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Page 1: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

-

A

nnua

l R

epor

tC

ereb

ral

Pals

y A

ssoc

iati

ons

of N

YS

Page 2: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

Cer

ebr

al P

alsy

Ass

oc

iati

on

s o

f N

ew Y

or

k S

tate

Mis

sion

Sta

tem

ent

Th e

miss

ion

of C

ereb

ral P

alsy

Ass

ocia

tions

of N

ew Y

ork

Stat

e is

to a

dvoc

ate

and

prov

ide

dire

ct se

rvic

es w

ith a

nd fo

r ind

ivid

uals

with

cer

ebra

l pal

sy a

nd

othe

r sig

nifi c

ant d

isab

ilitie

s, an

d th

eir f

amili

es, t

hrou

ghou

t New

Yor

k St

ate

in o

rder

to p

rom

ote

lifel

ong

oppo

rtun

ities

and

cho

ices

for i

ndep

ende

nce,

in

clus

ion

and

enha

nced

qua

lity

of li

fe.

The

pict

ures

on

the

front

and

bac

k co

vers

are

ori

gina

l pho

togr

aphs

by

Dav

id H

orsh

am (C

P of

NYS

).

Mem

bers

of t

he L

ife O

ptio

ns

Prog

ram

at U

CP

Nas

sau

acce

pt th

e 20

09 P

rogr

am In

nova

tion

Awar

d fr

om C

P of

NYS

Boa

rd m

embe

r R

ober

t DiF

ranc

esco

at A

nnua

l Aw

ards

Ban

quet

Page 3: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

An

nu

al R

epo

rt

BOARD OF DIRECTORS20

08-2

010

Boar

d C

hair

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....I

daje

an W

inde

ll, E

d.D

.Bo

ard

Vice

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ir ...

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....J

ack

M. W

eins

tein

, Esq

.C

omm

ittee

Cha

irs

A

udit

& R

isk

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...Jo

hn R

. Hor

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nanc

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Rob

ert C

. Mill

er, E

sq.

Pr

ogra

m S

ervi

ces .

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nn B

. LeM

ark

Pu

blic

Pol

icy

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Th om

as J.

Cas

erta

, Jr.,

Esq

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Volu

ntee

r Sup

port

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ara

N. S

cher

rSe

cret

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..Cor

a Ba

liff

Dir

ecto

rs a

t Lar

ge ...

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....J

osep

h P.

Dut

kow

sky,

M.D

.D

avid

Eic

hena

uer

And

rew

C. K

oeni

g, C

PASt

ephe

n C

. Lip

insk

iJa

mes

E. P

eace

Mar

vin

S. R

eed

Erne

st E

. Sou

thw

orth

Act

ive P

ast C

hair

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.Rob

ert M

. DiF

ranc

esco

Jam

es E

. Joh

anse

nN

atal

ie K

. Rog

ers

Dir

ecto

r Em

eritu

s .....

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..B

eatr

ice

S. W

elle

ns

Exec

utiv

e Sta

ff Pr

esid

ent &

CEO

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Susa

n C

onst

antin

oEx

ecut

ive

Vic

e Pr

esid

ent,

CA

O/C

FO ...

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om

as M

ande

lkow

Ex

ecut

ive

Vic

e Pr

esid

ent,

CO

O ..

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.....J

osep

h M

. Pan

cari

Exec

utiv

e V

ice

Pres

iden

t, A

ffi lia

te S

ervi

ces .

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.....M

icha

el A

lvar

oEx

ecut

ive

Vic

e Pr

esid

ent,

Dev

elop

men

t & Q

ualit

y M

anag

emen

t .....

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....D

uane

R. S

chie

lke

Gen

eral

Cou

nsel

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.J. D

avid

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sq.

Ass

ista

nt to

the

Pres

iden

t .....

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...H

eidi

McM

anus

Page 4: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

Cer

ebr

al P

alsy

Ass

oc

iati

on

s o

f N

ew Y

or

k S

tate

Whe

n w

e tr

avel

thro

ugho

ut N

ew Y

ork

Stat

e, v

isitin

g ou

r man

y w

onde

rful

Affi

liate

s, w

e oft

en

refl e

ct o

n th

e A

ffi lia

tes’

long

hi

stor

ies a

nd th

e co

llect

ive

eff o

rts o

f all

the

peop

le w

ho h

ave

cont

ribu

ted

to th

eir s

ucce

ss a

s the

y as

sist p

eopl

e w

ith

disa

bilit

ies l

ead

qual

ity li

ves.

We

have

a ri

ch h

istor

y of

fam

ilies

who

se a

dvoc

acy

has t

urne

d th

e se

rvic

e sy

stem

aro

und,

fi gh

ting

for

dein

stitu

tiona

lizat

ion,

com

mun

ity in

tegr

atio

n an

d in

divi

dual

ized

supp

orts

and

serv

ices

for t

heir

child

ren.

And

ove

r the

pas

t 60

plus

yea

rs a

ll th

e su

ppor

ts th

at fa

mili

es n

eede

d, st

artin

g w

ith E

arly

Inte

rven

tion

and

mov

ing

thro

ugh

educ

atio

n, a

dult

serv

ices

and

fa

mily

supp

orts

, gre

w a

s the

nee

d di

ctat

ed. B

ut in

the

past

yea

r we

have

seen

redu

ctio

ns, l

ittle

gro

wth

, and

an

over

all f

ear o

f the

fu

ture

.

It

was

app

aren

t thi

s pas

t yea

r tha

t, as

fede

ral a

nd S

tate

bud

get p

robl

ems i

ncre

ased

, ser

vice

s fo

r peo

ple

with

dis

abili

ties w

ere

not s

een

as c

ritic

al w

hen

prio

ritie

s wer

e se

t for

the

use

of li

mite

d do

llars

. CP

of N

YS w

orke

d di

ligen

tly to

adv

ocat

e fo

r pol

icy

chan

ges a

nd re

imbu

rsem

ent l

evel

s th

at w

ould

con

tinue

to a

llow

peo

ple

with

dis

abili

ties t

o le

ad p

rodu

ctiv

e an

d in

depe

nden

t liv

es.

We

cont

inue

to b

e co

mm

itted

to n

ot a

llow

ing

all t

he a

maz

ing

prog

ress

tow

ard

trul

y in

tegr

ated

co

mm

uniti

es b

e di

min

ished

in th

is pe

riod

of e

cono

mic

dow

ntur

n.

C

P of

NYS

, in

colla

bora

tion

with

oth

er st

atew

ide

asso

ciat

ions

, dev

elop

ed a

stra

tegi

c in

itiat

ive

that

had

two

phas

es. Th

e fi

rst,

a vi

gil a

t the

Sta

te C

apito

l Bui

ldin

g, w

here

indi

vidu

als

with

dis

abili

ties a

nd st

aff f

rom

the

agen

cies

that

supp

ort t

hem

sat a

nd w

aite

d fo

r the

Gov

erno

r, hi

s st

aff a

nd le

gisla

tors

to p

ass b

y so

they

cou

ld d

iscu

ss p

ropo

sed

budg

et c

uts.

Th e

seco

nd in

itiat

ive,

In

clus

ive

Dem

ocra

cy In

Act

ion,

bro

ught

peo

ple

with

dis

abili

ties t

o A

lban

y on

a re

gula

r bas

is to

ex

plai

n to

our

ele

cted

offi

cial

s how

the

thre

ats t

o fu

ndin

g w

ould

impa

ct th

eir l

ives

. We

have

had

tr

emen

dous

succ

ess w

ith th

is pr

ogra

m a

nd b

oth

legi

slato

rs a

nd p

artic

ipan

ts h

ave

com

men

ted

favo

rabl

y ab

out t

he p

roce

ss, w

ith m

ost p

artic

ipan

ts fi

ndin

g th

at th

eir v

oice

s can

be

hear

d an

d th

at

by ta

king

par

t in

the

advo

cacy

pro

cess

they

can

hav

e an

impa

ct o

n pu

blic

pol

icy.

We

will

exp

and

this

prog

ram

in th

e ye

ar a

head

as w

e an

ticip

ate

even

gre

ater

pre

ssur

e to

cut

spen

ding

for p

rogr

ams

and

serv

ices

that

supp

ort p

eopl

e w

ith d

isab

ilitie

s.

Th

e C

P A

ffi lia

tes c

ontin

ue to

dev

elop

stra

tegi

es to

wea

ther

thes

e di

ffi cu

lt fi s

cal t

imes

. For

the

seco

nd y

ear i

n a

row,

they

are

ch

alle

ngin

g th

emse

lves

to fi

nd fu

rthe

r effi

cien

cies

in th

eir o

pera

tions

with

out i

mpa

ctin

g th

e su

ppor

ts th

ey p

rovi

de to

peo

ple

with

di

sabi

litie

s. Th

ey c

ontin

ue to

: sha

re th

eir s

ucce

sses

in h

ow th

ey m

otiv

ate

staff

; co

llabo

rate

for s

avin

gs; a

nd d

evel

op st

rong

er b

usin

ess

prac

tices

incl

udin

g re

stru

ctur

ing

prog

ram

s tha

t will

eith

er re

ceiv

e a

cut i

n fu

ndin

g or

no

grow

th in

thei

r bas

e ra

tes.

We

are

so v

ery

prou

d of

our

Affi

liate

s as t

hey

cont

inue

to b

e st

rong

, vib

rant

lead

ers i

n th

eir c

omm

uniti

es.

Idaj

ean

Win

dell,

Ed.

D.

Boar

d C

hair

Page 5: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

An

nu

al R

epo

rt

And

des

pite

the

gloo

my

econ

omic

real

ities

of t

oday

and

an

even

wor

se fo

reca

st fo

r the

nex

t tw

o ye

ars,

we

all h

ave

once

aga

in

lean

ed o

n th

e gr

eate

st st

reng

th w

e ha

ve –

the

com

mitt

ed a

nd d

edic

ated

staff

whi

ch h

elp

us fu

lfi ll

our m

issio

n ev

ery

singl

e da

y. O

ur

prog

ram

s hav

e co

ntin

ued

to d

eriv

e th

eir e

nerg

y fr

om a

wor

kfor

ce th

at u

nder

stan

ds th

e la

rger

eco

nom

ic d

iffi c

ultie

s we

face

and

hav

e co

ntin

ued

thei

r per

sona

l com

mitm

ent t

o th

e pe

ople

we

supp

ort.

Th e

dire

ct su

ppor

t pro

fess

iona

ls as

wel

l as e

very

oth

er st

aff i

n al

l ou

r age

ncie

s, sh

ould

take

the

time

to a

ppre

ciat

e th

e tr

uly

uniq

ue n

atur

e of

the

wor

k th

ey d

o an

d th

e ex

trao

rdin

ary

job

that

is d

one

day

in a

nd d

ay o

ut in

eve

ry A

ffi lia

te a

cros

s the

stat

e. C

olle

ctiv

ely,

CP

of N

YS a

nd o

ur 2

4 A

ffi lia

tes p

rovi

de su

ppor

ts a

nd se

rvic

es to

ap

prox

imat

ely

90,0

00 p

eopl

e w

ith d

isab

ilitie

s and

thei

r fam

ilies

thro

ugh

the

hard

wor

k an

d de

dica

tion

of m

ore

than

17,

000

staff

.

M

etro

Ser

vice

s sta

ff ha

ve w

orke

d tir

eles

sly to

dev

elop

new

syst

ems t

hat w

ill a

ssist

us i

n be

ing

mor

e effi

cie

nt a

nd sa

ve m

oney

! Th r

ough

thei

r dili

gent

eff o

rt w

e ha

ve re

duce

d ov

ertim

e,

prac

tical

ly e

limin

ated

vac

anci

es, c

oord

inat

ed o

ur m

edic

al v

isits

and

ove

rall

impr

oved

the

life

choi

ces f

or th

e pe

ople

we

supp

ort.

We

are

mov

ing

forw

ard

on c

onve

rtin

g ou

r Art

icle

28

clin

ics

thro

ugho

ut N

ew Y

ork

City

into

a n

ew c

orpo

ratio

n th

at w

ill b

ecom

e Fe

dera

lly Q

ualifi

ed

Hea

lth

Cen

ters

. And

our

new

day

and

clin

ic si

te a

t 188

0 Bo

ston

Roa

d, in

the

Bron

x, h

as b

egun

to ta

ke

shap

e an

d so

on w

ill b

ecom

e a

real

ity.

D

r. M

artin

Lut

her K

ing

obse

rved

that

“We

mus

t acc

ept fi

nite

dis

appo

intm

ent,

but w

e m

ust

neve

r los

e in

fi nite

hop

e.” W

hen

you

look

bac

k at

the

succ

ess w

e ha

ve a

chie

ved

and

cons

ider

the

“dis

appo

intm

ents”

that

hav

e ta

ken

plac

e in

this

econ

omy,

we

need

to b

e re

invi

gora

ted

by th

e ho

pe

for t

he fu

ture

. For

we

know

that

by

the

colle

ctiv

e eff

ort

s of p

eopl

e w

ith d

isab

ilitie

s, th

eir f

amili

es,

staff

and

oth

ers w

ho a

re c

omm

itted

to o

ur m

issio

n, w

e w

ill p

reva

il.

C

P of

NYS

, bot

h in

the

prog

ram

s we

off e

r as w

ell a

s the

adv

ocac

y w

e pr

ovid

e ou

r Affi

liate

s, ha

s hi

gh h

opes

for t

he y

ear a

head

. We

look

bac

k at

the

man

y ac

hiev

emen

ts o

utlin

ed in

this

repo

rt

with

a se

nse

of a

ccom

plish

men

t, bu

t also

with

a c

lear

und

erst

andi

ng th

at n

othi

ng in

the

futu

re is

ce

rtai

n. T

oget

her w

ith o

ur A

ffi lia

tes,

we

look

forw

ard

to g

ettin

g be

yond

the

disa

ppoi

ntm

ents

that

m

ay st

ill li

e ah

ead

and

we

stay

com

mitt

ed to

our

miss

ion

and

goal

s.

Idaj

ean

Win

dell,

Ed.

D.

Boar

d C

hair

Susa

n C

onst

antin

oPr

esid

ent &

CEO

Susa

n C

onst

antin

oPr

esid

ent &

CEO

Page 6: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

Cer

ebr

al P

alsy

Ass

oc

iati

on

s o

f N

ew Y

or

k S

tate

LEGISLATIVE ACTIVITIESLeg

islat

ive

activ

ities

and

adv

ocac

y w

ere

inte

nse

thro

ugho

ut th

e 20

09-2

010

year

. Th e

adv

ocac

y ac

tiviti

es b

egan

in A

ugus

t 200

9 w

ith th

e O

PWD

D tr

end

hear

ings

and

con

tinue

d th

roug

hout

the

fall

with

the

Stat

ewid

e Tr

end

Cam

paig

n an

d th

e N

ovem

ber D

efi -

cit

Redu

ctio

n A

ct C

apito

l Vig

il. W

inte

r 20

10 h

ad t

he J

anua

ry 7

St

atew

ide

Fam

ily A

dvoc

acy

Day

. Spr

ing

had

the

Mar

ch 1

Alb

any

Lobb

y D

ay an

d In

clusiv

e Dem

ocra

cy In

Act

ion

bega

n in

Mar

ch an

d co

ntin

ued

into

June

.

All

of th

ese

advo

cacy

act

iviti

es w

ere

in re

spon

se to

wha

t has

bee

n ca

lled

the

wor

st re

cess

ion

and

fi sca

l cri

sis si

nce

the

Gre

at D

epre

s-sio

n an

d w

as p

art o

f the

ong

oing

eff o

rt b

y al

l of t

he st

atew

ide a

sso-

ciat

ions

to m

ake

legi

slato

rs a

war

e of

and

sec

ure

thei

r sup

port

for

fund

ing

and

serv

ices

for

peop

le w

ith d

isab

ilitie

s an

d th

eir

fam

i-lie

s.

Th is

ongo

ing

advo

cacy

cam

paig

n ha

s bee

n ve

ry su

cces

sful

in ed

u-ca

ting

the

Legi

slatu

re a

nd th

e G

over

nor’s

sta

ff on

pro

gram

s an

d se

rvic

es fo

r peo

ple

with

dis

abili

ties a

s wel

l as t

heir

crit

ical

impo

r-ta

nce

in th

e liv

es o

f con

sum

ers,

fam

ily m

embe

rs a

nd st

aff .

In a

d-di

tion,

Inclu

sive

Dem

ocra

cy In

Act

ion

was

suc

cess

ful i

n in

volv

ing

peop

le w

ith d

isab

ilitie

s an

d st

aff d

irect

ly in

the

dem

ocra

tic p

ro-

cess

and

in p

uttin

g a

face

on

the i

mpo

rtan

ce o

f ser

vice

s for

peo

ple

with

dis

abili

ties.

Follo

win

g ar

e th

e m

ajor

adv

ocac

y ac

tiviti

es.

OPW

DD

TRE

ND

HEA

RIN

GS

Th e

New

Yor

k St

ate

Offi

ce fo

r Pe

ople

With

Dev

elop

men

tal D

is-ab

ilitie

s (O

PWD

D)

held

a s

erie

s of

thre

e pu

blic

hea

ring

s on

the

0% tr

end

fact

or fo

r the

200

9-20

10 st

ate fi

sca

l yea

r. A

ll th

e hea

ring

s w

ere

wel

l atte

nded

with

bet

wee

n 35

and

75

spea

kers

at e

ach.

Tes

-tim

ony

was

pre

sent

ed b

y se

lf-ad

voca

tes,

pare

nts,

fam

ily m

embe

rs,

exec

utiv

e di

rect

ors,

dire

ct c

are

staff

and

oth

er in

tere

sted

peo

ple.

C

P of

NYS

staff

tes

tifi e

d at

the C

apita

l Dist

rict

DD

SO h

eari

ng an

d al

ong

with

oth

er p

rese

nter

s, m

ade

the

poin

t th

at O

PWD

D n

ot-

for-

profi

t ag

enci

es se

rve v

ery

vuln

erab

le in

divi

dual

s and

coul

d no

t w

ithst

and

a se

cond

yea

r of a

0%

tren

d.

OC

TOBE

R 20

09 S

TATE

WID

E TR

END

CA

MPA

IGN

CP

of N

YS, i

n co

llabo

ratio

n w

ith o

ther

sta

tew

ide

and

regi

onal

pr

ovid

er a

nd a

dvoc

acy

asso

ciat

ions

, par

ticip

ated

in a

join

t cam

-pa

ign

to co

nvin

ce G

over

nor P

ater

son

to in

clud

e a tr

end

fact

or an

d ad

ditio

nal f

undi

ng fo

r dev

elop

men

t in

the O

PWD

D p

ortio

n of

his

Exec

utiv

e Bud

get p

ropo

sal f

or 2

010-

2011

. Th e

advo

cacy

cam

paig

n ut

ilize

d le

tters

, pho

ne ca

lls an

d e-

mai

ls to

the G

over

nor f

rom

con-

sum

ers,

fam

ily m

embe

rs, b

oard

mem

bers

and

staff

. Th

e cam

paig

n w

as s

ucce

ssfu

l as

the

2010

-201

1 Ex

ecut

ive

Budg

et p

ropo

sed

in

Janu

ary

incl

uded

a tr

end

fact

or fo

r the

201

0-20

11 st

ate

fi sca

l yea

r, a

retr

oact

ive

tren

d fo

r th

e 20

09-2

010

stat

e fi s

cal y

ear.

Add

ition

al

fund

ing

for d

evel

opm

ent w

as a

lso a

dded

.

Page 7: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

An

nu

al R

epo

rt

LEGISLATIVE ACTIVITIESN

OV

EMBE

R D

EFIC

IT R

EDU

CTI

ON

PLA

N

& C

API

TOL

VIG

IL

Due

to th

e st

ate’s

poo

r fi s

cal o

utlo

ok a

nd a

pro

ject

ed d

efi c

it, G

ov-

erno

r Pa

ters

on p

ropo

sed

a D

efi c

it Re

duct

ion

Plan

in N

ovem

ber

2009

that

incl

uded

$16

0 m

illio

n in

cut

s to

OPW

DD

-fun

ded

vol-

unta

ry s

ervi

ces.

CP

of N

YS jo

ined

with

the

othe

r as

soci

atio

ns to

ho

ld a

dai

ly v

igil

outs

ide

the

Gov

erno

r’s C

apito

l offi

ce t

o br

ing

atte

ntio

n to

the

crit

ical

im

port

ance

of

serv

ices

for

peop

le w

ith d

evel

opm

enta

l di

sabi

litie

s and

thei

r fam

ilies

.

Aft e

r a

mon

th o

f da

ily v

igils

, le

tters

, ph

one c

alls,

hea

ring

s and

ralli

es b

y co

n-su

mer

s, st

aff a

nd fa

mily

mem

bers

from

ac

ross

the

sta

te, t

he L

egisl

atur

e pa

ssed

a

Defi

cit

Redu

ctio

n Pl

an

(S.6

6022

/A

.400

22),

whi

ch c

ut O

PWD

D M

edic

-ai

d pr

ogra

ms

by 5

% a

nd n

on-M

edic

aid

prog

ram

s by

10%

. Th

e fi n

al b

ill i

n-cl

uded

$37

mill

ion

in c

uts t

o O

PWD

D-

fund

ed v

olun

tary

serv

ices

, com

pare

d to

th

e G

over

nor’s

ori

gina

lly p

ropo

sed

$160

mill

ion

redu

ctio

n. F

or-

tuna

tely,

OPW

DD

was

abl

e to

wor

k w

ith v

olun

tary

pro

vide

rs to

m

itiga

te th

e im

pact

of t

hese

cut

s by

redu

cing

as l

ittle

of M

edic

aid

as p

ossib

le.

JAN

UA

RY 7

TH F

AM

ILY

A

DV

OC

AC

Y D

AY

On

Janu

ary

7, 2

010,

CP

of N

YS A

ffi lia

tes

join

ed t

heir

col

leag

ue

asso

ciat

ions

to u

rge t

he L

egisl

atur

e to

prot

ect p

eopl

e with

dis

abili

-tie

s. F

rom

Bro

okly

n to

Bat

avia

and

Mal

one

to M

onta

uk, f

amily

m

embe

rs, s

taff

and

self-

advo

cate

s met

with

thei

r sta

te re

pres

enta

-tiv

es in

an

atte

mpt

to c

onvi

nce

stat

e le

ader

s no

t to

cut

any

mor

e fu

nds

from

OPW

DD

. Fa

mily

Adv

ocac

y D

ay h

ad a

sim

ple

mes

sage

for l

egisl

ator

s: Pl

ease

pro

tect

the

sys

tem

s an

d se

rvic

es

in p

lace

for

peo

ple

with

dev

elop

men

tal

disa

bilit

ies.

Mos

t A

ffi lia

tes

felt

that

the

da

y w

as v

ery

succ

essf

ul.

MA

RCH

1ST

JOIN

T A

LBA

NY

LO

BBY

DAY

Onc

e ag

ain,

CP

of N

YS jo

ined

with

NY-

SARC

, In

c. a

nd Th

e A

llian

ce o

f Lo

ng

Isla

nd A

genc

ies

(ALI

A)

to h

old

a jo

int

Alb

any

Lobb

y D

ay o

n M

arch

1. Th

is

year

ther

e w

ere

alm

ost 1

50

repr

esen

tativ

es fr

om th

e th

ree

asso

ciat

ions

that

met

with

thei

r lo-

cal l

egisl

ator

s an

d st

aff t

o ad

voca

te fo

r su

ppor

t of t

he tr

end

and

som

e re

stor

atio

n of

the

$115

mill

ion

in c

uts t

o O

PWD

D se

rvic

es.

Page 8: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

Cer

ebr

al P

alsy

Ass

oc

iati

on

s o

f N

ew Y

or

k S

tate

LEGISLATIVE ACTIVITIES

Th is

join

t Lob

by D

ay w

as a

n op

port

unity

for

CP

of N

YS to

join

w

ith o

ther

ass

ocia

tions

to d

emon

stra

te o

ur re

solv

e to

be

a pa

rt o

f th

e so

lutio

n an

d to

ens

ure

that

the

Legi

slatu

re su

ppor

ts th

e tr

end

and

unde

rsto

od t

he i

mpa

ct t

hat

the

Gov

erno

r’s p

ropo

sed

cuts

w

ould

hav

e on

non

-pro

fi t a

genc

ies

and

the

indi

vidu

als

with

de-

velo

pmen

tal d

isab

ilitie

s tha

t the

y se

rve.

All

of th

e as

soci

atio

ns fe

lt th

e joi

nt L

obby

Day

was

ver

y su

cces

sful

and

have

sche

dule

d a j

oint

Lo

bby

Day

for M

arch

1, 2

011.

A

ft er t

he M

arch

1 A

lban

y Lo

bby

Day

, CP

of N

YS, N

YSA

RC, A

LIA

an

d IA

C re

aliz

ed th

at th

ere n

eede

d to

be m

uch

mor

e adv

ocac

y an

d be

gan

a cam

paig

n ca

lled

Inclu

sive D

emoc

racy

In A

ctio

n (I

DIA

). Th

e as

soci

atio

ns u

sed

the

succ

ess

and

less

ons

of th

e 20

09 fa

ll vi

gil a

t th

e C

apito

l to

form

an

ongo

ing

advo

cacy

cam

paig

n. ID

IA b

roug

ht

cons

umer

s, st

aff a

nd fa

mily

mem

bers

to th

e C

apito

l ea

ch s

essio

n da

y to

mee

t with

thei

r lo

cal l

egisl

ator

s. C

P of

NYS

Affi

liate

s fro

m a

s far

away

as B

uff a

lo, L

ong

Isla

nd, E

lmir

a an

d N

ew Y

ork

City

trav

eled

to A

lban

y to

par

ticip

ate

in I

nclu

sive

Dem

ocra

cy in

Act

ion.

Th e

pa

rtic

ipan

ts h

ad a

sim

ple

mes

sage

to th

eir

legi

slato

rs

– th

ank

you

for y

our p

ast s

uppo

rt a

nd re

mem

ber u

s as

you

nego

tiate

the fi

nal

bud

get.

Th e

legi

slato

rs w

ere

grac

ious

and

app

reci

ativ

e th

at

thei

r con

stitu

ents

mad

e the

trip

to A

lban

y. Le

gisla

tors

co

mm

ente

d da

ily a

bout

how

impo

rtan

t it i

s to

put

a

face

to th

e ne

ed fo

r O

PWD

D s

ervi

ces

and

a re

stor

a-

tion

of th

e bu

dget

cut

s. M

any

of th

e ID

IA g

roup

s wer

e in

vite

d on

to

the

fl oor

of t

he A

ssem

bly

Cha

mbe

r dur

ing

sess

ion

and

the

Sen-

ate

Cha

mbe

r aft e

r ses

sion.

A p

artic

ipan

t fro

m U

CP/

NYC

said

that

it

was

the

happ

iest

day

of h

er li

fe b

ecau

se s

he n

ever

thou

ght s

he

wou

ld b

e ab

le to

par

ticip

ate

in d

emoc

racy

so d

irect

ly.

By e

very

defi

niti

on, I

DIA

was

a h

uge

succ

ess.

Beca

use

ther

e w

ere

so m

any

pict

ures

and

we

wan

ted

to b

e ab

le to

sh

are

them

with

the

part

icip

ants

, leg

islat

ors a

nd A

ffi lia

tes,

ther

e is

an In

clusiv

e D

emoc

racy

In A

ctio

n Fa

cebo

ok p

age

at h

ttp://

tinyu

rl.co

m/3

2khy

yk.

INC

LUSI

VE

DEM

OC

RAC

Y IN

AC

TIO

N I

DIA

Page 9: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

An

nu

al R

epo

rt

LEGISLATIVE ACTIVITIES

Nam

e ch

ange

to O

PWD

D

Cha

pter

168

of t

he L

aws o

f 201

0 ch

ange

s the

nam

e of

the

Offi

ce o

f Men

tal R

etar

datio

n an

d D

e-ve

lopm

enta

l Dis

abili

ties (

OM

RDD

) to

the

New

Yor

k St

ate

Of-

fi ce

for

Peop

le W

ith D

evel

opm

enta

l D

isab

ilitie

s (O

PWD

D).

CP

of N

YS su

ppor

ted

this

bill.

Fam

ily H

ealth

Car

e D

ecis

ions

Act

Cha

pter

8 o

f the

Law

s of

201

0 (S

.316

4-B/

A.7

729-

D)

crea

tes

the

Fam

ily H

ealth

Car

e D

ecisi

ons

Act

. Th

is la

w e

stab

lishe

s pr

oced

ures

for

mak

ing

med

ical

trea

tmen

t dec

ision

s on

beha

lf of

pat

ient

s who

lack

the

capa

city

to m

ake

thei

r ow

n he

alth

car

e de

cisio

ns. I

ndiv

idua

ls w

ith A

rtic

le 1

7A g

uard

ians

are

not

incl

uded

in t

his

law.

Th e

au

thor

ity fo

r the

ir g

uard

ian

to m

ake

trea

tmen

t dec

ision

s con

-tin

ues u

nder

Art

icle

17A

. CP

of N

YS su

ppor

ted

this

bill.

FMA

P C

ontin

genc

y Fu

nd

– C

hapt

er 3

13 o

f the

Law

s of 2

010

(S.6

7011

-A/A

.410

11-A

), G

over

nor’s

Pro

gram

Bill

#32

4, e

stab

-lis

hes t

he F

MA

P co

ntin

genc

y fu

nd an

d au

thor

izes

the D

ivisi

on

of B

udge

t to

redu

ce p

aym

ents

if th

e fe

dera

l gov

ernm

ent d

oes

not e

xten

d th

e en

hanc

ed M

edic

aid

Ass

istan

ce p

erce

ntag

es a

s an

ticip

ated

in th

e bu

dget

. Th i

s re

sulte

d in

a 1

.1%

cut

in p

ay-

men

ts to

OPW

DD

pro

vide

rs, s

choo

l dist

rict

s, ho

spita

ls, m

u-ni

cipa

litie

s, et

c. C

P of

NYS

opp

osed

this

bill

and

argu

ed th

at it

se

t a d

ange

rous

pre

cede

nt.

Acc

essi

ble

Polli

ng P

lace

s

– C

hapt

er 5

05 o

f the

Law

s of

201

0 (S

.786

0/A

.109

46)

requ

ires

polli

ng p

lace

s to

be

acce

ssib

le t

o pe

ople

with

phy

sical

dis

abili

ties.

CP

of N

YS s

uppo

rted

thi

s bi

ll.

Dis

abili

ties

His

tory

Day

Cha

pter

199

of t

he L

aws

of 2

010

(S.7

931/

A.1

0853

-B) d

esig

nate

s Oct

ober

18

as D

isab

ilitie

s His-

tory

Day

. CP

of N

YS su

ppor

ted

this

bill.

SIG

NIF

ICA

NT

LEG

ISLA

TIO

N S

IGN

ED B

Y T

HE

GO

VER

NO

R

Page 10: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

Cer

ebr

al P

alsy

Ass

oc

iati

on

s o

f N

ew Y

or

k S

tate

In o

rder

to e

nsur

e th

at th

e ne

eds a

nd d

esire

s of p

eopl

e w

ith d

isab

ilitie

s and

the

inte

rest

s of o

ur 2

4 A

ffi lia

tes a

re re

pres

ente

d be

fore

pol

icie

s an

d re

gula

tions

are

cha

nged

or e

nact

ed, C

P of

NYS

par

ticip

ates

on

stat

ewid

e A

dvis

ory

Cou

ncils

and

Tas

k Fo

rces

. Sta

ff m

embe

rs fr

om C

P of

NYS

and

its

Affi

liate

s re

pres

ent t

he o

rgan

izat

ion

and

its c

onst

ituen

ts o

n va

riou

s co

mm

ittee

s an

d ad

viso

ry g

roup

s, as

wel

l as

at p

ublic

he

arin

gs, i

nclu

ding

the

follo

win

g:

OFF

ICE

FOR

PEO

PLE

WIT

H D

EVEL

OPM

ENTA

L D

ISA

BILI

TIES

(OPW

DD

)

Med

icai

d Se

rvic

e C

oord

inat

ion

Rede

sign

Task

For

ce

Prov

ider

Ass

ocia

tions

Cou

ncil

N

ew Y

ork

Stat

e C

ARE

S A

dvis

ory

Cou

ncil

H

ome

& C

omm

unity

Bas

ed S

ervi

ces (

HC

BS) W

aive

r U

nits

of S

ervi

ce T

ask

Forc

e

Prov

ider

Cou

ncil

Pr

ovid

er C

ounc

il C

linic

al S

ervi

ces S

ubco

mm

ittee

Em

ploy

men

t Tra

inin

g In

tern

ship

Pro

gram

Adv

isor

y C

ounc

il

Wor

kfor

ce R

ecru

itmen

t & R

eten

tion

Wor

k G

roup

M

edic

aid

and

Med

icar

e M

axim

izat

ion

Gro

up

Real

Cho

ice

Gra

nt C

omm

ittee

C

linic

al W

orkf

orce

Sub

com

mitt

ee

Elec

tron

ic IS

P Su

bcom

mitt

ee

Qua

lity

Indi

cato

rs S

ubco

mm

ittee

H

ousin

g Su

bcom

mitt

ee

OPW

DD

APG

Wor

kgro

up

DEV

ELO

PMEN

TAL

DIS

ABI

LITI

ES P

LAN

NIN

GC

OU

NC

IL D

DPC

DD

PC A

ssist

ive

Tech

nolo

gy W

ork

Gro

up

NYS

CO

MM

ISSI

ON

OF

QU

ALI

TY

OF

CA

RE A

ND

A

DV

OC

AC

Y F

OR

PERS

ON

S W

ITH

DIS

ABI

LITI

ES T

RAID

Inte

rage

ncy

Part

ners

hip

for A

ssist

ive

Tech

nolo

gy

Adv

isor

y Bo

ard

STAT

E ED

UC

ATIO

N D

EPA

RTM

ENT

(SED

)

NYS

Reh

abili

tatio

n C

ounc

il

CRP

Pla

nnin

g G

roup

U

nifi e

d C

ontr

act S

ervi

ces W

ork

Gro

up (fi

nish

ed)

DEP

ART

MEN

T O

F H

EALT

H (D

OH

)

Early

Inte

rven

tion

Coo

rdin

atin

g C

ounc

il (E

ICC

)

EIC

C D

evel

opm

enta

l Gro

up T

ask

Forc

e

EIC

C T

ask

Forc

e on

Pro

vide

r App

rova

l (C

hair)

Ea

rly In

terv

entio

n Re

imbu

rsem

ent A

dvis

ory

Pane

l

Dur

able

Med

ical

Equ

ipm

ent (

DM

E) W

ork

Gro

up

DO

H/O

PWD

D C

linic

al S

ervi

ces P

rovi

der C

ounc

il

AH

CF

Cos

t Rep

ort W

ork

Gro

up

OTH

ER S

TATE

WID

E A

CTI

VIT

IES

Prep

ared

and

subm

itted

pro

posa

l to

the

NYS

Dep

artm

ent o

f H

ealth

(DO

H) t

o de

liver

stat

ewid

e Ea

rly In

terv

entio

n Tr

aini

ng.

GOVERNMENT NETWORKING

Page 11: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

An

nu

al R

epo

rt

CO

RPO

RATE

CO

MPL

IAN

CE

CO

NFE

REN

CE

Ove

r 190

peo

ple

atte

nded

the

third

ann

ual C

orpo

rate

Com

plia

nce

Con

fere

nce.

The

con

fere

nce

was

joi

ntly

spo

nsor

ed b

y C

P of

N

YS a

nd N

YSA

RC, I

nc. a

nd is

the

only

con

fere

nce

on c

orpo

rate

co

mpl

ianc

e tha

t is d

esig

ned

for p

rovi

ders

of s

ervi

ces t

o in

divi

dual

s w

ith d

isab

ilitie

s. F

eatu

red

spea

kers

wer

e fr

om th

e N

YS O

ffi ce

of

the

Med

icai

d In

spec

tor G

ener

al, t

he N

YS M

edic

aid

Frau

d C

ontr

ol

Uni

t an

d th

e U

nive

rsity

of

Cal

iforn

ia a

t Lo

s A

ngel

es (

UC

LA).

Pres

enta

tions

by

com

plia

nce

offic

ers

from

bot

h or

gani

zatio

ns

com

plet

ed th

e ag

enda

.

CP

of N

YS A

NN

UA

L C

ON

FERE

NC

E D

RAW

S M

ORE

TH

AN

800

TO

ALB

AN

Y

Aft e

r 19

year

s in

Alb

any,

the

2009

CP

of N

YS A

nnua

l Con

fere

nce

mov

ed to

the

Hilt

on H

otel

in S

arat

oga

Spri

ngs.

Mor

e th

an 8

00

peop

le f

rom

Aff

iliat

es a

cros

s th

e st

ate

atte

nded

thr

ee d

ays

of

wor

ksho

ps a

nd m

eetin

gs, N

ovem

ber 2

-4.

Th e

Con

fere

nce

bega

n w

ith a

pre

sent

atio

n to

Boa

rd m

embe

rs a

nd

exec

utiv

e le

ader

ship

team

s by

New

Yor

k St

ate

Med

icai

d In

spec

tor

Gen

eral

Jam

es Sh

eeha

n. Th

at a

ft ern

oon

Dr.

Beth

Mou

nt d

eliv

ered

the

Key

note

Add

ress

entit

led,

“Rea

lizin

g Pot

entia

l Th r

ough

Inno

vatio

n.”Th

e en

light

enin

g an

d in

spir

atio

nal p

rese

ntat

ion

off e

red

new

way

s to

impr

ove

oper

atio

ns a

nd a

dopt

idea

s th

at b

est fi

t A

ffi lia

te g

oals

and

miss

ions

.

Th e K

eyno

te w

as fo

llow

ed b

y sev

eral

conc

urre

nt se

ssio

ns, i

nclu

ding

a

pres

enta

tion

by fo

rmer

NFL

gre

at T

iki B

arbe

r as

wel

l as

a w

ell-

atte

nded

pre

sent

atio

n by

OPW

DD

Com

mis

sion

er D

iana

Jon

es

Ritte

r.

Mon

day

conc

lude

d w

ith t

he C

P of

NYS

Ann

ual A

war

ds D

inne

r ho

nori

ng i

ndiv

idua

ls a

nd o

rgan

izat

ions

for

the

ir s

ucce

ss i

n

over

com

ing

obst

acle

s, or

for

the

ir c

ontr

ibut

ions

to

peop

le w

ith

disa

bilit

ies a

nd th

eir f

amili

es.

Tues

day’s

sche

dule

incl

uded

nea

rly 4

0 se

ssio

ns a

nd m

eetin

gs o

n a

broa

d ra

nge

of to

pics

and

issu

es c

ritic

al to

peo

ple

with

dis

abili

ties,

volu

ntee

rs a

nd p

rofe

ssio

nals.

An

exhi

bitio

n of

artw

ork

subm

itted

by A

ffi lia

tes f

rom

acro

ss th

e sta

te

was

on

disp

lay

at a

sile

nt a

uctio

n on

Tue

sday

. Car

leen

Gia

nnot

ti,

from

Ups

tate

Cer

ebra

l Pal

sy in

Utic

a, w

as ch

osen

as C

P of

NYS

Art

ist

of th

e Ye

ar, a

nd w

as a

mon

g th

ose

hono

red

at th

e A

nnua

l Aw

ards

D

inne

r. C

ory

Bono

mo,

fro

m t

he C

ente

r fo

r D

isab

ility

Ser

vice

s in

Alb

any,

was

nam

ed w

inne

r of

the

fi rs

t st

atew

ide

Chi

ldre

n’s

Art

Con

test

. Tue

sday

nig

ht f

eatu

red

the

Cel

ebra

te S

taff

Din

ner

reco

gniz

ing

Affi

liate

em

ploy

ees f

or o

utst

andi

ng se

rvic

e.

Th e

Ann

ual C

onfe

renc

e co

nclu

ded

Wed

nesd

ay m

orni

ng w

ith a

n in

spir

ing

and

ener

getic

Clo

sing

Plen

ary

sess

ion

by A

l Con

delu

ci

from

UC

P/C

LASS

tha

t ex

plor

ed t

he c

halle

nge

of c

omm

unity

in

clus

ion.

AFFILIATE ACTIVITIES

Page 12: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

Cer

ebr

al P

alsy

Ass

oc

iati

on

s o

f N

ew Y

or

k S

tate

TEC

HN

ICA

L A

SSIS

TAN

CE

CP

of N

YS:

Prov

ided

tech

nica

l ass

istan

ce to

Affi

liate

s reg

ardi

ng O

PWD

D

pr

ogra

m d

evel

opm

ent a

nd re

imbu

rsem

ent i

ssue

s.

Affi

liate

Ser

vice

s sta

ff off

ere

d te

chni

cal a

ssist

ance

to A

ffi lia

tes

on

: Rat

e ap

peal

s•

Cha

nges

to d

ay p

rogr

am•

Resid

entia

l pro

gram

ove

rsig

ht a

nd d

evel

opm

ent

• Re

spite

pro

gram

s•

Med

icai

d Se

rvic

e C

oord

inat

ion

• A

rtic

le 1

6 C

linic

dev

elop

men

t and

Cer

tifi c

ates

of N

eed

• Im

plem

enta

tion

of sp

ecia

l OPW

DD

initi

ativ

es, s

uch

as

• th

e H

ealth

Car

e En

hanc

emen

t

Prov

ided

info

rmat

ion,

tech

nica

l sup

port

and

/or d

irect

assis

tanc

e to

Affi

liate

s reg

ardi

ng:

Early

Inte

rven

tion

• Pr

esch

ool a

nd S

choo

l Age

Spe

cial

Edu

catio

n•

Ass

istiv

e Te

chno

logy

• Tr

aum

atic

Bra

in In

jury

issu

es•

Prov

ided

ass

istan

ce w

ith S

ED re

gard

ing

appr

oval

of n

ew

• an

d/or

exp

ansio

n of

spec

ial e

duca

tion

prog

ram

mod

els

Prov

ided

ass

istan

ce re

lativ

e to

DO

H/I

PRO

mon

itori

ng o

f •

Early

Inte

rven

tion

prog

ram

s

Prov

ided

tech

nica

l ass

istan

ce a

nd in

form

atio

n to

Affi

liate

s on:

N

ew E

arly

Inte

rven

tion

regu

latio

ns•

New

pro

cedu

res f

or “M

edic

aid

in E

duca

tion”

• Bi

lling

for I

EP se

rvic

es•

APG

impl

emen

tatio

n an

d bi

lling

Ass

isted

Affi

liate

s with

mat

ters

rela

ted

to tu

ition

rate

s and

fees

for e

duca

tion

prog

ram

s.

Prov

ided

ong

oing

upd

ates

from

DO

H a

nd d

irect

ass

istan

ce

re

gard

ing

the

proc

ess o

f acc

essin

g D

urab

le M

edic

al

Equi

pmen

t, pa

rtic

ular

ly fo

r IC

F re

siden

ts a

nd fo

r bill

ing

of

com

preh

ensiv

e w

heel

chai

r eva

luat

ions

.

Prov

ided

tech

nica

l ass

istan

ce to

Affi

liate

s reg

ardi

ng D

OH

fi sca

l and

regu

lato

ry is

sues

, inc

ludi

ng th

e ne

w A

PG

reim

burs

emen

t sys

tem

.

CP

of N

YS S

TATE

WID

E C

OM

MIT

TEES

Ass

istiv

e Te

chno

logy

C

orpo

rate

Com

plia

nce

D

evel

opm

ent/P

ublic

Rel

atio

ns

Educ

atio

n/Ea

rly In

terv

entio

n

Empl

oym

ent/V

ocat

iona

l/Day

Ser

vice

s

Fina

nce

G

uard

ians

hip

H

ealth

& C

linic

al S

ervi

ces

H

uman

Res

ourc

es

Info

rmat

ion

Tech

nolo

gy

Med

ical

Dire

ctor

s Cou

ncil

Q

ualit

y A

ssur

ance

Re

siden

tial S

ervi

ces

Tr

aum

atic

Bra

in In

jury

AFFILIATE ACTIVITIES

Page 13: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

An

nu

al R

epo

rt

AFFILIATE ACTIVITIESN

YS E

LKS

ASS

OC

IATI

ON

AN

D

CP

OF

NYS

HO

ME

SERV

ICE

PRO

GRA

M

For m

ore

than

45

year

s the

New

Yor

k St

ate

Elks

Ass

ocia

tion

(NY-

SEA

) ha

s he

lped

to fu

nd th

e C

P of

NYS

Hom

e Se

rvic

e Pr

ogra

m.

Th e

Elks

hav

e co

ntri

bute

d m

ore

than

$20

mill

ion

and

coun

tless

ho

urs o

f vol

unte

er c

omm

itmen

t all

acro

ss th

e st

ate

since

196

4.

Regi

onal

mee

tings

acr

oss t

he st

ate

invo

lvin

g m

embe

rs o

f the

Elk

s at

the

stat

e an

d lo

cal l

evel

, and

staff

fro

m C

P of

NYS

and

its A

ffi li-

ates

, hav

e st

reng

then

ed r

elat

ions

hips

bet

wee

n th

e or

gani

zatio

ns,

gene

rate

d id

eas

that

hav

e be

nefi t

ed b

oth

the

Elks

and

Affi

liate

s, an

d pr

ovid

ed o

ppor

tuni

ties

for

peop

le f

rom

bot

h or

gani

zatio

ns

to le

arn

mor

e ab

out h

ow to

gro

w a

nd im

prov

e th

is lo

ng-s

tand

ing

part

ners

hip.

Rich

ard

De

Silv

a, fr

om W

estc

hest

er C

ount

y, co

mpl

eted

his

thre

e-ye

ar te

rm a

s Cha

ir o

f the

Maj

or P

roje

cts C

omm

ittee

, wor

king

with

El

ks fr

om a

roun

d th

e st

ate

to ra

ise

mor

e th

an $

1.4

mill

ion

in su

p-po

rt o

f the

CP

of N

YS H

ome S

ervi

ce P

rogr

am. W

estc

hest

er C

ount

y re

siden

t Gre

gory

San

tiago

, with

the

supp

ort o

f his

fam

ily, fi

nish

ed

a th

ree-

year

stin

t as

Elks

Am

bass

ador

wor

king

with

Mr.

De

Silv

a to

rais

e fu

nds a

nd p

ublic

awar

enes

s. Lo

u W

ithia

m, o

f Ith

aca,

is th

e ne

w M

ajor

Pro

ject

s Com

mitt

ee C

hair.

CP

OF

NYS

AFF

ILIA

TES

CO

LLA

BORA

TE O

N

ART

EX

HIB

ITIO

N

An

exhi

bitio

n of

art

wor

k by

art

ists

repr

esen

ting

thre

e C

P of

NYS

A

ffi lia

tes

was

disp

laye

d by

a g

alle

ry o

n Ro

osev

elt

Isla

nd in

New

Yo

rk C

ity la

st A

ugus

t an

d Se

ptem

ber.

Th e

Gal

lery

RIV

AA

sho

w

feat

ured

ori

gina

l art

wor

k cr

eate

d by

73

artis

ts fr

om Q

ueen

s Cen

-te

rs fo

r Pro

gres

s, U

nite

d C

ereb

ral P

alsy

of N

ew Y

ork

City

and

Ce-

rebr

al P

alsy

Ass

ocia

tions

of N

ew Y

ork

Stat

e-M

etro

Ser

vice

s. N

ew

York

Sta

te A

ssem

blym

embe

r Mic

ah K

elln

er a

ssist

ed w

ith a

rran

ging

th

e exh

ibiti

on. H

e also

met

with

artis

ts an

d m

embe

rs o

f the

ir fa

mi-

lies d

urin

g th

e exh

ibiti

on’s

open

ing

rece

ptio

n. “Th

ere

is a

stun

ning

ra

nge

of ta

lent

on

disp

lay

in th

is sh

ow, a

nd it

has

bee

n an

hon

or

to w

ork

with

RIV

AA

and

thes

e th

ree

outs

tand

ing

orga

niza

tions

to

help

mak

e it

a re

ality

,” sa

id K

elln

er. Th

e th

ree

Affi

liate

s ar

e pl

an-

ning

ano

ther

exh

ibiti

on a

t the

gal

lery

in 2

011.

L-R:

Jam

es P

eace

, Cha

irman

, NYS

EA M

ajor

Pro

ject

s Bo

ard;

Rich

ard

Crud

ele, 2

009

CP o

f NYS

Elk

s Aw

ard

win

ner;

Robe

rt D

iFra

nces

co, C

P of

NYS

Boa

rd o

f Dire

ctor

s

Page 14: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

Cer

ebr

al P

alsy

Ass

oc

iati

on

s o

f N

ew Y

or

k S

tate

METRO SERVICESC

P of

NYS

’s M

etro

Ser

vice

s off

ers

a w

ide

rang

e of

pro

gram

s an

d se

rvic

es d

esig

ned

to su

ppor

t ind

ivid

uals

with

dis

abili

ties

in le

adin

g m

ore

inde

pend

ent a

nd p

rodu

ctiv

e liv

es. Th

ese

incl

ude

com

preh

ensiv

e he

alth

car

e se

rvic

es,

com

mun

ity l

ivin

g se

rvic

es,

adul

t da

y pr

ogra

ms,

voca

tiona

l, an

d tr

aum

atic

bra

in i

njur

y se

r-vi

ces,

and

vaca

tions

, ser

vice

coo

rdin

atio

n, a

nd fa

mily

supp

ort s

er-

vice

s.

CO

MM

UN

ITY

LIV

ING

SER

VIC

ES

Th re

e hu

ndre

d an

d six

ty-e

ight

ind

ivid

uals

live

in 7

8 re

siden

ces

cert

ifi ed

as I

ndiv

idua

l Res

iden

tial A

ltern

ativ

es (I

RAs)

and

76 in

di-

vidu

als l

ive

in si

x re

siden

ces c

ertifi

ed

as In

term

edia

te C

are

Faci

li-tie

s (IC

Fs).

Incl

uded

in th

ese

are

four

ICFs

and

one

IRA

, ser

ving

64

peo

ple

that

pro

vide

aro

und

the

cloc

k, o

n-sit

e nu

rsin

g se

rvic

es.

Th er

e w

ere

also

four

peo

ple

rece

ivin

g A

t Hom

e Re

s Hab

serv

ices

.

DAY

SER

VIC

ES

Met

ro S

ervi

ces’

Day

Pro

gram

s pr

ovid

e su

ppor

ts t

o ov

er 4

00 in

-di

vidu

als

in i

nclu

siona

ry p

rogr

ams

whe

re p

eopl

e ar

e in

tegr

ally

in

volv

ed i

n th

eir

imm

edia

te c

omm

uniti

es,

prov

idin

g vo

lunt

eer

oppo

rtun

ities

at

vari

ous

com

mun

ity s

ites,

and

part

icip

atio

n in

co

mm

unity

res

tora

tion

and

gard

enin

g pr

ojec

ts.

Met

ro O

ptio

ns

for I

ndep

ende

nce,

with

it’s

clus

ter o

f Voc

atio

nal P

rogr

ams (

VES

ID

Serv

ices

, SE

MP;

Enh

ance

d SE

MP;

CBV

H/D

VE;

Job

Pla

cem

ent

and

Day

Hab

With

out W

alls)

has

pro

vide

d w

ork

rela

ted

serv

ices

su

ch as

job

plac

emen

t, jo

b sit

e coa

chin

g an

d vo

lunt

eer s

ite tr

aini

ng

serv

ices

, and

voc

atio

nal a

sses

smen

t ser

vice

to a

ppro

xim

atel

y 14

0 pe

ople

with

dis

abili

ties.

Whi

le c

ontin

uous

ly s

uppo

rtin

g ap

prox

i-m

atel

y 85

indi

vidu

als o

n w

ork

sites

thro

ugh

its v

ario

us p

rogr

ams,

the

depa

rtm

ent h

as b

een

able

to d

evel

op 2

2 ne

w p

aid

wor

k op

por-

tuni

ties t

his y

ear t

hrou

gh it

s var

ious

pro

gram

s

HEA

LTH

CA

RE C

ENTE

RS

Art

icle

28

Met

ro S

ervi

ces o

pera

tes f

our f

ull-t

ime

heal

th c

are

cent

ers a

nd o

ne

part

-tim

e cen

ter s

ervi

ng o

ver 2

,600

indi

vidu

als t

hrou

ghou

t the

fi ve

bo

roug

hs.

In a

dditi

on to

pri

mar

y ca

re s

ervi

ces,

we

also

pro

vide

sp

ecia

lty m

edic

al se

rvic

es in

clud

ing,

car

diol

ogy,

gast

roen

tero

logy

, ne

urol

ogy,

opht

halm

olog

y, ph

ysia

try,

podi

atry

, aud

iolo

gy an

d ps

y-ch

iatr

y. D

enta

l Ser

vice

s ar

e pr

ovid

ed in

Sta

ten

Isla

nd, B

rook

lyn

and

the

Bron

x. O

ur te

am o

f hea

lth c

are

prof

essio

nals

incl

udes

a

part

-tim

e st

aff o

f 20

phys

icia

ns, s

ix d

entis

ts a

nd tw

o nu

rse

prac

-tio

ners

. W

e al

so o

ff er

Reha

b Se

rvic

es th

roug

h ou

r cl

inic

s. Th

ese

se

rvic

es a

re p

hysic

al, o

ccup

atio

nal a

nd s

peec

h th

erap

y, c

ouns

el-

ing

and

psyc

holo

gica

l ser

vice

s. W

e ha

ve a

lso p

artn

ered

with

Fi-

delis

Car

e of N

ew Y

ork

whi

ch a

llow

s us t

he o

ppor

tuni

ty to

pro

vide

he

alth

car

e se

rvic

es to

all

indi

vidu

als i

n th

eir n

etw

ork.

Page 15: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

An

nu

al R

epo

rt

METRO SERVICESA

rtic

le 1

6W

e w

ere

cert

ifi ed

by

OPW

DD

as

an A

rtic

le 1

6 pr

ovid

er in

Sep

-te

mbe

r 20

09.

Cur

rent

ly 2

29 in

divi

dual

s re

ceiv

e se

rvic

es th

roug

h th

is pr

ogra

m.

Th e

serv

ices

we

prov

ide

incl

ude

long

-ter

m th

erap

y in

the

area

of p

hysic

al, o

ccup

atio

nal a

nd sp

eech

ther

apy.

Th r

ough

ou

r A

rtic

le 1

6, w

e al

so p

rovi

de c

ouns

elin

g an

d ps

ycho

logi

cal s

er-

vice

s. CO

MM

UN

ITY

AFF

AIR

S A

ND

VO

LUN

TEER

S

Inte

rns f

rom

New

Yor

k C

ity C

olle

ge o

f Tec

hnol

ogy

(NYC

CT)

con-

duct

ed tw

o ba

ke sa

les t

o he

lp fu

nd A

genc

y ar

t sho

w p

roje

cts.

Both

w

ere v

ery

succ

essf

ul an

d st

uden

ts p

lan

to d

o at

leas

t one

mor

e bak

e sa

le th

is ye

ar.

In 2

009,

two

retu

rnin

g st

uden

ts fr

om N

YCC

T se

rved

as

men

tors

to

new

stu

dent

s w

ho w

ere

emba

rkin

g on

thei

r fi r

st in

tern

ship

s at

ou

r age

ncy.

Th is

has n

ow b

ecom

e an

inte

gral

par

t of t

he v

olun

teer

pr

ogra

m.

Th e

art s

how

hel

d at

the

RIVA

A g

alle

ry in

Aug

ust 2

009

gene

rate

d m

uch

inte

rest

am

ong

volu

ntee

rs a

nd in

tern

s, an

d le

d to

a P

AC

E U

nive

rsity

stu

dent

doi

ng a

pro

ject

rea

chin

g ou

t to

othe

r ga

lleri

es

for f

utur

e sh

ows.

Th is

led

to se

curi

ng g

alle

ry sp

ace

at G

alle

ry 3

07

in C

helse

a fo

r a m

onth

-long

show

whi

ch e

nded

in A

ugus

t 201

0.

Port

Ric

hmon

d H

igh

Scho

ol h

as b

ecom

e an

impo

rtan

t re

sour

ce

for

volu

ntee

rs f

or t

he C

ora

Hoff

man

Cen

ter

Day

Pro

gram

, for

K

oich

eff ,

and

for w

heel

chai

r cle

anin

gs.

Our

long

-ter

m r

elat

ions

hip

with

For

dham

Uni

vers

ity h

as r

esul

t-ed

in t

he U

nive

rsity

incr

easin

g th

e nu

mbe

r of

vol

unte

er g

roup

s it

send

s to

the

Jero

me

Belso

n C

ente

r an

d to

the

resid

ence

s in

the

Bron

x.

Th e

volu

ntee

r pr

ogra

m a

ccou

nted

for

over

6,6

00 h

ours

of v

olun

-te

er t

ime

bein

g pr

ovid

ed b

etw

een

Jan

1 an

d Ju

ly 3

, 201

0 at

our

nu

mer

ous l

ocat

ions

.

CO

MM

UN

ITY

SUPP

ORT

SER

VIC

ES

& S

ERV

ICE

CO

ORD

INAT

ION

Nin

e pa

rtic

ipan

ts w

ere

enro

lled

in t

he a

ft er

scho

ol p

rogr

am a

t H

unge

rfor

d Sc

hool

on

Stat

en Is

land

. Nex

t Jun

e fou

r will

be g

radu

-at

ing

and

two

will

beg

in a

ttend

ing

the

day

habi

litat

ion

prog

ram

at

the C

ora

Hoff

man

Cen

ter.

Fou

r new

stud

ents

hav

e bee

n id

entifi

ed

to b

e en

rolle

d in

the

prog

ram

for

the

upco

min

g ye

ar a

nd e

ff ort

s ar

e cur

rent

ly u

nder

way

to co

mpl

ete t

he w

aive

r enr

ollm

ent p

roce

ss

prio

r to

the

star

t of t

he n

ew sc

hool

yea

r.

At y

ear e

nd, M

etro

Ser

vice

s pro

vide

s Med

icai

d Se

rvic

e C

oord

ina-

tion

(MSC

) to

352

indi

vidu

als.

A to

tal o

f 279

indi

vidu

als

live

in

IRA’

s op

erat

ed b

y C

P of

NYS

and

73

indi

vidu

als

live

with

the

ir

fam

ilies

or

on t

heir

ow

n.

Fift y

four

indi

vidu

als

with

Tra

umat

ic

Brai

n In

juri

es re

ceiv

e ser

vice

coor

dina

tion

thro

ugh

the N

YS D

OH

M

edic

aid

Wai

ver P

rogr

am. O

ver t

he p

ast y

ear a

n ad

ditio

nal 1

5 in

-di

vidu

als w

ere e

nrol

led

in M

SC an

d 10

indi

vidu

als b

egan

rece

ivin

g se

rvic

e co

ordi

natio

n th

roug

h th

e TB

I Wai

ver.

QU

ALI

TY

MA

NA

GEM

ENT

REV

IEW

S

By y

ear’s

end

, 45

full

inte

rnal

Qua

lity

Man

agem

ent (

QM

) sur

veys

an

d 27

follo

w u

p Q

M su

rvey

s wer

e co

mpl

eted

. W

ithin

the

past

22

mon

ths

all 8

5 re

siden

ces

have

rec

eive

d fu

ll in

tern

al Q

M s

urve

ys

with

75%

rec

eivi

ng a

follo

w u

p re

view

. Re

visio

ns a

nd im

prov

e-m

ents

to th

e su

rvey

pro

cess

are

in d

evel

opm

ent.

Th e

new

pro

cess

w

ill fo

cus

on m

ore

targ

eted

rev

iew

s an

d an

incr

ease

in te

chni

cal

supp

ort p

rovi

ded

to p

rogr

am st

aff .

Page 16: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

Cer

ebr

al P

alsy

Ass

oc

iati

on

s o

f N

ew Y

or

k S

tate

METRO SERVICESTh

e pa

rtne

rshi

p co

ntin

ues

with

CU

NY

and

the

John

F. K

enne

dy,

Jr. In

stitu

te fo

r W

orke

r Ed

ucat

ion.

In

addi

tion

to it

s Po

st-B

acca

-la

urea

te C

ertifi

cat

e Pr

ogra

m in

Dis

abili

ty S

tudi

es, l

ast f

all C

UN

Y be

gan

off e

ring

und

ergr

adua

te c

ours

es in

Aut

ism S

pect

rum

Dis

or-

der i

n Yo

ung

Peop

le a

nd In

trod

uctio

n to

Dis

abili

ty S

tudi

es.

Som

e of

our

dire

ct c

are

coun

selo

rs e

nrol

led

in th

e co

urse

s an

d C

UN

Y pa

id t

heir

tuiti

on in

full.

Th

e fa

ll 20

10 a

pplic

atio

n fo

r th

e K

en-

nedy

Fel

low

s pro

gram

was

dist

ribu

ted

to th

e age

ncy

part

ners

. Th

e K

enne

dy F

ello

ws S

chol

arsh

ip an

d C

aree

r Men

tori

ng P

rogr

am su

p-po

rts t

he h

ighe

r edu

catio

n an

d ca

reer

adv

ance

men

t of d

irect

sup-

port

wor

kers

and

fron

tline

supe

rvis

ors i

n th

e di

sabi

lity

fi eld

. O

ver

175

new

sta

ff w

ere

trai

ned

to fi

ll D

irect

Car

e C

ouns

elor

va-

canc

ies

this

year

. Th r

ough

out t

he y

ear

trai

ning

s w

ere

cond

ucte

d on

a n

umbe

r of d

iver

se to

pics

incl

udin

g su

perv

isor

y sk

ills;

volu

n-te

er o

rien

tatio

n an

d tr

aini

ng; C

PR H

eart

save

r; co

lost

omy

care

; G-

Tube

car

e an

d m

anag

emen

t; in

cide

nt m

anag

emen

t and

inve

stig

a-tio

n tr

aini

ng; r

emed

ial m

edic

atio

n ce

rtifi

catio

n an

d pr

ogra

m a

nd

serv

ice

docu

men

tatio

n.

Trai

ning

Gra

nts -

Wor

k Sa

fe P

rogr

am

Th e W

ork

Safe

Tra

inin

g Pr

ogra

m fo

r Dire

ct C

are C

ouns

elor

s fun

d-ed

by

the

Dep

artm

ent o

f Lab

or th

roug

h Ju

ly 3

1, 2

010

is ne

arin

g co

mpl

etio

n. Th

e p

rogr

am e

ncom

pass

ed a

sses

smen

t and

trai

ning

. Th

e as

sess

men

t por

tion

allo

wed

the

incu

mbe

nt d

irect

car

e w

orke

r to

dem

onst

rate

thei

r ab

ility

to s

afel

y pe

rfor

m th

e m

otio

ns, p

hysi-

cal e

xert

ions

, and

pos

ture

s re

quire

d by

the

pos

ition

. Fo

llow

ing

the

com

plet

ion

of a

sses

smen

ts, i

n-se

rvic

e tr

aini

ng w

as p

rovi

ded

on b

ody

mec

hani

cs, b

ack

safe

ty, l

ift in

g an

d tr

ansf

ers.

Add

ition

al

trai

ning

focu

sed

on w

orks

ite h

ealth

pro

mot

ion

and

cond

ition

ing.

A

ppro

xim

atel

y 15

0 di

rect

car

e w

orke

rs in

the

Sta

ten

Isla

nd C

LS

prog

ram

rec

eive

d a

tota

l of s

ix h

ours

of t

rain

ing.

A s

econ

d pr

o-po

sal w

as s

ubm

itted

for

fund

ing

to c

ontin

ue t

he t

rain

ing

in t

he

Que

ens a

nd B

rook

lyn

CLS

pro

gram

s and

has

bee

n aw

arde

d.

New

Tra

inin

g In

itiat

ives

In Ju

ne 2

010,

the

agen

cy w

as in

vite

d to

par

ticip

ate

in a

hea

lth a

nd

wel

lnes

s ini

tiativ

e sp

onso

red

by Th

e S

tate

n Is

land

Fou

ndat

ion

and

the

New

Yor

k St

ate

Inst

itute

for

Basic

Res

earc

h. Th

e in

itiat

ive

is de

signe

d to

trai

n ag

ency

staff

on

how

to im

plem

ent t

he H

ealth

Ad-

voca

cy P

rogr

am c

urri

culu

m w

ith in

divi

dual

s in

the

ir h

ome

and

to a

ssist

them

in id

entif

ying

and

pur

sing

a pe

rson

al h

ealth

goa

l. Se

ven

peop

le w

ere

iden

tifi e

d to

par

ticip

ate

in th

e tr

aini

ng.

Pre-

asse

ssm

ents

wer

e ad

min

ister

ed p

rior

to in

trod

ucin

g th

e cu

rric

u-lu

m.

STA

FF D

EVEL

OPM

ENT

AN

D T

RAIN

ING

Page 17: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

An

nu

al R

epo

rt

METRO SERVICESD

EVEL

OPM

ENT

A n

ew f

acili

ty u

nder

con

stru

ctio

n at

188

0 Bo

ston

Roa

d in

the

Br

onx

will

be

hom

e to

our

hea

lth c

are

cent

er, d

ay h

abili

tatio

n an

d su

ppor

ted

empl

oym

ent p

rogr

ams,

and

the B

ronx

Com

mun

ity L

iv-

ing

Prog

ram

offi

ces.

Th e

con

stru

ctio

n of

the

inte

rior

shou

ld c

om-

men

ce in

ear

ly fa

ll 20

10 w

ith o

ccup

ancy

ant

icip

ated

in fa

ll 20

11.

Two

indi

vidu

als m

oved

into

a tw

o-be

droo

m a

part

men

t in

Que

ens

in A

pril

thro

ugh

the

MO

RE p

roje

ct w

ith O

PWD

D-s

pons

ored

In-

divi

dual

ized

Sup

port

Ser

vice

s fun

ding

. Bot

h m

oved

from

cert

ifi ed

re

siden

ces w

ith 2

4/7

supe

rvisi

on. W

e no

w h

ave

a to

tal o

f thr

ee in

-di

vidu

als l

ivin

g in

depe

nden

tly a

nd su

ppor

ted

by C

omm

unity

Liv

-in

g Se

rvic

es.

ENER

GY

CO

NSE

RVAT

ION

Th e

NYS

ERD

A “N

ew Y

ork

Ener

gy S

mar

t” N

ew C

onst

ruct

ion

pro-

gram

is p

artia

lly fu

ndin

g th

e de

sign

of e

nerg

y co

nser

vatio

n fe

a-tu

res

in th

e ne

w B

osto

n Ro

ad fa

cilit

y. Th

e de

sign

has

been

reg

is-te

red

for L

EED

CI S

ilver

cer

tifi c

atio

n.

Proj

ect

App

licat

ions

to

fund

wea

ther

izat

ion

impr

ovem

ents

hav

e be

en a

ppro

ved

for

six r

esid

ence

s th

roug

h th

e N

YS D

ivisi

on o

f H

ousin

g &

Wea

ther

izat

ion

Ass

istan

ce C

omm

unity

Ren

ewal

Pro

-gr

am.

Page 18: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

Cer

ebr

al P

alsy

Ass

oc

iati

on

s o

f N

ew Y

or

k S

tate

PROFILE

Mee

t Dav

id H

orsh

amD

avid

Hor

sham

, rep

rese

ntin

g C

ereb

ral P

alsy

Ass

ocia

tions

of N

ew Y

ork

Stat

e, c

laim

ed fi

rst p

rize

at t

he V

oice

6! j

urie

d ar

t ex

hibi

tion

cond

ucte

d by

Th e

Arc

Ots

ego

in O

neon

ta. Th

is i

s the

sixt

h an

nual

eve

nt c

eleb

ratin

g th

e cr

eativ

e vo

ices

of a

rt-

ists w

ith d

evel

opm

enta

l dis

abili

ties f

rom

acr

oss N

ew Y

ork

Stat

e.

Dav

id is

a ta

lent

ed p

hoto

grap

her f

rom

Reg

o Pa

rk, Q

ueen

s, w

ho e

njoy

s goi

ng o

ut in

to th

e co

mm

unity

to sh

oot.

Th e

fi rst

pr

ize

phot

o (b

elow

) was

take

n on

Que

ens B

oule

vard

not

far f

rom

whe

re h

e liv

es.

Whe

n D

avid

is n

ot a

ble

to g

o ou

t he

will

oft e

n w

ait f

or th

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ght t

ime

of d

ay to

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t im

ages

of t

he sk

y or

the

land

scap

e th

at is

his

neig

hbor

hood

. He

mak

es th

ese

imag

es fr

om v

iew

s he

has f

rom

a w

indo

w in

his

hom

e.

Voic

e! 6

feat

ured

seve

nty-

two

wor

ks o

f art

cre

ated

by

sixty

-tw

o ar

tists

repr

esen

ting

nine

teen

cou

ntie

s. E

leve

n aw

ards

to

talin

g $1

,000

in p

rize

mon

ey, i

nclu

ding

Dav

id’s

$300

Firs

t Pri

ze, w

ere

anno

unce

d at

the

exhi

bit’s

ope

ning

rece

ptio

n Ju

ly

16th a

t the

Mar

tin-M

ulle

n A

rt G

alle

ry, o

n th

e ca

mpu

s of t

he S

tate

Uni

vers

ity o

f New

Yor

k C

olle

ge a

t One

onta

. D

avid

pla

ns o

n up

grad

ing

his c

amer

a eq

uipm

ent w

ith h

is w

inni

ngs.

Awar

d-w

inni

ng p

hoto

by

Dav

id H

orsh

am

© D

avid

Hor

sham

200

9

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FINANCIAL REPORTC

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Page 20: Cerebral Palsy Associations of NYS - Annual Report · Cerebral Palsy Associations of New York State W hen we travel throughout New York State, visiting our many wonderful Affi liates,

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