morning breakfast

Regular Registration Fee, per person $50 Spouse/Companion/OSGNV Member $45 Saturday Night Dinner/Dance, per person $45

You may make registration payments on line at www.osgnv.org by selecting “Registration Payments” at the left margin.

Hotel There is a special rate of $90 plus 13% tax/night single or double .. all non-smoking.

To make reservations visit www.osgnv.org for a link to the hotel or call 1-877-875-9823 and state that you are with the Ostomy Support Group.

Make Your Hotel Reservation No Later Than April 11, 2018 To Get This Special Rate.

Note: You must register for the conference and the hotel separately.

Questions should be directed to billatmaccom@verizon.net.

2018 Regional Ostomy Conference

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You won’t want to miss — OUR KEYNOTE SPEAKER

I am a highly driven individual, fueled by a passion for helping others, and strongly believe in lead-ing by positive example. I am at my best when I can be of help to those around me, and have crea-tive freedom to accomplish my goals.

At 21, I was a nationally ranked middle and long distance runner when I was diagnosed with Ul-cerative Colitis in 2013, just before starting my final year at the University of California, Berkeley. Within 8 months of the initial diagnosis, I was left with no choice but to have an ileostomy surgery performed to remove the diseased colon.

Since then, I have continued my running career and developed a passion for helping others who have ostomies return to an active and fulfilling lifestyle after surgery. (Collin is currently a Partner in Hurdle Barriers, LLC, Chicago, IL and a Vice President of Stealth Belt, Inc, Johnson City, TN)

Program Friday Night Reception

Saturday Keynote Speaker … Colin Jarvis

10:46 am—Noon … Concurrent Workshops Workshop #1 — Exercise and Fitness

Workshop #2 — So You Have an Ostomy … Now What?

Workshop #3 — Effects of Chemo and Radiation on an Ostomate

Lunch … Speaker: Barbara A Kane MBA, BSN, RN Kenny’s Closet: The Community Ostomy Supply Connection

1:31 pm — 2:45 pm … Concurrent Workshops Workshop #4 — Caregivers, Family and Friends … an Open Discussion

Workshop #5 — What Can Go Wrong with Your Ostomy?

Workshop #6 — Dual Workshop

How to Pick an Appliance

Stoma Protection

3:31 pm — 4:45 pm … Concurrent Workshops Workshop #7 — TSA and Ostomy Travel Tips

Workshop #8 — Skin Care

Workshop #9 — Psychological Concerns for Ostomates

4:46 pm — 6:00 pm … Concurrent Workshops Ostomate Rap Sessions … Colostomy … Ileostomy … Urostomy

Saturday Night Dinner/Dance

COLLIN

JARVIS

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Other Diarrhea Strategies:

One of the more serious complications of diarrhea is dehydration. When you have diarrhea for any length of time, take steps to avoid becoming dehydrated, Higgins says. “Look for liquids with sugar and salt,” he says. “Pedialyte or full-salt soups work well.”

To stay hydrated, you should consume enough liquid so that you make plenty of clear urine. If your urine is not clear, or you are not making much urine, you are not drinking enough.

In terms of diarrhea treatment, Higgins says, if you do not have an infection and are not seeing blood, you can take over-the-counter loperamide (Imodium, Kaopectate Caplet, and Maalox Anti-Diarrheal) to slow your bowel movements. This kind of medication should only be taken for a day or two.

If diet and simple remedies don’t work, and if symptoms persist for more than a few days and in-clude bleeding, gas, and bloating, you should see a doctor. Your doctor can determine whether the diarrhea is caused by a more serious condition, and can recommend treatment. @@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@

Colostomy Hints

Diet: There is no such thing as a colostomy diet. A colostomy is not an illness, so try to eat the same foods you have eaten and enjoyed in the past. If you are on a diet for a condition such as diabetes or high blood pressure, of course you should stay on this diet. Foods can be acidic or alkaline, bland or spicy, laxative like or constipating. Individuals react differently to food. Try to return to your formal normal diet; those foods which disagreed with you in the past may still do so. Chew well and see the effect of each food on your colostomy output.

To maintain good health, the body requires carbohydrates, proteins, fat, minerals and vitamins. Water is not nutritious but is absolutely necessary. Having a balanced diet is a fitting way for people to maintain good nutrition and keep bowel activity normal. Every day your body needs meats or fish, dairy foods, vegetables and fruits, cereals and bread and liquids.

If you wear a pouch all the time, you will suffer no embarrassment if something you eat produces an unexpected discharge. You will soon learn which foods produce gas or odor, which cause diarrhea and which are constipating. With this knowledge, you can regulate the bowel’s behavior to a certain extent. You cannot prevent intestinal activity by not eating. An empty intestine produces gas. No matter what your plans might be, eat regularly, several times a day, with perhaps a small meal before going to bed at night. Your colostomy will function better for it.

Daily Life: Once you have recovered your health, you may continue a normal day’s routine, as you did before surgery. A colostomy is not an impediment to most activity. When its care has been prop-erly determined, it will not interfere with your daily schedule.

Work: Colostomates can do must jobs; however lifting can cause the stoma to become herniated or prolapse, especially soon after surgery. A sudden blow in the appliance area could cause the face-plate to shift and cut the stoma. Still, there are some colostomates who do heavy lifting, such as fire-fighters, mechanics and truck drivers. Check with your doctor about your type of work. As with all surgery, it will take time for you to regain strength after the operation. A letter from your doctor to your employer may be helpful should your employer have doubts about what you can do.

Sometimes colostomates find that their employers think that the colostomy will keep them from do-ing their jobs. This also happens to some colostomates who are applying for new jobs. You should know your right to work is protected by parts of the US Rehabilitation Act of 1973 and the Americans with Disabilities Act of 1990 as well as by sections of your state laws. Become informed and be your own advocate!

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Virtua Hospital Ostomy Outpatient Clinics

Jane N. Johnson, CWOCN, MSN, APRN, ANP-C and Kathy K. Judge ACNS-BC, NP-C, NEA-BC, CWON-AP, have advised that Virtua has two ostomy outpatient clinics, one in Virtua Memorial Hospital, 175 Madison Avenue, Mt. Holly headed up by Jane, and one in the Virtua Health and Wellness Center, 200 Bowman Drive, Suite E Voorhees headed up by Kathy and these medical professionals are available to help patients that have problems with their ostomy appliances or other related medical issues. At the sur-geons request they can also stoma site pre-op patients. Appointment to see either Jane or Kathy can be obtained by calling 856-247-7260 @@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@

The #1 most visited attraction in Philadelphia is the Reading Terminal Market The Reading Terminal Market, established in 1892 at 12th and Arch Streets, is the nation’s oldest con-tinuously operating farmers’ market. Through its long and interesting history , it has seen times both good and bad, but has emerged in the 21st century as one of the greatest public markets in the country. When you visit the market, you can enjoy eating virtually every type of cuisine, from sublime soul food and exquisite Asian and Middle Eastern dishes to authentic Philly Cheesesteaks, scrapple, soft pretzels and traditional Pennsylvania Dutch fare — all available from largely family-run stands. In all, the Market boasts more than 80 unique merchants, three of which are descendants of original stand hold-ers from when it opened more than 116 years ago. Sit-down eateries are scattered throughout the market. So when you visit, be sure to allot plenty of time to stroll through the vast food bazaar and browse every-thing from hand made imported crafts and American quilts to fresh produce, dairy products, exotic meats and seafood, freshly cut flowers, cookbooks and expertly prepared foods.

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~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ TO BECOME A MEMBER OF THE ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ OSTOMY ASSOCIATION OF SOUTHERN NEW JERSEY

Membership in the Ostomy Association of Southern New Jersey is open to all persons in-terested in ostomy rehabilitation. Membership dues are only $10.00 per year.

PLEASE PRINT THIS INFORMATION:

NAME: ________________________________________________ PHONE: ____-_____-_______

ADDRESS: ________________________________________ EMAIL: ________________________

CITY: _________________________________ STATE: _______ ZIPCODE: ____________________

To help us complete our records, please answer the following:

Please check if you have/are: ____ Colostomy ____ Continent Ileostomy ____ Other: ___________________________ ____ Ileostomy ____ Continent Urostomy ____ Spouse/partner/family member ____ Urostomy ____ Ileo-anal Pull Thru ____ Friend

Date(s) of Ostomy Surgery: ________________________________ Date of Birth: ____________

Make check payable to “OASNJ” and mail to: Ken Aukett, P.O. Box 318, Collingswood, NJ 08108

Cheesecake for Dessert … and throughout, Unlim-

ited

Coffee, Hot Tea, Unsweetened Ice Tea, Lemonade &

Soda

and Your Choice of the Following Entrees:

GRILLED FILLET OF SALMON with Mashed Potatoes and String Beans

CHICKEN FRANCESE with Linguine

VEAL PARMIGIANA with Linguine

................................ cut and send reservations by June

9th ................................ Name/s:

___________________________________________

_____________________________________________

Your Name Companion’s Name