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Improving reality. Changing perceptions. Reducing infant mortality in Racine

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Page 1: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

Improving reality.Changing perceptions.

Reducing infant mortality in Racine

Page 2: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

Special thanksThe Greater Racine Collaborative for Healthy Birth Outcomes/Racine Lifecourse Initiative for Healthy Families offers grateful acknowledgement to:

• The University of Wisconsin School of Medicine and Public Health, which through the Wisconsin Partnership Program’s Lifecourse Initiative for Healthy Families has provided essential support, insight and a framework for action. We are especially thankful for the guidance of Eileen Smith, Cathy Frey, Lorraine Lathan and the members of the Oversight and Advisory Committee.

• Dr. Debra Miller, who assisted in preparing our report to the community.

©2011Published by The Johnson FoundationWriter: Mary Jo Thome Graphic Design: Modern MediaPrinted on post-consumer recycled paper

Page 3: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

An African-American baby born in Racine, Wisconsin is nearly three times more likely to die before his or her first birthday than a white baby.1

Infant mortality is one of the most critical problems facing Greater Racine. We can begin

to measure the economic costs, including medical care and, for low-birth-weight babies

who survive, the medical, social and education costs related to developmental delays and

disabilities. But the loss to our community of productive citizens is incalculable.

It doesn’t have to be this way. Adapting proven methods for use in Greater Racine,

we can make a difference, child by child, family by family.

…with a surprising sourceThe risk factors identified

for African-American infant

mortality are complex and

interrelated. In many cases,

they contradict common

perceptions and beliefs.

www.healthybabiesracine.org

A crisis in our community…

Infant Mortality Rate (<365 days) per 1,000 Live Births City of Racine (2004-2008)

Source: Wisconsin Dept. of Health Services, Division of Public Health, Bureau of Health Information and Policy. Wisconsin Interactive Statistics on Health (WISH) data query system, http://dhs.wisconsin.gov/wish/, Infant Mortality Module, accessed 01/28/11.

Rat

e

2005 2006 2007 20082004

40

35

30

25

20

15

10

5

0

All–RacineWhite–RacineBlack–Racine

Page 4: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

Changing perceptions

The role of stressResearch suggests environmental, biological and behavioral stressors create

physical changes that increase health risks for mothers and babies. Our human “fight or flight” response releases the hormone

cortisol. Chronic stress creates a cortisol buildup that can lead to diabetes, heart disease and high blood pressure—and, in pregnancy, early labor. The effects on a female baby can follow her into adulthood, affecting her own pregnancies.

College-educated black women in our community are more likely to have babies who die in the first year than white mothers who didn’t complete high school.2 Research reveals surprises in the disparity between African-American and

white infant mortality. Statistics show:

It’s more than economics. The higher infant mortality rate affects not only African-

American families in poverty, but also those in the middle class.3, 4

It’s more than prenatal care. Access to early, regular prenatal care is seen as a predictor of

healthy birth outcomes—but in Racine, the African-American infant mortality rate is higher

no matter when the mother starts prenatal care.5

It affects multiple age groups. Contrary to misperceptions that link infant mortality solely

with teen mothers, the rate in Racine among African-American women is higher for those

ages 20 to 34.6

Page 5: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

www.healthybabiesracine.org

It’s not genetic. Studies show African-born women who immigrate to the U.S. have babies

whose birth weight is comparable to that of white infants—but birth weight drops sharply

for the children of the next generation, their daughters who are born in the U.S.7

It hasn’t always been this way. In 1979-81, Wisconsin’s African-American infant

mortality rate was ranked third best of the 34 states reporting. Today it ranks among the

worst.8 It’s time for the Greater Racine community to act.

“If you are in an area that is high crime, it brings stress, health problems and more.”

—Community Forum Participant

From 2006–2008, the average infant mortality rate among African-American women in Racine was highest for mothers age 20 to 24.

Source: Wisconsin Dept. of Health Services, Division of Public Health, Bureau of Health Information and Policy, Wisconsin Interactive Statistics on Health (WISH) data query system, http://dhs.wisconsin.gov/wish/, Infant Mortality Module, accessed 01/28/11.

Maternal age (grouped) *no data available

30

25

20

15

10

5

0

35-39 yrs30-34 yrs25-29 yrs20-24 yrs18-19 yrs15-17 yrsAll ages

All Selected

Non-Hispanic White

Non-Hispanic Black

Mother’s ethnicity

Infa

nt

mo

rtal

ity

rate

*

Page 6: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

Improving realityOur goal is to reduce infant mortality by 50% in the next five years. The Greater Racine Collaborative for Healthy Birth Outcomes/Racine Lifecourse Initiative for

Healthy Families is working to measurably reduce African-American infant mortality as well

as the incidence of its primary causes, premature birth and low birth weight. We’ve formed

three teams to address the following key areas.

Improve health care services. In addition to emphasizing prenatal care, we’re working to

ensure a woman is healthy before, during and after pregnancy—across her lifecourse.

Strengthen families and communities. We’ve broadened our focus on mothers

to increase involvement of fathers, other family members and our

community, creating essential support for parents and families.

Address social and economic inequities. Together, we must

change the inequities that cause disproportionate, lifelong stress for

African-American women. As we improve the conditions in which

people are born, grow, work and live, we improve birth outcomes

for African-American babies and make Greater Racine a better

place for everyone.

Page 7: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

www.healthybabiesracine.org

The lifecourse approachOpportunities to help babies survive and thrive start long before pregnancy. The lifecourse model looks at a woman’s health from her birth to death, considering the interplay of biological, behavioral, psychological and social factors. Improving African-American birth outcomes requires a commitment to a woman’s well-being throughout her lifecourse (Lu & Halfon, 2003).

“When I had my son, I didn’t know where we were headed, but I knew we would make it.

You just hurdle the challenges and never give up.” —Community Forum Participant

Page 8: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

Taking actionOur Community Action Plan includes specific recommendations to reduce infant mortality rates. With time, talent, resources and community commitment, we

can make a difference. The Greater Racine Collaborative for Healthy Birth Outcomes/Racine

Lifecourse Initiative for Healthy Families plan features eight recommendations:

1. Promote community understanding of lifecourse issues.

2. Expand, enhance, integrate and streamline efforts among our community’s human

service and healthcare organizations, agencies and programs.

3. Address areas such as child support enforcement, case management systems, medical

assistance waivers for infant mortality prevention work, flexibility for alternative prenatal

care models, and availability of dental and mental health services.

4. Promote pathways out of poverty, including earned income tax credits, transitional jobs

and Children First.

5. Promote lifelong healthy behaviors and access to resources

for healthy living, such as the new health and wellness

programs for African-American women and expanded

community gardens.

Page 9: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

www.healthybabiesracine.org

“Healthy parents make a healthy baby.”—Community Forum Participant

6. Expand evidence-based programs and services that build relationships to support

pregnant and parenting women and their families.

7. Expand evidence-based programs that involve fathers with their children, addressing

stress reduction and relationship-building.

8. Develop an evidence-based neighborhood family support center, using existing

infrastructure, to support families and children.

Our collaborative is responsible for implementing the first five recommendations. The

last three would be put into action by collaborative member organizations, supported by

the Wisconsin Partnership Program and other sources. For this work, we recommend the

following proven models:

• Centering Pregnancy

• Expanded Prenatal Care Coordination and Home Visitation Models (incorporating Healthy Families America)

• Birthing Project USA: Sister/Friends

• Nurturing Fathers Program

• Baby FAST (Families and Schools Together)

• HealthLeads

• Mary Center–Teen Program

• Northern New Jersey Maternal Child Health Consortium-Irvington Family Success Center

• Racine Fetal and Infant Mortality Review

• Northern Manhattan Perinatal Partnership Model

Page 10: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

Working together

You can helpCommunity involvement is vital to our success.

Read our full report, hold an informational

meeting and spread the word about the infant

mortality crisis. We welcome your financial

support and participation. Join us!

Since 2008, Greater Racine’s health departments, health care providers, social service agencies and community members have united to address our infant mortality crisis. Our collaborative was formed in 2010, at a gathering

at The Johnson Foundation at Wingspread. The collaborative received a grant from the

Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of

the University of Wisconsin-Madison School of Medicine and Public Health. This grant

supported the development of our community action plan.

Focused on successFor two years, our collaborative members have invested time, intellect and resources in

intensive study, gathering formal and informal data, listening to community members,

meeting with experts and searching for successful models from across the nation. We’re

committed to maintaining momentum and measurably reducing African-American infant

mortality in Greater Racine.

Visit www.HealthyBabiesRacine.org

Page 11: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

www.healthybabiesracine.org

Collaborative membersThe members of the Greater Racine Collaborative for Healthy Birth Outcomes/Racine Lifecourse Initiative for Healthy Families Collaborative represent these organizations:

The Johnson Foundation at Wingspread • Racine/Kenosha Community Action Agency • City of Racine Health Department • Professional Women’s Network for Service–Sister Friends and Racine African-American Health Coalition • Next Generation Now, Inc. • Infant Death Center of Wisconsin • Racine Community Health Center • Wheaton Franciscan Healthcare–All Saints • Central Racine County Health Department • Wheaton Franciscan Healthcare–All Saints Foundation • Health & Nutrition Service of Racine • Racine County Human Services Department • Racine County Workforce Development Center • Racine Family YMCA • Racine Infant Mortality Coalition • Wisconsin Literacy Council–Health Literacy Initiative • Racine Unified School District • Gateway Technical College • University of Wisconsin–Milwaukee–School of Nursing • United Way of Racine County • Wheaton Franciscan Health Care Medical Group • Dr. Martin Luther King, Jr. Community Center • Foundations of Life, Inc. • Children’s Service Society of Wisconsin • UnitedHealthcare Community Plan • Children’s Community Health Plan • Care Net Family Resource Center • Grace Church • University of Wisconsin–Parkside • University of Wisconsin–Extension • Alverno College • Community representatives and volunteers.

Endnotes1 Wisconsin Department of Health Services

2 Wisconsin Department of Health Services

3 Rowley, D. “Closing the Gap, Opening the Process.” Maternal and Child Health Journal Volume 5, Number 2: 71-74.

4 Schoendorf, K.C., Hogue, C.J., Kleinman, J.C. and Rowley, D. “Mortality among Infants as Compared with White College-Educated Parents.” New England Journal of Medicine (1992) Volume 326, Number 23:1522-26.

5 Wisconsin Department of Health Services

6 Wisconsin Department of Health Services

7 Collins, J.W., Wu, S.Y. and Davis, R.J. “Differing Intergenerational Birth Weights among the Descendants of US-Born and Foreign-Born Whites and African Americans in Illinois.” American Journal of Epidemiology (2002) Volume 155, Number 3.

8 Kvale, K.M., Mascola, M.A., Glysch, R., et al. Wisconsin Medical Journal (2004) Volume103:42-47.

Page 12: Changing perceptions. Improving reality. · Lifecourse Initiative for Healthy Families, through the Wisconsin Partnership Program of the University of Wisconsin-Madison School of

www.healthybabiesracine.org