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Page 1: Civil Rights - cdrnys.orgcdrnys.org/wp-content/uploads/2015/07/2013_Annual_Report.pdf · with our two ADAPT trips to Washington, DC in the fall of 2012 and in the spring of 2013,

Civil Rights

Integration

Independence

(585) 546-7510

497 State Street, Rochester, New York 14608

Page 2: Civil Rights - cdrnys.orgcdrnys.org/wp-content/uploads/2015/07/2013_Annual_Report.pdf · with our two ADAPT trips to Washington, DC in the fall of 2012 and in the spring of 2013,

Page 2 Integration • Independence • Civil Rights / 2013 Annual Report

Reflections

Dear Friends, In 2013, disability rights advocates and activists in New York achieved a major milestone: New York State established an Olmstead plan! Governor Cuomo’s Olmstead plan established specific targets and timelines for transitioning seniors and people with disabilities into the community from nursing facilities and other institutions, committing to reducing the number of people in nursing facilities by 10% across five years! We applauded the Cuomo administration for developing this plan and committing to work in partnership with us - and other

disability-led organizations - to identify and implement the strategies needed to achieve these targets. We also pledged to hold the state accountable for making the changes needed to assure that New Yorkers with disabilities receive the long term services and supports they need to live truly independent and integrated lives. Of course, a lot of advocacy was behind this victory. CDR advocates – both paid staff and volunteers – worked tirelessly for more than a decade to make this happen. The first major statewide effort happened in February 2002 when CDR worked with ADAPT, the New York State Independent Living Council and other Independent Living Centers to organize a protest in Albany that called for the creation of such a plan. Literally, hundreds of people with disabilities marched through the Albany concourse – right in front of the office of the state police – and took over the lobby and elevators of the Corning Office Tower which is the tallest skyscraper in New York State outside of NYC. Over the next few days, CDR advocates and activists crafted state legislation and directly confronted Governor Pataki when he visited a senior center in Rochester. Sadly, a number of the advocates and activists who began this campaign are no longer with us. CDR lost one of those people in 2013 when Carmen Hernandez – CDR’s Board Chair – passed away. Carmen was a stalwart of our movement locally, and in fact was the first co-chair of the advocacy group fighting for accessible buses that evolved into CDR. Although a fierce advocate and force to be reckoned with, Carmen also appreciated a good party. She understood the importance of celebrating victories, breaking bread and building community. And she loved children. Those all came together in CDR’s Halloween event so it is bittersweet that one of the last things Carmen did with CDR was to welcome people to that event. Carmen and I spent hours together in the lobby that night. I had returned from an extended absence due to an injury, so we used the time to catch up. In between greeting people, we discussed CDR’s

From Cdr President And CEO

Page 3: Civil Rights - cdrnys.orgcdrnys.org/wp-content/uploads/2015/07/2013_Annual_Report.pdf · with our two ADAPT trips to Washington, DC in the fall of 2012 and in the spring of 2013,

Center for Disability Rights, Inc. - Helping People Help Themselves Page 3

Board of Directors

August 2012 – August 2013

Robert DeFelice, Chairperson -

Carmen Hernandez, Vice Chairperson -

Murray Stahl, Treasurer -

Amerine Douse, Secretary -

Diane Coleman, Director -

Kathryn Cappella, Director -

Patti Durr, Director -

Michelle Fridley, Director -

Nick Jones, Director

August 2013 - August 2014

Michelle Fridley, Chairperson -

Diane Coleman, Vice Chairperson -

Murray Stahl, Treasurer -

Amerine Douse, Secretary -

Kathryn Cappella, Director -

Patti Durr, Director -

Jensen Caraballo, Director -

Nick Jones, Director

CDR is a disability-led, not-for-profit Corporation. We provide services to people with disabilities and seniors within the framework of an Independent Living Model, which promotes independence of people with all types of disabilities, enabling choice in living setting, full access to the community, and control of their life.

CDR works for national, state, and local systemic change to advance the rights of people with disabilities by supporting direct action, coalition building, community organizing, policy analysis, litigation, training for advocates, and community education.

CDR advocates for the full integration, independence, and civil rights of people with disabilities.

*CDR Board elections are held each year in mid-August during the annual membership meeting.

The information provided in this annual report is from September 1, 2012 to August 31, 2013.

programs, advocacy and future. That night she helped crystallize the direction for CDR. We were excited about the prospects for the future and looked forward to bringing our shared vision to reality. Although she unexpectedly passed away a couple of weeks later, her vision lives on through our collective efforts.

Sincerely, Bruce E. Darling President/ CEO

Photo: Carmen Hernandez at the CDR Halloween event in October 2013.

Page 4: Civil Rights - cdrnys.orgcdrnys.org/wp-content/uploads/2015/07/2013_Annual_Report.pdf · with our two ADAPT trips to Washington, DC in the fall of 2012 and in the spring of 2013,

Page 4 Integration • Independence • Civil Rights / 2013 Annual Report

There is no truth to the rumor that in 2013, the Advocacy Department had moved to Albany, but we sure did spend a lot of time there. In trying to implement the Community First Choice (CFC) option in New York, we made numerous trips to the state capitol, by ourselves as well as in conjunction with other like-minded organizations such as the New York Association on Independent Living (NYAIL) and the Consumer Directed Personal Assistance Association of New York State (CDPAANYS). We also made our quarterly trips to Albany to continue to make our presence felt at the Most Integrated Setting Coordinating Council (MISCC). Combine that with our two ADAPT trips to Washington, DC in the fall of 2012 and in the spring of 2013, we logged a lot of driving time. In February 2013, we ramped up our efforts in stopping the U.S. Department of Labor’s proposed changes to the Companionship Exemption rules. They proposed (and later approved) changes to rules that mandate overtime pay for certain home health aides. That sounds great until you realize that there is no money being provided to pay for it. This will bring about the loss of hours (and money) for workers as well as people with disabilities having to find new attendants (strangers) to come into their home. Not only was there several action alerts, meetings and phone calls, but in March, we created a creative website to illustrate just exactly what is wrong with these rule changes. If you have not seen it yet, visit www.DOLOffMyBody.org. In focusing on housing for people with disabilities across the state, advocates visited Assembly Majority Leader Morelle’s and Minority Leader Kolb’s Rochester offices on

Valentine’s Day, to give a Home is Where the Heart Is Valentine and discuss a need for more affordable, accessible, integrated housing. In January, we teamed up with local students from World of Inquiry School No. 58 to create a YouTube video with disability activists on the importance of shoveling sidewalks. This video was spread through social media to create awareness, to help people with disabilities navigate through the rough winter season. Combining advocacy at the local, state and federal levels, two of our annual events were huge successes. Our 2nd annual ADA Legislative Breakfast in July was well attended by both constituents and elected officials and their staff. Issues ranging from transportation and housing to health care and CFC were discussed. Our Candidate Forum on Disability Issues in October was a success as well. Since we began collaborating with other organizations and agencies on this yearly event, we have brought in a number of individuals whom we may have never met otherwise, and discussed issues that need to be addressed.

Systems Advocacy

Assistant Director of Advocacy, David Sutliff-Atias speaks with Senator Joe Robach during the Legislative Breakfast in July 2013 about important issues pertaining to the disability community.

Page 5: Civil Rights - cdrnys.orgcdrnys.org/wp-content/uploads/2015/07/2013_Annual_Report.pdf · with our two ADAPT trips to Washington, DC in the fall of 2012 and in the spring of 2013,

Center for Disability Rights, Inc. - Helping People Help Themselves Page 5

Despite limited IL funding, the department has been able to increase services to people in the Northwest quadrant and Center City in Rochester for whom CDR was originally funded. CDR’s Independent Living (IL) services continue to meet the needs of people in this area by providing on-site core services: Information and Referral, Independent Living Skills Training, Peer Counseling, Individual and Systems Advocacy, and Nursing Home Transition and Diversion. In 2013, CDR added a Spanish-speaking Independent Living Specialist who assists people by connecting them to services within our own agency as well as other agencies in the community. The number of Spanish-speaking consumers has increased as a direct result. Independent Living services reached 71 Hispanic/Latino consumers

from October 1, 2012-September 30, 2013. That is an increase of 32 consumers in this category over the previous year. By the end of 2013 the Pooled Trust had 1223 members. IL funds were instrumental in the development of this program and because of this assistance the Trust was able to be self-sufficient beginning in January 2013. Consistent with the IL mission and philosophy, the Pooled Trust allows members to remain in the community by allowing them to shelter their monthly excess income from Medicaid as opposed to dropping their income to below the poverty line. This allows the members of the Trust to continue living in their own homes while able to receive the medical assistance they need to remain living in the community.

2013 also brought about the beginning of an exciting project at CDR. We begun to develop the New York Disability Vote Network (NYDVN). The NYDVN’s main goal is to create a voting block of a minimum of 5,000 voters with disabilities across the state that can be mobilized to work on important issues. The website is currently live. To learn more or join the project please visit: www.NYDVN.org. CDR continues to be at the forefront of systems change for people with disabilities in Rochester, across New York state and at a National level. 2012-2013 consisted of numerous important conversations, events and actions that will affect our lives and culture for years to come. CDR’s advocacy efforts are ongoing and will continue to make an impact in 2014.

Jensen Caraballo, Board Member, testifies at the Monroe County Legislature in May 2013 about the culture of

abuse at Monroe Community Hospital.

Stats: Local, State & National direct protests: 7

Media hits regarding advocacy activities: 20

Advocacy communications to public officials using e-advocacy: 21,571

Articles published in independent publications, CDR Blog and Newsletter: 22

Testifying at public hearings and forums: 24

Policy meetings with public officials: 71

Independent Living Services

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Page 6 Integration • Independence • Civil Rights / 2013 Annual Report

CDR’s Consumer Directed Personal Assistance Services (CDPAS) enables individuals who need personal care assistance at home to have control and choice in selecting and managing their attendant services. Through this program, consumers are able to direct their own personal care services by recruiting, hiring, training, and supervising their own attendants. CDR acts as a fiscal intermediary and employer-of-record by maintaining personnel and payroll records as well as billing Medicaid and paying attendants. Supervisor Support Specialists provide assistance to consumers, or their designated representatives, with attendant recruitment and problem solving. CDR offers this service in 12 counties in the Rochester region. 2013 was a year of significant growth for the CDPAS program. Due to mandatory Medicaid Managed Care enrollment CDR was able to once again offer CDPAS in Monroe County and begin offering the service in Seneca County. A total of 155 new consumers chose CDR as their CDPAS provider in 2013. CDR began the reporting period with 378 consumers and ended with 437 active consumers resulting in a net growth of 53 consumers. Referrals in Monroe County began increasing substantially towards the end of the reporting period and our positive relationships with the managed care providers in the region suggest that referral volume will continue to increase. Negotiations began taking place in 2013 with Yates and Schuyler County Offices for the Aging to contract to provide Consumer Directed Services under the Expanded In-Home Services for the Elderly Program (EISEP). This

program is for seniors who are not receiving Medicaid but are in need of personal care and housekeeping assistance in order to remain independent in their homes. These contracts are a way to diversify funding for CDR and increase options for community members in need. CDR intends to begin offering services under this model mid-2014. The shift to managed care resulted in modifications with our billing processes. Follow-up on accounts receivable for CDPAS was streamlined in order to achieve timely follow-up on billing issues resulting in fewer write-offs, which in-turn, allows CDR to retain more revenue.

New CDPAS Cases Opened

County 2012/2013

Chemung 6

Genesee 6

Livingston 8

Ontario 42

Monroe 11

Orleans 3

Schuyler 18

Steuben 29

Wayne 26

Wyoming 1

Yates 2

Consumer Directed

Personal Assistance Services

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Center for Disability Rights, Inc. - Helping People Help Themselves Page 7

Waiver Services CDR is an authorized service provider for the Nursing Home Transition and Diversion (NHTD) waiver, Traumatic Brain Injury (TBI) waiver, and the Office for People with Developmental Disabilities (OPWDD) waiver. Programs available through these waivers are designed to provide individualized services to consumers as an alternative to nursing facility placement. Detailed plans are developed to support independent community living based on an individual’s specific wants and needs. CDR provides service coordination in the Rochester, Geneva, and Corning areas. In 2013, CDR welcomed 48 new consumers in the service coordination department. At the end of 2013, CDR was providing service coordination to 86 NHTD participants, 27 TBI participants, and 42 OPWDD participants, for a total of 155 participants. In addition to service coordination, CDR continued to provide other various waiver services including: Independent Living Skills Training (ILST), Recreation and Structured Day Programs, Community Integration Counseling (CIC), Community Habilitation and Individualized Day Habilitation. These services promote person-driven community integration, skill building, and socialization and are tailored to meet the needs of each individual. At the end of 2013, CDR provided supports to 27 new participants and a total of 62 individuals in our community programs. CDRs Deaf services are also utilized by some waiver participants. CDR employs Deaf staff to provide service coordination and community habilitation to Deaf individuals in order to achieve the best possible service delivery. CDR also provides specialized staffing in the form of Deaf Communication Specialists (DCS),

to an individual living in a group home. DCS staff work with this individual 24/7 by providing residential and community support, peer counseling, and communication translation. Growth and new funding continued in the support service provider (SSP) program for the Deaf Blind community in 2013. SSP is a unique service that supports Deaf Blind individuals in the community by maximizing their use of community resources and avoiding the risk of isolation. SSPs are specially trained professionals that enable people who have combined vision and hearing loss to access their environments and make informed decisions. SSPs are trained to provide visual and environmental information, peer counseling, access to communication, and physical support through hands on guidance as sighted guides. CDR provided up to 20 hours per month of SSP services to 18 Deaf Blind individuals in Monroe County. CDR is currently the only provider of the support in New York State. Funds to sustain this service through 2014 were obtained from a grant through the Greater Rochester Health Foundation (GRHF). In 2013, CDR was approved for two additional grants, Daisy Marquis Jones Foundation and New York Department of Education, to sustain the SSP program until 2015. In 2013, CDR created a fee-for-service option to help draw in revenue to continue to sustain the SSP program. CDR now has contracts with Helen Keller National Center (HKNC), Adult Career and Continuing Education Support (ACCES-VR), and New York Commission for the Blind (NYCB) to provide SSP service for working Deaf Blind individuals. CDR is proud to be a community partner that helps Deaf Blind individuals find and maintain employment in Monroe County.

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Page 8 Integration • Independence • Civil Rights / 2013 Annual Report

Thanksgiving and Christmas parties held in the Starlight ballroom at the center. The center staff and consumers also hosted celebrations for Oktoberfest in October, Mardi Gras in February, Mother’s Day in May, Father’s Day in June, and a Luau in August! Additionally, staff and consumers created and built floats, and marched in both the annual Pride Parade and the parade at the Puerto Rican festival. The cooking co-op remained a favorite among consumers who enjoyed making meals at the center to package up and take home. Fitness class has become a regular routine offered to promote health and wellness. When CDR introduced fitness as a consistent part of the program one consumer, who was significantly overweight, lost 40 pounds and has maintained her weight loss over the past few years from regular exercise at the center. There was something for everyone in 2013! Participants had the option to attend group trips to baseball games, the beach, lunch out on the town, and various other activities throughout the year. The center remained staffed during the community events for those who preferred to participate in low-key, or individual activities. Our goal is to continue to grow our unique blend of recreation and structured services in the coming years. We plan to see increased enrollment and participation through outreach to other service providers and by offering information about all of our programs through presentations and schedule tours of the facility.

CDR’s Backus Street Recreation Center offers drop-in recreation services to community members as well as structured day program services to individuals on the Nursing Home Transition and Diversion (NHTD), Traumatic Brain Injury (TBI), and Office for People with Developmental Disabilities (OPWDD) waiver programs. The diversity of the programs offered at the center allows people with and without disabilities to come together for socialization and activities in a common community setting. A unique aspect of our recreation/structured day program is that many of the participants are also members of the Rochester ADAPT group and participate in advocacy efforts locally and nationally to support disability rights. 2013 was a busy year for the Backus Street recreation center/structured day program! CDR kicked off the year by hosting our annual camping event at the beautiful Rotary Sunshine Campus in Rush, NY in September 2012. Consumers from CDRs programs as well as CDR staff enjoyed hiking, fishing, paddle boating, music and other activities. Our CDR/RCIL/AAY family of consumers, staff, and community members, kept with tradition by coming together for the holidays at our

Recreation Services

Rec staff and consumer pose for a picture at one of their many holiday celebrations in Fall 2012.

Laura and Diane pose for a picture dressed in pink at the

Valentine’s Day event in

Page 9: Civil Rights - cdrnys.orgcdrnys.org/wp-content/uploads/2015/07/2013_Annual_Report.pdf · with our two ADAPT trips to Washington, DC in the fall of 2012 and in the spring of 2013,

Center for Disability Rights, Inc. - Helping People Help Themselves Page 9

Marie, CDR volunteer, and Laura making a lap around the park in

DC at the Fun*Run on May 1, 2013.

Halloween and ROC the Day: This was yet again an exciting year for CDR’s development and fundraising efforts! After a successful “Accessible Trick-or-Treat” Halloween event in October 2012, followed by our end-of-year ask through United Way’s ROC the Day event in December, CDR was excited to see what 2013 was going to bring. ADAPT Fun*Run: In the spring, CDR joined ADAPT to fundraise and participate in the ADAPT Fun*Run. The actual event took place in Washington, DC as a kickoff to the week-long action. Proceeds support CDR’s advocacy efforts by helping send staff, consumers and supporters down to DC to participate and fight for our rights! Locally, CDR held an event at Cobbs Hill Park to support the Fun*Run in DC. Roughly 30 people joined together while the National Fun*Run event was going on in DC; for those unable to attend the National event. Overall, CDR raised approximately $20,000 to help send people to DC. United Way Day of Caring: On May 9th a group of people from ITT Exelis spent the day at CDR helping to clean up and enhance the store fronts for the United Way Day of Caring. New exterior walls were put in for one of the storefronts, and a fresh coat of grey paint was applied to all of the storefronts. CDR was grateful for this opportunity which allowed us to

Development cleanup the storefronts, and build relationships with businesses in the community. ADA Events: In July, CDR celebrated the 23rd Anniversary of the Americans with Disabilities Act (ADA) with a variety of ADA related events. On July 10th CDR paired up with the Regional Center for Independent Living’s YO! - Youth Own - youth leadership group to host a Happy Hour networking event at Strathallan. Young professionals with and without disabilities mingled and networked in a comfortable setting. On July 22nd CDR hosted a Summer Fest event at our downtown Rochester location. Representatives from Monroe Wheelchair, Fonte Healthcare Solutions and Westside Medical Supply helped with a wheelchair wash, providing free cleaning and tune-ups. On July 26th, CDR held our annual ADA Legislative Breakfast. Local, state, and national representatives joined to hear from us on disability rights issues. We had a great turn out by constituents, staff and community members. In the midst of all the celebration, CDR hosted our annual ADA Gala fundraiser event on July 18 at Artisanworks. The event was as unique and fun as the venue itself. Guests were treated to dinner and dancing, a photo booth, live art auction and raffle baskets. The evening was a big success, and all proceeds from the event helped support CDR mission, services and programs.

Bob DeFelice, AAY Board Member, after finding out he was the recipient

of the 2013 ‘Busy Bea’ award.

Page 10: Civil Rights - cdrnys.orgcdrnys.org/wp-content/uploads/2015/07/2013_Annual_Report.pdf · with our two ADAPT trips to Washington, DC in the fall of 2012 and in the spring of 2013,

Page 10 Integration • Independence • Civil Rights / 2013 Annual Report

Affiliations Driving the Disability Rights Agenda

At the Center for Disability Rights many employees and board members are actively involved with organizations whose efforts complement our mission. By connecting with local, state-wide, and national organizations, our fight for civil rights expands further and grows stronger. It is CDR’s goal to continue to build relationships and increase our involvement and outreach efforts.

ADAPT Rochester

Board of the 1872 Café

Coalition for Community Integration

Coalition to Implement Olmstead in NYS

Concrete Change

Consumer Directed Personal Assistance of New York

Empire State Housing Alliance

Gay Alliance of the Genesee Valley

Greater Rochester Area Partnership for the Elderly

Help America Vote Act Task Force

Medicaid Infrastructure Grant

Medicaid Matters New York

Medicaid Redesign Team

Mental Health Coalition

Metro Justice

Monroe County Library System

Most Integrated Setting Coordinating Council

National ADAPT

National Council on Independent Living

National Disability Leadership Alliance

National Human Resources Association

National Spinal Cord Injury Association

New York Association on Independent Living

New York Connects

New York State Coalition for Community-based Services

New York State Discharge Planners Workgroup

New York State Health Care Providers Association, Finger Lakes Chapter

New York State Independent Living Council

New York State Supplemental Security Income Coalition

Not Dead Yet

Regional Center for Independent Living

Society of Human Resources Management

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Center for Disability Rights, Inc. - Helping People Help Themselves Page 11

Finance revenues totaled $2.2 million. In 2014 MCO revenues will continue to increase as the County CDPAS program is gradually phased out to be replaced by the MCO program. Expenses: CDR continued to maintain a lean administrative structure, with management and general expense accounting for just 12% of revenues during 2013 which is below the benchmark for non-profits. This means that 88% of the expenses incurred by CDR were for program services that benefit consumers. Net Assets: Net assets include the equity in CDR’s buildings and are used for current and future operations. Net assets were $2.9 million at the end of 2013 which is the same number as in 2012. A comparison of the net asset balances for the past seven years (see chart) shows that 2013 is 6.5% lower than the 2007 base year assets of $3.1 million. However it should be noted that this $.2M decrease in net assets is largely a result of various NYS Medicaid fee rate reductions (trend factor elimination, 2% reimbursement take backs, direct care regional ceiling reductions) that were imposed by New York State Department of Health during 2012 and 2013 (the CDPAS program was primarily impacted). As CDR continues to expand their MCO consumer base in 2014 these rate reductions will become less meaningful as most apply only to county provided Medicaid services.

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$15.0

$20.0

$25.0

$30.0

2007 2008 2009 2010 2011 2012 2013

The Finance Department produces the annual financial statements for CDR in addition to processing and submitting Medicaid, MCO and private pay service billing, paying vendor invoices, processing bi-weekly payrolls for over 900 employees and providing clerical and receptionist support for Rochester, Geneva and Corning offices. Revenue: The 2013 revenues were $18.2 million as compared to $17.4 million reported in 2012 (5% increase in revenues between years). A seven year comparison of revenues (see chart) shows that 2013 revenues are 1.4% less than the 2007 revenues of $18.5 million. This very small decrease in revenues is directly related to the loss of the Monroe County CDPAS contract that occurred in 2010. In 2007 $11 million of revenues were derived from Monroe County CDPAS contract. When that contract was terminated by county in 2010, new revenue streams needed to be added or expanded which included licensed Home Care agency, All About You Home Care, and also expanding CDPAS services in counties such as Ontario and in the Southern Tier (Schuyler, Chemung and Steuben.) A new revenue stream that started in late 2012 made it possible for CDR to once again offer CDPAS Medicaid fee for service program to consumers in Monroe County through the Managed Care Organization (MCO) provider contract agreements. During 2013 MCO related

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Revenues

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Page 12 Integration • Independence • Civil Rights / 2013 Annual Report

The Pooled Trust is a legal entity that allows an individual the ability to shelter their monthly excess incomes from Medicaid. This increases the member’s ability to remain living in the community by allowing them to keep all of the income and resources they earned instead of the alternative of dropping their income to below the poverty line. In 2013 Pooled Trust members sheltered just over $8.5 million dollars and by using the Trust they saved the state of New York $20.7 million for a net savings of $12.2 million dollars.

The Pooled Trust grew from 599 members in the beginning of the year to 1223 active members by the ending of the year. 2013 was by far the year with the largest active membership growth since the Trust was started. This increase in members also increased the number of counties that we were recognized in. At the beginning of the year the Pooled Trust had an active member in 41 New York State counties and by the end of the year 56 counties in New York State had a Pooled Trust Member living in it.

The Pooled Trust was able to grow by 624 members by perusing new referral streams. By focusing on new areas of referrals we were able to increase the number of new members added to the Trust from 411 in 2012 to 811 in 2013. This is an increase of 400 referrals to the Trust due to this change.

Pooled Trust - Community

Supplemental Needs Trust

382

702

1223

0

200

400

600

800

1000

1200

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2011 2012 2013

Active Trust Members

Members

174

411

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2011 2012 2013

New Members added to the Pooled Trust

New Members

Program Savings by ProgramMedicaid 15,600,000.00$ Section 8 3,400,000.00$ Heap 390,000.00$ SNAP 1,400,000.00$

Total Savings 20,790,000.00$

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Center for Disability Rights, Inc. - Helping People Help Themselves Page 13

them with their advocacy needs. The Pooled Trust Advocate works on system advocacy and has been working with the counties in adopting new policies to increase our members ability to access their Medicaid benefits. The Pooled Trust Community Living Specialist assists in connecting our members with resources and services in their region to allow them to remain in the community setting of their choice.

The new referral sources that the Pooled Trust Team pursued was from elder law attorneys, community service organizations, and Managed Long Term Care Insurance Companies. The Pooled Trust increased its focus on advocacy during the year by adding two positions. The Pooled Trust Advocate and Pooled Trust Community Living Specialist are available for the members of the trust to assist

2012-2013 Highlights

Above: Kenyatta receiving a free massage from Sandra at

Differently Abled Alternative Care (DAAC) at CDR’s Summer Fest

event in July 2013. Below: A photo of guests enjoying the ADA gala event at Artisanworks also in July 2013 in celebration of the ADA!

Below: CDR and Rochester ADAPT joined National ADAPT in DC in Spring 2013 for the Fun*Run event. Susan, Hope, Laura and Brittany walk/roll around Upper Senate Park.

Above: Children playing games and enjoying the “Accessible Trick-or-Treat” event in October 2012. Below: Workers from ITT Exelis spent the day at CDR in May 2013 for United Ways Day of Caring event, helping to fix up and paint the store

fronts for us! Staff installing new siding.

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Page 14 Integration • Independence • Civil Rights / 2013 Annual Report

Human Resources The Human Resources (HR) department provides services and support to the staff of CDR with a focus on the agency’s mission of Independence, Integration, and Civil Rights for individuals with disabilities. The HR team is committed to serving the consumers by recruiting, retaining, and developing quality staff. Following are some facts and trends for HR related activities in 2013. Recruitment activities: In 2013 CDR began using a new internet recruitment tool. The new tool assists in a wider reach for applicants, a tracking mechanism, and the ability to instantly reply to the candidate. The result of the recruitment activities in 3013 resulted in 5,021 applicants to CDR and a total of 548 people were hired. CRR increased the application pool by 2,000 in 2013. Workers Compensation: The number and severity of accidents reduced in 2013. This will hopefully have a positive influence on rates in and 2016 and 2017. It will not affect the 2014 rates based on the formula used to determine them. The premiums continue to be very costly. Unemployment: The amount paid out monthly in unemployment costs is slowly moving downward. We hope to see even a greater reduction in 2014 . Training and Development: Through employ-ee orientation and professional development, CDR fosters the values of inclusiveness, camaraderie, long-term employee engagement, and a deeper understanding of the mission of CDR and the people served by CDR staff. In addition to the paperwork part of orientation new employees learn about the CDR mission and vision. The advocacy department provides

the new employees with information on the agency’s advocacy efforts and makes sure the new employees understand how they can be an important part of the advocacy. Compliance: In all areas of work, the Human Resource department firmly upholds the tenets of confidentiality, accountability, compliance and trust. As an example HR was engaged in a variety of audits in 2013. The HR Committee of the Board of Directors reviewed the audit results and was pleased to report consistency in all areas of compliance. HR continued its goal to support the people attending actions in Albany and other major advocacy trips throughout the year. The result was 56 staff participated in pre and post trip activities such as picking up and taking home consumers before and after the trip, loading and unloading the bus and luggage truck and greeting the bus when it returned. The volunteer hours added up to 48 hours. This is an ongoing goal. The Affordable Care Act continued to be a major focus in the HR department. Both the Director of HR and the Assistant Director spent many hours at seminars and training and back at their desks learning about, reporting, and engaging in implementing pieces of the Act as required. This year was an ambitious collaboration in which HR staff evaluated, planned, and reconfigured several aspects of the HR department to better serve our customers. This was done through the dedication and hard work of HR staff, and additionally the loyalty and teamwork of HR committee and other department directors and managers.

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Center for Disability Rights, Inc. - Helping People Help Themselves Page 15

All About You Home Care (AAY) is a Licensed Home Care Services agency, and a subsidiary of CDR. AAY provides Personal Care Aides for Home and Community Support Services (HCSS) in the Traumatic Brain Injury (TBI) and Nursing Home Transition and Diversion (NHTD) Medicaid Waivers. Serving Upstate New York since 2009, AAY was founded on the premise of full integration, independence and civil rights for all people with disabilities. AAY’s relationship with parent organization CDR and sister agency. Regional Center for Independent Living (RCIL), make it the only disability-led home care provider in upstate New York. AAY’s top priorities are assuring choice, satisfaction and safety. Since AAY was established there has been consistent growth in the program. AAY served 40 consumers in 2013 with 28 new admissions and 22 discharges. Services were provided primarily in Monroe County but had participants in Livingston, Ontario and Wayne counties. AAY has been working very closely with CDR’s Service Coordinator Team and as a result AAY consumer referrals are growing. Building positive relationships with other services coordinators has led to a total 14 referrals

from other providers in 2013. In addition, AAY also contracted with two Managed Care Organization providers (ElderPlan and Fidelis) to provide Personal Care Aide (PCA) services. As AAY’s fourth full year came to a close, there was much to celebrate. In 2013, AAY achieved solid budget improvements with revenues exceeding $2.3 million dollars. Continued growth remained steady with 103,891 hours of service to consumers. 2013 also brought about some positive personnel changes at the mid-year mark. AAY hired a new Administrator, Michael P. Dunn, a new Director of Nursing, Cathy Roome, RN and a new Manager of Operations, Amy Cochrane. AAY is consumer focused and is opening our doors by building relationships with other organizations, staff and consumers. In 2014 AAY will continue the positive momentum by focusing on recruitment and retention of aides, engaging consumers, building positive relationships with other agencies, expanding contracts with other Managed Care Organizations, and beginning a Strategic Marketing Plan outlining a growth model into surrounding counties.

In 2013, All About You Home Care:

Provided 103,891 hours of personal care service to consumers

Achieved over $2.3 million dollars in revenue

Held 10 Personal Care Aide (PCA) classes

Hired 85 aides for PCA level of care

Provided 140 hours of in-service education classes to staff

All About You Home Care, Inc.

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Rochester Office

(Main Headquarters)

497 State Street

Rochester, NY 14608

(585) 546-7510

Geneva Office

34 Castle Street

Geneva NY 14456

(315) 789-1800

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23 West Market Street

Suite 103

Corning, NY 14830

(607) 654-1120

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99 Washington Avenue

Suite 806B

Albany, NY 12210

(518) 320-7100

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